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The use of Treatment and Education of Autistic and Related Communication Handicapped Children in schools to improve the ability of children with autism to complete tasks independently: A single-case meta-analysis 在学校使用《自闭症及相关交流障碍儿童的治疗与教育》来提高自闭症儿童独立完成任务的能力:单例荟萃分析。
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-02-21 DOI: 10.1111/cch.13234
Kun Zhou, Xinchao Liu, Shuting Li, Yuxin Zhang, Rui An, Siyue Ma

Objective

To investigate the effectiveness of a Treatment and Education of Autistic and Related Communication Handicapped Children (TEACCH) intervention in schools for improving independent task performance in children with autism spectrum disorders (ASD).

Methods

We screened relevant studies published up to December 2022 from Web of science, ERIC, PsycINFO and other databases using predefined inclusion/exclusion criteria to identify suitable intervention studies for meta-analysis. Tau-U effect sizes were calculated for each A-B comparison extracted from the included experiments. Moderated analyses were conducted to examine the type of intervention (independent variable), intervention target behaviours (dependent variable), participant characteristics, setting characteristics and intervener characteristics.

Results

A total of 14 studies (38 participants) met the criteria and were included in the meta-analysis. The analysis results showed that TEACCH had a significant intervention effect, and the overall intervention effect size was Tau-U = 0.85[0.77, 0.91]. There were significant differences in the intervention target behaviour variables (p < 0.01), limited variation in the intervention type variables, but no differences in participant characteristics, setting characteristics and intervenor characteristics.

Conclusion

The use of TEACCH is effective in improving independent task completion in children with ASD and provides evidence-based recommendations for its extended use in schools.

目的:研究自闭症及相关沟通障碍儿童治疗与教育(TEACCH)干预措施在学校提高自闭症谱系障碍儿童独立完成任务能力的效果:调查自闭症及相关交流障碍儿童治疗与教育(TEACCH)干预对提高自闭症谱系障碍(ASD)儿童独立完成任务能力的有效性:我们采用预定义的纳入/排除标准,从 Web of science、ERIC、PsycINFO 和其他数据库中筛选了截至 2022 年 12 月发表的相关研究,以确定适合进行荟萃分析的干预研究。从纳入的实验中提取的每项 A-B 对比都计算了 Tau-U 效应大小。对干预类型(自变量)、干预目标行为(因变量)、参与者特征、环境特征和干预者特征进行了调节分析:共有 14 项研究(38 名参与者)符合标准并被纳入荟萃分析。分析结果显示,TEACCH 具有显著的干预效果,总体干预效果大小为 Tau-U = 0.85[0.77, 0.91]。干预目标行为变量存在显着差异(p 结论:TEACCH的干预效果显着:TEACCH 的使用能有效提高 ASD 儿童独立完成任务的能力,并为其在学校的推广使用提供了循证建议。
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引用次数: 0
Caregivers' perspectives of community acceptance before and after surgical treatment for their child's disability 照顾者对子女残疾手术治疗前后社区接受程度的看法。
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-02-15 DOI: 10.1111/cch.13232
Kali Johnson, Kari Hartwig, Kristen Maisano, Ambria Crusan, Jennifer Biggs, Keira DiSpirito

In Tanzania, about 600 000 youth between 5 and 24 years old have a disability. Individuals with disabilities face numerous obstacles due to social stigma. The aim of this formative evaluation is to assess how caregivers of children with correctable disabilities (e.g., cleft lip/palate, club foot, and burn scar contractures) in Tanzania perceive their community's acceptance of their child before and after surgical treatment. Semi-structured interviews were conducted with 80 caregivers of children with disabilities treated at Kafika House in Arusha, Tanzania. The constant comparative method identified themes regarding the caregivers' feelings on their child's functional abilities and experiences of stigma in their community. Caregiver perceptions of stigma before and after surgical treatment were categorized and quantified as ‘positive’, ‘neutral’ and ‘negative’. Thematic analysis of the 80 interviews resulted in five major themes: (1) stigma and acceptance (pre-treatment) and (2) post-treatment; (3) functional abilities (pre-treatment) and (4) post-treatment; and (5) emotional impact (pre- and post-treatment). These themes indicate caregivers and their children experience a range of emotional impacts before and after treatment, more severe stigma before treatment, and overall better social, emotional and functional status after treatment. Frequency analysis of caregiver experiences indicated that stigma experienced by children and their families decreased from 75% before surgical treatment to 2.5% after surgery. Surgical intervention and rehabilitation of physical disabilities mitigated experiences of social stigma for both children and their caregivers. Findings support the need for expanded treatment of correctable disabilities, larger investments in community-based rehabilitation programmes and further interventions to support stigmatized parents and their children.

在坦桑尼亚,约有 60 万 5 至 24 岁的青年患有残疾。由于社会偏见,残疾人面临着重重障碍。本次形成性评估的目的是评估坦桑尼亚可矫正残疾儿童(如唇裂/腭裂、马蹄内翻足和烧伤疤痕挛缩)的照顾者在手术治疗前后如何看待社区对其子女的接纳程度。我们对在坦桑尼亚阿鲁沙卡菲卡之家接受治疗的 80 名残疾儿童的照顾者进行了半结构化访谈。通过不断比较的方法,确定了护理人员对其子女功能能力的感受以及在社区中的污名化经历的主题。护理人员在手术治疗前后对成见的看法被分为 "积极"、"中性 "和 "消极 "三类,并进行了量化。通过对 80 个访谈进行主题分析,得出了五大主题:(1) 耻辱感和接受度(治疗前)和 (2) 治疗后;(3) 功能能力(治疗前)和 (4) 治疗后;以及 (5) 情绪影响(治疗前和治疗后)。这些主题表明,护理者及其子女在治疗前后经历了一系列情感影响,治疗前的耻辱感更为严重,治疗后的社交、情感和功能状况总体上有所改善。对照顾者经历的频率分析表明,儿童及其家人所经历的耻辱感从手术治疗前的 75% 降至手术后的 2.5%。手术干预和身体残疾康复减轻了儿童及其照顾者的社会耻辱感。研究结果表明,有必要扩大可矫正残疾的治疗范围,加大对社区康复计划的投资,并采取进一步干预措施,为遭受鄙视的父母及其子女提供支持。
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引用次数: 0
A 9-year retrospective cohort study of the monitoring and screening of childhood developmental delay in Thailand 泰国儿童发育迟缓监测和筛查的九年回顾性队列研究
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-02-12 DOI: 10.1111/cch.13233
Vallop Thaineua, Samai Sirithongthaworn, Siripon Kanshana, Sirikul Isaranurak, Opart Karnkawinpong, Amporn Benjaponpitak, Suwanchai Wattanayingcharoen, Ekachai Piensrivachara, Pimwarat Srikummoon, Salinee Thumronglaohapun, Nawapon Nakharutai, Patrinee Traisathit, Duangkamol Tangviriyapaiboon

Background

Developmental delay in early childhood can have negative long-term cognitive and psychiatric sequelae, along with poor academic achievement, so early screening and surveillance are paramount. The aim of this study is to evaluate the impact of screening and surveillance on child developmental delay using the Developmental Surveillance and Promotion Manual (DSPM) and the Thai Early Developmental Assessment for Intervention (TEDA4I) for Thai children aged 0–5 years old.

Methods

Data were obtained from the routine developmental screening for specific disorders at ages 9, 18, 30, 42 and 60 months conducted using DSPM and TEDA4I from 2013 to 2021. Descriptive statistics were used to analyse the data, and the results are visualised graphically herein.

Results

Only 56% of the children were screened for child developmental delay using DSPM. The proportion of children screened increased from <1% in 2013 to 90% in 2021. Suspected developmental delay prevalence increased significantly from 3.91% in 2013–2015 to 10.00% in 2016–2018 and 26.48% in 2019–2021. Moreover, of the children with suspected developmental delay who received developmental stimulation within a month, only 87.9% returned for follow-up visits when they were evaluated again using TEDA4I to ascertain any abnormalities and specific areas of deficit. The overall proportion of children diagnosed with developmental delay was 1.29%. During the pandemic, the proportion of screening tests for child developmental delay at routine vaccination visits and follow-ups decreased but was still at least 80% in each region.

Conclusions

Since 1%–3% of children have suspected developmental delay, early detection is key to treating it as soon as possible. We anticipate that our findings will raise awareness in parents and caregivers about childhood developmental delay and lead to the implementation of early intervention and follow-up at the rural level in Thailand.

背景 儿童早期发育迟缓会对认知和精神造成长期的负面影响,同时还会导致学习成绩低下,因此早期筛查和监测至关重要。本研究的目的是使用《发育监测和促进手册》(DSPM)和《泰国早期发育干预评估》(TEDA4I)评估筛查和监测对 0-5 岁泰国儿童发育迟缓的影响。 方法 数据来自 2013 年至 2021 年使用《发育监测与促进手册》和 TEDA4I 对 9、18、30、42 和 60 个月大的儿童进行的特定疾病常规发育筛查。数据采用描述性统计方法进行分析,结果以图表形式呈现。 结果 只有 56% 的儿童通过 DSPM 筛查出儿童发育迟缓。接受筛查的儿童比例从 2013 年的 1%增至 2021 年的 90%。疑似发育迟缓患病率从 2013-2015 年的 3.91% 显著增至 2016-2018 年的 10.00% 和 2019-2021 年的 26.48%。此外,在一个月内接受发育刺激的疑似发育迟缓儿童中,只有87.9%的儿童在使用TEDA4I再次评估以确定是否存在异常和具体的缺陷领域时进行了回访。被诊断为发育迟缓的儿童总比例为 1.29%。大流行期间,在常规疫苗接种访问和随访中进行儿童发育迟缓筛查的比例有所下降,但在每个地区仍至少达到 80%。 结论 由于有 1%-3%的儿童疑似发育迟缓,因此早期发现是尽快治疗的关键。我们希望我们的研究结果能提高家长和看护人员对儿童发育迟缓的认识,从而在泰国农村地区实施早期干预和随访。
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引用次数: 0
The effects of neurofeedback training for children with cerebral palsy and co-occurring attention deficits: A pilot study 神经反馈训练对合并注意力缺陷的脑瘫儿童的影响:试点研究
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-01-30 DOI: 10.1111/cch.13231
Yuh-Chuan Chen, Wen-Pin Chang, Kai-Jie Liang, Chia-Ling Chen, Hsin-Yung Chen, Shu-Ping Chen, Pei-Ying S. Chan

Background

Limited research exists regarding the effectiveness of electroencephalogram (EEG) neurofeedback training for children with cerebral palsy (CP) and co-occurring attention deficits (ADs), despite the increasing prevalence of these dual conditions. This study aimed to fill this gap by examining the impact of neurofeedback training on the attention levels of children with CP and AD.

Methods

Nineteen children with both CP and co-occurring ADs were randomly assigned to either a neurofeedback or control group. The neurofeedback group received 20 sessions of training, lasting approximately 1 h per day, twice a week. Theta/beta ratios of the quantitative electroencephalography (QEEG) recordings were measured pre-training and post-training in the resting state. The Continuous Performance Test (CPT), the Test of Visual Perceptual Skills—3rd Version (TVPS-3) and the Conners' Parent Rating Scale (CPRS) were measured at pre- and post-training.

Results

The neurofeedback group showed both decreased theta/beta ratios compared with control group (p = 0.04) at post-training and a within-group improvement during training (p = 0.02). Additionally, the neurofeedback group had a trend of decreased omission rates of the CPT (p = 0.08) and the visual sequential memory and the visual closure subscores in the TVPS-3, compared with the control group (p = 0.02 and p = 0.01, respectively).

Conclusions

The results suggested that children with CP and co-occurring AD may benefit from neurofeedback training in their attention level. Further research is needed to explore long-term effects and expand its application in this population.

背景 关于脑电图(EEG)神经反馈训练对患有脑性瘫痪(CP)和并发注意力缺陷(AD)的儿童的有效性的研究十分有限,尽管这种双重疾病的发病率越来越高。本研究旨在通过研究神经反馈训练对 CP 和 AD 儿童注意力水平的影响来填补这一空白。 方法 将 19 名同时患有先天性脑瘫和并发注意力缺失症的儿童随机分配到神经反馈组或对照组。神经反馈组接受 20 次训练,每天约 1 小时,每周两次。在训练前和训练后的静息状态下,测量定量脑电图(QEEG)记录的θ/β比率。连续表现测试(CPT)、视知觉能力测试-第 3 版(TVPS-3)和康纳斯家长评定量表(CPRS)分别在训练前和训练后进行测量。 结果 与对照组相比,神经反馈组在训练后的θ/β比值均有所下降(p = 0.04),而且在训练期间组内的θ/β比值也有所提高(p = 0.02)。此外,与对照组相比(p = 0.02 和 p = 0.01),神经反馈组在 CPT(p = 0.08)、TVPS-3 中的视觉顺序记忆和视觉闭合分项中的遗漏率呈下降趋势。 结论 研究结果表明,神经反馈训练可帮助患有 CP 和并发注意力缺失症的儿童提高注意力水平。要探索神经反馈训练的长期效果并扩大其在这一人群中的应用,还需要进一步的研究。
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引用次数: 0
Recreational screen time behaviour among ambulatory children and adolescents diagnosed with cerebral palsy: A cross-sectional analysis 被诊断为脑瘫的儿童和青少年的娱乐屏幕时间行为:横断面分析。
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-01-22 DOI: 10.1111/cch.13221
Christina Esmann Fonvig, Jens Troelsen, Anders Holsgaard-Larsen

Aim

To describe the recreational screen time behaviour of 8–16-year-olds diagnosed with cerebral palsy (CP) and explore associations between health-related quality of life, sleep duration and physical activity behaviour versus screen time.

Methods

This cross-sectional study used proxy-reported questionnaire data of 381 ambulatory (with or without assistance) 8–16-year-olds diagnosed with CP corresponding to Gross Motor Function Classification System (GMFCS) levels I–III. Descriptive statistics were used to report age, sex and the GMFCS level. The potential associations of health-related quality of life, physical activity behaviour and sleep duration (dependent variables) versus screen time (independent variable) were determined using multiple linear regression. Health-related quality of life was evaluated using the Pediatric Quality of Life Inventory, including seven dimensions: Daily Activities; School Activities; Movement and Balance; Pain and Hurt; Fatigue; Eating Activities; and Speech and Communication.

Results

The participants spent a median screen time of 3.9 h daily. The boys spent a longer screen time during weekends than the girls (p = 0.003). Boys spent more time on games (p < 0.001), whereas girls spent more time on social media and video calls (p < 0.001). Increasing age (p < 0.001) was associated with increased screen time but did not differ between the GMFCS levels. Sleep duration, perceived fatigue and perceived movement and balance correlated negatively with screen time.

Conclusion

This study sheds light on the recreational screen time habits of ambulatory children and adolescents diagnosed with CP. Further investigation into the observed associations is warranted to investigate potential causation and relationships between sleep behaviour, quality of life and screen time behaviour.

目的:描述被诊断为脑瘫(CP)的 8-16 岁儿童的娱乐性屏幕时间行为,并探讨健康相关生活质量、睡眠时间和体育活动行为与屏幕时间之间的关联:这项横断面研究使用了 381 名 8-16 岁可活动(有或无辅助)的确诊为 CP 的儿童的代理报告问卷数据,这些儿童的运动功能分级系统(GMFCS)级别为 I-III。描述性统计用于报告年龄、性别和 GMFCS 分级。使用多元线性回归法确定了健康相关生活质量、体力活动行为和睡眠时间(因变量)与屏幕时间(自变量)之间的潜在关联。健康相关生活质量采用儿科生活质量量表进行评估,包括七个方面:日常活动、学校活动、运动和平衡、疼痛和伤害、疲劳、进食活动以及语言和交流:参与者每天花在屏幕上的时间中位数为 3.9 小时。男生在周末使用屏幕的时间比女生长(p = 0.003)。男生花在游戏上的时间更长(p 结论:这项研究揭示了休闲娱乐对儿童的影响:本研究揭示了被诊断患有脊髓灰质炎的儿童和青少年的娱乐屏幕时间习惯。有必要对观察到的关联进行进一步调查,以研究睡眠行为、生活质量和屏幕时间行为之间的潜在因果关系。
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引用次数: 0
Correction to “Screen time and childhood overweight/obesity: A systematic review and meta-analysis” 更正 "屏幕时间与儿童超重/肥胖:系统回顾和荟萃分析"
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-01-19 DOI: 10.1111/cch.13203

Fang, K., Mu, M., Liu, K., He, Y. Screen time and childhood overweight/obesity: A systematic review and meta-analysis. Child Care Health Dev. 2019; 45: 744–753. https://doi.org/10.1111/cch.12701

All references to race have been removed throughout the above article. This change does not affect the article's conclusions. The journal Editor-in-Chief, Jan Willem Gorter, approved this correction.

Fang,K.,Mu,M.,Liu,K.,He,Y. Screen time and childhood overweight/obesity:系统回顾和荟萃分析。儿童保健发展》。2019; 45: 744-753。https://doi.org/10.1111/cch.12701All,上述文章中提及种族的内容已被删除。这一改动并不影响文章的结论。期刊主编 Jan Willem Gorter 批准了这一更正。
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引用次数: 0
Family responsive care mediating the home visiting effects on left-behind children's early development in rural China 中国农村留守儿童早期发展的家访效应--家庭响应式照料的中介作用
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-01-19 DOI: 10.1111/cch.13226
Mengshi Li, Yufeng Du, Chunxia Zhao, Huifeng Shi, Xiaoli Wang, Jingxu Zhang

Background

The early development of left-behind children requires great concern and improvement. Yet, current interventions for left-behind children are mainly focussed on children older than 3. This study aims to assess the effectiveness of a home visiting programme on family responsive care and early development of rural left-behind children and examine whether family responsive care mediates the effects of intervention on child development.

Methods

A quasi-experimental study design was utilized in this study. A stratified clustered sampling was employed to choose villages in programme towns into intervention group. A control village was matched with every intervention village. All of the left-behind children and their caregivers meeting the inclusion criteria in the chosen villages were enrolled in the survey. The outcomes included child development, caregiver's early stimulation, parent–child communication, and learning materials. Baseline assessments were conducted in 2018, and endline assessments were conducted in 2020.

Results

In the endline survey, we enrolled 608 children with 258 in the intervention group and 350 in the control group. Left-behind children in the intervention group were less likely to have development delay compared with the control group (odds ratio [OR] = 0.59, 95% confidence interval [CI]: 0.36, 0.96). Migrant parents of children in the intervention group showed higher proportion of expressing emotional support to their children when communicating (OR = 1.69, 95% CI: 1.05, 2.72). Children who received home visits more than once per 2 months had lower level of suspected development delay than children in the control group (OR = 0.34, 95% CI: 0.18, 0.68). Caregiver's early stimulation and migrant parents' emotional support to left-behind children mediated the intervention dose and left-behind children's development.

Conclusion

Caregiver's early stimulation mediates the intervention and child's development. The findings suggest a promising future for scaling similar early childhood development interventions for left-behind children in rural settings.

背景 留守儿童的早期发展需要得到高度关注和改善。然而,目前针对留守儿童的干预措施主要针对 3 岁以上的儿童。本研究旨在评估家访计划对农村留守儿童的家庭回应性照料和早期发展的效果,并探讨家庭回应性照料是否会对干预措施对儿童发展的影响产生中介作用。 方法 本研究采用准实验研究设计。研究采用分层聚类抽样的方法,在计划实施乡镇中选择村庄进入干预组。每个干预村都有一个对照村。所选村庄中所有符合纳入标准的留守儿童及其看护人都被纳入调查。调查结果包括儿童发展、照顾者的早期刺激、亲子沟通和学习材料。基线评估于 2018 年进行,终点评估于 2020 年进行。 结果 在终点调查中,我们共招募了 608 名儿童,其中干预组 258 名,对照组 350 名。与对照组相比,干预组的留守儿童出现发育迟缓的可能性较低(几率比[OR] = 0.59,95%置信区间[CI]:0.36,0.96)。干预组儿童的外来务工父母在与子女交流时表达情感支持的比例较高(OR = 1.69,95% 置信区间 [CI]:1.05, 2.72)。与对照组儿童相比,每两个月接受一次以上家访的儿童疑似发育迟缓的程度较低(OR = 0.34,95% CI:0.18,0.68)。照顾者的早期刺激和外来务工父母对留守儿童的情感支持对干预剂量和留守儿童的发展有中介作用。 结论 照料者的早期刺激对干预和留守儿童的发展具有中介作用。研究结果表明,在农村地区推广类似的留守儿童早期发展干预措施前景广阔。
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引用次数: 0
Diagnostic services for developmental coordination disorder: Gaps and opportunities identified by parents 发育协调障碍的诊断服务:家长发现的差距和机遇
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-01-16 DOI: 10.1111/cch.13230
Erin S. Klein, Melissa Licari, Skye Barbic, Jill G. Zwicker

Background

Affecting one in 20 children, Developmental Coordination Disorder (DCD) is a common neurodevelopmental disorder impacting a child's ability to learn motor skills. Despite its high prevalence, DCD is under-recognized and under-diagnosed, causing unnecessary frustration and stress for families who are seeking help for their child. This study aimed to understand how parents procure diagnostic services and their perspectives on needed supports and services to improve early identification and diagnosis of DCD.

Methods

Using a multi-pronged recruitment strategy, we circulated the impACT for DCD online questionnaire to parents of children (<18 years) in British Columbia with suspected or diagnosed DCD. Data were analysed descriptively using medians/interquartile ranges for continuous data and frequencies/percentages for categorical data. Open-ended questions were analysed using exploratory content analysis.

Results

A total of 237 respondent data were analysed. Parents identified poor awareness and understanding of health care professionals and educators regarding aetiology, symptomology, and impacts of DCD, affecting timely access to diagnostic services. Long waitlists were also a barrier that often led families with financial means to procure private diagnostic assessments.

Conclusion

A standard of care is needed for streamlined diagnostic services, enabling early identification and early intervention. A publicly funded, family-centred, collaborative care approach is critical to assess, diagnose, and treat children with this disorder and to mitigate the secondary physical and mental health consequences associated with DCD.

背景发育协调障碍(DCD)是一种常见的神经发育障碍,每 20 名儿童中就有一名患儿,会影响儿童学习运动技能的能力。尽管其发病率很高,但 DCD 却未得到充分认识和诊断,这给为孩子寻求帮助的家庭带来了不必要的挫折和压力。本研究旨在了解家长如何获得诊断服务,以及他们对所需支持和服务的看法,以改善 DCD 的早期识别和诊断。 方法 我们采用多管齐下的招募策略,向不列颠哥伦比亚省疑似或确诊为 DCD 的儿童(18 岁)的家长分发了 DCD impACT 在线调查问卷。对于连续性数据,我们采用中位数/四分位数范围对数据进行描述性分析;对于分类数据,我们采用频率/百分比对数据进行描述性分析。开放式问题采用探索性内容分析法进行分析。 结果 共分析了 237 名受访者的数据。家长们发现,医护人员和教育工作者对 DCD 的病因、症状和影响缺乏认识和了解,影响了他们及时获得诊断服务。漫长的等待时间也是一个障碍,这往往导致有经济能力的家庭购买私人诊断评估。 结论 需要一个简化诊断服务的护理标准,以实现早期识别和早期干预。由政府资助、以家庭为中心的协作式护理方法对于评估、诊断和治疗患有这种疾病的儿童以及减轻与 DCD 相关的继发性身心健康后果至关重要。
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引用次数: 0
An investigation of computer-game addiction, physical activity level, quality of life and sleep of children with a sibling with a chronic condition 对有兄弟姐妹患有慢性病的儿童的电脑游戏成瘾、体育活动水平、生活质量和睡眠情况的调查
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-01-16 DOI: 10.1111/cch.13228
Sabiha Bezgin, Yunus Özkaya, Yılmaz Akbaş, Bülent Elbasan

Background

It is known that chronic condition also affects siblings without chronic illness. Healthy siblings of children with a chronic condition and aged 9–14 years and healthy children with a sibling without chronic illness and their parents were included in the study.

Aim

The aim of our study was to examine the internet-game addiction, physical activity, quality of life and sleep in children with a sibling with chronic condition and compare them with their peers with a healthy sibling.

Methods

Computer game addiction, physical activity, sleep quality and quality of life were evaluated respectively by Computer Game Addiction Scale for Children, Child Physical Activity Questionnaire, Children's Sleep Disorder Scale and Children's Quality of Life Scale.

Results

While the mean age of 75 children with chronically ill siblings was 10.65 ± 1.59 years, the mean age of 75 healthy children with healthy siblings was 10.46 ± 2.09 years. It was observed that children with a sibling with a chronic condition were more tend to computer-game addiction, had lower sleep quality, lower quality of life in terms of school functionality and psychosocial health compared to children with a healthy sibling (p < 0.05).

Conclusions

It was revealed that in families with children with a chronic condition, siblings with no health problems should also be evaluated in psychosocial terms and supported by appropriate approaches, such as to increase the level of physical activity.

背景 据了解,慢性疾病也会影响无慢性疾病的兄弟姐妹。研究对象包括 9-14 岁患有慢性疾病的健康儿童的兄弟姐妹,以及无慢性疾病的健康儿童的兄弟姐妹及其父母。 目的 我们的研究旨在调查有兄弟姐妹患有慢性病的儿童的网络游戏成瘾、体力活动、生活质量和睡眠情况,并将他们与有健康兄弟姐妹的儿童进行比较。 方法 通过儿童电脑游戏成瘾量表、儿童体力活动问卷、儿童睡眠障碍量表和儿童生活质量量表分别对电脑游戏成瘾、体力活动、睡眠质量和生活质量进行评估。 结果 75 名有兄弟姐妹患有慢性病的儿童的平均年龄为(10.65 ± 1.59)岁,而 75 名有健康兄弟姐妹的健康儿童的平均年龄为(10.46 ± 2.09)岁。研究发现,与兄弟姐妹健康的儿童相比,兄弟姐妹患有慢性疾病的儿童更容易沉迷于电脑游戏,睡眠质量更低,在学校功能和社会心理健康方面的生活质量也更低(p < 0.05)。 结论 研究表明,在有慢性病患儿的家庭中,也应对没有健康问题的兄弟姐妹进行社会心理评估,并采取适当的方法给予支持,如增加体育锻炼。
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引用次数: 0
The development and validation of the S-scan-parental self-management support (S-scan - PS): A self-reflection tool for child healthcare professionals 家长自我管理支持扫描(S-scan - PS)的开发与验证:儿童医疗保健专业人员的自我反思工具
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-01-12 DOI: 10.1111/cch.13223
Ruud Wong Chung, Agnes Willemen, Amber Bakker, Jolanda Maaskant, Jeanine Voorman, Jules Becher, Carlo Schuengel, Mattijs Alsem

Background

Professionals providing self-management support to parents regarding the care for their child with a chronic condition nowadays is an important aspect of child healthcare. This requires professionals to orient themselves towards partnership and collaboration with parents. The aims of the current study were the development and validation of the S-Scan-Parental self-management Support (S-scan - PS) as a tool for healthcare professionals to reflect on their attitude and practices regarding the support for parental self-management.

Methods

An existing instrument was adapted together with field experts for professionals to self-evaluate their support for self-management of parents. The resulting 36-item self-report questionnaire was filled in by healthcare professionals in the Netherlands working with children and their parents. Cognitive interviews, exploratory and confirmatory factor analysis (CFA), and test–retest reliability analysis were part of the development and validation process.

Results

In total, 434 professionals, including physicians, physiotherapists, occupational therapists, and nurses, from 13 rehabilitation institutes and 5 medical centres participated. The cognitive interviews with child healthcare professionals indicated adequate face and content validity. The S-scan - PS scale had acceptable internal consistency (0.71 ≤ α ≤ 0.91) for the total score as well as the domain scores. CFA showed acceptable root mean square error of approximation (RMSEA) model fit (0.066), though not on other tested goodness-of-fit indices. Test–retest reliability of the instrument was moderate with an average intraclass correlation coefficient (ICC) = 0.61.

Conclusions

The S-scan - PS fulfils important psychometric criteria for use by child healthcare professionals to reflect on parental self-management support. Such self-reflection might help to improve their approach towards supporting self-management of parents in the care for their child with a chronic condition. Further research is needed into the construct validity and test–retest reliability of the instrument.

背景 如今,专业人员为患有慢性疾病的儿童的家长提供自我管理方面的支持,是儿童医疗保健的一个重要方面。这就要求专业人员与家长建立伙伴关系和合作关系。本研究的目的是开发和验证 "家长自我管理支持扫描"(S-scan - PS),作为医护人员反思自己在支持家长自我管理方面的态度和做法的工具。 方法 我们与现场专家一起对现有工具进行了改编,以便专业人员自我评估他们对家长自我管理的支持。荷兰从事儿童及其家长工作的医疗保健专业人员填写了这份包含 36 个项目的自我报告问卷。认知访谈、探索性和确认性因子分析(CFA)以及测试-再测试可靠性分析是开发和验证过程的一部分。 结果 共有来自 13 家康复机构和 5 家医疗中心的 434 名专业人员(包括医生、物理治疗师、职业治疗师和护士)参加了调查。对儿童医护专业人员的认知访谈表明,该量表在表面和内容上都具有充分的有效性。S-scan - PS量表的总分和领域分的内部一致性(0.71 ≤ α ≤ 0.91)均可接受。CFA显示模型拟合的均方根误差(RMSEA)为0.066,可以接受,但其他测试的拟合优度指标不符合要求。该工具的重测可靠性为中等,平均类内相关系数(ICC)= 0.61。 结论 S-scan - PS 符合重要的心理测量标准,可供儿童医疗保健专业人员用于反思家长对自我管理的支持。这种自我反思可能有助于改进他们在护理慢性病患儿时支持家长自我管理的方法。我们还需要进一步研究该工具的构建有效性和重复测试可靠性。
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引用次数: 0
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Child Care Health and Development
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