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Effectiveness of therapeutic interventions on participation in children with cerebral palsy: A systematic review and meta-analysis 治疗干预对脑瘫儿童参与的有效性:系统回顾和荟萃分析。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-03 DOI: 10.1111/cch.13301
Rigas Dimakopoulos, Theodora Vakalaki, Arietta Spinou, Ioannis Michopoulos, Μarianna Papadopoulou

Background

Participation in life activities is an integral part of health and a main outcome of rehabilitation services for children and adolescents with disabilities. However, there is still no consensus on the most effective way to improve participation. The aim of this systematic review is to determine the effectiveness of therapeutic interventions on participation outcomes of children with cerebral palsy (CP).

Methods

A systematic review was conducted, searching the databases PubMed, Cochrane Library, Science Direct, Web of Science and Scopus for randomized controlled trials (RCTs), between 2001 and 2023. Studies were eligible for inclusion if they evaluated children with CP undergoing any intervention and using any tool measuring participation as an outcome measure. A meta-analysis of treatment effect was conducted. A sensitivity analysis was conducted to identify the effect on participation when intervention targeted different International Classification of Functioning (ICF) domains.

Results

A total of 1572 records were identified. Eight RCTs including 384 children (195 in the intervention group and 189 in the control group) were included in the systematic review and in the meta-analysis. A sensitivity analysis showed that interventions focusing on participation significantly improved participation; standardized mean difference (1.83; 95% CI: 1.33–2.32; Z = 7.21; P < 0.00001). When other types of interventions, that is, focusing on body functions and structures or activities, were used, then participation was not favourably affected.

Interpretation

Interventions primarily targeting barriers to participation across several ICF domains have a greater influence on enhancing participation. Interventions aimed at enhancing specific motor skills, including gross and fine motor function or strength, do not necessarily have a positive impact on participation.

背景:参与生活活动是健康的组成部分,也是残疾儿童和青少年康复服务的主要成果。然而,对于提高参与度的最有效方法仍未达成共识。本系统综述旨在确定治疗干预对脑瘫(CP)儿童参与结果的有效性:方法:我们在 PubMed、Cochrane Library、Science Direct、Web of Science 和 Scopus 等数据库中搜索了 2001 年至 2023 年间的随机对照试验 (RCT),并进行了系统性综述。如果研究对接受任何干预措施的 CP 儿童进行了评估,并使用任何测量参与度的工具作为结果测量指标,则符合纳入条件。对治疗效果进行了荟萃分析。还进行了一项敏感性分析,以确定针对不同国际功能分类(ICF)领域的干预对参与的影响:共找到 1572 条记录。系统综述和荟萃分析共纳入了 8 项研究性试验,其中包括 384 名儿童(干预组 195 人,对照组 189 人)。敏感性分析表明,以参与为重点的干预措施显著提高了参与度;标准化平均差(1.83;95% CI:1.33-2.32;Z = 7.21;P 解释:主要针对多个 ICF 领域的参与障碍的干预措施对提高参与度的影响更大。旨在提高特定运动技能(包括粗大和精细运动功能或力量)的干预措施并不一定会对参与产生积极影响。
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引用次数: 0
The bidirectional relationship between peer relationships and bullying: Evidence from cross-lagged analyses among Chinese children 同伴关系与欺凌之间的双向关系:中国儿童的跨滞后分析证据。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-02 DOI: 10.1111/cch.13302
Qing Li, Xiaowei Chu, Yuxin Yang, Yunzhen Jia

Background

In the digital age, bullying manifests in two distinct forms: traditional bullying and cyberbullying. Children's peer relationships are important predictors of bullying, and bullying in turn predicts peer relationships. However, few researchers have noted the bidirectional relationship between peer relationships and bullying.

Methods

The present study used a two-wave cross-lagged longitudinal design to fill this gap. The potential sex differences were also examined in this relationship. The sample consisted of 527 Chinese children aged 8 to 12 years (M = 9.69, SD = .96; 53.5% female). Participants completed peer nominations for peer acceptance, peer rejection and social dominance, as well as self-reports of traditional bullying and cyberbullying.

Results

Results showed that peer rejection at the first time point (T1) significantly and positively predicted traditional bullying perpetration, cyberbullying perpetration and cyberbullying victimization at the second time point (T2). Traditional bullying victimization at T1 significantly and negatively predicted peer acceptance and social dominance at T2. The results also revealed significant male and female differences. For instance, among boys, peer acceptance at T1 significantly and negatively predicted cyberbullying victimization at T2. In contrast, this relationship was not observed among girls. The present findings have important implications for understanding the cyclical relationship between peer relationships and bullying and providing practical guidance for improving peer relationships and reducing bullying.

背景:在数字时代,欺凌有两种不同的表现形式:传统欺凌和网络欺凌。儿童的同伴关系是预测欺凌行为的重要因素,而欺凌行为又反过来预测同伴关系。然而,很少有研究人员注意到同伴关系与欺凌之间的双向关系:本研究采用两波交叉滞后纵向设计来填补这一空白。本研究采用两波交叉滞后纵向设计,填补了这一空白,同时还考察了这一关系中潜在的性别差异。样本由 527 名 8 至 12 岁的中国儿童组成(男 = 9.69,女 SD = .96;53.5% 为女性)。受试者填写了同伴接受、同伴拒绝和社会主导地位的同伴提名,以及传统欺凌和网络欺凌的自我报告:结果表明,在第一个时间点(T1),同伴拒绝对第二个时间点(T2)的传统欺凌行为、网络欺凌行为和网络欺凌受害情况有显著的正向预测作用。T1 阶段的传统欺凌受害情况对 T2 阶段的同伴接纳和社会主导地位有明显的负向预测作用。研究结果还显示了明显的男女差异。例如,在男生中,T1 阶段的同伴接纳度对 T2 阶段的网络欺凌受害情况有明显的负向预测作用。相反,在女生中却没有观察到这种关系。本研究结果对于理解同伴关系与欺凌之间的周期性关系具有重要意义,并为改善同伴关系和减少欺凌提供了实际指导。
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引用次数: 0
Validating the Ontario Child Health Study Emotional Behavioural Scales-Brief Version (OCHS-EBS-B) in children with chronic physical illness 验证安大略省儿童健康研究情绪行为量表简易版(OCHS-EBS-B)在患有慢性身体疾病的儿童中的应用。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-02 DOI: 10.1111/cch.13300
Mark A. Ferro, Olayinka I. Arimoro, Olawale F. Ayilara, Gurkiran K. Dhuga, Laura Duncan, Tolulope T. Sajobi

Background

A substantial proportion of children have a physical illness; these children commonly experience physical–mental comorbidity. To assess child mental health, brief scales that can be used in clinical and research settings are needed. This study assessed the validity and reliability of parent-reported Ontario Child Health Study Emotional Behavioural Scale-Brief Version (OCHS-EBS-B) scores.

Methods

Data come from a longitudinal study of children aged 2–16 years with a physical illness recruited from outpatient clinics at a pediatric hospital. Confirmatory factor analysis and McDonald's coefficient assessed the factor structure and internal consistency reliability of the OCHS-EBS-B, respectively. Point biserial correlations assessed agreement between the OCHS-EBS-B and Mini International Neuropsychiatric Interview for Children and Adolescents (MINI-KID), a structured diagnostic interview. The Wilcoxon rank sum test compared OCHS-EBS-B scores between children with versus without physical–mental comorbidity (known-group validity).

Results

The three-factor structure of the OCHS-EBS-B was replicated in this sample of children with physical illness (χ2 = 196.23(272), p < 0.001; CFI = 0.98; TLI = 0.98; SRMR = 0.06; RMSEA [90% CI] = 0.034 [0.027, 0.044]). It had excellent internal consistency reliability (ω = 0.86–0.92) and was moderately correlated with the MINI-KID (baseline: rpb = 0.43–0.51; 6 months: rpb = 0.55–0.65). OCHS-EBS-B scores were significantly higher among children with versus without physical–mental comorbidity.

Conclusions

Findings confirm psychometric evidence that the OCHS-EBS-B is a valid and reliable measure of mental health in children with chronic physical illness. Its brevity and robust psychometric properties make the OCHS-EBS-B a strong candidate for routine use in integrated pediatric physical and mental health services.

背景:相当一部分儿童患有躯体疾病;这些儿童通常会出现躯体和精神并发症。为了评估儿童心理健康状况,需要可用于临床和研究环境的简明量表。本研究评估了家长报告的安大略省儿童健康研究情绪行为量表简明版(OCHS-EBS-B)分数的有效性和可靠性:数据来自一项纵向研究,研究对象是一家儿科医院门诊部招募的 2-16 岁患有身体疾病的儿童。确认性因子分析和麦克唐纳系数分别评估了 OCHS-EBS-B 的因子结构和内部一致性可靠性。点双项相关性评估了 OCHS-EBS-B 与结构化诊断访谈--儿童和青少年迷你国际神经精神访谈(MINI-KID)之间的一致性。Wilcoxon秩和检验比较了有躯体和精神合并症儿童与无合并症儿童的OCHS-EBS-B得分(已知组有效性):结果:OCHS-EBS-B的三因素结构在躯体疾病儿童样本中得到了复制(χ2 = 196.23(272),p pb = 0.43-0.51;6个月:rpb = 0.55-0.65)。有躯体和精神并发症的儿童与无躯体和精神并发症的儿童相比,OCHS-EBS-B得分明显更高:研究结果证实,心理测量学证据表明,OCHS-EBS-B 是一种有效、可靠的慢性躯体疾病儿童心理健康测量方法。OCHS-EBS-B简洁明了,心理测量特性稳健,非常适合在儿科身心健康综合服务中常规使用。
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引用次数: 0
The effectiveness of exergames in improving physical activity behaviour and physical literacy domains in adolescents with developmental coordination disorder and cerebral palsy: A scoping review 外部游戏在改善患有发育协调障碍和脑瘫的青少年的体育活动行为和体育素养方面的有效性:范围综述。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-02 DOI: 10.1111/cch.13293
Taha Yassine Temlali, Jessica Lust, Sandra Klaperski-van der Wal, Bert Steenbergen

Background

A large proportion of adolescents with developmental coordination disorder (DCD) are physically inactive. Physical literacy has been described as an important determinant in promoting health behaviours. The potential of exergames to improve physical literacy and activity has been recognized in typically developing children. The aim of the present scoping review was to identify and map the available evidence of this potential for adolescents with DCD.

Methods

A scoping review was performed via a literature search in PubMed, Web of Science, Embase, ERIC and CINHAIL.

Results

From 2860 search records, six studies (two studies in DCD and four studies in cerebral palsy [CP]) assessed physical activity, 12 studies discussed exergame features and 16 studies assessed physical literacy domains. In DCD, one study showed positive effects of exergaming on physical activity and the other failed to show any significant effects of exergaming. In CP, all four studies demonstrated positive effects of exergaming on energy expenditure and daily physical activity. Furthermore, positive effects of exergames on the different physical literacy domains were shown, namely motor competence, self-concept and affect, motivation and social/experiential. Finally, exergame features including multiplayer modes, realism, game rewards, challenges and enjoyment were shown to have a significant effect on motivating and encouraging adolescents to exert more effort while playing.

Conclusion

Based on the positive effects of exergaming on physical activity in other populations, more in-depth research in adolescents with DCD is warranted such that the decline in physical activity behaviour that is present in individuals with DCD can be counteracted. Physical literacy should be regarded as an important determinant in this regard.

背景:很大一部分患有发育协调障碍(DCD)的青少年缺乏运动。体育素养被认为是促进健康行为的重要决定因素。在发育正常的儿童中,体外游戏在提高体育素养和活动能力方面的潜力已得到认可。本范围综述旨在确定和绘制有关 DCD 青少年的这种潜力的现有证据:方法:通过在 PubMed、Web of Science、Embase、ERIC 和 CINHAIL 中进行文献检索,对范围进行了界定:从 2860 条搜索记录中,有 6 项研究(2 项针对 DCD,4 项针对脑瘫 [CP])评估了体育活动,12 项研究讨论了外显游戏的特点,16 项研究评估了体育素养领域。其中一项研究表明,外显子游戏对DCD患者的体能活动有积极影响,另一项研究则未表明外显子游戏有任何显著影响。在儿童慢性阻塞性肺病方面,所有四项研究都显示了外部游戏对能量消耗和日常体力活动的积极影响。此外,外部游戏还对不同的体育素养领域产生了积极影响,即运动能力、自我概念和情感、动机和社交/体验。最后,包括多人游戏模式、逼真度、游戏奖励、挑战和乐趣在内的外部游戏特征对激励和鼓励青少年在游戏中付出更多努力具有显著效果:基于外部游戏在其他人群中对体育锻炼的积极影响,有必要对患有障碍性疾病的青少年进行更深入的研究,以应对患有障碍性疾病的青少年体育锻炼行为下降的问题。在这方面,体育素养应被视为一个重要的决定因素。
{"title":"The effectiveness of exergames in improving physical activity behaviour and physical literacy domains in adolescents with developmental coordination disorder and cerebral palsy: A scoping review","authors":"Taha Yassine Temlali,&nbsp;Jessica Lust,&nbsp;Sandra Klaperski-van der Wal,&nbsp;Bert Steenbergen","doi":"10.1111/cch.13293","DOIUrl":"10.1111/cch.13293","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>A large proportion of adolescents with developmental coordination disorder (DCD) are physically inactive. Physical literacy has been described as an important determinant in promoting health behaviours. The potential of exergames to improve physical literacy and activity has been recognized in typically developing children. The aim of the present scoping review was to identify and map the available evidence of this potential for adolescents with DCD.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A scoping review was performed via a literature search in PubMed, Web of Science, Embase, ERIC and CINHAIL.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>From 2860 search records, six studies (two studies in DCD and four studies in cerebral palsy [CP]) assessed physical activity, 12 studies discussed exergame features and 16 studies assessed physical literacy domains. In DCD, one study showed positive effects of exergaming on physical activity and the other failed to show any significant effects of exergaming. In CP, all four studies demonstrated positive effects of exergaming on energy expenditure and daily physical activity. Furthermore, positive effects of exergames on the different physical literacy domains were shown, namely motor competence, self-concept and affect, motivation and social/experiential. Finally, exergame features including multiplayer modes, realism, game rewards, challenges and enjoyment were shown to have a significant effect on motivating and encouraging adolescents to exert more effort while playing.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Based on the positive effects of exergaming on physical activity in other populations, more in-depth research in adolescents with DCD is warranted such that the decline in physical activity behaviour that is present in individuals with DCD can be counteracted. Physical literacy should be regarded as an important determinant in this regard.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.13293","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141494348","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Refugee and asylum-seeker children and health problems in the city of Duzce, Türkiye 图尔基耶杜兹采市的难民和寻求庇护儿童与健康问题。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-06-26 DOI: 10.1111/cch.13295
Hatice Mine Cakmak, Kenan Kocabay, Ramazan Cahit Temizkan, Sevim Turay, Sukriye Ozde, Fatih Kurt, Nadide Melike Sav, Muferet Erguven, Emel Coşkun

Introduction

This study examines the health problems and healthcare needs of refugee and asylum-seeker children and aims to develop strategies for improvement.

Methods

Based on quantitative data from 448 refugee and asylum-seeker children and 222 non-refugee local children, this study was conducted at Düzce University, Department of Paediatrics, between 2010 and 2021. The refugee children originated from three countries: Iraq (n = 304), Syria (n = 101) and Afghanistan (n = 43). The data were analysed using the SPSS data analysis program. Ethical clearance was obtained from the Ethics Committee of Düzce Üniversity.

Results

The results suggest that refugee and asylum-seeker children have significantly higher rates of acute illness or infection, malnutrition (p < 0.001) and anaemia (p < 0.001) than local children as a result of living in overcrowded families (p = 0.017) and unhealthy conditions. Adolescent pregnancy (p = 0.049) emerges as an important social problem as a result of child marriage among refugee children, mostly in the form of consanguineous marriages (p < 0.001). The rate of having at least two adolescent pregnancies (under 18) was highest among Syrian refugee girls (p = 0.01). Although refugee and asylum-seeker children have higher rates of health insurance (between 74% and 95%), they have lower rates of insurance compared to local children. This research also compares the data from three nationalities, including Syria, Afghanistan and Iraq children; Iraqi and Afghan children under the international protection (IP) system with limited social support and rights had worse health conditions compared to other groups. Although Iraqi children had the highest rates of health insurance on admission (p < 0.001), they also had higher rates of chronic diseases (p = 0.001), infections (p = 0.004), allergic rhinitis (p = 0.001) and malnutrition (p < 0.001). The youngest age of admission (p = 0.006) and the shortest length of stay (p = 0.004) were for Afghan children who also had higher rates of upper respiratory infections (p = 0.021).

Conclusions

This study highlights the urgent need for improved screening programmes and the importance of collaborative efforts to address the specific health needs of these populations. Addressing the health status of child refugees is a complex and multifaceted task that requires the active participation of healthcare profess

简介:本研究探讨了难民儿童和寻求庇护儿童的健康问题和医疗需求,旨在制定改善战略:本研究探讨了难民儿童和寻求庇护儿童的健康问题和医疗需求,旨在制定改善策略:本研究基于 448 名难民儿童和寻求庇护儿童以及 222 名非难民当地儿童的定量数据,于 2010 年至 2021 年期间在杜塞大学儿科系进行。难民儿童来自三个国家:伊拉克(304 人)、叙利亚(101 人)和阿富汗(43 人)。数据使用 SPSS 数据分析程序进行分析。研究获得了杜兹兹大学伦理委员会的伦理许可:结果表明,难民和寻求庇护者儿童患急性疾病或感染、营养不良的比例明显较高:这项研究强调了改进筛查计划的迫切性,以及共同努力满足这些人群特殊健康需求的重要性。解决难民儿童的健康问题是一项复杂而多方面的任务,需要医疗保健专业人员、政策制定者和研究人员的积极参与,他们每个人都可以发挥关键作用。
{"title":"Refugee and asylum-seeker children and health problems in the city of Duzce, Türkiye","authors":"Hatice Mine Cakmak,&nbsp;Kenan Kocabay,&nbsp;Ramazan Cahit Temizkan,&nbsp;Sevim Turay,&nbsp;Sukriye Ozde,&nbsp;Fatih Kurt,&nbsp;Nadide Melike Sav,&nbsp;Muferet Erguven,&nbsp;Emel Coşkun","doi":"10.1111/cch.13295","DOIUrl":"10.1111/cch.13295","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>This study examines the health problems and healthcare needs of refugee and asylum-seeker children and aims to develop strategies for improvement.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Based on quantitative data from 448 refugee and asylum-seeker children and 222 non-refugee local children, this study was conducted at Düzce University, Department of Paediatrics, between 2010 and 2021. The refugee children originated from three countries: Iraq (<i>n</i> = 304), Syria (<i>n</i> = 101) and Afghanistan (<i>n</i> = 43). The data were analysed using the SPSS data analysis program. Ethical clearance was obtained from the Ethics Committee of Düzce Üniversity.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The results suggest that refugee and asylum-seeker children have significantly higher rates of acute illness or infection, malnutrition (<i>p</i> &lt; 0.001) and anaemia (<i>p</i> &lt; 0.001) than local children as a result of living in overcrowded families (<i>p</i> = 0.017) and unhealthy conditions. Adolescent pregnancy (<i>p</i> = 0.049) emerges as an important social problem as a result of child marriage among refugee children, mostly in the form of consanguineous marriages (<i>p</i> &lt; 0.001). The rate of having at least two adolescent pregnancies (under 18) was highest among Syrian refugee girls (<i>p</i> = 0.01). Although refugee and asylum-seeker children have higher rates of health insurance (between 74% and 95%), they have lower rates of insurance compared to local children. This research also compares the data from three nationalities, including Syria, Afghanistan and Iraq children; Iraqi and Afghan children under the international protection (IP) system with limited social support and rights had worse health conditions compared to other groups. Although Iraqi children had the highest rates of health insurance on admission (<i>p</i> &lt; 0.001), they also had higher rates of chronic diseases (<i>p</i> = 0.001), infections (<i>p</i> = 0.004), allergic rhinitis (<i>p</i> = 0.001) and malnutrition (<i>p</i> &lt; 0.001). The youngest age of admission (<i>p</i> = 0.006) and the shortest length of stay (<i>p</i> = 0.004) were for Afghan children who also had higher rates of upper respiratory infections (<i>p</i> = 0.021).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This study highlights the urgent need for improved screening programmes and the importance of collaborative efforts to address the specific health needs of these populations. Addressing the health status of child refugees is a complex and multifaceted task that requires the active participation of healthcare profess","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141460901","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What are the experiences of non-invasive ventilation for sleep-disordered breathing in children and young people and what outcomes matter? Perspectives of children and young people, their parents and the staff who care for them 儿童和青少年在使用无创通气治疗睡眠呼吸障碍方面有哪些经验?儿童和青少年、他们的父母以及照顾他们的工作人员的观点。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-06-26 DOI: 10.1111/cch.13292
Jessica Russell, Victoria Barber, Elaine Chan, Kate Khair, Garry Rendle, Jo Wray

Background

Non-invasive ventilation (NIV) for sleep-disordered breathing (SDB) in children and young people (CYP) can result in multiple health outcomes; however, adherence to NIV can be challenging. Suboptimally treated SDB may increase the risk of adverse consequences. Placing children's and parents' goals at the core of their SDB treatment may support adherence to NIV. To identify these health outcomes, it is necessary to gain a greater understanding of CYP's experiences of using NIV, whether they perceive any benefits from NIV use, as well as the outcomes that their parents and NIV staff identify as important.

Methods

Semi-structured qualitative interviews were conducted with nine CYP (aged 4–16 + years), 13 parents and nine healthcare professionals (HCPs); verbatim transcripts were analysed using Framework Analysis.

Results

CYP predominantly reported an improvement in levels of energy, focus and ability to concentrate whereas parents also identified outcomes of mood and behaviour. The majority of children showed understanding of the reasons for being prescribed NIV. A subset of children did not notice their SDB. The health outcomes identified by HCPs and parents that could result from improved overnight gas exchange are subjective measures that rely on parent and child report. Measuring these health outcomes focussed on the impact of improved sleep rather than measuring improved sleep itself.

Conclusions

It is important for HCPs administering NIV to ascertain whether CYP have noticed any of their sleep-disordered breathing symptoms and any improvements from using NIV, including the relationship between benefits and side effects. Focussing on promoting understanding for CYP who are unable to link their wellbeing to their previous night's sleep may be futile and HCP strategies should concentrate on the process of tolerating the device. Parents, CYP and HCPs should collaborate to identify treatment goals specifically tailored for the child and monitor any progress against these goals.

背景:对儿童和青少年(CYP)的睡眠呼吸障碍(SDB)进行无创通气(NIV)治疗可带来多种健康结果;然而,坚持进行无创通气治疗可能具有挑战性。未得到最佳治疗的 SDB 可能会增加不良后果的风险。将儿童和家长的目标作为 SDB 治疗的核心,可能有助于坚持 NIV 治疗。为了确定这些健康结果,有必要进一步了解儿童青少年使用 NIV 的经历、他们是否认为使用 NIV 有任何好处,以及他们的父母和 NIV 工作人员认为重要的结果:对 9 名儿童青少年(4-16 岁)、13 名家长和 9 名医疗保健专业人员(HCPs)进行了半结构式定性访谈;采用框架分析法对逐字记录誊本进行了分析:结果: 青少年主要报告了精力、注意力和集中能力水平的提高,而家长也指出了情绪和行为方面的改善。大多数儿童表示理解开具 NIV 的原因。一部分儿童没有注意到他们的 SDB。由保健医生和家长确定的可通过改善夜间气体交换获得的健康结果都是主观的测量结果,依赖于家长和儿童的报告。衡量这些健康结果的重点是睡眠改善的影响,而不是衡量睡眠改善本身:对于实施 NIV 的保健人员来说,重要的是要确定儿童青少年是否注意到他们的睡眠呼吸障碍症状以及使用 NIV 后的任何改善,包括益处与副作用之间的关系。对于无法将自己的健康状况与前一晚睡眠联系起来的儿童青少年,集中精力促进他们的理解可能是徒劳无益的,因此保健护理人员的策略应集中在他们对设备的耐受过程上。家长、儿童青少年和保健医生应合作确定专门针对儿童的治疗目标,并对照这些目标监控任何进展。
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引用次数: 0
A qualitative exploration of children's lives with rare diseases 对罕见病儿童生活的定性研究。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-06-26 DOI: 10.1111/cch.13294
Niamh Buckle, Yvonne Rogers, Doris O'Toole, Sandra McNulty, Thilo Kroll, Lisa Gibbs, Suja Somanadhan

Background

Rare diseases encompass a diverse group of debilitating and sometimes life-threatening conditions that affect a small percentage of the population, posing a significant public health challenge. Despite their rarity, around 70% of these diseases afflict children, yet limited research has focused on their experiences. This study aimed to gain insights into the day-to-day challenges children living with rare diseases face.

Methods

We conducted semistructured one-to-one interviews with 11 children and young people (7–16 years) diagnosed with a range of rare diseases, purposively sampled from a tertiary pediatric healthcare setting in Ireland. We analyzed the interview transcripts, and themes were devised inductively.

Results

Two themes were identified: “Knowledge and Understanding of Rare Diseases” and “Fitting in Versus Feeling Different.” These themes emerged across various settings—the home, hospital, school, and social environments—to illustrate the impact of rare diseases on the participants' daily lives. A conceptual framework was developed to illustrate how the children's knowledge, experiences, and emotions shape their identity in a rare disease context.

Conclusions

Our analysis revealed a complex interplay between the participants' sense of belonging and their awareness of being different, influenced by the manifestations and demands of their rare conditions or illnesses. This duality in their identity was most pronounced in social settings, where the participants felt the most significant impact of their rare diseases. Understanding this interplay sheds light on the unique social challenges children with rare medical conditions face. Raising awareness about these conditions could mitigate these children's social challenges, fostering a more inclusive society for those with rare diseases.

背景:罕见病包括各种使人衰弱、有时危及生命的疾病,这些疾病只影响一小部分人,对公共卫生构成重大挑战。尽管罕见病十分罕见,但约有 70% 的罕见病影响着儿童,然而有关儿童罕见病经历的研究却十分有限。本研究旨在深入了解罕见病患儿面临的日常挑战:我们对 11 名被诊断患有各种罕见病的儿童和青少年(7-16 岁)进行了一对一的半结构式访谈,访谈对象是从爱尔兰的一家三级儿科医疗机构有目的地抽取的。我们对访谈记录进行了分析,并归纳出了主题:结果:确定了两个主题:结果:我们确定了两个主题:"对罕见病的认识和理解 "和 "融入与感到与众不同"。这些主题出现在家庭、医院、学校和社会等不同环境中,以说明罕见病对参与者日常生活的影响。我们建立了一个概念框架,以说明儿童的知识、经验和情感如何塑造他们在罕见病环境中的身份:我们的分析表明,参与者的归属感和他们对自己与众不同的认识之间存在着复杂的相互作用,并受到罕见病症或疾病的表现和要求的影响。他们身份的这种双重性在社会环境中最为明显,因为在社会环境中,参与者感受到罕见病对他们的影响最大。了解这种相互作用有助于了解罕见病儿童所面临的独特社会挑战。提高对这些疾病的认识可以减轻这些儿童的社会挑战,为罕见病患者营造一个更具包容性的社会。
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引用次数: 0
Determinants of stunting among under-five children: Evidence from Cambodian Demographic and Health Survey 2021–2022 五岁以下儿童发育迟缓的决定因素:柬埔寨 2021-2022 年人口与健康调查的证据。
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-06-19 DOI: 10.1111/cch.13291
Imran Hossain Sumon, Suchana Akter, Md. Sazzad Hossan Sujon, Muhammad Khairul Alam, Sabina Yasmin, Sabina Yeasmin, Mohammad Alamgir Kabir, Md. Moyazzem Hossain

Background

Epidemiological and nutritional modifications are causing an increase in stunting in many low- and middle-income countries (LMIC), which will eventually result in juvenile diseases and mortality. Therefore, this study aimed to identify the influential factors contributing to stunting among under-five children in Cambodia.

Methods

A secondary dataset consisting of 3268 under-five children was extracted from the latest Cambodian Demographic and Health Survey (CDHS)-2021/2022 dataset. The Chi-square test and Boruta algorithm were used for covariate selection, and logistic regression approaches were used to determine the influence of demographic, socioeconomic and other factors on the presence of stunting.

Results

Findings revealed that about 21% of under-five children were stunted, and the prevalence of stunting was higher in rural areas than in urban areas. The prevalence of child stunting was lower in families with highly educated parents. A child whose father had a secondary education had 0.71 times lower (adjusted odds ratio [AOR]: 0.71, 95% CI: 0.520–0.969) chance of stunting than a child whose father had no education. Findings revealed that Ratnak Kiri, Mondul Kiri, Stung Treng, Pursat and Kampot had a greater prevalence of stunting than other places, ranging from 27.11% to 35.70%, whereas Banteay Meanchey, Phnom Penh and Kandal had the lowest rates, ranging from 12.80% to 16.00%. Results of the Boruta algorithm and logistic regression suggested that under-five stunting is significantly influenced by factors such as the child's age, size at birth, mother's age at first birth, mother's body mass index (BMI), father's educational status, cooking fuel, and wealth index.

Conclusions

It is necessary to take initiatives for reducing the prevalence of stunted children prioritising the identified factors that ultimately help to reduce the burden of child health. The authors believed that the findings of this study will be helpful for policymakers in designing the appropriate policies and actions to achieve the Sustainable Development Goals (SDGs) by reducing stunting among under-five children in Cambodia.

背景:在许多中低收入国家(LMIC),流行病学和营养学的变化正在导致发育迟缓的增加,这最终将导致青少年疾病和死亡。因此,本研究旨在确定导致柬埔寨五岁以下儿童发育迟缓的影响因素:从最新的柬埔寨人口与健康调查(CDHS)--2021/2022 年数据集中提取了 3268 名五岁以下儿童的二次数据集。在选择协变量时使用了卡方检验(Chi-square test)和博鲁塔算法(Boruta algorithm),在确定人口、社会经济和其他因素对发育迟缓的影响时使用了逻辑回归方法:研究结果显示,约 21% 的五岁以下儿童发育迟缓,农村地区的发育迟缓发生率高于城市地区。父母受过高等教育的家庭中,儿童发育迟缓的发生率较低。父亲受过中等教育的儿童比父亲未受过教育的儿童发育迟缓的几率低 0.71 倍(调整后的几率比 [AOR]:0.71,95% CI:0.520-0.969)。调查结果显示,拉特纳基里、蒙多基里、上丁、菩萨和贡布的发育迟缓发生率高于其他地方,从 27.11% 到 35.70%,而班迭棉吉、金边和干丹的发生率最低,从 12.80% 到 16.00%。Boruta 算法和逻辑回归的结果表明,五岁以下儿童发育迟缓受多种因素的显著影响,如儿童的年龄、出生时的体型、母亲的初产年龄、母亲的体重指数(BMI)、父亲的教育状况、烹饪燃料和财富指数:有必要采取措施降低发育迟缓儿童的患病率,优先考虑已确定的因素,这些因素最终有助于减轻儿童健康负担。作者认为,这项研究的结果将有助于决策者制定适当的政策和行动,通过减少柬埔寨五岁以下儿童发育迟缓的情况来实现可持续发展目标(SDGs)。
{"title":"Determinants of stunting among under-five children: Evidence from Cambodian Demographic and Health Survey 2021–2022","authors":"Imran Hossain Sumon,&nbsp;Suchana Akter,&nbsp;Md. Sazzad Hossan Sujon,&nbsp;Muhammad Khairul Alam,&nbsp;Sabina Yasmin,&nbsp;Sabina Yeasmin,&nbsp;Mohammad Alamgir Kabir,&nbsp;Md. Moyazzem Hossain","doi":"10.1111/cch.13291","DOIUrl":"10.1111/cch.13291","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Epidemiological and nutritional modifications are causing an increase in stunting in many low- and middle-income countries (LMIC), which will eventually result in juvenile diseases and mortality. Therefore, this study aimed to identify the influential factors contributing to stunting among under-five children in Cambodia.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A secondary dataset consisting of 3268 under-five children was extracted from the latest Cambodian Demographic and Health Survey (CDHS)-2021/2022 dataset. The Chi-square test and Boruta algorithm were used for covariate selection, and logistic regression approaches were used to determine the influence of demographic, socioeconomic and other factors on the presence of stunting.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Findings revealed that about 21% of under-five children were stunted, and the prevalence of stunting was higher in rural areas than in urban areas. The prevalence of child stunting was lower in families with highly educated parents. A child whose father had a secondary education had 0.71 times lower (adjusted odds ratio [AOR]: 0.71, 95% CI: 0.520–0.969) chance of stunting than a child whose father had no education. Findings revealed that Ratnak Kiri, Mondul Kiri, Stung Treng, Pursat and Kampot had a greater prevalence of stunting than other places, ranging from 27.11% to 35.70%, whereas Banteay Meanchey, Phnom Penh and Kandal had the lowest rates, ranging from 12.80% to 16.00%. Results of the Boruta algorithm and logistic regression suggested that under-five stunting is significantly influenced by factors such as the child's age, size at birth, mother's age at first birth, mother's body mass index (BMI), father's educational status, cooking fuel, and wealth index.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>It is necessary to take initiatives for reducing the prevalence of stunted children prioritising the identified factors that ultimately help to reduce the burden of child health. The authors believed that the findings of this study will be helpful for policymakers in designing the appropriate policies and actions to achieve the Sustainable Development Goals (SDGs) by reducing stunting among under-five children in Cambodia.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-06-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141421924","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effects of physical activity patterns on myopia among children and adolescents: A latent class analysis 体育活动模式对儿童和青少年近视的影响:潜类分析
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-06-19 DOI: 10.1111/cch.13296
Yin Li, Chang Xu, Zhonghui Liu, Zhiyi Qu, Wei Xi, Xin Zhang, Lei Gao

Background

The daily physical activity (PA) patterns of children and adolescents are intricate and ambiguous, with varying effects on myopia resulting from different combinations of PA. This study aims to scrutinize the spectrum of PA patterns among children and adolescents and assess their impact on myopia.

Methods

Data sourced from the 2014 National Student Physical Fitness Survey (Tianjin segment) encompassed PA records and visual acuity measurements of participants. Latent Class Analysis and a generalized linear model were employed to investigate the relationship between PA categories and visual acuity across different educational stages.

Results

The study comprised 6465 primary and middle school students, among whom 50.13% were male. PA patterns were categorized into high (27.16%), medium (29.88%) and low visual acuity regulation groups (13.97%) and the nonmainstream group (28.99%). Following adjustments for sex, age, region and BMI, the medium visual acuity regulation group exhibited a lower risk of myopia (OR = 0.617, 95% CI = 0.424–0.897, p = 0.012; OR = 0.654, 95% CI = 0.438–0.976, p = 0.038) compared to the nonmainstream group among junior and senior middle school students.

Conclusion

The efficacy of diverse PA patterns in mitigating myopia risk varies across educational stages and is influenced by sex-specific factors. It is imperative to advance myopia management strategies by emphasizing tailored PA interventions, discerning between PA patterns and delivering timely guidance and interventions tailored to distinct educational stages and sexes.

背景:儿童和青少年的日常体力活动(PA)模式错综复杂、模棱两可,不同的体力活动组合对近视的影响也不尽相同。本研究旨在仔细研究儿童和青少年的体力活动模式,并评估其对近视的影响:方法:数据来源于2014年全国学生体质健康调研(天津片段),包括参与者的PA记录和视力测量。采用潜类分析法和广义线性模型来研究不同教育阶段中PA类别与视力之间的关系:研究对象包括 6465 名中小学生,其中 50.13% 为男性。PA模式分为高视力调节组(27.16%)、中视力调节组(29.88%)、低视力调节组(13.97%)和非主流组(28.99%)。在对性别、年龄、地区和体重指数进行调整后,与非主流组相比,中等视力调节组的初中生和高中生患近视的风险较低(OR = 0.617,95% CI = 0.424-0.897,p = 0.012;OR = 0.654,95% CI = 0.438-0.976,p = 0.038):结论:在不同的教育阶段,不同的体育锻炼方式在降低近视风险方面的效果各不相同,并且受到性别特异性因素的影响。当务之急是推进近视管理策略,强调有针对性的体育锻炼干预,区分不同的体育锻炼模式,并针对不同的教育阶段和性别提供及时的指导和干预。
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引用次数: 0
Care burden, perceived social support, coping attitudes and life satisfaction of mothers with children with cerebral palsy 脑瘫患儿母亲的护理负担、感知到的社会支持、应对态度和生活满意度。
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-06-19 DOI: 10.1111/cch.13297
Semiha Dertli, Aydan Selen Aydin (Yilmaz), Ulviye Gunay

Aim

This study's aim is to determine the relationship between care burden, perceived social support, coping attitudes and life satisfaction of mothers with children with cerebral palsy (CP).

Methods

This descriptive study was conducted in Turkey between March and June 2022 to determine the relationship between caregiving burden, perceived social support, coping attitudes and life satisfaction of 122 mothers with CP children. Path analysis was used to evaluate the data.

Results

Correlation analysis showed a positive relationship between mothers' social support perceptions and life satisfaction and coping attitudes, a positive relationship between their life satisfaction and coping attitudes (p < .001). The path analysis showed that the social support perceived by the mothers significantly affected their coping attitudes (β = .257; p < .001) and life satisfaction (β = .081; p < .001). Mothers' care burden (β = .169; p < .001) and coping attitudes (β = .071; p < .05) also had a significant effect on their life satisfaction.

Conclusions

It is an important finding of this study that mothers' perceptions of social support and coping attitudes have a positive effect on their life satisfaction. Long-term care can cause physical and psychological problems for mothers. Mothers' strong coping strategies and high levels of social support may reduce the occurrence of these problems. Drawing attention to this issue in mothers and revealing the effects of these variables is important in terms of indirectly supporting child outcomes.

目的:本研究旨在确定脑瘫患儿母亲的护理负担、感知到的社会支持、应对态度和生活满意度之间的关系:这项描述性研究于 2022 年 3 月至 6 月在土耳其进行,目的是确定 122 名有脑瘫患儿的母亲的护理负担、感知到的社会支持、应对态度和生活满意度之间的关系。研究采用路径分析对数据进行评估:相关分析表明,母亲的社会支持感知与生活满意度和应对态度之间存在正相关关系,母亲的生活满意度与应对态度之间存在正相关关系(p 结论:这是一项重要的研究发现:本研究的一个重要发现是,母亲的社会支持感和应对态度对其生活满意度有积极影响。长期护理会给母亲带来生理和心理问题。母亲们强有力的应对策略和高水平的社会支持可减少这些问题的发生。提请母亲们关注这一问题,并揭示这些变量的影响,对于间接支持儿童的成长具有重要意义。
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引用次数: 0
期刊
Child Care Health and Development
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