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Reaction to Diagnosis and Parental Concerns in Parents of Children and Young Adults With XYY Syndrome 患有 XYY 综合征的儿童和青少年的父母对诊断的反应和父母的担忧。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-26 DOI: 10.1111/cch.13324
Laura Zampini, Paola Zanchi, Gaia Silibello, Domenica Mastromattei, Paola Francesca Ajmone, Francesca Dall'Ara, Federico Monti, Maria Antonella Costantino, Paola Giovanna Vizziello

Background

There is a growing interest in exploring parents' views on the benefits of early diagnosis and awareness of sex chromosome trisomies. However, only a few studies focus specifically on the experience of parents of children with XYY syndrome. The present study aimed to assess, in parents of individuals with XYY, the perceived severity of their children's condition, their level of satisfaction with the disclosure process and their concerns about their children's present and future condition.

Methods

A national online sample of 56 Italian parents of children and young adults diagnosed with XYY syndrome participated in the study. They filled out a specifically developed online survey that assessed their children's areas of concern, their experience with the disclosure process and their worries about their children's condition.

Results

Seventy per cent of the parents received a prenatal diagnosis, whereas 30% received a postnatal diagnosis. High individual variability was found in the parent report of their child's condition. The most frequent areas of concern were attention regulation, emotion control and behaviour control. Individuals with a postnatal diagnosis showed more severe profiles. Parents were generally dissatisfied with the disclosure process, with no differences between prenatal and postnatal disclosure. However, more than 50% of the parents who received a prenatal disclosure reported that their child's condition was less severe than they had expected. In contrast, only 11% of the parents with postnatal disclosure reported this situation. Parents' concerns were negatively related to global satisfaction with the disclosure process and the correspondence between current and expected conditions but positively associated with the child's severity level.

Conclusions

The results suggest that clear and realistic information during the disclosure process to parents is needed in both prenatal and postnatal communication and may alleviate parents' concerns.

背景:人们越来越关注探讨父母对早期诊断的益处的看法以及对性染色体三体症的认识。然而,只有少数研究特别关注 XYY 综合征患儿父母的经历。本研究旨在评估 XYY 患儿家长对其子女病情严重程度的看法、他们对披露过程的满意度以及他们对子女目前和未来病情的担忧:这项研究在意大利全国范围内进行了在线抽样调查,共有 56 名被诊断患有 XYY 综合征的儿童和青少年的家长参加。他们填写了一份专门制作的在线调查表,该调查表评估了他们对子女的关注领域、他们在披露过程中的经历以及他们对子女病情的担忧:结果:70%的家长接受了产前诊断,30%接受了产后诊断。家长对子女病情的报告存在很大的个体差异。最常见的问题是注意力调节、情绪控制和行为控制。产后确诊患儿的情况更为严重。家长普遍对披露过程不满意,产前和产后披露过程没有差异。不过,在接受产前信息披露的父母中,有 50%以上的人表示他们孩子的病情没有他们预想的那么严重。相比之下,只有 11% 的接受产后信息披露的父母报告了这种情况。家长的担忧与对信息披露过程的总体满意度和当前状况与预期状况之间的对应关系呈负相关,但与孩子的严重程度呈正相关:结果表明,在产前和产后的沟通中,都需要在向父母披露信息的过程中提供清晰、真实的信息,这样可以减轻父母的担忧。
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引用次数: 0
Disseminating the F-Words for Child Development to Parents of Children With Developmental Disabilities in Iran: A Qualitative Pilot Feasibility Study 向伊朗发育障碍儿童的家长传播儿童发展 F 词汇:定性试点可行性研究》。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-21 DOI: 10.1111/cch.13321
Zahra Maleki, Seifollah Heidarabadi, Ahmad Mohammadi, Saber Azami-Aghdash, Peter Rosenbaum, Andrea Cross, Alice Kelen Soper

Background

Attitudes toward childhood disability have historically focused on biomedical efforts on ‘fixing’. The introduction of WHO's ICF framework for health and Canadian researchers' ‘F-words’ (functioning, fitness, fun, friends, family and future) have significantly changed the field. To explore whether the F-words ideas influenced parents' perspectives on their child's abilities and rehabilitation goals, this qualitative pilot study introduced the F-words to Iranian parents with a child with a developmental disability.

Methods

This study was conducted in Tabriz, Iran, in 2023, using Iranian educational F-words materials built on ideas available on the CanChild F-words Knowledge Hub. Data were collected through semistructured interviews with five mothers of children <5 years old with a developmental disability before and after attending an ‘F-words Awareness Session’ and analysed using thematic analysis.

Results

In the preinterviews, six themes (and 20 subthemes) were identified: (i) routines (5); (ii) challenges (4); (iii) parental concerns (3); (iv) child's needs and priorities (3); (v) the role of parents in satisfying needs and challenges (2); and (vi) expectations of rehabilitation (3). In the postinterview, the same six themes and four additional subthemes emerged.

Conclusion

Findings from the pilot study showed that the intervention had an impact on the attitudes and behaviours of participants. Specifically, teaching about the F-words reduced parents' emphasis on the concept of ‘normality’. Families' positive response to the ‘F-words Awareness Session’ indicates their openness to incorporating this approach into their daily lives. These findings highlight the potential benefits of utilizing the F-words in rehabilitation in Iran. Studies like these can serve as a foundation for developing effective strategies for integrating the F-words into existing rehabilitation practices in Iran.

背景:对儿童残疾的态度历来侧重于生物医学的 "修复 "工作。世界卫生组织的《国际功能、残疾和健康分类》(ICF)健康框架和加拿大研究人员提出的 "F-words"(功能、健康、乐趣、朋友、家庭和未来)极大地改变了这一领域。为了探究 "F-words "理念是否会影响家长对子女能力和康复目标的看法,本定性试点研究向有发育障碍子女的伊朗家长介绍了 "F-words":本研究于 2023 年在伊朗大不里士进行,使用的伊朗 F-words 教育材料基于 CanChild F-words Knowledge Hub 上的观点。通过对五位儿童母亲进行半结构式访谈收集数据:在预访谈中,确定了六个主题(和 20 个次主题):(i) 常规(5);(ii) 挑战(4);(iii) 父母的担忧(3);(iv) 儿童的需求和优先事项(3);(v) 父母在满足需求和应对挑战方面的作用(2);(vi) 对康复的期望(3)。在后访谈中,出现了同样的六个主题和另外四个次主题:试点研究结果表明,干预措施对参与者的态度和行为产生了影响。具体来说,关于 "F-words "的教学减少了家长对 "正常 "概念的重视。家庭对 "F-words 认识课程 "的积极反应表明,他们愿意将这种方法融入日常生活。这些研究结果凸显了在伊朗康复中使用 F-words 的潜在益处。类似的研究可以作为制定有效战略的基础,将 F-words 纳入伊朗现有的康复实践中。
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引用次数: 0
Religious Coping as Mediator of Sense of Competence and Post-traumatic Growth in Mothers of Children With Cerebral Palsy 宗教应对是脑瘫儿童母亲能力感和创伤后成长的中介。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-15 DOI: 10.1111/cch.13322
Noor ul Ain, Anam Ali, Nazia Bashir

Objectives

The present study aimed to determine whether religious coping mediates the relationship between parenting sense of competence (PSOC) and post-traumatic growth (PTG).

Method

Cross-sectional research design was used. A sample of 74 mothers (age range; 20–45 years) of CP children (age range; 2–9 years) was collected through purposive sampling from different physiotherapy centres and special education schools of Lahore. PSOC scale, brief RCOPE and PTG inventory were used.

Results

Positive religious coping partially mediated (β = 0.190, 95% CI [0.026, 0.374], p < 0.05) between PSOC and PTG. Partial mediation exists between PSOC and appreciation of life through pathway of positive religious coping (β = 0.040, 95% CI [0.007, 0.075], p < 05). Full mediation exists between PSOC and personal strength through pathway of positive religious coping (β = 0.041, 95% CI [0.001, 0.081], p < 0.05) and through negative religious coping (β = 0.034, 95% CI [0.002, 0.066], p < 0.05). Positive religious coping fully mediated (β = 0.029, 95% CI [0.007, 0.058], p < 0.05) between PSOC and spiritual change. Moreover, indirect effect of PSOC on relating to others and new possibilities through positive and negative religious coping was non-significant, indicating no mediation.

Conclusion

Positive religious coping affected the association between PSOC and PTG, that is, mothers of CP children having high parenting competence are more likely to use positive religious coping strategies that results in more PTG.

研究目的:本研究旨在确定宗教应对方式是否对养育能力感(PSOC)和创伤后成长(PTG)之间的关系具有中介作用:本研究旨在确定宗教应对是否能调节养育能力感(PSOC)与创伤后成长(PTG)之间的关系:方法:采用横断面研究设计。方法:采用横断面研究设计,从拉合尔市不同的物理治疗中心和特殊教育学校有目的抽样,收集了 74 位 CP 儿童(2-9 岁)的母亲(年龄在 20-45 岁之间)。研究使用了PSOC量表、简明RCOPE和PTG问卷:结果:积极的宗教应对方式在一定程度上起到了中介作用(β = 0.190,95% CI [0.026,0.374],p 结论:积极的宗教应对方式影响了 PSOC 和 PTG 之间的关系:积极的宗教应对会影响 PSOC 与 PTG 之间的关联,即养育能力高的 CP 儿童的母亲更有可能使用积极的宗教应对策略,从而导致更多的 PTG。
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引用次数: 0
Healthcare Professionals' Perspectives on the Use of Standing Frames for Children Diagnosed With Cerebral Palsy: An Explanatory Mixed Methods Study 医护人员对确诊为脑瘫的儿童使用站立架的看法:一项解释性混合方法研究。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-14 DOI: 10.1111/cch.13320
Michaela Andersen, Lærke Hartvig Krarup, Nanna Rolving, Anders Holsgaard-Larsen, Charlotte Pawlowski, Helle Mätzke Rasmussen, Maja Husted Hubeishy

Background

Standing frames are commonly used by healthcare professionals in their practice with children with cerebral palsy (CP) who do not have an independent standing function. A better understanding of healthcare professionals' attitudes and experiences with standing frames may impact practice and rehabilitation. Therefore, this study aimed to investigate the standing frame practice among healthcare professionals and expand their attitude and experience with the use of standing frames for children with CP.

Methods

This is an explanatory sequential mixed methods study. A cross-sectional survey was conducted, providing quantitative data on 210 healthcare professionals' use of standing frames. The quantitative data were descriptively analysed. Subsequently, the results from the survey were followed up with five focus group interviews of healthcare professionals (n = 14). The qualitative data were analysed using thematic analysis, enabling integration between the quantitative and qualitative data.

Results

When quantitative and qualitative data are integrated, expansion between the two datasets occurred. The quantitative dataset emphasised the use of GMFCS levels as a guideline for recommending standing frames, whereas the qualitative data showed that the healthcare professionals' recommendations were based on individual needs. Furthermore, the healthcare professionals expanded the quantitative data, showing that the healthcare professionals' considerations regarding age and dosage were based on clinical experience, and saw the standing frame as having many benefits.

Conclusion

The healthcare professionals had a child-centred approach, where the child's need for using a standing frame was assessed based on the functional level, stage of development, cognitive level and clinical assessment. All of these considerations showed that the use of standing frames for children with CP was individualised, thereby making it difficult to make unified descriptions.

背景:对于没有独立站立功能的脑性瘫痪(CP)儿童,医护人员通常会使用站立架。更好地了解医护人员对站立架的态度和经验可能会对实践和康复产生影响。因此,本研究旨在调查医护人员的站立架使用情况,并拓展他们对 CP 儿童使用站立架的态度和经验:这是一项解释性顺序混合方法研究。我们进行了一项横断面调查,提供了 210 名医护人员使用站立架的定量数据。对定量数据进行了描述性分析。随后,对调查结果进行了跟进,对医护人员进行了五次焦点小组访谈(n = 14)。采用主题分析法对定性数据进行了分析,从而实现了定量数据与定性数据的整合:结果:定量和定性数据整合后,两个数据集之间出现了扩展。定量数据集强调了使用 GMFCS 水平作为推荐站立架的指导原则,而定性数据则表明医护人员的建议是基于个人需求的。此外,医护人员对定量数据进行了扩展,表明医护人员对年龄和剂量的考虑是基于临床经验,并认为站立架有很多好处:医护人员采用了以儿童为中心的方法,根据儿童的功能水平、发育阶段、认知水平和临床评估来评估儿童是否需要使用站立架。所有这些因素都表明,CP 儿童使用站立架是因人而异的,因此很难做出统一的描述。
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引用次数: 0
Cognitive enhancement through technology: A review of transcranial electrical stimulation (TES) interventions in children and adolescents with specific learning disabilities 通过技术提高认知能力:对有特殊学习障碍的儿童和青少年进行经颅电刺激(TES)干预的综述。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-08 DOI: 10.1111/cch.13318
Elahe Fathi Azar, Mahnaz Hejazi-Shirmard, Hooshang Mirzaie

Background

In recent years, the exploration of innovative interventions for addressing problems of children and adolescents with specific learning disabilities (SLD) has garnered significant attention within the realm of neurocognitive research. Transcranial electrical stimulation (TES) has emerged as a promising tool for enhancing cognitive skills in children, offering a non-invasive and safe method that may particularly benefit those with learning difficulties. We aimed to appraise the extent and the quality of studies about impact of TES on cognitive skills including academic skills in children and adolescents with SLD.

Methods

A literature search was performed according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Articles published between January 2000 and January 2024 were searched in PubMed, Embase, Scopus, Web of Science and Google Scholar. The study eligibility criteria were previously established according to the PICO model. The Physiotherapy Evidence Database (PEDro) scale and Cochrane Collaboration tool (ROB2) were used to assess the methodological quality and the risk of bias of the included studies, respectively.

Results

The initial search yielded 1571 studies among which 30 studies were systematically reviewed. The total number of participants was 224 individuals (intervention: 114; control: 110). Findings showed significant improvements in reading skills such as text reading, high-frequency word reading speed and efficiency and mathematical skills. Conversely, other cognitive skills such as working memory were not improved in people with dyslexia and dyscalculia.

Discussion

TES interventions can positively affect cognitive skills in children and adolescents with SLD; However, due to the small number of studies, medium methodological quality and high risk of bias, caution should be taken when interpreting the results.

背景:近年来,为解决有特殊学习障碍(SLD)的儿童和青少年的问题而进行的创新干预探索在神经认知研究领域引起了极大关注。经颅电刺激(TES)已成为提高儿童认知能力的一种有前途的工具,它提供了一种非侵入性的安全方法,尤其能使有学习困难的儿童受益。我们的目的是评估有关颅内电刺激对认知能力(包括有 SLD 的儿童和青少年的学习能力)影响的研究的范围和质量:方法:根据《系统综述和元分析首选报告项目》(PRISMA)指南进行文献检索。在 PubMed、Embase、Scopus、Web of Science 和 Google Scholar 中检索了 2000 年 1 月至 2024 年 1 月间发表的文章。研究资格标准是根据 PICO 模型确定的。物理治疗证据数据库(PEDro)量表和 Cochrane 协作工具(ROB2)分别用于评估纳入研究的方法学质量和偏倚风险:初步检索共获得 1571 项研究,对其中 30 项研究进行了系统审查。参与者总数为 224 人(干预:114 人;对照:110 人)。研究结果表明,阅读能力(如文字阅读、高频词阅读速度和效率)和数学能力都有明显提高。相反,阅读障碍和计算障碍患者的其他认知能力(如工作记忆)没有得到改善:讨论:TES干预措施可对患有SLD的儿童和青少年的认知能力产生积极影响;然而,由于研究数量少、方法学质量中等、偏倚风险高,在解释结果时应谨慎。
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引用次数: 0
Risk of behavioural and developmental difficulties in early childhood in the Australian Capital Territory 澳大利亚首都地区幼儿期行为和发育困难的风险。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-06 DOI: 10.1111/cch.13314
Kathleen O'Brien, Jason Agostino, Karen Ciszek, Kirsty A. Douglas

Aim

We aimed to estimate the prevalence of risk for developmental and behavioural problems for children in their first year of full-time primary education in the Australian Capital Territory (ACT).

Methods

We conducted an analysis of the 2014–2017 Kindergarten Health Check (KHC), an annual series of complete enumeration surveys of all children in their first year of full-time primary education in the ACT. Risk for developmental and behavioural problems was determined using the Parents' Evaluation of Developmental Status (PEDS) questionnaire.

Results

19 414 children (mean age 5.56 years; 51.4% boys; 2.3% Aboriginal and Torres Strait Islander; 18.4% quintile of greatest relative disadvantage) who participated in the 2014–2017 KHC were included in the study (87%). More than half of ACT children in their first year of primary education had low/no developmental risk identified through the PEDS questionnaire, with 1 in 10 at high risk.

Conclusions

Those more likely to have a high risk PEDS score were boys, those from the areas experiencing relative disadvantage, and Aboriginal and Torres Strait Islander children. While we can identify children at risk through screening, the greater challenge remains to identify and address the underlying causes of healthy inequalities, even within highly socioeconomically advantaged communities.

目的:我们旨在估算澳大利亚首都地区(ACT)全日制小学一年级儿童发育和行为问题的风险发生率:我们对 2014-2017 年的幼儿园健康检查(KHC)进行了分析,这是一项针对澳大利亚首都地区所有接受全日制小学教育的一年级儿童进行的年度系列全面查点调查。结果显示,19 414 名儿童(平均年龄为 5 岁)出现了发育和行为问题:19 414 名儿童(平均年龄为 5.56 岁;51.4% 为男孩;2.3% 为土著居民和托雷斯海峡岛民;18.4% 为处于最不利相对状况的五分之一人口)参加了 2014-2017 年的 KHC 研究(87%)。一半以上的澳大利亚首都地区小学一年级儿童通过PEDS调查问卷确定了低/无发育风险,每10人中就有1人处于高风险:更有可能获得高风险 PEDS 分数的是男孩、来自相对贫困地区的儿童以及土著和托雷斯海峡岛民儿童。虽然我们可以通过筛查来识别高风险儿童,但更大的挑战仍然是识别和解决健康不平等的根本原因,即使在社会经济条件非常优越的社区也是如此。
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引用次数: 0
Understanding the physical literacy development of 8- to 12-year-old children living with chronic medical conditions: A comprehensive, mixed methods inquiry 了解患有慢性疾病的 8 至 12 岁儿童的体育素养发展:综合、混合方法调查。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-06 DOI: 10.1111/cch.13316
Angelica Blais, Sherri Lynne Katz, Robert J. Klaassen, Jane Lougheed, John J. Reisman, Daniela Pohl, Sarah Lawrence, Lillian Lai, Suzie Lee, Letizia Gardin, Derek Wong, Erick Sell, Patricia Longmuir

Background

Physical literacy is a concept used to describe the combined physical, affective and cognitive capacities facilitating an active lifestyle. Physical activity participation is essential for children living with chronic medical conditions, but knowledge of physical literacy among this group is scarce.

Methods

An explanatory, sequential mixed methods design was used to comprehensively describe the physical literacies of children with chronic medical conditions (CMCs). Participants were recruited from paediatric cardiology, respirology/cystic fibrosis, neurology, haematology and endocrinology outpatient clinics. All participants completed the Canadian Assessment of Physical Literacy (2nd Edition), and those with higher and lower scores were invited to a semi-structured interview. A deductive-inductive thematic analysis was applied using Margaret Whitehead's conceptualization of physical literacy.

Results

Using normative strata, 80.0% of the 99 children assessed (mean age = 9.97 ± 1.3 years, 48% girls) were considered beginning or progressing in their overall physical literacy (mean score = 56.5 ± 13.8/100). Meanwhile, physical literacy informed participants' approach to new, active experiences and may have contributed to a strong sense of self. There was a significant difference between endocrinology and haematology patients on total physical literacy score (p = 0.03) but not domain scores. Participants scored high on motivation/confidence (mean = 22.9 ± 5.0/30) but obtained low physical competence (mean = 11.8 ± 5.6/30) and daily behaviour scores (n = 72, mean = 15.5 ± 7.1/30). Main themes represent salient experiences of children with CMCs within the domains of physical literacy, including their need to evaluate active contexts, self-regulate activity intensity and manage physical limitations.

Conclusions

Children with CMCs can achieve recommended levels of physical literacy without meeting normative standards for physical competence. Participants would benefit from a physical literacy intervention that targets the development of bodily self-regulation skills and risk evaluation in active settings.

背景:体育素养是一个概念,用于描述有助于形成积极生活方式的身体、情感和认知综合能力。对于患有慢性疾病的儿童来说,参加体育活动至关重要,但对这一群体的体育素养却知之甚少:方法:采用解释性、顺序性混合方法设计,全面描述慢性病患儿的体育素养。参与者来自儿科心脏病、呼吸内科/囊性纤维化、神经内科、血液内科和内分泌科门诊。所有参与者都完成了加拿大身体素养评估(第 2 版),得分较高和较低的参与者被邀请参加半结构化访谈。采用玛格丽特-怀特海(Margaret Whitehead)的体育素养概念进行了演绎-归纳主题分析:采用标准分层法,在接受评估的 99 名儿童(平均年龄 = 9.97 ± 1.3 岁,48% 为女孩)中,有 80.0% 的儿童被认为在整体身体素养方面处于起步或进步阶段(平均分 = 56.5 ± 13.8/100)。同时,体育素养有助于参与者获得新的、积极的体验,并可能有助于形成强烈的自我意识。内分泌科和血液科患者在身体素养总分上有明显差异(p = 0.03),但在领域得分上没有差异。参与者在动机/自信方面得分较高(平均 = 22.9 ± 5.0/30),但在身体能力(平均 = 11.8 ± 5.6/30)和日常行为(n = 72,平均 = 15.5 ± 7.1/30)方面得分较低。主要的主题代表了CMC儿童在体育素养领域的突出经验,包括他们需要评估活动环境、自我调节活动强度和管理身体限制:结论:患有先天性肌肉萎缩症的儿童可以达到建议的体育素养水平,但不符合体育能力的规范标准。针对活动环境中身体自我调节技能和风险评估的体育素养干预将使参与者受益。
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引用次数: 0
Validation of Serbian version of the LittlEARS® Early Speech Production Questionnaire for the assessment of early language development in typically developing children 验证塞尔维亚语版 LittlEARS® 早期言语表达能力问卷,以评估发育正常儿童的早期语言发展。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-01 DOI: 10.1111/cch.13317
Mina Nikolić, Sanja Ostojić Zeljković, Maja Ivanović

Objective

The LittlEARS® Early Speech Production Questionnaire (LEESPQ) was developed to provide professionals with valuable information about children's earliest language development and has been successfully validated in several languages. This study aimed to validate the Serbian version of the LEESPQ in typically developing children and compare the results with validation studies in other languages.

Methods

The English version of the LEESPQ was back-translated into Serbian. Parents completed the questionnaire in paper or electronic form either during the visit to the paediatric clinic or through personal contact. A total of 206 completed questionnaires were collected. Standardized expected values were calculated using a second-order polynomial model for children up to 18 months of age to create a norm curve for the Serbian language. The results were then used to determine confidence intervals, with the lower limit being the critical limit for typical speech-language development. Finally, the results were compared with German and Canadian English developmental norms.

Results

The Serbian LEESPQ version showed high homogeneity (r = .622) and internal consistency (α = .882), indicating that it almost exclusively measures speech production ability. No significant difference in total score was found between male and female infants (U = 4429.500, p = .090), so it can be considered a gender-independent questionnaire. The results of the comparison between Serbian and German (U = 645.500, p = .673) and Serbian and English norm curves (U = 652.000, p = .725) show that the LEESPQ can be applied to different population groups, regardless of linguistic, cultural or sociological differences.

Conclusion

The LEESPQ is a valid, age-dependent and gender-independent questionnaire suitable for assessing early speech development in children aged from birth to 18 months.

目的:LittlEARS® 早期语言表达能力问卷 (LEESPQ) 的开发旨在为专业人员提供有关儿童早期语言发展的宝贵信息,该问卷已成功通过多种语言的验证。本研究旨在对塞尔维亚语版的 LEESPQ 进行验证,并将结果与其他语言的验证研究结果进行比较:方法:将英语版的LEESPQ反译成塞尔维亚语。家长在儿科门诊就诊时或通过个人联系填写纸质或电子版问卷。共收集到 206 份填写完毕的问卷。我们使用二阶多项式模型计算了 18 个月以下儿童的标准化预期值,从而绘制出塞尔维亚语的标准曲线。然后根据结果确定置信区间,下限为典型言语-语言发展的临界值。最后,将结果与德国和加拿大的英语发展标准进行比较:塞尔维亚语 LEESPQ 版本显示出较高的同质性(r = .622)和内部一致性(α = .882),表明它几乎只测量言语表达能力。男婴和女婴的总分没有明显差异(U = 4429.500,p = .090),因此可以认为这是一份与性别无关的问卷。塞尔维亚语和德语(U = 645.500,p = .673)以及塞尔维亚语和英语常模曲线(U = 652.000,p = .725)之间的比较结果表明,LEESPQ可以适用于不同的人群,不受语言、文化或社会学差异的影响:结论:LEESPQ 是一份有效的、与年龄相关且与性别无关的问卷,适合评估出生至 18 个月儿童的早期言语发展。
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引用次数: 0
Reliability and validity of a measure of service providers' perceptions of child and parent engagement in pediatric rehabilitation therapy sessions 衡量服务提供者对儿童和家长参与儿科康复治疗过程的看法的可靠性和有效性。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-08-01 DOI: 10.1111/cch.13319
Gillian King, Lisa A. Chiarello, Matthew J. W. McLarnon, Kathleen M. Einarson, Madhu Pinto

Background

There is growing interest in client engagement in pediatric rehabilitation. This article investigated the psychometric properties of a measure of service providers' perceptions of the affective, cognitive and behavioural engagement of both children with disabilities and their parents in pediatric rehabilitation therapy sessions.

Methods

Test–retest reliability of the Pediatric Rehabilitation Intervention Measure of Engagement—Service Provider version (PRIME-SP) was examined using engagement ratings made by 60 service providers for 77 children and 73 parents. Construct validity was examined using the known-group validity technique, utilizing service providers' ratings of the engagement of parents and their children attending the same session with the service provider. We hypothesized that there would be significantly different, yet moderately correlated engagement ratings for children and their parents.

Results

There was evidence of moderate test–retest reliability for the child ratings, indicative of dynamicity across occasions, but also a degree of consistency, as aligned with our expectations. Service providers' ratings of parent and child engagement were not significantly correlated and paired t-tests indicated significantly higher engagement scores for parents than children.

Conclusions

The study provides preliminary evidence to support the reliability and validity of the PRIME-SP as a tool for service providers to document, reflect on and monitor child and/or parent engagement.

背景:人们对儿童康复治疗中客户参与度的关注与日俱增。本文研究了服务提供者对残疾儿童及其家长在儿科康复治疗过程中的情感、认知和行为参与度的心理测量特性:方法:使用 60 名服务提供者对 77 名儿童和 73 名家长的参与度评分,对儿科康复干预参与度测量--服务提供者版(PRIME-SP)的重测可靠性进行了检验。我们采用已知组有效性技术,利用服务提供者对与服务提供者参加同一疗程的家长及其子女的参与度评分,对结构有效性进行了检验。我们假设儿童和家长的参与度评分会有显著差异,但相关性适中:有证据表明,儿童的评分具有适度的重测可靠性,这表明不同场合的评分具有动态性,但也具有一定程度的一致性,这与我们的预期相符。服务提供者对家长和儿童参与度的评分没有明显的相关性,配对 t 检验表明家长的参与度评分明显高于儿童:本研究提供了初步证据,支持 PRIME-SP 作为服务提供者记录、反思和监测儿童和/或家长参与情况的工具的可靠性和有效性。
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引用次数: 0
Correction to ‘The relationship between video games and social–emotional delay in Chinese rural preschoolers: A comparison of five types of media’ 更正 "电子游戏与中国农村学龄前儿童社交情感延迟的关系:五种媒体的比较》。
IF 1.8 4区 医学 Q2 PEDIATRICS Pub Date : 2024-07-26 DOI: 10.1111/cch.13309

Gou, H., & Yang, Y. (2024). The relationship between video games and social–emotional delay in Chinese rural preschoolers: A comparison of five types of media. Child: Care, Health and Development, 50(4), e13288. https://doi.org/10.1111/cch.13288

The title was published as ‘The relationship between video games and social–emotional delay in Chinese rural preschoolers: A comparison of five types of media video games and social–emotional delay’.

It should have been ‘The relationship between video games and social–emotional delay in Chinese rural preschoolers: A comparison of five types of media’.

The title has been corrected in the article.

We apologize for the error.

Gou, H., & Yang, Y. (2024). 电子游戏与中国农村学龄前儿童社会情感延迟的关系:五种媒体的比较。儿童:Care, Health and Development, 50(4), e13288. https://doi.org/10.1111/cch.13288 标题为 "电子游戏与中国农村学龄前儿童社交情感发育迟缓的关系:五种媒体的比较":应该是 "电子游戏与中国农村学龄前儿童社交情感发育迟缓的关系:五类媒体电子游戏与社交情感发育迟缓的比较":标题已在文章中更正,我们对此表示歉意。
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引用次数: 0
期刊
Child Care Health and Development
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