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Exploring the interplay: Maternal electronic health literacy and its impact on early childhood development and parenting practices 探索相互作用:孕产妇电子健康知识及其对幼儿发展和育儿实践的影响
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-04-12 DOI: 10.1111/cch.13261
Ayse Oflu, Siddika Songul Yalcin

Background

Mothers need a competent electronic health literacy (eHL) skill for beneficial gains for the health of their children in the virtual environment, which is a new health platform. We predict that a competent eHL of mothers who play a central role in early childhood will positively affect the health of their children. This study aimed to determine the level of eHL of mothers of young children and investigate the relationship between mothers' eHL and early childhood development (ECD) and early parenting practices (EPP).

Methods

This cross-sectional study was conducted on mothers with children aged 36–59 months using eHealth. Sociodemographic and personal characteristics form, Early Childhood Development Module and eHealth Literacy Scale were administered to the participating mothers.

Results

The data from 440 mother–child pairs were analysed. Children of mothers with sufficient eHL levels were more likely to be Early Childhood Development Index (ECDI)-on-track, adjusted odds ratio (AOR), 95% confidence interval (CI): 2.16 (1.29–3.61); have adequate support in learning, AOR (%95 CI): 3.23 (1.69–6.18); and have adequate daily meals and snacks, AOR (%95 CI): 2.43 (1.56–3.78).

Conclusion

These results revealed that there is a need for interventions that will contribute to child health by improving mothers' eHL levels.

背景 母亲需要具备合格的电子健康素养(eHL)技能,才能在虚拟环境这一新型健康平台中为子女的健康带来益处。我们预测,在幼儿期发挥核心作用的母亲具备合格的电子健康素养将对其子女的健康产生积极影响。本研究旨在确定幼儿母亲的 eHL 水平,并调查母亲的 eHL 与幼儿发展(ECD)和早期养育实践(EPP)之间的关系。 方法 这项横断面研究是针对有 36-59 个月大孩子的母亲使用电子保健进行的。对参与研究的母亲进行了社会人口学和个人特征表、儿童早期发展模块和电子健康素养量表的测量。 结果 分析了 440 对母子的数据。拥有足够电子健康素养水平的母亲的子女更有可能达到儿童早期发展指数(ECDI),调整后的几率比(AOR),95% 置信区间(CI):2.16(1.29-3.61);在学习方面获得充分支持,AOR(95% CI):3.23(1.69-6.18);以及获得充足的每日膳食和零食,AOR(95% CI):2.43(1.56-3.78)。 结论 这些结果表明,有必要采取干预措施,通过提高母亲的电子保健水平来促进儿童健康。
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引用次数: 0
Is more always better? Effectiveness of constraint-induced movement therapy in children with high-risk or unilateral cerebral palsy (0–6 years): Systematic review and meta-analysis 越多越好吗?约束诱导运动疗法对高危或单侧脑瘫儿童(0-6 岁)的疗效:系统回顾和荟萃分析
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-04-12 DOI: 10.1111/cch.13262
Javier Merino-Andrés, Purificación López-Muñoz, Rocío Palomo Carrión, Patricia Martín-Casas, Irene Ruiz-Becerro, Álvaro Hidalgo-Robles

Background

While constraint-induced movement therapy is strongly recommended as an intervention for infants with unilateral cerebral palsy, the optimal dosage remains undefined. This systematic review aims to identify the most effective level of intensity of constraint-induced movement therapy to enhance manual function in infants at high risk of asymmetric brain lesions or unilateral cerebral palsy diagnosis.

Methods

This systematic review with meta-analysis encompassed a comprehensive search across four electronic databases to identify articles that met the following criteria: randomised controlled trials, children aged 0–6 with at high risk or with unilateral cerebral palsy, and treatment involving constraint-induced movement therapy for upper limb function. Studies with similar outcomes were pooled by calculating the standardised mean difference score for each subgroup, and subgroups were stratified every 30 h of total intervention dosage (30–60, 61–90, >90 h). Risk of bias was assessed with Cochrane Collaboration's tool.

Results

Seventeen studies were included. Meta-analyses revealed significant differences among subgroups. The 30–60 h subgroup showed a weak effect for spontaneous use of the affected upper limb during bimanual performance, grasp function, and parents' perception of how often children use their affected upper limb. Additionally, this subgroup demonstrated a moderate effect for the parents' perception of how effectively children use their affected upper limb.

Conclusions

Using a dosage ranging from 30 to 60 h when applying a constraint-induced movement therapy protocol holds promise as the most age-appropriate and cost-effectiveness approach for improving upper limb functional outcomes and parent's perception.

背景 虽然强烈建议将约束诱导运动疗法作为单侧脑瘫婴儿的干预措施,但最佳剂量仍未确定。本系统综述旨在确定最有效的约束诱导运动疗法强度,以增强高风险非对称脑损伤或单侧脑瘫婴儿的手动功能。 方法 该系统性综述和荟萃分析包括在四个电子数据库中进行全面搜索,以确定符合以下标准的文章:随机对照试验、0-6 岁高风险儿童或单侧脑瘫患儿、涉及上肢功能约束诱导运动疗法的治疗。通过计算每个亚组的标准化平均差异得分,对结果相似的研究进行汇总,并以总干预剂量每30小时(30-60小时、61-90小时、90小时)对亚组进行分层。采用 Cochrane 协作工具评估偏倚风险。 结果 共纳入 17 项研究。元分析表明,各亚组之间存在显著差异。30-60小时亚组在双臂表现时自发使用患侧上肢、抓握功能以及家长对儿童使用患侧上肢频率的感知方面显示出弱效应。此外,该亚组在家长对儿童有效使用患侧上肢的程度的感知方面显示出中等程度的效果。 结论 在应用限制诱导运动疗法方案时,使用 30 至 60 小时的剂量,是最适合儿童年龄且最具成本效益的方法,可改善上肢功能结果和家长的感知。
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引用次数: 0
Parent perceptions of social well-being in children with special educational needs during COVID-19: A mixed-methods analysis COVID-19 期间有特殊教育需求儿童的家长对社会福利的看法:混合方法分析
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-04-10 DOI: 10.1111/cch.13256
Laila Osman, Jess Whitley

Background

Children's educational experiences worldwide have been significantly impacted as a result of global school closures during the COVID-19 pandemic of Spring 2020. A growing number of studies aim to analyse impacts of these changes on social well-being, with limited studies placing an emphasis on the experiences of students with special educational needs (SENs). This article focusses on parent perspectives regarding impacts of school closures on social well-being in Canadian children with SEN.

Methods

This study uses a mixed-methods approach, drawing from both qualitative and quantitative survey data from Spring/Summer 2020. Participants (n = 263) were eligible for participation if they were a parent/guardian of a child or adolescent with an SEN. We first conducted a descriptive analysis of the key variables, namely, social well-being, grade level of the child, internet and device availability, and the presence of other school-aged children in the home (single child vs. multiple children). Next, we explored the relationship between these using a bivariate correlation. Finally, open-ended responses were analysed using an inductive approach to qualitative thematic analysis.

Results

The majority of parents expressed concern for their child's social well-being during the Spring 2020 school closures, with increased concerns for younger children. According to parents, children experienced communication barriers to peer interaction and many experienced emotional difficulties as a result. Technology was described as critical for some in maintaining social connections. Parents raised concerns about the impact of limited peer interaction on broader social skill development, in the short and long term. A small number of participants noted feelings of relief and reduced anxiety among their children with SEN.

Conclusions

Findings highlight parent views of the negative impact of the pandemic on social well-being and the critical role in-person schooling plays in supporting peer relationships for children with SEN.

背景 2020 年春季 COVID-19 大流行期间,由于全球学校关闭,世界各地儿童的教育经历受到严重影响。越来越多的研究旨在分析这些变化对社会福祉的影响,但强调有特殊教育需求(SEN)学生经历的研究有限。本文将重点关注有特殊教育需要的加拿大儿童家长对学校关闭对其社会福利影响的看法。 方法 本研究采用混合方法,利用 2020 年春夏的定性和定量调查数据。参与者(n = 263)只要是有特殊教育需要的儿童或青少年的家长/监护人就有资格参与。我们首先对关键变量进行了描述性分析,即社会福利、孩子的年级、互联网和设备的可用性以及家中是否有其他学龄儿童(单个孩子与多个孩子)。接下来,我们使用二元相关分析法探讨了这些变量之间的关系。最后,我们采用归纳法对开放式回答进行了定性主题分析。 结果 大多数家长对 2020 年春季学校停课期间孩子的社会福祉表示担忧,对年龄较小的孩子的担忧更多。据家长们称,孩子们在同伴交往中遇到了沟通障碍,许多孩子因此出现了情绪问题。据描述,技术对一些人保持社会联系至关重要。家长们担心,从短期和长期来看,有限的同伴交往会影响更广泛的社会技能发展。少数参与者指出,他们有特殊教育需要的孩子感到轻松并减少了焦虑。 结论 调查结果表明,家长们认为大流行病对社会福祉造成了负面影响,而学校教育在支持有特殊教育需要儿童的同伴关系方面发挥着关键作用。
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引用次数: 0
Assessment of the general health status of children in Turkey: A community-based cross-sectional study 土耳其儿童总体健康状况评估:社区横断面研究
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-04-10 DOI: 10.1111/cch.13260
Hatice Ikiisik, Beyzanur Ozkaptan, Mustafa Cakir, Isil Maral

Aim

This study aims to assess the general health status and factors affecting the general health status in the 0–14 age group in Turkey.

Methods

This cross-sectional study was conducted using the Turkish Statistical Institute Turkey Health Survey 2022 micro data set.

Results

This study included 7019 participants. Household heads described the general health status of 91.3% of children and the dental and gum status of 82.4% of children as very good or good, and 9.2% of children had any chronic disease. Although the median breastfeeding duration was 15 months, there is statistical significant association between sex and general health status (p = 0.014) and sex and duration of breastfeeding (p = 0.006). A statistical difference was found between duration of breastfeeding and general health status (p = 0.009) and dental and gum status (p = 0.001).

Conclusion

In 2022, the majority of children in Turkey had very good or good general health and dental and gum status. More than a third of children were breastfed for less than 12 months. Considering the possibility of neglecting oral and dental health problems, it is recommended to prioritize oral and dental health literacy trainings and to continue breastfeeding promotion programmes.

目的 本研究旨在评估土耳其 0-14 岁年龄组的总体健康状况以及影响总体健康状况的因素。 方法 本横断面研究使用土耳其统计研究所的土耳其 2022 年健康调查微观数据集进行。 结果 这项研究包括 7019 名参与者。户主将 91.3% 的儿童的总体健康状况和 82.4% 的儿童的牙齿和牙龈状况描述为 "非常好 "或 "好",9.2% 的儿童患有任何慢性疾病。虽然母乳喂养时间的中位数为 15 个月,但性别与一般健康状况(p = 0.014)、性别与母乳喂养时间(p = 0.006)之间存在显著的统计学关联。母乳喂养时间与一般健康状况(p = 0.009)以及牙齿和牙龈状况(p = 0.001)之间存在统计学差异。 结论 2022 年,土耳其大多数儿童的总体健康状况以及牙齿和牙龈状况非常好或良好。超过三分之一的儿童母乳喂养时间不足12个月。考虑到忽视口腔和牙齿健康问题的可能性,建议优先开展口腔和牙齿健康知识培训,并继续实施母乳喂养推广计划。
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引用次数: 0
Correction to ‘The effects of neurofeedback training for children with cerebral palsy and co-occurring attention deficits: A pilot study’ 更正 "神经反馈训练对合并注意力缺陷的脑瘫儿童的影响:一项试点研究
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-04-08 DOI: 10.1111/cch.13266

Chen, Y.-C., Chang, W.-P., Liang, K.-J., Chen, C.-L., Chen, H.-Y., Chen, S.-P., & Chan, P.-Y. S. (2024). The effects of neurofeedback training for children with cerebral palsy and co-occurring attention deficits: A pilot study. Child: Care, Health and Development, 50(2), e13231. https://doi.org/10.1111/cch.13231

The affiliation details should have been:

Yuh-Chuan Chen1,2 | Wen-Pin Chang3 | Kai-Jie Liang4,5 | Chia-Ling Chen2,6 | Hsin-Yung Chen1,5 | Shu-Ping Chen7 | Pei-Ying S. Chan1,5.

1Department of Psychiatry, Chang Gung Memorial Hospital at Linkou, Taoyuan, Taiwan

2Graduate Institute of Early Intervention, Chang Gung University, Taoyuan, Taiwan

3Department of Occupational Therapy, College of Health Professions, University of Texas Rio Grande Valley, Edinburg, Texas, USA

4Department of Occupational Therapy, College of Medical Science and Technology, Chung Shan Medical University, Taichung, Taiwan

5Department of Occupational Therapy, College of Medicine, Chang Gung University, Taoyuan, Taiwan

6Department of Physical Medicine and Rehabilitation, Chang Gung Memorial Hospital at Linkou, Taoyuan, Taiwan

7Department of Occupational Therapy, Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, Alberta, Canada

The Funding Information should have been:

Funding information

Chang Gung Memorial Hospital at Linkou, Grant/Award Numbers: CMRPD1A0023, BMRPB96, CMRPG3L1841, CMRPG3L0111–2, CMRPG3H1111–3, CMRPG3N0171, CMRPG3N0881; Taiwan National Science and Technology Council, Grant/Award Numbers: NSC102–2410-H- 182-018, NSTC112–2320-B-182-010-MY3, NSC (109–2410-H-182-017-SSS), NSC (110–2410-H-182-017-SSS).

We apologize for the errors.

Chen,Y.-C.,Chang,W.-P.,Liang,K.-J.,Chen,C.-L.,Chen,H.-Y.,Chen,S.-P.,& Chan,P.-Y.S. (2024).神经反馈训练对合并注意力缺陷的脑瘫儿童的影响:一项试验研究。儿童:Care, Health and Development, 50(2), e13231. https://doi.org/10.1111/cch.13231单位信息应为:陈玉泉1,2 | 张文彬3 | 梁凯杰4,5 | 陈佳玲2,6 | 陈新勇1,5 | 陈淑萍7 | 陈佩英1,5。1台湾桃园林口长庚纪念医院精神科2台湾桃园长庚大学早期介入研究所3美国德州爱丁堡德州大学里奥格兰德河谷健康专业学院职业治疗系4中山医科大学医学科技学院职业治疗系臺灣臺中5臺灣桃園長庚大學醫學院職業治療學系6臺灣桃園林口長庚紀念醫院物理醫學與復健學系7加拿大艾伯塔省埃德蒙頓市艾伯塔大學復健醫學院職業治療學系經費來源:臺灣臺中長庚紀念醫院物理醫學與復健學系:资助信息长庚纪念医院林口分院,资助/奖励编号:CMRPD1A0023, BMRPB96, CMRPG3L1841, CMRPG3L0111-2, CMRPG3H1111-3, CMRPG3N0171, CMRPG3N0881; Taiwan National Science and Technology Council, Grant/Award Numbers:NSC102-2410-H- 182-018, NSTC112-2320-B-182-010-MY3, NSC (109-2410-H-182-017-SSS), NSC (110-2410-H-182-017-SSS).We apologize for the errors.
{"title":"Correction to ‘The effects of neurofeedback training for children with cerebral palsy and co-occurring attention deficits: A pilot study’","authors":"","doi":"10.1111/cch.13266","DOIUrl":"https://doi.org/10.1111/cch.13266","url":null,"abstract":"<p>Chen, Y.-C., Chang, W.-P., Liang, K.-J., Chen, C.-L., Chen, H.-Y., Chen, S.-P., &amp; Chan, P.-Y. S. (2024). The effects of neurofeedback training for children with cerebral palsy and co-occurring attention deficits: A pilot study. Child: Care, Health and Development, 50(2), e13231. https://doi.org/10.1111/cch.13231</p><p>The affiliation details should have been:</p><p>Yuh-Chuan Chen<sup>1,<b>2</b></sup> | Wen-Pin Chang<sup>3</sup> | Kai-Jie Liang<sup>4,5</sup> | Chia-Ling Chen<sup><b>2</b>,6</sup> | Hsin-Yung Chen<sup>1,5</sup> | Shu-Ping Chen<sup>7</sup> | Pei-Ying S. Chan<sup>1,5</sup>.</p><p><sup>1</sup>Department of Psychiatry, Chang Gung Memorial Hospital at Linkou, Taoyuan, Taiwan</p><p><sup>2</sup>Graduate Institute of Early Intervention, Chang Gung University, Taoyuan, Taiwan</p><p><sup>3</sup>Department of Occupational Therapy, College of Health Professions, University of Texas Rio Grande Valley, Edinburg, Texas, USA</p><p><sup>4</sup>Department of Occupational Therapy, College of Medical Science and Technology, Chung Shan Medical University, Taichung, Taiwan</p><p><sup>5</sup>Department of Occupational Therapy, College of Medicine, Chang Gung University, Taoyuan, Taiwan</p><p><sup>6</sup>Department of Physical Medicine and Rehabilitation, Chang Gung Memorial Hospital at Linkou, Taoyuan, Taiwan</p><p><sup>7</sup>Department of Occupational Therapy, Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, Alberta, Canada</p><p>The Funding Information should have been:</p><p>Funding information</p><p>Chang Gung Memorial Hospital at Linkou, Grant/Award Numbers: CMRPD1A0023, BMRPB96, CMRPG3L1841, CMRPG3L0111–2, CMRPG3H1111–3, <b>CMRPG3N0171, CMRPG3N0881</b>; Taiwan National Science and Technology Council, Grant/Award Numbers: NSC102–2410-H- 182-018, NSTC112–2320-B-182-010-MY3, <b>NSC (109–2410-H-182-017-SSS), NSC (110–2410-H-182-017-SSS).</b></p><p>We apologize for the errors.</p>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-04-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/cch.13266","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140537917","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Putting weight-related conversations into practice: Lessons learned from implementing a knowledge translation casebook in a disability context 将与体重有关的对话付诸实践:在残疾背景下实施知识转化案例手册的经验教训
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-04-08 DOI: 10.1111/cch.13257
Christine F. Provvidenza, Revi Bonder, Amy C. McPherson

Background

Due to reported challenges experienced by healthcare providers (HCPs) when having weight-related conversations with children with disabilities and their families, a knowledge translation (KT) casebook was developed, providing key communication principles with supportive resources. Our aim was to explore how the KT casebook could be implemented into a disability context. Study objectives were to develop and integrate needs-based implementation supports to help foster the uptake of the KT casebook communication principles.

Methods

A sample of nurses, physicians, occupational therapists and physical therapists were recruited from a Canadian paediatric rehabilitation hospital. Informed by the Theoretical Domains Framework, group interviews were conducted with participants to understand barriers to having weight-related conversations in their context. Implementation strategies were developed to deliver the KT casebook content that addressed these identified barriers, which included an education workshop, simulations, printed materials, and a huddle and email strategy. Participant experiences with the implementation supports were captured through workshop evaluations, pre-post surveys and qualitative interviews. Post-implementation interviews were analysed using descriptive content analysis.

Results

Ten HCPs implemented the KT casebook principles over 6 months. Participants reported that the workshop provided a clear understanding of the KT casebook content. While HCPs appreciated the breadth of the KT casebook, they found the abbreviated printed educational materials more convenient. Strategies developed to address participants' need for a sense of community and opportunities to learn from each other did not achieve their aim. Increased confidence in integrating the KT casebook principles into practice was not demonstrated, due, in part, to having few opportunities to practice. This was partly because of the increase in competing clinical demands at the onset of the COVID-19 pandemic.

Conclusions

Despite positive feedback on the product itself, changes in the organisational and environmental context limited the success of the implementation plan. Monitoring and adapting implementation processes in response to unanticipated changes is critical to the success of implementation efforts.

背景 据报道,医疗保健提供者(HCPs)在与残疾儿童及其家人进行体重相关对话时会遇到各种挑战,因此我们开发了一本知识转化(KT)案例集,提供了关键的沟通原则和支持性资源。我们的目的是探索如何在残疾环境中实施知识转化案例手册。研究目标是开发和整合以需求为基础的实施支持,以帮助促进对 KT 案例集沟通原则的吸收。 方法 从加拿大一家儿科康复医院招募了护士、医生、职业治疗师和物理治疗师样本。在理论领域框架的指导下,对参与者进行了小组访谈,以了解他们在进行体重相关谈话时遇到的障碍。针对这些障碍,我们制定了实施策略,以提供 KT 案例集内容,其中包括教育研讨会、模拟、印刷材料以及聚会和电子邮件策略。通过研讨会评估、实施前调查和定性访谈,获取了参与者在实施支持方面的经验。采用描述性内容分析法对实施后的访谈进行了分析。 结果 10 名保健医生在 6 个月内实施了 KT 案例手册的原则。参加者表示,研讨会让他们清楚地了解了 KT 案例手册的内容。虽然高级保健医生对 KT 案例集的广度表示赞赏,但他们认为简短的印刷教育材料更为方便。为满足参与者对社区感和相互学习机会的需求而制定的策略并未达到目的。在将 KT 案例手册的原则融入实践的过程中,学员们并没有表现出信心的增强,部分原因是实践的机会很少。部分原因是 COVID-19 大流行开始时,临床需求竞争加剧。 结论 尽管产品本身获得了积极反馈,但组织和环境背景的变化限制了实施计划的成功。针对意料之外的变化对实施过程进行监控和调整是实施工作取得成功的关键。
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引用次数: 0
Exploring individual parent-to-parent support interventions for parents caring for children with brain-based developmental disabilities: A scoping review 探索针对照顾脑部发育障碍儿童的家长的个别家长互助干预措施:范围审查
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-04-08 DOI: 10.1111/cch.13255
Amber Postma, Marjolijn Ketelaar, Justus van Nispen tot Sevenaer, Zahra Downs, Diane van Rappard, Marian Jongmans, Janneke Zinkstok

Background

Brain-based developmental disabilities (BBDDs) comprise a large and heterogeneous group of disorders including autism, intellectual disability, cerebral palsy or genetic and neurodevelopmental disorders. Parents caring for a child with BBDD face multiple challenges that cause increased stress and high risk of mental health problems. Peer-based support by fellow parents for a various range of patient groups has shown potential to provide emotional, psychological and practical support. Here, we aim to explore existing literature on individual peer-to-peer support (iP2PS) interventions for parents caring for children with BBDD with a view to (1) explore the impact of iP2PS interventions on parents and (2) identify challenges and facilitators of iP2PS.

Method

An extensive literature search (January 2023) was performed, and a thematic analysis was conducted to synthesize findings.

Results

Fourteen relevant articles revealed three major themes regarding the impact of iP2PS on parents: (1) emotional and psychological well-being, (2) quality of life and (3) practical issues. Four themes were identified describing challenges and facilitators of iP2PS: (1) benefits and burden of giving support, (2) matching parent-pairs, (3) logistic challenges and solutions and (4) training and supervision of parents providing peer support.

Conclusions

This review revealed that iP2PS has a positive impact on the emotional and psychological well-being of parents, as well as the overall quality of life for families caring for a child with a BBDD. Individual P2PS offers peer-parents an opportunity to support others who are facing challenges similar to those they have experienced themselves. However, many questions still need to be addressed regarding benefits of different iP2PS styles, methods of tailoring support to individual needs and necessity of training and supervision for peer support providers. Future research should focus on defining these components and evaluating benefits to establish effective iP2PS that can be provided as standard care practice for parents.

背景脑发育障碍(BBDDs)是由自闭症、智力障碍、脑瘫或遗传和神经发育障碍等多种疾病组成的一个庞大的异质性群体。照顾 BBDD 患儿的家长面临着多重挑战,压力增大,出现心理健康问题的风险也很高。针对不同患者群体的同龄父母提供的同伴支持已显示出提供情感、心理和实际支持的潜力。在此,我们旨在探讨有关为照顾 BBDD 儿童的家长提供个人同伴支持(iP2PS)干预的现有文献,以期(1)探索 iP2PS 干预对家长的影响,(2)确定 iP2PS 所面临的挑战和促进因素。 方法 进行了广泛的文献检索(2023 年 1 月),并进行了专题分析以综合研究结果。 结果 14 篇相关文章揭示了 iP2PS 对家长影响的三大主题:(1) 情感和心理健康;(2) 生活质量;(3) 实际问题。四个主题描述了 iP2PS 所面临的挑战和促进因素:(1) 提供支持的益处和负担,(2) 家长配对,(3) 后勤挑战和解决方案,以及 (4) 对提供同伴支持的家长进行培训和监督。 结论 本综述显示,iP2PS 对家长的情绪和心理健康以及照顾 BBDD 儿童的家庭的整体生活质量有积极影响。个人 P2PS 为同龄家长提供了一个机会,使他们能够为其他面临与自己经历相似挑战的人提供支持。然而,关于不同 iP2PS 方式的益处、根据个人需求提供支持的方法以及对同伴支持提供者进行培训和监督的必要性,仍有许多问题需要解决。未来的研究应着重于定义这些组成部分并评估其益处,以建立有效的 iP2PS,并将其作为标准护理实践提供给家长。
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引用次数: 0
Associations between the number of siblings, parent–child relationship and positive youth development of adolescents in mainland China: A cross-sectional study 中国大陆青少年兄弟姐妹数量、亲子关系与青少年积极发展之间的关系:横断面研究
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-04-05 DOI: 10.1111/cch.13259
Jingyuan Ke, Biru Luo, Chuanya Huang, Yunxuan Tong, Yan Wang, Xiang Li, Wenlin Ma, Li Zhao, Shujuan Liao

Background

Positive development plays an important role in youth when dealing with stressful circumstances. According to the resource dilution theory, adolescents with or without siblings may receive different levels of emotional and material resources from their parents. The purpose of this study is to examine the association between the positive development of adolescents in China today with their family characteristics such as the number of siblings.

Methods

A total of 2072 junior high and senior high school students (13 to 18 years old) in Chengdu, Sichuan, China, were investigated by cluster sampling. The Chinese Positive Youth Development scales (CPYDs) were used to measure positive youth development. The generalized linear model was used to explore the relationships among the number of siblings, parent–child relationships and positive youth development.

Results

Adolescents from only-child families had better performance on positive development (H = 21.87, P < 0.001) and better relationships with parents (H = 15.1, P < 0.05). The positive development of male and female adolescents does not significantly differ in families with different numbers of siblings. The generalized linear model showed that a positive parent–child relationship is positively correlated with adolescent positive development (P < 0.05).

Conclusion

Positive youth development is not only associated with the number of siblings but also other modifiable familial factors. The positive relationship between parents and adolescents is of great practical value in daily life to improve youth development, and this might be the real lesson the resource dilution theory tells.

背景 积极发展对青少年应对压力环境起着重要作用。根据资源稀释理论,有兄弟姐妹或没有兄弟姐妹的青少年可能从父母那里获得不同程度的情感和物质资源。本研究旨在探讨当今中国青少年的积极发展与其兄弟姐妹数量等家庭特征之间的关系。 方法 采用整群抽样的方法,对中国四川省成都市 2072 名初高中学生(13 至 18 岁)进行了调查。采用中国青少年积极发展量表(CPYDs)测量青少年的积极发展。采用广义线性模型探讨兄弟姐妹数量、亲子关系与青少年积极发展之间的关系。 结果 独生子女家庭的青少年在积极发展方面的表现更好(H = 21.87,P < 0.001),与父母的关系更好(H = 15.1,P < 0.05)。在兄弟姐妹人数不同的家庭中,男女青少年的积极发展并无显著差异。广义线性模型显示,积极的亲子关系与青少年的积极发展呈正相关(P < 0.05)。 结论 青少年的积极发展不仅与兄弟姐妹的数量有关,还与其他可改变的家庭因素有关。在日常生活中,父母与青少年之间的积极关系对改善青少年的发展具有重要的实用价值,这可能就是资源稀释理论所告诉我们的真正道理。
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引用次数: 0
Caregiver and parent–child relationship during COVID-19: The mediator role of anxiety and life satisfaction COVID-19 期间的照顾者与亲子关系:焦虑和生活满意度的中介作用
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-04-01 DOI: 10.1111/cch.13247
Gülsün Ayran, Hamide Nur Çevik Özdemir

Aim

This research was conducted to evaluate the mediation effect of anxiety and life satisfaction on the relationship between Care burden and Parent Child Relationship in Turkish parents during the COVID-19 epidemic.

Methods

The research was carried out with parents (221 women and 219 men) who have children between the ages of 6–18 living in Turkey. Data were collected in June–July 2021 using the demographic data form, “Care Burden Scale,” “Pervasive Anxiety Disorder-7 Test,” “Satisfaction with Life Scale,” and “Parent Child Relationship Scale.” Path analysis was used to analyse the relationships. In this study, structural equation modelling (SEM) was used to examine the path analysis.

Results

It was found that the burden of care and anxiety of the parents and the parent–child conflict relationship were positively correlated and negatively correlated with the life satisfaction and parent–child closeness relationship (p < 0.05). Path model analyses revealed that the burden of care had a direct effect on anxiety and life satisfaction, and an indirect effect on the parent–child relationship, respectively.

Conclusions

It shows that parents' perceptions of how the COVID-19 pandemic is affecting their mental health have implications for parent and child well-being, with stronger relationships for low-income families. Anxiety and life satisfaction had a mediating effect between care burden and parent–child relationship. Given the demonstrable impact of COVID-19 on the parent–child relationship, this study may guide the planning of coping strategies and programmes focused on mental health.

目的 本研究旨在评估 COVID-19 流行期间焦虑和生活满意度对土耳其父母照顾负担和亲子关系之间关系的调节作用。 方法 研究对象为居住在土耳其、子女年龄在 6-18 岁之间的父母(女性 221 人,男性 219 人)。数据收集工作于 2021 年 6 月至 7 月进行,使用了人口统计学数据表、"护理负担量表"、"广泛性焦虑症-7 测试"、"生活满意度量表 "和 "亲子关系量表"。采用路径分析来分析其中的关系。本研究采用结构方程模型(SEM)对路径分析进行检验。 结果 发现,父母的照顾负担和焦虑与亲子冲突关系呈正相关,与生活满意度和亲子亲密关系呈负相关(p <0.05)。路径模型分析显示,照料负担分别对焦虑和生活满意度有直接影响,对亲子关系有间接影响。 结论 研究表明,父母对 COVID-19 大流行如何影响其心理健康的看法会对父母和子女的福祉产生影响,低收入家庭的关系更为密切。焦虑和生活满意度在护理负担和亲子关系之间具有中介效应。鉴于 COVID-19 对亲子关系的明显影响,本研究可为规划以心理健康为重点的应对策略和方案提供指导。
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引用次数: 0
Hypotonic cerebral palsy 低张性脑瘫
IF 1.9 4区 医学 Q1 Medicine Pub Date : 2024-04-01 DOI: 10.1111/cch.13258
Monica S. Cooper, Giuliana C. Antolovich, Michael C. Fahey, David J. Amor
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引用次数: 0
期刊
Child Care Health and Development
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