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Rural unpaid caregivers' experiences in northern Aotearoa, New Zealand during the Covid-19 pandemic: A qualitative study. Covid-19 大流行期间新西兰奥特亚罗瓦北部农村无酬照护者的经历:定性研究。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-08-01 DOI: 10.1111/ajr.13173
Rosemary Frey, Janine Wiles, Deborah Balmer, Pare Meha, John Parsons, Mary Simpson, Vanessa Burholt

Objective: Rural unpaid caregivers experience different opportunities and challenges than their urban counterparts. Our aim was to understand rural unpaid caregivers' experiences of challenges and opportunities during the Covid-19 pandemic in New Zealand.

Setting: Rural northern New Zealand during the Covid-19 pandemic.

Participants: A convenience sample of 10 unpaid rural caregivers, most supporting an older person living with dementia.

Design: A qualitative descriptive design. Data included interviews and online workshops, and a thematic analysis.

Results: Rural unpaid caregivers observed that some aspects of living in a rural context were helpful during the Covid-19 pandemic. However, tasks such as shopping and long-distance travel and communication (both telephonic and digital) became more complex. Abrupt changes to routine and closure of resources and support groups created challenges. Unpaid caregivers worried about what would happen if they were hospitalised themselves. There was a diversity of experience both across caregivers, of familiar routines and rural context as resources, increased challenges requiring resourcefulness to adapt, and experiences of crisis. Many experienced all three states at different times.

Conclusion: This research provides valuable insights into challenges and opportunities experienced by rural unpaid caregivers during the Covid-19 pandemic and may help policy-makers and healthcare professionals develop improved emergency preparedness. Multilevel, multisector responses are needed to ensure effective health and social support and access to resources including health care, access to groceries and medication, transport, and communications (telephone and digital). Enhancing rural access to effective and inexpensive online services is particularly important, as is recognition of the value of rural sites or hubs of connection and social interaction.

目的农村无酬照护者与城市无酬照护者经历着不同的机遇和挑战。我们的目的是了解新西兰农村无酬照护者在 Covid-19 大流行期间所经历的挑战和机遇:环境:Covid-19 大流行期间的新西兰北部农村地区:10名农村无偿照顾者的便利样本,他们中的大多数人都在为患有痴呆症的老年人提供支持:设计:定性描述设计。数据包括访谈、在线研讨会和主题分析:结果:农村无酬照护者认为,在 Covid-19 大流行期间,在农村生活的某些方面很有帮助。然而,购物、长途旅行和通信(电话和数字)等任务变得更加复杂。日常生活的突然改变以及资源和支持团体的关闭带来了挑战。无酬照护者担心如果自己住院会发生什么。不同的照顾者有不同的经历:熟悉的日常事务和乡村环境是资源,挑战的增加需要机智的适应,以及危机的经历。许多人在不同时期经历了这三种状态:这项研究为了解农村无酬照护者在 Covid-19 大流行期间所经历的挑战和机遇提供了宝贵的见解,并可帮助政策制定者和医疗保健专业人员制定更好的应急准备措施。需要采取多层次、多部门的应对措施,以确保有效的健康和社会支持,并确保获得资源,包括医疗保健、日用品和药物、交通和通信(电话和数字)。加强农村地区获取有效且廉价的在线服务尤为重要,同时也要认识到农村地区连接和社会互动中心的价值。
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引用次数: 0
'Profound personal and professional impacts': A qualitative study of clinician experiences of a mental health disaster response to Australia's black summer bushfires. 深刻的个人和职业影响":针对澳大利亚夏季黑色丛林大火的心理健康灾难应对措施的临床医生经验定性研究。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-07-24 DOI: 10.1111/ajr.13163
Margaret Thomas, Elizabeth Martin, Sophie Isobel

Objective: To explore the experiences of clinician and management stakeholders involved in a rural/metropolitan collaborative mental health disaster response to the 2019-2020 Black Summer bushfires in the Snowy Valleys region of southern New South Wales (NSW), Australia.

Setting: A mental health and drug health service in the Snowy Valleys region of rural NSW in collaboration with a mental health service from metropolitan Sydney, NSW.

Participants: Mental health clinicians and managers from a rural health district (n = 6) and a metropolitan health district (n = 8) involved in a collaborative disaster response to the 2019-2020 Black Summer bushfire disaster in the Snowy Valleys region of southern NSW, Australia.

Design: An interpretive qualitative study design using semi-structured individual interviews, with transcripts analysed using Reflexive Thematic Analysis.

Results: Thematic findings on participant experiences are presented under three organising constructs of before (stepping up and jumping right in), during (finding a rhythm of working together), and after (profound personal and professional impacts) the mental health disaster response.

Conclusion: Participant experiences had shared and distinct components before, during and after the mental health disaster response, culminating in profound personal and professional impacts. Findings highlight positive aspects and challenges for clinicians participating in a rural/metropolitan collaborative mental health disaster response. The findings of this study contribute new knowledge about experiences of mental health clinicians participating in a disaster response after bushfires, from dual perspectives of members of a bushfire-affected community and those responding from outside a bushfire-affected community, which may inform ongoing planning of responses to disaster in Australia.

目的探索参与澳大利亚新南威尔士州南部雪谷地区 2019-2020 年黑色夏季丛林大火农村/大都市合作精神卫生灾难应对措施的临床医生和管理利益相关者的经验:新南威尔士州农村雪谷地区的心理健康和药物健康服务机构与新南威尔士州悉尼大都市的心理健康服务机构合作:来自一个农村卫生保健区(n = 6)和一个大都会卫生保健区(n = 8)的心理健康临床医生和管理人员,他们参与了澳大利亚新南威尔士州南部雪谷地区 2019-2020 年黑夏丛林火灾灾难的合作应对:设计:采用半结构式个人访谈的解释性定性研究设计,使用反思性主题分析法对记录誊本进行分析:结果:在心理健康灾难应对之前(挺身而出、立即投入)、期间(找到合作的节奏)和之后(深刻的个人和专业影响)三个组织结构下,对参与者的经历进行了专题研究:参与者的经历在心理健康灾难应对之前、期间和之后既有共同的组成部分,也有不同的组成部 分,最终对个人和专业产生了深远的影响。研究结果凸显了临床医生在参与农村/大都市合作精神卫生灾难应对行动时所面临的积极方面和挑战。本研究的发现从受丛林火灾影响的社区成员和从受丛林火灾影响的社区外参与救灾的人员的双重视角,对心理健康临床医生参与丛林火灾后救灾工作的经验提供了新的知识,可为澳大利亚正在进行的救灾规划提供参考。
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引用次数: 0
Farmer wants a skin check: Improving skin cancer surveillance in rural Australia. 农民要做皮肤检查:改善澳大利亚农村地区的皮肤癌监测。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-07-24 DOI: 10.1111/ajr.13172
Andjela Arandjelovic
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引用次数: 0
Assessment, diagnosis and management characteristics of people with acute Charcot neuro-osteoarthropathy in a regional Australian health service: A 3-year retrospective audit. 澳大利亚地区医疗服务机构对急性夏科神经关节病患者的评估、诊断和管理特点:为期三年的回顾性审计。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-07-23 DOI: 10.1111/ajr.13168
Dimitri Diacogiorgis, Byron Matthew Perrin, Michael Ian Charles Kingsley

Objective: Acute Charcot neuro-osteoarthropathy (CN) is highly destructive, causing bone and joint damage that can result in devastating structural changes to the foot. The objective of this study was to determine the characteristics of assessment, diagnosis and management of people with acute CN attending a large regional Australian health service.

Design: Three-year retrospective medical record audit.

Setting: Large regional health service with catchment area of >250 000 people in regional Australia.

Participants: People with acute CN who attended emergency, orthopaedic clinics or High Risk Foot Clinic (HRFC).

Main outcome measures: Participant characteristics and acute CN assessment, diagnosis and management characteristics. Trends in characteristics were investigated according to rurality as measured by the Modified Monash Model (MMM) scale.

Results: Seventeen participants (20 presentations) of acute CN were identified. Mean age was 57.1 ± 10.8 years, with 11 female participants. Median duration to seek help was 31 (IQR 14-47) days. Total Contact Casting was undertaken for 85% of cases, with those who resided in MMM1-2 regions experienced significantly shorter time to TCC therapy compared to those residing in MMM3-7 regions (U = 3.0, p < 0.01). Resolution of acute CN with or without deformity occurred in 70% of cases.

Conclusions: Those who lived in smaller regional and rural communities were more likely to experience delayed access to gold standard treatment for acute CN. Regional models of care for acute CN should include activities to improve the knowledge of people at risk of acute CN about the condition and upskill regional health professionals for timely and local TCC therapy.

目的:急性夏科神经骨关节病(CN)具有高度破坏性,会造成骨和关节损伤,从而导致足部结构发生破坏性变化。本研究旨在确定在澳大利亚大型地区医疗服务机构就诊的急性夏科氏神经关节病患者在评估、诊断和管理方面的特点:设计:三年回顾性病历审计:环境:澳大利亚地区的大型区域医疗服务机构,服务范围超过 25 万人:主要结果测量指标:主要结果测量:参与者特征以及急性 CN 评估、诊断和管理特征。根据 "修正莫纳什模型"(MMM)量表测量的农村地区特征对特征趋势进行了调查:共发现 17 名急性 CN 患者(20 例病例)。平均年龄为 57.1 ± 10.8 岁,其中 11 人为女性。求助时间中位数为 31 天(IQR 14-47 天)。居住在较小区域和农村社区的人更有可能延迟获得急性 CN 的金标准治疗。急性氯化萘的区域治疗模式应包括开展各种活动,提高急性氯化萘高危人群对该病的认识,并提高区域卫生专业人员的技能,以便及时在当地进行TCC治疗。
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引用次数: 0
Building research capacity at a rural place-based community service organisation in southwest Victoria, Australia. 澳大利亚维多利亚州西南部一个以地方为基础的农村社区服务组织的研究能力建设。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-07-23 DOI: 10.1111/ajr.13170
Bianca E Kavanagh, Kevin P Mc Namara, Penny Bolton, Carly Dennis, Vincent L Versace
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引用次数: 0
Who carries the extra load? The added responsibility of end-of-life care for rural families 谁来承担额外的负担?农村家庭临终关怀的额外责任
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-07-23 DOI: 10.1111/ajr.13171
Kristina Thomas BA (Hons); DPsych (Health), Margaret Deerain BBus (Mgmt); MLitt; MLS
<p>There are over 7 million Australians (28%) living outside of major cities,<span><sup>1</sup></span> and these people have poorer health outcomes and poorer access to and use of primary health care services.<span><sup>2</sup></span> Just like most areas of health, there are common barriers to accessing end-of-life health care for rural Australians including geographical distance to services, lack of stable workforce and difficulty accessing culturally appropriate care.<span><sup>3-5</sup></span> While it is more difficult to access end-of-life health care for rural Australians, we know that the proportion of older Australians is higher in rural Australia so there a is significant need for end-of-life care.<span><sup>1</sup></span></p><p>When access to end-of-life health services is more challenging, who picks up the increased load? Like many areas of social and health care, family, friends and community networks end up playing an increased role in end-of-life care in rural areas.<span><sup>3</sup></span> The family ‘carer’, the person who is most involved in the person's day-to-day care, is even more vital in a rural area. Compared to carers from urban areas, rural carers are more likely to be friends or distant relatives.<span><sup>6</sup></span></p><p>Rural carers report exhaustion, lack of self-care and a need for respite.<span><sup>7</sup></span> This may be due to the fact that rural carers are likely to do more of the care tasks themselves (rather than using services).<span><sup>8</sup></span> A quarter of rural carers want more physical support with caring.<span><sup>6</sup></span> They report unmet needs such as treatment near home (37%), help with economic burden (32%) and concerns about the person being cared for (32%).<span><sup>9</sup></span></p><p>A review of studies<span><sup>3</sup></span> showed that rural end-of-life patients receive fewer home visits from doctors, less home care services, less palliative care, less respite and less allied health; however, there was increased reliance on general practitioners, pharmacy and emergency hospital. Rural carers report that local services have longer wait times, high turnover of staff, and families received late referral to palliative care.<span><sup>4</sup></span></p><p>Rural carers of cancer patients (60% of whom required end-of-life care)<span><sup>4</sup></span> report that one of the biggest stressors is travelling for health services highlighting dealing with the stress of going to the city, organising the actual travel and time away from work, family or the farm. Rural carers also find metropolitan health services difficult to navigate.<span><sup>10</sup></span> Health professionals do not always consider the effort involved in travel which may cause additional inconveniences and stress for rural carers.<span><sup>4</sup></span> Rural carers also report a strong connection to their community and miss being away from their community when travelling for health services.<span><sup
墨尔本圣文森特医院与全国农村健康联盟(National Rural Health Alliance)、澳大利亚悲伤协会(Grief Australia)和 CareSearch(弗林德斯大学)合作,目前正通过 CarerHelp Rural Connect 项目扩大对农村的关注。CarerHelp 正向农村照护者和社区伸出援手,提供新的资源和与医疗专业人员的在线会议,帮助他们为照护生命末期的人做好准备,并为他们作为农村或偏远地区的照护者可能遇到的挑战做好准备。欲了解更多信息,请访问: www.carerhelp.com.au.The 全国农村健康联盟很荣幸能参与该项目,该项目将为我们的农村照护者和他们在农村社区照护的亲人提供实用而重要的支持:构思;写作--原稿;写作--审阅和编辑。Margaret Deerain:写作--审阅和编辑。
{"title":"Who carries the extra load? The added responsibility of end-of-life care for rural families","authors":"Kristina Thomas BA (Hons); DPsych (Health),&nbsp;Margaret Deerain BBus (Mgmt); MLitt; MLS","doi":"10.1111/ajr.13171","DOIUrl":"10.1111/ajr.13171","url":null,"abstract":"&lt;p&gt;There are over 7 million Australians (28%) living outside of major cities,&lt;span&gt;&lt;sup&gt;1&lt;/sup&gt;&lt;/span&gt; and these people have poorer health outcomes and poorer access to and use of primary health care services.&lt;span&gt;&lt;sup&gt;2&lt;/sup&gt;&lt;/span&gt; Just like most areas of health, there are common barriers to accessing end-of-life health care for rural Australians including geographical distance to services, lack of stable workforce and difficulty accessing culturally appropriate care.&lt;span&gt;&lt;sup&gt;3-5&lt;/sup&gt;&lt;/span&gt; While it is more difficult to access end-of-life health care for rural Australians, we know that the proportion of older Australians is higher in rural Australia so there a is significant need for end-of-life care.&lt;span&gt;&lt;sup&gt;1&lt;/sup&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;When access to end-of-life health services is more challenging, who picks up the increased load? Like many areas of social and health care, family, friends and community networks end up playing an increased role in end-of-life care in rural areas.&lt;span&gt;&lt;sup&gt;3&lt;/sup&gt;&lt;/span&gt; The family ‘carer’, the person who is most involved in the person's day-to-day care, is even more vital in a rural area. Compared to carers from urban areas, rural carers are more likely to be friends or distant relatives.&lt;span&gt;&lt;sup&gt;6&lt;/sup&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;Rural carers report exhaustion, lack of self-care and a need for respite.&lt;span&gt;&lt;sup&gt;7&lt;/sup&gt;&lt;/span&gt; This may be due to the fact that rural carers are likely to do more of the care tasks themselves (rather than using services).&lt;span&gt;&lt;sup&gt;8&lt;/sup&gt;&lt;/span&gt; A quarter of rural carers want more physical support with caring.&lt;span&gt;&lt;sup&gt;6&lt;/sup&gt;&lt;/span&gt; They report unmet needs such as treatment near home (37%), help with economic burden (32%) and concerns about the person being cared for (32%).&lt;span&gt;&lt;sup&gt;9&lt;/sup&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;A review of studies&lt;span&gt;&lt;sup&gt;3&lt;/sup&gt;&lt;/span&gt; showed that rural end-of-life patients receive fewer home visits from doctors, less home care services, less palliative care, less respite and less allied health; however, there was increased reliance on general practitioners, pharmacy and emergency hospital. Rural carers report that local services have longer wait times, high turnover of staff, and families received late referral to palliative care.&lt;span&gt;&lt;sup&gt;4&lt;/sup&gt;&lt;/span&gt;&lt;/p&gt;&lt;p&gt;Rural carers of cancer patients (60% of whom required end-of-life care)&lt;span&gt;&lt;sup&gt;4&lt;/sup&gt;&lt;/span&gt; report that one of the biggest stressors is travelling for health services highlighting dealing with the stress of going to the city, organising the actual travel and time away from work, family or the farm. Rural carers also find metropolitan health services difficult to navigate.&lt;span&gt;&lt;sup&gt;10&lt;/sup&gt;&lt;/span&gt; Health professionals do not always consider the effort involved in travel which may cause additional inconveniences and stress for rural carers.&lt;span&gt;&lt;sup&gt;4&lt;/sup&gt;&lt;/span&gt; Rural carers also report a strong connection to their community and miss being away from their community when travelling for health services.&lt;span&gt;&lt;sup","PeriodicalId":55421,"journal":{"name":"Australian Journal of Rural Health","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-07-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/ajr.13171","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141811486","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Towards a home-grown rural health workforce: Evidence from Tasmania, Australia. 建立一支本土化的农村医疗卫生队伍:来自澳大利亚塔斯马尼亚州的证据。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-07-23 DOI: 10.1111/ajr.13169
B Jessup, N Tran, T Stevens, P Allen, T Barnett

Objective: To examine the association between place of origin and principal place of practice (PPP) of domestic Tasmanian health graduates who received end-to-end training with the University of Tasmania (UTAS).

Methods: The 2022 PPP for all UTAS domestic Tasmanian graduates from medicine, nursing, pharmacy, psychology, medical radiation science and paramedicine between 2011 and 2020 was identified using the online Australian Health Practitioner Regulation Agency (Ahpra) registration database. The graduate's place of origin (home address at the time of course application), together with their 2022 PPP, was described using the Modified Monash Model (MM) classification system of remoteness. Data were analysed using STATA.

Results: Over the 10-year period, 4079 domestic Tasmanians graduated from health courses at UTAS, of which 3850 (94.4%) were matched to an Australian PPP. In all, 78.3% of graduates were working in Tasmania, while the remainder (21.7%) were employed interstate. Of those with a Tasmanian PPP, 81.4% were working in a regional setting (MM2), while 77.6% of interstate employed graduates recorded a metropolitan (MM1) PPP. Rural place of origin (MM3-7) was associated with rural employment (MM3-7) in both Tasmania (OR, 37.08; 95% CI 29.01-47.39, p < 0.001), and on the Australian mainland (OR, 21.4; 95% CI 17.4-26.3, p < 0.001).

Conclusions: Most domestic Tasmanian origin UTAS health graduates contribute to the state's health workforce after qualifying. Further research is needed to explore PPP over time and to understand why some graduates are motivated to seek employment on the Australian mainland and in particular, metropolitan cities.

目的研究在塔斯马尼亚大学(UTAS)接受端到端培训的塔斯马尼亚国内健康专业毕业生的原籍地与主要执业地点(PPP)之间的关联:通过澳大利亚卫生从业者监管局(Ahpra)在线注册数据库,确定了 2011 年至 2020 年间塔斯马尼亚州国内所有UTAS 医学、护理、药学、心理学、医学放射科学和辅助医疗毕业生的 2022 年主要执业地点。毕业生的原籍地(申请课程时的家庭住址)及其 2022 年的 PPP 采用修改后的莫纳什模型(MM)偏远地区分类系统进行描述。数据使用 STATA 进行分析:10 年间,共有 4079 名塔斯马尼亚州本地人从UTAS 的健康课程毕业,其中 3850 人(94.4%)与澳大利亚 PPP 匹配。总共有 78.3% 的毕业生在塔斯马尼亚州工作,其余的毕业生(21.7%)在州际就业。在塔斯马尼亚州 PPP 的毕业生中,81.4% 在地区环境(MM2)工作,而 77.6% 跨州就业的毕业生的 PPP 记录为大都市(MM1)。在塔斯马尼亚州,农村原籍(MM3-7)与农村就业(MM3-7)相关(OR,37.08;95% CI 29.01-47.39,p 结论):大多数来自塔斯马尼亚州国内的UTAS卫生专业毕业生在取得资格后都为该州的卫生事业做出了贡献。我们需要进一步开展研究,探讨随着时间推移的 "PPP",并了解为什么一些毕业生会选择到澳大利亚本土,尤其是大都市就业。
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引用次数: 0
Clinical presentation and management of enterovirus and parechovirus infection in children: A single-centre study in regional Australia. 儿童肠道病毒和帕累托病毒感染的临床表现和处理:澳大利亚地区单中心研究。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-07-19 DOI: 10.1111/ajr.13160
Tharmarajah Sorubarajan, Sivapriyan Sorubarajan

Objective: This study aims to analyse the clinical presentation caused by enterovirus (EV) and/or human parechovirus (HPeV) infection in children, as well as the management of such cases admitted to a regional hospital in Australia.

Methods: Retrospective study reviewing medical records.

Setting: Single hospital in regional Australia.

Participants: All children under 18 years admitted over the 5-year period beginning from 1 January 2017 with confirmed EV and/or HPeV infection. Cases with clinically insignificant EV/HPeV isolation were excluded.

Main outcome measures: Data collected included demographic data, signs and symptoms present, specimens of EV/HPeV isolation, co-occurring pathogens, peak C-reactive protein (CRP), antibiotic therapy, discharge diagnosis and follow-up after discharge.

Results: Overall, 27 patients fulfilled the inclusion criteria; 81.5% of the patients were ≤3 months of age with a median of 2 months (interquartile range 1-3); 74.1% were males. The most common clinical features were a fever ≥38°C and irritability/lethargy/high-pitched cry. 29.6% of the patients had co-occurring pathogens detected, and a CRP ≤10 mg/L was observed in 77.8% of cases. All but two children were treated with antibiotics while awaiting polymerase chain reaction results. The most common discharge diagnosis was meningitis. In all, 74.1% of the children attended follow-up appointments.

Conclusions: EV and HPeV should be considered as a possible aetiology of fever and irritability/lethargy/high-pitched cry in children under 3 months.

研究目的本研究旨在分析儿童感染肠道病毒(EV)和/或人类帕累托病毒(HPeV)后的临床表现,以及澳大利亚一家地区医院对此类病例的处理情况:方法:回顾性研究,审查医疗记录:环境:澳大利亚地区的一家医院:自 2017 年 1 月 1 日起的 5 年间,所有 18 岁以下确诊 EV 和/或 HPeV 感染的儿童。排除了临床症状不明显的EV/HPeV分离病例:收集的数据包括人口统计学数据、出现的体征和症状、EV/HPeV分离标本、并发病原体、C反应蛋白(CRP)峰值、抗生素治疗、出院诊断和出院后随访:共有 27 名患者符合纳入标准;81.5% 的患者年龄小于 3 个月,中位数为 2 个月(四分位数间距为 1-3 个月);74.1% 为男性。最常见的临床特征是发烧≥38°C和烦躁/嗜睡/高声哭闹。29.6%的患者同时检测到病原体,77.8%的病例CRP≤10 mg/L。除两名患儿外,其他患儿在等待聚合酶链反应结果期间均接受了抗生素治疗。最常见的出院诊断是脑膜炎。74.1%的患儿接受了后续治疗:结论:EV 和 HPeV 应被视为 3 个月以下儿童发烧和烦躁/嗜睡/高声哭闹的可能病因。
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引用次数: 0
'I am more than my diagnosis': Amplifying the voice of consumers in the design and delivery of mental health services. 我不只是我的诊断":在心理健康服务的设计和提供过程中放大消费者的声音。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-07-19 DOI: 10.1111/ajr.13150
Joy Paton, Amie Carrington, Emma Gentle, Debbie Horsefall

Objective: In line with the Australian Government's Vision 2030, this research foregrounds consumer experiences of recovery to inform the (co)design and delivery of mental health services for people living with complex needs and/or a severe and persistent mental health condition.

Setting: The research takes a specialist focus on the regional setting, with data collected from client experiences within Western NSW, Australia, in the context of the National Disability Insurance Scheme (NDIS) implementation and inclusion of psycho-social disability within the NDIS service environment.

Participants: Thirty-seven people aged 19-70 years living with complex needs and/or a diagnosis of a severe and persistent mental health condition were recruited from services where they had a care plan or where they were members of a consumer reference group for recovery-oriented services.

Design: A tripartite framework integrating recovery oriented, trauma-informed and collective impact approaches for a qualitative, arts-based (photovoice) study.

Results: In areas of the mental health service system that had not yet applied a personalised understanding of recovery or embraced trauma-informed practice there were a range of issues and gaps in service delivery relating to authentic relationships, belonging and connection, service cultures, trauma-informed care, and workforce investment.

Conclusion: Clinical and non-clinical services need to ensure consistent person-centred and trauma-informed practice is implemented throughout the mental health service system to meet the needs of the consumer. An eight-point checklist serves as the basis for services to reflect on how they are working with consumers and to support the review of systems and clinical governance frameworks.

目标:根据澳大利亚政府的 "2030 年愿景",本研究将消费者的康复体验作为研究重点,以便为有复杂需求和/或严重且持续的精神健康状况的人设计和提供精神健康服务:本研究以地区环境为专业重点,在国家残疾保险计划(NDIS)实施以及将社会心理残疾纳入 NDIS 服务环境的背景下,从澳大利亚新南威尔士州西部的客户体验中收集数据:37 名年龄在 19-70 岁之间、有复杂需求和/或被诊断出患有严重和持续性精神疾病的人被招募到他们有护理计划的服务机构,或者他们是以康复为导向的服务消费者参考小组的成员:设计:一个三方框架,整合了以康复为导向、创伤知情和集体影响的方法,用于一项定性的、以艺术为基础的(摄影选言)研究:结果:在心理健康服务体系中,尚未对康复进行个性化理解或尚未接受创伤知情实践的领域,在提供服务时存在一系列问题和差距,这些问题和差距与真实关系、归属感和联系、服务文化、创伤知情护理以及劳动力投资有关:临床和非临床服务需要确保在整个心理健康服务体系中实施一致的以人为本和创伤知情实践,以满足消费者的需求。八点核对表可作为服务机构反思如何与消费者合作的基础,并为系统和临床治理框架的审查提供支持。
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引用次数: 0
Conducting mental health research with rural and regional older Australians: Reflections and recommendations. 对澳大利亚农村和地区老年人进行心理健康研究:思考与建议。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-07-14 DOI: 10.1111/ajr.13165
Daniel P Wadsworth, Belinda Cash, Kristen Tulloch, Rebekah Couper, Kristy Robson, Sally Fitzpatrick

Aims: This commentary aims to assist emerging leaders of mental health research with older rural Australians through (i) affirmation that others share the barriers, pitfalls and challenges being faced; (ii) reinforcing the rationale making this a pertinent area for research; and (iii) opening a dialogue for best practice to engage older rural Australians in mental health research.

Context: Supporting the mental health of older adults is a pertinent global challenge, none more so than in rural Australia where restricted access to services and supports are compounded by limited help-seeking behaviours and capacity to engage with support. Paradoxically, such limitations also extend to impact researchers' ability to engage rural older Australians in mental health research, particularly when combined with the stoicism and stigma that often envelopes mental health, and the contemporary challenges posed by the emergence of technology. Such challenges are however not often discussed, more-often sidelined in favour of reporting positive research outcomes, or seeing emerging researchers eschew such focus entirely.

Approach: Through this paper, the authors utilised critical self-appraisal and iterative reflection to identify four recommendations for undertaking contemporary mental health research with rural older Australians, namely to: plan realistically through a collaborative, authentic and respectful approach; identify community champions and build/maintain trust; diversify thought, approaches and methodology; and cast the research net far, wide and often.

Conclusion: By adopting recommendations, researchers can maximise accessibility to and possible participation in mental health research, providing foundations for older rural Australians' contributions to inform the development of policies and strategies to promote their health and well-being.

目的:这篇评论旨在通过以下方式,帮助针对澳大利亚农村老年人开展心理健康研究的新兴领导者:(i) 肯定其他人也面临着同样的障碍、陷阱和挑战;(ii) 强化使这一领域成为相关研究领域的理由;(iii) 展开对话,探讨让澳大利亚农村老年人参与心理健康研究的最佳实践:为老年人的心理健康提供支持是一项相关的全球性挑战,在澳大利亚农村地区,由于求助行为和参与支持的能力有限,获得服务和支持的途径受到限制,情况更为严重。矛盾的是,这些局限性也影响了研究人员让澳大利亚农村老年人参与心理健康研究的能力,尤其是当这些局限性与心理健康问题上经常出现的委曲求全和耻辱感,以及当代技术的出现所带来的挑战结合在一起的时候。然而,这些挑战并不经常被讨论,更多的时候是被搁置一边,只报道积极的研究成果,或者看到新兴研究人员完全回避这种关注:通过本文,作者利用批判性的自我评价和迭代反思,确定了针对澳大利亚农村地区老年人开展当代心理健康研究的四项建议,即:通过合作、真实和尊重的方法制定切实可行的计划;确定社区拥护者并建立/保持信任;实现思想、方法和方法论的多样化;以及将研究网撒得更远、更广、更频繁:通过采纳这些建议,研究人员可以最大限度地提高心理健康研究的可及性和可能的参与度,为澳大利亚农村老年人为制定促进其健康和福祉的政策和战略提供信息奠定基础。
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Australian Journal of Rural Health
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