Bianca E. Kavanagh PhD, Kevin P. Mc Namara PhD, Penny Bolton MPH, Carly Dennis BPH, Vincent L. Versace PhD
<p>Due to their unique ability to appreciate the local context, rural place-based health and community services are central to the prevention and management of health and social issues.<span><sup>1</sup></span> Place-based approaches allow relevant evidence to be generated locally; however, at present, there is a lack of evidence generated from rurally based health services<span><sup>1</sup></span> and arguably less evidence produced from the community services sector.<span><sup>2</sup></span> This lack of evidence limits the ability for policy-makers to make evidence-informed decisions about how to improve outcomes for rural populations.<span><sup>3</sup></span> There is an increasing need to provide evidence of outcomes within the community services sector, and the need to have mechanisms in place to capture, analyse and report data has been identified.<span><sup>4</sup></span> However, the complexities of this sector—including that services are delivered within complex, dynamic and multifaceted social contexts, with multiple funding sources—have led to challenges for community services to conduct research. This impedes the opportunity to enhance service performance and outcomes.<span><sup>4</sup></span> The experiences of rural health services might inform a framework for generating evidence in the community services sector. Rural health services are reported to be motivated to build research capacity to attract and retain the rural workforce,<span><sup>5</sup></span> and parallels with the community services sector may exist.</p><p>Research capacity building is an effective approach to generating and applying new knowledge to improve outcomes.<span><sup>6</sup></span> Cooke et al.<span><sup>6</sup></span> suggested that if research questions are developed through consultation with users (i.e. service providers and policy-makers), then the research generated is relevant to fundamental health issues and concerns; this may be particularly relevant to regional, rural and remote (RRR) areas. The embedded research (ER) model may support evidence acumen by bridging the disparity between research and service delivery.<span><sup>7</sup></span> Embedded researchers (i.e. when a researcher is embedded into a ‘host’ organisation) may assist in building research capacity through their function of conducting collaborative and ‘on the ground’ research.<span><sup>7</sup></span> This model differs from the bench-to-bedside model and may be a sustainable approach to research capacity building in RRR contexts.<span><sup>1</sup></span> The ER model may circumvent the need for lower-resourced health and community services from consulting with external researchers to generate evidence. Despite being a relatively new approach to building research capacity in RRR contexts, the ER model has gained traction and demonstrated success in recent years.<span><sup>8</sup></span></p><p>An ER model was recently implemented at Brophy Family and Youth Services (Brophy) in south
星光基金会是澳大利亚规模较大的非营利性组织,在多边环境协定和研究方面拥有较为成熟的文化。这次咨询为当前的工作和方法提供了宝贵的见解。因此,主要的 MEL 和研究活动是分阶段进行的,最初的重点是了解准备情况,并促成能力、决策和合作方面的变革。迄今为止,嵌入式研究员的活动主要集中在建立全机构范围的 MEL 和研究方法、为选定的计划提供支持以及对特定计划的成果进行试点监测(表 S2)。这些活动为提高研究素养提供了一个途径--这一点很重要,因为一般而言,社区服务部门可被视为一个研究新兴行业,而提高循证实践的举措应有助于提高研究素养。11 尽管这些活动还处于初步阶段,但员工的认同和兴趣以及领导团队的支持都很高(正如应急专家在与员工访谈时就 Brophy 的初步研究和评估需求所报告的那样)。这表明,社区服务人员参与和开展研究的积极性很高,尽管在这样做的过程中会遇到各种挑战。该急诊室职位的初步成功得益于布罗菲与迪肯农村医疗机构之间的紧密合作,包括通过各组织之间现有的地方关系。此外,迪肯农村医疗机构也是一个以地方为基础的组织,拥有联合医疗能力建设的授权和资源。这些因素支持了基于相互信任、共同目标和长期合作承诺的共同愿景,并促成了共同出资的 ER 角色。这项工作的成果将使证据得以公布,并有助于改善西南部人口的健康和社会成果:构思;调查;项目管理;资源;写作--原稿;写作--审阅和编辑。Kevin P. Mc Namara:项目管理;资源;监督;写作--原稿;写作--审阅和编辑。彭妮-博尔顿项目管理;资源;监督;写作--审阅和编辑。Carly Dennis:项目管理;写作--审阅和编辑;监督;资源。文森特-L-范思哲BEK 由 Brophy 家庭与青少年服务机构和澳大利亚政府的农村卫生多学科培训计划 (RHMT) 资助。VLV 也得到了 RHMT 的资助。
{"title":"Building research capacity at a rural place-based community service organisation in southwest Victoria, Australia","authors":"Bianca E. Kavanagh PhD, Kevin P. Mc Namara PhD, Penny Bolton MPH, Carly Dennis BPH, Vincent L. Versace PhD","doi":"10.1111/ajr.13170","DOIUrl":"10.1111/ajr.13170","url":null,"abstract":"<p>Due to their unique ability to appreciate the local context, rural place-based health and community services are central to the prevention and management of health and social issues.<span><sup>1</sup></span> Place-based approaches allow relevant evidence to be generated locally; however, at present, there is a lack of evidence generated from rurally based health services<span><sup>1</sup></span> and arguably less evidence produced from the community services sector.<span><sup>2</sup></span> This lack of evidence limits the ability for policy-makers to make evidence-informed decisions about how to improve outcomes for rural populations.<span><sup>3</sup></span> There is an increasing need to provide evidence of outcomes within the community services sector, and the need to have mechanisms in place to capture, analyse and report data has been identified.<span><sup>4</sup></span> However, the complexities of this sector—including that services are delivered within complex, dynamic and multifaceted social contexts, with multiple funding sources—have led to challenges for community services to conduct research. This impedes the opportunity to enhance service performance and outcomes.<span><sup>4</sup></span> The experiences of rural health services might inform a framework for generating evidence in the community services sector. Rural health services are reported to be motivated to build research capacity to attract and retain the rural workforce,<span><sup>5</sup></span> and parallels with the community services sector may exist.</p><p>Research capacity building is an effective approach to generating and applying new knowledge to improve outcomes.<span><sup>6</sup></span> Cooke et al.<span><sup>6</sup></span> suggested that if research questions are developed through consultation with users (i.e. service providers and policy-makers), then the research generated is relevant to fundamental health issues and concerns; this may be particularly relevant to regional, rural and remote (RRR) areas. The embedded research (ER) model may support evidence acumen by bridging the disparity between research and service delivery.<span><sup>7</sup></span> Embedded researchers (i.e. when a researcher is embedded into a ‘host’ organisation) may assist in building research capacity through their function of conducting collaborative and ‘on the ground’ research.<span><sup>7</sup></span> This model differs from the bench-to-bedside model and may be a sustainable approach to research capacity building in RRR contexts.<span><sup>1</sup></span> The ER model may circumvent the need for lower-resourced health and community services from consulting with external researchers to generate evidence. Despite being a relatively new approach to building research capacity in RRR contexts, the ER model has gained traction and demonstrated success in recent years.<span><sup>8</sup></span></p><p>An ER model was recently implemented at Brophy Family and Youth Services (Brophy) in south","PeriodicalId":55421,"journal":{"name":"Australian Journal of Rural Health","volume":"32 5","pages":"1068-1071"},"PeriodicalIF":1.9,"publicationDate":"2024-07-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/ajr.13170","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141753427","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kristina Thomas BA (Hons); DPsych (Health), Margaret Deerain BBus (Mgmt); MLitt; MLS
<p>There are over 7 million Australians (28%) living outside of major cities,<span><sup>1</sup></span> and these people have poorer health outcomes and poorer access to and use of primary health care services.<span><sup>2</sup></span> Just like most areas of health, there are common barriers to accessing end-of-life health care for rural Australians including geographical distance to services, lack of stable workforce and difficulty accessing culturally appropriate care.<span><sup>3-5</sup></span> While it is more difficult to access end-of-life health care for rural Australians, we know that the proportion of older Australians is higher in rural Australia so there a is significant need for end-of-life care.<span><sup>1</sup></span></p><p>When access to end-of-life health services is more challenging, who picks up the increased load? Like many areas of social and health care, family, friends and community networks end up playing an increased role in end-of-life care in rural areas.<span><sup>3</sup></span> The family ‘carer’, the person who is most involved in the person's day-to-day care, is even more vital in a rural area. Compared to carers from urban areas, rural carers are more likely to be friends or distant relatives.<span><sup>6</sup></span></p><p>Rural carers report exhaustion, lack of self-care and a need for respite.<span><sup>7</sup></span> This may be due to the fact that rural carers are likely to do more of the care tasks themselves (rather than using services).<span><sup>8</sup></span> A quarter of rural carers want more physical support with caring.<span><sup>6</sup></span> They report unmet needs such as treatment near home (37%), help with economic burden (32%) and concerns about the person being cared for (32%).<span><sup>9</sup></span></p><p>A review of studies<span><sup>3</sup></span> showed that rural end-of-life patients receive fewer home visits from doctors, less home care services, less palliative care, less respite and less allied health; however, there was increased reliance on general practitioners, pharmacy and emergency hospital. Rural carers report that local services have longer wait times, high turnover of staff, and families received late referral to palliative care.<span><sup>4</sup></span></p><p>Rural carers of cancer patients (60% of whom required end-of-life care)<span><sup>4</sup></span> report that one of the biggest stressors is travelling for health services highlighting dealing with the stress of going to the city, organising the actual travel and time away from work, family or the farm. Rural carers also find metropolitan health services difficult to navigate.<span><sup>10</sup></span> Health professionals do not always consider the effort involved in travel which may cause additional inconveniences and stress for rural carers.<span><sup>4</sup></span> Rural carers also report a strong connection to their community and miss being away from their community when travelling for health services.<span><sup
{"title":"Who carries the extra load? The added responsibility of end-of-life care for rural families","authors":"Kristina Thomas BA (Hons); DPsych (Health), Margaret Deerain BBus (Mgmt); MLitt; MLS","doi":"10.1111/ajr.13171","DOIUrl":"10.1111/ajr.13171","url":null,"abstract":"<p>There are over 7 million Australians (28%) living outside of major cities,<span><sup>1</sup></span> and these people have poorer health outcomes and poorer access to and use of primary health care services.<span><sup>2</sup></span> Just like most areas of health, there are common barriers to accessing end-of-life health care for rural Australians including geographical distance to services, lack of stable workforce and difficulty accessing culturally appropriate care.<span><sup>3-5</sup></span> While it is more difficult to access end-of-life health care for rural Australians, we know that the proportion of older Australians is higher in rural Australia so there a is significant need for end-of-life care.<span><sup>1</sup></span></p><p>When access to end-of-life health services is more challenging, who picks up the increased load? Like many areas of social and health care, family, friends and community networks end up playing an increased role in end-of-life care in rural areas.<span><sup>3</sup></span> The family ‘carer’, the person who is most involved in the person's day-to-day care, is even more vital in a rural area. Compared to carers from urban areas, rural carers are more likely to be friends or distant relatives.<span><sup>6</sup></span></p><p>Rural carers report exhaustion, lack of self-care and a need for respite.<span><sup>7</sup></span> This may be due to the fact that rural carers are likely to do more of the care tasks themselves (rather than using services).<span><sup>8</sup></span> A quarter of rural carers want more physical support with caring.<span><sup>6</sup></span> They report unmet needs such as treatment near home (37%), help with economic burden (32%) and concerns about the person being cared for (32%).<span><sup>9</sup></span></p><p>A review of studies<span><sup>3</sup></span> showed that rural end-of-life patients receive fewer home visits from doctors, less home care services, less palliative care, less respite and less allied health; however, there was increased reliance on general practitioners, pharmacy and emergency hospital. Rural carers report that local services have longer wait times, high turnover of staff, and families received late referral to palliative care.<span><sup>4</sup></span></p><p>Rural carers of cancer patients (60% of whom required end-of-life care)<span><sup>4</sup></span> report that one of the biggest stressors is travelling for health services highlighting dealing with the stress of going to the city, organising the actual travel and time away from work, family or the farm. Rural carers also find metropolitan health services difficult to navigate.<span><sup>10</sup></span> Health professionals do not always consider the effort involved in travel which may cause additional inconveniences and stress for rural carers.<span><sup>4</sup></span> Rural carers also report a strong connection to their community and miss being away from their community when travelling for health services.<span><sup","PeriodicalId":55421,"journal":{"name":"Australian Journal of Rural Health","volume":"32 4","pages":"856-858"},"PeriodicalIF":1.9,"publicationDate":"2024-07-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/ajr.13171","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141811486","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}