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Revista de Logopedia, Foniatria y Audiologia最新文献

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Formación docente e implementación de comunicación aumentativa y alternativa con comunicadores electrónicos en entornos escolares 在学校环境中使用电子传播者进行强化和替代通信的教学培训和实施
Q3 Nursing Pub Date : 2026-01-01 DOI: 10.1016/j.rlfa.2025.100552
Clara Laosa Campos , Adoración Díaz López

Background and objectives

Inclusive education faces the challenge of ensuring the participation of students with complex communication needs in the school environment. In this regard, Augmentative and Alternative Communication (AAC) plays a crucial role, and its benefits depend largely on the knowledge and training of educational professionals. The purpose of this study is to determine the level of AAC knowledge possessed by teachers and other educational specialists, as well as its impact on the use of technology-aided AAC in the classroom.

Materials and methods

Through a quantitative survey design, information was collected from 98 educational professionals regarding: 1) specialized AAC training; 2) the use of high-tech AAC systems; and 3) the application of fundamental principles and strategies.

Results

The analysis reveals a widespread lack of specific AAC training among teachers from various specialties, which could explain the methodological inconsistency in the process of teaching technology-aided AAC.

Conclusions

Professionals with less training tend to implement speech-generating devices less frequently. Among the strategies analyzed, modeling was the most commonly used in AAC teaching, while instruction to communication partners was the least frequently used. These findings underscore the need to address training deficiencies, which compromise the teaching process and the participation of students who use AAC systems during their schooling.
背景与目的全纳教育面临着确保有复杂交流需求的学生参与学校环境的挑战。在这方面,辅助和替代沟通(AAC)起着至关重要的作用,其效益在很大程度上取决于教育专业人员的知识和培训。本研究的目的是确定教师和其他教育专家所拥有的AAC知识水平,以及它对课堂上使用技术辅助的AAC的影响。材料与方法通过定量调查设计,收集了98名教育专业人员的信息:1)AAC专业培训;2)采用高科技空调系统;3)基本原则和策略的运用。结果分析显示,各专业教师普遍缺乏针对性的AAC培训,这可以解释技术辅助AAC教学过程中方法上的不一致。结论培训较少的专业人员使用语音生成设备的频率较低。在分析的策略中,建模是AAC教学中最常用的策略,而对交际伙伴的指导是最不常用的策略。这些发现强调了解决培训缺陷的必要性,因为培训缺陷会影响教学过程和在学校期间使用AAC系统的学生的参与。
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引用次数: 0
Effects of the pandemic on the learning process of students from a low socioeconomic level: Comparative and cross-sectional and quantitative study 大流行对低社会经济水平学生学习过程的影响:比较、横断面和定量研究
Q3 Nursing Pub Date : 2026-01-01 DOI: 10.1016/j.rlfa.2025.100553
Patrícia Aparecida Zuanetti , Marina Estima Neiva Nunes , Angela Cristina Pontes-Fernandes , Raphael Lopes Sartori , Paulo Braga Barros Nhani , Roberta Olivério-Naegeli , Ana Paula Andrade Hamad

Introduction and objectives

Schools were temporarily closed to control the dissemination of the coronavirus disease 2019 (COVID-19), leading to the implementation of remote teaching. To compare the performance in oral and written language and arithmetic skills among students assessed before and after the COVID-19 pandemic with lower socioeconomic levels.

Materials and methods

Comparative and cross-sectional and quantitative study. Altogether, 189 low-socioeconomic-level 1st to 4th graders participated in the study. They were divided into two groups: Pre-Pandemic (children assessed in 2019) and Post-Pandemic (children assessed in 2022). A standardized and validated screening test was used to investigate oral language, written language, and arithmetic skills. Statistical inferences were made by comparing the percentage of children with deficits in each skill – two-proportion Z-test (α = 0.05).

Results

No differences were found in the oral language tasks. There was no difference either in phonological awareness, reading, written comprehension, spontaneous writing, and arithmetic skills between the groups. However, a significant percentage of children had an atypical performance at both assessment moments. The writing skill (dictation) was the most impaired one in children who learned to read and write while schools were closed.

Conclusion

Canceled in-person classes highlighted and potentialized the school learning deficit that had already been observed among low-income children before the COVID-19 pandemic. The most affected children were those who attended 1st and 2nd grades while schools were closed.
简介与目的为控制新型冠状病毒病(COVID-19)的传播,学校暂时停课,实施远程教学。比较社会经济水平较低的学生在2019冠状病毒病大流行前后的口头、书面语言和算术能力表现。材料与方法比较研究、横断面研究和定量研究。共有189名低社会经济水平的一至四年级学生参加了这项研究。他们被分为两组:大流行前(2019年评估的儿童)和大流行后(2022年评估的儿童)。使用标准化和有效的筛选测试来调查口头语言,书面语言和算术技能。通过比较各技能缺陷儿童的百分比进行统计推断-双比例z检验(α = 0.05)。结果两组在口语任务上无明显差异。在语音意识、阅读、书面理解、自发写作和算术技能方面,两组之间都没有差异。然而,很大比例的儿童在两个评估时刻都表现不典型。在学校停课期间学习读写的儿童中,写作技能(听写)受损最严重。结论取消面对面课程凸显并加剧了COVID-19大流行前低收入家庭儿童中已经存在的学校学习缺陷。受影响最大的是那些在学校停课期间就读一年级和二年级的儿童。
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引用次数: 0
Perfil léxico-semántico asociado a microduplicación 4p16.3: un estudio de caso 与微重复相关的词汇-语义简介4p16.3:案例研究
Q3 Nursing Pub Date : 2026-01-01 DOI: 10.1016/j.rlfa.2025.100550
Ana Alejandra Espinosa-Mojica , Carmen Varo Varo

Background and objectives

Microduplications at the 4p16.3 locus are rare genetic alterations that can affect neurodevelopment, particularly language. Several studies suggest that these variants are associated with an atypical linguistic profile, but there is little empirical evidence on the lexical mechanisms involved. This study aims to characterise the lexical-semantic abilities of a girl with 4p16.3 microduplication from a clinical-linguistic perspective. Special attention is paid to the interaction between the phonological and conceptual dimensions of the lexicon and the relationship between lexical processing and grammatical structures.

Materials and methods

Standardised language assessment tests (CELF-5, PPVT-III, CEG) were administered and transcripts of spontaneous speech were analysed to describe the lexical-semantic profile. In addition, the temporal and regional expression of the duplicated genes was explored using molecular databases.

Results

The results show a dissociation between performance on structured tests and functional language use. Compensatory strategies were observed in verbal production, a partially adequate expressive vocabulary, and difficulties in the organisation of lexical networks. These findings suggest a mismatch between available lexical knowledge and its integration into communicative contexts.

Conclusions

The study describes the linguistic characteristics observed in a case with duplications at 4p16.3 and highlights the importance of integrating qualitative measures of language, detailed discourse analysis, and molecular data into the clinical evaluation of children with rare diseases. This approach allows for a more complete and functional characterisation of the linguistic profile, facilitating the identification of patterns that could be explored in future studies with a larger number of participants. Overall, the approach adopted highlights how the combination of clinical and molecular information can contribute to a deeper understanding of the phenotypic diversity associated with low-prevalence chromosomal duplications, without implying direct causal relationships.
背景和目的4p16.3位点的微重复是一种罕见的基因改变,可以影响神经发育,特别是语言发育。一些研究表明,这些变体与非典型的语言特征有关,但很少有关于词汇机制的经验证据。本研究旨在从临床语言学的角度描述患有4p16.3微复制的女孩的词汇语义能力。特别关注词汇的语音和概念维度之间的相互作用以及词汇加工和语法结构之间的关系。材料和方法进行标准化语言评估测试(CELF-5、PPVT-III、CEG),并分析自发言语的转录本来描述词汇语义特征。此外,利用分子数据库探索了重复基因的时间和区域表达。结果:结构化测试的表现与功能语言的使用之间存在分离。补偿策略被观察到在言语生产,部分充分的表达词汇和词汇网络的组织困难。这些发现表明,可用的词汇知识与交际语境的整合之间存在不匹配。结论本研究描述了在1例4p16.3重复病例中观察到的语言特征,并强调了将语言定性测量、详细话语分析和分子数据整合到罕见病儿童临床评估中的重要性。这种方法允许对语言概况进行更完整和功能性的描述,促进识别可以在未来与更多参与者进行的研究中探索的模式。总的来说,所采用的方法强调了临床和分子信息的结合如何有助于更深入地了解与低患病率染色体重复相关的表型多样性,而不暗示直接的因果关系。
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引用次数: 0
Dispositivos electrónicos para una comunicación eficaz en niños con trastorno del espectro autista y sus madres: un estudio piloto 自闭症儿童及其母亲有效沟通的电子设备:一项试点研究
Q3 Nursing Pub Date : 2026-01-01 DOI: 10.1016/j.rlfa.2025.100551
Ana Muiño Tato, Helena López-Bueno

Background and objetive

This study analyses the relationship between communication difficulties in children with autism spectrum disorder (ASD) and the subjective well-being of their mothers, exploring the role of augmentative and/or alternative communication systems (AACs). Families who use electronic devices, such as tablets, for communication are compared with those who do not.

Method

A total of 81 mothers of children with ASD in Spain were included, divided into 2 groups: 43 who use electronic devices and 38 who do not. Ad hoc questionnaires were used to assess interference in daily life, communication with the child, and activities compared to other families, using Likert-type scales.

Results

The results showed a significant negative correlation between interference in daily life and effective communication with the child (r = −.85). Furthermore, the use of AACs was associated with a reduction in interference in daily activities (p < .001).

Conclusions

The study confirms that communication difficulties affect the quality of life of mothers of children with ASD and that the use of electronic devices improves communication, reducing interference in daily life. These findings highlight the importance of promoting appropriate access to and use of AACs to improve family well-being. However, further research is needed to assess the long-term effects.
背景与目的本研究分析自闭症谱系障碍(ASD)患儿沟通困难与其母亲主观幸福感之间的关系,探讨增强和/或替代沟通系统(AACs)的作用。使用电子设备(如平板电脑)进行交流的家庭与不使用电子设备的家庭进行比较。方法选取西班牙81名ASD患儿的母亲,将其分为两组:43名使用电子设备的母亲和38名不使用电子设备的母亲。使用likert型量表,使用特别问卷来评估日常生活中的干扰,与孩子的交流以及与其他家庭相比的活动。结果日常生活干扰与儿童有效沟通呈显著负相关(r = - 0.85)。此外,AACs的使用与日常活动干扰的减少有关(p < .001)。结论本研究证实,沟通困难影响ASD患儿母亲的生活质量,电子设备的使用改善了沟通,减少了日常生活中的干扰。这些发现强调了促进适当获得和使用aac以改善家庭福祉的重要性。然而,需要进一步的研究来评估其长期影响。
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引用次数: 0
Bilingüismo y funciones ejecutivas. Influencia de la frecuencia de uso de una segunda lengua en la memoria de trabajo en el envejecimiento 双语和执行功能。第二语言使用频率对老年人工作记忆的影响
Q3 Nursing Pub Date : 2026-01-01 DOI: 10.1016/j.rlfa.2025.100554
Ana Isabel Liranzo, Ignasi Ivern, Olga Bruna

Background and Objective

In a society facing the challenge of an aging population, identifying factors that support cognitive functioning and cognitive reserve in older adults is crucial for promoting successful aging and enhancing quality of life. Bilingualism has been proposed as one such protective factor. This study aimed to examine the impact of second language (L2) usage frequency on executive functions, specifically working memory, in older adults.

Materials and methods

The sample consists of 45 individuals over the age of 65, residing in Catalonia, whose first language is Spanish and whose second language (L2) is Catalan, acquired after the age of 6. A non-probabilistic sampling method was employed. The frequency of L2 use was assessed using the Language History Questionnaire (LHQ3), and attention and working memory were evaluated using the Digit Span subtest (forward and backward) from the WAIS-III scale.

Results

A correlational analysis indicated a moderate association between second language use frequency and performance on the Backward Digit Span task (WAIS III).

Conclusion

The frequency of second language use is associated with enhanced executive functioning, specifically working memory, in the context of aging.
背景与目的在面临人口老龄化挑战的社会中,识别支持老年人认知功能和认知储备的因素对于促进成功老龄化和提高生活质量至关重要。双语能力被认为是一种保护因素。本研究旨在研究第二语言使用频率对老年人执行功能,特别是工作记忆的影响。材料和方法样本包括45名年龄在65岁以上,居住在加泰罗尼亚的个人,他们的第一语言是西班牙语,第二语言(L2)是加泰罗尼亚语,在6岁以后学习。采用非概率抽样方法。使用语言历史问卷(LHQ3)评估第二语言使用频率,使用WAIS-III量表的数字广度子测试(前向和后向)评估注意力和工作记忆。结果相关分析表明,第二语言使用频率与向后数字跨度任务(WAIS III)的表现存在中度相关性。结论在衰老的背景下,第二语言的使用频率与执行功能,特别是工作记忆的增强有关。
{"title":"Bilingüismo y funciones ejecutivas. Influencia de la frecuencia de uso de una segunda lengua en la memoria de trabajo en el envejecimiento","authors":"Ana Isabel Liranzo,&nbsp;Ignasi Ivern,&nbsp;Olga Bruna","doi":"10.1016/j.rlfa.2025.100554","DOIUrl":"10.1016/j.rlfa.2025.100554","url":null,"abstract":"<div><h3>Background and Objective</h3><div>In a society facing the challenge of an aging population, identifying factors that support cognitive functioning and cognitive reserve in older adults is crucial for promoting successful aging and enhancing quality of life. Bilingualism has been proposed as one such protective factor. This study aimed to examine the impact of second language (L2) usage frequency on executive functions, specifically working memory, in older adults.</div></div><div><h3>Materials and methods</h3><div>The sample consists of 45 individuals over the age of 65, residing in Catalonia, whose first language is Spanish and whose second language (L2) is Catalan, acquired after the age of 6. A non-probabilistic sampling method was employed. The frequency of L2 use was assessed using the <em>Language History Questionnaire</em> (LHQ3), and attention and working memory were evaluated using the Digit Span subtest (forward and backward) from the WAIS-III scale.</div></div><div><h3>Results</h3><div>A correlational analysis indicated a moderate association between second language use frequency and performance on the Backward Digit Span task (WAIS III).</div></div><div><h3>Conclusion</h3><div>The frequency of second language use is associated with enhanced executive functioning, specifically working memory, in the context of aging.</div></div>","PeriodicalId":56174,"journal":{"name":"Revista de Logopedia, Foniatria y Audiologia","volume":"46 1","pages":"Article 100554"},"PeriodicalIF":0.0,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145928647","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluación on-line de la competencia narrativa en el síndrome de Noonan 在线评估努南综合症中的叙事能力
Q3 Nursing Pub Date : 2026-01-01 DOI: 10.1016/j.rlfa.2025.100549
Tamara Pérez-Sanjurjo, Verónica Martínez, Eliseo Diez-Itza

Background and objective

Noonan syndrome (NS) is a neurodevelopmental genetic disorder caused by mutations in the RAS-MAPK pathway. It presents with a characteristic facial phenotype and cognitive and behavioral disfunctions, which may include learning difficulties or mild intellectual disability. In the linguistic phenotype, different deviations can be observed, including pragmatic difficulties. The aim of this study was to assess on-line the microstructure and macrostructure of narratives in children with NS, and to analyze the relationships between narrative structure and language and intelligence test scores.

Materials and methods

11 children with NS (6-11 years old) and their typically developing peers participated. Linguistic and non-verbal intelligence tests were adapted on-line, narratives were elicited from a silent tv cartoon, and they were recorded, transcribed, and analyzed with the tools of the CHILDES Project and the Pragmatic Evaluation Protocol for Corpora (PREP-CORP).

Results

The feasibility of on-line assessment for eliciting narratives and administering standardized tests was established. Children with NS produced poorer narratives, less extensive and complex in their microstructure, and more limited at all levels of the macrostructure. Some dissociation between microstructure and macrostructure was observed, language and non-verbal intelligence were below chronological age, and language fundamentals correlated with narrative structure, mainly in the subgroup of older children.

Conclusions

children with NS would display specific linguistic profiles, with atypical features in their narrative production, suggesting asymmetries consistent with neuroconstructivist approaches and raising the need for personalized speech therapy interventions.
背景与目的脑南综合征(NS)是一种由RAS-MAPK通路突变引起的神经发育性遗传疾病。它具有典型的面部表型和认知和行为障碍,其中可能包括学习困难或轻度智力残疾。在语言表型中,可以观察到不同的偏差,包括语用困难。本研究的目的是在线评估患有神经障碍儿童叙事的微观结构和宏观结构,并分析叙事结构与语言和智力测验成绩的关系。材料与方法11例6 ~ 11岁的NS患儿及其发育正常的同龄人参与了研究。语言和非语言智力测试采用在线改编,从无声电视动画片中提取叙事,并使用CHILDES项目和语料库语用评估协议(PREP-CORP)的工具对其进行记录、转录和分析。结果建立了在线评价的可行性,以引出叙述和管理标准化测试。NS患儿的叙事能力较差,微观结构的广泛性和复杂性较低,宏观结构的各个层面都比较有限。微观结构与宏观结构存在一定的分离,语言和非语言智力低于实足年龄,语言基础与叙事结构存在一定的相关性,主要表现在大龄儿童。结论NS患儿会表现出特定的语言特征,在叙事过程中具有非典型特征,这表明不对称与神经建构主义方法一致,需要个性化的语言治疗干预。
{"title":"Evaluación on-line de la competencia narrativa en el síndrome de Noonan","authors":"Tamara Pérez-Sanjurjo,&nbsp;Verónica Martínez,&nbsp;Eliseo Diez-Itza","doi":"10.1016/j.rlfa.2025.100549","DOIUrl":"10.1016/j.rlfa.2025.100549","url":null,"abstract":"<div><h3>Background and objective</h3><div>Noonan syndrome (NS) is a neurodevelopmental genetic disorder caused by mutations in the RAS-MAPK pathway. It presents with a characteristic facial phenotype and cognitive and behavioral disfunctions, which may include learning difficulties or mild intellectual disability. In the linguistic phenotype, different deviations can be observed, including pragmatic difficulties. The aim of this study was to assess <em>on-line</em> the microstructure and macrostructure of narratives in children with NS, and to analyze the relationships between narrative structure and language and intelligence test scores.</div></div><div><h3>Materials and methods</h3><div>11 children with NS (6-11 years old) and their typically developing peers participated. Linguistic and non-verbal intelligence tests were adapted <em>on-line</em>, narratives were elicited from a silent tv cartoon, and they were recorded, transcribed, and analyzed with the tools of the CHILDES Project and the Pragmatic Evaluation Protocol for Corpora (PREP-CORP).</div></div><div><h3>Results</h3><div>The feasibility of <em>on-line</em> assessment for eliciting narratives and administering standardized tests was established. Children with NS produced poorer narratives, less extensive and complex in their microstructure, and more limited at all levels of the macrostructure. Some dissociation between microstructure and macrostructure was observed, language and non-verbal intelligence were below chronological age, and language fundamentals correlated with narrative structure, mainly in the subgroup of older children.</div></div><div><h3>Conclusions</h3><div>children with NS would display specific linguistic profiles, with atypical features in their narrative production, suggesting asymmetries consistent with neuroconstructivist approaches and raising the need for personalized speech therapy interventions.</div></div>","PeriodicalId":56174,"journal":{"name":"Revista de Logopedia, Foniatria y Audiologia","volume":"46 1","pages":"Article 100549"},"PeriodicalIF":0.0,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145908813","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enfermedades poco frecuentes: la importancia de la logopedia 罕见病:语言疗法的重要性
Q3 Nursing Pub Date : 2025-10-01 DOI: 10.1016/j.rlfa.2025.100547
Dolores María Peñalver-García
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引用次数: 0
Derecho a comunicar, derecho a participar: logopedia y comunicación aumentativa 沟通权、参与权:语言疗法和强化沟通
Q3 Nursing Pub Date : 2025-10-01 DOI: 10.1016/j.rlfa.2025.100548
Claudia Tatiana Escorcia-Mora
{"title":"Derecho a comunicar, derecho a participar: logopedia y comunicación aumentativa","authors":"Claudia Tatiana Escorcia-Mora","doi":"10.1016/j.rlfa.2025.100548","DOIUrl":"10.1016/j.rlfa.2025.100548","url":null,"abstract":"","PeriodicalId":56174,"journal":{"name":"Revista de Logopedia, Foniatria y Audiologia","volume":"45 4","pages":"Article 100548"},"PeriodicalIF":0.0,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145415514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Identidad científica que revierte en las prácticas. Balance del XXXIV Congreso Internacional de AELFA-IF, Salamanca 2025 在实践中回归的科学身份。2025年萨拉曼卡欧洲自由贸易联盟-国际金融协会第三十四届国际大会的报告
Q3 Nursing Pub Date : 2025-07-01 DOI: 10.1016/j.rlfa.2025.100544
Lidia Rodríguez García
{"title":"Identidad científica que revierte en las prácticas. Balance del XXXIV Congreso Internacional de AELFA-IF, Salamanca 2025","authors":"Lidia Rodríguez García","doi":"10.1016/j.rlfa.2025.100544","DOIUrl":"10.1016/j.rlfa.2025.100544","url":null,"abstract":"","PeriodicalId":56174,"journal":{"name":"Revista de Logopedia, Foniatria y Audiologia","volume":"45 3","pages":"Article 100544"},"PeriodicalIF":0.0,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144914025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perspectivas clínicas, bioéticas y psicosociales en la toma de decisiones para la gastrostomía endoscópica percutánea en personas con enfermedades neurodegenerativas 神经退行性疾病患者经皮内镜胃造口术决策的临床、生物伦理学和心理社会观点
Q3 Nursing Pub Date : 2025-06-26 DOI: 10.1016/j.rlfa.2025.100542
Sara Tapia-Saavedra , Paulina Matus-Rosas , Valeria López-Inzunza , Javiera Rivera-López , Tamara Carrasco-Fierro

Background and objective

Dysphagia in individuals with neurodegenerative diseases presents clinical and ethical challenges when deciding whether to implement percutaneous endoscopic gastrostomy (PEG). Speech-language pathologists (SLPs) play a crucial role in this process, assessing not only the severity of dysphagia and the underlying pathology but also bioethical and psychosocial factors. Previous studies have indicated that this decision is not based solely on clinical criteria but integrates multiple dimensions. This study aims to explore the clinical, bioethical, and psychosocial perceptions of SLPs regarding decision-making in the indication of PEG in individuals with neurodegenerative diseases.

Patients or materials and methods

A qualitative study was conducted using semi-structured interviews with 10 SLPs experienced in managing dysphagia in neurodegenerative diseases. Content analysis was applied to identify emerging patterns in decision-making, categorizing findings into five key dimensions: diagnostic and prognostic considerations, clinical swallowing assessment, social and healthcare context, decision-making process, and the role of the SLP in the indication of PEG.

Results

Decision-making regarding PEG is not solely dependent on clinical assessment but also considers the individual's autonomy, advance directives, perceived quality of life, and socio-family context. Ethical dilemmas related to disease progression and family involvement were identified. Additionally, SLPs emphasized the need for greater training in bioethics and communication to effectively address these challenges.

Conclusions

This study highlights the importance of an interdisciplinary approach to PEG indication, balancing clinical, ethical, and psychosocial factors. Strengthening training in bioethics and communication, along with the development of policies that ensure equitable access to specialized resources, is recommended.
背景与目的神经退行性疾病患者的吞咽困难在决定是否实施经皮内镜胃造口术(PEG)时提出了临床和伦理挑战。语言病理学家(slp)在这个过程中扮演着至关重要的角色,他们不仅评估吞咽困难的严重程度和潜在的病理,还评估生物伦理和社会心理因素。先前的研究表明,这一决定并不仅仅基于临床标准,而是综合了多个方面。本研究旨在探讨slp对神经退行性疾病患者PEG适应症决策的临床、生物伦理和社会心理感知。患者或材料和方法采用半结构化访谈对10名在神经退行性疾病中处理吞咽困难经验丰富的slp进行了定性研究。内容分析用于确定决策中的新模式,将结果分为五个关键维度:诊断和预后考虑因素、临床吞咽评估、社会和医疗保健背景、决策过程以及SLP在PEG适应症中的作用。结果:PEG的决策不仅依赖于临床评估,还考虑到个人的自主性、预先指示、感知生活质量和社会家庭背景。确定了与疾病进展和家庭参与相关的伦理困境。此外,slp强调需要加强生物伦理学和沟通方面的培训,以有效应对这些挑战。结论:本研究强调了跨学科方法对PEG适应症的重要性,平衡临床、伦理和社会心理因素。建议加强生物伦理和传播方面的培训,同时制定确保公平获得专门资源的政策。
{"title":"Perspectivas clínicas, bioéticas y psicosociales en la toma de decisiones para la gastrostomía endoscópica percutánea en personas con enfermedades neurodegenerativas","authors":"Sara Tapia-Saavedra ,&nbsp;Paulina Matus-Rosas ,&nbsp;Valeria López-Inzunza ,&nbsp;Javiera Rivera-López ,&nbsp;Tamara Carrasco-Fierro","doi":"10.1016/j.rlfa.2025.100542","DOIUrl":"10.1016/j.rlfa.2025.100542","url":null,"abstract":"<div><h3>Background and objective</h3><div>Dysphagia in individuals with neurodegenerative diseases presents clinical and ethical challenges when deciding whether to implement percutaneous endoscopic gastrostomy (PEG). Speech-language pathologists (SLPs) play a crucial role in this process, assessing not only the severity of dysphagia and the underlying pathology but also bioethical and psychosocial factors. Previous studies have indicated that this decision is not based solely on clinical criteria but integrates multiple dimensions. This study aims to explore the clinical, bioethical, and psychosocial perceptions of SLPs regarding decision-making in the indication of PEG in individuals with neurodegenerative diseases.</div></div><div><h3>Patients or materials and methods</h3><div>A qualitative study was conducted using semi-structured interviews with 10<!--> <!-->SLPs experienced in managing dysphagia in neurodegenerative diseases. Content analysis was applied to identify emerging patterns in decision-making, categorizing findings into five key dimensions: diagnostic and prognostic considerations, clinical swallowing assessment, social and healthcare context, decision-making process, and the role of the SLP in the indication of PEG.</div></div><div><h3>Results</h3><div>Decision-making regarding PEG is not solely dependent on clinical assessment but also considers the individual's autonomy, advance directives, perceived quality of life, and socio-family context. Ethical dilemmas related to disease progression and family involvement were identified. Additionally, SLPs emphasized the need for greater training in bioethics and communication to effectively address these challenges.</div></div><div><h3>Conclusions</h3><div>This study highlights the importance of an interdisciplinary approach to PEG indication, balancing clinical, ethical, and psychosocial factors. Strengthening training in bioethics and communication, along with the development of policies that ensure equitable access to specialized resources, is recommended.</div></div>","PeriodicalId":56174,"journal":{"name":"Revista de Logopedia, Foniatria y Audiologia","volume":"45 4","pages":"Article 100542"},"PeriodicalIF":0.0,"publicationDate":"2025-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144489479","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Revista de Logopedia, Foniatria y Audiologia
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