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Making things work, practically: Care relations in parent-led autism advocacy in urban India 让事情切实可行:印度城市中父母主导的自闭症倡导中的关怀关系
IF 2.2 Pub Date : 2025-04-14 DOI: 10.1002/fea2.70005
Shubha Ranganathan, Jayaprakash Mishra, S. V. Chetan, Bindhulakshmi Pattadath

Drawing on ethnography that involved in-depth online interviews with parents of adult autistic individuals in India, this article focuses on the experiences of five interlocutors to examine the nuanced understanding of disability, family, and care in the context of COVID-19 in India and, more broadly, in the realm of disability. Anchored in a feminist philosophical framework of care, the study addresses two pivotal questions. First, it explores how the narratives of the mothers interviewed challenge normative articulations of care. Second, it illustrates that care relations involving autism are characterized by considerable interdependence. Within the realm of autism advocacy in India, which is characterized by its inherent diversity, this article emphasizes that questions of care, (in)dependence, and kinship are shaped more by individuals’ social locations than by Western theorizations of inclusion and care. This article contributes to the ongoing discourse on disability, family, and care, providing rich insights into the lived experiences of mothers of autistic adults in the specific context of the COVID-19 pandemic in India. The findings offer a broader understanding of the complexities inherent in care relations and advocate for more inclusive and culturally sensitive approaches to support families of individuals with autism in urban India.

本文以民族志为基础,对印度成年自闭症患者的父母进行了深入的在线访谈,重点介绍了五位对话者的经历,以考察在印度COVID-19的背景下,以及更广泛地说,在残疾领域,对残疾、家庭和护理的细微理解。该研究立足于女性主义关怀哲学框架,解决了两个关键问题。首先,它探讨了受访母亲的叙述如何挑战护理的规范性表述。其次,它说明了涉及自闭症的护理关系具有相当大的相互依赖的特点。在以其固有的多样性为特征的印度自闭症倡导领域中,本文强调护理、依赖和亲属关系的问题更多地是由个人的社会位置决定的,而不是由西方的包容和护理理论决定的。本文为正在进行的关于残疾、家庭和护理的讨论做出了贡献,为2019冠状病毒病大流行在印度的特定背景下自闭症成年人母亲的生活经验提供了丰富的见解。研究结果对护理关系中固有的复杂性提供了更广泛的理解,并倡导采用更具包容性和文化敏感性的方法来支持印度城市自闭症患者的家庭。
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引用次数: 0
Care, and the less of it: Haunted gestures and the affective economy of pharmaceutical HIV prevention 关怀,和它的少:闹鬼的姿态和药物艾滋病预防的情感经济
IF 2.2 Pub Date : 2025-04-09 DOI: 10.1002/fea2.70001
Max Schnepf

Pre-exposure prophylaxis (PrEP) is an antiretroviral drug that effectively prevents an HIV infection, which German statutory health insurance has covered since 2019. The drug's use in Germany has (re)surfaced ambivalent emotions: hopes for an HIV/AIDS-free future and sexual liberation rub against enduring worries and moralizations of promiscuity. Drawing on ethnographic fieldwork in Berlin's sexual cultures and prevention landscape, this article engages the affective economy that has emerged concerning PrEP and the hopes, worries, and accusations the drug has incited. To illustrate how the conflicting affects surrounding PrEP use haunt this economy, the article builds from the German notion of Sorglosigkeit/carelessness—a term intentionally straddling the ambivalence between being careless and carefree. Sustained by healthcare infrastructures and PrEP users’ practices of self-care, carelessness is not taken to be antithetical to, but operating on the affective terrain of, Sorge (worry, anxiety, concern, care). Ethnographically grounding carelessness in intergenerational hauntings of HIV/AIDS, the article examines gestures as they situate embodied emotions and personal experiences in the course of collective history. Three specific gestures—a sigh, finger-pointing, and palpation—mediate between biographies, bodies, and publics, and trace how carelessness circulates around PrEP.

暴露前预防(PrEP)是一种抗逆转录病毒药物,可有效预防艾滋病毒感染,自2019年以来,德国的法定健康保险已将其涵盖在内。这种药物在德国的使用(再次)引发了矛盾情绪:对没有艾滋病毒/艾滋病的未来和性解放的希望,与长期以来对滥交的担忧和道德观念相抵触。本文借鉴了柏林性文化和预防领域的人种学田野调查,研究了与PrEP相关的情感经济学,以及这种药物所引发的希望、担忧和指责。为了说明围绕PrEP使用的冲突影响如何困扰着这个经济体,本文以德国的“粗心大意”(Sorglosigkeit)概念为基础,这个术语有意跨越了粗心大意和无忧无虑之间的矛盾心理。在医疗保健基础设施和PrEP用户自我护理实践的支持下,粗心大意不被认为是与焦虑(担心、焦虑、关注、护理)的情感领域相对立的,而是在其上运作的。从人种学的角度来看,这篇文章将粗心大意根植于代际间的艾滋病毒/艾滋病的困扰中,研究了手势在集体历史进程中所体现的情感和个人经历。三种具体的姿势——叹息、指指点点和触诊——在传记、身体和公众之间起到了调解作用,并追溯了PrEP的粗心大意是如何传播的。
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引用次数: 0
Trading sex for freedom: The influence of Kamala Kempadoo's early scholarship 以性换取自由:卡玛拉·肯帕杜早期学术研究的影响
IF 2.2 Pub Date : 2025-03-31 DOI: 10.1002/fea2.70004
Lyndsey P. Beutin

This article revisits Kamala Kempadoo's publications on sex work in the Caribbean in the late 1990s and early 2000s. This period marks both the era before the framework of anti-trafficking consumed the field of sex work studies and the era when Black feminist ethnographic research on how race, class, and structural violence affected women's lives globally was making an impact across disciplines. By focusing on three key concepts (work, race and gender, and slavery), I show how Kempadoo recontextualized terms used by anti-prostitution feminists within the history of colonialism and the political economy of 1990s multilateral trade. In so doing, she offered feminist sociologists and anthropologists new possibilities for understanding sexual labor and sexual freedom. The paper then returns to Kempadoo's engagement with the history of enslaved Black women in Caribbean brothels to offer an alternative reading of the relationships between slavery and sex work that now dominate the public relations campaigns of anti-trafficking organizations. Taken together, Kempadoo's multidisciplinary contributions help feminist anthropology see how important global sex worker activism is to understanding race, gender, and work. This paper further demonstrates how combining critical engagement with feminist ethnographies with historical memory studies can shed new light on contemporary social issues.

这篇文章回顾了Kamala Kempadoo在20世纪90年代末和21世纪初关于加勒比海性工作的出版物。这一时期标志着反贩运框架尚未吞噬性工作研究领域的时代,也是黑人女权主义人种学研究种族、阶级和结构性暴力如何影响全球妇女生活的时代,这一研究正在跨学科领域产生影响。通过关注三个关键概念(工作,种族和性别,以及奴隶制),我展示了肯帕杜如何在殖民主义历史和20世纪90年代多边贸易的政治经济学中重新定义反卖淫女权主义者使用的术语。这样,她为女权主义社会学家和人类学家提供了理解性劳动和性自由的新可能性。然后,论文回到肯帕杜对加勒比海妓院中被奴役的黑人妇女的历史的参与,为奴隶制和性工作之间的关系提供了另一种解读,这种关系现在主导着反贩运组织的公共关系运动。总的来说,肯帕杜的多学科贡献帮助女权主义人类学看到了全球性工作者行动主义对理解种族、性别和工作的重要性。本文进一步展示了如何将批判性参与与女权主义民族志与历史记忆研究相结合,可以为当代社会问题提供新的视角。
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引用次数: 0
Transitioning from punitive to healing centered healthcare for pregnant people with substance use disorder in Alabama 从惩罚性过渡到以治疗为中心的医疗保健孕妇与物质使用障碍在阿拉巴马州
IF 2.2 Pub Date : 2025-03-31 DOI: 10.1002/fea2.70002
Meagan Copeland, Holly Horan

In 2022, the Alabama Maternal Mortality Review Committee identified that substance use disorders (SUDs) were a key contributor in almost half of all maternal deaths. Substance use disorders (SUD) are chronic, relapsing conditions, and best practice recommendations include continuous harm reduction skills training for healthcare professionals; however, punitive policies, such as Alabama's Child Endangerment Law (ACEL), diminish the availability, accessibility, and utilization of healthcare for this population. The ACEL also negatively impacts the capacity of perinatal healthcare professionals in Alabama to adequately serve and advocate for pregnant people living with a SUD. As applied medical anthropologists, we challenged the notion of “advocacy” as solely being the responsibility of the healthcare professional or the patient and reimagined it as a collective process that can challenge perceptions of moral responsibility and personhood for pregnant and postpartum people who are substance involved. With a focus on knowledge translation and multi-stakeholder advocacy, we created two-versions of the Perinatal Self-Advocacy Toolkits (PSATs) that are framed using a healing-centered approach. We discuss how the PSATs are an essential component of improving the quality of care for pregnant patients with SUDs and facilitating systems change in Alabama.

2022年,阿拉巴马州孕产妇死亡率审查委员会确定,药物使用障碍(SUDs)是造成近一半孕产妇死亡的主要原因。物质使用障碍(SUD)是慢性、复发性疾病,最佳实践建议包括对医疗保健专业人员进行持续的减少伤害技能培训;然而,惩罚性政策,如阿拉巴马州的《儿童危害法》(ACEL),减少了这一人群获得医疗保健的可用性、可及性和利用率。ACEL还对阿拉巴马州围产期保健专业人员为患有SUD的孕妇提供充分服务和宣传的能力产生负面影响。作为应用医学人类学家,我们挑战了“倡导”的概念,认为它仅仅是医疗保健专业人员或患者的责任,并将其重新想象为一个集体过程,可以挑战对孕妇和产后患者的道德责任和人格的看法。我们以知识转化和多方利益相关者倡导为重点,创建了两个版本的围产期自我倡导工具包(PSATs),该工具包采用以治疗为中心的方法构建。我们讨论如何psa是一个重要组成部分,以提高护理质量的怀孕患者与sud和促进系统变化在阿拉巴马州。
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引用次数: 0
Fieldwork in transition: Rethinking anxieties, solidarities, and ontologies amid compounding forms of distress 转型中的田野调查:在复合形式的痛苦中重新思考焦虑、团结和本体论
IF 2.2 Pub Date : 2025-03-17 DOI: 10.1002/fea2.70000
Megan A. Carney

Drawing on preliminary research in Italy in the months following Russia's invasion of Ukraine and the gradual lifting of pandemic-related public health measures, this essay explores the widespread economic, political, and environmental anxieties as well as calls for solidarity that were circulating at this time and their implications for ethnographers in attempting to “make sense” of sociocultural phenomena in a world that feels “unhinged.” From these swirling anxieties, hegemonic framings of “reality” by state actors contrast significantly with the lived experiences of the working class and reveal the function of salvage realism in reproducing racial capitalism. Following recent work in anthropology on the unhinged and affective possibilities in troubled times, I argue that these dynamics demand deeper anthropological engagement with theories that continue to be marginalized by the discipline, including from Black and Indigenous scholarship. These dynamics also raise important questions regarding the realities and temporalities of fieldwork and the onto-epistemological frames that inform anthropological research processes.

在俄罗斯入侵乌克兰和逐渐解除与大流行相关的公共卫生措施后的几个月里,在意大利进行了初步研究,本文探讨了当时流传的广泛的经济、政治和环境焦虑,以及对团结的呼吁,以及它们对民族志学家在一个感觉“精神错乱”的世界里试图“理解”社会文化现象的影响。从这些令人不安的焦虑中,国家行动者对“现实”的霸权框架与工人阶级的生活经验形成鲜明对比,并揭示了救助性现实主义在再现种族资本主义中的作用。在人类学最近对混乱时期精神错乱和情感可能性的研究之后,我认为这些动态需要更深层次的人类学参与,这些理论继续被学科边缘化,包括黑人和土著学者。这些动态也提出了关于实地考察的现实性和时间性以及告知人类学研究过程的本体-认识论框架的重要问题。
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引用次数: 0
Evaluating care: Anti-Blackness and sexual assault sentencing in Milwaukee, WI 评估护理:密尔沃基的反黑人和性侵犯判决
IF 2.2 Pub Date : 2024-12-02 DOI: 10.1002/fea2.12154
Sameena Mulla

This article considers how care emerges as an integrated phenomenon that enfolds defendants, victim-witnesses, and their kin in complex ways. Care capacitates forms of racial sorting and resource allocations that manifest within sentencing hearings of persons found guilty of committing sexual offenses, a mode of dysselection as described by Sylvia Wynter. During sentencing hearings, the state asserts its authority to evaluate the inadequacies of the infrastructures of care to which the person being sentenced has access. While Black men are ostensibly the focus of these hearings, their participation in sentencing hearings becomes a portal through which the court scrutinizes Black women and girls who are often proclaimed to be inadequate caretakers. Simultaneously, the state claims that it can provide the care that will result in the rehabilitation of the person being sentenced, while protecting the community from the potential harms of the criminalized subject. The stark contrast between the state's characterizations of Black kinship and care, and the complex, subtle, and creative tactics narrated by Black interlocutors demonstrates the ways in which the state seeks to surveil Black mores of kinship, assign particular categories of worthiness or unworthiness to modes of care, and fix an anti-Black racial hierarchy in place.

这篇文章考虑了护理是如何作为一种综合现象出现的,它以复杂的方式包括被告、受害者-证人及其亲属。护理使种族分类和资源分配的形式成为可能,这在对被判犯有性侵犯的人的量刑听证会上表现出来,西尔维娅·温特(Sylvia Wynter)描述了一种选择失调的模式。在量刑听证会上,国家声称有权评估被判刑人所能获得的护理基础设施的不足之处。虽然黑人男性表面上是这些听证会的焦点,但他们对量刑听证会的参与成为法院审查黑人妇女和女孩的门户,而这些妇女和女孩往往被认为是不称职的照顾者。与此同时,州政府声称,它可以提供照顾,使被判刑的人康复,同时保护社区免受犯罪主体的潜在危害。国家对黑人亲属关系和关怀的描述与黑人对话者所叙述的复杂、微妙和创造性的策略之间的鲜明对比表明,国家试图监控黑人亲属关系的习俗,为关怀模式分配特定的价值或不价值类别,并将反黑人的种族等级制度固定在适当的位置。
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引用次数: 0
Culturally and socially shifting 文化和社会转变
IF 2.2 Pub Date : 2024-11-21 DOI: 10.1002/fea2.12155
April Petillo, Allison Bloom, M. Gabriela Torres, Sreeparna Chattopadhyay
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引用次数: 0
Transmedicalism's seduction: Normative gender, affectual productions, and white trans legitimacy 跨医学主义的诱惑:规范性性别、情感产品和白人跨性别合法性
IF 2.2 Pub Date : 2024-11-19 DOI: 10.1002/fea2.12157
S. J. Dillon

This article uses feminist autoethnographic techniques to reflect on a set of interactions between a trans theorist and interlocuter I interviewed for my research, who I call Beth, and myself. In this work, I analyze how medical discourses of transgender transition, particularly that of transmedicalism, functions as an outgrowth of white supremacy. In this ethnographic vignette, binary [white] trans transition promises a coherent gender identity via recourse to anti-Blackness, rather than to cisheteronormativity. I argue that the binary assumptions built within transmedicalist approaches to trans life introduce gender not as an identity or even social phenomenon, but rather as a kind of successful or unsuccessful discursive and visual claim-making. These claims are reliant on whiteness and the ways in which white bodies can become invisibly normatively gendered because Black people are gendered as nonnormative. Contesting the boundedness of gender present within popular American conceptions, this series of interactions illustrates a fluid field of conceptual gender which relies on affective connections that mobilize through and across bodies in order to produce certain kinds of normativity.

这篇文章使用女权主义的自我民族志技术来反思我为我的研究采访的一位跨性别理论家和对话者(我叫她贝丝)以及我自己之间的一系列互动。在这部作品中,我分析了跨性别过渡的医学话语,特别是跨医学主义的医学话语,如何作为白人至上主义的产物发挥作用。在这个民族志小插图中,二元[白人]跨性别过渡承诺通过诉诸反黑人而不是顺异性恋规范来实现连贯的性别认同。我认为,在跨性别医学主义的跨性别生活方法中建立的二元假设,并不是把性别作为一种身份,甚至是一种社会现象,而是作为一种成功或不成功的话语和视觉主张。这些主张依赖于白人,以及白人身体在不知不觉中成为规范性别的方式,因为黑人的性别是非规范的。这一系列的互动展示了一个概念性性别的流动领域,它依赖于通过和跨身体调动的情感联系,以产生某些类型的规范性。
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引用次数: 0
“I never had a problem with anyone”: The benefits of a life course interview and ethnographic narrative for domestic violence survivors “我从来没有和任何人有过问题”:家庭暴力幸存者的生命历程访谈和民族志叙述的好处
IF 2.2 Pub Date : 2024-11-19 DOI: 10.1002/fea2.12158
Allison Bloom

Feminist anthropologists have long emphasized the mutual transformation that occurs with ethnographic fieldwork; in particular, life course interviews can be one such powerful tool. Based on an ethnographic case study with a Uruguayan domestic violence survivor, I draw upon mental health research, feminist traditions, and anthropological scholarship to argue that a life history interview can offer therapeutic benefits when utilized by either practitioners or researchers working with survivors of gender-based violence. Ultimately, allowing space for survivors to share their narratives on their own terms opens up possibilities for knowledge production towards survivor-driven support.

长期以来,女性主义人类学家一直强调与民族志田野调查发生的相互转化;特别是,人生历程面试就是这样一个强大的工具。基于对乌拉圭家庭暴力幸存者的人种学案例研究,我借鉴了心理健康研究、女权主义传统和人类学学术,认为当从业者或研究人员与基于性别的暴力幸存者一起工作时,生活史访谈可以提供治疗益处。最终,允许幸存者以自己的方式分享他们的故事,为幸存者驱动的支持提供了知识生产的可能性。
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引用次数: 0
(Im)mobile intimacies: Commodities and marriage at the crossroads of Asia 移动亲密:商品和婚姻在亚洲的十字路口
IF 2.2 Pub Date : 2024-11-11 DOI: 10.1002/fea2.12156
Grace H. Zhou

This article follows traders and entrepreneurs that live and work between Kyrgyzstan and China's northwestern region of Xinjiang. Looking specifically at Islamic marriage and business partnerships forged between persecuted Uyghurs and their Uzbek partners, it argues that commodity-mediated forms of transnational intimacy create spaces of safety and possibility in the face of political oppression, carceral violence, and gendered limitations. These transnational mobilities are forged in spite of structural immobilities. Taking seriously the imbrications of objects and people, it advances a view of intimacy as a multi-scalar, trans-subjective, and multiply entangled field of relationality.

本文追踪了在吉尔吉斯斯坦和中国西北部新疆地区生活和工作的商人和企业家。特别着眼于受迫害的维吾尔人和他们的乌兹别克伙伴之间建立的伊斯兰婚姻和商业伙伴关系,它认为,面对政治压迫、暴力和性别限制,以商品为媒介的跨国亲密关系创造了安全和可能性的空间。这些跨国流动是在结构性不流动的情况下形成的。它重视物与人的交织,将亲密视为一个多尺度、跨主体、多重纠缠的关系场域。
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引用次数: 0
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Feminist anthropology
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