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"A Hippo Out of Water": A Qualitative Inquiry of How Cancer Survivors' Experienced In-Person and Remote-Delivered Mind-Body Therapies. “Hippo Out Water”:癌症幸存者如何体验人内和远程身心治疗的定性调查。
Pub Date : 2023-10-28 eCollection Date: 2023-01-01 DOI: 10.1177/27536130231207807
Andrew Ian Gordon McLennan, Mohamad Baydoun, Devesh Oberoi, Linda Carlson

Background: Mind-body therapies (MBTs) are an effective treatment option for people living with and surviving from cancer to help manage unwanted physical and psychological symptoms and side-effects related to treatment and the illness itself. Many of these structured MBTs, such as Mindfulness Based Cancer Recovery (MBCR) and tai chi/qigong (TCQ) programs are common; however, COVID-19 caused most research intervention trials and clinical programs to halt completely, or rapidly adapt an online modality. The Mindfulness and Tai Chi for Cancer Health (MATCH) study, a large-scale study that compared MBCR to a structured TCQ program for treating psychological and physical health outcomes for cancer survivors, adapted to an online, Zoom delivered, program at the outset of COVID-19.

Objectives: Study objectives were to explore the experiences of MATCH study participants who took the MBCR or TCQ program completely in-person, those who took the program completely online (over zoom), and participants who had to shift from in-person to online delivery midway through their series of TCQ classes.

Methods: Semi-structured interviews were conducted with 13 participants following participation in either the MBCR or TCQ program of the MATCH study.

Results: We derived four themes from the data: 1) attending to personal needs, 2) functional, interpersonal, and COVID19-related challenges, 3) unique engagement styles based on mode of delivery, and 4) ease of transitioning to remote delivery. We found that thematic outcomes were variable and largely based on individual preference, such as valuing more autonomy online, or appreciating the interpersonal connection of being in-person. Our results further indicated that the process of shifting from in-person to online within a short time-period was a relatively seamless transition that had minimal impact on participant experience.

Conclusions: Insights from this study highlight the benefits of digital mind-body therapies for cancer survivors that extend beyond the acute effects of COVID19.

背景:心理疗法(MBT)是癌症患者和幸存者的有效治疗选择,有助于管理与治疗和疾病本身相关的不必要的身体和心理症状和副作用。许多这种结构化的MBT,如基于正念的癌症康复(MBCR)和太极/气功(TCQ)项目是常见的;然而,新冠肺炎导致大多数研究干预试验和临床项目完全停止,或迅速适应在线模式。正念和太极治疗癌症健康(MATCH)研究是一项大型研究,将MBCR与用于治疗癌症幸存者心理和身体健康结果的结构化TCQ计划进行了比较,目的:研究目的是探索MATCH研究参与者的经历,他们完全亲自参加MBCR或TCQ课程,完全在线(放大)参加课程,以及在TCQ系列课程中途不得不从亲自授课转为在线授课的参与者。方法:在参加MATCH研究的MBCR或TCQ项目后,对13名参与者进行半结构化访谈。结果:我们从数据中得出了四个主题:1)关注个人需求,2)功能、人际和新冠肺炎相关挑战,3)基于交付模式的独特参与风格,以及4)易于过渡到远程交付。我们发现,主题结果是可变的,很大程度上是基于个人偏好,比如重视更多的在线自主性,或者欣赏面对面的人际关系。我们的研究结果进一步表明,在短时间内从面对面转变为在线的过程是一个相对无缝的过渡,对参与者体验的影响最小。结论:这项研究的见解突出了数字身心疗法对癌症幸存者的益处,这些益处超出了COVID的急性影响19。
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引用次数: 0
Remotely Delivered Psychologically Informed Mindful Movement Physical Therapy for Pain Care: A Framework for Operationalization. 远程提供心理知情正念运动物理治疗疼痛护理:操作框架。
Pub Date : 2023-10-25 eCollection Date: 2023-01-01 DOI: 10.1177/27536130231209751
Marlysa B Sullivan, Kelsea Hill, Lindsay A Ballengee, Daniel Knoblach, Christopher Fowler, Jolie Haun, Michael Saenger

Background: While there is recognition by the greater medical community and physical therapists to address the biopsychosocial needs of people with chronic, persistent pain, there are challenges in implementation and delivery including wide variability in interventions, lack of clear rationale, and absence of clinical models that are feasible and acceptable on a large scale. Important components for psychologically informed physical therapy (PiPT) for pain care include behavioral approaches (e.g., Acceptance and Commitment Therapy), mindfulness, pain neuroscience education, motivational interviewing (MI), and interoceptive skills-building. The Empower Veterans Program (EVP) Mindful Movement framework blends these components and emphasizes a mindfulness and self-compassion approach with MI and body-based experiential learning. This program was offered in-person at the Atlanta and Maryland VA Health Care Centers with published positive Patient Reported Outcomes (PRO) pre-COVID 19 crisis and shifted to entirely remote delivery in March 2020.

Objective: This paper offers an evidence-based and theory driven framework to operationalize a remotely delivered group-based psychologically informed mindful movement physical therapy intervention as part of an interdisciplinary pain care program.

Methods: Since 2021 PRO and demographics are collected using a survey administered through Qualtrics over a 12-month period at baseline, immediately post TelePain EVP, at 6 months, and at 12 months, with findings forthcoming.

Discussion/results: Tele-pain EVP offers 6-9 groups a week with 7-9 veterans from Atlanta based team and 3-4 groups a week with 5-9 veterans from Maryland based team. Adaptations for remote delivery optimized mindfulness and active learning strategies including interoceptive skills-building and use of MI to support self-efficacy to trust, restore a sense of safety in the body, and explore adaptations for safe movement.

Conclusion: TelePain-EVP Mindful Movement provides a framework for other programs to translate for their populations and systems to further develop best practices in PiPT for pain care and integration into interdisciplinary care.

背景:虽然更广泛的医学界和物理治疗师认识到,要解决慢性持续疼痛患者的生物心理社会需求,但在实施和提供方面存在挑战,包括干预措施的差异很大,缺乏明确的理由,以及缺乏大规模可行和可接受的临床模型。疼痛护理的心理知情物理治疗(PiPT)的重要组成部分包括行为方法(如接受和承诺治疗)、正念、疼痛神经科学教育、动机访谈(MI)和内感知技能建设。赋权退伍军人计划(EVP)正念运动框架融合了这些组成部分,并强调正念和自我同情方法与MI和基于身体的体验式学习。该项目由弗吉尼亚州亚特兰大和马里兰州医疗保健中心亲自提供,在2019冠状病毒病危机前公布了阳性患者报告结果(PRO),并于2020年3月转向完全远程交付。目的:本文提供了一个循证和理论驱动的框架,以实施基于远程交付的群体心理知情正念运动物理作为跨学科疼痛护理计划的一部分的治疗干预。方法:自2021年以来,使用Qualtrics在基线、TelePain EVP后立即、6个月和12个月进行的为期12个月的调查收集PRO和人口统计数据,结果即将公布。讨论/结果:Tele-pain EVP每周提供6-9组,其中7-9名来自亚特兰大团队的退伍军人,每周提供3-4组,其中5-9名来自马里兰州团队的退伍军人。远程交付的适应优化了正念和主动学习策略,包括内感知技能的建立和MI的使用,以支持自我效能感,恢复身体安全感,并探索安全运动的适应。结论:TelePain EVP正念运动为其他项目提供了一个框架,可以为其人群和系统提供翻译,以进一步发展PiPT疼痛护理和融入跨学科护理的最佳实践。
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引用次数: 0
A Tai Chi Class Collaboratively Developed for Persons With Interstitial and Other Lung Diseases: An Ethnographic Investigation. 为间质性肺病和其他肺病患者合作开发的太极课程:民族志调查。
Pub Date : 2023-10-25 eCollection Date: 2023-01-01 DOI: 10.1177/27536130231206122
Karen Kilgore, Jesse Leinfelder, Joan Campbell, Peter M Wayne, Robert W Hallowell, Aliaa Barakat

Background: Participating in physical activity (PA) can be challenging for persons with chronic and significant lung disease due to the multifaceted disruptive effects of their symptoms and variable disease course.

Objectives: Our study investigates a novel approach to increasing PA by collaboratively and adaptively developing a Tai Chi (TC) class for and by persons with lung diseases and explores participants' perceptions of their experiences in the co-developed TC class.

Methods: We initiated a collaboration between the Interstitial Lung Disease (ILD) Collaborative and the Tai Chi Foundation to develop a TC class appropriate for persons with ILD and other lung diseases. The TC class was offered online, during the early phases of the COVID-19 pandemic, when pulmonary patients were isolated socially. TC class sessions were held twice weekly for 12 weeks with 12 participants. Ethnographic field methods were used to collect observations and conduct interviews with teachers and students. The Social Ecological Model (SEM) for understanding factors in intrapersonal, interpersonal, social, and organizational contexts was used to explore ways in which wellness practices, particularly those involving changes in health behaviors, can be collaboratively conceived, and developed by persons with the lived experience of illness and community organizations that are sensitive to their personal and social contexts. The constant comparative method was used for data analysis.

Results: Our findings include the importance of (1) creating a supportive class environment, characterized by interactive and reciprocal relationships among students and teachers; (2) alternating segments of movement and meditation to avoid fatigue and breathlessness; (3) cultivating sensory awareness and body trust, resting when needed and rejoining the movements when ready; (4) increasing the capacity to meditate through deepening presence and renewing the vital connection with inner and outer sources of energy; (5) reducing, through meditative movement, the persistent anxiety, isolation, and sense of loss that accompany chronic disease diagnosis and progression.

Conclusion: We documented a collaboration between the TC and pulmonary communities to design a TC class for persons with chronic and significant lung disease. We employed the SEM to provide insights into how teachers, informed by their students, can use effective pedagogical skills to create core curricula with modifications appropriate for a specific population.

背景:对于患有慢性和严重肺病的人来说,参加体育活动(PA)可能是一项挑战,因为他们的症状和不同的病程会产生多方面的破坏性影响。目的:我们的研究调查了一种通过合作和适应性地为肺病患者开发太极课程来增加PA的新方法,并探讨了参与者对他们在共同开发的太极课程中的体验的看法。方法:我们发起了间质性肺病(ILD)合作组织和太极基金会之间的合作,以开发适合ILD和其他肺病患者的TC类别。TC课程是在新冠肺炎大流行的早期阶段在线提供的,当时肺部患者被社会隔离。TC课程每周一次,为期12周,共有12名参与者。采用民族志实地调查方法收集观察结果,并对教师和学生进行访谈。用于理解个人、人际、社会和组织环境中因素的社会生态模型(SEM)被用来探索如何协同构思健康实践,特别是那些涉及健康行为变化的健康实践,并由有患病经历的人和对其个人和社会背景敏感的社区组织开发。数据分析采用常数比较法。结果:我们的研究结果包括:(1)创造一个支持性的课堂环境,其特点是学生和教师之间的互动和互惠关系;(2) 交替进行运动和冥想,以避免疲劳和呼吸困难;(3) 培养感官意识和身体信任,在需要时休息,在准备好时重新加入动作;(4) 通过加深存在和更新与内部和外部能量来源的重要联系来提高冥想的能力;(5) 通过冥想运动,减少伴随慢性病诊断和进展而来的持续焦虑、孤立和失落感。结论:我们记录了TC和肺部社区之间的合作,为患有慢性和严重肺部疾病的人设计了TC类别。我们使用SEM来深入了解教师如何在学生的指导下,使用有效的教学技能来创建适合特定人群的核心课程。
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引用次数: 0
Pranic Healing as a Complementary Therapy in Diabetic Foot Ulcer Management: A Randomised, Controlled, Double-Blind Trial. Pranic Healing作为糖尿病足溃疡治疗的补充疗法:一项随机、对照、双盲试验。
Pub Date : 2023-10-23 eCollection Date: 2023-01-01 DOI: 10.1177/27536130231183429
Anuradha Nittur, Belehalli Pavan, Raghavan Ganapathy, Vinod Kumar Dorai, Shivam Singhal

Background: Diabetic Foot Ulcers (DFUs), a serious complication of diabetes, have limited solutions in conventional therapies. The condition needs holistic management of blood glycemic levels; foot wounds; and possible regeneration of nerves in the soles of patients.

Objective: To evaluate the efficacy of Pranic Healing as a complimentary therapy in managing Diabetic Foot Ulcers (DFUs).

Methods: Thirty diabetic subjects already on standard therapy for Diabetes, co morbidities and wound care for Diabetic Foot Ulcers were assigned on a 1:1 basis to the trial and control groups. While both groups continued to receive standard therapy, the trial group additionally received Pranic Healing therapy. The Clinician, nursing staff, assessors and patients were blinded. Pranic Healers carried out healing on the trial group remotely, every day for 50 to 60 minute for stress, diabetes, local wound healing, blood cleansing and regeneration of nerves in the soles. The efficacy variables were the mean change from baseline in wound parameters and grade of DFU, overall well-being and HbAlc levels.

Results: At the end of the trial, about 83.33% participants in the trial group demonstrated lowering of size and severity of the ulceration and improved to a lower grade of DFU compared to 44.4% in control group. The trial group reported a significant reduction in wound area and HbA1c levels. The trial group showed better readings for improved sensory perception in the soles through changes in the large fibre dysfunction and damaged nerves as compared to the control group. Approximately 76.9% of participants in the trial group reported lower stress levels compared to 22.22% in the control group.

Conclusions: Pranic Healing intervention can be a safe and effective adjunct in managing Diabetic Foot Ulcers.

背景:糖尿病足溃疡(DFU)是糖尿病的一种严重并发症,在传统治疗中解决方案有限。这种情况需要对血糖水平进行全面管理;脚伤;以及患者足底神经的可能再生。目的:评价Pranic Healing作为一种辅助治疗糖尿病足溃疡(DFU)的疗效。方法:将30名已接受糖尿病标准治疗、合并症和糖尿病足溃疡伤口护理的糖尿病受试者按1:1的比例分为试验组和对照组。虽然两组都继续接受标准治疗,但试验组还接受了Pranic Healing治疗。临床医生、护理人员、评估员和患者均为盲法。Pranic Healers对试验组进行远程治疗,每天50至60分钟,治疗压力、糖尿病、局部伤口愈合、血液清洁和足底神经再生。疗效变量是伤口参数和DFU等级、整体健康状况和HbAlc水平与基线的平均变化。结果:在试验结束时,与对照组的44.4%相比,试验组中约83.33%的参与者表现出溃疡的大小和严重程度降低,DFU级别降低。试验组报告伤口面积和HbA1c水平显著降低。与对照组相比,试验组通过大纤维功能障碍和神经损伤的变化,显示出更好的读数,改善了足底的感觉。试验组约76.9%的参与者报告压力水平较低,而对照组为22.22%。结论:临床治疗干预是治疗糖尿病足溃疡安全有效的辅助手段。
{"title":"Pranic Healing as a Complementary Therapy in Diabetic Foot Ulcer Management: A Randomised, Controlled, Double-Blind Trial.","authors":"Anuradha Nittur, Belehalli Pavan, Raghavan Ganapathy, Vinod Kumar Dorai, Shivam Singhal","doi":"10.1177/27536130231183429","DOIUrl":"10.1177/27536130231183429","url":null,"abstract":"<p><strong>Background: </strong>Diabetic Foot Ulcers (DFUs), a serious complication of diabetes, have limited solutions in conventional therapies. The condition needs holistic management of blood glycemic levels; foot wounds; and possible regeneration of nerves in the soles of patients.</p><p><strong>Objective: </strong>To evaluate the efficacy of Pranic Healing as a complimentary therapy in managing Diabetic Foot Ulcers (DFUs).</p><p><strong>Methods: </strong>Thirty diabetic subjects already on standard therapy for Diabetes, co morbidities and wound care for Diabetic Foot Ulcers were assigned on a 1:1 basis to the trial and control groups. While both groups continued to receive standard therapy, the trial group additionally received Pranic Healing therapy. The Clinician, nursing staff, assessors and patients were blinded. Pranic Healers carried out healing on the trial group remotely, every day for 50 to 60 minute for stress, diabetes, local wound healing, blood cleansing and regeneration of nerves in the soles. The efficacy variables were the mean change from baseline in wound parameters and grade of DFU, overall well-being and HbAlc levels.</p><p><strong>Results: </strong>At the end of the trial, about 83.33% participants in the trial group demonstrated lowering of size and severity of the ulceration and improved to a lower grade of DFU compared to 44.4% in control group. The trial group reported a significant reduction in wound area and HbA1c levels. The trial group showed better readings for improved sensory perception in the soles through changes in the large fibre dysfunction and damaged nerves as compared to the control group. Approximately 76.9% of participants in the trial group reported lower stress levels compared to 22.22% in the control group.</p><p><strong>Conclusions: </strong>Pranic Healing intervention can be a safe and effective adjunct in managing Diabetic Foot Ulcers.</p>","PeriodicalId":73159,"journal":{"name":"Global advances in integrative medicine and health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/7b/61/10.1177_27536130231183429.PMC10594964.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50164002","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Employee Group Coaching Program for University and Hospital Employees During COVID-19: A Feasibility Study. 新冠肺炎期间大学和医院员工的员工团体辅导计划:可行性研究。
Pub Date : 2023-10-18 eCollection Date: 2023-01-01 DOI: 10.1177/27536130231207856
Karen Westervelt, Gail L Rose, Scott Avery, Alisha Celley, Josh Cho, Rory Donoghue, Brennan Goodrich

Background: Workplace wellbeing programs can be beneficial but range widely in approach. A group coaching model offers numerous benefits.

Objective: To evaluate feasibility of group coaching for employees during COVID-19.

Methods: Employees (n = 29) at a university and university hospital underwent a 12-week group coaching program. Measurements of feasibility -- including enrollment, attendance at sessions goal attainment and satisfaction -- and exploratory outcomes including perceived physical and mental health and stress were administered at beginning, middle, and end of the program, plus 2 follow-ups.

Results: Twenty-six of the 29 program enrollees (96% women; 65% university employees) opted to complete surveys at 1 or more time points, and 9 individuals completed surveys at all 5 time points. Median attendance was 9 sessions. Participants opted to focus on movement, nutrition and mind/body goals and all participants reported making progress toward their goal during the program. Exploratory wellness outcomes showed meaningful improvements in perceived physical and mental health and reduced stress during the program, with return to near baseline 12 weeks after program completion. Perceptions of workplace wellness culture varied by employer.

Conclusion: Despite pandemic-related disruptions to life, work, and health, online group coaching is feasible and acceptable to participants. The program should be replicated to evaluate whether the improvements in exploratory wellness outcomes observed during the program are statistically significant. The apparent return to baseline levels by 24 weeks suggests that post-program maintenance support may be helpful.

背景:工作场所健康计划可能是有益的,但方法广泛。团体辅导模式有很多好处。目的:评估在COVID-19期间为员工进行集体辅导的可行性。方法:一所大学和大学医院的员工(n=29)接受了为期12周的集体辅导计划。在项目开始、中期和结束时,对可行性进行测量,包括入学率、出席会议的目标实现和满意度,以及探索性结果,包括感知的身心健康和压力,结果:29名项目参与者中有26人(96%为女性;65%为大学员工)选择在1个或多个时间点完成调查,9人在所有5个时间点都完成了调查。出席人数中位数为9次。参与者选择专注于运动、营养和身心目标,所有参与者都报告在项目期间朝着自己的目标取得了进展。探索性健康结果显示,在项目期间,感知身心健康有了显著改善,压力减轻,项目完成12周后恢复到接近基线水平。雇主对工作场所健康文化的看法各不相同。结论:尽管疫情对生活、工作和健康造成了干扰,但在线小组辅导是可行的,参与者可以接受。应重复该计划,以评估在该计划期间观察到的探索性健康结果的改善是否具有统计学意义。24周后明显恢复到基线水平表明,项目后维护支持可能会有所帮助。
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引用次数: 0
Group Acupuncture Therapy With Yoga Therapy for Chronic Neck, Low Back, and Osteoarthritis Pain in Safety Net Settings for an Underserved Population: A Feasibility Pilot Study. 在安全网环境下,针对服务不足人群的慢性颈部、下背部和骨关节炎疼痛的集体针灸和瑜伽治疗:可行性试点研究。
Pub Date : 2023-09-28 eCollection Date: 2023-01-01 DOI: 10.1177/27536130231202515
Raymond Teets, Arya Nielsen, Steffany Moonaz, Belinda J Anderson, Donna M Mah, Eve Walter, Mirta Milanes, Hyowoun Jyung, Luz E Soto Cossio, Paul Meissner, M Diane McKee, Benjamin Kligler

Background: Acupuncture and yoga have both been shown to be effective in chronic pain. Underrepresented populations have poorer pain outcomes with less access to effective pain care.

Objective: To assess the feasibility of bundling group acupuncture with yoga therapy for chronic neck, back or osteoarthritis pain in safety net settings.

Methods: This was a feasibility pilot in Bronx and Harlem primary care community health centers. Participants with chronic neck, back or osteoarthritis pain received acupuncture and yoga therapy over a 10-week period. Participants received 10 weekly acupuncture treatments in group setting; with Yoga therapy sessions beginning immediately following the 3rd session. Primary outcome was pain interference and pain intensity on the Brief Pain Inventory (BPI); Outcomes were measured at baseline, 10-week close of intervention, and 24-week follow-up.

Results: 93 patients were determined to be eligible and completed the baseline interview. The majority of participants were non-White and Medicaid recipients. 78 (84%) completed the intervention and 10-week survey, and 58 (62%) completed the 24-week post intervention survey. Participants received an average number of 6.5 acupuncture sessions (out of a possible 10), and 4 yoga sessions (out of a possible 8) over the 10-week intervention. Patients showed statistically significant improvements in pain at the close of the intervention and at a somewhat lesser rate, at 24-weeks post intervention. Challenges included telephone outreach and site coordination integrating acupuncture with yoga therapy. The trial also had to be stopped early due to the COVID-19 pandemic.

Conclusions: Bundling acupuncture therapy and yoga therapy is feasible for an underrepresented population with chronic pain in urban community health centers with preliminary indications of acceptability and benefit to participants.

背景:针灸和瑜伽都被证明对慢性疼痛有效。代表性不足的人群的疼痛结果较差,获得有效疼痛护理的机会较少。目的:评估在安全网环境下,将组针与瑜伽捆绑治疗慢性颈、背或骨关节炎疼痛的可行性。方法:这是在布朗克斯和哈莱姆初级保健社区卫生中心进行的可行性试验。患有慢性颈部、背部或骨关节炎疼痛的参与者接受了为期10周的针灸和瑜伽治疗。参与者在小组环境中每周接受10次针灸治疗;瑜伽治疗课程在第三次课程后立即开始。主要结果是短暂疼痛量表(BPI)中的疼痛干扰和疼痛强度;在基线、干预结束10周和随访24周时测量结果。结果:93名患者被确定为符合条件,并完成了基线访谈。大多数参与者是非白人和医疗补助接受者。78人(84%)完成了干预和10周调查,58人(62%)完成了24周干预后调查。在为期10周的干预中,参与者平均接受了6.5次针灸(可能有10次)和4次瑜伽(可能有8次)。在干预结束时,患者的疼痛有统计学意义的改善,在干预后24周,疼痛的改善率略低。挑战包括电话联系和现场协调,将针灸与瑜伽疗法相结合。由于新冠肺炎大流行,试验也不得不提前停止。结论:将针灸疗法和瑜伽疗法捆绑在一起治疗城市社区卫生中心中代表性不足的慢性疼痛人群是可行的,初步表明参与者的可接受性和益处。
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引用次数: 0
Adaptation of an In-Person Mind-Body Movement Program for People with Cognitive Impairment or Dementia and Care Partners for Online Delivery: Feasibility, Satisfaction and Participant-Reported Outcomes. 针对认知障碍或痴呆症患者和护理伙伴的面对面身心运动计划的在线交付适应性:可行性、满意度和参与者报告的结果。
Pub Date : 2023-09-21 eCollection Date: 2023-01-01 DOI: 10.1177/27536130231202989
Francesca M Nicosia, Jennifer A Lee, Margaret A Chesney, Cynthia Benjamin, Amanda N Lee, Wolf Mehling, Rebecca L Sudore, Deborah E Barnes

Background: Preventing Loss of Independence through Exercise (PLIÉ) is an in-person group mind-body movement program for people across the spectrum of cognitive decline and care partners (CPs).

Objective: This study developed and refined an online version called Moving Together and tested feasibility and satisfaction with an online delivery.

Methods: In Phase 1, we used qualitative methods to determine which elements of the in-person program were essential to retain for the online version and adaptations that would be needed to support the user experience. In Phase 2, we created a prototype of the online program and iteratively refined it based on user feedback. In Phase 3, we assessed feasibility of online delivery based on class attendance and program completion; we assessed satisfaction and participant-reported outcomes using a post-program evaluation survey with quantitative and qualitative components.

Results: Phase 1 findings from 27 participants (14 PLWD, 13 CPs) revealed three key considerations related to online delivery of PLIÉ: technology use, social connection as a primary motivator, and physical safety concerns. Phase 2 iterative testing among 25 participants (14 PLWD, 11 CPs) resulted in key refinements to program delivery and instructional elements; Phase 3 pilot testing included 39 participants (12 PLWD, 15 CPs, 12 MCI) who attended 75 ± 29% of 24 classes; 77% completed the 12-week program, of whom 96% rated it as excellent or good. Participant-reported outcomes included improvements in social connection, emotional well-being, physical function, cognitive function and present-centered body awareness. PLWD or MCI also reported improvements in self-concept, and CPs reported improvements in caregiving self-efficacy. The primary challenges were related to participant navigation of technology.

Conclusion: The Moving Together online program is feasible for PLWD or MCI and CPs with participants reporting high satisfaction and positive outcomes across multiple domains. Providing individual technology support is critical for the success of livestreamed, online interventions for dementia.

背景:通过锻炼预防独立性丧失(PLIÉ)是一项针对认知能力下降人群和护理伙伴(CP)的面对面团体身心运动计划。目的:本研究开发并完善了一个名为“一起行动”的在线版本,并测试了在线交付的可行性和满意度。方法:在第一阶段,我们使用定性方法来确定面对面程序的哪些元素对于保留在线版本至关重要,以及支持用户体验所需的调整。在第2阶段,我们创建了一个在线程序的原型,并根据用户反馈对其进行迭代改进。在第三阶段,我们根据课堂出勤率和课程完成情况评估了在线交付的可行性;我们使用项目后评估调查评估了满意度和参与者报告的结果,该调查包含定量和定性成分。结果:来自27名参与者(14名PLWD,13名CP)的第一阶段研究结果揭示了与PLIÉ在线交付相关的三个关键考虑因素:技术使用、作为主要激励因素的社会联系和身体安全问题。在25名参与者(14名PLWD、11名CP)中进行的第二阶段迭代测试对项目交付和教学要素进行了关键改进;第3阶段试点测试包括39名参与者(12名PLWD、15名CP、12名MCI),他们参加了24个课程中的75±29%;77%的人完成了为期12周的课程,其中96%的人将其评为优秀或良好。参与者报告的结果包括社交联系、情绪健康、身体功能、认知功能和以当下为中心的身体意识的改善。PLWD或MCI也报告了自我概念的改善,CP报告了护理自我效能的改善。主要挑战与技术的参与者导航有关。结论:“一起行动”在线计划对PLWD或MCI和CP是可行的,参与者在多个领域报告了高满意度和积极的结果。提供个人技术支持对于痴呆症在线直播干预的成功至关重要。
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引用次数: 0
Corrigendum to "Can We All Speak the Same 'Language' for Our Patients' Sake? Feedback on Interprofessional Communication and Related Resources". 勘误表“为了我们的病人,我们都能说同样的‘语言’吗?关于跨专业交流和相关资源的反馈”。
Pub Date : 2023-09-15 eCollection Date: 2023-01-01 DOI: 10.1177/27536130231189336

[This corrects the article DOI: 10.1177/2164956121992338.].

[这更正了文章DOI:10.1177/2164956121992338。]。
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引用次数: 0
Providers' Understanding of Cancer Aetiology and Supportive Features for Indigenous Palliative Cancer Care Service Provision in Kenya. 提供者对肯尼亚本土姑息性癌症护理服务提供的癌症病因学和支持性特征的理解
Pub Date : 2023-08-24 eCollection Date: 2023-01-01 DOI: 10.1177/27536130231198427
Solomon K Cheboi, Kiprop Lagat, Daisy Nyawira, Peris Kariuki, Joseph Mutai, Wanjiru Nganga

Background: Palliative care is a fundamental component of providing people-centred health services to cancer patients. However, the primary pillars of indigenous palliative care such as provider understanding of cancer, its aetiology, and features are undocumented.

Objective: We sought to understand Traditional Health Providers (THPs) understanding of cancer aetiology, and the functional features that support indigenous palliative cancer care service provision in Kenya.

Method: The study used a mixed methods cross-sectional design. A semi-structured questionnaire was administered to 193 THPs, who self-reported to manage cancer patients. The findings were enriched and validated through member checking in 6 focus group discussions and five journey mapping in-depth interviews.

Results: Despite diversity in culture and experience among the indigenous providers in Kenya, their description of cancer etiology and their management practices and primary goal were similar. Cancer was consistently described as a deadly life-deforming disease by 61.1% of THPs (n = 118/193) and attributed to chemicals and toxins in the body 41.5% (n = 80). The indigenous palliative-care system was reported to be characterized by five tiered levels of care, diversity in expertise and experience, shared and consultative process (60%) and family involvement in medical decision (59.5%). Herbal regimen (60.1%) was found to be the cornerstone of informal palliative care blended with nutrition management 78.2% (n = 151), lifestyle changes 63.7% (n = 123) and counseling services 55.9% (n = 108). Payments for service were arbitrarily made in cash or in kind.

Conclusion: The features of indigenous palliative care services are informed by the providers' distinctive cultural terms and descriptions of cancer and cancer aetiology. Shared and consultative protocols, regimen exchange, referral to cascaded care, and caregiver involvement were all important palliative-care clues to saving and enhancing lives. The features provide context for development of indigenous palliative care framework, engagement of policy makers, and promotion of culturally-inclusive indigenous palliative care model for adoption.

姑息治疗是向癌症患者提供以人为本的卫生服务的一个基本组成部分。然而,土著姑息治疗的主要支柱,如提供者对癌症的了解,其病因和特征是没有记录的。我们试图了解传统卫生服务提供者(THPs)对癌症病因的理解,以及支持肯尼亚土著姑息性癌症护理服务提供的功能特征。本研究采用混合方法横断面设计。对193名自我报告管理癌症患者的thp进行了半结构化问卷调查。通过6次焦点小组讨论和5次旅程地图深度访谈,研究结果得到了丰富和验证。尽管肯尼亚土著提供者的文化和经验各不相同,但他们对癌症病因的描述、管理实践和主要目标是相似的。61.1%的thp (n = 118/193)一致认为癌症是一种致命的生命畸形疾病,41.5% (n = 80)认为癌症是体内化学物质和毒素造成的。据报道,土著姑息治疗系统的特点是五个层次的护理,专业知识和经验的多样性,共享和协商过程(60%)和家庭参与医疗决策(59.5%)。草药方案(60.1%)是非正式姑息治疗的基础,营养管理占78.2% (n = 151),生活方式改变占63.7% (n = 123),咨询服务占55.9% (n = 108)。服务费的支付是随意地以现金或实物支付的。土著姑息治疗服务的特点是由提供者独特的文化术语和对癌症和癌症病因的描述所决定的。共享和协商协议、方案交换、转介到级联护理和护理人员参与都是挽救和改善生命的重要姑息治疗线索。这些特征为土著姑息治疗框架的发展、政策制定者的参与以及促进文化包容性的土著姑息治疗模式的采用提供了背景。
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引用次数: 0
A Brief Measure of Fidelity for Mindfulness Programs: Development and Evaluation of the Concise Fidelity for Mindfulness-Based Interventions Tool. 正念计划忠实度的简要衡量标准:基于正念的干预工具的简明保真度开发与评估》(Concise Fidelity for Mindfulness-Based Interventions Tool)。
Pub Date : 2023-07-01 eCollection Date: 2023-01-01 DOI: 10.1177/27536130231174234
Carol M Greco, Graham A Dore, Janice M Weinberg, Isabel Roth, Holly N Thomas, Suzanne Lawrence, Ruth Rodriguez, Megan McGillis, Natalia E Morone

Background: Mindfulness research and clinical programs are widespread, and it is important that mindfulness-based interventions are delivered with fidelity, or as intended, across settings. The MBI:TAC is a comprehensive system for assessing teacher competence, yet it can be complex to implement. A standardized, simple fidelity/engagement tool to address treatment delivery is needed.

Objective: We describe the development, evaluation, and outcomes of a brief, practical tool for assessing fidelity and engagement in online mindfulness-based programs. The tool contains questions about session elements such as meditation guidance and group discussion, and questions about participant engagement and technology-based barriers to engagement.

Methods: The fidelity rating tool was developed and tested in OPTIMUM, Optimizing Pain Treatment in Medical settings Using Mindfulness. The OPTIMUM study is a 3-site pragmatic randomized trial of group medical visits and adapted mindfulness-based stress reduction for primary care patients with chronic low back pain, delivered online. Two trained study personnel independently rated 26 recorded OPTIMUM sessions to determine inter-rater reliability of the Concise Fidelity for Mindfulness-Based Interventions (CoFi-MBI) tool. Trained raters also completed the CoFi-MBI for 105 sessions. Raters provided qualitative data via optional open text fields within the tool.

Results: Inter-rater agreement was 77-100% for presence of key session components, and 69-88% for Likert ratings of participant engagement and challenges related to technology, with discrepancies only occurring within 2 categories: 'very much' and 'quite a bit'. Key session components occurred as intended in 94-100% of the 105 sessions, and participant engagement was rated as 'very much' or 'quite a bit' in 95% of the sessions. Qualitative analysis of rater comments revealed themes related to engagement challenges and technology failures.

Conclusion: The CoFi-MBI provides a practical way to assess basic adherence to online delivery of mindfulness session elements, participant engagement, and extent of technology obstacles. Optional text can guide strategies to improve engagement and reduce technology barriers.

背景:正念研究和临床项目非常广泛,重要的是在各种环境中都能忠实地实施基于正念的干预措施。MBI:TAC是一个评估教师能力的综合系统,但实施起来却很复杂。我们需要一个标准化、简单的忠实度/参与度工具来解决治疗实施问题:我们介绍了一种简明实用的工具的开发、评估和结果,该工具用于评估在线正念课程的忠实度和参与度。该工具包含有关冥想指导和小组讨论等课程要素的问题,以及有关参与者参与度和基于技术的参与障碍的问题:忠实度评级工具是在 OPTIMUM(利用正念优化医疗环境中的疼痛治疗)中开发和测试的。OPTIMUM 研究是一项在 3 个地点进行的实用随机试验,针对慢性腰背痛的初级保健患者进行小组医疗访问和经调整的正念减压,并通过在线方式进行。两名经过培训的研究人员对 26 个录制的 OPTIMUM 会话进行了独立评分,以确定正念干预简明保真度(CoFi-MBI)工具的评分间可靠性。训练有素的评分员还完成了 105 个疗程的 CoFi-MBI 测评。评分者通过工具中的可选开放文本字段提供定性数据:在关键环节的存在性方面,评分者之间的一致率为 77%-100%,在参与者参与度和与技术相关的挑战方面,李克特评分的一致率为 69%-88%,差异仅出现在两个类别中:"非常多 "和 "相当多"。在 105 场培训中,94%-100% 的培训按计划进行,95% 的培训将参与者的参与度评为 "非常多 "或 "相当多"。对评分者意见的定性分析揭示了与参与挑战和技术故障相关的主题:CoFi-MBI提供了一种实用的方法来评估在线正念课程元素的基本坚持情况、参与者的参与度以及技术障碍的程度。可选文本可以为提高参与度和减少技术障碍的策略提供指导。
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Global advances in integrative medicine and health
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