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Integrated Care Coordination for Managing Chronic Conditions: Views of Health Staff on the Implementation of a Program Using an Algorithm to Identify People at Higher Risk of Hospitalisation in Sydney, Australia. 管理慢性病的综合护理协调:澳大利亚悉尼卫生工作人员对使用算法识别住院风险较高人群的方案实施的看法。
Pub Date : 2025-06-30 eCollection Date: 2025-01-01 DOI: 10.1177/27536130251356449
Cathy O'Callaghan, Julie Osborne, Margo Barr, Damian P Conway, Ben Harris-Roxas

Background: Integrated care interventions can improve patient outcomes and reduce the burden on acute health services, but need a strong evidence base to ensure their effectiveness. Understanding the meso and macro context in which care is delivered and determining whether patient needs are met are essential to successful implementation. Care coordination in New South Wales (NSW), Australia has evolved over time to meet the needs of an ageing population with chronic health conditions and multi-morbidity with the aim of reducing potentially preventable hospitalisations.

Objective: To examine how an integrated care coordination program was understood and implemented at state, district and clinician levels in NSW. The Integrated Care for People with Chronic Conditions (ICPCC) program was implemented statewide, however local implementation varied. Patients who were suitable for integrated care coordination were identified via a hospitalisation risk prediction algorithm and/or referrals from health professionals.

Methods: Understanding and implementation of ICPCC were assessed via interviews and a focus group with a range of health staff. Qualitative data were analysed using NVivo software and normalisation process theory.

Results: There was a strong sense of program coherence from management, clinicians and referrers. They viewed ICPCC as effective in coordinating care for patients at risk of hospitalisation and incorporating self-management at home. All health staff interviewed understood the program purpose and necessity, including the importance of achieving patient and systemic goals. Networking, linking services and program promotion were important, as was reporting on benefits. While the algorithm effectively identified previously hospitalised patients, it did not identify all suitable patients in the community with an increasing risk of requiring acute health care intervention. Referrals from health professionals familiar with patient needs and complexity were an important additional mechanism for patient selection.

Conclusions: There was a shared sense of coherence and understanding of the ICPCC program among health staff at the three levels of implementation within NSW. The program played an important role in assisting patients with a range of chronic conditions to access and benefit from integrated care coordination, while increasing their capacity to self-manage at home. Program intake via hospitalisation risk prediction algorithm plus referrals from health professionals familiar with patient needs and complexity can effectively identify those who may benefit from integrated care coordination.

背景:综合护理干预措施可以改善患者预后并减轻急性卫生服务的负担,但需要强有力的证据基础来确保其有效性。了解提供护理的中观和宏观环境并确定是否满足患者需求是成功实施的关键。澳大利亚新南威尔士州(新南威尔士州)的护理协调工作随着时间的推移不断发展,以满足患有慢性疾病和多种疾病的老龄化人口的需要,其目的是减少可能可以预防的住院治疗。目的:研究新南威尔士州、地区和临床医生层面的综合护理协调计划是如何理解和实施的。慢性病患者综合护理(ICPCC)计划在全州范围内实施,但地方实施情况各不相同。通过住院风险预测算法和/或卫生专业人员的转诊,确定适合综合护理协调的患者。方法:通过访谈和一系列卫生工作人员的焦点小组,评估ICPCC的理解和实施情况。采用NVivo软件和归一化过程理论对定性数据进行分析。结果:管理人员、临床医生和转诊者对项目有很强的一致性。他们认为,ICPCC在协调对有住院风险的患者的护理和纳入家庭自我管理方面是有效的。所有接受采访的卫生人员都理解该计划的目的和必要性,包括实现患者和系统目标的重要性。建立网络、联系服务和方案推广很重要,报告效益也很重要。虽然该算法有效地识别了以前住院的患者,但它并没有识别出社区中所有需要紧急医疗干预的风险增加的合适患者。熟悉患者需求和复杂性的卫生专业人员的转诊是选择患者的另一个重要机制。结论:在新南威尔士州实施的三个层次的卫生工作人员对ICPCC方案有共同的一致性和理解。该项目在帮助各种慢性疾病患者获得并受益于综合护理协调方面发挥了重要作用,同时提高了他们在家中自我管理的能力。通过住院风险预测算法加上熟悉患者需求和复杂性的卫生专业人员的推荐,可以有效地确定哪些人可能从综合护理协调中受益。
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引用次数: 0
Integrating Community Perspectives to Improve Healthcare Interventions: A Qualitative Analysis of Focus Group Discussions for Students-Led Clinics in Karachi. 整合社区观点以改善医疗保健干预:对卡拉奇学生主导诊所焦点小组讨论的定性分析。
Pub Date : 2025-06-18 eCollection Date: 2025-01-01 DOI: 10.1177/27536130251353172
Syed Muhammad Aqeel Abidi, Faiza Qureshi, Syeda Kainaat Fatima

Introduction: This study aims to comprehensively evaluate health care access and utilization in rural Pakistan, shedding light on the multifaceted challenges and opportunities within the health care landscape. It explores the healthcare-seeking behaviours of individuals, particularly focusing on underserved populations.

Methods: The study employed a qualitative data collection method. Focus Group Discussions (FGDs) were conducted to gather qualitative insights. Data were analysed using thematic content analysis allowing for a comprehensive understanding of health care challenges.

Results: The study reveals significant findings, including limited healthcare-seeking behaviours due to financial constraints, lack of health insurance, and distrust in health care systems. Government health care facilities in rural areas were perceived as inadequate, with under-resourced staff and subpar quality of care. Participants expressed support for medical camps and educational sessions to address these issues.

Conclusion: This study provides critical insights into rural Pakistan's health care access and utilization challenges. Policymakers, health care practitioners, and community leaders can draw from these findings to formulate effective strategies for improving health care access and outcomes in underserved rural areas.

本研究旨在全面评估巴基斯坦农村医疗保健的获取和利用,揭示医疗保健领域的多方面挑战和机遇。它探讨了个人寻求医疗保健的行为,特别关注服务不足的人群。方法:采用定性资料收集方法。进行焦点小组讨论(fgd)以收集定性见解。采用专题内容分析对数据进行了分析,以便全面了解保健方面的挑战。结果:该研究揭示了重要的发现,包括由于经济限制、缺乏医疗保险和对医疗保健系统的不信任而导致的就医行为有限。人们认为农村地区的政府保健设施不足,工作人员资源不足,保健质量低劣。与会者表示支持医疗营和教育会议来解决这些问题。结论:这项研究为巴基斯坦农村医疗保健的获取和利用挑战提供了重要的见解。政策制定者、卫生保健从业人员和社区领导人可以根据这些发现制定有效的战略,以改善服务不足的农村地区的卫生保健机会和结果。
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引用次数: 0
Intervention Fidelity in Mindfulness-Based Research and Practice: Overview of the Special Collection and State of the Field. 基于正念的研究与实践中的干预保真度:该领域的特殊收集和现状概述。
Pub Date : 2025-06-11 eCollection Date: 2025-01-01 DOI: 10.1177/27536130251349453
Frederick M Hecht, Rebecca S Crane

Mindfulness-Based Programs (MBPs) are increasingly being introduced into a range of mainstream contexts such as health care, education, criminal justice, workplace, community settings, and leadership. MBPs are available in some form in every continent, and in some countries have become established as part of standard care in publicly funded health care systems and routinely embedded into school curriculums. Efficacy and effectiveness research demonstrate gold standard evidence in some areas and significant promise in others, and cost-effectiveness evaluations are encouraging. However, understanding how to assess and ensure the fidelity of program delivery is at a germinal stage. Without clear, robust, and coordinated approaches to this issue within the international field, ongoing dissemination and implementation could be compromised by variable standards of teaching skill and adherence to program form. These issues are relevant in practice contexts where approaches to teacher training internationally need to adhere to commonly held principles, understandings, and standards. They are also relevant in research contexts where assessment of intervention fidelity needs to ensure that the variable of the teaching process and curriculum is addressed in the research design and conveyed to readers in the presentation of data. In this special collection, we bring together articles reporting on research and practice on MBP intervention fidelity in teacher training, implementation, and development of governance for the emerging mindfulness-based field. This paper introduces the special collection, summarizes the papers included, and offers an analysis of where we are now as a field and of what steps are needed to further our understanding on these issues. We hope to share current best practice and catalyse new understandings and directions of inquiry that will provide a compass to navigate forward and benefit this promising field.

正念课程(MBPs)越来越多地被引入到一系列主流环境中,如医疗保健、教育、刑事司法、工作场所、社区环境和领导力。各大洲都以某种形式提供MBPs,在一些国家,MBPs已成为公共资助的卫生保健系统标准护理的一部分,并常规纳入学校课程。功效和有效性研究在某些领域显示出黄金标准证据,在其他领域显示出重大希望,成本效益评估令人鼓舞。然而,了解如何评估和确保项目交付的保真度还处于萌芽阶段。如果在国际范围内没有明确、有力和协调的方法来解决这一问题,持续的传播和实施可能会因教学技能标准的变化和对项目形式的遵守而受到损害。这些问题在国际教师培训方法需要遵守普遍持有的原则、理解和标准的实践背景下是相关的。在干预保真度评估需要确保教学过程和课程的变量在研究设计中得到解决,并在数据呈现中传达给读者的研究背景中,它们也是相关的。在这个特别的集合中,我们汇集了关于MBP干预在教师培训、实施和新兴正念领域治理发展中的忠实度的研究和实践的文章。本文介绍了这个特别的收藏,总结了所包含的论文,并分析了我们现在作为一个领域所处的位置,以及需要采取哪些步骤来进一步了解这些问题。我们希望分享当前的最佳实践,并促进新的理解和研究方向,这将为前进提供指南针,并使这一有前途的领域受益。
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引用次数: 0
Updates and Outlook for GAIMH. GAIMH的最新进展和展望。
Pub Date : 2025-06-10 eCollection Date: 2025-01-01 DOI: 10.1177/27536130251347754
Erik J Groessl, Frederick M Hecht
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引用次数: 0
Increasing Equity Within Randomized Control Trials: A Qualitative Analysis of Focus Groups From a Multi-Site, Pragmatic Clinical Trial. 在随机对照试验中增加公平性:来自多地点实用临床试验的焦点小组的定性分析。
Pub Date : 2025-06-05 eCollection Date: 2025-01-01 DOI: 10.1177/27536130251349111
Elondra D Harr, Ruth D Rodriguez, Jose E Baez, Jessica L Barnhill, Christine R Lathren, Natalia E Morone, Isabel J Roth

Background: Underrepresentation of diverse populations in clinical trials poses challenges to equity and external validity in health care research. To successfully recruit underrepresented participants in pragmatic clinical trials, researchers must understand the perspectives and needs of individuals from diverse backgrounds who participate in research.

Objective: The purpose of this qualitative study was to gain an understanding of the needs and perspectives of participants of the OPTIMUM trial -- a pragmatic trial evaluating mindfulness-based stress reduction for chronic low back pain.

Methods: This qualitative study employed focus groups with participants from 3 clinical sites: Boston Medical Center, the University of North Carolina at Chapel Hill, and the University of Pittsburgh. Focus group discussions centered on participants' experiences, barriers, and facilitators to engagement in the OPTIMUM trial. Data were analyzed using thematic content analysis and the rapid qualitative analysis method, Lightning Reports, for real-time feedback integration into the trial process.

Results: Six focus groups were conducted with 46 participants, of whom 39.1% were first-time research participants and 56.5% identified as Black or African American. Qualitative analysis identified five key themes:1) The importance of providers in the recruitment of cLBP patients, (2) Motivators to participate and stay engaged in clinical research, (3) Participant lack of understanding of randomized control trials (RCTs) and general research processes, (4) Desire for social connection and community-building among participants, and (5) the Positive impact of regular study staff interaction.

Conclusion: Equity in RCTs requires intentional strategies to address barriers to participation and engagement faced by historically underrepresented populations. Engaging health care providers in recruitment, fostering positive interactions with study staff, and creating opportunities for social connection can improve recruitment, retention, and engagement. Incorporating community-engaged research methods and real-time feedback mechanisms can further support inclusivity and equity in pragmatic clinical trials.

背景:临床试验中不同人群的代表性不足对卫生保健研究的公平性和外部有效性提出了挑战。为了在实际临床试验中成功招募代表性不足的参与者,研究人员必须了解参与研究的来自不同背景的个体的观点和需求。目的:本定性研究的目的是了解OPTIMUM试验参与者的需求和观点,该试验是一项评估慢性腰痛正念减压的实用试验。方法:本定性研究采用焦点小组,参与者来自3个临床站点:波士顿医学中心、北卡罗来纳大学教堂山分校和匹兹堡大学。焦点小组讨论集中于参与者的经历、障碍和参与最优化试验的促进因素。数据分析采用专题内容分析和快速定性分析方法闪电报告,实时反馈集成到试验过程中。结果:共进行了6个焦点小组,共有46名参与者,其中39.1%为首次参与研究,56.5%为黑人或非裔美国人。定性分析确定了五个关键主题:1)提供者在招募cLBP患者中的重要性;(2)参与和保持临床研究的激励因素;(3)参与者缺乏对随机对照试验(rct)和一般研究过程的了解;(4)参与者对社会联系和社区建设的渴望;(5)定期研究人员互动的积极影响。结论:随机对照试验的公平性需要有针对性的策略来解决历史上代表性不足的人群在参与和参与方面面临的障碍。让医疗保健提供者参与招聘,促进与研究人员的积极互动,并创造社会联系的机会,可以改善招聘、保留和参与。结合社区参与的研究方法和实时反馈机制可以进一步支持实用临床试验的包容性和公平性。
{"title":"Increasing Equity Within Randomized Control Trials: A Qualitative Analysis of Focus Groups From a Multi-Site, Pragmatic Clinical Trial.","authors":"Elondra D Harr, Ruth D Rodriguez, Jose E Baez, Jessica L Barnhill, Christine R Lathren, Natalia E Morone, Isabel J Roth","doi":"10.1177/27536130251349111","DOIUrl":"10.1177/27536130251349111","url":null,"abstract":"<p><strong>Background: </strong>Underrepresentation of diverse populations in clinical trials poses challenges to equity and external validity in health care research. To successfully recruit underrepresented participants in pragmatic clinical trials, researchers must understand the perspectives and needs of individuals from diverse backgrounds who participate in research.</p><p><strong>Objective: </strong>The purpose of this qualitative study was to gain an understanding of the needs and perspectives of participants of the OPTIMUM trial -- a pragmatic trial evaluating mindfulness-based stress reduction for chronic low back pain.</p><p><strong>Methods: </strong>This qualitative study employed focus groups with participants from 3 clinical sites: Boston Medical Center, the University of North Carolina at Chapel Hill, and the University of Pittsburgh. Focus group discussions centered on participants' experiences, barriers, and facilitators to engagement in the OPTIMUM trial. Data were analyzed using thematic content analysis and the rapid qualitative analysis method, Lightning Reports, for real-time feedback integration into the trial process.</p><p><strong>Results: </strong>Six focus groups were conducted with 46 participants, of whom 39.1% were first-time research participants and 56.5% identified as Black or African American. Qualitative analysis identified five key themes:1) The importance of providers in the recruitment of cLBP patients, (2) Motivators to participate and stay engaged in clinical research, (3) Participant lack of understanding of randomized control trials (RCTs) and general research processes, (4) Desire for social connection and community-building among participants, and (5) the Positive impact of regular study staff interaction.</p><p><strong>Conclusion: </strong>Equity in RCTs requires intentional strategies to address barriers to participation and engagement faced by historically underrepresented populations. Engaging health care providers in recruitment, fostering positive interactions with study staff, and creating opportunities for social connection can improve recruitment, retention, and engagement. Incorporating community-engaged research methods and real-time feedback mechanisms can further support inclusivity and equity in pragmatic clinical trials.</p>","PeriodicalId":73159,"journal":{"name":"Global advances in integrative medicine and health","volume":"14 ","pages":"27536130251349111"},"PeriodicalIF":0.0,"publicationDate":"2025-06-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12144376/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144251171","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"It's a Really Big Privilege to be Able to Take Care of Ourselves": A Mixed Methods Study of Integrating Mindfulness for Mental Health into a Job Training Program for Low-Income Emerging Adults. “能够照顾好自己真的是一种很大的特权”:一项将心理健康正念融入低收入新兴成年人职业培训计划的混合方法研究。
Pub Date : 2025-06-05 eCollection Date: 2025-01-01 DOI: 10.1177/27536130251347913
Dorothy T Chiu, Forest Fein, Ariana Thompson-Lastad, Wendy Hartogensis, Stephanie N Christian-Afflu, Eve Ekman, Maria T Chao

Background: Mental health of emerging, young adults remains a concern, particularly in lower income groups who receive less mental healthcare. Mindfulness-based interventions yield mental health benefits and have been widely applied, though reach and accessibility remain limited. Poor mental health can negatively impact job performance, physical health, and life trajectories.

Objective: A mindfulness elective was offered through a year-long job training program serving diverse, low-income emerging adults. We investigated relevant outcomes in a mixed methods quasi-experimental study.

Methods: Pre-/post-elective surveys assessed mindfulness, mental health, and well-being using established measures. We analyzed within- and between-group differences comparing mindfulness vs control (Year 1) and 12-week vs 6-week (Year 2) participants using t-tests and mixed effects models. Focus groups were conducted and analyzed using codebook thematic analysis.

Results: Participants (n = 212) provided evaluation data. Over two years, 195 participated in a mindfulness elective (mean age = 22.3 [SD = 2.7] years; 47.2% female, 94.4% from racially and ethnically minoritized groups). In Year 1, mindfulness participants exhibited many pre-to-post improvements, including greater mindfulness (+8.4, 95% CI: 5.8, 11.0) and life satisfaction (+10.3, 95% CI: 7.0, 13.6) and lower stress (-8.2, 95% CI: -10.4, -5.9); no changes in controls were observed. In Year 2, mindfulness participants improved in mindfulness and life satisfaction plus self-compassion (12-week: +0.6, 95% CI: 0.4, 0.8; 6-week: +0.4, 95% CI: 0.1, 0.6), connectedness (12-week: +0.7, 95% CI: 0.5, 0.9; 6-week: +0.4, 95% CI: 0.2, 0.6), and mind-body connection (12-week: +1.8, 95% CI: 1.2, 2.4; 6-week: +0.6, 95% CI: 0.0, 1.3). Additional benefits were observed (eg, in stress, focus, emotional reactivity) but significance varied by elective length. Focus groups were generally concordant with quantitative results. Respondents described how the elective enabled self-care, supporting health and professional development.

Conclusions: Integrating mindfulness into job training for underserved emerging adults was well-received, effective, and supports mental health equity.

背景:新兴的年轻人的心理健康仍然是一个令人关注的问题,特别是在接受较少心理保健的低收入群体中。基于正念的干预措施产生心理健康益处,并已广泛应用,尽管覆盖面和可及性仍然有限。心理健康状况不佳会对工作表现、身体健康和生活轨迹产生负面影响。目的:一项为期一年的职业培训计划提供了一个正念选修课,服务于不同的,低收入的新兴成年人。我们在一项混合方法准实验研究中调查了相关结果。方法:选修课前/选修课后的调查评估正念,心理健康和福祉使用既定的措施。我们使用t检验和混合效应模型分析了正念与控制(一年级)和12周与6周(二年级)参与者的组内和组间差异。使用代码本专题分析进行焦点小组和分析。结果:参与者(n = 212)提供了评价资料。在两年多的时间里,195人参加了正念选修课(平均年龄= 22.3 [SD = 2.7]岁;女性占47.2%,少数民族占94.4%)。在第一年,正念参与者表现出许多前后的改善,包括更大的正念(+8.4,95% CI: 5.8, 11.0)和生活满意度(+10.3,95% CI: 7.0, 13.6)和更低的压力(-8.2,95% CI: -10.4, -5.9);对照组未见变化。在第二年,正念参与者在正念、生活满意度和自我同情方面有所改善(12周:+0.6,95% CI: 0.4, 0.8;6周:+0.4,95% CI: 0.1, 0.6),连通性(12周:+0.7,95% CI: 0.5, 0.9;6周:+0.4,95% CI: 0.2, 0.6)和身心联系(12周:+1.8,95% CI: 1.2, 2.4;6周:+0.6,95% CI: 0.0, 1.3)。观察到其他益处(例如,在压力,注意力,情绪反应方面),但意义因选修时间长短而异。焦点小组总体上与定量结果一致。受访者描述了选修课如何促进自我保健,支持健康和专业发展。结论:将正念整合到服务不足的新兴成人的职业培训中,效果良好,并支持心理健康公平。
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引用次数: 0
Clinical Delivery of Whole Systems Traditional Chinese Medicine and Impacts Upon Patient Reported Outcomes During IVF. 全系统中药的临床交付及其对体外受精患者报告结果的影响。
Pub Date : 2025-06-04 eCollection Date: 2025-01-01 DOI: 10.1177/27536130251349116
Rebecca Lu, Samuel N Rodgers-Melnick, Rebecca Flyckt, Sung Tae Kim, Roshini Srinivasan, Jeffery A Dusek, Christine M Kaiser

Background: Several clinical trials support the efficacy of Whole Systems Traditional Chinese Medicine (WS-TCM) modalities, including acupuncture, for improving outcomes among women undergoing in vitro fertilization (IVF), but few studies have described its real-world integration within an academic medical setting or its immediate effects on pain, stress, and anxiety.

Objective: To characterize the clinical delivery of WS-TCM and assess its effects on patient-reported outcomes (PROs) among patients receiving WS-TCM while undergoing IVF.

Methods: A retrospective review of patients who received ≥1 WS-TCM treatment associated with ≥1 embryo transfer at a single center was conducted. A linear mixed model adjusting for the random effect of patients seen over multiple treatments was used to calculate PRO changes among those with pre-treatment PROs ≥1 on a 0-10 numeric rating scale.

Results: 1896 WS-TCM treatments were provided during 202 embryo transfers among 146 patients. Patients (mean age 35.76 ± 4.37) were predominantly white (79.5%), and 26.7% had a documented mental health diagnosis. Of the 202 embryo transfers, 64.9% included pre-transfer treatment, 88.6% included day-of-transfer treatment, and 32.2% included post-transfer treatment. Patients reporting pre-treatment PROs ≥1 reported clinically significant mean [95% CI] reductions in pain (-1.38 [-1.70, -1.07]), stress (-2.11 [-2.47, -1.74]), and anxiety (-2.22 [-2.63, -1.81]) within a single treatment.

Conclusions: This study supports the integration of WS-TCM within IVF and its benefits for reducing acute pain, stress, and anxiety. WS-TCM may improve patient experiences and be a useful treatment for psychosocial concerns that often accompany IVF.

背景:一些临床试验支持全系统中医(WS-TCM)模式的疗效,包括针灸,以改善体外受精(IVF)妇女的结局,但很少有研究描述其在学术医学环境中的现实世界整合或其对疼痛,压力和焦虑的直接影响。目的:探讨中药WS-TCM的临床应用特点,并评估其对体外受精(IVF)患者使用中药WS-TCM的患者报告预后(pro)的影响。方法:对单中心接受≥1次WS-TCM治疗并伴有≥1次胚胎移植的患者进行回顾性分析。采用线性混合模型调整多种治疗患者的随机效应,计算治疗前PRO≥1(0-10数值评定量表)患者的PRO变化。结果:146例胚胎移植202例,采用中医WS-TCM治疗1896次。患者(平均年龄35.76±4.37岁)以白人为主(79.5%),26.7%有精神健康诊断记录。202例胚胎移植中,64.9%为移植前处理,88.6%为移植当日处理,32.2%为移植后处理。报告治疗前PROs≥1的患者报告在单次治疗中疼痛(-1.38[-1.70,-1.07])、压力(-2.11[-2.47,-1.74])和焦虑(-2.22[-2.63,-1.81])的临床显著平均[95% CI]减轻。结论:本研究支持中医WS-TCM在体外受精中的整合及其对减轻急性疼痛、压力和焦虑的益处。WS-TCM可以改善患者的体验,并且是一种有用的治疗心理社会问题的方法,经常伴随试管婴儿。
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引用次数: 0
Feasibility of a Telephone-Delivered Mindfulness Intervention for Informal Caregivers of Rural-Dwelling African Americans With Dementia. 电话传递正念干预对居住在农村的非裔美国人痴呆症非正式照顾者的可行性。
IF 1.3 Pub Date : 2025-06-04 eCollection Date: 2025-01-01 DOI: 10.1177/27536130251347944
Keturah R Faurot, Isabel Roth, Elondra Harr, Jennifer Shafer, Kessonga Giscombé, Karen M Sheffield-Abdullah, Christine Lathren, Mary Brantley, Sharon W Williams, Susan A Gaylord

Background: Mindfulness training has been associated with improved health outcomes among family caregivers of people living with dementia, but access to training is limited, especially in rural areas. Moreover, mindfulness training that addresses the unique perspectives of African American families is needed.

Objectives: The study aimed to test the feasibility and acceptability of a theory-driven, telephone-delivered mindfulness intervention for caregivers of African Americans with moderate-to-severe dementia living in rural eastern North Carolina.

Methods: In this single-arm, multiple-methods study, pairs of informal caregivers attended an 8-week mindfulness training program involving weekly one-hour telephone-delivered sessions, and an online retreat. Feasibility outcomes included enrollment, retention, attendance, and acceptability. Exploratory pre-post endpoints related to our theoretical model included perceived caregiver burden (Zarit Burden Interview), uncertainty intolerance (Intolerance of Uncertainty Scale), and positive emotions (Meaning and Purpose Scale).

Results: Seventy-eight percent of screened individuals enrolled, 86% completed the study, and 88% attended ≥6 sessions. Participants found the program valuable, especially via telephone. Perceived burden decreased from pre-to-post intervention (mean difference [MD] -2.7, (95% CI: -4.5, -1.3; Cohen's d -0.47) and positive emotions increased (MD 2.7, 95% CI 0.81, 4.5; d = 0.37). Both inhibitory (MD -1.0, 95% CI -1.8, -0.09; d = -0.28) and prospective (MD -1.2, 95% CI -2.7, 0.3; d = -0.20) intolerance of uncertainty were lower post-intervention.

Discussion: A telephone-delivered mindfulness training intervention was feasible and shows promise for reducing perceived burden among rural-dwelling informal caregivers of African Americans with dementia. Further testing in a randomized parallel-group trial comparing mindfulness training to a credible control intervention is warranted.

Trial registration: ClinicalTrials.gov NCT04058886.

背景:正念训练与痴呆症患者的家庭照顾者的健康状况改善有关,但获得训练的机会有限,特别是在农村地区。此外,还需要针对非裔美国家庭独特视角的正念训练。目的:本研究旨在测试一种理论驱动的、电话传递的正念干预的可行性和可接受性,该干预适用于居住在北卡罗来纳州东部农村的患有中重度痴呆症的非裔美国人的护理人员。方法:在这项单臂、多方法研究中,对非正式护理人员参加了为期8周的正念训练计划,包括每周一小时的电话授课和在线静修。可行性结果包括入学、留校、出勤和可接受性。与我们的理论模型相关的探索性前后终点包括感知照顾者负担(Zarit burden访谈)、不确定性不耐受(不确定性不耐受量表)和积极情绪(意义和目的量表)。结果:78%的筛查个体入组,86%完成研究,88%参加≥6次疗程。参与者发现这个项目很有价值,尤其是通过电话。感知负担从干预前到干预后下降(平均差异[MD] -2.7, (95% CI: -4.5, -1.3;Cohen’s d -0.47)和积极情绪增加(MD 2.7, 95% CI 0.81, 4.5;D = 0.37)。两种抑制(MD -1.0, 95% CI -1.8, -0.09;d = -0.28)和前瞻性(MD -1.2, 95% CI -2.7, 0.3;D = -0.20)干预后不确定性耐受降低。讨论:一种电话传递的正念训练干预是可行的,并显示出减轻居住在农村的非裔美国人痴呆症非正式照顾者的感知负担的希望。在一项比较正念训练和可信对照干预的随机平行组试验中,进一步的测试是有必要的。试验注册:ClinicalTrials.gov NCT04058886。
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引用次数: 0
Nonpharmacologic Back Pain Treatment Use and Associated Patient Reported Outcomes in US-Based Integrative Medicine Clinics. 美国中西医结合诊所非药物治疗背痛的使用和相关患者报告的结果。
IF 1.3 Pub Date : 2025-06-02 eCollection Date: 2025-01-01 DOI: 10.1177/27536130251345481
Eric J Roseen, Emily E Hurstak, Ryung S Kim, Qi Gao, Carol M Greco, David R Vago, Robert B Saper, Benjamin Kligler, M Diane McKee, Jeffery A Dusek

Background: The integrative medicine (IM) clinic is an innovative care model that may increase access to guideline-concordant nonpharmacologic treatment use in healthcare delivery systems for prevalent conditions such as low back pain (LBP).

Objective: To describe the use and effectiveness of IM services for LBP in IM clinics.

Research design: Prospective cohort study.

Subjects: Adult patients with LBP enrolled at seventeen IM clinics.

Measures: Patterns of IM service use were assessed over 12 months. Changes in clinical outcomes were assessed between index visit and 12-month follow-up using linear mixed-effects models. Primary (pain interference, physical function) and secondary (pain intensity, anxiety, depression, fatigue, sleep disturbance, social participation) outcomes were obtained from the PROMIS-29 instrument.

Results: We identified 660 participants with LBP (mean age = 51.6 years, 75% female). Over the 12-month study period, common IM services were IM consults (56%), acupuncture (44%), chiropractic care (24%), physical therapy (19%), and massage (17%). Over two-thirds (70%) of participants received at least one guideline-concordant nonpharmacologic treatment. Participants with follow-up outcome data (n = 443, 67%) reported a modest reduction in pain interference with life activities in the short- and long-term (2-month mean difference [MD] = -1.47, 95%CI = -2.98, -0.64; 12-month MD = -1.98, 95%CI = -3.12, -0.88). By contrast, improvements in physical function were not statistically or clinically significant (2-month MD = 0.37, 95%CI = -0.28, 1.01; 12-month MD = 0.69, 95%CI = -0.31, 1.69). At 12 months, small improvements were observed on all secondary outcomes (pain intensity, anxiety, depression, and social participation) except fatigue and sleep disturbance.

Conclusions: Most patients with LBP receiving care at IM clinics received at least one guideline-recommended nonpharmacologic treatment. However, improvements on clinical outcomes were relatively small. Additional multi-site studies are needed to explore the optimal implementation approach.

背景:中西医结合(IM)诊所是一种创新的护理模式,可以增加在医疗保健服务系统中使用符合指南的非药物治疗,用于治疗腰痛(LBP)等常见疾病。目的:描述IM诊所对LBP的使用和有效性。研究设计:前瞻性队列研究。对象:在17家IM诊所登记的成年LBP患者。测量方法:在12个月内评估即时通讯服务的使用模式。使用线性混合效应模型评估指标访问和12个月随访期间临床结果的变化。主要(疼痛干扰、身体功能)和次要(疼痛强度、焦虑、抑郁、疲劳、睡眠障碍、社会参与)结果通过promise -29量表获得。结果:我们确定了660名LBP患者(平均年龄51.6岁,75%为女性)。在12个月的研究期间,常见的即时通讯服务包括即时通讯咨询(56%)、针灸(44%)、脊椎按摩(24%)、物理治疗(19%)和按摩(17%)。超过三分之二(70%)的参与者接受了至少一种符合指南的非药物治疗。随访结果数据的参与者(n = 443, 67%)报告疼痛对短期和长期生活活动的干扰有适度减少(2个月平均差异[MD] = -1.47, 95%CI = -2.98, -0.64;12个月MD = -1.98, 95%CI = -3.12, -0.88)。相比之下,身体功能的改善无统计学意义或临床意义(2个月MD = 0.37, 95%CI = -0.28, 1.01;12个月MD = 0.69, 95%CI = -0.31, 1.69)。12个月时,除疲劳和睡眠障碍外,所有次要结局(疼痛强度、焦虑、抑郁和社会参与)均有小幅改善。结论:大多数在IM诊所接受治疗的腰痛患者至少接受了一种指南推荐的非药物治疗。然而,临床结果的改善相对较小。需要更多的多地点研究来探索最佳的实施方法。
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引用次数: 0
SuperVive-Comunidad App: Advancing Integrative Health Equity for the Hispanic Community Through Social Connection. 生存社区应用程序:通过社会联系促进西班牙裔社区的综合健康公平。
Pub Date : 2025-05-23 eCollection Date: 2025-01-01 DOI: 10.1177/27536130251345428
Arlene Betancourt

Barriers to the use of integrative medicine modalities are complex, with associated disparities in awareness, access, and utilization within marginalized communities. This article details our experience in creating a virtual community designed to empower Hispanic women in the US to lead healthier lives through culturally aware health education in Spanish. Our digital health programs utilize a mind-body medicine approach to foster positive social connections and promote integrative health equity within the Hispanic community living in the US.

使用中西医结合模式的障碍是复杂的,在边缘化社区中,在认识、获取和利用方面存在相关差异。本文详细介绍了我们创建虚拟社区的经验,该社区旨在通过西班牙语的文化意识健康教育,使美国的西班牙裔妇女能够过上更健康的生活。我们的数字健康项目利用身心医学的方法来培养积极的社会联系,促进生活在美国的西班牙裔社区的综合健康公平。
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引用次数: 0
期刊
Global advances in integrative medicine and health
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