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The historiography of a profession: The societal and political drivers of the health information management profession in Australia. 一个专业的史学:澳大利亚健康信息管理专业的社会和政治驱动力。
Kerin Robinson, Simon Barraclough, Elizabeth Cummings, Rick Iedema

Health information permeates healthcare delivery from point-of-care, across the continuum of care and throughout the healthcare system's policy, population health, research, planning and funding arenas. Health information managers (HIMs) expertly manage that information. This commentary theorises the health information management profession for the first time. Its purpose is to identify and contextualise, via a historiographical account, the societal and political drivers that have shaped contemporary Australian health information management and HIMs' scientific work. It seeks to build our knowledge of the socio-political influences on the profession's emergence and development, and the projected drivers of its future. Eight critical, socio-political drivers were identified and are addressed in temporaneous order. Scientific medicine has reflected the influences on medicine in the past century and a half of the medical record and other technologies, laboratory-based sciences, evidence-based medicine and evidence-based health. Standardisation has underpinned and guided the profession's practice. The hegemony of non-medical healthcare managers and resource- and performance-related accountabilities emerged in the 1960s, as did the efficiencies of bureaucratisation in healthcare and post-bureaucratic shifts to textualisation and technogovernance. Technologisation has driven constant change in health information management, as have the forces of the fast-paced risk society. Since the 1980s, the health consumer movement has propelled regulatory mechanisms that accord patients' access rights to their medical records and mandate information privacy protections. Finally, a nascent commodification of health information has emerged. These forces exert ongoing impacts on the profession. They will, we conclude, singularly and collectively continue to shape its discourses and direction.

卫生信息渗透到卫生保健服务中,从护理点到整个护理连续体,以及整个卫生保健系统的政策、人口健康、研究、规划和筹资领域。健康信息管理器(HIMs)熟练地管理这些信息。这篇评论首次将卫生信息管理专业理论化。其目的是确定和背景,通过历史的叙述,社会和政治驱动因素塑造了当代澳大利亚健康信息管理和HIMs的科学工作。它旨在建立我们的社会政治影响的专业的出现和发展,其未来的预计驱动因素的知识。确定了八个关键的社会政治驱动因素,并按临时顺序加以处理。科学医学反映了在过去一个半世纪中病历和其他技术、实验室科学、循证医学和循证健康对医学的影响。标准化是该行业实践的基础和指导。非医疗保健管理者的霸权以及与资源和绩效相关的问责制出现在上世纪60年代,医疗保健领域官僚化的效率以及后官僚主义向文本化和技术治理的转变也是如此。技术推动了健康信息管理的不断变化,正如快节奏的风险社会的力量一样。自20世纪80年代以来,健康消费者运动推动了监管机制,赋予患者访问其医疗记录的权利,并强制要求保护信息隐私。最后,健康信息的新生商品化已经出现。这些力量对这个行业产生了持续的影响。我们的结论是,他们将单独和集体地继续塑造其话语和方向。
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引用次数: 0
Completeness and accuracy of adverse drug reaction documentation in electronic medical records at a tertiary care hospital in Australia. 澳大利亚一家三级医院电子病历中药物不良反应记录的完整性和准确性。
Gina McLachlan, Airley Broomfield, Rohan Elliott

Background: A large proportion of patients presenting to hospitals have experienced a previous adverse drug reaction (ADR). Electronic medical records (EMRs) present an opportunity to accurately document ADRs and alert clinicians against inadvertent rechallenge where there is a pre-existing reaction. However, EMR systems are imperfect and rely on the accuracy of the data entered. Objective: To ascertain the completeness of ADR documentation and the accuracy of the classification of ADRs as allergy versus intolerance in the EMR at a major metropolitan hospital in Australia. Method: Cross-sectional audit of the ADR field of the EMR for a sample of patients on four different wards over 3 weeks to ascertain the completeness of ADR documentation and the accuracy of classification of ADRs. Results: Of the 264 patients assessed, 102 (38.6%) had a total of 210 ADRs documented in the EMR. Of these, 105 (50%) were considered to have complete documentation; 63/210 (30.0%) were missing a reaction description and 88/210 (41.9%) were missing severity information. For those ADRs with a reaction description (n = 147), 97 (66.0%) were considered to be appropriately classified as allergy or intolerance. Conclusion: Incomplete and inaccurate ADR documentation was common. These findings highlight a need for optimising ADR documentation to improve appropriate medication use in hospital. Implications: Improved EMR design and education of healthcare workers on the importance of complete and accurate documentation of reactions are needed to improve completeness and accuracy of ADR classification.

背景:到医院就诊的患者中有很大一部分曾发生过药物不良反应(ADR)。电子医疗记录(emr)提供了一个准确记录不良反应的机会,并提醒临床医生在存在预先存在的反应时不要无意中再次提出质疑。然而,电子病历系统是不完善的,依赖于输入数据的准确性。目的:了解澳大利亚某大城市医院病历中ADR记录的完整性和ADR分类为过敏与不耐受的准确性。方法:对4个不同病房样本患者3周内EMR的ADR字段进行横断面审计,以确定ADR记录的完整性和ADR分类的准确性。结果:在评估的264例患者中,102例(38.6%)在EMR中记录了总计210例adr。其中,105例(50%)被认为具有完整的文件;63/210(30.0%)缺失反应描述,88/210(41.9%)缺失严重程度信息。在有反应描述的adr (n = 147)中,97例(66.0%)被认为属于过敏或不耐受。结论:ADR记录不完整、不准确是常见的。这些发现强调需要优化不良反应文件,以提高医院药物的适当使用。结论:需要改进电子病历设计,并教育医护人员完整准确记录反应的重要性,以提高ADR分类的完整性和准确性。
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引用次数: 3
Social media in health communication: A literature review of information quality. 健康传播中的社交媒体:信息质量的文献综述。
Eric Afful-Dadzie, Anthony Afful-Dadzie, Sulemana Bankuoru Egala

Background: Social media is used in health communication by individuals, health professionals, disease centres and other health regulatory bodies. However, varying degrees of information quality are churned out daily on social media. This review is concerned with the quality of Social Media Health Information (SMHI).

Objective: The review sought to understand how SMHI quality issues have been framed and addressed in the literature. Health topics, users and social media platforms that have raised health information quality concerns are reviewed. The review also looked at the suitability of existing criteria and instruments used in evaluating SMHI and identified gaps for future research.

Method: The Preferred Reporting Items for Systematic Reviews and Meta-Analyses and the forward chaining strategy were used in the document search. Data were sourced according to inclusion criteria from five academic databases, namely Scopus, Web of Science, Cochrane Library, PubMed and MEDLINE.

Results: A total of 93 articles published between 2000 and 2019 were used in the review. The review revealed a worrying trend of health content and communication on social media, especially of cancer, dental care and diabetes information on YouTube. The review further discovered that the Journal of the American Medical Association, the DISCERN and the Health on the Net Foundation, which were designed before the advent of social media, continue to be used as quality evaluation instruments for SMHI, even though technical and user characteristics of social media differ from traditional portals such as websites.

Conclusion: The study synthesises varied opinions on SMHI quality in the literature and recommends that future research proposes quality evaluation criteria and instruments specifically for SMHI.

背景:社交媒体被个人、卫生专业人员、疾病中心和其他卫生监管机构用于卫生传播。然而,社交媒体上每天都会产生不同程度的信息质量。本综述是关于社交媒体健康信息(SMHI)的质量。目的:本综述旨在了解SMHI质量问题是如何在文献中被构建和解决的。审查了引起卫生信息质量关切的卫生主题、用户和社交媒体平台。该审查还审查了用于评价SMHI的现有标准和工具的适用性,并确定了未来研究的差距。方法:采用系统评价和荟萃分析的首选报告项目和前向链策略进行文献检索。根据纳入标准,数据来源于Scopus、Web of Science、Cochrane Library、PubMed和MEDLINE五个学术数据库。结果:本综述共纳入2000 - 2019年发表的93篇文献。该调查显示,社交媒体上的健康内容和交流出现了令人担忧的趋势,尤其是YouTube上的癌症、牙科保健和糖尿病信息。审查进一步发现,尽管社交媒体的技术和用户特征不同于网站等传统门户网站,但在社交媒体出现之前设计的《美国医学协会杂志》、《辨别》和网络健康基金会继续被用作SMHI的质量评估工具。结论:本研究综合了文献中对SMHI质量的不同看法,并建议未来的研究提出针对SMHI的质量评价标准和工具。
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引用次数: 18
Verification of administrative data to measure palliative care at terminal hospital stays. 验证行政数据以衡量临终住院期间的姑息治疗。
Joanne M Stubbs, Hassan Assareh, Helen M Achat, Sally Greenaway, Poorani Muruganantham

Background: Administrative data and clinician documentation have not been directly compared for reporting palliative care, despite concerns about under-reporting.

Objective: The aim of this study was to verify the use of routinely collected administrative data for reporting in-hospital palliation and to examine factors associated with coded palliative care in hospital administrative data.

Method: Hospital administrative data and inpatient palliative care activity documented in medical records were compared for patients dying in hospital between 1 July 2017 and 31 December 2017. Coding of palliative care in administrative data is based on hospital care type coded as "palliative care" and/or assignment of the International Statistical Classification of Diseases and Related Health Problems, Tenth Revision, Australian Modification (ICD-10-AM) palliative care diagnosis code Z51.5. Medical records were searched for specified keywords, which, read in context, indicated a palliative approach to care. The list of keywords (palliative, end of life, comfort care, cease observations, crisis medications, comfort medications, syringe driver, pain or symptom management, no cardiopulmonary resuscitation, advance medical plan/resuscitation plan, deteriorating, agitation, restless and delirium) was developed in consultation with seven local clinicians specialising in palliative care or geriatric medicine.

Results: Of the 576 patients who died in hospital, 246 were coded as having received palliative care, either solely by the ICD-10-AM diagnosis code Z51.5 (42%) or in combination with a "palliative care" care type (58%). Just over one-third of dying patients had a palliative care specialist involved in their hospital care. Involvement of a palliative care specialist and a cancer diagnosis substantially increased the odds of a Z51.5 code (odds ratio = 11 and 4, respectively). The majority of patients with a "syringe driver" or identified as being at the "end of life" were assigned a Z51.5 code (73.5% and 70.5%, respectively), compared to 53.8% and 54.7%, respectively, for "palliative" or "comfort care." For each keyword indicating a palliative approach to care, the Z51.5 code was more likely to be assigned if the patient had specialist palliative care input or if they had cancer.

Conclusion: Our results suggest administrative data under-represented in-hospital palliative care, at least partly due to medical record documentation that failed to meet ICD-10-AM coding criteria. Collaboration between clinicians and coders can enhance the quality of records and, consequently, administrative data.

背景:行政数据和临床医生文件没有直接比较报告姑息治疗,尽管担心少报。目的:本研究的目的是验证使用常规收集的行政数据来报告院内姑息治疗,并检查与医院行政数据中编码姑息治疗相关的因素。方法:比较2017年7月1日至2017年12月31日住院死亡患者的医院管理数据和住院姑息治疗活动记录。行政数据中的姑息治疗编码是基于编码为“姑息治疗”的医院护理类型和/或《国际疾病和相关健康问题统计分类第十次修订版,澳大利亚修订版(ICD-10-AM)姑息治疗诊断代码Z51.5的分配。在医疗记录中搜索特定的关键词,在上下文中阅读,这些关键词表明了一种姑息治疗方法。关键词列表(姑息治疗、临终关怀、舒适护理、停止观察、危重药物、舒适药物、注射器司机、疼痛或症状管理、无心肺复苏、提前医疗计划/复苏计划、恶化、躁动、躁动和谵妄)是在与当地7位专门从事姑息治疗或老年医学的临床医生协商后制定的。结果:在医院死亡的576名患者中,246名患者被编码为接受了姑息治疗,要么单独通过ICD-10-AM诊断代码Z51.5(42%),要么与“姑息治疗”护理类型相结合(58%)。超过三分之一的临终病人在医院护理中有姑息治疗专家参与。姑息治疗专家的参与和癌症诊断大大增加了Z51.5代码的几率(优势比分别为11和4)。大多数“注射器司机”或被确定为“生命终结”的患者被分配为Z51.5代码(分别为73.5%和70.5%),而“姑息治疗”或“舒适护理”的患者分别为53.8%和54.7%。对于指示姑息治疗方法的每个关键字,如果患者有专科姑息治疗输入或患有癌症,则更有可能分配Z51.5代码。结论:我们的研究结果表明,医院姑息治疗的行政数据代表性不足,至少部分原因是医疗记录文件不符合ICD-10-AM编码标准。临床医生和编码员之间的合作可以提高记录的质量,从而提高管理数据的质量。
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引用次数: 3
Attitudes and perceptions of traditional health practitioners towards documentation of patient health information in their practice in eThekwini Municipality, KwaZulu-Natal, Natal Province, South Africa. 南非纳塔尔省夸祖鲁-纳塔尔省德科维尼市传统卫生从业人员对记录病人健康信息的态度和看法。
Tracy Zhandire, Nceba Gqaleni, Mlungisi Ngcobo, Exnevia Gomo

Background: Documentation of patient health information in the form of patient medical records (PMRs) is an essential, ethical and regulatory requirement in any healthcare system. African traditional medicine (ATM) exists parallel to biomedicine and continues to play a significant role in primary healthcare of the majority of South Africans. The World Health Organization (WHO) has promoted the integration of ATM into the national health system of South Africa. Patient health information documentation can facilitate this integration, and PMRs promote communication between the two health systems through referrals. Documentation in biomedicine is a clear, compulsory, routine activity, but does not occur regularly or routinely in ATM.

Objective: To examine the attitudes and perceptions of traditional health practitioners (THPs) towards documentation of patient health information in their practice.

Methods: This quantitative cross-sectional survey involved snowball sampling to recruit THPs in Umlazi Township and rural parts surrounding the township, in Durban, South Africa. A semi-structured questionnaire was used. Quantitative data were analysed using SPSS 25 and the Relative Importance Index (RII) and qualitative data were analysed using Excel for themes.

Results: Sampling resulted in 248 THPs of whom 178 (72%) were females. The RII ranked the factors that negatively influenced the participants' attitudes towards documentation of patient health information. Of the 178 females who participated in the study, 129 (72.5%) showed their willingness to introduce documentation in their practice. Of the 127 participants with less than 10 years of practice experience, 126 (99.2%) agreed to the importance of introducing PMRs in their practice. The majority of participants perceived documentation of patient health information as vital to improve their practice. A prominent theme was that the THPs regarded documenting patient health information as important and effective in their practice.

Conclusion: More than half of participants showed positive attitudes and perceptions towards documenting of patient health information in ATM. The majority of the participants in this study acknowledged the importance of introducing documentation of patient health information in their practice even though they lacked experience and more knowledge. This reflects a need for essential intervention in developing specialised tools to begin promoting documentation of patient health information in ATM.

背景:在任何医疗保健系统中,以患者医疗记录(PMRs)的形式记录患者健康信息是一项基本的、道德的和监管的要求。非洲传统医学与生物医学并行不悖,继续在大多数南非人的初级保健中发挥重要作用。世界卫生组织(世卫组织)已推动将自动取款机纳入南非的国家卫生系统。患者健康信息文档可以促进这种整合,并且pmr通过转诊促进两个卫生系统之间的沟通。文献记录在生物医学中是一项明确的、强制性的、常规的活动,但在ATM中并不是定期或常规发生的。目的:探讨传统卫生从业者(THPs)在实践中对患者健康信息记录的态度和看法。方法:本定量横断面调查采用滚雪球抽样,在南非德班Umlazi镇及其周边农村地区招募thp。采用半结构化问卷。定量数据采用SPSS 25和相对重要性指数(Relative Importance Index, RII)进行分析,定性数据采用Excel对主题进行分析。结果:共检出thp 248例,其中女性178例,占72%。RII对负面影响参与者对患者健康信息记录态度的因素进行了排名。在参与研究的178名女性中,129名(72.5%)表示愿意在实践中引入文献。在127名从业经验不足10年的参与者中,126名(99.2%)同意在其实践中引入pmr的重要性。大多数参与者认为,记录患者健康信息对于改善他们的做法至关重要。一个突出的主题是,thp认为记录患者健康信息在他们的实践中是重要和有效的。结论:半数以上的参与者对自动柜员机记录患者健康信息持积极态度和看法。本研究中的大多数参与者承认在他们的实践中引入患者健康信息文档的重要性,即使他们缺乏经验和更多的知识。这反映出在开发专门工具方面需要进行必要的干预,以便开始在ATM系统中促进患者健康信息的记录。
{"title":"Attitudes and perceptions of traditional health practitioners towards documentation of patient health information in their practice in eThekwini Municipality, KwaZulu-Natal, Natal Province, South Africa.","authors":"Tracy Zhandire,&nbsp;Nceba Gqaleni,&nbsp;Mlungisi Ngcobo,&nbsp;Exnevia Gomo","doi":"10.1177/1833358320984004","DOIUrl":"https://doi.org/10.1177/1833358320984004","url":null,"abstract":"<p><strong>Background: </strong>Documentation of patient health information in the form of patient medical records (PMRs) is an essential, ethical and regulatory requirement in any healthcare system. African traditional medicine (ATM) exists parallel to biomedicine and continues to play a significant role in primary healthcare of the majority of South Africans. The World Health Organization (WHO) has promoted the integration of ATM into the national health system of South Africa. Patient health information documentation can facilitate this integration, and PMRs promote communication between the two health systems through referrals. Documentation in biomedicine is a clear, compulsory, routine activity, but does not occur regularly or routinely in ATM.</p><p><strong>Objective: </strong>To examine the attitudes and perceptions of traditional health practitioners (THPs) towards documentation of patient health information in their practice.</p><p><strong>Methods: </strong>This quantitative cross-sectional survey involved snowball sampling to recruit THPs in Umlazi Township and rural parts surrounding the township, in Durban, South Africa. A semi-structured questionnaire was used. Quantitative data were analysed using SPSS 25 and the Relative Importance Index (RII) and qualitative data were analysed using Excel for themes.</p><p><strong>Results: </strong>Sampling resulted in 248 THPs of whom 178 (72%) were females. The RII ranked the factors that negatively influenced the participants' attitudes towards documentation of patient health information. Of the 178 females who participated in the study, 129 (72.5%) showed their willingness to introduce documentation in their practice. Of the 127 participants with less than 10 years of practice experience, 126 (99.2%) agreed to the importance of introducing PMRs in their practice. The majority of participants perceived documentation of patient health information as vital to improve their practice. A prominent theme was that the THPs regarded documenting patient health information as important and effective in their practice.</p><p><strong>Conclusion: </strong>More than half of participants showed positive attitudes and perceptions towards documenting of patient health information in ATM. The majority of the participants in this study acknowledged the importance of introducing documentation of patient health information in their practice even though they lacked experience and more knowledge. This reflects a need for essential intervention in developing specialised tools to begin promoting documentation of patient health information in ATM.</p>","PeriodicalId":73210,"journal":{"name":"Health information management : journal of the Health Information Management Association of Australia","volume":"52 1","pages":"41-49"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1833358320984004","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10536623","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
An equitable approach to enhancing the privacy of consumer information on My Health Record in Australia. 以公平的方式加强澳大利亚“我的健康记录”中消费者信息的隐私。
Zachary Hollo, Dominique E Martin

Australia's national electronic health record (EHR), My Health Record (MHR), raises concerns about information privacy and the presumption of consent to participation. In contrast to the "opt-out" framework for participation, consumers must "opt-in" to obtain additional privacy features to protect their health information on MHR. We review ethical considerations relating to opt-in and opt-out frameworks in the context of EHRs, discussing potential reasons why consent for additional safeguards is not currently presumed. Exploring the implications of recent amendments to strengthen consumer privacy, we present recommendations to promote equity in health information security for all Australians using MHR.

澳大利亚的国家电子健康记录(EHR),即我的健康记录(MHR),引起了人们对信息隐私和同意参与的推定的关注。与"选择退出"参与框架相反,消费者必须"选择加入"以获得额外的隐私功能,以保护他们在MHR上的健康信息。我们回顾了与电子病历背景下选择加入和选择退出框架相关的伦理考虑,讨论了目前不假定同意额外保障措施的潜在原因。探索最近修订的影响,以加强消费者的隐私,我们提出建议,以促进公平的健康信息安全为所有澳大利亚人使用MHR。
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引用次数: 7
Awareness of, attitudes towards, and practices of health information management professionals in South Korea relating to privacy of personal health information. 韩国卫生信息管理专业人员对个人卫生信息隐私的认识、态度和做法。
Yeaeun Kim

Background: While information and communication technology has continued to advance, privacy of personal health information (PHI) has remained a challenge for health information management (HIM) professionals. Objective: This study aims to examine the awareness, attitude and practice relating to PHI privacy among HIM professionals in South Korea. Method: A survey questionnaire was developed for the study based on critical appraisal of relevant literature and expert consensus. It was completed by a sample of 312 respondents who were members of the Korean Health Information Management Association, over the age of 21, and worked in a healthcare organisation. Demographic data and questionnaire items (assessed on a 5-point Likert-type scale) were analysed using descriptive statistics, t-tests and ANOVA. Results: Mean scores and SDs for awareness, attitude and practice related to PHI privacy were calculated: 4.21 (0.60) for awareness, 4.17 (0.60) for attitude and 4.31 (0.63) for practice. Significant positive correlations were found between awareness and attitude scores (r = 0.765, p < 0.01); awareness and practice scores (r = 0.585; p < 0.01); and attitude and action scores (r = 0.672; p < 0.01). HIM professionals' awareness, attitude, and practice towards PHI privacy differed significantly according to age, level of education, years of HIM experience, type of employment, main task, number of completed privacy education activities within the previous 3 years and whether or not they had signed a pledge of confidentiality on PHI. More highly-educated, full-time employed respondents, those who had completed a greater number of privacy education activities and had more experience as HIM professionals, achieved higher scores on awareness, attitude and practice than did other respondents. These differences were all statistically significant (p < 0.01). Conclusion: Although causality cannot be inferred from results of this study, findings suggest that there is a relationship between PHI being a core responsibility of HIM professionals and their subsequent awareness, attitude and practice to ensure its privacy and confidentiality. To improve privacy practice, educational efforts should be prioritised and supported at all levels, including national, organisational, individual, and by professional HIM associations.

背景:随着信息和通信技术的不断发展,个人健康信息隐私(PHI)仍然是健康信息管理(HIM)专业人员面临的一个挑战。目的:本研究旨在调查韩国HIM专业人员对PHI隐私的意识、态度和实践。方法:在批判性评价相关文献和专家共识的基础上,制定调查问卷进行研究。调查对象为312名韩国健康信息管理协会成员,年龄在21岁以上,在医疗机构工作。使用描述性统计、t检验和方差分析分析人口统计数据和问卷项目(以5点李克特量表评估)。结果:计算PHI隐私相关意识、态度和行为的平均得分和标准差:意识4.21(0.60),态度4.17(0.60),行为4.31(0.63)。意识与态度得分呈显著正相关(r = 0.765, p < 0.01);意识和练习得分(r = 0.585;P < 0.01);态度和行动得分(r = 0.672;P < 0.01)。根据年龄、受教育程度、HIM经验年限、就业类型、主要任务、过去3年内完成的隐私教育活动次数以及是否签署了PHI保密承诺,HIM专业人员对PHI隐私的意识、态度和做法存在显著差异。受过高等教育、全职工作的受访者,即完成较多私隐教育活动及拥有较多私隐专业人员经验的受访者,在私隐意识、态度及实务方面的得分较其他受访者高。差异均有统计学意义(p < 0.01)。结论:虽然不能从本研究的结果中推断出因果关系,但研究结果表明,PHI作为HIM专业人员的核心责任与他们随后确保其隐私和保密的意识、态度和实践之间存在关系。为了改善隐私实践,应优先考虑教育工作,并在各级提供支持,包括国家、组织、个人和专业的HIM协会。
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引用次数: 1
Developing a strategy to improve data sharing in health research: A mixed-methods study to identify barriers and facilitators. 制定改进卫生研究数据共享的战略:一项确定障碍和促进因素的混合方法研究。
Michelle A Krahe, Malcolm Wolski, Sharon Mickan, Julie Toohey, Paul Scuffham, Sheena Reilly

Background: Data sharing presents new opportunities across the spectrum of research and is vital for science that is open, where data are easily discoverable, accessible, intelligible, reproducible, replicable and verifiable. Despite this, it is yet to become common practice. Global efforts to develop practical guidance for data sharing and open access initiatives are underway, however evidence-based studies to inform the development and implementation of effective strategies are lacking.

Objective: This study sought to determine the barriers and facilitators to data sharing among health researchers and to identify the target behaviours for designing a behaviour change intervention strategy.

Method: Data were drawn from a cross-sectional survey of data management practices among health researchers from one Australian research institute. Determinants of behaviour were theoretically derived using well-established behavioural models.

Results: Data sharing practices have been described for 77 researchers, and 6 barriers and 4 facilitators identified. The primary barriers to data sharing included perceived negative consequences and lack of competency to share data. The primary facilitators to data sharing included trust in others using the data and social influence related to public benefit. Intervention functions likely to be most effective at changing target behaviours were also identified.

Conclusion: Results of this study provide a theoretical and evidence-based process to understand the behavioural barriers and facilitators of data sharing among health researchers.

Implications: Designing interventions that specifically address target behaviours to promote data sharing are important for open researcher practices.

背景:数据共享为整个研究领域带来了新的机遇,对于开放的科学至关重要,在开放的科学中,数据很容易被发现、获取、理解、再现、可复制和可验证。尽管如此,它还没有成为普遍的做法。为数据共享和开放获取倡议制定实用指南的全球努力正在进行中,但缺乏为制定和实施有效战略提供信息的循证研究。目的:本研究旨在确定卫生研究人员之间数据共享的障碍和促进因素,并确定设计行为改变干预策略的目标行为。方法:数据来自澳大利亚一家研究机构的卫生研究人员数据管理实践的横断面调查。行为的决定因素在理论上是用成熟的行为模型推导出来的。结果:对77名研究人员的数据共享实践进行了描述,并确定了6个障碍和4个促进因素。数据共享的主要障碍包括感知到的负面后果和缺乏共享数据的能力。促进数据共享的主要因素包括对使用数据的他人的信任和与公共利益有关的社会影响。干预功能可能是最有效的改变目标行为也被确定。结论:本研究结果为理解卫生研究人员之间数据共享的行为障碍和促进因素提供了一个理论和循证过程。启示:设计专门针对目标行为的干预措施以促进数据共享对于开放研究实践非常重要。
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引用次数: 6
The diagnostic certainty levels of junior clinicians: A retrospective cohort study. 初级临床医生诊断确定性水平:一项回顾性队列研究。
Pub Date : 2022-09-01 Epub Date: 2021-06-11 DOI: 10.1177/18333583211019134
Yang Chen, Myura Nagendran, Yakup Kilic, Dominic Cavlan, Adam Feather, Mark Westwood, Edward Rowland, Charles Gutteridge, Pier D Lambiase

Background: Clinical decision-making is influenced by many factors, including clinicians' perceptions of the certainty around what is the best course of action to pursue.

Objective: To characterise the documentation of working diagnoses and the associated level of real-time certainty expressed by clinicians and to gauge patient opinion about the importance of research into clinician decision certainty.

Method: This was a single-centre retrospective cohort study of non-consultant grade clinicians and their assessments of patients admitted from the emergency department between 01 March 2019 and 31 March 2019. De-identified electronic health record proformas were extracted that included the type of diagnosis documented and the certainty adjective used. Patient opinion was canvassed from a focus group.

Results: During the study period, 850 clerking proformas were analysed; 420 presented a single diagnosis, while 430 presented multiple diagnoses. Of the 420 single diagnoses, 67 (16%) were documented as either a symptom or physical sign and 16 (4%) were laboratory-result-defined diagnoses. No uncertainty was expressed in 309 (74%) of the diagnoses. Of 430 multiple diagnoses, uncertainty was expressed in 346 (80%) compared to 84 (20%) in which no uncertainty was expressed. The patient focus group were unanimous in their support of this research.

Conclusion: The documentation of working diagnoses is highly variable among non-consultant grade clinicians. In nearly three quarters of assessments with single diagnoses, no element of uncertainty was implied or quantified. More uncertainty was expressed in multiple diagnoses than single diagnoses.

Implications: Increased standardisation of documentation will help future studies to better analyse and quantify diagnostic certainty in both single and multiple working diagnoses. This could lead to subsequent examination of their association with important process or clinical outcome measures.

背景:临床决策受到许多因素的影响,包括临床医生对最佳行动方案的确定性的看法。目的:表征工作诊断的文件和临床医生表达的实时确定性的相关水平,并衡量患者对临床医生决策确定性研究的重要性的意见。方法:这是一项单中心回顾性队列研究,纳入了2019年3月1日至2019年3月31日期间从急诊科入院的非会诊级临床医生及其评估。提取去识别的电子健康记录形式,包括记录的诊断类型和使用的确定性形容词。病人的意见是从焦点小组中征求的。结果:在研究期间,分析了850份办事员表格;420例为单一诊断,430例为多重诊断。在420例单一诊断中,67例(16%)被记录为症状或体征,16例(4%)是实验室结果定义的诊断。309例(74%)的诊断没有不确定性。在430例多重诊断中,有346例(80%)不确定,而没有不确定的84例(20%)不确定。病人焦点小组一致支持这项研究。结论:非会诊级临床医生的工作诊断文件差异很大。在近四分之三的单一诊断评估中,没有不确定性因素被暗示或量化。多重诊断的不确定性大于单一诊断。意义:文件标准化的提高将有助于未来的研究更好地分析和量化单一和多个工作诊断的诊断确定性。这可能导致后续检查它们与重要过程或临床结果测量的关联。
{"title":"The diagnostic certainty levels of junior clinicians: A retrospective cohort study.","authors":"Yang Chen,&nbsp;Myura Nagendran,&nbsp;Yakup Kilic,&nbsp;Dominic Cavlan,&nbsp;Adam Feather,&nbsp;Mark Westwood,&nbsp;Edward Rowland,&nbsp;Charles Gutteridge,&nbsp;Pier D Lambiase","doi":"10.1177/18333583211019134","DOIUrl":"https://doi.org/10.1177/18333583211019134","url":null,"abstract":"<p><strong>Background: </strong>Clinical decision-making is influenced by many factors, including clinicians' perceptions of the certainty around what is the best course of action to pursue.</p><p><strong>Objective: </strong>To characterise the documentation of working diagnoses and the associated level of real-time certainty expressed by clinicians and to gauge patient opinion about the importance of research into clinician decision certainty.</p><p><strong>Method: </strong>This was a single-centre retrospective cohort study of non-consultant grade clinicians and their assessments of patients admitted from the emergency department between 01 March 2019 and 31 March 2019. De-identified electronic health record proformas were extracted that included the type of diagnosis documented and the certainty adjective used. Patient opinion was canvassed from a focus group.</p><p><strong>Results: </strong>During the study period, 850 clerking proformas were analysed; 420 presented a single diagnosis, while 430 presented multiple diagnoses. Of the 420 single diagnoses, 67 (16%) were documented as either a symptom or physical sign and 16 (4%) were laboratory-result-defined diagnoses. No uncertainty was expressed in 309 (74%) of the diagnoses. Of 430 multiple diagnoses, uncertainty was expressed in 346 (80%) compared to 84 (20%) in which no uncertainty was expressed. The patient focus group were unanimous in their support of this research.</p><p><strong>Conclusion: </strong>The documentation of working diagnoses is highly variable among non-consultant grade clinicians. In nearly three quarters of assessments with single diagnoses, no element of uncertainty was implied or quantified. More uncertainty was expressed in multiple diagnoses than single diagnoses.</p><p><strong>Implications: </strong>Increased standardisation of documentation will help future studies to better analyse and quantify diagnostic certainty in both single and multiple working diagnoses. This could lead to subsequent examination of their association with important process or clinical outcome measures.</p>","PeriodicalId":73210,"journal":{"name":"Health information management : journal of the Health Information Management Association of Australia","volume":"51 3","pages":"118-125"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/18333583211019134","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39001762","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Understanding the challenges associated with the use of data from routine health information systems in low- and middle-income countries: A systematic review. 了解低收入和中等收入国家与使用常规卫生信息系统数据相关的挑战:一项系统审查。
Pub Date : 2022-09-01 Epub Date: 2020-06-30 DOI: 10.1177/1833358320928729
Klesta Hoxha, Yuen W Hung, Bridget R Irwin, Karen A Grépin

Background: Routine health information systems (RHISs) are crucial to informing decision-making at all levels of the health system. However, the use of RHIS data in low- and middle-income countries (LMICs) is limited due to concerns regarding quality, accuracy, timeliness, completeness and representativeness.

Objective: This study systematically reviewed technical, behavioural and organisational/environmental challenges that hinder the use of RHIS data in LMICs and strategies implemented to overcome these challenges.

Method: Four electronic databases were searched for studies describing challenges associated with the use of RHIS data and/or strategies implemented to circumvent these challenges in LMICs. Identified articles were screened against inclusion and exclusion criteria by two independent reviewers.

Results: Sixty studies met the inclusion criteria and were included in this review, 55 of which described challenges in using RHIS data and 20 of which focused on strategies to address these challenges. Identified challenges and strategies were organised by their technical, behavioural and organisational/environmental determinants and by the core steps of the data process. Organisational/environmental challenges were the most commonly reported barriers to data use, while technical challenges were the most commonly addressed with strategies.

Conclusion: Despite the known benefits of RHIS data for health system strengthening, numerous challenges continue to impede their use in practice.

Implications: Additional research is needed to identify effective strategies for addressing the determinants of RHIS use, particularly given the disconnect identified between the type of challenge most commonly described in the literature and the type of challenge most commonly targeted for interventions.

背景:常规卫生信息系统(RHISs)对于为各级卫生系统的决策提供信息至关重要。然而,由于对质量、准确性、及时性、完整性和代表性的担忧,RHIS数据在低收入和中等收入国家(LMICs)的使用受到限制。目的:本研究系统地回顾了阻碍在中低收入国家使用RHIS数据的技术、行为和组织/环境挑战,以及为克服这些挑战而实施的策略。方法:在四个电子数据库中检索描述与使用RHIS数据相关的挑战和/或在中低收入国家实施规避这些挑战的策略的研究。确定的文章由两名独立审稿人根据纳入和排除标准进行筛选。结果:60项研究符合纳入标准并纳入本综述,其中55项研究描述了使用RHIS数据的挑战,其中20项研究侧重于解决这些挑战的策略。确定的挑战和策略由其技术,行为和组织/环境决定因素以及数据处理的核心步骤组织。组织/环境挑战是最常见的数据使用障碍,而技术挑战是最常见的战略解决方案。结论:尽管已知RHIS数据对加强卫生系统有好处,但许多挑战继续阻碍其在实践中的使用。含义:需要进一步的研究来确定有效的策略来解决RHIS使用的决定因素,特别是考虑到文献中最常见的挑战类型与干预措施最常见的挑战类型之间的脱节。
{"title":"Understanding the challenges associated with the use of data from routine health information systems in low- and middle-income countries: A systematic review.","authors":"Klesta Hoxha,&nbsp;Yuen W Hung,&nbsp;Bridget R Irwin,&nbsp;Karen A Grépin","doi":"10.1177/1833358320928729","DOIUrl":"https://doi.org/10.1177/1833358320928729","url":null,"abstract":"<p><strong>Background: </strong>Routine health information systems (RHISs) are crucial to informing decision-making at all levels of the health system. However, the use of RHIS data in low- and middle-income countries (LMICs) is limited due to concerns regarding quality, accuracy, timeliness, completeness and representativeness.</p><p><strong>Objective: </strong>This study systematically reviewed technical, behavioural and organisational/environmental challenges that hinder the use of RHIS data in LMICs and strategies implemented to overcome these challenges.</p><p><strong>Method: </strong>Four electronic databases were searched for studies describing challenges associated with the use of RHIS data and/or strategies implemented to circumvent these challenges in LMICs. Identified articles were screened against inclusion and exclusion criteria by two independent reviewers.</p><p><strong>Results: </strong>Sixty studies met the inclusion criteria and were included in this review, 55 of which described challenges in using RHIS data and 20 of which focused on strategies to address these challenges. Identified challenges and strategies were organised by their technical, behavioural and organisational/environmental determinants and by the core steps of the data process. Organisational/environmental challenges were the most commonly reported barriers to data use, while technical challenges were the most commonly addressed with strategies.</p><p><strong>Conclusion: </strong>Despite the known benefits of RHIS data for health system strengthening, numerous challenges continue to impede their use in practice.</p><p><strong>Implications: </strong>Additional research is needed to identify effective strategies for addressing the determinants of RHIS use, particularly given the disconnect identified between the type of challenge most commonly described in the literature and the type of challenge most commonly targeted for interventions.</p>","PeriodicalId":73210,"journal":{"name":"Health information management : journal of the Health Information Management Association of Australia","volume":"51 3","pages":"135-148"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1833358320928729","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38105649","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 32
期刊
Health information management : journal of the Health Information Management Association of Australia
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