Laura Garcia Diaz, Evelyne Durocher, Paula Gardner, Carrie McAiney, Lori Letts
Engagement of persons living with dementia in public consultations is central to the development of dementia-friendly communities (DFC). However, due to a lack of resources and expertise in how to support their involvement, persons living with dementia are not always involved in processes for planning the development and implementation of DFC initiatives. To better understand processes and methods that facilitate the engagement of persons living with dementia in public consultations, we evaluated the public consultation processes of a Canadian DFC initiative. A partially mixed-methods sequential equal status design guided this process evaluation. Data sources included surveys completed by public consultation participants, focus groups with members of the group that led the public consultation process, and the report that outlines consultation findings. Study results highlight the strengths and limitations of the public consultations and include recommendations for engaging persons living with dementia in public consultations. Results emphasize the importance of including persons living with dementia in DFC initiatives as project partners and public consultation participants.
{"title":"Engagement of Persons with Dementia in Public Consultations: Process Evaluation","authors":"Laura Garcia Diaz, Evelyne Durocher, Paula Gardner, Carrie McAiney, Lori Letts","doi":"10.54656/jces.v15i2.449","DOIUrl":"https://doi.org/10.54656/jces.v15i2.449","url":null,"abstract":"Engagement of persons living with dementia in public consultations is central to the development of dementia-friendly communities (DFC). However, due to a lack of resources and expertise in how to support their involvement, persons living with dementia are not always involved in processes for planning the development and implementation of DFC initiatives. To better understand processes and methods that facilitate the engagement of persons living with dementia in public consultations, we evaluated the public consultation processes of a Canadian DFC initiative. A partially mixed-methods sequential equal status design guided this process evaluation. Data sources included surveys completed by public consultation participants, focus groups with members of the group that led the public consultation process, and the report that outlines consultation findings. Study results highlight the strengths and limitations of the public consultations and include recommendations for engaging persons living with dementia in public consultations. Results emphasize the importance of including persons living with dementia in DFC initiatives as project partners and public consultation participants.","PeriodicalId":73680,"journal":{"name":"Journal of community engagement and scholarship","volume":"10 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-05-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135643466","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Paola Ardiles Gamboa, Rachel Nelson, Simran Purewal, Henrietta Ezegbe, Anna Mathewson, Terri Rutty, Chandana Unnithan, David Zandvliet
Due to growing demands for experiential learning opportunities and the desire to better prepare students for “real-world” decision-making, community-university partnerships have become novel and experimental spaces within postsecondary institutions. This case study explores a 3-year community-academic partnership pilot designed to provide place-based education experiences around sustainability in an urban North American context. Students’ experiences in the pilot program were examined using document reviews, interviews, and online surveys. This paper reports on student learning in relation to civic engagement and place-based education. It also explores how community-academic partnerships can be leveraged to advance sustainability goals at the municipal level, based on a framework encompassing cultural, social, and environmental dimensions of sustainability. The results suggest that the community-academic partnership provided important place-based learning opportunities that both fostered civic engagement and enabled the application of ideas about activism and action competency to support the municipality’s holistic sustainability goals. Further analysis of the pilot applying a set of principles related to community-academic partnerships is used to draw insights and identify both the benefits and challenges of the partnership for the students, faculty, and municipal partners involved.
{"title":"Community-University Partnerships for Local Impact: Advancing Sustainability Through Place-Based Education","authors":"Paola Ardiles Gamboa, Rachel Nelson, Simran Purewal, Henrietta Ezegbe, Anna Mathewson, Terri Rutty, Chandana Unnithan, David Zandvliet","doi":"10.54656/jces.v15i2.525","DOIUrl":"https://doi.org/10.54656/jces.v15i2.525","url":null,"abstract":"Due to growing demands for experiential learning opportunities and the desire to better prepare students for “real-world” decision-making, community-university partnerships have become novel and experimental spaces within postsecondary institutions. This case study explores a 3-year community-academic partnership pilot designed to provide place-based education experiences around sustainability in an urban North American context. Students’ experiences in the pilot program were examined using document reviews, interviews, and online surveys. This paper reports on student learning in relation to civic engagement and place-based education. It also explores how community-academic partnerships can be leveraged to advance sustainability goals at the municipal level, based on a framework encompassing cultural, social, and environmental dimensions of sustainability. The results suggest that the community-academic partnership provided important place-based learning opportunities that both fostered civic engagement and enabled the application of ideas about activism and action competency to support the municipality’s holistic sustainability goals. Further analysis of the pilot applying a set of principles related to community-academic partnerships is used to draw insights and identify both the benefits and challenges of the partnership for the students, faculty, and municipal partners involved.","PeriodicalId":73680,"journal":{"name":"Journal of community engagement and scholarship","volume":"8 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-05-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135691702","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
C. Krause-Parello, L. Flynn, Beth A. Pratt, Rosa Clarke, L. Colloca, Jane Garvin, David A. Hibler, K. Saban, Frances Weaver
Chronic pain is the leading cause of disability among United States veterans. Affecting up to 70% of veterans, chronic pain touches all aspects of life, not just physical functioning. Despite the fact that the nation is experiencing a crisis with substance use disorder, the most common treatment for pain among veterans is opioids. The purpose of this community engagement project was to develop a national veteran-centered chronic pain research agenda. In total, 129 veterans and stakeholders engaged in Think Tank Meetings across five states: Florida, Georgia, Illinois, North Carolina, and Virginia. Veterans revealed they wanted better access to care, better care coordination, and more options for managing chronic pain. Veterans’ recommendations for chronic pain management and veteran-generated priorities for chronic pain research are presented. The outcomes of this community engagement project can be used by researchers, clinicians, health care providers, health care system managers, and policy-makers to engage in activities that are veteran-centered and veteran-driven.
{"title":"Veterans Action League 2.0: Creating a Veteran-Centered Chronic Pain Research Agenda","authors":"C. Krause-Parello, L. Flynn, Beth A. Pratt, Rosa Clarke, L. Colloca, Jane Garvin, David A. Hibler, K. Saban, Frances Weaver","doi":"10.54656/jces.v15i2.510","DOIUrl":"https://doi.org/10.54656/jces.v15i2.510","url":null,"abstract":"Chronic pain is the leading cause of disability among United States veterans. Affecting up to 70% of veterans, chronic pain touches all aspects of life, not just physical functioning. Despite the fact that the nation is experiencing a crisis with substance use disorder, the most common treatment for pain among veterans is opioids. The purpose of this community engagement project was to develop a national veteran-centered chronic pain research agenda. In total, 129 veterans and stakeholders engaged in Think Tank Meetings across five states: Florida, Georgia, Illinois, North Carolina, and Virginia. Veterans revealed they wanted better access to care, better care coordination, and more options for managing chronic pain. Veterans’ recommendations for chronic pain management and veteran-generated priorities for chronic pain research are presented. The outcomes of this community engagement project can be used by researchers, clinicians, health care providers, health care system managers, and policy-makers to engage in activities that are veteran-centered and veteran-driven.","PeriodicalId":73680,"journal":{"name":"Journal of community engagement and scholarship","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42105078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
A review of the book: Heather Coffey and Lucy Arnold. (2022). Transformative Critical Service-Learning: Theory and Practice for Engaging Community College and University Learners in Building an Activist Mindset. Myers Education Press. ISBN 978-1-975504-99-1
{"title":"Residing at the Intersection of Theory and Practice","authors":"Suzanne M. Buglione","doi":"10.54656/jces.v15i2.491","DOIUrl":"https://doi.org/10.54656/jces.v15i2.491","url":null,"abstract":"A review of the book:\u0000Heather Coffey and Lucy Arnold. (2022). Transformative Critical Service-Learning: Theory and Practice for Engaging Community College and University Learners in Building an Activist Mindset. Myers Education Press. ISBN 978-1-975504-99-1","PeriodicalId":73680,"journal":{"name":"Journal of community engagement and scholarship","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43522547","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
I have had the dream to become a physician and specialize in cardiology for about seven years now. As a pre-med undergraduate student at Carleton College, I knew that meant I would have to take the Medical College Admissions Test and organic chemistry, as well as get meaningful clinical experience. However, I had no idea I would also lead community outreach for a project doing archaeological field research in Peru! Although this was not a typical pre-med experience, my time with Dr. Sarah Kennedy’s Proyecto Arqueológico Medio Ambiental (PAMA) in Puno, Peru, was one of the most beneficial experiences I have had during my career.
我一直梦想成为一名医生，专攻心脏病学已经有七年了。作为卡尔顿学院的一名医学预科本科生，我知道这意味着我必须参加医学院招生考试和有机化学，并获得有意义的临床经验。然而，我不知道我也会为一个在秘鲁进行考古实地研究的项目领导社区外联！虽然这不是一次典型的医学预科经历，但我在秘鲁普诺的Sarah Kennedy博士的Proyecto Arqueológico Medio Ambiental（PAMA）工作是我职业生涯中最有益的经历之一。
{"title":"Sources of Shared Knowledge: Community Stakeholders, Undergraduate Students, and Archaeologists on an International Archaeological Dig","authors":"Sophie Baggett","doi":"10.54656/jces.v15i2.493","DOIUrl":"https://doi.org/10.54656/jces.v15i2.493","url":null,"abstract":"I have had the dream to become a physician and specialize in cardiology for about seven years now. As a pre-med undergraduate student at Carleton College, I knew that meant I would have to take the Medical College Admissions Test and organic chemistry, as well as get meaningful clinical experience. However, I had no idea I would also lead community outreach for a project doing archaeological field research in Peru! Although this was not a typical pre-med experience, my time with Dr. Sarah Kennedy’s Proyecto Arqueológico Medio Ambiental (PAMA) in Puno, Peru, was one of the most beneficial experiences I have had during my career.","PeriodicalId":73680,"journal":{"name":"Journal of community engagement and scholarship","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41535573","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mellinee Lesley, Whitney Beach, Elizabeth Stewart, J. Keene
The purpose of this qualitative study was to develop a deeper understanding of what it means to be an engaged scholar by examining reflexive narratives written by university researchers about their experiences conducting participative research. Writing reflexive narratives provided tools that permitted the researchers to parse the types of emotions and assumptions that may lead to unspoken and even unconscious bias in research. Implications for utilizing reflexive narratives in engaged scholarship research are discussed.
{"title":"Reflexive Narratives as a Tool to Confront University Researcher Roles in Engaged Scholarship","authors":"Mellinee Lesley, Whitney Beach, Elizabeth Stewart, J. Keene","doi":"10.54656/jces.v15i2.471","DOIUrl":"https://doi.org/10.54656/jces.v15i2.471","url":null,"abstract":"The purpose of this qualitative study was to develop a deeper understanding of what it means to be an engaged scholar by examining reflexive narratives written by university researchers about their experiences conducting participative research. Writing reflexive narratives provided tools that permitted the researchers to parse the types of emotions and assumptions that may lead to unspoken and even unconscious bias in research. Implications for utilizing reflexive narratives in engaged scholarship research are discussed.","PeriodicalId":73680,"journal":{"name":"Journal of community engagement and scholarship","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44205962","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
S. Naher, Jen Nickelson, Kayla P. Patel, Armandeep Singh, Heidi Darbo
New and enhanced partnerships are crucial for harnessing resources and exchanging knowledge, particularly for university student groups with limited resources and networking opportunities. The objective of this paper is to address the value of a student-community partnership and illustrate factors that have contributed to the partnership’s success, using a framework developed by the Gallup Corporation that describes characteristics of strong relationships. This paper further addresses the specific challenges posted by the COVID-19 pandemic within this student-community partnership. Using this process helped to explain why the partnership was successful and highlighted opportunities for continued relationship building. The lessons learned from this experience will strengthen and enhance future community-engagement initiatives.
{"title":"Building a Student Organization–Voluntary Health Agency Partnership—and Maintaining It During the COVID-19 Pandemic","authors":"S. Naher, Jen Nickelson, Kayla P. Patel, Armandeep Singh, Heidi Darbo","doi":"10.54656/jces.v15i2.503","DOIUrl":"https://doi.org/10.54656/jces.v15i2.503","url":null,"abstract":"New and enhanced partnerships are crucial for harnessing resources and exchanging knowledge, particularly for university student groups with limited resources and networking opportunities. The objective of this paper is to address the value of a student-community partnership and illustrate factors that have contributed to the partnership’s success, using a framework developed by the Gallup Corporation that describes characteristics of strong relationships. This paper further addresses the specific challenges posted by the COVID-19 pandemic within this student-community partnership. Using this process helped to explain why the partnership was successful and highlighted opportunities for continued relationship building. The lessons learned from this experience will strengthen and enhance future community-engagement initiatives.","PeriodicalId":73680,"journal":{"name":"Journal of community engagement and scholarship","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-02-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41535925","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Systems thinking can shed light on important relationships and conditions that affect community engagement activities. While robust tools like the community capitals framework and the sustainable livelihoods approach provide valuable context for engagement projects, additional insights can stem from models that describe the ebb and flow of different types of capital. This paper uses a well-studied ecosystem model called adaptive renewal (AR) to contextualize heritage-related challenges and opportunities in four rural communities on the Canadian prairies. Based on a reflective case-study analysis, we applied the AR model to focus group and semistructured interview data collected as part of a Museums Association of Saskatchewan (MAS) project aimed at using local heritage assets to build sociocultural and environmental capacity and attract investment. The MAS project identified four themes that could be addressed through training and policy changes, including concerns about funding, limited human resources, a lack of public services, and a desire to preserve and build on memories. By mapping each community onto the AR model, we uncovered additional insights about community resilience and other heritage-related challenges and opportunities. The AR model is likely to be a valuable tool for planning or assessing community engagement projects because it reflects the dynamic nature of socioeconomic and cultural relationships that affect community dynamics and local well-being.
{"title":"Rural Community Engagement for Heritage Conservation and Adaptive Renewal","authors":"G. Sutter, L. O'Malley, Tobias Sperlich","doi":"10.54656/jces.v15i2.497","DOIUrl":"https://doi.org/10.54656/jces.v15i2.497","url":null,"abstract":"Systems thinking can shed light on important relationships and conditions that affect community engagement activities. While robust tools like the community capitals framework and the sustainable livelihoods approach provide valuable context for engagement projects, additional insights can stem from models that describe the ebb and flow of different types of capital. This paper uses a well-studied ecosystem model called adaptive renewal (AR) to contextualize heritage-related challenges and opportunities in four rural communities on the Canadian prairies. Based on a reflective case-study analysis, we applied the AR model to focus group and semistructured interview data collected as part of a Museums Association of Saskatchewan (MAS) project aimed at using local heritage assets to build sociocultural and environmental capacity and attract investment. The MAS project identified four themes that could be addressed through training and policy changes, including concerns about funding, limited human resources, a lack of public services, and a desire to preserve and build on memories. By mapping each community onto the AR model, we uncovered additional insights about community resilience and other heritage-related challenges and opportunities. The AR model is likely to be a valuable tool for planning or assessing community engagement projects because it reflects the dynamic nature of socioeconomic and cultural relationships that affect community dynamics and local well-being.","PeriodicalId":73680,"journal":{"name":"Journal of community engagement and scholarship","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-02-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48036524","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
David A. Hibler, C. Krause-Parello, Brian Gliba, James Morris, C. D. Mullins
Community-engaged research must reflect the uniqueness of the specific community involved. To help researchers produce quality community-engaged research with the veteran community, the authors of this paper (a coalition of both veterans and academic researchers) have highlighted essential considerations when engaging the veteran community in the research enterprise. Research with veterans requires unique sensitivity based on the impacts of their military service, history, and experiences. Understanding the impacts of veteran culture and community on recruitment is an essential prerequisite for anyone engaging with this population. At a minimum, community-engaged researchers should have an understanding of veteran history in relation to research, how veterans have experienced “volunteering” while under the chain of command, the impacts of a veteran’s military experience, and veterans’ views of the research process. The element most crucial to a successful research project conducted with the veteran community is incorporating veterans as full research team members. Building a veteran-centered research team requires academic researchers to establish trust with veteran team members and the veteran community, to conduct the research project with respect, and to actively encourage veterans’ participation in project activities. All of these are facilitated by having veterans as full members of a research team. It is our hope that sharing the lessons we have learned through working with veteran communities, as well as our lived experiences as veteran research team members, will help pave a smoother path forward for others wishing to conduct impactful veteran-centered research.
{"title":"Joining Forces with Veterans: Veterans’ and Researchers’ Perspectives on Veteran-Centered Engagement Practices","authors":"David A. Hibler, C. Krause-Parello, Brian Gliba, James Morris, C. D. Mullins","doi":"10.54656/jces.v15i2.463","DOIUrl":"https://doi.org/10.54656/jces.v15i2.463","url":null,"abstract":"Community-engaged research must reflect the uniqueness of the specific community involved. To help researchers produce quality community-engaged research with the veteran community, the authors of this paper (a coalition of both veterans and academic researchers) have highlighted essential considerations when engaging the veteran community in the research enterprise. Research with veterans requires unique sensitivity based on the impacts of their military service, history, and experiences. Understanding the impacts of veteran culture and community on recruitment is an essential prerequisite for anyone engaging with this population. At a minimum, community-engaged researchers should have an understanding of veteran history in relation to research, how veterans have experienced “volunteering” while under the chain of command, the impacts of a veteran’s military experience, and veterans’ views of the research process. The element most crucial to a successful research project conducted with the veteran community is incorporating veterans as full research team members. Building a veteran-centered research team requires academic researchers to establish trust with veteran team members and the veteran community, to conduct the research project with respect, and to actively encourage veterans’ participation in project activities. All of these are facilitated by having veterans as full members of a research team. It is our hope that sharing the lessons we have learned through working with veteran communities, as well as our lived experiences as veteran research team members, will help pave a smoother path forward for others wishing to conduct impactful veteran-centered research.","PeriodicalId":73680,"journal":{"name":"Journal of community engagement and scholarship","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44198066","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Community Engagement Studios (CE Studios) are consultative sessions designed to provide community feedback on all stages of the research process from design to dissemination. CE Studios allow researchers to examine ways to enhance clinical and translational research by engaging with community members. Community members who are part of the patient population or target audience are defined as community experts. The purpose of this study is to examine community experts’ attitudes, desires, and understanding of research resulting from their participation in CE Studios. We conducted thematic analysis across three separate questions. Ten major themes emerged from the data: involvement, togetherness, trust, value, confidence, community engagement, community connectedness, encouraging others to participate, increasing knowledge and awareness, and respect. One overarching theme of inclusion was also presented in the data. Results indicate that CE Studios provide a space for community experts to gain a better understanding of the multifaceted research process, provide insight into ways to target historically excluded populations, and increase experts’ trust, confidence, and respect for researchers and the research process. Moreover, community experts felt connected to their community by participating in CE Studios and expressed interest in encouraging others to participate. Research studies should capitalize on CE Studios as a strategy to engage community members throughout the research process. Future research should determine whether CE Studios serve as a springboard to other leadership roles for community members and whether patient engagement models have a greater impact on patients and communities of color, rural environments, and other patient populations.
{"title":"A Thematic Analysis of the Impact of Community Engagement Studios on Community Experts’ Attitudes, Desires, and Understanding of Research","authors":"Chioma Kas-Osoka, Tiffany Israel, A. Ahonkhai","doi":"10.54656/jces.v15i2.490","DOIUrl":"https://doi.org/10.54656/jces.v15i2.490","url":null,"abstract":"Community Engagement Studios (CE Studios) are consultative sessions designed to provide community feedback on all stages of the research process from design to dissemination. CE Studios allow researchers to examine ways to enhance clinical and translational research by engaging with community members. Community members who are part of the patient population or target audience are defined as community experts. The purpose of this study is to examine community experts’ attitudes, desires, and understanding of research resulting from their participation in CE Studios. We conducted thematic analysis across three separate questions. Ten major themes emerged from the data: involvement, togetherness, trust, value, confidence, community engagement, community connectedness, encouraging others to participate, increasing knowledge and awareness, and respect. One overarching theme of inclusion was also presented in the data. Results indicate that CE Studios provide a space for community experts to gain a better understanding of the multifaceted research process, provide insight into ways to target historically excluded populations, and increase experts’ trust, confidence, and respect for researchers and the research process. Moreover, community experts felt connected to their community by participating in CE Studios and expressed interest in encouraging others to participate. Research studies should capitalize on CE Studios as a strategy to engage community members throughout the research process. Future research should determine whether CE Studios serve as a springboard to other leadership roles for community members and whether patient engagement models have a greater impact on patients and communities of color, rural environments, and other patient populations.","PeriodicalId":73680,"journal":{"name":"Journal of community engagement and scholarship","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45702016","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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