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Supporting the Bereaved in the COVID-19 Era: A Scoping Review of Interventions. 支持COVID-19时代的丧亲之痛:干预措施的范围审查。
IF 1.3 Pub Date : 2026-03-01 Epub Date: 2023-11-24 DOI: 10.1177/00302228231215478
Heidi Mueller, Inge B Corless, Jessica G Bell, Ruthmarijke Smeding, Patricia Anewalt, Debbie Kerslake, Geok Ling Lee, Gerry Cox, Danai Papadatou, Alison Penny, Carl B Becker, Stephen R Connor

People whose family member(s) friend(s) have died from COVID-19 or other causes have been deeply affected by the physical and social restrictions imposed during the pandemic. These limitations have affected end-of-life care and support for the bereaved. The purpose of this review is to identify: the published studies of evaluated programs about interventions for people who have experienced bereavement during the COVID-19 pandemic, and to develop recommendations for researchers and policy makers. Using scoping review methodology, a literature review was undertaken for articles published from January 1, 2020 through February 28, 2023 to identify interventions shown to be beneficial to people who have experienced the death of loved ones during the COVID-19 pandemic. The search yielded 1588 articles of which three studies met the criteria of utilizing a pre and post-test design with only one of these, a randomized controlled trial. The interventions included in this review demonstrate preliminary efficacy.

家庭成员或朋友因COVID-19或其他原因死亡的人深受疫情期间施加的身体和社会限制的影响。这些限制影响了对丧亲者的临终关怀和支持。本综述的目的是确定已发表的关于COVID-19大流行期间经历丧亲之痛的人干预措施的评估项目的研究,并为研究人员和政策制定者提出建议。采用范围审查方法,对2020年1月1日至2023年2月28日发表的文章进行了文献审查,以确定对在COVID-19大流行期间经历亲人死亡的人有益的干预措施。我们检索了1588篇文章,其中有3篇研究符合使用前后测试设计的标准,其中只有一项是随机对照试验。本综述中纳入的干预措施显示出初步的疗效。
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引用次数: 0
The Current Status of Bereavement Care in Chinese Emergency Departments: A Multicenter Cross-Sectional Study. 中国急诊科的丧亲关怀现状:一项多中心横断面研究。
IF 1.3 Pub Date : 2026-03-01 Epub Date: 2023-12-28 DOI: 10.1177/00302228231224550
Yingxin Peng, Haoming Wu, Junjie Tao, Yuchuan Wang, Min Zhang, Ping Huang

Understanding the current status and challenges of bereavement care will help facilitate the development of bereavement care in the emergency department. However, little is known about the status of bereavement care in Chinese emergency departments and nurses' perceptions of bereavement care. We used a self-made questionnaire to survey 124 head nurses and 870 emergency nurses in 21 hospitals in Jiangsu Province in September 2023. Among 124 emergency departments, 78 (62.90%) emergency departments provided bereavement care strategies, and the most frequent strategy was a waiting room, relevant information on funeral arrangements and the establishment of a relatively secluded environment conducive to the solace of the patient's family, or the provision of a dedicated farewell chamber. Emergency nurses believed that bereavement care is important but difficult to implement, with support resources, environment and human resources being the main challenges. In the future, further attention should be paid to the development of bereavement care in the emergency department, and the implementation of bereavement care should be supported in terms of policies, funds, resources and personnel.

了解丧亲关怀的现状和挑战有助于促进急诊科丧亲关怀的发展。然而,人们对中国急诊科丧亲关怀的现状和护士对丧亲关怀的看法知之甚少。2023 年 9 月,我们采用自制问卷调查了江苏省 21 家医院的 124 名护士长和 870 名急诊护士。在124个急诊科中,有78个(62.90%)急诊科提供了丧亲关怀策略,最常见的策略是设立等候室、提供丧事安排的相关信息和建立有利于患者家属慰藉的相对隐蔽的环境,或提供专门的告别室。急诊科护士认为,丧亲关怀很重要,但实施起来有一定难度,主要困难在于配套资源、环境和人力资源。今后应进一步重视丧亲关怀在急诊科的开展,从政策、资金、资源、人员等方面支持丧亲关怀的实施。
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引用次数: 0
Death Preparedness: Development and Initial Validation of the Advance Planning Preparedness Scale. 死亡准备:预先计划准备量表的开发和初步验证。
IF 1.3 Pub Date : 2026-03-01 Epub Date: 2023-11-03 DOI: 10.1177/00302228231212998
Renee McLeod-Sordjan

Delayed advance planning and costs of life sustaining treatments at end of life significantly contribute to the economic burden of healthcare. Clinician barriers include perceptions of inappropriate timing, lack of skills in end-of-life communication and viewing readiness as a behavior rather than a death attitude. This study developed and validated a measurement of psychological preparedness for advance directive completion. Confirmatory factor analysis (N = 543) of a 35 item pool (Cronbach α = .96) supported five sub-scales; psychological comfort (α = .87), desire to know (α = .88), thinking (α = .84), willingness (α = .82) and existential reflection (α = .79) with a possible common factor (α = .84). Results suggested significant predictors of completing directives in 30 days included discussion (OR .08, p < .001), preparedness (OR 4.08, p = .03) and uncertainty (OR 4.37, p = .02). APP = 35 is a reliable and valid measure with utility to assess readiness for completion of EOL documents.

提前计划的延迟和生命末期维持治疗的成本大大增加了医疗保健的经济负担。临床医生的障碍包括认为时机不合适、缺乏临终沟通技能以及将准备视为一种行为而非死亡态度。这项研究开发并验证了对提前完成指令的心理准备的测量。对35个项目库(Cronbachα=0.96)的验证性因素分析(N=543)支持五个子量表;心理舒适度(α=0.87)、求知欲(α=0.88)、思维(α=0.84)、意愿(α=0.82)和存在反思(α=0.79),以及可能的共同因素(α=.84)。结果表明,在30天内完成指令的显著预测因素包括讨论(OR.08,p<.001),准备情况(OR 4.08,p=.03)和不确定性(OR 4.37,p=.02)。APP=35是一种可靠有效的衡量标准,可用于评估EOL文件的完成准备情况。
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引用次数: 0
Continuing Bonds in Marriage, Death and Divorce: Conceptual and Clinical Considerations in the Relationship to Self and Spouse. 婚姻、死亡和离婚中的持续纽带:婚姻、死亡和离婚中的持续纽带:与自我和配偶关系中的概念和临床考虑。
IF 1.3 Pub Date : 2026-03-01 Epub Date: 2024-01-16 DOI: 10.1177/00302228241226471
Simon Shimshon Rubin, Alexander Manevich, Einat Yehene

The shift from the detachment model of mourning to the continuing bonds paradigm in bereavement placed relationships to the deceased alongside relationships to the living. This emphasis on the continuation of the connection to the other person after death paradoxically narrowed the gap between relationships in life and after death. We explore and expand the concept of continuing bonds as it is now used in the field of loss and bereavement by comparing spousal relationships in the living, deceased and divorced. The Two-Track Model of Loss and Bereavement is a framework and clinical paradigm that clarifies similarities and differences in these three pair-bond relationships. The focus on continuing bonds adds and deepens theory, clinical and research aspects of assessing spousal relationship for the living as well as the bereaved and divorced.

在丧亲之痛中,从脱离哀悼模式到持续联系模式的转变,将与逝者的关系与与生者的关系放在了一起。这种强调死后与他人联系的持续性,自相矛盾地缩小了生前关系与死后关系之间的差距。我们通过比较生前、逝者和离异者的配偶关系,探索并扩展了目前在丧失和丧亲领域中使用的 "持续纽带 "概念。丧失与丧亲之痛的双轨模型是一个框架和临床范例,它阐明了这三种配偶关系的异同。对持续性纽带的关注增加并深化了评估生者、逝者和离异者配偶关系的理论、临床和研究方面。
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引用次数: 0
The Effect of Mindfulness on Death Escape Acceptance in Young People: Emotion Regulation as a Mediator. 正念对年轻人接受死亡的影响:情绪调节作为中介
IF 1.3 Pub Date : 2026-03-01 Epub Date: 2024-01-20 DOI: 10.1177/00302228241228730
Xin Ye, Yang Li, Qiuyue Zheng, Yang Liu, Shizhen Yan, Qiaoping Lian, Yicong Lin, Xiayan Chen, Liangliang Chen, Tao Liu

Few studies have examined young people's attitudes toward death escape acceptance and its relationship to mindfulness. This study addressed this issue and examined the mediating role of emotion regulation. In Study 1, 61 undergraduate students aged 19-22 years participated in a mindfulness intervention program, and the results showed that increasing young people's levels of mindfulness could improve their attitudes toward death escape acceptance. The Study 2, which recruited 440 young people aged 18-26 years to complete a cross-sectional survey, replicated the main effect and showed that young people's difficulty in emotion regulation fully mediated the coping effect of mindfulness. These findings suggest that individuals with high levels of mindfulness may have low levels of difficulty in emotion regulation and in turn promote healthy attitudes toward death escape acceptance.

很少有研究探讨年轻人对死亡逃生的接受态度及其与正念的关系。本研究探讨了这一问题,并研究了情绪调节的中介作用。在研究1中,61名19-22岁的本科生参加了正念干预项目,结果显示,提高年轻人的正念水平可以改善他们对死里逃生的接受态度。研究2招募了440名18-26岁的年轻人完成横断面调查,结果重复了主效应,并显示年轻人在情绪调节方面的困难完全介导了正念的应对效应。这些研究结果表明,正念水平高的人可能在情绪调节方面有较低的困难,进而促进对死里逃生的健康接受态度。
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引用次数: 0
Transition Milestones, Psychological Distress, and Suicidal Ideation Among Transgender Adults: A Structural Equation Analysis. 变性成年人的过渡里程碑、心理困扰和自杀意念:结构方程分析
IF 1.3 Pub Date : 2026-03-01 Epub Date: 2023-12-08 DOI: 10.1177/00302228231221308
Hugh Klein, Thomas A Washington

Purpose: This paper examines the relationships among transition milestones (i.e., transition-related events in transgender persons' lives that demarcate their life circumstances before vs. afte a milestone was reached), psychological distress, and suicidal ideation in a large sample of transgender adults.

Methods: Data from the 2015 U.S. National Transgender Survey were used to examine 11 specific transition milestones in a sample of 27,715 transgender Americans aged 18 or older. The Kessler-6 scale was used to measure psychological distress and a dichotomous measure of suicidal ideation during the past year was the other main outcome measure. Covariates in the multivariate analysis included demographic measures, variables assessing support and discrimination, and 11 transition milestones.

Results: Bivariate analyses revealed that, in almost all instances, reaching specific transition milestones led to reduced psychological distress and diminished odds of suicidal ideation. Multivariate analysis revealed that psychological distress was a strong predictor of suicidal ideation, but transition milestones were not retained in the final model. Structural equation analysis showed that three specific transition milestones (namely, changing one's name and/or gender on legal documents, taking gender-affirming hormones, having had any gender-conforming surgical procedures) influenced suicidal ideation indirectly, through their direct impact on psychological distress.

Conclusions: Reaching specific transition milestones plays an important role in many transgender adults' lives, and may be highly beneficial in helping them to reduce psychological distress. This, in turn, is likely to have a positive impact upon their likelihood of contemplating suicide.

目的:本文研究了变性成年人大样本中过渡里程碑(即变性人生活中与过渡相关的事件,这些事件划分了他们在达到里程碑之前和之后的生活状况)、心理困扰和自杀意念之间的关系:方法:利用 2015 年美国全国变性人调查的数据,对 27715 名年龄在 18 岁或以上的美国变性人样本中的 11 个特定过渡里程碑进行了研究。Kessler-6量表用于测量心理困扰,另一个主要结果测量指标是过去一年中自杀意念的二分法测量。多变量分析中的协变量包括人口统计学测量、评估支持和歧视的变量以及 11 个过渡里程碑:双变量分析表明,几乎在所有情况下,达到特定的过渡里程碑都会减少心理困扰和自杀倾向。多变量分析显示,心理困扰是预测自杀倾向的一个重要因素,但过渡里程碑并没有被保留在最终模型中。结构方程分析表明,三个特定的转型里程碑(即在法律文件上更改姓名和/或性别、服用性别确认激素、接受过任何性别成形手术)通过对心理困扰的直接影响,间接影响了自杀意念:达到特定的变性里程碑在许多变性成人的生活中发挥着重要作用,并可能对帮助他们减少心理困扰大有裨益。这反过来可能会对他们考虑自杀的可能性产生积极影响。
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引用次数: 0
Experiences of Next-of-Kin to Foreign-Born Dying Patients Cared for in Specialist Palliative Care: A Qualitative Study. 在专科姑息关怀机构接受治疗的外国出生临终病人的近亲的经历:定性研究。
IF 1.3 Pub Date : 2026-03-01 Epub Date: 2023-12-21 DOI: 10.1177/00302228231224000
Maria E Carlsson, Katarina Hjelm

Earlier studies have shown that healthcare personnel in specialized palliative care see patients with migrant backgrounds as others and that they, as providers, are unable to provide culturally competent care. Thus, these studies indicate a taken for granted perception, instead of knowledge based on experiences or scientific knowledge. The objectives of this study were to explore preferences, expectations on and experiences of specialist palliative care from next-of-kin of migrants of different origin. This study used a qualitative methodology, and the data were analyzed with systematic text condensation. The interviews were based on semi-structured interviews with seven next-of-kin. Four code groups represented the next-of kin's experiences: The wishes and needs of the foreign-born person in a palliative phase form the care; The families' prerequisites for, and the impact of, palliative informal caregiving; The staff working in accordance with a palliative care approach; Palliative care in a seamless care chain.

早前的研究表明,专业姑息关怀的医护人员将有移民背景的患者视为他人,而他们作为提供者却无法提供文化上胜任的关怀。因此,这些研究表明了一种理所当然的观念,而不是基于经验或科学知识的认识。本研究的目的是探讨不同血统移民的近亲对专科姑息关怀的偏好、期望和体验。本研究采用了定性方法,并对数据进行了系统的文本压缩分析。访谈基于对七位近亲的半结构化访谈。四个代码组代表了近亲的经历:在姑息关怀阶段,外国出生者的愿望和需求;家庭对非正式姑息关怀的先决条件和影响;按照姑息关怀方式工作的工作人员;无缝关怀链中的姑息关怀。
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引用次数: 0
Corrigendum to "Fatalism and Suicidal Behaviors Among Chinese College Students: The Mediating Role of Depressive Symptoms and the Moderating Role of Coping Strategies". 中国大学生的宿命论与自杀行为:抑郁症状的中介作用和应对策略的调节作用》更正:抑郁症状的中介作用和应对策略的调节作用》。
IF 1.3 Pub Date : 2026-03-01 Epub Date: 2023-12-23 DOI: 10.1177/00302228231223869
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引用次数: 0
The Sound of Grief: A Critical Discussion on the Experience of Creating and Listening to the Digitally Reproduced Voice of the Deceived. 悲伤之声关于创作和聆听数码再现的被欺骗者的声音的体验的批判性讨论。
IF 1.3 Pub Date : 2026-03-01 Epub Date: 2024-01-04 DOI: 10.1177/00302228231225273
Silvia Francesca Maria Pizzoli, Laura Vergani, Dario Monzani, Ludovica Scotto, Clizia Cincidda, Gabriella Pravettoni

Technological tools allow for the reproduction and control of peculiar stimuli, such as the possibility of producing audio clips with the voices of deceased people. Artificial intelligence allows to create at-home vocal messages from an audioclip. Recently, some videos and documentaries depicting people interacting with artificial intelligence content related to the deceased have been released to the general public. However, the possibility of interacting with realistic stimuli related to deceased loved ones can create peculiar and delicate experiences and should gain the attention of the scientific community and mental health professionals. Listening and searching for experiences related to the deceived ones might indicate a natural way to elaborate and live the experience of grieving or the presence of symptoms related to more severe conditions. Moreover, such powerful stimuli might be potentially harmful to users, if not appropriately used. To the best of our knowledge, no scientific literature exists on the topic of listening to audio clips with the voice of the deceased yet, although various people shared thoughts and feelings about these habits on social networks and forums. Given the relevant psychological impact that grief can have on a person, an open discussion on the possibility and risks of the availability of digital stimuli related to grief should be taken into account by the scientific community.

技术工具可以复制和控制奇特的刺激,例如可以用逝者的声音制作音频剪辑。人工智能可以通过音频剪辑在家制作声音信息。最近,一些描述人们与与逝者有关的人工智能内容互动的视频和纪录片已向公众发布。然而,与已故亲人相关的现实刺激物进行互动的可能性会产生奇特而微妙的体验,应引起科学界和心理健康专业人士的注意。聆听和寻找与被欺骗者有关的体验可能是一种自然的方式,可以让人详细了解和体验悲伤的经历或出现与更严重情况有关的症状。此外,如果使用不当,这种强大的刺激可能会对使用者造成潜在伤害。据我们所知,尽管许多人在社交网络和论坛上分享了关于这些习惯的想法和感受,但目前还没有关于聆听带有逝者声音的音频片段这一主题的科学文献。鉴于悲伤可能对人的心理产生的相关影响,科学界应考虑就提供与悲伤有关的数字刺激的可能性和风险进行公开讨论。
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引用次数: 0
A Two-Phase Qualitative Enquiry Into Storytelling's Potential to Support Palliative Care Patient-Led Change, Using a Systematic Review Approach. 采用系统回顾方法,分两个阶段对讲故事支持姑息关怀患者主导变革的潜力进行定性调查。
IF 1.3 Pub Date : 2026-03-01 Epub Date: 2024-01-09 DOI: 10.1177/00302228231223270
Amanda Roberts

A terminal diagnosis can diminish an individual's sense of agency and identity. Leading change appears to restore a sense of agential self. The first phase of this literature review explores factors influencing patient-led change across the palliative care ecosystem. The second phase illuminates how storytelling can support palliative care patients in leading ecosystem-wide change. 35 studies were identified in Phase 1 and 36 in Phase 2. This research highlights the need to situate patient leadership activity within a palliative care ecosystem to understand factors likely to support or hinder patient leadership activity within it. The evidence indicates the potential use of storytelling to support patients with a life-limiting illness to lead change across the palliative care ecosystem. This challenges current conceptualisations of such patients and offers them instead as an additional source of palliative care support.

临终诊断会削弱个人的能动性和认同感。领导变革似乎可以恢复患者的自我意识。本文献综述的第一阶段探讨了整个姑息关怀生态系统中影响患者主导变革的因素。第二阶段阐明了讲故事如何支持姑息关怀患者领导整个生态系统的变革。第一阶段确定了 35 项研究,第二阶段确定了 36 项研究。这项研究强调了将病人领导活动置于姑息关怀生态系统中的必要性,以了解可能支持或阻碍病人领导活动的因素。有证据表明,可以利用讲故事的方式来支持患有局限生命疾病的患者领导整个姑息关怀生态系统的变革。这挑战了目前对这类病人的概念,并将他们作为姑息关怀支持的额外来源。
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引用次数: 0
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