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Mentoring in Palliative Medicine: Guiding Program Design through Thematic Analysis of Mentoring in Internal Medicine between 2000 and 2015 姑息医学辅导:基于2000 - 2015年内科辅导专题分析的指导方案设计
Pub Date : 2017-09-11 DOI: 10.4172/2165-7386.1000318
M. Ikbal, Jingting Wu, M. T. Wahab, R. Kanesvaran, L. Krishna
Background: Mentoring in Palliative Medicine is critical to training, career satisfaction and professional development. Yet, there are no accounts of effective mentoring programs in Palliative Medicine. This gap is attributed to a failure to define mentoring practice and a lack of acknowledgment of mentoring’s context-specific, goal-sensitive, mentee-, mentor- and organizational-dependent nature that has hindered effective review of mentoring programs. Objective: Drawing upon similarities between training in Palliative Medicine and Internal Medicine, this thematic analysis seeks to identify common themes in prevailing mentoring programs in Internal Medicine that can guide the design of mentoring programs in Palliative Medicine. Design: A thematic review of literature reviews, systematic reviews and meta-analyses featured in PubMed, ERIC, Cochrane Database of Systematic Reviews, OVID and Science Direct databases and published in English between 1st January 2000 and 31st December 2015 involving mentoring in Internal Medicine was carried out. Results: 466 abstracts were retrieved, 17 full-text reviews evaluated and 7 reviews included. Thematic analysis revealed 9 themes: common features within definitions of mentoring, characteristics of mentoring relationships, the mentoring approach, facets of the mentoring process, desired characteristics/actions of a mentor and mentee, benefits and drawbacks of mentoring and differences between undergraduate and postgraduate mentoring. Conclusions: Common themes highlight the importance of nurturing personalized mentoring relationships and addressing the different goals of mentoring in undergraduate and postgraduate settings. Supportive mentoring environments can be provided through host organizations that help in selecting, training and supporting mentees and mentors to meet clearly defined goals.
背景:姑息医学指导对培训、职业满意度和职业发展至关重要。然而,在姑息医学中,并没有有效的指导计划。这一差距归因于未能定义辅导实践,以及缺乏对辅导的特定背景、目标敏感、受试者、导师和组织依赖性的认识,阻碍了对辅导计划的有效审查。目的:利用姑息医学培训和内科学培训之间的相似性,本主题分析旨在确定内科学主流辅导项目中的共同主题,以指导姑息医学辅导项目的设计。设计:对PubMed、ERIC、Cochrane System reviews数据库、OVID和Science Direct数据库中的文献综述、系统综述和荟萃分析进行了主题综述,这些文献在2000年1月1日至2015年12月31日期间以英文发表,涉及内科学指导。结果:检索到466篇摘要,评价了17篇全文综述,收录了7篇综述。专题分析揭示了9个主题:辅导定义中的共同特征、辅导关系的特征、辅导方法、辅导过程的各个方面、导师和被学员的期望特征/行动、辅导的好处和缺点以及本科生和研究生辅导之间的差异。结论:共同的主题突出了培养个性化辅导关系的重要性,并解决了本科生和研究生环境中辅导的不同目标。可以通过主办组织提供支持性辅导环境,帮助选择、培训和支持学员和导师,以实现明确的目标。
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引用次数: 20
Quality of Life Outcomes in Patients with Breast Cancer in an Amazon City: The Impact of Breast Reconstruction 亚马逊城市乳腺癌患者的生活质量:乳房重建的影响
Pub Date : 2017-09-05 DOI: 10.4172/2165-7386.1000317
A. Rêgo, Larissa Daniele Machado Góes, C. Almeida, A. Ribeiro, Camila Alves Corrêa Neiva, L. S. Rêgo
Introduction: Malignant neoplasms are considered a public health problem due to the high rates of morbidity and mortality presented worldwide, particularly those associated with breast cancer. Methods: This is a qualitative exploratory study that included 32 volunteers affected by breast cancer who were followed up at a public brazilian hospital in Macapa city. The volunteers were divided into two groups: group 1 (n=16) consisting of mastectomized volunteers and group 2 (n=16) by mastectomized volunteers with breast reconstruction; both groups were evaluated using the SF-36 (Medical Outcomes Study 36). Results: The results showed that mastectomized women without breast reconstruction presented a very low level of quality of life and those who did breast reconstruction presented better mean scores in all aspects evaluated when compared to the group without reconstruction (except in the social aspect, p>0.05). However, even those with breast reconstruction had an important impact in all areas of the quality of life questionnaire. Conclusions: The domains analysis made it possible to understand the negative impact that mastectomy and breast reconstruction have on the woman's life, besides noting that the maintenance of an esthetic state closer to normality is determinant for the quality of life of these women. However, new studies must be carried out to obtain statistically more relevant values.
简介:恶性肿瘤被认为是一个公共卫生问题,因为全世界的发病率和死亡率很高,尤其是与癌症相关的恶性肿瘤。方法:这是一项定性探索性研究,包括32名受癌症影响的志愿者,他们在马卡帕市的巴西公立医院接受了随访。志愿者被分为两组:第一组(n=16)由切除乳房的志愿者组成,第二组(n=6)由切除乳腺并进行乳房重建的志愿者组成;两组均使用SF-36(医学结果研究36)进行评估。结果:结果显示,与未进行乳房重建的组相比,未进行乳房再造的乳房切除术妇女的生活质量非常低,而进行乳房再造者在所有方面的平均得分都更好(除了社会方面,p>0.05)。然而,即使是那些进行乳房重建的人,在生活质量问卷的所有领域都有重要影响。结论:领域分析使我们有可能了解乳房切除术和乳房重建对女性生活的负面影响,此外还指出,保持更接近正常的审美状态是这些女性生活质量的决定因素。然而,必须进行新的研究,以获得统计上更相关的值。
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引用次数: 0
Palliative Care, A Reel Challenge in Income and Middle Countries. Example of Morocco 缓和医疗:中等收入国家面临的严峻挑战。摩洛哥的例子
Pub Date : 2017-09-01 DOI: 10.4172/2165-7386.1000316
H. Ettahri, N. Berrada, A. Tahir, Mustapha Elkabous, H. Mrabti, H. Errihani
The essence of palliative care is to provide health services for managing patient’s symptoms, reduce their pain, and improve their quality of life. In Morocco, the incidence of cancer is increasing; around 50% of patients are diagnosed at advanced stage. For the majority of them, only palliative treatment and pain relief can be considered. This article is interested on the current situation and challenges of palliative care in Morocco. Currently only three centers devoted to palliative care are functional in Morocco, in Rabat and Casablanca with very restricted bed capacity. The area of coverage is very restricted and palliative care services can be provided by medical or radian oncologists affected in different region of the country, which still insufficient. National Cancer Prevention and Control Plan (NCPCP) make the promotion of palliative care as an important and strategic element of healthcare system, the objective is to be aligned on the WHO recommendations to ensure palliative care and pain treatment for all Moroccans whose need it.
姑息治疗的本质是提供健康服务来管理患者的症状,减轻他们的疼痛,提高他们的生活质量。在摩洛哥,癌症的发病率正在上升;大约50%的患者被诊断为晚期。对于他们中的大多数人来说,只能考虑姑息治疗和疼痛缓解。本文对摩洛哥姑息治疗的现状和挑战感兴趣。目前,摩洛哥只有三个致力于姑息治疗的中心在拉巴特和卡萨布兰卡运作,床位非常有限。覆盖范围非常有限,姑息治疗服务可以由该国不同地区的医学或放射肿瘤学家提供,但这仍然不够。国家癌症预防和控制计划(NCCP)将促进姑息治疗作为医疗保健系统的一个重要战略要素,其目标是与世界卫生组织的建议保持一致,以确保为所有有需要的摩洛哥人提供姑息治疗和疼痛治疗。
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引用次数: 0
Nurses' Knowledge and Practice toward Gynecologic Oncology Palliative Care 护士对妇科肿瘤姑息治疗的认识与实践
Pub Date : 2017-07-31 DOI: 10.4172/2165-7386.1000315
Fatma Uslu-Şahan, Fusun Terzioğlu
Objectives: Gynecologic cancers are the second main reasons for morbidity in women following breast cancer in Turkey and globally. The majority of patients with gynecologic cancer experience recurrence and die despite aggressive treatment. Because of this, patients with gynecologic cancers remain an ideal population for palliative care. Nurses are an essential part of the palliative care team in providing high standards of care since they spend the longest time with patients. The aim of the study to assess knowledge, practice and opinions about barriers toward palliative care among nurses working in gynecologic oncology units. Methods: The cross-sectional survey-based study was conducted nurses (N=65) working in six tertiary care hospitals’ gynecologic oncology units in Ankara Province in Turkey. For data collection a survey was used. The descriptive statistics were used in data analysis. Results: It was determined that 52.3% of the nurses did not receive any knowledge regarding palliative care. The knowledge nurses received was mostly about communication skills (96.8%), pain management (96.8%) and symptom control (96.8%). It was found that 73.8% of the nurses did not talk about death with patients and their families. One of the most common barriers faced by nurses was opioid phobia experienced by patients (66.2%) and healthcare professionals (41.5%). Conclusions The current study indicates the need for wider coverage of palliative care in the education of preservice and in-service nurses to increase their knowledge and therefore practice. This education needs to be comprehensive in covering the basic principles of palliative care and symptom management and it should be distributed throughout the different courses to discuss palliative care within different contexts, such as gynecologic oncology setting.
目的:妇科癌症是土耳其和全球妇女发病率仅次于乳腺癌的第二大主要原因。大多数妇科癌症患者经历复发和死亡,尽管积极的治疗。正因为如此,妇科癌症患者仍然是姑息治疗的理想人群。护士是姑息治疗团队提供高标准护理的重要组成部分,因为他们与患者相处的时间最长。本研究的目的是评估妇科肿瘤科护士对姑息治疗障碍的知识、实践和意见。方法:对土耳其安卡拉省6家三级医院妇科肿瘤科的护士(N=65)进行横断面调查。为了收集数据,采用了调查方法。资料分析采用描述性统计方法。结果:52.3%的护士对姑息治疗知识一无所知。护士获得的知识主要是沟通技巧(96.8%)、疼痛管理(96.8%)和症状控制(96.8%)。73.8%的护士未与患者及家属谈论死亡。护士面临的最常见障碍之一是患者(66.2%)和医疗保健专业人员(41.5%)经历过阿片类药物恐惧症。结论当前的研究表明,需要在职前和在职护士的教育中扩大姑息治疗的覆盖范围,以增加他们的知识和实践。这种教育需要全面涵盖姑息治疗和症状管理的基本原则,并应分布在不同的课程中,以讨论不同背景下的姑息治疗,例如妇科肿瘤设置。
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引用次数: 9
Unrecognized Familial Cancer Syndromes in Hospice Patients - A Precious, butFleeting Opportunity for Recognition and Testing 临终关怀病人中未被识别的家族性癌症综合征-一个宝贵的,但转瞬即逝的识别和测试机会
Pub Date : 2017-07-25 DOI: 10.4172/2165-7386.1000311
H. Homler, Earl L. Smith
Howard Homler1* and Earl L Smith2 1Medical Director, Interim Healthcare Hospice, Associate Volunteer Clinical Faculty, UC Davis Medical Center, University of California at Davis Medical School, USA 2Visiting Nurse Services Hospice, New York, USA *Corresponding author: Howard Homler, Medical Director, Interim Healthcare Hospice, Associate Volunteer Clinical Faculty, UC Davis Medical Center, University of California at Davis Medical School, USA; Tel: (916) 962-2035; E-mail: hhomler@ix.netcom.com
Howard Homler1*和Earl L Smith2美国加州大学戴维斯医学院加州大学戴维斯分校医学中心临时医疗保健临终关怀中心副志愿者临床系医学主任2访问护士服务临终关怀中心,美国纽约*通讯作者:Howard Hohler,加州大学戴维斯医疗中心临时医疗护理临终关怀中心医学主任,美国加州大学戴维斯医学院;电话:(916)962-2035;电子邮件:hhomler@ix.netcom.com
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引用次数: 0
Physical and Functional Limitations in US Older Cancer Survivors 美国老年癌症幸存者的身体和功能局限性
Pub Date : 2017-07-25 DOI: 10.4172/2165-7386.1000312
Prachi P. Chavan, Satish K. Kedia, Xinhua Yu
Objective: The ability to independently perform daily activities is a crucial component of quality of life among older cancer survivors. However, many cancer survivors face difficulties performing their daily activities for living an independent life. The purpose of this study was to evaluate whether physical and functional status significantly decreased in cancer survivors compared to people without cancer. Methods: The Medicare Current Beneficiary Survey (MCBS) is a nationally representative longitudinal study for the entire aged Medicare beneficiaries. Data from 2006 to 2010 were used for analysis of this study. Design-based descriptive analysis and logistic models with adjusted survey weights were performed. To ensure comparability between cancer and non-cancer older adults, propensity score weighting was developed using logistic regressions. Results: The final sample consisted of 11,533 participants. Cancer survivors had more limitations compared to non-cancer individuals: physical limitations (23.3% vs. 19.7%, p=0.006), activity daily living limitations (ADL) (7.7% vs. 5.8%, p=0.02), and instrumental activity of daily living limitations (IADL) (13.5% vs. 11.0%, p=0.02. The odds ratio (OR) for cancer survivors compared to non-cancer individuals was 1.62 (95% CI: 1.28-2.06) for physical limitations, 1.08 (95% CI: 0.72-1.62) for ADL, and 1.30 (95% CI: 0.97-1.73) for IADL. There was a one year lag in functional limitations resulting in one year loss of physical capabilities among cancer survivors. However, these differences between cancer and non-cancer participants decreased over the follow-up year (p=0.01). Conclusion: Cancer survivors have higher prevalence of physical and functional limitations compared to noncancer individuals. Such disparities in functional limitations impact the independent functioning of these survivors. Healthcare professionals need to recognize potential for debilitating functional abilities among cancer survivors and address their needs. Our findings extend our understanding of the burden of physical and functional limitations in cancer survivors and call for action from health care providers.
目的:独立进行日常活动的能力是老年癌症幸存者生活质量的重要组成部分。然而,许多癌症幸存者在独立生活的日常活动中面临困难。这项研究的目的是评估癌症幸存者的身体和功能状况是否与未患癌症的人相比显著下降。方法:医疗保险当前受益人调查(MCBS)是一项针对整个老年医疗保险受益人的具有全国代表性的纵向研究。本研究使用了2006年至2010年的数据进行分析。进行了基于设计的描述性分析和具有调整调查权重的逻辑模型。为了确保癌症和非癌症老年人之间的可比性,使用逻辑回归开发了倾向得分权重。结果:最终样本由11533名参与者组成。与非癌症患者相比,癌症幸存者有更多的局限性:身体局限性(23.3%对19.7%,p=0.006)、日常生活活动限制(ADL)(7.7%对5.8%,p=0.02)和日常生活工具活动限制(IADL)(13.5%对11.0%,p=0.02)。癌症幸存者与非癌症患者相比,身体限制的OR为1.62(95%CI:1.28-2.06),ADL的OR为1.08(95%CI:0.72-1.62),IADL的OR为1.30(95%CI:0.97-1.73)。癌症幸存者的功能限制滞后一年,导致体能丧失一年。然而,癌症和非癌症参与者之间的这些差异在随访的一年中有所减少(p=0.01)。结论:与非癌症个体相比,癌症幸存者的身体和功能限制患病率更高。这种功能限制方面的差异影响了这些幸存者的独立功能。医疗保健专业人员需要认识到癌症幸存者削弱功能能力的潜力,并解决他们的需求。我们的研究结果扩展了我们对癌症幸存者身体和功能限制负担的理解,并呼吁医疗保健提供者采取行动。
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引用次数: 12
Prevalence of Coding Z515 Diagnosis in Cancer Patients and Relationship between Treatment and Cost in Songklanagarind Hospital, Hat Yai, Songkhla 宋卡县Hat Yai市Songklanagarind医院肿瘤患者Z515编码诊断患病率及治疗与费用关系
Pub Date : 2017-07-24 DOI: 10.4172/2165-7386.1000313
Orapan Fumaneeshoat
Introduction: Code Z515, which indicates palliative care, is a part of the International Classification of Diseases and Related Health Problems (ICD). At present, this diagnostic code is still rarely used although the number of patients requiring palliative care is increasing. So many patients forfeit their right to access the best palliative care and all that it entails. Objectives: To determine the prevalence of the code Z515 diagnostis according to ICD-10 in patients diagnosed with cancer as well as the relationship between treatment and costs in Songklanagarind Hospital. Methods: A retrospective descriptive study on patients diagnosed with code Z515 in Songklanagarind Hospital between 2012 and 2016 was conducted. We collected data from our hospital information system (HIS) and divided into 2 groups, In and outpatients department. Then we recorded data using extraction forms. We analyzed the data using percentages, 95% CI and odds ratios. Results: Prevalence of diagnosis with code Z515 in cancer patients was 1.7 × 10-3 for both in- and outpatients. For outpatients, patients who received radiation and combined treatment were 9.4 and 26.5 times, respectively, to incur medical costs in the range of 4,001 to 6,000 THB (118-177 USD) compared with patients who received supportive treatment or had no cost. The results shows no relationship between the number of medications taken and cost among inpatients, there was no observable difference in statistical significance The same was true for the relationship between treatment and costs as well. Conclusion: Study found a very low prevalence of coding Z515 use. Although we know that all cancer patients should receive the best palliative care, the greater their benefit from this type of treatment, the Z515 diagnosis remains less pervasive than it should be.
代码Z515表示姑息治疗,是《国际疾病和相关健康问题分类》(ICD)的一部分。目前,尽管需要姑息治疗的患者数量正在增加,但这种诊断代码仍然很少使用。因此,许多患者丧失了获得最佳姑息治疗的权利及其所需的一切。目的:了解Songklanagarind医院根据ICD-10诊断的癌症患者中Z515编码诊断的患病率以及治疗与费用的关系。方法:对2012年至2016年Songklanagarind医院诊断为代码Z515的患者进行回顾性描述性研究。我们从医院信息系统(HIS)中收集数据,并将数据分为两组:住院部和门诊部。然后我们使用提取表格记录数据。我们使用百分比、95% CI和优势比分析数据。结果:肿瘤患者Z515编码在门诊和门诊的检出率为1.7 × 10-3。在门诊患者中,与接受支持治疗或无费用的患者相比,接受放疗和联合治疗的患者的医疗费用分别为9.4倍和26.5倍,在4,001至6,000泰铢(118-177美元)之间。结果显示,住院患者用药次数与费用之间无显著性差异,治疗次数与费用之间无显著性差异。结论:研究发现编码Z515的使用率非常低。虽然我们知道所有的癌症患者都应该接受最好的姑息治疗,但他们从这种治疗中获益越多,Z515的诊断仍然不那么普遍。
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引用次数: 0
Bowel Management: Constipation among Patients with Cancer 肠道管理:癌症患者的便秘
Pub Date : 2017-07-17 DOI: 10.4172/2165-7386.1000310
W. Younes, L. Tawalbeh
Constipation has a negative effect on patients with cancer and their families. It negatively affects the quality of life terms of physical, social, psychological, and spiritual dimensions. The aim of this paper was to review the studies that addressed constipation among patients with cancer and to explore its influence on the quality of life and wellbeing for patients and their families. Completed studies were identified through systematic search using Cumulative index for Nursing and Applied Health Literature, EBSCO Host, Ovid Journal and PubMed. This search located the studies that were published between 1989 and 2015 about constipation effect, pathophysiology, assessment and management. The review identified 44 studies and indicated that constipation has negative effect on QOL among patient with cancer and their families. Various assessment and management constipation tools and strategies were used according to patient’s health condition. Pharmacological and non-pharmacological methodologies were used to manage constipation. Appropriate assessment has a positive impact on effective management of constipation among patients with cancer; that may help improve the quality of life. Nurses play a significant role in performing comprehensive assessment strategies to detect the risk factor for constipation and applying the prevention precaution to reduce opportunity of its occurrence. Nurses should perform constipation management strategies that include both pharmacological and non-pharmacological approaches.
便秘对癌症患者及其家属有负面影响。它对身体、社会、心理和精神层面的生活质量产生了负面影响。本文的目的是回顾癌症患者便秘的研究,并探讨其对患者及其家人生活质量和幸福感的影响。使用《护理与应用健康文献累积索引》、《EBSCO宿主》、《Ovid期刊》和《PubMed》进行系统检索,确定已完成的研究。这项搜索定位了1989年至2015年间发表的关于便秘影响、病理生理学、评估和管理的研究。该综述确定了44项研究,并指出便秘对癌症患者及其家属的生活质量有负面影响。根据患者的健康状况,使用各种评估和管理便秘的工具和策略。采用药理学和非药理学方法治疗便秘。适当的评估对癌症患者便秘的有效管理有积极影响;这可能有助于提高生活质量。护士在实施综合评估策略以检测便秘的危险因素并采取预防措施以减少便秘发生的机会方面发挥着重要作用。护士应执行便秘管理策略,包括药物和非药物方法。
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引用次数: 2
Physician Moral Distress and End-of-Life Physician-Parent Communication and Care 医师道德困境与临终医师父母沟通与关怀
Pub Date : 2017-07-03 DOI: 10.4172/2165-7386.1000308
L. B. Bateman
Objective: By exploring perspectives of pediatric specialists on end-of-life (EOL) communication and care through narrative interviews, we aim to examine the extent to which interactions about death lead to feelings of moral distress. Methods: 17 pediatric emergency medicine and pediatric critical care physicians practicing in a 380-bed academic children’s medical center in the southeast went through 2 rounds of narrative interviews. The overarching interview question in Phase I was: “How has your background influenced the way you communicate with and care for dying children and their families?” The data generated from the interviews in Phase I led to additional questions and topics for exploration in Phase II. Grounded theory informed the design of this study and analysis of the data. Results: Although most participants felt that EOL decisions were the families’ jurisdiction, the physicians described experiencing moral distress in some cases, especially when they felt they were forced to put the parents’ prerogatives over the child-patients’ best interests. Moral distress ensued from observing other physicians withdrawing life-sustaining care too soon, from parents prolonging care contrary to what these physicians thought were the child best interests, and issues surrounding resuscitation and organ donation. Conclusion: Research indicates that physician burnout is more prevalent among those physicians in palliative care who feel inadequately trained in communication skills. In addition to promoting better patient care, more education and training in communication and EOL issues may prevent physician moral distress which can decrease physician burnout and ensure more efficacious humane patient care.
目的:通过叙述性访谈,探讨儿科专家对临终沟通和护理的看法,我们旨在检验关于死亡的互动在多大程度上导致道德痛苦感。方法:对在东南部一家拥有380张床位的儿童医学中心执业的17名儿科急诊医学和儿科重症监护医生进行两轮叙述性访谈。第一阶段的首要采访问题是:“你的背景如何影响你与垂死儿童及其家人沟通和照顾的方式?”第一阶段采访产生的数据为第二阶段的探索带来了更多的问题和主题。基础理论为本研究的设计和数据分析提供了依据。结果:尽管大多数参与者认为EOL的决定是家庭的管辖权,但医生描述了在某些情况下经历的道德痛苦,尤其是当他们觉得被迫将父母的特权置于儿童患者的最大利益之上时。观察到其他医生过早地撤回维持生命的护理,父母违背这些医生认为的儿童最大利益延长护理,以及围绕复苏和器官捐赠的问题,道德上的痛苦随之而来。结论:研究表明,在那些感觉沟通技能培训不足的姑息治疗医生中,医生倦怠更为普遍。除了促进更好的患者护理外,在沟通和EOL问题上进行更多的教育和培训可以防止医生的道德痛苦,这可以减少医生的倦怠感,并确保更有效的人性化患者护理。
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引用次数: 0
PATIENTS ATTITUDES TOWARDS ADVANCE CARE PLANNING: COMPARISON OF HIGH INCOME ECONOMIES VERSUS LOW INCOME ECONOMIES 患者对预先护理计划的态度:高收入经济体与低收入经济体的比较
Pub Date : 2017-06-27 DOI: 10.4172/2165-7386-C1-008
E. Wekesa
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引用次数: 0
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Journal of palliative care & medicine
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