Pub Date : 2018-12-21DOI: 10.15406/jpnc.2018.08.00364
Aakash Pandita
Respiratory distress accounts for almost 40% of admissions to Neonatal intensive care unit.1 The respiratory distress syndrome (RDS) and transient tachypnea of Newborn (TTN) are the most common cause of respiratory distress in the preterm and term neonates respectively.2 Chest X-rays are the cornerstone for the diagnosis of respiratory distress (RD). However, distinguishing RDS and TTN may be difficult during the first 24h after birth. Besides, x-rays are not safe for a newborn who is still undergoing maturation. Chest radiography is still the investigation of choice to evaluate the cause of RD in the neonates. However radiography findings are not always diagnostic, it has been shown to be inaccurate in many situations.3 In addition, chest X-ray itself has a wide intraand inter-observer variability and requires expensive equipment. The adverse effects of irradiation are higher among the Neonates and may be more pronounced in preterms.4 The potential weakness of bedside radiography is explainable by its principle: three dimensions are reduced to two. A CT scan could resolve many of these issues but involves transporting potentially unstable patients out of the department, larger radiation doses (typically 200 times that of a CXR), and the use of contrast makes it unsuitable for routine use in neonates. To circumvent these limitations, ultrasound lung may be a useful tool for the differential diagnosis of RD in newborns. The aim of this study was to determine the diagnostic accuracy of LUS in the evaluation of RDS and TTN in comparison to clinical and chest X ray diagnosis
{"title":"Diagnostic ability of bedside lung Ultrasound in neonates with respiratory distress","authors":"Aakash Pandita","doi":"10.15406/jpnc.2018.08.00364","DOIUrl":"https://doi.org/10.15406/jpnc.2018.08.00364","url":null,"abstract":"Respiratory distress accounts for almost 40% of admissions to Neonatal intensive care unit.1 The respiratory distress syndrome (RDS) and transient tachypnea of Newborn (TTN) are the most common cause of respiratory distress in the preterm and term neonates respectively.2 Chest X-rays are the cornerstone for the diagnosis of respiratory distress (RD). However, distinguishing RDS and TTN may be difficult during the first 24h after birth. Besides, x-rays are not safe for a newborn who is still undergoing maturation. Chest radiography is still the investigation of choice to evaluate the cause of RD in the neonates. However radiography findings are not always diagnostic, it has been shown to be inaccurate in many situations.3 In addition, chest X-ray itself has a wide intraand inter-observer variability and requires expensive equipment. The adverse effects of irradiation are higher among the Neonates and may be more pronounced in preterms.4 The potential weakness of bedside radiography is explainable by its principle: three dimensions are reduced to two. A CT scan could resolve many of these issues but involves transporting potentially unstable patients out of the department, larger radiation doses (typically 200 times that of a CXR), and the use of contrast makes it unsuitable for routine use in neonates. To circumvent these limitations, ultrasound lung may be a useful tool for the differential diagnosis of RD in newborns. The aim of this study was to determine the diagnostic accuracy of LUS in the evaluation of RDS and TTN in comparison to clinical and chest X ray diagnosis","PeriodicalId":92678,"journal":{"name":"Journal of pediatrics & neonatal care","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2018-12-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44201739","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-12-13DOI: 10.15406/JPNC.2018.08.00363
Venkatesh M. Annigeri, B. Gadgade, A. Bhuvanesh, S. Desai, Anil B. Halgeri
Urinary catheterization is utilized in the pediatric age group for both diagnostic and therapeutic purposes, such as urine sample collection, monitoring of fluid therapy, clean intermittent catheterization, voiding cystourethrogram. The procedure although safe, is not free of complications, it carries with it range of complications from minor like bleeding, infection to major like perforation and rarely spontaneous catheter knot.1 We report a case of intravesical spontaneous knotting of infant feeding tube in an infant, which is rare complication of urinary catheterization treated successfully by minimal invasive technique.
{"title":"Spontaneous intravesical knotting of urethral catheter in an infant: a rare case","authors":"Venkatesh M. Annigeri, B. Gadgade, A. Bhuvanesh, S. Desai, Anil B. Halgeri","doi":"10.15406/JPNC.2018.08.00363","DOIUrl":"https://doi.org/10.15406/JPNC.2018.08.00363","url":null,"abstract":"Urinary catheterization is utilized in the pediatric age group for both diagnostic and therapeutic purposes, such as urine sample collection, monitoring of fluid therapy, clean intermittent catheterization, voiding cystourethrogram. The procedure although safe, is not free of complications, it carries with it range of complications from minor like bleeding, infection to major like perforation and rarely spontaneous catheter knot.1 We report a case of intravesical spontaneous knotting of infant feeding tube in an infant, which is rare complication of urinary catheterization treated successfully by minimal invasive technique.","PeriodicalId":92678,"journal":{"name":"Journal of pediatrics & neonatal care","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2018-12-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48587852","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-12-10DOI: 10.15406/jpnc.2018.08.00362
E. Babatseva, G. Mitsiakos, Kleanthis Anastasiadis, C. Kepertis, E Papacharalampous, P. Karagianni, E Voziki, G Kyriakeli, Soubasi
Langerhans cell histiocytosis (LCH) is a proliferative disease of macrophage and dendrite cells.1 A separate clinical entity termed congenital self-healing reticulohistiocytosis (CSHRH), also known as HashimotoPritzker disease2,3 is characterized by skin lesions in the newborn period as a single system cutaneous presentation, in an otherwise healthy infant. The skin lesions spontaneously involutes within weeks to a few months.3,4
{"title":"Congenital self-healing reticulohistiocytosis in neonate – a single lesion presentation","authors":"E. Babatseva, G. Mitsiakos, Kleanthis Anastasiadis, C. Kepertis, E Papacharalampous, P. Karagianni, E Voziki, G Kyriakeli, Soubasi","doi":"10.15406/jpnc.2018.08.00362","DOIUrl":"https://doi.org/10.15406/jpnc.2018.08.00362","url":null,"abstract":"Langerhans cell histiocytosis (LCH) is a proliferative disease of macrophage and dendrite cells.1 A separate clinical entity termed congenital self-healing reticulohistiocytosis (CSHRH), also known as HashimotoPritzker disease2,3 is characterized by skin lesions in the newborn period as a single system cutaneous presentation, in an otherwise healthy infant. The skin lesions spontaneously involutes within weeks to a few months.3,4","PeriodicalId":92678,"journal":{"name":"Journal of pediatrics & neonatal care","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2018-12-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46792788","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-11-23DOI: 10.15406/jpnc.2018.08.00361
J. Alba, Laia Morata Alba
The majority begin between 2 and 10 years, corresponding to idiopathic Nephrotic Syndrome (INS) or primary NS in 90%.2 The incidence in paediatric population less than 16 years old is 2-7 new cases per 100,000 children per year, with a prevalence of 15 cases per 100,000 children. It occurs preferably between 2 and 8 years of age, with maximum incidence between 3-5 years. In children it is twice as frequent in males, a difference that does not exist in adolescents and adults.
{"title":"Proteinuria and nephrotic syndrome, how to treat it","authors":"J. Alba, Laia Morata Alba","doi":"10.15406/jpnc.2018.08.00361","DOIUrl":"https://doi.org/10.15406/jpnc.2018.08.00361","url":null,"abstract":"The majority begin between 2 and 10 years, corresponding to idiopathic Nephrotic Syndrome (INS) or primary NS in 90%.2 The incidence in paediatric population less than 16 years old is 2-7 new cases per 100,000 children per year, with a prevalence of 15 cases per 100,000 children. It occurs preferably between 2 and 8 years of age, with maximum incidence between 3-5 years. In children it is twice as frequent in males, a difference that does not exist in adolescents and adults.","PeriodicalId":92678,"journal":{"name":"Journal of pediatrics & neonatal care","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2018-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47747383","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-11-20DOI: 10.15406/jpnc.2018.08.00359
Aless, ro Failo, Mariantonietta Mazzoldi, L. Battisti, L. Pescollderungg, P. Venuti
Daily challenges faced by adolescents diagnosed with cancer are many, and they become even more difficult when the patients are in pain. Both acute (from procedures) and chronic (from cancer itself or treatments) pain has been recognized as one of the most frequent and distressing symptoms in cancer which adversely affects the quality of life and the ability to control one’s own body.1,2 Cancer related pain (in a broader sense) can elicit or is associated to a variety of somatic symptoms such breathlessness, muscle tension, dizziness, palpitation and anxiety.3 It is well known that decreased anxiety in pediatric age is not only associated with decreased distress and pain during invasive medical procedures, but also with less negative attitudes towards future medical procedures and pain episodes.4 It is evident that the main approach in the management of cancer pain in children is surely the pharmacological one, but it could be more efficacious in association with non-pharmacological techniques.5 Among the non-pharmacological approaches, those that include biofeedback (a tool that measures and feeds back information about an individual’s physiological activity) can be very helpful in teaching children through better body control how to manage pain and anxiety, especially when these are related to invasive procedures. In fact, biofeedback affects resonance and oscillations of different feedback loops in the central nervous system6 and when it is delivered together with relaxation therapy or autogenic training seems to be effective in reducing the frequency of pain episodes in the pediatric age.7 Several BiofeedbackAssisted Relaxation Training programs (BART) have been applied in a wide range of pediatric conditions, including Headache,8 Irritable Bowel Syndrome and Functional Abdominal Pain,9 pain in Sickle Cell Disease,10 Burn Jnjury,11 and also for face with anxiety and stress-related medical conditions to learn to relax by the control of physiological reactivity.12 However, to date, little research exists about the use of Biofeedback-based treatments for children with cancer related pain. A good example in this field is the study conducted by Shockey,13 who found that 4-session intervention combining relaxation and biofeedback in a clinical setting may be beneficial to children experiencing procedural distress as a novel coping strategy. Furthermore, over the last decade, new biofeedback tools have been developed with video-game-like technology interfaces. This allows to an immediate experience, in real-time, adapting different kinds of feedback to increase interest and engagement, thus facilitating the learning of deep breathing, heart rate variability (HRV) and muscle relaxation.12
{"title":"A single case study of biofeedback training in an adolescent with cancer-related pain","authors":"Aless, ro Failo, Mariantonietta Mazzoldi, L. Battisti, L. Pescollderungg, P. Venuti","doi":"10.15406/jpnc.2018.08.00359","DOIUrl":"https://doi.org/10.15406/jpnc.2018.08.00359","url":null,"abstract":"Daily challenges faced by adolescents diagnosed with cancer are many, and they become even more difficult when the patients are in pain. Both acute (from procedures) and chronic (from cancer itself or treatments) pain has been recognized as one of the most frequent and distressing symptoms in cancer which adversely affects the quality of life and the ability to control one’s own body.1,2 Cancer related pain (in a broader sense) can elicit or is associated to a variety of somatic symptoms such breathlessness, muscle tension, dizziness, palpitation and anxiety.3 It is well known that decreased anxiety in pediatric age is not only associated with decreased distress and pain during invasive medical procedures, but also with less negative attitudes towards future medical procedures and pain episodes.4 It is evident that the main approach in the management of cancer pain in children is surely the pharmacological one, but it could be more efficacious in association with non-pharmacological techniques.5 Among the non-pharmacological approaches, those that include biofeedback (a tool that measures and feeds back information about an individual’s physiological activity) can be very helpful in teaching children through better body control how to manage pain and anxiety, especially when these are related to invasive procedures. In fact, biofeedback affects resonance and oscillations of different feedback loops in the central nervous system6 and when it is delivered together with relaxation therapy or autogenic training seems to be effective in reducing the frequency of pain episodes in the pediatric age.7 Several BiofeedbackAssisted Relaxation Training programs (BART) have been applied in a wide range of pediatric conditions, including Headache,8 Irritable Bowel Syndrome and Functional Abdominal Pain,9 pain in Sickle Cell Disease,10 Burn Jnjury,11 and also for face with anxiety and stress-related medical conditions to learn to relax by the control of physiological reactivity.12 However, to date, little research exists about the use of Biofeedback-based treatments for children with cancer related pain. A good example in this field is the study conducted by Shockey,13 who found that 4-session intervention combining relaxation and biofeedback in a clinical setting may be beneficial to children experiencing procedural distress as a novel coping strategy. Furthermore, over the last decade, new biofeedback tools have been developed with video-game-like technology interfaces. This allows to an immediate experience, in real-time, adapting different kinds of feedback to increase interest and engagement, thus facilitating the learning of deep breathing, heart rate variability (HRV) and muscle relaxation.12","PeriodicalId":92678,"journal":{"name":"Journal of pediatrics & neonatal care","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2018-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42711289","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-11-20DOI: 10.15406/JPNC.2018.08.00358
A. Ademola, Adebayo Innocent Adogah, Ocheni Ayegba Sunday
Ureteropelvic junction obstruction (UPJO) also known as pelvicureteric junction obstruction (PUJO), is defined as an obstruction of the flow of urine from the renal pelvis to the proximal ureter.1 UPJO is the most common cause of obstructive uropathy (OU) in children and is second only to transient, physiologic nonpathologic hydronephrosis as the most common cause of antenatal hydronephrosis.2 Its anatomic basis is from either an intrinsic or an extrinsic cause. The intrinsic obstruction result from luminal narrowing of the UPJ, with or without kinking, and is characterized by excessive connective tissue and decreased smooth muscle content of the ureteral wall.3 Extrinsic obstruction is by compression of the ureter by anomalous renal vasculature and is commoner in older children and adults.4 The incidence of UPJO is estimated to be 1 in 1500, with a male-to-female ratio of 2:1.5 The left side is commoner with a left-to-right ratio of 1.5:1.6 Bilateral cases of UPJO are also seen in 10% to 40% of neonatal hydronephrosis.2
{"title":"Bilateral ureteropelvic junction obstruction with ureteric stone in a female Nigerian infant: the necessity for renal and urinary tract ultrasound in acute kidney injury running head: bilateral ureteropelvic junction obstruction","authors":"A. Ademola, Adebayo Innocent Adogah, Ocheni Ayegba Sunday","doi":"10.15406/JPNC.2018.08.00358","DOIUrl":"https://doi.org/10.15406/JPNC.2018.08.00358","url":null,"abstract":"Ureteropelvic junction obstruction (UPJO) also known as pelvicureteric junction obstruction (PUJO), is defined as an obstruction of the flow of urine from the renal pelvis to the proximal ureter.1 UPJO is the most common cause of obstructive uropathy (OU) in children and is second only to transient, physiologic nonpathologic hydronephrosis as the most common cause of antenatal hydronephrosis.2 Its anatomic basis is from either an intrinsic or an extrinsic cause. The intrinsic obstruction result from luminal narrowing of the UPJ, with or without kinking, and is characterized by excessive connective tissue and decreased smooth muscle content of the ureteral wall.3 Extrinsic obstruction is by compression of the ureter by anomalous renal vasculature and is commoner in older children and adults.4 The incidence of UPJO is estimated to be 1 in 1500, with a male-to-female ratio of 2:1.5 The left side is commoner with a left-to-right ratio of 1.5:1.6 Bilateral cases of UPJO are also seen in 10% to 40% of neonatal hydronephrosis.2","PeriodicalId":92678,"journal":{"name":"Journal of pediatrics & neonatal care","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2018-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49533131","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-11-20DOI: 10.15406/JPNC.2018.08.00357
Sara de Antonio Feu, I. C. Aguado
The Henoch-Schönlein Purpura (HSP) is the most common type of vasculitis in childhood. 200years ago, William Heberden described the first case in a five-year-old boy with purpuric exanthema, macroscopic hematuria, abdominal pain, bloodys tools and vomiting. In 1837, Johann Schönlein added the joint component and called this entity “rheumatic peliosis” or “Purple rubra” years later, Eduard Heinrish Henoch, student of Schönlein, completed his description.1 The most common clinical manifestations of this entity are: palpable purpura, arthritis, abdominal pain, intestinal bleeding and nephritis, although any organ can be affected. A great number of studies, published between 1960 and 1970, established that IgA had a great role in the pathogenesis of HSP, deposits of IgA were found in the renal mesangium and dermal vessels, also elevated serum concentrations of IgA and circulating immune complexes were found.1
{"title":"Joint disease and Henoch–Schönlein Purpura: a case review","authors":"Sara de Antonio Feu, I. C. Aguado","doi":"10.15406/JPNC.2018.08.00357","DOIUrl":"https://doi.org/10.15406/JPNC.2018.08.00357","url":null,"abstract":"The Henoch-Schönlein Purpura (HSP) is the most common type of vasculitis in childhood. 200years ago, William Heberden described the first case in a five-year-old boy with purpuric exanthema, macroscopic hematuria, abdominal pain, bloodys tools and vomiting. In 1837, Johann Schönlein added the joint component and called this entity “rheumatic peliosis” or “Purple rubra” years later, Eduard Heinrish Henoch, student of Schönlein, completed his description.1 The most common clinical manifestations of this entity are: palpable purpura, arthritis, abdominal pain, intestinal bleeding and nephritis, although any organ can be affected. A great number of studies, published between 1960 and 1970, established that IgA had a great role in the pathogenesis of HSP, deposits of IgA were found in the renal mesangium and dermal vessels, also elevated serum concentrations of IgA and circulating immune complexes were found.1","PeriodicalId":92678,"journal":{"name":"Journal of pediatrics & neonatal care","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2018-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42368493","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-11-16DOI: 10.15406/jpnc.2018.8.00355
A. Garza-Alatorre, V. Rodríguez-Martínez, A. Rodriguez-Sanchez, Deborah Lizeth Nuñez-Elizondo, Jesus Torres-Guevara
Acute kidney injury in post cardiac surgical patients is still considered a high mortality cause in this population. It is most important to identify kidney injury in these patients from the beginning, being a decisive factor for treatment. However, many of the kidney injury classifications are focused on creatinine clearance and serum levels so they are considered late markers for its identification.
{"title":"Early response to furosemide as a kidney injury predictor and peritoneal dialysis in post cardiac surgical patients: a case-controls study","authors":"A. Garza-Alatorre, V. Rodríguez-Martínez, A. Rodriguez-Sanchez, Deborah Lizeth Nuñez-Elizondo, Jesus Torres-Guevara","doi":"10.15406/jpnc.2018.8.00355","DOIUrl":"https://doi.org/10.15406/jpnc.2018.8.00355","url":null,"abstract":"Acute kidney injury in post cardiac surgical patients is still considered a high mortality cause in this population. It is most important to identify kidney injury in these patients from the beginning, being a decisive factor for treatment. However, many of the kidney injury classifications are focused on creatinine clearance and serum levels so they are considered late markers for its identification.","PeriodicalId":92678,"journal":{"name":"Journal of pediatrics & neonatal care","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2018-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46483934","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-11-16DOI: 10.15406/jpnc.2018.08.00356
L. A. Fabré, R. R. Valdés, Rogelio Odales Ibarra, R. García, Hebert Luis Hernández Montiel
Acute viral encephalitis is more common in children (more than 16 cases X 100 000 patients per year) than in adults (3.5-7.4 cases X 100 000 patients per year). Herpetic encephalitis is the most frequent viral encephalitis. The cause is herpes simplex virus type I in adults and type II in neonates. Therefore, if viral encephalitis is suspected, it will be treated as if it were a herpetic one until it is proven otherwise.2
{"title":"Value of the electroencephalogram in viral encephalitis","authors":"L. A. Fabré, R. R. Valdés, Rogelio Odales Ibarra, R. García, Hebert Luis Hernández Montiel","doi":"10.15406/jpnc.2018.08.00356","DOIUrl":"https://doi.org/10.15406/jpnc.2018.08.00356","url":null,"abstract":"Acute viral encephalitis is more common in children (more than 16 cases X 100 000 patients per year) than in adults (3.5-7.4 cases X 100 000 patients per year). Herpetic encephalitis is the most frequent viral encephalitis. The cause is herpes simplex virus type I in adults and type II in neonates. Therefore, if viral encephalitis is suspected, it will be treated as if it were a herpetic one until it is proven otherwise.2","PeriodicalId":92678,"journal":{"name":"Journal of pediatrics & neonatal care","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2018-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46821234","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-11-16DOI: 10.15406/jpnc.2018.08.00353
O. Elshazali, Hafiz Osama Hafiz El Shazali, Eiman Mohamed Ahmed Yousif, H. Osman
Congenital heart disease (CHD) is the most common major congenital anomaly, representing a major global health problem. The incidence is 8 -19 per 1000 birth.1 Congenital heart defects account for one third of babies with significant congenital anomalies diagnosed prenatally or in infancy.2 It has been shown that having an accurate understanding of any chronic condition contributes to improved satisfaction with medical care, less distress, less confusion, better compliance with treatment and an improved emotional state.3 Specifically for children with CHD, parents having a sound knowledge of their child’s condition, treatment and prevention of complications has been shown to promote better health related behaviour in their child by bettering their understanding of the cardiac problem, improving compliance with treatment and avoiding risky behaviour.4 It is fundamental for patient engagement that they be health literate. This is more than just being able to read and understand health information it is about empowering them to exercise their autonomy. Patients with low health literacy have been shown to have poorer health status, are less likely to adhere to the treatment regimen and self-care plans, higher rates of hospital admission, experience more treatment and drug errors, and make less use of preventive services and measures.5 Recently there have been a massive improvement in therapy for congenital heart disease , both surgically and catheter based, despite this improvement several recent studies have shown that understanding of illness by children, adolescents, and adults with congenital heart disease remains far from ideal.4
{"title":"\"Parent’s knowledge about diagnosis and management of their children with congenital heart diseases in Khartoum, Sudan \"","authors":"O. Elshazali, Hafiz Osama Hafiz El Shazali, Eiman Mohamed Ahmed Yousif, H. Osman","doi":"10.15406/jpnc.2018.08.00353","DOIUrl":"https://doi.org/10.15406/jpnc.2018.08.00353","url":null,"abstract":"Congenital heart disease (CHD) is the most common major congenital anomaly, representing a major global health problem. The incidence is 8 -19 per 1000 birth.1 Congenital heart defects account for one third of babies with significant congenital anomalies diagnosed prenatally or in infancy.2 It has been shown that having an accurate understanding of any chronic condition contributes to improved satisfaction with medical care, less distress, less confusion, better compliance with treatment and an improved emotional state.3 Specifically for children with CHD, parents having a sound knowledge of their child’s condition, treatment and prevention of complications has been shown to promote better health related behaviour in their child by bettering their understanding of the cardiac problem, improving compliance with treatment and avoiding risky behaviour.4 It is fundamental for patient engagement that they be health literate. This is more than just being able to read and understand health information it is about empowering them to exercise their autonomy. Patients with low health literacy have been shown to have poorer health status, are less likely to adhere to the treatment regimen and self-care plans, higher rates of hospital admission, experience more treatment and drug errors, and make less use of preventive services and measures.5 Recently there have been a massive improvement in therapy for congenital heart disease , both surgically and catheter based, despite this improvement several recent studies have shown that understanding of illness by children, adolescents, and adults with congenital heart disease remains far from ideal.4","PeriodicalId":92678,"journal":{"name":"Journal of pediatrics & neonatal care","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2018-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42863918","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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