Pub Date : 2005-01-01DOI: 10.1177/153331750502000101
C. Rowland
{"title":"Pain, dementia, and treatment","authors":"C. Rowland","doi":"10.1177/153331750502000101","DOIUrl":"https://doi.org/10.1177/153331750502000101","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2005-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86265744","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2005-01-01DOI: 10.1177/153331750502000107
R. Edward
{"title":"2004 Cumulative Author Index","authors":"R. Edward","doi":"10.1177/153331750502000107","DOIUrl":"https://doi.org/10.1177/153331750502000107","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2005-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75026541","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2005-01-01DOI: 10.1177/153331750502000102
D. Kuhn
During recent years the palliative care movement has rapidly extended its domain. Originated in the field of pain management for patients with terminal metastatic cancer, the model of palliative care has now also found application in the care for patients suffering from chronic diseases. To that end a new term was coined: that of non-cancer palliative care . In this book, a collection of contributions to a working conference in the Netherlands, a group of (Roman Catholic) physicians, moral philosophers, and nursing professionals explores the challenges of applying a palliative care policy to the field of care-giving in dementia. The starting point of their reflections is the observation that the traditional conception of bioethics, with its dominant orientation on autonomy and self-determination, is not easily compatible with the practice of caring for people with dementia. According to the authors, this situation can be remedied by appealing to the values of hospice philosophy and palliative care. The book is composed of six parts. A first one on the epidemiological, clinical, and societal aspects of the disease, which includes an interesting chapter on the relation between neuropathology and behavior in connection to issues such as competence and level of (in) dependence on care, is followed by an overview of palliative care as it is administered in Europe and the United States, with a fine chapter by Olde Rikkert (The Netherlands) and Rigaud (France) on hospital-based palliative care. Part three seeks to explore the philosophical and theological concerns central to Alzheimer disease, such as the questions of dignity, autonomy, and embodiment. In part four the more familiar clinical ethics issues are addressed, such as the dilemmas and pitfalls of decision making with regard to incompetent patients, end-of-life care for Alzheimer disease patients, the role of living wills, and the question of euthanasia. Part five deals with organizational ethics and allocation decisions whereas the final part explores the moral aspects of conducting scientific research in peoplewith dementia. One of the core chapters in this compilation is Ten Have’s contribution on the expanding scope of palliative care. Following Pellegrino, he differentiates between a philosophy in and a philosophy of palliative care. The former refers to the assistance ethicists can give to care givers in elucidating specific problems and in helping them to deal with moral dilemmas. The latter refers to the enrichment that the concepts and values of palliative care can provide to (a critical reflection on) bioethics. In this respect the author calls attention to the tendencywithin contemporary bioethics to neglect the human body: in its striving to secure the autonomy of the patient against medical paternalism, bioethics falls victim to the same dualistic anthropology that characterizes medicine. Palliative care and the hospice movement reject this dualism and focus on the essential embodi
{"title":"Book Review: Ethical Foundations of Palliative Care for Alzheimer Disease","authors":"D. Kuhn","doi":"10.1177/153331750502000102","DOIUrl":"https://doi.org/10.1177/153331750502000102","url":null,"abstract":"During recent years the palliative care movement has rapidly extended its domain. Originated in the field of pain management for patients with terminal metastatic cancer, the model of palliative care has now also found application in the care for patients suffering from chronic diseases. To that end a new term was coined: that of non-cancer palliative care . In this book, a collection of contributions to a working conference in the Netherlands, a group of (Roman Catholic) physicians, moral philosophers, and nursing professionals explores the challenges of applying a palliative care policy to the field of care-giving in dementia. The starting point of their reflections is the observation that the traditional conception of bioethics, with its dominant orientation on autonomy and self-determination, is not easily compatible with the practice of caring for people with dementia. According to the authors, this situation can be remedied by appealing to the values of hospice philosophy and palliative care. The book is composed of six parts. A first one on the epidemiological, clinical, and societal aspects of the disease, which includes an interesting chapter on the relation between neuropathology and behavior in connection to issues such as competence and level of (in) dependence on care, is followed by an overview of palliative care as it is administered in Europe and the United States, with a fine chapter by Olde Rikkert (The Netherlands) and Rigaud (France) on hospital-based palliative care. Part three seeks to explore the philosophical and theological concerns central to Alzheimer disease, such as the questions of dignity, autonomy, and embodiment. In part four the more familiar clinical ethics issues are addressed, such as the dilemmas and pitfalls of decision making with regard to incompetent patients, end-of-life care for Alzheimer disease patients, the role of living wills, and the question of euthanasia. Part five deals with organizational ethics and allocation decisions whereas the final part explores the moral aspects of conducting scientific research in peoplewith dementia. One of the core chapters in this compilation is Ten Have’s contribution on the expanding scope of palliative care. Following Pellegrino, he differentiates between a philosophy in and a philosophy of palliative care. The former refers to the assistance ethicists can give to care givers in elucidating specific problems and in helping them to deal with moral dilemmas. The latter refers to the enrichment that the concepts and values of palliative care can provide to (a critical reflection on) bioethics. In this respect the author calls attention to the tendencywithin contemporary bioethics to neglect the human body: in its striving to secure the autonomy of the patient against medical paternalism, bioethics falls victim to the same dualistic anthropology that characterizes medicine. Palliative care and the hospice movement reject this dualism and focus on the essential embodi","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2005-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90621118","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-11-01DOI: 10.1177/153331750401900603
M. Parker, R. E. Bergmark
{"title":"Book Review: Restorative Care Nursing for Older Adults: A Guide for All Care Settings","authors":"M. Parker, R. E. Bergmark","doi":"10.1177/153331750401900603","DOIUrl":"https://doi.org/10.1177/153331750401900603","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89868418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-11-01DOI: 10.1177/153331750401900601
C. Rowland
{"title":"Changes and challenges","authors":"C. Rowland","doi":"10.1177/153331750401900601","DOIUrl":"https://doi.org/10.1177/153331750401900601","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88025940","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-09-01DOI: 10.1177/153331750401900503
M. Parker
{"title":"Book Review: Social Work and Health Care in an Aging Society: Education, Policy, Practice, and Research","authors":"M. Parker","doi":"10.1177/153331750401900503","DOIUrl":"https://doi.org/10.1177/153331750401900503","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74583676","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-09-01DOI: 10.1177/153331750401900501
C. Rowland
{"title":"Medication and nonmedication strategies","authors":"C. Rowland","doi":"10.1177/153331750401900501","DOIUrl":"https://doi.org/10.1177/153331750401900501","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75980797","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-07-01DOI: 10.1177/153331750401900414
M. Parker
{"title":"Book Review: Reflections on Caring for an Aging Parent","authors":"M. Parker","doi":"10.1177/153331750401900414","DOIUrl":"https://doi.org/10.1177/153331750401900414","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79920729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-07-01DOI: 10.1177/153331750401900401
C. Rowland
{"title":"Medications, genetics, and loss","authors":"C. Rowland","doi":"10.1177/153331750401900401","DOIUrl":"https://doi.org/10.1177/153331750401900401","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"91156263","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-07-01DOI: 10.1177/153331750401900415
D. Kuhn
This slender book is exactly what it advertises: a daughter’s guide to coping with the problems of caring for an aging parent. In this case, Lightbody uses unsent letters, journal entries, and highly personal reflections to talk about the long process of caring for her elderly mother with multiple disabilities. The book is intended to examine the impact of this kind of complex caregiving on the person, the family, and the community at large. This is an extremely personal book in which the author freely shares her complicated feelings of joy, anger, disappointment, apathy, sympathy, loss of hope, anger, and love during her caregiving career. The book is written in two parts. Part 1 is written in the form of a personal diary and deals with how Lightbody coped with the role reversal of becoming a “parent” to her own mother. Part 2, the central section, is a collection of unmailed letters to her mother that focus on such topics as her mother’s hearing problems, her blindness, her physical disabilities, her dementia, and her hallucinations. Each of these sections ends with a bulleted list describing ways of dealing with the various issues described. The letters also discuss ways of dealing with difficult people, address the specific financial and legal issues that arise, acknowledge the fact that there simply are no answers to some questions, and describe the many creative ways that Lightbody’s mother provoked guilt in her daughter. In the afterword, Lightbody points out that she wants her book to end on a hopeful, upbeat note. This is difficult, however, in that most of the letters and journal entries were written when the author was experiencing particularly tough spots in the relationship with her mother. A particularly useful feature of this book is the “Notes” section, listing the source of the quotes used throughout the book, and an “Index of Letter Topics,” which allows readers to zero in on a particular area of interest. Audrey Brown Lightbody is now retired in Claremont, California, from a lifetime of ecumenical and administrative ministries at both the local and national levels. Appropriate audiences for this book are clergy, nurses, and social workers seeking to work with elders and their families. Readers should be forewarned that this is not a research or fact-based book, but rather an intensely personal reflection on the frustrations of trying to care for someone in mental and physical decline. The book is well-written, but the content can make for difficult reading at times.
这本薄薄的书正如它所宣传的那样:一本女儿应对照顾年迈父母问题的指南。在这种情况下，Lightbody使用未发送的信件，日记条目和高度个人的反思来谈论照顾她患有多重残疾的年迈母亲的漫长过程。这本书旨在研究这种复杂的护理对个人，家庭和整个社区的影响。这是一本非常私人的书，作者在书中自由地分享了她在护理生涯中喜悦、愤怒、失望、冷漠、同情、失去希望、愤怒和爱的复杂感受。这本书分为两部分。第一部分是以个人日记的形式写的，讲述了Lightbody如何应对角色转换，成为自己母亲的“父母”。第二部分是中心部分，是她写给母亲的未邮寄信件的集合，这些信件集中在她母亲的听力问题、失明、身体残疾、痴呆和幻觉等主题上。每个部分都以一个项目符号列表结束，该列表描述了处理所描述的各种问题的方法。信中还讨论了与难相处的人打交道的方法，解决了出现的具体财务和法律问题，承认了一些问题根本没有答案的事实，并描述了莱特博迪的母亲激发女儿内疚感的许多创造性方法。在后记中，莱特博迪指出，她希望自己的书能以充满希望、乐观的基调结束。然而，这很困难，因为大多数信件和日记都是在作者与母亲关系特别困难的时候写的。这本书的一个特别有用的特点是“注释”部分，列出了整本书中使用的引用的来源，以及“信件主题索引”，它允许读者将注意力集中在感兴趣的特定领域。奥黛丽·布朗·莱特博迪(Audrey Brown Lightbody)在加州克莱蒙特(Claremont)退休，她一生都在地方和国家层面从事基督教和行政工作。适合这本书的读者是神职人员，护士和社会工作者寻求与老人和他们的家庭工作。读者应该事先注意，这不是一本研究或基于事实的书，而是对试图照顾一个身心衰退的人的挫败感的强烈个人反思。这本书写得很好，但内容有时会使人难以阅读。
{"title":"Book Review: Living with Grief: Alzheimer's Disease","authors":"D. Kuhn","doi":"10.1177/153331750401900415","DOIUrl":"https://doi.org/10.1177/153331750401900415","url":null,"abstract":"This slender book is exactly what it advertises: a daughter’s guide to coping with the problems of caring for an aging parent. In this case, Lightbody uses unsent letters, journal entries, and highly personal reflections to talk about the long process of caring for her elderly mother with multiple disabilities. The book is intended to examine the impact of this kind of complex caregiving on the person, the family, and the community at large. This is an extremely personal book in which the author freely shares her complicated feelings of joy, anger, disappointment, apathy, sympathy, loss of hope, anger, and love during her caregiving career. The book is written in two parts. Part 1 is written in the form of a personal diary and deals with how Lightbody coped with the role reversal of becoming a “parent” to her own mother. Part 2, the central section, is a collection of unmailed letters to her mother that focus on such topics as her mother’s hearing problems, her blindness, her physical disabilities, her dementia, and her hallucinations. Each of these sections ends with a bulleted list describing ways of dealing with the various issues described. The letters also discuss ways of dealing with difficult people, address the specific financial and legal issues that arise, acknowledge the fact that there simply are no answers to some questions, and describe the many creative ways that Lightbody’s mother provoked guilt in her daughter. In the afterword, Lightbody points out that she wants her book to end on a hopeful, upbeat note. This is difficult, however, in that most of the letters and journal entries were written when the author was experiencing particularly tough spots in the relationship with her mother. A particularly useful feature of this book is the “Notes” section, listing the source of the quotes used throughout the book, and an “Index of Letter Topics,” which allows readers to zero in on a particular area of interest. Audrey Brown Lightbody is now retired in Claremont, California, from a lifetime of ecumenical and administrative ministries at both the local and national levels. Appropriate audiences for this book are clergy, nurses, and social workers seeking to work with elders and their families. Readers should be forewarned that this is not a research or fact-based book, but rather an intensely personal reflection on the frustrations of trying to care for someone in mental and physical decline. The book is well-written, but the content can make for difficult reading at times.","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80186949","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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