Pub Date : 2004-05-01DOI: 10.1177/153331750401900301
C. Rowland
: This paper discusses the historical context of the NSW AECG and the NSW Aboriginal Education Policy, and emphasises the need for culturally inclusive policies and effective implementation strategies. It also highlights the relationship between Indigenous educational disadvantage and colonisation, demonstrating the need for dominant educational frameworks to be inclusive of Indigenous ways of knowing, being and doing.
{"title":"Practicalities and possibilities","authors":"C. Rowland","doi":"10.1177/153331750401900301","DOIUrl":"https://doi.org/10.1177/153331750401900301","url":null,"abstract":": This paper discusses the historical context of the NSW AECG and the NSW Aboriginal Education Policy, and emphasises the need for culturally inclusive policies and effective implementation strategies. It also highlights the relationship between Indigenous educational disadvantage and colonisation, demonstrating the need for dominant educational frameworks to be inclusive of Indigenous ways of knowing, being and doing.","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79781413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-03-01DOI: 10.1177/153331750401900206
N. Richeson
The disturbing behaviors associated with dementia are a significant problem for older adults, their families, and their caregivers. By the year 2050, the incidence of dementia in the US is expected to climb to 14 million, according to the Alzheimer’s Association. The associated rise in disturbing behaviors will further affect the afflicted’s interpersonal relationships and quality of life, as well as opportunities to experience leisure. Dementia Practice Guidelines for Treating Disturbing Behaviors, a 400-page document, provides a long overdue systematic approach that will help recreational therapists treat these disturbing behaviors. The authors’ focus on the importance of including the best available evidence when formatting treatment decisions distinguishes this text from previous approaches to treatment in recreational therapy. The foundation of the dementia practice guidelines (DPG) is the merging of the Need-Driven DementiaCompromised Behavior (NDB) model and the Neurodevelopmental Sequencing Theory of Prescription (NDSP). The NDB model suggests that the disturbing behaviors of persons with dementia are not a symptom of the disease but rather an unmet need. The NDSP, developed by Buettner in the 1980s, is a comprehensive approach for treating the disturbing behaviors of frail older adults with dementia. While the Omnibus Budget Reconciliation Act of 1987 has long promoted a nonpharmacologic approach to treatment, little has been done to promote alternative treatment interventions. The DPG promotes recreational therapy as the first line of defense, ahead of prescribed psychoactive medication, with its negative side effects. The section on recreational therapy outlines the 10 steps in treating disturbing behaviors, referencing them with appendix materials such as behavior checklists, physician order forms, and evaluation materials. The tools provided in the appendices will ensure a place for the DPG on the practitioner’s desk. Also helpful is a chart of more than 80 protocols that can help the practitioner select the appropriate intervention based on factors such as behavior, stage, level of dementia, and research findings. The criteria for selecting an intervention to decrease a behavior illustrates the application of evidence-based practice. DPG’s literature review incorporates an evidencebased grading system that lets the reader determine the strength of the research. The reference section includes a key to inform the reader if the article is research, literature, national guidelines, or theory. The life work of two researchers, the DPG demonstrates a groundbreaking contribution not just to the therapeutic recreation profession but also to healthcare in general. The focus on evidence-based practice using a nonpharmological approach to treating disturbing behaviors for persons with dementia is an important one. As the authors note, there are many unanswered questions, and for that reason, Dementia Practice Guidelines for Treating Disturbing
{"title":"Book review: Dementia Practice Guidelines for Treating Disturbing Behaviors","authors":"N. Richeson","doi":"10.1177/153331750401900206","DOIUrl":"https://doi.org/10.1177/153331750401900206","url":null,"abstract":"The disturbing behaviors associated with dementia are a significant problem for older adults, their families, and their caregivers. By the year 2050, the incidence of dementia in the US is expected to climb to 14 million, according to the Alzheimer’s Association. The associated rise in disturbing behaviors will further affect the afflicted’s interpersonal relationships and quality of life, as well as opportunities to experience leisure. Dementia Practice Guidelines for Treating Disturbing Behaviors, a 400-page document, provides a long overdue systematic approach that will help recreational therapists treat these disturbing behaviors. The authors’ focus on the importance of including the best available evidence when formatting treatment decisions distinguishes this text from previous approaches to treatment in recreational therapy. The foundation of the dementia practice guidelines (DPG) is the merging of the Need-Driven DementiaCompromised Behavior (NDB) model and the Neurodevelopmental Sequencing Theory of Prescription (NDSP). The NDB model suggests that the disturbing behaviors of persons with dementia are not a symptom of the disease but rather an unmet need. The NDSP, developed by Buettner in the 1980s, is a comprehensive approach for treating the disturbing behaviors of frail older adults with dementia. While the Omnibus Budget Reconciliation Act of 1987 has long promoted a nonpharmacologic approach to treatment, little has been done to promote alternative treatment interventions. The DPG promotes recreational therapy as the first line of defense, ahead of prescribed psychoactive medication, with its negative side effects. The section on recreational therapy outlines the 10 steps in treating disturbing behaviors, referencing them with appendix materials such as behavior checklists, physician order forms, and evaluation materials. The tools provided in the appendices will ensure a place for the DPG on the practitioner’s desk. Also helpful is a chart of more than 80 protocols that can help the practitioner select the appropriate intervention based on factors such as behavior, stage, level of dementia, and research findings. The criteria for selecting an intervention to decrease a behavior illustrates the application of evidence-based practice. DPG’s literature review incorporates an evidencebased grading system that lets the reader determine the strength of the research. The reference section includes a key to inform the reader if the article is research, literature, national guidelines, or theory. The life work of two researchers, the DPG demonstrates a groundbreaking contribution not just to the therapeutic recreation profession but also to healthcare in general. The focus on evidence-based practice using a nonpharmological approach to treating disturbing behaviors for persons with dementia is an important one. As the authors note, there are many unanswered questions, and for that reason, Dementia Practice Guidelines for Treating Disturbing","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85706124","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-03-01DOI: 10.1177/153331750401900207
Elizabeth Hirshom
{"title":"Book Review: Design for Assisted Living: Guidelines for Housing the Physically and Mentally Frail","authors":"Elizabeth Hirshom","doi":"10.1177/153331750401900207","DOIUrl":"https://doi.org/10.1177/153331750401900207","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78549581","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-03-01DOI: 10.1177/153331750401900201
C. Rowland
{"title":"Behaviors and concepts","authors":"C. Rowland","doi":"10.1177/153331750401900201","DOIUrl":"https://doi.org/10.1177/153331750401900201","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82036108","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-01-01DOI: 10.1177/153331750401900101
C. Rowland
{"title":"Memantine, ethics, and behavioral matters","authors":"C. Rowland","doi":"10.1177/153331750401900101","DOIUrl":"https://doi.org/10.1177/153331750401900101","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80257204","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-01-01DOI: 10.1177/153331750401900113
Jan Sharrow
{"title":"Accepting the Challenge","authors":"Jan Sharrow","doi":"10.1177/153331750401900113","DOIUrl":"https://doi.org/10.1177/153331750401900113","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75049843","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-01-01DOI: 10.1177/153331750401900112
S. Albrecht
Studying Greek tragedies, Nelson Mandela noticed that characters were measured upon dealing with difficult situations and that a hero was a person who did not break even under difficult circumstances. This book is about optimism in the face of the tragedy of Alzheimer disease. It illustrates how caregivers become heroes through struggling and transcending the chaos caused by dementia, into a situation in which the dignity of both the patient and the caregiver is preserved. The authors illustrate how in the actual phases of care for a demented patient caregivers can cope with the problems they are confronted with, starting with dealing with the first signs until recovery after the patient’s death. They use the principles of cognitive reframing to illustrate how untapped individual potentials can be used to deal with difficult situations. In the beginning, there is the ambivalence of getting a diagnosis, the “wanting to know” versus the “not wanting to know.” The actual information on the diagnosis causes dual feelings of upsetting on the one hand and relief and validation of expectations on the other hand. The disclosure of the diagnosis is considered to be essential to come to terms with the illness. The patient’s changed behavior can now be defined as an illness, out of the patient’s control. Knowing the diagnosis also enables sharing this information with family and friends, thereby usually decreasing the risk of isolation by hiding the patient. As there is little knowledge about the impact of disclosure of the diagnosis dementia, the cases presented in this book provide insight into the patient’s world. Becoming a caregiver requires adaptations of the premorbid relationship. It is important that the caregiver sees himself or herself as a whole person, an individual with own rights, separate from the patient. Caregivers describe how they were confronted with negative thoughts about dealing with the patient’s illness. It is essential that the caregiver give himself or herself permission to be angry and resentful. These are natural and normal feelings. However, in the communication with the patient, it is better to preserve patient’s dignity instead of arguing. The acknowledgments of negative thoughts and the emotional and practical suggestions to deal with these feelings are very valuable for those involved in caregiving. In the middle stage, competence in memory and other activities is uneven; one moment the patient is quite well another less capable than ever. A major challenge for caregivers is to accommodate and adjust to this disease in such a way that adaptation includes compassion for both themself and the patient. Awareness of the increasing stress and alertness for symptoms of burnout are required. The authors manage to vividly describe this difficult balance, including both the struggle and the victories of the caregivers. The idea through all stages of caregiving, even the late middle stage, is that caregivers have a choice. To mainta
{"title":"Book Review: Staying Connected While Letting Go: The Paradox of Alzheimer's Caregiving","authors":"S. Albrecht","doi":"10.1177/153331750401900112","DOIUrl":"https://doi.org/10.1177/153331750401900112","url":null,"abstract":"Studying Greek tragedies, Nelson Mandela noticed that characters were measured upon dealing with difficult situations and that a hero was a person who did not break even under difficult circumstances. This book is about optimism in the face of the tragedy of Alzheimer disease. It illustrates how caregivers become heroes through struggling and transcending the chaos caused by dementia, into a situation in which the dignity of both the patient and the caregiver is preserved. The authors illustrate how in the actual phases of care for a demented patient caregivers can cope with the problems they are confronted with, starting with dealing with the first signs until recovery after the patient’s death. They use the principles of cognitive reframing to illustrate how untapped individual potentials can be used to deal with difficult situations. In the beginning, there is the ambivalence of getting a diagnosis, the “wanting to know” versus the “not wanting to know.” The actual information on the diagnosis causes dual feelings of upsetting on the one hand and relief and validation of expectations on the other hand. The disclosure of the diagnosis is considered to be essential to come to terms with the illness. The patient’s changed behavior can now be defined as an illness, out of the patient’s control. Knowing the diagnosis also enables sharing this information with family and friends, thereby usually decreasing the risk of isolation by hiding the patient. As there is little knowledge about the impact of disclosure of the diagnosis dementia, the cases presented in this book provide insight into the patient’s world. Becoming a caregiver requires adaptations of the premorbid relationship. It is important that the caregiver sees himself or herself as a whole person, an individual with own rights, separate from the patient. Caregivers describe how they were confronted with negative thoughts about dealing with the patient’s illness. It is essential that the caregiver give himself or herself permission to be angry and resentful. These are natural and normal feelings. However, in the communication with the patient, it is better to preserve patient’s dignity instead of arguing. The acknowledgments of negative thoughts and the emotional and practical suggestions to deal with these feelings are very valuable for those involved in caregiving. In the middle stage, competence in memory and other activities is uneven; one moment the patient is quite well another less capable than ever. A major challenge for caregivers is to accommodate and adjust to this disease in such a way that adaptation includes compassion for both themself and the patient. Awareness of the increasing stress and alertness for symptoms of burnout are required. The authors manage to vividly describe this difficult balance, including both the struggle and the victories of the caregivers. The idea through all stages of caregiving, even the late middle stage, is that caregivers have a choice. To mainta","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82159761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-01-01DOI: 10.1177/153331750401900116
{"title":"2003 Cumulative Subject Index","authors":"","doi":"10.1177/153331750401900116","DOIUrl":"https://doi.org/10.1177/153331750401900116","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76283182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-01-01DOI: 10.1177/153331750401900115
{"title":"2003 Cumulative Author Index","authors":"","doi":"10.1177/153331750401900115","DOIUrl":"https://doi.org/10.1177/153331750401900115","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80375777","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2004-01-01DOI: 10.1177/153331750401900111
Alta F. McDonald
{"title":"Book Review: Losing My Mind: An Intimate Look at Life with Alzheimer's","authors":"Alta F. McDonald","doi":"10.1177/153331750401900111","DOIUrl":"https://doi.org/10.1177/153331750401900111","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2004-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85507424","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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