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Family Caregivers' Experiences of People With Amyotrophic Lateral Sclerosis Undergoing Gastrostomy Tube Feeding. 接受胃管喂养的肌萎缩侧索硬化症患者的家庭护理人员的经历。
Pub Date : 2024-12-01 Epub Date: 2024-09-02 DOI: 10.1097/JNN.0000000000000792
Hyeon Sik Chu, Juyeon Oh

Abstract: INTRODUCTION: In amyotrophic lateral sclerosis (ALS) patients with impaired swallowing function, gastrostomy tube (G-tube) placement is recommended, but significantly increases the caregiving burden on families. This study aimed to describe the experiences of family caregivers of patients with ALS receiving home enteral nutrition through a G-tube. METHOD: Using purposive sampling, 8 family caregivers participated in the study. Data collection was conducted between February 2021 and October 2022 at a university hospital in Seoul, Korea. Semistructured face-to-face interviews were used to collect data until saturation. Data were analyzed using Krippendorff's content analysis approach. RESULTS: Qualitative analysis of the data revealed 3 main themes regarding caregiving. The emerging themes included psychological distress, unmet practical needs, and the struggle to provide care. CONCLUSION: After a G-tube placement, family caregivers experience various emotional stresses and have numerous unmet practical needs. Healthcare professionals caring for people with ALS receiving enteral nutrition should provide a tailored support program that addresses the specific needs of these family caregivers.

摘要:引言:对于吞咽功能受损的肌萎缩侧索硬化症(ALS)患者,建议放置胃造瘘管(G 管),但这会大大增加家庭的护理负担。本研究旨在描述通过 G 管接受家庭肠内营养的 ALS 患者的家庭护理人员的经历。方法:采用目的性抽样,共有 8 位家庭护理人员参与了研究。数据收集于 2021 年 2 月至 2022 年 10 月在韩国首尔的一家大学医院进行。采用半结构式面对面访谈收集数据,直至达到饱和。采用克里彭多夫内容分析法对数据进行分析。结果:对数据的定性分析揭示了有关护理的三大主题。新出现的主题包括心理困扰、未满足的实际需求以及提供护理的挣扎。结论:放置 G 管后,家庭护理人员会经历各种情绪压力,并有许多实际需求未得到满足。照顾接受肠内营养的 ALS 患者的医护人员应针对这些家庭照顾者的特殊需求提供量身定制的支持计划。
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引用次数: 0
Measures and Influencers of Reintegration for the Stroke Patient: A Systematic Review. 中风患者重返社会的措施和影响因素:系统回顾
Pub Date : 2024-12-01 Epub Date: 2024-08-23 DOI: 10.1097/JNN.0000000000000783
Kayla Wynja, Anne W Alexandrov, Mona Newsome Wicks, Ansley Grimes Stanfill

Abstract: BACKGROUND: Stroke survivors may experience continued difficulties with reintegration, including challenges participating in social roles and performing activities of daily living across settings (eg, home, work). This article assessed the reintegration measures currently used in this clinical population, defining factors that most influence reintegration for these persons. METHODS: A systematic review of PubMed, Scopus, and the Cumulative Index to Nursing and Allied Health Literature databases explored reintegration measures and factors influencing reintegration in stroke populations. Study inclusion criteria for this review were as follows: data-based articles (quantitative and qualitative), studies measuring reintegration or examining outcomes of reintegration, participants being adult stroke populations, and studies published in English. The resulting articles were critically analyzed, and common themes regarding barriers, facilitators, and influencers of reintegration were established. RESULTS: A total of 24 articles met the inclusion criteria and were synthesized for use in this systematic review. Across stroke populations, 13 reintegration tools were used. A few factors, including residual stroke impairments, unmet needs, social support, and sociodemographic characteristics, are currently known to influence reintegration for this population. CONCLUSION: Reintegration must be uniformly defined and measured to best support stroke survivors, and further investigation into influential factors is critical to advance this goal. This review defines current assessments and factors influencing reintegration within stroke populations. Achieving these goals is critical to optimizing reintegration efforts and designing quality-of-life-improving nursing interventions for affected persons.

摘要:背景:脑卒中幸存者在重新融入社会方面可能会持续遇到困难,包括在参与社会角色和跨环境(如家庭、工作)进行日常生活活动方面的挑战。本文评估了目前用于这一临床人群的重返社会措施,并确定了对这些人重返社会影响最大的因素。方法: 对 PubMed、Scopus 和《护理与联合健康文献累积索引》数据库进行了系统综述,探讨了中风患者的重返社会措施和影响重返社会的因素。本综述的研究纳入标准如下:基于数据的文章(定量和定性)、衡量重返社会或检查重返社会结果的研究、参与者为成年中风人群以及以英语发表的研究。对所得文章进行批判性分析,并确定有关重返社会的障碍、促进因素和影响因素的共同主题。结果:共有 24 篇文章符合纳入标准,经综合后纳入本系统综述。在中风人群中,共使用了 13 种重返社会工具。目前已知的影响该人群重返社会的因素包括中风残余损伤、未满足的需求、社会支持和社会人口特征。结论:必须对重返社会进行统一的定义和测量,才能为中风幸存者提供最佳支持,而进一步调查影响因素对实现这一目标至关重要。本综述定义了目前对中风人群重返社会的评估和影响因素。实现这些目标对于优化重返社会工作和为患者设计提高生活质量的护理干预措施至关重要。
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引用次数: 0
The Nursing Lens Contribution to Neurology, Neurosurgery, and Neurocritical Care. 护理镜头对神经内科、神经外科和神经重症监护的贡献。
Pub Date : 2024-12-01 Epub Date: 2024-10-18 DOI: 10.1097/JNN.0000000000000797
DaiWai M Olson
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引用次数: 0
Empowered Family-Centered Care: Our Story. 以家庭为中心的赋权式护理:我们的故事。
Linda L Pierce, Julie L Smith, Scott W Pierce, Edna R Smith
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引用次数: 0
Clinical Effectiveness of Multimodal Exercise Combined With Supportive Music and Imagery in the Management of Poststroke Mood Disorders. 多模式运动结合辅助音乐和想象在治疗脑卒中后情绪障碍中的临床效果。
Yu-Cui Mao, Hui-Hua Li, Sheng Tao, Wei-Wei Zhang, Liu-Hong Zhang, De-Qin Geng, Neng Ren, Li-Yan Gao

Abstract: BACKGROUND: The objective of this study is to investigate the clinical effectiveness of the combination of multimodal exercise (MME) with supportive music and imagery in the management of poststroke mood disorders (PSMD). METHODS: A total of 200 PSMD patients treated in the neurology department of a tertiary hospital in Jiangsu Province were enrolled. They were assigned to either a control group or the observation group using a random number table at a 1:1 ratio, with 100 patients in each group. The control group received conventional nursing care, and the observation group received both MME and music and imagery in addition to the conventional nursing interventions. The scores of the 10-item Kessler Psychological Distress Scale (K10), Hospital Anxiety and Depression Scale (HADS), and Well-being Index Scale (WBIS) were recorded before and 3, 6, and 9 months after the interventions and compared between the 2 groups. RESULTS: Changes in K10, HADS, and WBIS scores significantly differed between the 2 groups after interventions (all P < .05) and among different time points (all P < .05). There were interactions between the time points of the K10, HADS, and WBIS assessments and the intervention methods in both groups ( P < .05). The improvements in anxiety or depression and psychological distress in the observation group were significantly superior to those in the control group. CONCLUSION: MME combined with music and imagery can effectively improve anxiety and depression, reduce symptoms of psychological distress, and improve well-being in PSMD patients.

摘要:背景:本研究旨在探讨多模式运动(MME)与支持性音乐和意象相结合治疗卒中后心境障碍(PSMD)的临床效果。方法:本研究共招募了 200 名在江苏省一家三甲医院神经内科接受治疗的 PSMD 患者。采用随机数字表法按 1:1 的比例将他们分配到对照组或观察组,每组 100 人。对照组接受常规护理,观察组在常规护理干预的基础上同时接受 MME 和音乐与意象治疗。记录干预前和干预后 3、6、9 个月的 10 项凯斯勒心理压力量表(K10)、医院焦虑抑郁量表(HADS)和幸福指数量表(WBIS)的得分,并对两组进行比较。结果:两组患者在干预后K10、HADS和WBIS评分的变化有显著差异(均为P < .05),不同时间点之间也有显著差异(均为P < .05)。在两组中,K10、HADS 和 WBIS 评估的时间点与干预方法之间存在交互作用(P < .05)。观察组在焦虑或抑郁以及心理困扰方面的改善明显优于对照组。结论:MME 与音乐和意象相结合可有效改善 PSMD 患者的焦虑和抑郁,减轻心理困扰症状,提高幸福感。
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引用次数: 0
Improving Safety and Satisfaction in the Safety Monitoring Unit. 提高安全监察科的安全性和满意度。
Pub Date : 2024-10-01 Epub Date: 2024-06-17 DOI: 10.1097/JNN.0000000000000772
Dani Lynn Welch

Abstract: BACKGROUND: The safety monitoring unit (SMU) is a 4-bed unit designated for patients who require continual observation. Most experience some form of dementia, and agitation and aggression are not uncommon. When deescalation techniques do not work, request for help may be necessary. Referred to as Security Alert: Behavioral Assist (SABA), this system-wide message requires response from designated personnel. An increase in SABA events prompted this quality improvement project. METHODS: A survey sent to all unit staff members identified a need for specialized training on the care and management of SMU patients. Education on dementia care and deescalation techniques was provided by a certified dementia specialist and a psychiatry advanced practice registered nurse. Staff expressed a need for defined SMU admission criteria and the establishment of patient care guidelines. Patient care guidelines were developed. A structured schedule was implemented, and dedicated staff were hired to provide familiarity for patients. RESULTS: A postproject survey indicated a nonsignificant increase in staff satisfaction. Security Alert: Behavioral Assist events in the SMU decreased from an average of 3.6 to 1.75 episodes per month. CONCLUSION: Caring for SMU patients creates unique challenges to staff. Staff confidence and satisfaction were higher after implementing new SABA policies. This project could be replicated on similar units with ongoing leadership support and staff education.

摘要:背景:安全监控病房(SMU)是一个拥有 4 张床位的病房,专为需要持续观察的病人而设。大多数患者都患有某种形式的痴呆症,激动和攻击行为并不少见。当缓和技巧不起作用时,可能需要请求帮助。这一全系统信息被称为 "安全警报:行为协助(SABA)",要求指定人员做出响应。SABA 事件的增加促成了这一质量改进项目。方法:通过对所有病房工作人员进行调查,发现他们需要接受有关 SMU 患者护理和管理的专门培训。一名获得认证的痴呆症专家和一名精神科高级执业注册护士提供了痴呆症护理和降级技巧方面的教育。工作人员表示需要制定明确的 SMU 入院标准和病人护理指南。制定了病人护理指南。实施了结构化的时间表,并聘请了专职人员为患者提供熟悉的服务。结果:项目结束后的调查显示,员工的满意度没有显著提高。安全警报:SMU 的行为协助事件从平均每月 3.6 次减少到 1.75 次。结论:护理 SMU 病人给员工带来了独特的挑战。实施新的 SABA 政策后,员工的信心和满意度都有所提高。在领导层的持续支持和员工教育下,该项目可在类似科室推广。
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引用次数: 0
Impact of Illness Uncertainty on Health-Related Quality of Life in Patients With Unruptured Intracranial Aneurysms After Coil Embolization. 未破裂颅内动脉瘤患者线圈栓塞术后病情不确定性对健康相关生活质量的影响
Pub Date : 2024-10-01 Epub Date: 2024-06-21 DOI: 10.1097/JNN.0000000000000771
JiEun Lee, SukJeong Lee

Abstract: BACKGROUND: This study aimed to identify the impact of illness uncertainty on physical and mental health-related quality of life (HRQoL) in patients with unruptured intracranial aneurysms (UIAs) after coil embolization. METHODS: A cross-sectional study was conducted and HRQoL was evaluated using the Short Form-12 Health Survey Questionnaire, which assesses physical and mental HRQoL. RESULTS: The participants had a mean age of 56.4 years, and among them, 190 (71.2%) were women. Physical and mental HRQoL were negatively correlated with physical symptoms, anxiety, depression, and illness uncertainty. Mental HRQoL was positively correlated with social support. Physical HRQoL was significantly influenced by depression (β = -0.26, P = .004) and was not influenced by illness uncertainty (β = -0.10, P = .101). Mental HRQoL was significantly influenced by anxiety (β = -0.45, P < .001), depression (β = -0.19, P = .003), social support (β = 0.14, P = .004), and illness uncertainty (β = -0.14, P = .005). The finding that illness uncertainty influences HRQoL suggests a basis for interventions aimed at improving mental HRQoL by reducing illness uncertainty in patients with UIAs. CONCLUSION: The physical and mental HRQoL in patients with UIAs after coil embolization is negatively influenced by depression, whereas mental HRQoL is also affected by anxiety, illness uncertainty, and social support. These results may serve as reference data for the design and development of interventions to improve HRQoL in patients with UIAs after coil embolization.

摘要:背景:本研究旨在确定疾病不确定性对线圈栓塞术后未破裂颅内动脉瘤(UIA)患者身心健康相关生活质量(HRQoL)的影响。方法:进行了一项横断面研究,并使用评估身心健康相关生活质量的简表-12 健康调查问卷对其进行了评估。结果:参与者的平均年龄为 56.4 岁,其中 190 人(71.2%)为女性。身体和心理 HRQoL 与身体症状、焦虑、抑郁和疾病不确定性呈负相关。心理 HRQoL 与社会支持呈正相关。身体的 HRQoL 受到抑郁的显著影响(β = -0.26,P = .004),但不受疾病不确定性的影响(β = -0.10,P = .101)。心理 HRQoL 受到焦虑(β = -0.45,P < .001)、抑郁(β = -0.19,P = .003)、社会支持(β = 0.14,P = .004)和疾病不确定性(β = -0.14,P = .005)的明显影响。疾病不确定性会影响患者的 HRQoL,这一发现为旨在通过减少 UIA 患者的疾病不确定性来改善其心理 HRQoL 的干预措施提供了依据。结论:线圈栓塞术后,UIAs 患者的身体和心理 HRQoL 受到抑郁的负面影响,而心理 HRQoL 也受到焦虑、疾病不确定性和社会支持的影响。这些结果可作为设计和开发干预措施的参考数据,以改善线圈栓塞术后 UIA 患者的 HRQoL。
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引用次数: 0
Implementing Advance Care Planning and Care Coordination in the Care for People With Parkinson Disease: A Feasibility Study. 在帕金森病患者护理中实施预先护理规划和护理协调:可行性研究。
Pub Date : 2024-10-01 Epub Date: 2024-08-16 DOI: 10.1097/JNN.0000000000000776
Herma Lennaerts-Kats, Laura Daeter, Anoek Forkink, Renate K Hukema, Bastiaan R Bloem, Kris C P Vissers, Marjan J Meinders, Marieke M Groot

Abstract: BACKGROUND: For people with a moderate stage of Parkinson disease (PD), dedicated care coordination combined with advance care planning (ACP) is highly needed. However, evidence is lacking. The objective of this study was to assess the feasibility and acceptability of the study processes to inform a larger randomized controlled trial, aiming the effectiveness of a combined intervention on ACP and care coordination for people with PD. METHODS: Two nurse practitioners with expertise in PD followed training on a combined intervention on ACP and care coordination. Patients were invited to participate in several sessions for a period of 12 months. Feasibility of the study was surveyed covering sample recruitment, attrition rate, eligibility, intervention delivery, number of ACP sessions, type of intervention administration, and satisfaction with the intervention. RESULTS: In total, 27 patients were invited to participate, and 20 (74%) enrolled into the study, together with 11 family caregivers; 7 patients (35%) dropped out. Most patients were men (n = 20), with a mean age of 73.4 (SD 8.2) years. In total, 71 ACP sessions were held (3.6 sessions per patient on average), of which 41% of the sessions were conducted face-to-face at home, 44% at the hospital, 11% over telephone, and 4% via a videoconference call. Patients perceived the intervention not only as supportive but also as confronting. CONCLUSION: The ACP aspect of the intervention was useful and feasible to stimulate patients to think about their current care situation as well as about future care. Care coordination was less profoundly provided and discussed.

摘要:背景:对于帕金森病(PD)中度患者而言,非常需要专门的护理协调与预先护理计划(ACP)相结合。然而,目前还缺乏相关证据。本研究的目的是评估研究过程的可行性和可接受性,为更大规模的随机对照试验提供依据,旨在研究对帕金森病患者进行预先护理规划和护理协调联合干预的有效性。方法:两名具有帕金森病专业知识的执业护士接受了关于ACP和护理协调联合干预的培训。患者应邀参加了为期 12 个月的多次培训。对研究的可行性进行了调查,包括样本招募、自然减员率、资格、干预实施、ACP疗程次数、干预实施类型以及对干预的满意度。结果:共有 27 名患者应邀参加了研究,其中 20 人(74%)与 11 名家庭护理人员一起加入了研究;7 名患者(35%)退出了研究。大多数患者为男性(n = 20),平均年龄为 73.4 岁(标准差为 8.2)。共进行了 71 次 ACP 治疗(平均每位患者 3.6 次),其中 41% 的治疗在家中面对面进行,44% 在医院进行,11% 通过电话进行,4% 通过视频电话会议进行。患者认为干预不仅是支持性的,也是对抗性的。结论:ACP 方面的干预措施对于激发患者思考其当前的护理状况和未来的护理是有用的,也是可行的。护理协调的提供和讨论不太深入。
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引用次数: 0
Neuroleadership: A Concept Analysis and Implications for Nursing. 神经领导力:概念分析及对护理工作的影响》。
Pub Date : 2024-10-01 Epub Date: 2024-08-22 DOI: 10.1097/JNN.0000000000000779
Ebtsam Aly Abou Hashish

Abstract: BACKGROUND: Neuroleadership in nursing is a specialized leadership approach that integrates insights from social neuroscience with nursing leadership practices, aiming to proficiently lead healthcare teams to enhance patient care, staff productivity, and organizational outcomes. Yet, the exploration of neuroleadership in nursing remains limited. AIM: The aim of this study was to provide an analysis of the concept of neuroleadership and its implications in the nursing context. METHODS: Walker and Avant's 8-step methodology was used for this concept analysis, including identifying the concept, clarifying the purpose of the analysis, exploring the uses of the concept, and defining its attributes, model and contrary cases, antecedents and consequences, and its empirical referents. A comprehensive search included PubMed, CINAHL, and ERIC, between 2000 and 2023. RESULTS: This concept analysis significantly contributes to the literature by providing a comprehensive overview of neuroleadership as a distinct form of nursing leadership. It covers key aspects such as definition, attributes, uses, cases, antecedents, consequences, and empirical evidence, and highlights the importance of specialized education, practical experience, and leadership attributes in this domain. The findings could serve as determinants for establishing a neuroleadership framework and developing a structured questionnaire to measure neuroleadership among nurses and nurse leaders, thereby addressing existing empirical reference gaps. CONCLUSION: Nurse leaders adopting a neuroleadership approach can gain insights into how cognitive processes shape nurses' behaviors and motivation, which directly impact patient outcomes and care quality. Further research is needed to assess the practical impact of neuroleadership and validate its factors and model case in clinical nursing practice.

摘要:背景:护理中的神经领导是一种专门的领导方法,它将社会神经科学的见解与护理领导实践相结合,旨在熟练地领导医疗团队,以提高患者护理水平、员工工作效率和组织成果。然而,对护理神经领导力的探索仍然有限。目的:本研究旨在分析神经领导力的概念及其对护理工作的影响。方法:本概念分析采用 Walker 和 Avant 的 8 步方法,包括确定概念、明确分析目的、探索概念的用途,以及定义其属性、模式和相反案例、前因和后果及其经验参考。在 2000 年至 2023 年期间,对 PubMed、CINAHL 和 ERIC 进行了全面检索。结果:本概念分析全面概述了作为护理领导力独特形式的神经领导力,对文献做出了重要贡献。它涵盖了定义、属性、用途、案例、前因、后果和实证等关键方面,并强调了专业教育、实践经验和领导特质在这一领域的重要性。研究结果可作为建立神经领导力框架和开发结构化问卷的决定因素,以衡量护士和护士领导者的神经领导力,从而解决现有的实证参考差距。结论:采用神经领导方法的护士领导者可以深入了解认知过程是如何塑造护士的行为和动机的,而这直接影响到患者的治疗效果和护理质量。还需要进一步的研究来评估神经领导力的实际影响,并在临床护理实践中验证其因素和模型案例。
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引用次数: 0
Letter to the Editor: Digital Badging Is Dissemination Beyond the Edge of the Page. 数字徽章是超越页面边缘的传播。
Pub Date : 2024-10-01 Epub Date: 2024-07-05 DOI: 10.1097/JNN.0000000000000777
Samantha Orr
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引用次数: 0
期刊
The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses
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