Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)最新文献

Systematic review of chronic fatigue syndrome treatment methodology 慢性疲劳综合征治疗方法学的系统综述

Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)

Pub Date : 2025-07-01 DOI: 10.1016/j.sedeng.2024.100164

Sergio López Barbeta , Manuela Carrión Martínez , Alejandro Lendínez Mesa , Alberto Diliz Vieira , Carlos Díaz-Rodríguez

Introduction

Chronic fatigue syndrome (CFS) is a highly prevalent pathology that has not been clearly defined. Currently, there is no universally accepted treatment protocol, and the diagnostic markers, etiology, and specific pathophysiology for developing effective non-pharmacological treatments remain unknown.

Objective

To determine the currently established rehabilitation treatment methodologies for CFS. In addition, to establish an analysis of the efficacy of the treatment plans studied and to determine advances on the etiology of CFS.

Methods

A systematic review of randomized clinical trials (RCTs) published since 2011 was conducted. Studies evaluating non-pharmacological interventions for adult CFS patients were included, differentiating them according to chosen diagnostic criteria and variable measurement. The treatment hypothesis of the selected interventions was also taken into account.

Results

17 RCTs were included, 6 of which based their performance protocol on a self-management booklet and 11 of which did so through face-to-face involvement of a therapist and active therapy. The results of these studies were assessed primarily by patient-reported outcomes, and 5 of these studies reported on objective outcome measures.

Conclusion

There is no significant evidence on the efficacy of non-pharmacological interventions in CFS patients. In addition, the lack of consensus on diagnostic criteria makes it difficult to compare studies and to develop a standardised treatment plan. Advances in the aetiology and pathophysiology of CFS point to the need for a broader therapeutic approach.

慢性疲劳综合征（CFS）是一种非常普遍但尚未明确定义的病理。目前，尚无普遍接受的治疗方案，开发有效的非药物治疗的诊断标志物、病因学和特定病理生理学仍然未知。目的探讨慢性疲劳综合症的康复治疗方法。此外，对所研究的治疗方案的疗效进行分析，并确定CFS病因学的进展。方法对2011年以来发表的随机临床试验（RCTs）进行系统回顾。纳入评估成人CFS患者非药物干预措施的研究，根据选择的诊断标准和变量测量进行区分。所选干预措施的治疗假设也被考虑在内。结果共纳入17项随机对照试验，其中6项基于自我管理手册的表现方案，11项通过治疗师面对面参与和积极治疗来实现。这些研究的结果主要通过患者报告的结果进行评估，其中5项研究报告了客观结果测量。结论非药物干预对慢性疲劳综合症患者的疗效尚无显著证据。此外，对诊断标准缺乏共识使得比较研究和制定标准化治疗计划变得困难。CFS病因学和病理生理学的进展表明需要更广泛的治疗方法。

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引用次数: 0

Pilot study: transdisciplinary therapy in the aquatic environment with intellectual disability 试点研究：水生环境中智力障碍的跨学科治疗

Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)

Pub Date : 2025-07-01 DOI: 10.1016/j.sedeng.2025.500169

Rocío Blanco Barrero , Sara Rodriguez Carrión , Susana Álvarez Hernando , Lorena Martín Berbel , Ana Navarro Meléndez , Alejandro Lendinez Mesa , Ana Sofía Fernandes Ribeiro , María Jesús Martínez Beltrán

Objective

To analyze whether transdisciplinary therapy in the aquatic environment for children with intellectual disabilities promotes skills and mental adjustment in this setting, advances in different areas of their lives, and independence in activities of daily living.

Method

Quasi-experimental pilot study carried out with children with intellectual disabilities from the Special Education School of the Hospital Fundación Instituto San José, who integrate transdisciplinary therapy in the aquatic environment with the Poseidon Program in their school environment between September 2018 and June 2019.

Variables have been collected such as aquatic skills, motor, personal/social, cognitive, communicative, adaptive and essential functional skills of daily living, as measured with the WeeFIM scale, WOTA 1 and the Battelle Developmental Inventory.

Results

Data from 5 children aged between 6 ± 2 years and a degree of disability of 46 ± 15 years have been included. Statistically significant differences were found in the personal/social area (p = 0,042) with a 3-point difference between pre/post-intervention measurements, as well as in the global area (p = 0,042) with a 9-point difference, measured through the Battelle inventory.

Autism, developmental disorder, and epilepsy variables do not show a statistically significant association.

Conclusions

The transdisciplinary methodology carried out through the Poseidon program produces statistically significant improvements in different areas of life and independence in the activities of daily living of children with intellectual disabilities.

目的分析在水生环境中进行跨学科治疗是否能促进智力障碍儿童的技能和心理调节，提高他们在生活各领域的能力，提高他们在日常生活活动中的独立性。方法对2018年9月至2019年6月期间在美国圣约瑟医院Fundación研究所特殊教育学院学习的智力障碍儿童进行准实验先导研究，将跨学科的水生环境治疗与波塞冬项目相结合。通过WeeFIM量表、WOTA 1和Battelle发展量表，收集了诸如水上技能、运动、个人/社会、认知、沟通、适应和日常生活基本功能技能等变量。结果纳入5例年龄在6±2岁，残疾程度为46±15岁的儿童的数据。在个人/社会领域（p = 0,042），通过干预前/干预后的测量结果有3个点的差异，在全球领域（p = 0,042），通过Battelle量表测量有9个点的差异。自闭症、发育障碍和癫痫变量没有显示统计学上显著的关联。结论：通过波塞冬项目实施的跨学科方法在智力残疾儿童的不同生活领域和日常生活活动的独立性方面产生了统计上显著的改善。

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引用次数: 0

Convergent validity of the Tinetti scale in subacute stroke patients Tinetti量表在亚急性脑卒中患者中的收敛效度

Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)

Pub Date : 2025-07-01 DOI: 10.1016/j.sedeng.2025.500168

Adrián Arranz-Escudero , Patricia Martín-Casas , Ester Carpio-Calatayud , Ibai López-de-Uralde-Villanueva

Introduction

Clinical scales to assess balance and gait in stroke patients such as the Trunk Impairment Scale (TIS), Postural Assessment Scale for Stroke (PASS) and Functional Ambulatory Categories (FAC) have been extensively studied. However, the Tinetti scale has not yet been validated in the Spanish neurological population.

Objectives

To analyse the convergent validity of Tinetti scale in post-stroke patients in the subacute phase.

Method

A cross-sectional study was performed in a neurological rehabilitation clinic including patients who had started rehabilitation within 2 months after the stroke and were hemodynamically stable, excluding patients with psychiatric disorders. Spearman correlation coefficients were calculated to analyse the convergent validity of the Tinetti scale with the clinical assessments TIS, PASS and FAC measured at the beginning of rehabilitation.

Results

A total of 63 participants were analyzed. The average age was 63.87 ± 12.93 years and men (58.73%), ischemic stroke (69.84%), stroke located in the middle cerebral artery (44.44%) and high grade of affectation patients predominated. The convergent validity of the Tinetti scale in patients with stroke in the subacute phase at the initial assessment was significantly high with TIS (0.805) and very high with PASS (0.936) and FAC (0.927) (p < 0.05).

Conclusion

Tinetti scale is a valid instrument to assess balance and gait in subacute phase stroke patients and has an excellent convergent validity with other balance and gait clinical scales. Further investigation should be undertaken to analyse other psychometric properties.

用于评估卒中患者平衡和步态的临床量表，如躯干损伤量表（TIS）、卒中姿势评估量表（PASS）和功能走动分类（FAC）已被广泛研究。然而，蒂内蒂量表尚未在西班牙神经学人群中得到验证。目的分析耳鸣量表在脑卒中亚急性期的收敛效度。方法在某神经康复诊所进行横断面研究，纳入脑卒中后2个月内开始康复且血流动力学稳定的患者，排除精神障碍患者。计算Spearman相关系数，分析Tinetti量表与康复开始时临床评估TIS、PASS和FAC的收敛效度。结果共分析了63名参与者。平均年龄63.87±12.93岁，男性占58.73%，以缺血性脑卒中（69.84%）、脑卒中位于大脑中动脉（44.44%）和高度矫形者为主。初始评估时，Tinetti量表对亚急性期卒中患者的收敛效度，TIS（0.805）显著高，PASS（0.936）和FAC（0.927）非常高（p < 0.05）。结论tinetti量表是评估亚急性期脑卒中患者平衡和步态的有效工具，与其他平衡和步态临床量表具有良好的收敛效度。应该进行进一步的调查来分析其他心理测量特性。

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引用次数: 0

ALS lived, nursing felt: Words from a grateful witness 肌萎缩性侧索硬化症患者活了，护理有了感觉：一位感恩的目击者的话语

Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)

Pub Date : 2025-07-01 DOI: 10.1016/j.sedeng.2025.500193

Juan Carlos Unzué

引用次数: 0

Foreign accent syndrome: A case report 外国口音综合征1例报告

Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)

Pub Date : 2025-07-01 DOI: 10.1016/j.sedeng.2024.100165

Ana Teresa Domínguez Martín , Noemi Martin Ramos , Sara Huerta González , Armando Diez Miranda , Catalina Cano Amador

Introduction

Foreign Accent Syndrome (FAS) is an acquired speech disorder due to a lesion of the central nervous system, characterized by the appearance of a foreign accent when speaking the native language.

The objective is to describe a case of SAE as a form of presentation of a stroke.

Development

Male, 72 years old, Spanish, with ischemic heart disease, dyslipidemia, COPD. Autonomous for Activities of Daily Living. Admitted for chest pain on slight exertion. Presents difficulty in responding and obeying orders, feels that the accent and speed of speech are different. His relatives say that he speaks like the English, but in Spanish.

In neurological examination conscious, oriented, obeys orders, no dysarthria. Language is clear, fluent and intelligible, with alteration of intonation and rhythm. Mild right facial paresis.

Results

A care plan was developed based on Gordon’s functional patterns, with NANDA diagnoses, interventions (NIC) and expected outcomes (NOC). Due to the rarity of the case it is justified to establish an individualized care plan, obtaining 7 nursing diagnoses and 12 nursing interventions with their respective NOC.

The Clinical Judgment was of ischemic stroke of cardioembolic origin. The evolution was favorable, after 3 months she recovered her normal accent and did not report any speech alteration or identity problems.

Conclusion

SAE is an infrequent syndrome, which can generate identity conflicts if it does not subside.

We consider it necessary to be aware of this syndrome so that it can be recognized early, and to be able to offer a correct nursing approach that guarantees quality care and psychological support.

外国口音综合症（FAS）是一种由中枢神经系统损伤引起的后天语言障碍，其特征是在说母语时出现外国口音。目的是描述一个SAE作为一种形式的表现中风的情况。男性，72岁，西班牙人，缺血性心脏病，血脂异常，慢性阻塞性肺病。能自主进行日常生活活动。因轻微用力引起胸痛入院。表现出反应和服从命令的困难，感觉口音和语速不同。他的亲戚说他说话像英国人，但说的是西班牙语。神经学检查意识清醒，定向，服从命令，无构音障碍。语言清晰、流畅、易懂，语调、节奏多变。轻度右侧面部轻瘫。结果以Gordon功能模式为基础，制定了具有NANDA诊断、干预（NIC）和预期结局（NOC）的护理方案。由于病例罕见，因此有理由制定个性化护理计划，获得7个护理诊断和12个护理干预措施。临床判断为心源性缺血性脑卒中。进化是有利的，3个月后，她恢复了正常的口音，没有任何言语改变或身份问题。结论sae是一种罕见的综合征，如果不消退，可能会产生身份冲突。我们认为有必要了解这种综合征，以便及早发现，并能够提供正确的护理方法，保证高质量的护理和心理支持。

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引用次数: 0

Brain areas activation to eat chocolate and increase of focal seizures 吃巧克力激活大脑区域和增加局灶性癫痫

Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)

Pub Date : 2025-07-01 DOI: 10.1016/j.sedeng.2025.500167

María Palanca Cámara , Sònia Pineda Hernández

Introduction

Epilepsy is a neurological disease characterized by the onset of epileptic seizures, due to an abnormal electrical discharge of the brain; so that it affects a specific region (focal epilepsy), or the whole brain (generalized epilepsy). Epilepsy has always been stigmatized, largely due to lack of knowledge about the disease. One of these myths has been the relationship between chocolate and its power to promote the onset of epileptic seizures.

Objective

Find scientific evidence on brain activation by chocolate and its capacity for epileptogénesis.

Methodology

A literature search was performed on PubMed, Google Scholar and Trip database. Subsequently, a critical reading of the selected articles was performed obtaining a total of 10 relevant articles.

Conclusions

In animal studies, a relationship was found between chocolate consumption and hippocampal seizures. No studies have been found in humans in this line of research, however, in studies in healthy people it has been observed that chocolate activates the mesial temporal and frontal areas, with epilepsy originating in the temporal and frontal lobes, and more specifically the mesial structures, the most prevalent in humans. However, studies in people with epilepsy are necessary to establish the relationship between chocolate and ictogenesis.

癫痫是一种神经系统疾病，其特征是由于大脑异常放电引起癫痫发作；因此它会影响特定区域（局灶性癫痫）或整个大脑（全身性癫痫）。癫痫一直被认为是一种耻辱，主要是由于缺乏对这种疾病的了解。其中一个迷思是巧克力与其促进癫痫发作的能力之间的关系。目的寻找巧克力激活大脑及其抗癫痫能力的科学依据。方法在PubMed、b谷歌Scholar和Trip数据库中进行文献检索。随后，对所选文章进行批判性阅读，共获得10篇相关文章。结论在动物实验中，发现巧克力摄入与海马癫痫发作之间存在关系。在这方面的研究还没有在人类身上发现，然而，在对健康人的研究中发现，巧克力激活了颞叶和额叶内侧区域，癫痫起源于颞叶和额叶，更具体地说，是人类中最普遍的内侧结构。然而，有必要对癫痫患者进行研究，以确定巧克力与ictogenesis之间的关系。

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引用次数: 0

Plasma neurofilament light chain as a biomarker of neuronal damage in multiple sclerosis 血浆神经丝蛋白轻链作为多发性硬化症神经元损伤的生物标记物

Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)

Pub Date : 2025-01-01 DOI: 10.1016/j.sedeng.2024.100162

Anibal Arteaga-Noriega , John Fredy Castro-Álvarez , José Zapata-Berruecos , Norma Liliana Muñoz Osorio , Johanna Gutiérrez-Vargas

Introduction

The identification of biomarkers of disease progression continues to be a necessity in the approach to multiple sclerosis (MS), a disabling neurological disease more common in young adults, which can have different phenotypes, among which relapsing-remitting (RRMS), primary progressive (PPMS) and secondary progressive (SPMS). Among biomarkers, the determination of neurofilament light chain (NfL) levels in both cerebrospinal fluid (CSF) and serum have been shown to predict the severity of MS. Therefore, the objective of the present work was to evaluate the levels of NfL in patients in different stages of MS.

Methodology

A descriptive study was carried out, which included 70 patients diagnosed with MS; plasma NfL levels were analyzed using the adsorption enzyme immunoassay kit and the levels of the MS patients were compared with the levels of control patients.

Results

In patients with MS, 87,14% were women, 21,43% were taking antidepressant drugs, 48,57% had vision complications.and 80% had spinal injuries. It was found that patients with RRMS phenotype and of male sex have higher levels of NfL.

Conclusions

The results show an increase in NfL in RRMS and in male patients, which suggests that there may be greater neuroaxonal deterioration in men and that they have this disease phenotype. However, future studies aimed at optimizing, standardizing, and implementing new technologies are necessary to address the predictive value of these biomarkers that can contribute to the management of the disease.

在治疗多发性硬化症（MS）的方法中，疾病进展的生物标志物的识别仍然是必要的，多发性硬化症（MS）是一种致残性神经系统疾病，更常见于年轻人，它可以具有不同的表型，其中包括复发缓解型（RRMS），原发性进行性（PPMS）和继发性进行性（SPMS）。在生物标志物中，脑脊液（CSF）和血清中神经丝轻链（NfL）水平的测定已被证明可预测多发性硬化症的严重程度，因此，本研究的目的是评估多发性硬化症不同阶段患者的NfL水平。采用吸附酶免疫测定试剂盒分析血浆NfL水平，并将MS患者与对照组进行比较。结果MS患者中女性占87.14%，服用抗抑郁药物者占21.43%，有视力并发症者占48.57%。80%的人有脊髓损伤。结果发现，RRMS表型和男性患者的NfL水平较高。结论研究结果显示，在RRMS患者和男性患者中，NfL增加，提示男性可能存在更大的神经轴突退化，并且具有这种疾病的表型。然而，未来的研究旨在优化、标准化和实施新技术，以解决这些有助于疾病管理的生物标志物的预测价值。

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引用次数: 0

Summary of the XXXI Annual Congress and VII International Congress of the Spanish Society of Neurological Nursing 西班牙神经护理学会第三十一届年会暨第七届国际大会摘要

Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)

Pub Date : 2025-01-01 DOI: 10.1016/j.sedeng.2025.500175

Paloma Muñoz Pedrazuela , Henar Garzón López , Ana Sofía Fernandes Ribeiro , Alejandro Lendínez Mesa , Maria Palanca Cámara , Tania Herrera Barcia , Eulàlia Giné-Ciprés , Raquel Vallejo de la Paz , Lourdes Bermelló López , Silvia Morel Fernández , Ana María Duro Martínez , Sergio González-Román Montalbán , Maria Figueras Jiménez , Verónica Hidalgo Benítez , David Iglesias Villanueva , Paloma Caro Muñoz , Fidel López Espuela

引用次数: 0

Efficacy of virtual reality on Health Literacy in patients with stroke: randomized pilot clinical trial 虚拟现实对中风患者健康素养的影响：随机试点临床试验

Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)

Pub Date : 2025-01-01 DOI: 10.1016/j.sedeng.2024.100161

Patricia Blázquez-González , Rubén Mirón-González , Alejandro Lendínez-Mesa , María Teresa Camacho Arroyo , Noelia Mancebo-Salas , Raquel Luengo-González , Silvia Herranz-Herranz , Roberto Antonio López Manrique , Jose Luis Cobo-Sánchez , Zulema González-Gancedo , María-Nieves Moro-Tejedor

Objective

To evaluate the effectiveness of virtual reality on the degree of Health Literacy, before and after the use of virtual reality with the Nintento Switch® device in patients with a diagnosis of stroke admitted to neurorehabilitation units.

Methodology

Twelve patients admitted to a neurorehabilitation unit underwent a 1:3 randomised clinical trial (intervention group: control group). The intervention group consisted of 4 patients and the control group consisted of 8 patients. The control group performed conventional rehabilitation and the intervention group, in addition to conventional rehabilitation, had a 20-min virtual reality intervention once a week for 6 weeks. Clinical outcomes were measured for the literacy variable before the intervention and 6 weeks after the intervention in both the control group and the intervention group.

Results

An improvement in literacy was obtained in the control group (9 vs. 9.38; p = 0.18) and in the intervention group (13.75 vs. 14.25; p = 0.31) after the 6 weeks duration of the study. Comparing the intervention group and the control group, the literacy level of the intervention group was higher after the intervention than in the CG (14.25 vs. 9.38: p = 0.20), but no statistically significant results were obtained.

Conclusion

Virtual reality used together with conventional treatment seems to improve the degree of literacy of stroke patients admitted to neurorehabilitation units.

目的评价虚拟现实技术对脑卒中患者健康素养水平的影响，评估虚拟现实技术与任天堂开关®设备使用前后对脑卒中患者健康素养的影响。方法采用1:3随机临床试验（干预组：对照组）对12例患者进行神经康复治疗。干预组4例，对照组8例。对照组进行常规康复治疗，干预组在常规康复治疗的基础上，每周进行1次虚拟现实干预，每次20分钟，持续6周。对对照组和干预组在干预前和干预后6周的读写能力变量进行临床结果测量。结果对照组的识字率无明显提高(9比9.38；P = 0.18)，干预组(13.75 vs. 14.25；P = 0.31)。干预组与对照组比较，干预组干预后读写能力水平高于对照组（14.25 vs. 9.38: p = 0.20），但差异无统计学意义。结论虚拟现实与常规治疗相结合，可提高脑卒中患者的认知程度。

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引用次数: 0

Art therapy in the improvement of cognitive well-being in patients with dementia: Literature review 艺术疗法对痴呆患者认知健康的改善：文献综述

Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)

Pub Date : 2025-01-01 DOI: 10.1016/j.sedeng.2024.100154

Jesús Sánchez-Lozano , Sandra Martínez-Pizarro

Introduction

Dementia affects fifty million individuals worldwide. It includes emotional problems and decreased motivation that interfere with daily life. In recent years, art therapy has been proposed to improve the physical and psychological well-being of these patients.

Objective

The objective of this review is to update the information on the efficacy of art therapy in the cognitive and psychological well-being of patients with dementia.

Method

A bibliographic search was carried out in Pubmed, Lilacs, IBECS and CENTRAL databases following the PRISMA recommendations. Studies conducted in the last 5 years, in Spanish or English, with full text and high methodological quality are selected.

Results

Art therapy with painting, visual art therapy, visual arts education program and remote expressive arts program are effective in patients with dementia. The total number of studies in the review was five. The frequency of the sessions was one per week, the total number of sessions was 8–12, and the duration of the program ranged from 6 to 12 weeks.

Conclusion

There are few quality art therapy items that have been shown to be effective for the patient and their caregiver. However, some reviewed studies show some kind of benefit in cognitive and psychological well-being and quality of life; for this reason, research in this field must be increased.

导言全世界有五千万人患有痴呆症。它包括影响日常生活的情绪问题和动机减退。本综述旨在更新有关艺术疗法对痴呆症患者认知和心理健康疗效的信息。方法按照 PRISMA 建议在 Pubmed、Lilacs、IBECS 和 CENTRAL 数据库中进行文献检索。结果绘画艺术疗法、视觉艺术疗法、视觉艺术教育计划和远程表达艺术计划对痴呆症患者有效。综述共有五项研究。结论很少有高质量的艺术疗法项目被证明对患者及其护理人员有效。然而，一些回顾性研究表明，艺术疗法对认知和心理健康以及生活质量有一定的益处；因此，必须加强这一领域的研究。

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引用次数: 0