Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)最新文献

{"title":"Humanisation and health: More than a need","authors":"Almudena Santano Magariño","doi":"10.1016/j.sedeng.2025.500174","DOIUrl":"10.1016/j.sedeng.2025.500174","url":null,"abstract":"","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"61 ","pages":"Article 500174"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143637660","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Quality evaluation and headache management in a patient admitted to the neuroscience area. CALMA study","authors":"Eulalia Gine-Cipres ,&nbsp;Marta Torres Ferrus ,&nbsp;Victor J. Gallardo ,&nbsp;Alicia Alpuente Ruiz ,&nbsp;Edoardo Caronna ,&nbsp;Patricia Pozo-Rosich","doi":"10.1016/j.sedeng.2024.100159","DOIUrl":"10.1016/j.sedeng.2024.100159","url":null,"abstract":"<div><h3>Introduction</h3><div>Headache is a very common neurological symptom. It is the first reason for consultation in neurology. About hospitalized patients, we do not have epidemiological data on the global prevalence of headaches in hospitalized patients.</div></div><div><h3>Objective</h3><div>To describe the prevalence of headaches in hospitalized patients, their triggers, and the level of compliance with nursing records.</div></div><div><h3>Methodology</h3><div>This is a descriptive, observational, and cross-sectional study at the Vall d'Hebron University Hospital (HUVH). The data collected were sociodemographic, related to the reason for admission and pain during admission. Statistical analysis was performed with R v4.1.1.</div></div><div><h3>Results</h3><div>Of the 45 admitted patients, 55% (25/45) participated, 55% (25/45) participated, 64% (16/25) were women. 60% (15/25) had presented headaches during admission, of which 73.3% (11/15) occurred in the last 24 hours. The 33.3% (5/15) recognized stress as the most frequent trigger, noise (5/15), and income derivatives (3/15). During the daily follow-up by the nurse, 100% (25/25) of the patients answered that they had been asked about pain in general and 32% (8/25) specifically about headaches. No records were obtained due to the computer program's non-existence of nursing clinical variables.</div></div><div><h3>Conclussion</h3><div>Headache is a symptom that occurs prevalently in hospitalized patients. Stress and noise seem to be triggers of this situation. Certain behaviors on the part of health centers and professionals could help improve the care of these patients.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"61 ","pages":"Article 100159"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143637659","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Impact of the implementation of a therapeutic education program for patients with chronic migraine","authors":"Teresa Marco Galindo,&nbsp;Santiago Fernandez Fernandez,&nbsp;Victor Obach Baurier,&nbsp;Neus Fabregat Fabra","doi":"10.1016/j.sedeng.2024.100166","DOIUrl":"10.1016/j.sedeng.2024.100166","url":null,"abstract":"<div><h3>Objective</h3><div>To analyze the impact of implementing a therapeutic education (TE) program for patients with chronic migraine.</div></div><div><h3>Method</h3><div>Prospective longitudinal intervention and assessment study before and after the program, lasting 6 months, conducted at the Headache and Facial Pain Unit of Hospital Clinic in Barcelona.</div></div><div><h3>Results</h3><div>TE resulted in a significant improvement in the frequency of headache days per month, DCM (15.6 ± 6.84 vs. 11.5 ± 4.68; p &lt; 0.001), migraine days per month, DMM (7.38 ± 1.44 vs. 5.88 ± 1.36; p &lt; 0.001), and increased perception of quality of life, measured through the MSQ scale (65.4 ± 10.11 vs. 51 ± 11.36; p &lt; 0.001). Regarding satisfaction, we can observe that 97.5% of patients who attended group sessions would recommend them to other people with migraines and, furthermore, considered the content to be good or excellent.</div></div><div><h3>Conclusions</h3><div>TE in the treatment of chronic migraine offers a promising improvement in the quality of life of patients by empowering them with knowledge about their condition and pain management strategies. This complements pharmacological treatments by focusing on prevention and self-care. Although more research is needed to establish standard protocols, the presence of advanced practice nurses in headaches is crucial for the successful implementation of these programs.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"61 ","pages":"Article 100166"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143637654","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psycho-emotional care by neurological nurses. Keys to deciphering the enigma of emotional well-being","authors":"José Manuel Párraga Sánchez","doi":"10.1016/j.sedeng.2024.500171","DOIUrl":"10.1016/j.sedeng.2024.500171","url":null,"abstract":"","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 500171"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658606","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Functional social support in patients with myasthenia gravis: Narrative review","authors":"Mireia Larrosa-Dominguez,&nbsp;Laura Reyes-Martí","doi":"10.1016/j.sedeng.2024.100155","DOIUrl":"10.1016/j.sedeng.2024.100155","url":null,"abstract":"<div><h3>Introduction</h3><div>Social support promotes feelings of stability, predictability and self-esteem and reduces the social isolation, because information, tangible assistance and emotional support can be obtained from the social network.</div></div><div><h3>Methods</h3><div>We conducted a narrative review of the international empirical literature to provide a comprehensive understanding of the impact of social support and social networks on patients diagnosed with myasthenia gravis. The following databases were consulted: CINAHL, MEDLINE, APA PsycInfo, SCOPUS and Web of Science. Information was collected up to 2nd December 2022.</div></div><div><h3>Results</h3><div>The initial search generated 46 articles, but after the exclusion criteria had been applied, the total number of articles analysed was 13.</div></div><div><h3>Conclusions</h3><div>The symptoms of myasthenia gravis, especially ptosis and slurred speech, can have a major psychosocial impact and a negative effect on interaction social.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100155"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658698","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Neurological deficit and degree of autonomy of patients with ischemic stroke treated with mechanical thrombectomy. A retrospective study","authors":"M.Lourdes Bermello López ,&nbsp;Emilio Rubén Pego Pérez ,&nbsp;Isidoro Rodríguez Pérez","doi":"10.1016/j.sedeng.2024.100158","DOIUrl":"10.1016/j.sedeng.2024.100158","url":null,"abstract":"<div><h3>Objective</h3><div>To determine the degree of autonomy of patients treated with mechanical thrombectomy; to assess the degree of neurological deficit on admission and 24 h, and the degree of dependency at 3 months after performing the mechanical thrombectomy.</div></div><div><h3>Method</h3><div>Quantitative, observational, and descriptive study, with a sample of 57 patients treated with mechanical thrombectomy in the Autonomous City of Buenos Aires. Neurological deficit was measured with the National Institute of Health Stroke Score upon admission and 24 h after treatment with mechanical thrombectomy, and functional outcome with the modified Rankin scale at three months.</div></div><div><h3>Results</h3><div>The degree of dependency at three months was 2,4 points. The mean neurological deficit score on admission was 12,1 points, and 9,3 points after 24 h. Neurological deficit at 24 h has been found to be predictive of functionality at three months.</div></div><div><h3>Conclusion</h3><div>The mean of the neurological deficit at admission was situated in a moderate neurological deficit. The mean of the neurological deficit at 24 h has been placed in a moderate neurological deficit. The score for the degree of dependency at three months was placed in the mild disability category. A significant correlation has been obtained between the neurological deficit at 24 h and the functional result at three months.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100158"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658603","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Presence of palinopsia as a sign of selective CNS tractopathy: A case report","authors":"Elnaz Asadollahzadeh ,&nbsp;Vahid Shahmaei ,&nbsp;Rezvan Hassanpour ,&nbsp;Zahra Ebadi ,&nbsp;Mohammad Ali Sahraian ,&nbsp;Abdorreza Naser Moghadasi","doi":"10.1016/j.sedeng.2024.100156","DOIUrl":"10.1016/j.sedeng.2024.100156","url":null,"abstract":"<div><div>Palinopsia, described as the persistence of visual images or their recurrence after the stimulus has disappeared, represents a rare but important neuro-ophthalmic complication. Until now, the pathophysiology and the main location of this visual mainteanance condition are not been clearly understood. This study presents a 30-year-old woman with palinopsia who had her selective optic radiation lesion assessed by diffusion tensor imaging (DTI). The finding of magnetic resonance imaging (MRI) did not reveal any damage in the selective optic pathway whereas DTI showed a decreased density of the optic radiation tract. Furthermore, the mean diffusivity (MD), axial diffusivity (AD), and radial diffusivity (RD) were increased in suspected regions of lesions ds, while fractional anisotropy (FA) was decreased. To the authors’ knowledge, this is the first report of a case of palinopsia representing the central nervous system (CNS) tractopathy. Therefore, we encourage further investigation of optic pathway pathology using DTI in complex neurological complications, including palinopsia.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100156"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658605","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“No SMA can hold”: Nursing care for children with spinal muscular atrophy. Descriptive analysis of two case studies","authors":"Federico Ruta ,&nbsp;Paolo Ferrara ,&nbsp;Francesca Dal Mas","doi":"10.1016/j.sedeng.2024.100144","DOIUrl":"10.1016/j.sedeng.2024.100144","url":null,"abstract":"<div><h3>Background</h3><div>Spinal muscular atrophy (SMA) is one of the most common genetic causes of death in children affecting about one in 10,000 live births, while its prevalence is about 1–2 per 100,000 (live births). Recently, the European Commission (EU) approved a novel gene therapy based on the onasemnogen abeparvovec (Zolgensma) for the treatment of patients with SMA. In addition to drug treatment, it is essential that children with SMA apply self-care methods to maintain their health, monitor their weight and food intake, and use appropriate remedies. Self-care and co-production of health care services are crucial in the modern ecosystem, as they can improve survival and prevent hospitalizations. The aim of this work is to support healthcare professionals who may have to deal with patients affected by this disease.</div></div><div><h3>Methods</h3><div>The article uses two case studies of children with spinal muscular atrophy through the creation of a multi-professional research group composed of health professionals who provide direct care to SMA children. The collection and analysis of the data were carried out by involving different figures who interact with SMA children. Specifically, physicians, nurses, parents, physical therapists, social workers, and teachers were individually interviewed.</div></div><div><h3>Results</h3><div>The study aims to provide suggestions on assessing child self-care, believing it to be a valuable method to gather information on how the child performs daily activities and how much the surrounding environment affects self-care. This paper highlights how self-management behaviors depend on four basic aspects: the person (individual, cognitive, and social perceptions), the patient's family (level of knowledge of pathology, involvement in the management and quality of relationship with the patient), the community (relationships with external social contexts, such as school and other organizations), and the healthcare system (availability of resources and the degree of evolution of healthcare).</div></div><div><h3>Conclusions</h3><div>The experience conducted may be helpful to other health institutions to make the approach to children with SMA as most effective as possible, creating internal workgroups and collaboration with external experts on the subject. Moreover, it provides valuable information on caring for families with children with SMA.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100144"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658604","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness of an empowering health education programme for patients with epilepsy","authors":"Isabel Manzanares ,&nbsp;Mar Carreño ,&nbsp;Sonia Sevilla ,&nbsp;María Lombraña ,&nbsp;Ana Grau ,&nbsp;Estefanía Conde-Blanco ,&nbsp;Antonio Donaire ,&nbsp;María Centeno ,&nbsp;Mariam Khawaja ,&nbsp;Adelaida Zabalegui","doi":"10.1016/j.sedeng.2024.100145","DOIUrl":"10.1016/j.sedeng.2024.100145","url":null,"abstract":"<div><h3>Aims</h3><div>To evaluate the effectiveness of an educational intervention with empowerment for patients with epilepsy in a Spanish reference hospital for epilepsy.</div></div><div><h3>Methods</h3><div>A nonrandomized clinical trial was designed in an epilepsy center. An empowerment group intervention program was conducted in which volunteers were recruited. The education contained common topics in health education in epilepsy, which was adapted to the demands of the patients. Patients were empowered to apply their knowledge and skills, using the nurse as a facilitator. Questionnaires were administered before and after the intervention to assess anxiety and depression, quality of life, and satisfaction with epilepsy care in patients with epilepsy.</div></div><div><h3>Results</h3><div>33 patients completed the sessions and study. Satisfaction with the information improved significantly after the intervention (p &lt; 0.005). The information items with significant improvements were satisfaction with information about epilepsy, treatment, provision of aid and treatment of the impact of epilepsy (p &lt; 0.005) Satisfaction with communication decreased (p &lt; 0.005), being the items with the most changes, the “time to answer the questions” and “consideration with their individual needs”. No significant changes were shown in depression and anxiety, quality of life and satisfaction with the organization.</div></div><div><h3>Conclusions</h3><div>Empowerment interventions demonstrated benefits to improve satisfaction with information in patients with epilepsy. The educational intervention designed allows sharing knowledge, solving problems and improving skills, empowering the patient in a new concept of education, which the nurse is a facilitator who collaborates with the demands of the patients. More studies are needed to increase the sample and demonstrate benefits in quality of life and anxiety and depression.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100145"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Misophonia: A self-report-based scale development study","authors":"Sevgi Koroglu,&nbsp;Gulgun Durat","doi":"10.1016/j.sedeng.2024.100157","DOIUrl":"10.1016/j.sedeng.2024.100157","url":null,"abstract":"<div><h3>Introduction</h3><div>Misophonia is an increasingly common psychiatric problem. Responses to triggers can lead to suicide, social isolation and poor quality of life. However, scale studies of misophonia usually focus on triggers and responses to triggers. Therefore, there is a need for scales that focus on measuring the effects of misophonia on daily functioning, interpersonal relationships and overall functional capacity.</div></div><div><h3>Objective</h3><div>This research aims to create a scale and validate its psychometric properties to assess the effects of misophonia on daily functioning, interpersonal relationships and overall functional capacity.</div></div><div><h3>Methods</h3><div>This scale for misophonia was applied to 326 participants reached online. The data were analyzed through exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) and internal consistency was evaluated using Cronbach's alpha.</div></div><div><h3>Results</h3><div>The scale shows a four-factor structure with EFA and explains 63.41% of the total variance. With CFA, the standard regression coefficients ranged between 0.51 and 0.98. In the internal consistency analysis, Cronbach's alpha coefficient was 0.96 and the correlation coefficients for the item–total score were in the range 0.43–0.78.</div></div><div><h3>Conclusion</h3><div>This scale, consisting of 30 items and four sub-dimensions, is a valid and reliable measurement tool for diagnosing and understanding the severity of misophonia in Turkish society.</div></div>","PeriodicalId":101097,"journal":{"name":"Revista Científica de la Sociedad de Enfermería Neurológica (English ed.)","volume":"60 ","pages":"Article 100157"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142658602","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}