Parkinson’s disease (PD) is catastrophic, chronic, and neurodegenerative. In advanced stage requires a permanent informal caregiver. The adaptation of the caregiver to their role is unknown, a fundamental aspect to guarantee the quality of care.
Prepare a healthcare proposal with standardized language to promote the adaptation of informal caregivers of Parkinson’s patients to their social role.
Two-phase study: Literature review and preparation of a Care Proposal. Search in Proquest, Scielo, Scient Direct, Pubmed, and Google Scholar databases, in English, Spanish and Portuguese languages, for the last five years. Descriptors: Parkinson’s disease, Chronic disease, caregivers, adaptation, nursing process. The proposal articulates the Calixta Roy adaptation Model with the Nursing Process using NANDA-NOC-NIC taxonomy.
Few publications on coping and adaptation of caregivers and on the Nursing Process to caregivers using standardized language. Committed adaptation modes: Role function and Self-concept. Relevant nursing diagnoses: Tiredness of the caregiver role, Interruption of family processes, Impairment of social interaction, Ineffective relationship, Compromised family coping, Willingness to improve self-concept, Risk of low situational self-esteem, and Body image disorder. Two NOC outcomes and three NIC interventions were linked for each diagnosis.
The articulation of the Calixta Roy Adaptation Model with the standardized language NANDA-NOC-NIC is an innovative contribution to the disciplinary and professional development of Neurological and Community Nursing. The proposal makes it possible to monitor the levels of adaptation of the informal caregiver and intervene in a timely manner.
Patients who survive a stroke present difficulty in complying with secondary prevention. Therefore, new strategies, such as health coaching, are needed to evaluate these interventions in clinical practice.
To construct and validate the psychometric properties of a scale for evaluating health coaching in stroke patients.
Observational study of the construction and validation of a Spanish assessment scale for health coaching in a prospective cohort of stroke patients. It was conducted in two phases: 1) construction and 2) validation of the scale. In the first phase, after evaluation by a group of experts, 11 items of the scale were constructed, with a Likert-type response option (0–10). In the second phase, validation and analysis of construct and reliability was carried out using the test-retest technique, with a difference of 3 weeks in a consecutive and prospective probability sample of 58 participants. In addition, a confirmatory factor analysis of the model was performed, and the following fit indices were obtained: comparative fit index (CFI), Tucker-Lewis index (TLI), and root mean square error of approximation (RMSEA) with a confidence interval (CI) of 95%.
The pilot test applied to a sample of 14 subjects obtained good reliability (Cronbach's alpha = .806). In the retest the level of reliability was maintained (Cronbach's alpha = .813) and the intraclass correlation coefficient of all items showed reproducibility after three weeks from the first completion. The correlation between the dimensions was significant, although the correlation coefficient was not high. The following scale fit indices were also calculated: CFI = .933, TLI = .914 and RMSEA = .068 (95% CI.000–.119), which showed adequate values.
The Stroke Coaching Scale-11 items are a useful and valid instrument to assess health coaching in stroke patients.
Recurrent-remitent sender multiple sclerosis (RRMS) often affects fertile women and family planning (FP) is an important issue, where patients continue to have doubts. Infographic is a visual tool for transmitting messages that can be useful in health education.
Prepare an infographic on RRMS and reproduction and evaluate its usefulness in relation to obtaining knowledge in women of childbearing age affected by this disease and who are cared for in our center.
We carry out a questionnaire for the selection of 5 topics to 10 patients affected by RRMS and between 18 and 35 years old and an infographic is developed with the most voted. We then delivered a pre- and post-visualization questionnaire of the infographic to 10 other patients, which values the subjective perception of graduated knowledge in good/regular/bad and makes 7 yes/no answer questions.
The infographic reports on: inheritance, treatments for MS and pregnancy, pregnancy and evolution of MS, pregnancy planning and postpartum. Mean of pre-infography hits was 4.4 and post-infography was 5.6 (increase 17%). 60% improved their pointing after viewing the infographic, 30% kept it and 10% made it worse. Subjective perception of pre-infography knowledge was 33.3% “good” and 66.6% regular, and post-infography changed to 77.7% “good” and 22.2% “regular”. None of them valued it as “bad” and one did not answer this question.
There are certain topics of greater interest within PF in RRMS patients that can be presented through an infographic, which seems useful in nursing work in health education.