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Relational Maintenance Behaviors Mediate the Relationship Between Alzheimer's Diagnosis Severity and Caregivers' Benefit Finding. 关系维持行为介导阿尔茨海默病诊断严重程度与照顾者利益发现的关系。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-12-01 Epub Date: 2025-05-15 DOI: 10.1080/10410236.2025.2503401
Julie Q Ball, Colter D Ray

Caregivers often experience stress, depression, anxiety, and various physical illnesses stemming from the demands and challenges of their caregiving role. However, adaptive coping mechanisms such as benefit finding can mitigate these outcomes. The present study explored the relationship between Alzheimer's diagnostic severity and caregivers' engaging in benefit finding and, more specifically, whether prosocial relational maintenance behaviors communicated by the patient to the caregiver mediates the relationship between severity and benefit finding. A sample of 152 current or former Alzheimer's caregivers completed an online survey measuring their care recipient's Alzheimer's diagnostic severity, their own propensity for benefit finding, and how often the care recipient performed relational maintenance behaviors toward them as the caregiver. Results showed no direct effect existed between Alzheimer's diagnostic severity and caregivers' benefit finding; however, the extent that patients performed relational maintenance behaviors with their caregiver mediated the relationship between Alzheimer's diagnostic severity and caregivers' benefit finding. The significant influence of relational maintenance behaviors underlines the importance and effect of communication between caregivers and care recipients throughout the progression of a disease like Alzheimer's.

照顾者经常经历压力、抑郁、焦虑和各种身体疾病,这些都源于他们照顾角色的要求和挑战。然而,适应性应对机制,如寻找利益可以减轻这些结果。本研究探讨了阿尔茨海默病诊断严重程度与照顾者参与利益寻找之间的关系,更具体地说,患者向照顾者传达的亲社会关系维持行为是否介导了严重程度与利益寻找之间的关系。152名现在或以前的阿尔茨海默氏症护理人员完成了一项在线调查,测量了他们的护理对象的阿尔茨海默氏症诊断严重程度,他们自己寻找利益的倾向,以及护理对象作为护理者对他们进行关系维护行为的频率。结果显示,阿尔茨海默病的诊断严重程度与照顾者的获益发现之间不存在直接影响;然而,患者与照顾者进行关系维持行为的程度介导了阿尔茨海默病诊断严重程度与照顾者获益发现之间的关系。关系维持行为的显著影响强调了在阿尔茨海默病等疾病的发展过程中,照顾者和被照顾者之间沟通的重要性和作用。
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引用次数: 0
"I Respect Whatever Decision You Make!" How Autonomy Support and Exemplars in Short-Form Videos Influence Clinical Trial Recruitment. “我尊重你做的任何决定!”短视频中的自主支持和范例如何影响临床试验招募。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-12-01 Epub Date: 2025-05-01 DOI: 10.1080/10410236.2025.2496745
Ciera E Kirkpatrick, Sisi Hu, Yoorim Hong, Namyeon Lee, Sungkyoung Lee, Amanda Hinnant

This study was designed to test two message features (autonomy support and evidence type) found in clinical trial recruitment videos on social media. Using an online experiment in which 606 individuals watched short-form videos about clinical trials, we assessed the impact of varying autonomy support conditions (supportive vs. non-supportive) and incorporating exemplars of a previous clinical trial participant's experience (vs. base-rate information about participating). The findings show that communicating about clinical trials with an autonomy-supportive approach can reduce psychological reactance and improve perceived message effectiveness, attitudes toward clinical trial participation, intentions to engage with the content (i.e., "liking" and sharing the content), and intentions to participate in clinical trials. When combined with an exemplar, autonomy-supportive messaging can be especially effective at reducing psychological reactance and improving attitudes toward clinical trials. The findings are well-timed, as researchers are increasingly turning to social media to enhance clinical trial recruitment.

本研究旨在测试社交媒体上临床试验招募视频中的两个信息特征(自主性支持和证据类型)。通过在线实验,606个人观看了关于临床试验的短视频,我们评估了不同自主支持条件(支持与不支持)的影响,并结合了先前临床试验参与者的经验范例(与参与的基本率信息相比)。研究结果表明,以自主支持的方式进行临床试验交流可以减少心理抗拒,提高感知信息的有效性,提高对临床试验参与的态度,参与内容的意向(即“喜欢”和分享内容),以及参与临床试验的意向。当与范例相结合时,自主支持信息在减少心理抗拒和改善对临床试验的态度方面特别有效。随着研究人员越来越多地转向社交媒体来加强临床试验招募,这些发现来得正是时候。
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引用次数: 0
An Examination of How Individuals Manage Uncertainty Around Scoliosis. 个人如何管理脊柱侧凸的不确定性的检查。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-11-30 DOI: 10.1080/10410236.2025.2594129
Katelin A Mueller, Lynsey K Romo

Adolescent idiopathic scoliosis (AIS), affecting approximately one in every 25 children, presents significant lifelong physical and psychosocial challenges. However, a systematic understanding of the sources of this uncertainty and how individuals communicatively navigate it is lacking. Thus, this qualitative study applied uncertainty management theory (UMT) to examine participants' uncertainty associated with scoliosis. The investigation identified key sources of uncertainty (medical, financial, social, and career) and management strategies through semi-structured interviews with 21 individuals diagnosed with scoliosis in adolescence. Participants appraised their uncertainty as either negative or neutral. In alignment with how they appraised their uncertainty, some interviewees sought to reduce uncertainty by seeking social support and by disclosing or concealing their illness. Others maintained uncertainty by avoiding medical information (or by being told to wait and see about their disease progression), and some adapted to their uncertainty by reframing or engaging in self-care or religion. The results highlight the need for greater medical, psychological, and social support for those diagnosed with scoliosis and highlight the importance of developing tailored uncertainty management strategies to improve patients' quality of life.

青少年特发性脊柱侧凸(AIS)大约每25名儿童中就有1名受其影响,对身体和社会心理带来了重大的终身挑战。然而,缺乏对这种不确定性的来源以及个体如何通过沟通来应对这种不确定性的系统理解。因此,本定性研究应用不确定性管理理论(UMT)来检查参与者与脊柱侧凸相关的不确定性。该调查通过对21名被诊断为青少年脊柱侧凸的患者进行半结构化访谈,确定了不确定性的主要来源(医疗、经济、社会和职业)和管理策略。参与者将他们的不确定性评价为消极或中性。根据他们如何评估自己的不确定性,一些受访者试图通过寻求社会支持和披露或隐瞒自己的疾病来减少不确定性。另一些人则通过回避医疗信息(或被告知等待观察他们的疾病进展)来保持不确定性,而一些人则通过重新规划或参与自我保健或宗教来适应他们的不确定性。研究结果强调了为脊柱侧凸患者提供更多医疗、心理和社会支持的必要性,并强调了制定量身定制的不确定性管理策略以改善患者生活质量的重要性。
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引用次数: 0
Predicting Health Information Avoidance Intentions and Behaviors: Combining a Pre-Survey and In-Situ Measurement of Individuals Affected by Acute or Chronic Health Challenges. 预测健康信息回避意向和行为:结合急性或慢性健康挑战个体的预调查和原位测量。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-11-30 DOI: 10.1080/10410236.2025.2590532
Elena Link

Given the increasing scholarly attention to health information avoidance, the current study offers a more nuanced perspective on this communication phenomenon by predicting avoidance intention and behavior and examining their interrelationship. Guided by a reduced version of the proposed model of planned risk information avoidance (PRIA), a combination of a pre-survey capturing the predictors of avoidance intention and an in-situ measurement of avoidance behavior showed that the model explained 36.1% of the variance in avoidance intention, but only 6% of the variance in the occurrence of avoidance behavior and 5.1% of the variance in the frequency of avoidance behavior. Together with the weak correlation between avoidance intention and behavior, this finding revealed an intention-behavior gap for health information avoidance and suggests that the two measures represent different dimensions of health information avoidance. These findings are critical for conceptual clarity, call for distinguishing the predictors of avoidance intention and behavior within the PRIA, and provide guidance for methodological decisions.

鉴于学术界对健康信息回避的关注日益增加,本研究通过预测回避意图和行为以及检查它们之间的相互关系,为这种交流现象提供了更细致入微的视角。在精简版的计划风险信息回避模型(PRIA)的指导下,通过捕获回避意向预测因子的预调查和对回避行为的现场测量相结合,表明该模型解释了36.1%的回避意向方差,但仅解释了6%的回避行为发生方差和5.1%的回避行为频率方差。结合回避意向与行为之间的弱相关性,这一发现揭示了健康信息回避的意向-行为差距,表明两种测量方法代表了健康信息回避的不同维度。这些发现对于明确概念至关重要,要求在PRIA中区分回避意图和行为的预测因素,并为方法决策提供指导。
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引用次数: 0
Shield or Shackle? Exploring the Paradoxical Role of Restrictive Mediation in Adolescent Depression. 盾牌还是镣铐?探究青少年抑郁中限制性中介的矛盾作用。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-11-26 DOI: 10.1080/10410236.2025.2592117
Wei Ren, Rong Huang

Previous research has largely focused on whether restrictive mediation reduces online time or addiction risks, ignoring adolescents' resistance and its psychological outcomes. Considering adolescents' agency in their socialization process, this study explores whether restrictive mediation shields them from depression by limiting entertaining-oriented Internet use (EIU) or inadvertently exacerbates depression by triggering resistance to parental control (RPC), either directly or indirectly through increased EIU. Using data from 7,965 Chinese adolescents and employing structural equation modeling, the study found that more frequent restrictions were associated with reduced EIU, which in turn predicted lower levels of depression. However, frequent restrictions also triggered RPC, which directly increased depression and led to greater engagement in restricted activities, thereby offsetting the intended protective effects of restrictions. Moreover, the study examined varying restriction styles (i.e. how parents implement restrictions) and revealed that their impact on depression depended on both the implementation style and adolescents' responses.

以前的研究主要集中在限制性调解是否减少了上网时间或成瘾风险,而忽视了青少年的抵抗及其心理后果。考虑到青少年在社会化过程中的中介作用,本研究探讨了限制性调解是否通过限制娱乐导向的互联网使用(EIU)来保护他们免受抑郁,或者通过增加EIU直接或间接地引发对父母控制的抵抗(RPC)而无意中加剧了抑郁。该研究使用了来自7965名中国青少年的数据,并采用结构方程模型,发现更频繁的限制与EIU降低有关,这反过来又预示着更低的抑郁水平。然而,频繁的限制也会引发RPC,这直接增加了抑郁症,导致更多地参与受限制的活动,从而抵消了限制的预期保护作用。此外,该研究考察了不同的限制方式(即父母如何实施限制),并揭示了它们对抑郁症的影响取决于实施方式和青少年的反应。
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引用次数: 0
Ebola in Uganda: Analyzing the Ministry of Health's Response to the 2022 Outbreak on "X" (Formerly Twitter) Through a Cultural-Sensitivity Approach. 乌干达的埃博拉:通过文化敏感性方法分析卫生部对“X”(以前的Twitter)上最近爆发的疫情的反应。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-11-26 DOI: 10.1080/10410236.2025.2588894
Miriam Komuhendo, Faith Afua Otchere

This study examined the crisis communication strategies employed by Uganda's Ministry of Health (MOH) in response to the 2022 Ebola outbreak using a cultural-sensitivity approach. We examined Tweets from September 19 2022, to January 11 2023, during the time of the outbreak. Our findings showed that the ministry responded to the outbreak by using communication best practices, including instructing information and adjusting information. The study also found that the MOH adopted a cultural-sensitivity approach in their risk communication, which included acknowledging and addressing cultural practices that spread Ebola, the use of trusted actors in the communities, adopting religious language in their communication, and community engagement; mobilization, vigilance, and reporting. We conclude that risk communication and risk management efforts can be successful when messages are tailored to specific populations with their cultural beliefs and practices in mind.

本研究考察了乌干达卫生部(MOH)采用文化敏感性方法应对最近埃博拉疫情时采用的危机沟通策略。我们检查了2022年9月19日至2023年1月11日爆发期间的推文。我们的调查结果表明,卫生部通过使用沟通最佳做法应对疫情,包括指导信息和调整信息。该研究还发现,卫生部在风险沟通中采取了文化敏感性方法,包括承认和解决传播埃博拉的文化习俗,在社区中使用可信任的行为者,在沟通中采用宗教语言,以及社区参与;动员、警惕和报告。我们的结论是,当信息针对特定人群并考虑到他们的文化信仰和实践时,风险沟通和风险管理工作可以取得成功。
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引用次数: 0
Hygiene and the New China: The Rhetoric and Mobilization of the Patriotic Health Movement (1952-1960). 卫生与新中国:爱国卫生运动的修辞与动员(1952-1960)。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-11-25 DOI: 10.1080/10410236.2025.2591266
Xudong Zhou, Kaibin Xu

The Chinese Patriotic Health Movement (PHM), launched in the early years of the People's Republic of China, was a large-scale campaign aimed at promoting public health. Drawing on Innocenti's (2011) framework of rhetorical threat appeals, this study analyzed the People's Daily and related sources to examine the PHM's mobilization strategies within an authoritarian political context. The PHM successfully mobilized public participation by consistently framing public health as essential for national security, thereby mitigating threats caused by the Korean War. This mobilization employed three rhetorical strategies: 1) Collectivist discourse, presenting public health as a collective endeavor to counter the "U.S. bacterial warfare"; 2) revolutionary and war metaphors, utilizing the Chinese people's war memories and nationalistic sentiment to energize behavioral change; and 3) life ethics, through appealing to emotions of patriotism and honor, framing hygiene as an ethical imperative for national progress and socialist construction. The analysis reveals that the PHM's use of threat appeals emphasized positive emotions and national unity rather than individual fear, aligning with the new regime's narrative of national development.

中国爱国卫生运动(PHM)发起于中华人民共和国成立之初,是一场旨在促进公共卫生的大规模运动。借鉴Innocenti(2011)的修辞威胁呼吁框架,本研究分析了《人民日报》和相关来源,以考察PHM在威权政治背景下的动员策略。PHM通过一贯地将公共卫生视为国家安全的基本要素,从而成功地动员了公众参与,从而减轻了朝鲜战争造成的威胁。这次动员采用了三种修辞策略:1)集体主义话语,将公共卫生视为对抗“美国细菌战”的集体努力;2)革命和战争隐喻,利用中国人的战争记忆和民族主义情绪激发行为改变;3)生命伦理,通过唤起爱国和荣誉的情感,将卫生作为民族进步和社会主义建设的道德要求。分析表明,PHM使用威胁呼吁强调积极情绪和民族团结,而不是个人恐惧,与新政权的国家发展叙事一致。
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引用次数: 0
Stigma, Abuse, and Resistance: Unveiling Community Fear of COVID-19 Through Voices of India's Frontline Community Health Workers. 污名、虐待和抵抗:通过印度一线社区卫生工作者的声音揭示社区对COVID-19的恐惧。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-11-25 DOI: 10.1080/10410236.2025.2588896
Samiksha Pattanaik, Mohan Jyoti Dutta

During the COVID-19 pandemic, community health workers (CHWs) worldwide faced violence and abuse. In India, CHWs, known as Accredited Social Health Activists (ASHAs), encountered community resistance and violence in their frontline roles. However, positioned precariously within a neoliberal public health system, their voices remained absent in policymaking, reinforcing structural invisibility. This study, guided by the culture-centered approach (CCA), draws on semi-structured interviews (n = 30) with ASHAs in Odisha, India, to examine their negotiations with community resistance. Findings reveal that resistance and abuse stemmed from structurally induced fears-misinformation spread via social media, loss of wages, restricted access to resources due to quarantine measures, and community ostracization. However, rather than being passive recipients of violence, ASHAs exercised agency through self-created strategies such as peer learning, leveraging social ties, persistent counseling, and voicing their concerns to senior officials-despite their hierarchical marginalization. This study highlights how India's neoliberal public health system-relying on ASHAs as underpaid, unprotected workers-intensified their vulnerabilities. The individualization of health responsibility manifested at multiple levels: ASHAs were held responsible for pandemic control without adequate resources, while community resistance to top-down health measures was criminalized rather than viewed as a response to structural violence. This framing absolved the state of responsibility, displacing blame onto ASHAs and marginalized communities. The study calls for bottom-up decision-making spaces that include CHWs and their communities as stakeholders, ensuring pandemic policies address systemic inequities rather than penalizing vulnerable populations.

在2019冠状病毒病大流行期间,世界各地的社区卫生工作者面临暴力和虐待。在印度,被称为“认可社会卫生活动家”(ASHAs)的卫生工作者在前线工作时遇到了社区的抵制和暴力。然而,由于在新自由主义的公共卫生体系中处于不稳定的地位,他们在政策制定中仍然缺席,从而加强了结构性的不可见性。本研究在以文化为中心的方法(CCA)的指导下,对印度奥里萨邦的asha进行了半结构化访谈(n = 30),以检查他们与社区抵抗的谈判。调查结果显示,抵抗和虐待源于结构性引发的恐惧——通过社交媒体传播的错误信息、工资损失、因隔离措施而限制获取资源以及社区排斥。然而,ASHAs并没有成为暴力的被动接受者,而是通过自我创造的策略来行使代理权,比如同伴学习,利用社会关系,持续的咨询,以及向高级官员表达他们的担忧——尽管他们的等级被边缘化。这项研究强调了印度的新自由主义公共卫生系统——依赖于低收入、不受保护的asha工人——如何加剧了他们的脆弱性。卫生责任的个体化表现在多个层面上:在没有足够资源的情况下,asas负责控制大流行病,而社区对自上而下的卫生措施的抵制被定为犯罪,而不是被视为对结构性暴力的反应。这种框架免除了国家的责任,将责任推给了asha和边缘化社区。该研究呼吁建立自下而上的决策空间,将卫生工作者及其社区作为利益攸关方纳入其中,确保大流行病政策解决系统性不平等问题,而不是惩罚弱势群体。
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引用次数: 0
Information Landscape on Cervical Cancer: An Analysis of News and Online Platform Data in the Republic of Korea. 子宫颈癌的信息格局:韩国新闻和在线平台数据分析。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-11-24 DOI: 10.1080/10410236.2025.2587893
Hye-Sun Lee, Gyeong-U Hong, Wonjeong Jeong, Kyounghee Oh, Jae Kwan Jun

This study examined the information landscape on cervical cancer by employing the extended cancer infodemiology framework and integrated analysis. We analyzed and compared news articles and online platform posts as the two primary sources of health information regarding cancer. Data were collected from BigKinds, a news article database, and blogs and café posts on Naver, which dominates the health information search market in Korea. We analyzed 68,977 documents (news n = 1,043, blog posts n = 56,455, café posts n = 11,479) using traditional manual coding, frequency analysis, and topic modeling to address our research questions. Results show that the key topics differ between news articles and online platform posts on cervical cancer. News covered the "development and clinical trials of treatment" prominently, while recommended hospitals for checkups (blogs) and seeking recommendations for OB/GYN clinics (cafés) were prominent in online platforms. The Cervical Cancer Awareness Month could not influence the frequency or topic of news articles or online platform posts on cervical cancer in Korea. Moreover, the findings show that the dominant engagers were economic daily newspapers (news articles), hospital accounts (blogs), and the cafés on family and childrearing. This study offers empirical evidence of differing pictures across digital platforms. Furthermore, it discusses the possibility that dominant engagers or their interests could have influenced different pictures in the information landscape on cervical cancer.

本研究采用扩展癌症资讯流行病学架构及综合分析,检视子宫颈癌的资讯现况。我们分析并比较了新闻文章和在线平台帖子作为癌症健康信息的两个主要来源。这些数据是通过新闻数据库“BigKinds”和在健康信息搜索市场占据主导地位的Naver的博客和咖啡帖子收集的。我们使用传统的手工编码、频率分析和主题建模来解决我们的研究问题,分析了68,977篇文档(新闻n = 1,043,博客n = 56,455,咖啡馆n = 11,479)。结果表明,新闻报道和网络平台上关于宫颈癌的帖子的关键话题有所不同。新闻突出地报道了“治疗的发展和临床试验”,而在线平台上则突出地报道了推荐检查医院(博客)和寻求OB/GYN诊所的建议(caf)。“子宫颈癌宣传月”不能影响新闻报道的频率或话题,也不能影响网络平台上有关子宫颈癌的帖子。此外,调查结果表明,主要的参与者是经济日报(新闻文章)、医院账户(博客)和关于家庭和儿童养育的咖啡馆。本研究提供了数字平台上不同图片的经验证据。此外,它还讨论了主导参与者或他们的利益可能影响宫颈癌信息景观中不同图片的可能性。
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引用次数: 0
Disparities in Healthcare Services Efficiency and Patient-Provider Communication Quality Among Deaf and Hard-of-Hearing Patients in the U.S.: A Multi-Year Cross-Sectional Analysis (2017-2020). 美国耳聋和听力障碍患者的医疗服务效率和患者-提供者沟通质量差异:一项多年横断面分析(2017-2020)。
IF 2.7 3区 医学 Q1 COMMUNICATION Pub Date : 2025-11-20 DOI: 10.1080/10410236.2025.2589346
Jizhou Francis Ye, Piper Liping Liu, Haonan Guo

The marginalization of the Deaf and Hard of Hearing (D/HH) group arises from barriers at multiple levels of the socio-ecological matrix. This is primarily reflected in challenges related to effective healthcare services delivery and high-quality patient-provider communication. Utilizing national data from the Health Information National Trends Survey (HINTS) from 2017 to 2020, we examined the difference between D/HH adults and hearing-abled adults in terms of healthcare services efficiency, patient-provider communication quality, health self-efficacy, and psychological health. The findings revealed that D/HH adults consistently exhibited lower levels than hearing adults in healthcare services efficiency, health self-efficacy, and psychological health, and these differences remained evident from 2017 to 2020. However, the difference in patient-provider communication quality between the two groups was not significant. The study further investigates health self-efficacy as a potential mediator influencing the efficiency of healthcare services and quality of patient-provider communication in their relationship with psychological health. Our findings highlight the imperative to devise specialized communication strategies and enhance healthcare services for the D/HH group.

聋人和重听人(D/HH)群体的边缘化源于社会生态矩阵多个层面的障碍。这主要反映在与有效提供医疗保健服务和高质量医患沟通相关的挑战上。利用2017 - 2020年健康信息全国趋势调查(hint)的全国数据,我们研究了D/HH成人和听力障碍者在医疗服务效率、医患沟通质量、健康自我效能感和心理健康方面的差异。研究结果显示,2017年至2020年,D/HH成年人在医疗服务效率、健康自我效能和心理健康方面的水平始终低于听力成年人,且差异仍然明显。然而,两组之间的医患沟通质量差异不显著。本研究进一步探讨健康自我效能感作为影响医疗服务效率和医患沟通质量与心理健康关系的潜在中介。我们的研究结果强调了为D/HH群体设计专门的沟通策略和加强医疗保健服务的必要性。
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引用次数: 0
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