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Alcohol use after metabolic and bariatric surgery: a qualitative investigation of the relation with mood and food. 代谢和减肥手术后饮酒:与情绪和食物关系的定性调查。
IF 2.4 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-03-13 eCollection Date: 2025-01-01 DOI: 10.1080/21642850.2025.2478029
Lisa R Miller-Matero, Alyssa Vanderziel, Erin N Haley, Kristina M Jackson, Roland S Moore, Aaron Hamann, Arthur M Carlin, Jeffrey Genaw, Jordan M Braciszewski

Background: Individuals who undergo metabolic and bariatric surgery are at increased risk for an alcohol use disorder. Clarity on the relationships between mood, food, and alcohol use could inform interventions to reduce alcohol use and mitigate risk of alcohol use disorders after metabolic and bariatric surgery (MBS).

Methods: Twenty patients who underwent MBS at a single health care system and reported engaging in post-operative alcohol use were recruited. Participants were between 6 months and 3 years post-operative and reported consuming alcohol at least 2-3 times per month. Participants engaged in a 1-hour semi-structured interview about factors influencing post-operative mood, eating behaviors, and alcohol use. All interviews were recorded, transcribed, and coded by two independent raters.

Results: Statements by participants were deductively coded within different themes: (1) changes in mood, (2) changes in eating patterns, and (3) unintended alcohol use and eating. Participants reported positive changes in mood and eating behaviors following MBS, but also indicated potential for negative mood states and new eating patterns. They also suggested that mood was a driver of both eating and alcohol use, including unintended (i.e. unplanned) eating and unintended alcohol use. However, most did not consume food and alcohol at the same time.

Discussion: Food and alcohol may be used as a coping strategy for mood, though they are not often consumed together. There is currently a lack of post-operative interventions to reduce alcohol use and findings suggest that interventions could simultaneously target mood, unintended eating, and alcohol use.

背景:接受代谢和减肥手术的个体发生酒精使用障碍的风险增加。明确情绪、食物和酒精使用之间的关系可以为干预措施提供信息,以减少酒精使用并减轻代谢和减肥手术(MBS)后酒精使用障碍的风险。方法:招募了20例在单一医疗保健系统接受MBS并报告术后饮酒的患者。参与者术后6个月至3年,报告每月至少饮酒2-3次。参与者参与了一个1小时的半结构化访谈,内容涉及影响术后情绪、饮食行为和饮酒的因素。所有的访谈都由两位独立的评价者进行记录、转录和编码。结果:参与者的陈述在不同的主题中被演绎编码:(1)情绪的变化,(2)饮食模式的变化,(3)意外饮酒和饮食。参与者报告了MBS后情绪和饮食行为的积极变化,但也表明了消极情绪状态和新的饮食模式的可能性。他们还表示,情绪是饮食和饮酒的驱动因素,包括无意的饮食和无意的饮酒。然而,大多数人并没有同时进食和饮酒。讨论:食物和酒精可以作为一种应对情绪的策略,尽管它们不经常一起食用。目前缺乏减少酒精使用的术后干预措施,研究结果表明,干预措施可以同时针对情绪、意外进食和酒精使用。
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引用次数: 0
A N-of-1 social network approach to study the social dynamics of alcohol consumption. 用N-of-1社会网络方法研究酒精消费的社会动态。
IF 2.4 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-03-09 eCollection Date: 2025-01-01 DOI: 10.1080/21642850.2025.2465616
Dominika Kwasnicka, Aileen O'Gorman, Martin Anderson, Louise Bowman, Mark McCann

Introduction: The aim of this study was to investigate how the dynamics of the social environment impacted the alcohol consumption of individuals who self-identified as heavy drinkers.

Methods: A mixed methods approach including N-of-1 study with daily Ecological Momentary Assessment (EMA) followed by a social network egonet interview. Qualitative data was analysed using deductive and inductive approaches. The main quantitative outcomes were a number of social contacts and the supportiveness of social networks.

Results: Fifteen participants provided sufficient EMA data regarding social contact and six of these took part in the egonet interviews. EMA respondents reported 10.8 social contacts on average and rated approximately half of their networks as positive supports; approximately 10% of each respondents' networks were perceived as 'drinking a lot'. Interview data illustrated the influence of peer and family networks; stress; motivation levels; and coping strategies within the context of the social world. EMA and egonet methods proved feasible with this specific population demonstrating the utility of innovative approaches to study dynamic social contexts related to substance use.

Discussion: Respondents either drew upon their social resources and implemented strategies to support behaviour change or experienced social strain and poor mental health in the absence of supportive social strategies. Future research should explore how social networks can impact maintaining non-drinking status and accessing supports. Mixed methods research combining N-of-1, EMA, and egonets can provide novel insights into social dynamics.

引言:本研究的目的是调查社会环境的动态如何影响自我认定为重度饮酒者的酒精消费。方法:采用N-of-1研究、每日生态瞬间评价(EMA)和社会网络自我网络访谈相结合的混合方法。定性数据分析采用演绎和归纳的方法。主要的量化结果是社会接触的数量和社会网络的支持性。结果:15名参与者提供了足够的关于社会接触的EMA数据,其中6人参加了自我网络访谈。EMA受访者平均有10.8个社交联系人,并将大约一半的网络评为积极支持;每个受访者的网络中大约有10%被认为是“大量饮酒”。访谈数据说明了同伴和家庭网络的影响;压力;动机水平;以及在社会环境下的应对策略。EMA和自我网方法在这一特定人群中被证明是可行的,这表明了创新方法在研究与物质使用相关的动态社会背景方面的实用性。讨论:答复者要么利用其社会资源并实施支持行为改变的战略,要么在缺乏支持性社会战略的情况下经历社会压力和心理健康状况不佳。未来的研究应该探索社交网络如何影响保持不饮酒状态和获得支持。结合N-of-1、EMA和自我模型的混合方法研究可以为社会动态提供新的见解。
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引用次数: 0
Physical activity during pregnancy: key beliefs to support intervention. 怀孕期间的身体活动:支持干预的关键信念。
IF 2.4 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-02-27 eCollection Date: 2025-01-01 DOI: 10.1080/21642850.2025.2468841
Laurence Simard, Stéphanie Girard, Jean Lemoyne, Véronique Babineau, Stephanie-May Ruchat

Background: Physical activity (PA) provides maternal and fetal health benefits, but only 27.5% of Canadian pregnant women meet PA recommendations. Theory-based interventions like the theory of planned behavior (TPB) are useful in explaining what drives behavior. The first objective of this study was to validate the TPB model to predict prenatal moderate-to-vigorous physical activity (MVPA), including testing of the novel interaction between intention and perceived behavioral control (PBC). The second objective was to identify which specific beliefs predict intention toward prenatal MVPA to support intervention.

Method: We used a prospective correlational design. Healthy pregnant women completed two electronic questionnaires: at baseline, to assess TPB constructs, and one month later, to assess MVPA practice. Structural equation modeling was conducted with Latent Moderated Structural Equations. The interaction was interpreted with the pick-a-point method and the Johnson-Neyman graphical method.

Results: The sample consists of 193 women (M age = 31.2±3.6). Results indicate that prenatal MVPA at one month was marginally predicted by intention (β = 0.149; p < 0.10) and PBC (β = 0.322; p < 0.05, MVPA R 2 = 20%), but when their interaction was added to the model, MVPA R 2 increased to 44%. Specifically, the relationship between intention and MVPA is stronger when PBC is high (0.5 standard deviation over the mean). In the full model including the interaction, attitude (β = 0.59; p < 0.001), subjective norm (β = 0.20; p < 0.01) and PBC (β = 0.26; p < 0.05) all made a significant contribution to predicting MVPA intention (R 2  = 88%). Finally, the following beliefs displayed significant indirect paths toward the intention of being physically active: behavioral beliefs: unlikely to be more tired and likely feel better mentally; normative beliefs: approval from friends and from mother/father; and control beliefs: being tired and missing social support.

Conclusion: Interventions aiming to promote regular MVPA during pregnancy should prioritized the six significant beliefs identified to significantly predict intention toward prenatal MVPA.

背景:体育活动(PA)对母亲和胎儿健康有益,但只有27.5%的加拿大孕妇符合PA的建议。以理论为基础的干预,如计划行为理论(TPB),在解释驱动行为的因素方面很有用。本研究的第一个目的是验证TPB模型预测产前中高强度体力活动(MVPA),包括测试意向和感知行为控制(PBC)之间的新相互作用。第二个目标是确定哪些特定的信念可以预测产前MVPA的意向,以支持干预。方法:采用前瞻性相关设计。健康孕妇完成了两份电子问卷:基线时评估TPB结构,一个月后评估MVPA实践。采用潜在调节结构方程进行结构方程建模。用点取法和Johnson-Neyman图解法解释了相互作用。结果:共纳入193例女性(M年龄= 31.2±3.6)。结果表明,妊娠1月产期MVPA与意向有边际预测关系(β = 0.149;p β = 0.322;p r2 = 20%),但当它们的相互作用加入到模型中时,MVPA r2增加到44%。具体而言,当PBC较高(高于平均值0.5个标准差)时,意向与MVPA之间的关系更强。在包含交互作用的全模型中,态度(β = 0.59;p β = 0.20;p β = 0.26;p r2 = 88%)。最后,以下信念对身体活动的意图显示出重要的间接路径:行为信念:不太可能更累,可能感觉更好;规范性信念:来自朋友和母亲/父亲的认可;控制信念:疲倦和缺少社会支持。结论:旨在促进妊娠期定期MVPA的干预措施应优先考虑六个重要信念,这些信念可显著预测产前MVPA的意向。
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引用次数: 0
Human rights violation of trans women in Umlazi Township, South Africa: an interpretive phenomenological analysis study. 南非乌姆拉齐镇跨性别妇女的人权侵犯:解释性现象学分析研究。
IF 2.4 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-02-21 eCollection Date: 2025-01-01 DOI: 10.1080/21642850.2025.2468317
Ruth Ntombifuthi Luthuli, Idah Moyo, Azwihangwisi Helen Mavhandu-Mudzusi

This paper reports on human rights violation of trans women in Umlazi township in South Africa. Violation of trans women's human rights happens in several countries regardless of their constitutional stance regarding LGBTQI policies. Although South Africa was the first country to outlaw discrimination based on sexual orientation with its democratic Constitution of 1996, it is not an exception to these violations of transgender people's human rights. This paper presents human rights violations experienced by trans women's in Umlazi township in South African. The study was qualitative in nature utilising an interpretative phenomenological analysis design. Data was collected through semi-structured interviews from eight criterion purposively selected trans women from Umlazi township. Data was analysed guided by an interpretative analytics framework. Two key themes emerged from the study: the types of human rights violations and their sources. The findings indicated that trans women experience several types of human rights violations, including violations of their right to safety, freedom of expression, access to employment, and the right to human dignity. The sources of these human rights violations for trans women include cis-normative infrastructure, transphobic communities, and transphobic public officials. Understanding these experiences is crucial in developing measures to conscientize communities, foster tolerance and promoting social inclusivity of transgender people in society. The findings provide insights that can facilitate positive changes in how communities perceive transgender persons.

本文报告了南非乌姆拉齐镇侵犯变性妇女人权的情况。在一些国家,无论其宪法对男女同性恋、双性恋、变性者和跨性别者(LGBTQI)政策持何种立场,侵犯变性妇女人权的行为都时有发生。虽然南非是第一个通过 1996 年民主宪法宣布基于性取向的歧视为非法的国家,但它也不例外。本文介绍了南非乌姆拉齐镇变性妇女的人权遭受侵犯的情况。本研究采用解释性现象学分析设计,属于定性研究。数据是通过半结构式访谈收集的,访谈对象是有目的性地从乌姆拉齐镇挑选出的八名变性妇女。数据在解释性分析框架的指导下进行分析。研究中出现了两个关键主题:侵犯人权行为的类型及其来源。研究结果表明,变性妇女的人权受到多种侵犯,包括安全权、表达自由权、就业权和人格尊严权受到侵犯。这些侵犯变性妇女人权行为的来源包括顺式规范的基础设施、仇视变性人的社区和仇视变性人的公职人员。了解这些经历对于制定措施以提高社区良知、促进宽容以及推动社会对变性人的包容至关重要。研究结果提供的见解可以促进社区积极改变对变性人的看法。
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引用次数: 0
Factors influencing regular exercise in young women: a survey study assessing the preferences and motivators for aerobic and muscle-strengthening exercise. 影响年轻女性定期运动的因素:一项评估有氧和肌肉强化运动偏好和动机的调查研究。
IF 2.4 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-02-18 eCollection Date: 2025-01-01 DOI: 10.1080/21642850.2025.2465613
Chloe S Jones, Katherine E Spring, Danielle D Wadsworth

Young adult women have unique barriers to exercise, but assessing the psychological and behavioral strategies of women who overcome these barriers may be beneficial for informing future exercise programs. This study assessed differences in motives and self-regulation by type (aerobic or muscle-strengthening) and frequency of exercise, along with preferences for exercise amongst young adult women who exercise regularly.

Methods: A survey assessed exercise frequency (International Physical Activity Questionnaire), intensity (Borg's scale), type, and social and physical preferences. The Exercise Motivations Inventory-2 measured motivators for exercise and the Physical Activity Self-Regulation Scale measured self-regulation. Characteristics and preferences for exercise were examined using descriptives and frequencies. MANOVAs assessed differences in motivators and self-regulation by frequency of exercise, and regression analyses assessed differences in exercise predictors by type.

Results: The sample consisted of 269 women ages 18-34 (66.5% White), of whom 80.3% met the national guidelines for aerobic exercise, 78.4% met the guidelines for muscle-strengthening exercise, and 32.3% identified resistance exercise as their preferred type of exercise. Weight management and self-regulation (p = .021, R2 = .073) were the strongest predictors of aerobic exercise. Positive health, strength and endurance, and self-regulation (p = .023, R2 = .161) were predictors of muscle-strengthening exercise. Women who participated in high amounts of aerobic exercise were motivated by interpersonal factors while psychological factors motivated high frequency of muscle-strengthening exercise.

Conclusions: Programs for young adult women should consider incorporating resistance exercise as this study shows it may evoke motivation that could lead to regular participation. Self-regulation strategies were associated with adherence to both aerobic and muscle-strengthening exercises, highlighting the potential importance for inclusion in future interventions.

年轻的成年女性有独特的运动障碍,但评估克服这些障碍的女性的心理和行为策略可能对未来的运动计划有益。这项研究评估了运动类型(有氧运动或肌肉强化运动)和运动频率在动机和自我调节方面的差异,以及经常运动的年轻成年女性的运动偏好。方法:通过调查评估运动频率(国际体育活动问卷)、强度(博格量表)、类型以及社会和身体偏好。运动动机量表-2测量运动动机,身体活动自我调节量表测量自我调节。使用描述和频率检查运动的特征和偏好。方差分析通过运动频率评估激励因素和自我调节的差异,回归分析根据运动类型评估运动预测因素的差异。结果:样本包括269名年龄在18-34岁之间的女性(白人占66.5%),其中80.3%符合国家有氧运动指南,78.4%符合肌肉强化运动指南,32.3%的人认为阻力运动是他们首选的运动类型。体重管理和自我调节(p =。021, R2 = .073)是有氧运动的最强预测因子。积极的健康,力量和耐力,和自我调节(p =。0.23, R2 = .161)为肌肉强化运动的预测因子。参与大量有氧运动的女性主要受人际因素的影响,而参与高频率肌肉强化运动的女性主要受心理因素的影响。结论:针对年轻成年女性的项目应该考虑纳入抗阻运动,因为这项研究表明,它可能会激发动力,导致定期参与。自我调节策略与坚持有氧运动和肌肉强化运动有关,强调了将其纳入未来干预措施的潜在重要性。
{"title":"Factors influencing regular exercise in young women: a survey study assessing the preferences and motivators for aerobic and muscle-strengthening exercise.","authors":"Chloe S Jones, Katherine E Spring, Danielle D Wadsworth","doi":"10.1080/21642850.2025.2465613","DOIUrl":"10.1080/21642850.2025.2465613","url":null,"abstract":"<p><p>Young adult women have unique barriers to exercise, but assessing the psychological and behavioral strategies of women who overcome these barriers may be beneficial for informing future exercise programs. This study assessed differences in motives and self-regulation by type (aerobic or muscle-strengthening) and frequency of exercise, along with preferences for exercise amongst young adult women who exercise regularly.</p><p><strong>Methods: </strong>A survey assessed exercise frequency (International Physical Activity Questionnaire), intensity (Borg's scale), type, and social and physical preferences. The Exercise Motivations Inventory-2 measured motivators for exercise and the Physical Activity Self-Regulation Scale measured self-regulation. Characteristics and preferences for exercise were examined using descriptives and frequencies. MANOVAs assessed differences in motivators and self-regulation by frequency of exercise, and regression analyses assessed differences in exercise predictors by type.</p><p><strong>Results: </strong>The sample consisted of 269 women ages 18-34 (66.5% White), of whom 80.3% met the national guidelines for aerobic exercise, 78.4% met the guidelines for muscle-strengthening exercise, and 32.3% identified resistance exercise as their preferred type of exercise. Weight management and self-regulation (<i>p</i> = .021, R<sup>2</sup> = .073) were the strongest predictors of aerobic exercise. Positive health, strength and endurance, and self-regulation (<i>p</i> = .023, R<sup>2</sup> = .161) were predictors of muscle-strengthening exercise. Women who participated in high amounts of aerobic exercise were motivated by interpersonal factors while psychological factors motivated high frequency of muscle-strengthening exercise.</p><p><strong>Conclusions: </strong>Programs for young adult women should consider incorporating resistance exercise as this study shows it may evoke motivation that could lead to regular participation. Self-regulation strategies were associated with adherence to both aerobic and muscle-strengthening exercises, highlighting the potential importance for inclusion in future interventions.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"13 1","pages":"2465613"},"PeriodicalIF":2.4,"publicationDate":"2025-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11837932/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143457556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
'In the dark': parents' lifelong commitment to supporting children with Bardet-Biedl syndrome. “在黑暗中”:父母一生致力于支持患有巴氏综合症的孩子。
IF 2.4 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-02-17 eCollection Date: 2025-01-01 DOI: 10.1080/21642850.2025.2467432
Jeanette Ullmann Miller, Lena Fauske, Solrun Sigurdardottir, Shahrzad Arfa, Charlotte von der Lippe

Background: Bardet-Biedl syndrome (BBS) is a rare disorder involving a complex combination of eye and kidney diseases, obesity and learning difficulties. To better understand the roles of family caregivers, this study sought to explore parents' experiences of supporting adult children with BBS.

Method: This study included 17 parents of adult children with BBS. Semi-structured interviews were used as the research method. The generated data were interpreted using a reflexive thematic analysis, which employed a phenomenological and hermeneutical approach.

Result: Four themes were identified - namely, worries and expectations for the child's future, advocate and companion, in the power of the health and support system, and sources of support and coping. The findings indicate that the parents' everyday lives are affected in many ways by caring for adult children with BBS.

Conclusion: This study highlights the various roles and responsibilities of parents of adult children with BBS, including advocating for health services and attempting to fill gaps in care and social relationships. Hence, the findings of this study provide valuable insights for health professionals and support systems, helping to identify key areas for future initiatives aimed at better addressing the needs of adults with BBS and their parents.

背景:Bardet-Biedl综合征(BBS)是一种罕见的疾病,涉及眼睛和肾脏疾病、肥胖和学习困难的复杂组合。为了更好地了解家庭照顾者的角色,本研究试图探讨父母支持患有BBS的成年子女的经验。方法:本研究纳入17名成年BBS患儿的父母。采用半结构化访谈作为研究方法。生成的数据使用反身性主题分析进行解释,该分析采用现象学和解释学方法。结果:确定了四个主题-即对儿童未来的担忧和期望,倡导者和伴侣,健康和支持系统的力量,以及支持和应对的来源。研究结果表明,照顾患有BBS的成年儿童对父母的日常生活产生了多方面的影响。结论:本研究强调了患有BBS的成年子女的父母的各种角色和责任,包括倡导卫生服务,并试图填补照顾和社会关系方面的空白。因此,本研究的发现为卫生专业人员和支持系统提供了有价值的见解,有助于确定未来倡议的关键领域,旨在更好地解决患有BBS的成年人及其父母的需求。
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引用次数: 0
Navigating competing needs: a qualitative study on parenthood with a partner with Huntington's disease. 导航竞争需求:与患有亨廷顿舞蹈症的伴侣一起为人父母的定性研究。
IF 2.4 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-02-17 eCollection Date: 2025-01-01 DOI: 10.1080/21642850.2025.2465614
Kristin J Billaud Feragen, Sidsel Egedal, Siri Hagen Kjolaas

Objective: Huntington's disease (HD) is a rare neurodegenerative condition characterised by progressive symptoms affecting motricity, cognition, neuropsychiatric function and behaviour. HD develops during a period of life in which many live in partnership and have children. HD impacts all family members through its cognitive and psychological symptoms, mid-life onset, long disease trajectory and genetic risk. The aim of the study was to explore how parents without HD experience and manage parenthood when their partner is affected by HD.

Methods: Qualitative interviews with 14 caregivers were analysed using reflexive thematic analysis.

Results: Three main themes with corresponding subthemes were identified, followed by an underlying theme: Genetic risk: An underlying layer of complexity. The first theme, Balancing competing demands, describes the challenges involved when attempting to attend to conflicting needs within the family. Theme 2, Needing a shoulder to lean on, covers participants' feelings of loneliness and their need to be seen by others, whereas Theme 3, Restoring and building strength, encompasses coping strategies used by caregivers to protect themselves and their children from potential negative experiences. The underlying theme describes how the genetic aspect of the disease permeates the participants' experiences across all other themes.

Conclusion: Support providers may be unaware of the extensive repercussions HD can have on a family. Acknowledging the central role of partners without HD and their risk of psychological distress is crucial. Exhausted partners may struggle to support their children, which may lead to childhoods overshadowed by HD. For family members to prioritise their own needs, tailored support must be set in place for parents with HD.

目的:亨廷顿舞蹈病(HD)是一种罕见的神经退行性疾病,其特征是进行性症状影响运动、认知、神经精神功能和行为。HD是在许多人生活在伴侣关系中并有孩子的时期发展起来的。HD通过其认知和心理症状、中年发病、长期疾病轨迹和遗传风险影响所有家庭成员。该研究的目的是探讨当伴侣患有HD时,没有HD的父母如何经历和管理父母关系。方法:采用自反性主题分析对14名护理人员进行定性访谈。结果:确定了三个具有相应子主题的主题,然后是一个潜在的主题:遗传风险:复杂性的底层。第一个主题,平衡相互竞争的需求,描述了在试图满足家庭内部相互冲突的需求时所涉及的挑战。主题2“需要一个可以依靠的肩膀”涵盖了参与者的孤独感和他们被他人关注的需求,而主题3“恢复和建立力量”涵盖了照顾者用来保护自己和孩子免受潜在负面经历影响的应对策略。潜在主题描述了该疾病的遗传方面如何渗透到参与者的所有其他主题的经历中。结论:支持提供者可能没有意识到HD对家庭的广泛影响。认识到没有艾滋病的伴侣的核心作用及其心理困扰的风险至关重要。疲惫不堪的伴侣可能难以抚养孩子,这可能导致他们的童年被HD蒙上阴影。为了让家庭成员优先考虑自己的需要,必须为患有自闭症的父母提供量身定制的支持。
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引用次数: 0
Dataset for a qualitative interview study exploring the barriers and facilitators to using and recommending aspirin for cancer prevention. 一项质性访谈研究的数据集,探讨使用和推荐阿司匹林预防癌症的障碍和促进因素。
IF 2.4 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-02-13 eCollection Date: 2025-01-01 DOI: 10.1080/21642850.2025.2463916
Kelly E Lloyd, Samuel G Smith

Introduction: Aspirin is increasingly recommended for colorectal cancer prevention for people with Lynch syndrome, who are at higher risk. Before starting aspirin, patients should be reviewed by a healthcare professional for contraindications. We conducted interviews to explore the views of people with Lynch syndrome and healthcare professionals on aspirin for cancer prevention. While open data sharing is increasingly implemented for quantitative research, it is less likely to be adopted for qualitative data. We aimed to create and share a qualitative dataset of the interview transcripts in a restricted access repository.

Methods: We interviewed 15 people with Lynch syndrome and 23 healthcare professionals. Healthcare professionals included general practitioners (GPs), community pharmacists, genetic counsellors, and specialist hospital clinicians (e.g. genetics, gastroenterology). The interview schedule was informed by the Theoretical Domains Framework. Interviews were conducted over video or telephone.

Results: Participants could consent to their anonymised interview transcript being deposited in a restricted repository, with access limited to people using the data for non-commercial research, learning or teaching purposes. Those who did not consent could still participate in the interview. Several transcripts were removed due to identifiability concerns. In total, we deposited 12 transcripts with people with Lynch syndrome, and 8 transcripts with GPs.

Discussion: To safeguard participants' identities, we fully anonymised the dataset. While this acted to protect participants' identities, it also potentially reduced its usability due to the removal of rich contextual detail. When sharing qualitative data, it is important to balance confidentiality with data reusability.

简介:阿司匹林越来越多地被推荐用于高危Lynch综合征患者的结直肠癌预防。在开始服用阿司匹林之前,患者应由医疗保健专业人员检查禁忌症。我们进行了访谈,以探讨Lynch综合征患者和医疗保健专业人员对阿司匹林预防癌症的看法。虽然开放数据共享越来越多地用于定量研究,但它不太可能用于定性数据。我们的目标是在一个限制访问的存储库中创建和共享访谈记录的定性数据集。方法:对15例Lynch综合征患者和23名医护人员进行访谈。医疗保健专业人员包括全科医生(gp)、社区药剂师、遗传咨询师和专科医院临床医生(如遗传学、胃肠病学)。面试时间表由理论领域框架通知。采访是通过视频或电话进行的。结果:参与者可以同意将他们的匿名采访记录保存在一个受限制的存储库中,仅限用于非商业研究、学习或教学目的的人访问这些数据。那些不同意的人仍然可以参加面试。出于对可识别性的考虑,一些文本被删除了。我们总共收集了12份林奇综合症患者的转录本,8份全科医生的转录本。讨论:为了保护参与者的身份,我们对数据集进行了完全匿名化处理。虽然这可以保护参与者的身份,但由于删除了丰富的上下文细节,它也可能降低其可用性。在共享定性数据时,重要的是要平衡机密性和数据可重用性。
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引用次数: 0
A multi-level meta-analysis of the relationship between decision-making during birth and postpartum mental health. 分娩决策与产后心理健康关系的多层次meta分析。
IF 2.4 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-02-04 eCollection Date: 2025-01-01 DOI: 10.1080/21642850.2025.2456032
Louisa Arnold, Marie Völkel, Jenny Rosendahl, Michael Rost

Introduction: There is accumulating evidence of ineffective decision-making between birthing individuals and healthcare providers during childbirth. While research syntheses have demonstrated that negative birth experiences are associated with postpartum mental health, primary quantitative studies linking specific decision-making measures and mental health outcomes have not been synthesised. The present study aims to fill this gap in order to provide hands-on evidence on how to further improve perinatal care.

Methods: A systematic literature search using Bolean logic was conducted. A final set of 34 publications from 14 different countries could be included in our meta-analysis. Measures of intrapartum decision-making were consolidated into four key domains: information, respect, control, and involvement. We conducted multi-level meta-analyses to assess the overall relationship of intra-partum decision-making and mental-health outcomes, as well as the specific correlations associated with each decision-making domain.

Results: Our analysisrevealed that less effective intrapartum decision-making is associated with more postpartum overall mental health problems (r = -.25), depression (r = -.19), and posttraumatic stress disorder (r = -.29). More precisely, while all domains of intrapartum decision-making (information: r = -.22, involvement: r = -.23, respect: r = -.28, control: r = -.25) were associated with postpartum overall psychopathology, only information (r = -.18), respect (r = -.25), and control (r = -.12) were associated with depression, and only involvement (r = -.31), respect (r = -.32), and control (r = -.25) were associated with posttraumatic stress disorder. A higher percentange of planned cesarean sections in a sample and longer time lags between birth and post-effect measurement were identified as moderating variables.

Conclusions: Ineffective decision-making is a significant contributing factor to the development of adverse postpartum mental health problems outcomes. Implications for practice concern establishing numerous antenatal care contacts as a standard to enhance birth preparedness for both birthing individuals and providers. Additionally, measuring the experience of intrapartum decision-making as an indicator of quality of care as a default to monitor, analyse, and improve decision-making and to facilitate accountability systems.

越来越多的证据表明,在分娩过程中,分娩个体和医疗保健提供者之间的决策无效。虽然综合研究表明,消极的分娩经历与产后心理健康有关,但尚未综合具体决策措施与心理健康结果之间的初步定量研究。本研究旨在填补这一空白,以便为如何进一步改善围产期护理提供实践证据。方法:运用布尔逻辑进行系统的文献检索。来自14个不同国家的34份出版物最终可以纳入我们的荟萃分析。分娩期决策的衡量标准被整合到四个关键领域:信息、尊重、控制和参与。我们进行了多层次的meta分析,以评估分娩决策与心理健康结果的总体关系,以及与每个决策领域相关的具体相关性。结果:我们的分析显示,分娩时决策效率较低与更多的产后整体心理健康问题(r = - 0.25)、抑郁症(r = - 0.19)和创伤后应激障碍(r = - 0.29)相关。更准确地说,当产中决策的所有领域(信息:r = -。22、介入:r = -。23、尊重:r = -。28,对照组:r = - 0.25)与产后整体精神病理相关,只有信息(r = - 0.18)、尊重(r = - 0.25)和控制(r = - 0.12)与抑郁相关,只有参与(r = - 0.31)、尊重(r = - 0.32)和控制(r = - 0.25)与创伤后应激障碍相关。一个样本中较高的计划剖宫产百分比和出生与产后效果测量之间较长的时间滞后被确定为调节变量。结论:决策无效是导致产后心理健康问题不良结局发生的重要因素。对实践的影响涉及建立许多产前保健接触作为标准,以加强分娩个人和提供者的分娩准备。此外,将分娩决策经验作为衡量护理质量的指标作为一种默认做法,以监测、分析和改进决策,并促进问责制。
{"title":"A multi-level meta-analysis of the relationship between decision-making during birth and postpartum mental health.","authors":"Louisa Arnold, Marie Völkel, Jenny Rosendahl, Michael Rost","doi":"10.1080/21642850.2025.2456032","DOIUrl":"10.1080/21642850.2025.2456032","url":null,"abstract":"<p><strong>Introduction: </strong>There is accumulating evidence of ineffective decision-making between birthing individuals and healthcare providers during childbirth. While research syntheses have demonstrated that negative birth experiences are associated with postpartum mental health, primary quantitative studies linking specific decision-making measures and mental health outcomes have not been synthesised. The present study aims to fill this gap in order to provide hands-on evidence on how to further improve perinatal care.</p><p><strong>Methods: </strong>A systematic literature search using Bolean logic was conducted. A final set of 34 publications from 14 different countries could be included in our meta-analysis. Measures of intrapartum decision-making were consolidated into four key domains: information, respect, control, and involvement. We conducted multi-level meta-analyses to assess the overall relationship of intra-partum decision-making and mental-health outcomes, as well as the specific correlations associated with each decision-making domain.</p><p><strong>Results: </strong>Our analysisrevealed that less effective intrapartum decision-making is associated with more postpartum overall mental health problems (<i>r</i> = -.25), depression (<i>r</i> = -.19), and posttraumatic stress disorder (<i>r</i> = -.29). More precisely, while all domains of intrapartum decision-making (information: <i>r</i> = -.22, involvement: <i>r</i> = -.23, respect: <i>r</i> = -.28, control: <i>r</i> = -.25) were associated with postpartum overall psychopathology, only information (<i>r</i> = -.18), respect (<i>r</i> = -.25), and control (<i>r</i> = -.12) were associated with depression, and only involvement (<i>r</i> = -.31), respect (<i>r</i> = -.32), and control (<i>r</i> = -.25) were associated with posttraumatic stress disorder. A higher percentange of planned cesarean sections in a sample and longer time lags between birth and post-effect measurement were identified as moderating variables.</p><p><strong>Conclusions: </strong>Ineffective decision-making is a significant contributing factor to the development of adverse postpartum mental health problems outcomes. Implications for practice concern establishing numerous antenatal care contacts as a standard to enhance birth preparedness for both birthing individuals and providers. Additionally, measuring the experience of intrapartum decision-making as an indicator of quality of care as a default to monitor, analyse, and improve decision-making and to facilitate accountability systems.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"13 1","pages":"2456032"},"PeriodicalIF":2.4,"publicationDate":"2025-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11795756/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143255610","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluating mobile apps for sun protection: content analysis and user preferences in a two-part study. 评估移动应用程序的防晒:内容分析和用户偏好的两部分研究。
IF 2.4 Q2 PSYCHOLOGY, CLINICAL Pub Date : 2025-01-27 eCollection Date: 2025-01-01 DOI: 10.1080/21642850.2025.2456659
Angela M Rodrigues, Faye L Doughty, Caroline Charlton, Sarah Woodhouse, Elizabeth Sillence

Background: Sunburn and intermittent sun exposure elevate melanoma skin cancer risk. Sun protection behaviours, including limiting sun exposure, seeking shade, wearing protective gear, and using sunscreen, help mitigate excessive sun exposure. Smartphone apps present a promising platform to enhance these behaviours.

Objective: Part 1 aimed to analyse and evaluate the content of mobile apps that encourage sun protection behaviours, focusing on features, and behaviour change techniques (BCTs). Part 2 explored user preferences and usability post-initial use and two weeks later.

Results: Part 1 identified 1294 apps; after applying exclusion criteria, 87 apps were downloaded, with 48 included for analysis. The apps presented opportunities for enhancement in their theoretical and evidence basis, and visualisations use (e.g. UV-index). The apps mapped across a total of 12 BCTs (M = 1.71, SD = 1.07; range = 0-5). The most frequently identified BCTs were 'instruction on how to perform behaviour' (65%), 'information about health consequences' (29%), and 'prompts/cues' (27%). In Part 2, participants favoured features supporting knowledge and ease of use. Participants expressed a preference for apps that are free of paid features, advertisements, and external purchases. Tailored advice (e.g. location, skin type) was deemed crucial, particularly for initial exposure. Proactive features integrating behavioural, personal, and contextual information for adaptive and just-in-time sun protection advice were seen as essential for sustaining engagement.

Conclusions: Sun protection apps emphasizing knowledge, ease of use, tailored advice, and proactive features are likely to encourage sustained engagement. Suggestions for optimising current and future sun protection apps are provided.

背景:晒伤和间歇性阳光照射会增加黑色素瘤皮肤癌的风险。防晒行为,包括限制日晒、寻找阴凉处、佩戴防护装备和使用防晒霜,有助于减轻过度日晒。智能手机应用为增强这些行为提供了一个很有前景的平台。目的:第1部分旨在分析和评估鼓励防晒行为的移动应用程序的内容,重点关注功能和行为改变技术(bct)。第2部分探讨了初次使用后和两周后的用户偏好和可用性。结果:第一部分确定了1294个应用程序;在应用排除标准后,共下载了87款应用,其中48款被纳入分析。这些应用程序提供了增强理论和证据基础以及可视化使用(例如紫外线指数)的机会。这些应用程序共映射到12个bct (M = 1.71, SD = 1.07;范围= 0-5)。最常见的btc是“如何执行行为的指导”(65%),“关于健康后果的信息”(29%)和“提示/线索”(27%)。在第2部分中,参与者喜欢支持知识和易用性的特性。参与者表示,他们更喜欢那些不含付费功能、广告和外部购买的应用。量身定制的建议(例如地点、皮肤类型)被认为是至关重要的,特别是对于初次接触。主动整合行为、个人和情境信息,以提供适应性和及时的防晒建议,被视为维持参与的必要条件。结论:防晒应用强调知识、易用性、量身定制的建议和积极主动的功能,可能会鼓励用户持续参与。为优化当前和未来的防晒应用程序提供了建议。
{"title":"Evaluating mobile apps for sun protection: content analysis and user preferences in a two-part study.","authors":"Angela M Rodrigues, Faye L Doughty, Caroline Charlton, Sarah Woodhouse, Elizabeth Sillence","doi":"10.1080/21642850.2025.2456659","DOIUrl":"10.1080/21642850.2025.2456659","url":null,"abstract":"<p><strong>Background: </strong>Sunburn and intermittent sun exposure elevate melanoma skin cancer risk. Sun protection behaviours, including limiting sun exposure, seeking shade, wearing protective gear, and using sunscreen, help mitigate excessive sun exposure. Smartphone apps present a promising platform to enhance these behaviours.</p><p><strong>Objective: </strong>Part 1 aimed to analyse and evaluate the content of mobile apps that encourage sun protection behaviours, focusing on features, and behaviour change techniques (BCTs). Part 2 explored user preferences and usability post-initial use and two weeks later.</p><p><strong>Results: </strong>Part 1 identified 1294 apps; after applying exclusion criteria, 87 apps were downloaded, with 48 included for analysis. The apps presented opportunities for enhancement in their theoretical and evidence basis, and visualisations use (e.g. UV-index). The apps mapped across a total of 12 BCTs (<i>M</i> = 1.71, <i>SD</i> = 1.07; range = 0-5). The most frequently identified BCTs were 'instruction on how to perform behaviour' (65%), 'information about health consequences' (29%), and 'prompts/cues' (27%). In Part 2, participants favoured features supporting knowledge and ease of use. Participants expressed a preference for apps that are free of paid features, advertisements, and external purchases. Tailored advice (e.g. location, skin type) was deemed crucial, particularly for initial exposure. Proactive features integrating behavioural, personal, and contextual information for adaptive and just-in-time sun protection advice were seen as essential for sustaining engagement.</p><p><strong>Conclusions: </strong>Sun protection apps emphasizing knowledge, ease of use, tailored advice, and proactive features are likely to encourage sustained engagement. Suggestions for optimising current and future sun protection apps are provided.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"13 1","pages":"2456659"},"PeriodicalIF":2.4,"publicationDate":"2025-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11774169/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143058811","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Health Psychology and Behavioral Medicine
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