Health Psychology and Behavioral Medicine最新文献

This paper reports on human rights violation of trans women in Umlazi township in South Africa. Violation of trans women's human rights happens in several countries regardless of their constitutional stance regarding LGBTQI policies. Although South Africa was the first country to outlaw discrimination based on sexual orientation with its democratic Constitution of 1996, it is not an exception to these violations of transgender people's human rights. This paper presents human rights violations experienced by trans women's in Umlazi township in South African. The study was qualitative in nature utilising an interpretative phenomenological analysis design. Data was collected through semi-structured interviews from eight criterion purposively selected trans women from Umlazi township. Data was analysed guided by an interpretative analytics framework. Two key themes emerged from the study: the types of human rights violations and their sources. The findings indicated that trans women experience several types of human rights violations, including violations of their right to safety, freedom of expression, access to employment, and the right to human dignity. The sources of these human rights violations for trans women include cis-normative infrastructure, transphobic communities, and transphobic public officials. Understanding these experiences is crucial in developing measures to conscientize communities, foster tolerance and promoting social inclusivity of transgender people in society. The findings provide insights that can facilitate positive changes in how communities perceive transgender persons.

Young adult women have unique barriers to exercise, but assessing the psychological and behavioral strategies of women who overcome these barriers may be beneficial for informing future exercise programs. This study assessed differences in motives and self-regulation by type (aerobic or muscle-strengthening) and frequency of exercise, along with preferences for exercise amongst young adult women who exercise regularly.

Methods: A survey assessed exercise frequency (International Physical Activity Questionnaire), intensity (Borg's scale), type, and social and physical preferences. The Exercise Motivations Inventory-2 measured motivators for exercise and the Physical Activity Self-Regulation Scale measured self-regulation. Characteristics and preferences for exercise were examined using descriptives and frequencies. MANOVAs assessed differences in motivators and self-regulation by frequency of exercise, and regression analyses assessed differences in exercise predictors by type.

Results: The sample consisted of 269 women ages 18-34 (66.5% White), of whom 80.3% met the national guidelines for aerobic exercise, 78.4% met the guidelines for muscle-strengthening exercise, and 32.3% identified resistance exercise as their preferred type of exercise. Weight management and self-regulation (p = .021, R² = .073) were the strongest predictors of aerobic exercise. Positive health, strength and endurance, and self-regulation (p = .023, R² = .161) were predictors of muscle-strengthening exercise. Women who participated in high amounts of aerobic exercise were motivated by interpersonal factors while psychological factors motivated high frequency of muscle-strengthening exercise.

Conclusions: Programs for young adult women should consider incorporating resistance exercise as this study shows it may evoke motivation that could lead to regular participation. Self-regulation strategies were associated with adherence to both aerobic and muscle-strengthening exercises, highlighting the potential importance for inclusion in future interventions.

Background: Bardet-Biedl syndrome (BBS) is a rare disorder involving a complex combination of eye and kidney diseases, obesity and learning difficulties. To better understand the roles of family caregivers, this study sought to explore parents' experiences of supporting adult children with BBS.

Method: This study included 17 parents of adult children with BBS. Semi-structured interviews were used as the research method. The generated data were interpreted using a reflexive thematic analysis, which employed a phenomenological and hermeneutical approach.

Result: Four themes were identified - namely, worries and expectations for the child's future, advocate and companion, in the power of the health and support system, and sources of support and coping. The findings indicate that the parents' everyday lives are affected in many ways by caring for adult children with BBS.

Conclusion: This study highlights the various roles and responsibilities of parents of adult children with BBS, including advocating for health services and attempting to fill gaps in care and social relationships. Hence, the findings of this study provide valuable insights for health professionals and support systems, helping to identify key areas for future initiatives aimed at better addressing the needs of adults with BBS and their parents.

Objective: Huntington's disease (HD) is a rare neurodegenerative condition characterised by progressive symptoms affecting motricity, cognition, neuropsychiatric function and behaviour. HD develops during a period of life in which many live in partnership and have children. HD impacts all family members through its cognitive and psychological symptoms, mid-life onset, long disease trajectory and genetic risk. The aim of the study was to explore how parents without HD experience and manage parenthood when their partner is affected by HD.

Methods: Qualitative interviews with 14 caregivers were analysed using reflexive thematic analysis.

Results: Three main themes with corresponding subthemes were identified, followed by an underlying theme: Genetic risk: An underlying layer of complexity. The first theme, Balancing competing demands, describes the challenges involved when attempting to attend to conflicting needs within the family. Theme 2, Needing a shoulder to lean on, covers participants' feelings of loneliness and their need to be seen by others, whereas Theme 3, Restoring and building strength, encompasses coping strategies used by caregivers to protect themselves and their children from potential negative experiences. The underlying theme describes how the genetic aspect of the disease permeates the participants' experiences across all other themes.

Conclusion: Support providers may be unaware of the extensive repercussions HD can have on a family. Acknowledging the central role of partners without HD and their risk of psychological distress is crucial. Exhausted partners may struggle to support their children, which may lead to childhoods overshadowed by HD. For family members to prioritise their own needs, tailored support must be set in place for parents with HD.

Introduction: Aspirin is increasingly recommended for colorectal cancer prevention for people with Lynch syndrome, who are at higher risk. Before starting aspirin, patients should be reviewed by a healthcare professional for contraindications. We conducted interviews to explore the views of people with Lynch syndrome and healthcare professionals on aspirin for cancer prevention. While open data sharing is increasingly implemented for quantitative research, it is less likely to be adopted for qualitative data. We aimed to create and share a qualitative dataset of the interview transcripts in a restricted access repository.

Methods: We interviewed 15 people with Lynch syndrome and 23 healthcare professionals. Healthcare professionals included general practitioners (GPs), community pharmacists, genetic counsellors, and specialist hospital clinicians (e.g. genetics, gastroenterology). The interview schedule was informed by the Theoretical Domains Framework. Interviews were conducted over video or telephone.

Results: Participants could consent to their anonymised interview transcript being deposited in a restricted repository, with access limited to people using the data for non-commercial research, learning or teaching purposes. Those who did not consent could still participate in the interview. Several transcripts were removed due to identifiability concerns. In total, we deposited 12 transcripts with people with Lynch syndrome, and 8 transcripts with GPs.

Discussion: To safeguard participants' identities, we fully anonymised the dataset. While this acted to protect participants' identities, it also potentially reduced its usability due to the removal of rich contextual detail. When sharing qualitative data, it is important to balance confidentiality with data reusability.

Introduction: There is accumulating evidence of ineffective decision-making between birthing individuals and healthcare providers during childbirth. While research syntheses have demonstrated that negative birth experiences are associated with postpartum mental health, primary quantitative studies linking specific decision-making measures and mental health outcomes have not been synthesised. The present study aims to fill this gap in order to provide hands-on evidence on how to further improve perinatal care.

Methods: A systematic literature search using Bolean logic was conducted. A final set of 34 publications from 14 different countries could be included in our meta-analysis. Measures of intrapartum decision-making were consolidated into four key domains: information, respect, control, and involvement. We conducted multi-level meta-analyses to assess the overall relationship of intra-partum decision-making and mental-health outcomes, as well as the specific correlations associated with each decision-making domain.

Results: Our analysisrevealed that less effective intrapartum decision-making is associated with more postpartum overall mental health problems (r = -.25), depression (r = -.19), and posttraumatic stress disorder (r = -.29). More precisely, while all domains of intrapartum decision-making (information: r = -.22, involvement: r = -.23, respect: r = -.28, control: r = -.25) were associated with postpartum overall psychopathology, only information (r = -.18), respect (r = -.25), and control (r = -.12) were associated with depression, and only involvement (r = -.31), respect (r = -.32), and control (r = -.25) were associated with posttraumatic stress disorder. A higher percentange of planned cesarean sections in a sample and longer time lags between birth and post-effect measurement were identified as moderating variables.

Conclusions: Ineffective decision-making is a significant contributing factor to the development of adverse postpartum mental health problems outcomes. Implications for practice concern establishing numerous antenatal care contacts as a standard to enhance birth preparedness for both birthing individuals and providers. Additionally, measuring the experience of intrapartum decision-making as an indicator of quality of care as a default to monitor, analyse, and improve decision-making and to facilitate accountability systems.

Background: Sunburn and intermittent sun exposure elevate melanoma skin cancer risk. Sun protection behaviours, including limiting sun exposure, seeking shade, wearing protective gear, and using sunscreen, help mitigate excessive sun exposure. Smartphone apps present a promising platform to enhance these behaviours.

Objective: Part 1 aimed to analyse and evaluate the content of mobile apps that encourage sun protection behaviours, focusing on features, and behaviour change techniques (BCTs). Part 2 explored user preferences and usability post-initial use and two weeks later.

Results: Part 1 identified 1294 apps; after applying exclusion criteria, 87 apps were downloaded, with 48 included for analysis. The apps presented opportunities for enhancement in their theoretical and evidence basis, and visualisations use (e.g. UV-index). The apps mapped across a total of 12 BCTs (M = 1.71, SD = 1.07; range = 0-5). The most frequently identified BCTs were 'instruction on how to perform behaviour' (65%), 'information about health consequences' (29%), and 'prompts/cues' (27%). In Part 2, participants favoured features supporting knowledge and ease of use. Participants expressed a preference for apps that are free of paid features, advertisements, and external purchases. Tailored advice (e.g. location, skin type) was deemed crucial, particularly for initial exposure. Proactive features integrating behavioural, personal, and contextual information for adaptive and just-in-time sun protection advice were seen as essential for sustaining engagement.

Conclusions: Sun protection apps emphasizing knowledge, ease of use, tailored advice, and proactive features are likely to encourage sustained engagement. Suggestions for optimising current and future sun protection apps are provided.

Background: Psychologists play a crucial role in providing essential psychological aid to individuals navigating the challenges posed by the COVID-19 pandemic. However, studies focusing on the mental health of psychologists during the COVID-19 pandemic remain scarce. This study investigates the interaction between coping strategies and psychological distress among a group of Indonesian psychologists.

Methods: This longitudinal study was conducted over two-time points in 2021, with data collected from April 29 to June 23 and again from September 1 to October 23. A total of ninety-seven psychologists, predominantly female (91 out of 97), participated. The data was collected through an online survey, where participants completed the Indonesian version of the Depression, Anxiety, and Stress Scale-21 (DASS-21) and the Brief COPE questionnaire. Multiple regression analysis was used to perform cross-lag analyses on the data.

Results: The findings revealed that adaptive coping strategies were strong predictors of continued use of adaptive coping strategies six months later, while existing psychological distress strongly predicted future distress. Notably, maladaptive coping strategies demonstrated a similar pattern, predicting the continued use of maladaptive coping techniques over time, but they were also consistently associated with psychological distress across both time points, though they did not significantly predict future psychological distress.

Discussion: These findings shed light on the dynamic nature of coping strategies and psychological distress among psychologists, presenting significant implications for their support systems and mental health during the challenges posed by the pandemic. Future studies should focus on how psychologists can reduce maladaptive coping strategies to be better equipped to handle very stressful situations such as a pandemic. Additionally, researchers should explore effective interventions and programs that can be implemented to enhance adaptive coping mechanisms, ultimately improving overall psychological resilience and well-being during crises.

Despite mounting evidence of a robust relation between discrimination and poor pain outcomes in people of color (POC) with chronic pain, little is known about everyday discrimination's role in increasing the risk of opioid misuse and its potential interactive effects. This study aimed to evaluate the potential moderating effect of everyday discrimination on the relationship between chronic pain severity and the risk of opioid misuse among POC with chronic pain. Everyday discrimination was assessed using the 9-item Everyday Discrimination Scale (EDS), while the risk of opioid misuse was measured with the 14-item Screener and Opioid Assessment for Patients with Pain (SOAPP). Using a racially diverse sample of 348 individuals with chronic pain, ranging in age from 20 to 75 years old (M = 28.56), this study investigated these relationships through path analysis conducted in Mplus, controlling for age, sex, and social class. The results showed that high levels of everyday discrimination placed POC patients at a higher risk of opioid misuse when they experienced more severe pain. When chronic physical pain was accompanied by chronic social pain stemming from discrimination, POC patients reported a significantly higher risk of opioid misuse. Discrimination may intensify pain severity, potentially necessitating a higher dose and/or longer-term opioid treatment and, thus, increasing the risk of opioid misuse among POC. The integration of routine assessments of patients' experiences of discrimination could strengthen the ecological validity of pain assessment and treatment. Where feasible, clinicians might consider exploring the experiences of discrimination among POC patients as part of a holistic approach to pain management, and when indicated, facilitate referrals to psychosocial services to address both social and physical aspects of pain.

Introduction: The present article describes the processed data generated in a qualitative interview study and template analysis. Many women find the experience of being recalled and receiving a false-positive breast screening test result to be distressing. The interview study aimed to understand breast screening healthcare professionals' (HCPs) experiences of providing care during the recall process and when receiving false-positive screening test results, including their communication with women around false-positive screening test results.

Methods: Twelve HCPs from a single screening unit in the English National Health Service Breast Screening Programme participated in semi-structured interviews in 2020. All participants were female. A range of HCPs roles were recruited, including advanced radiographer practitioners, breast radiographers, breast radiologists, clinical nurse specialists, and radiology healthcare assistants. The data were analysed thematically using template analysis from a limited realist perspective.

Results: A total of 20 data files are described, reflecting the iterative nature of template analysis. The files report various versions of codes, subthemes, themes, and every template produced during analysis. The files are publicly available on the Open Science Framework and UK Data Service (ReShare).

Discussion: This data note outlines our approach to conducting a template analysis of qualitative data while protecting highly identifiable data, which is stored in a non-public archive and only available to the study team. It offers a practical, worked example of the template analysis process, thereby providing a detailed illustration beyond the concise summaries typically found in published reports, and complementing methodological papers of template analysis.