Pub Date : 2024-08-14eCollection Date: 2024-01-01DOI: 10.1080/21642850.2024.2390939
Iris Bercovitz, Gabrielle M Salvatore, Jacqueline A Mogle, Danielle Arigo
Objective: To examine associations between sleep disturbance, social support, and social comparison among midlife and older adults, including the moderating role of gender.
Methods: Adults ages ≥40 years (N = 557, MAge = 57, 53% men) completed a cross-sectional survey including validated measures of sleep disturbance, perceptions of social support, and social comparison orientation.
Results: Sleep disturbance was negatively associated with social support (rs = -0.42 to - 0.33, ps = 0.001) and associations were stronger for men than women - particularly perceived support from friends (η 2 = 0.01). Sleep disturbance was also associated with upward comparison orientation (r = 0.12, p = 0.003), more strongly for women than men (η 2 = 0.01).
Discussion: Findings indicate that perceived support from friends (for men) and upward comparison (for women) may have particular influence on sleep among midlife and older adults. Additional work is needed to clarify the nature of these associations and their mechanism(s) of action, to inform potential treatment adaptations for this population.
{"title":"Gender differences in relations between social comparison, social support, and sleep disturbance among midlife and older adults.","authors":"Iris Bercovitz, Gabrielle M Salvatore, Jacqueline A Mogle, Danielle Arigo","doi":"10.1080/21642850.2024.2390939","DOIUrl":"10.1080/21642850.2024.2390939","url":null,"abstract":"<p><strong>Objective: </strong>To examine associations between sleep disturbance, social support, and social comparison among midlife and older adults, including the moderating role of gender.</p><p><strong>Methods: </strong>Adults ages ≥40 years (<i>N </i>= 557, <i>MAge </i>= 57, 53% men) completed a cross-sectional survey including validated measures of sleep disturbance, perceptions of social support, and social comparison orientation.</p><p><strong>Results: </strong>Sleep disturbance was negatively associated with social support (<i>r</i>s = -0.42 to - 0.33, <i>p</i>s = 0.001) and associations were stronger for men than women - particularly perceived support from friends (<i>η <sup>2 </sup></i> = 0.01). Sleep disturbance was also associated with upward comparison orientation (<i>r </i>= 0.12, <i>p </i>= 0.003), more strongly for women than men (<i>η <sup>2 </sup></i> = 0.01).</p><p><strong>Discussion: </strong>Findings indicate that perceived support from friends (for men) and upward comparison (for women) may have particular influence on sleep among midlife and older adults. Additional work is needed to clarify the nature of these associations and their mechanism(s) of action, to inform potential treatment adaptations for this population.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2390939"},"PeriodicalIF":2.4,"publicationDate":"2024-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11328798/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141999790","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-08-02eCollection Date: 2024-01-01DOI: 10.1080/21642850.2024.2385490
Carla K Miller, Danielle King, Haikady N Nagaraja, Kentaro Fujita, Jennifer S Cheavens
Background: Lifestyle interventions can promote improvement in dietary intake and physical activity (PA), on average, by strengthening motivation, self-regulatory efforts, and commitment to behavioral change. However, maintenance of behavioral change is challenging, and slow responders during treatment often experience less overall success. Adaptive intervention sequences tailored to treatment response may be more effective in sustaining behavioral change.
Methods: Adults ≥ 21 years old with prediabetes (n = 187) were stratified at week five to the standard Group Lifestyle Balance (GLB) intervention, if they achieved > 2.5% weight loss, or to the augmented intervention GLB Plus (GLB+) at week five, if they did not. At month five, each person in a matched pair was randomly assigned to GLB or GLB + for the extended intervention phase (months 5-12) followed by no study conduct (months 13-18). The primary comparison of interest was the change in outcomes between the standard (GLB followed by GLB) and augmented (GLB + followed by GLB+) intervention sequences post-intervention at 12 - and 18-months using linear mixed effect models.
Results: The augmented GLB + intervention sequence reported a decline in the change in self-efficacy for reducing fat intake, self-efficacy for 'sticking to' healthy eating and exercise, and hopeful thought and planning compared to the standard GLB intervention sequence (all P < 0.0167) at 18-months. However, there were no significant differences between these intervention sequences at 18-months in the change in dietary intake or minutes of PA (all P > 0.05).
Conclusions: No significant change in behavioral measures across intervention sequences occurred at study end. An 18-month decline in self-efficacy regarding diet and PA and hopeful thought and planning among slow responders following no intervention for six months indicates greater extended care is likely needed. The type of extended care that is most effective for slow treatment responders requires additional research.
{"title":"Does intervention sequence impact self-regulatory and behavioral outcomes in an adaptive trial among adults with prediabetes?","authors":"Carla K Miller, Danielle King, Haikady N Nagaraja, Kentaro Fujita, Jennifer S Cheavens","doi":"10.1080/21642850.2024.2385490","DOIUrl":"10.1080/21642850.2024.2385490","url":null,"abstract":"<p><strong>Background: </strong>Lifestyle interventions can promote improvement in dietary intake and physical activity (PA), on average, by strengthening motivation, self-regulatory efforts, and commitment to behavioral change. However, maintenance of behavioral change is challenging, and slow responders during treatment often experience less overall success. Adaptive intervention sequences tailored to treatment response may be more effective in sustaining behavioral change.</p><p><strong>Methods: </strong>Adults ≥ 21 years old with prediabetes (n = 187) were stratified at week five to the standard Group Lifestyle Balance (GLB) intervention, if they achieved > 2.5% weight loss, or to the augmented intervention GLB Plus (GLB+) at week five, if they did not. At month five, each person in a matched pair was randomly assigned to GLB or GLB + for the extended intervention phase (months 5-12) followed by no study conduct (months 13-18). The primary comparison of interest was the change in outcomes between the standard (GLB followed by GLB) and augmented (GLB + followed by GLB+) intervention sequences post-intervention at 12 - and 18-months using linear mixed effect models.</p><p><strong>Results: </strong>The augmented GLB + intervention sequence reported a decline in the change in self-efficacy for reducing fat intake, self-efficacy for 'sticking to' healthy eating and exercise, and hopeful thought and planning compared to the standard GLB intervention sequence (all <i>P</i> < 0.0167) at 18-months. However, there were no significant differences between these intervention sequences at 18-months in the change in dietary intake or minutes of PA (all <i>P</i> > 0.05).</p><p><strong>Conclusions: </strong>No significant change in behavioral measures across intervention sequences occurred at study end. An 18-month decline in self-efficacy regarding diet and PA and hopeful thought and planning among slow responders following no intervention for six months indicates greater extended care is likely needed. The type of extended care that is most effective for slow treatment responders requires additional research.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2385490"},"PeriodicalIF":2.4,"publicationDate":"2024-08-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11299451/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141893309","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-08-01eCollection Date: 2024-01-01DOI: 10.1080/21642850.2024.2383469
Lynda Fallon, Annie Y S Lau, Donna Ciccia, Tanya Jane Duckworth, Chantelle Pereira, Emily Kopp, Valentina Perica, Kerry A Sherman
Background: Endometriosis, a systemic chronic inflammatory condition which has no cure, has a high symptom burden that can negatively impact every facet of life. Given the absence of a gold-standard treatment, the best symptom management regimen in endometriosis is heavily reliant on a patient's values and preferences, making shared decision-making (SDM) vital. However, a comprehensive patient decision aid (PtDA) intervention that could facilitate patient decision-making and promote SDM is lacking in endometriosis, and there is little research on the decisional support needs of individuals with this condition. This qualitative study aimed to explore healthcare professional (HP) perspectives of their clients' decisional support needs when choosing treatments to manage endometriosis symptoms, with a view to evaluating the need for a PtDA.
Methods: Australian HPs identified as specialising in endometriosis care (N = 13) were invited to participate in a short interview over the Internet by phone. Questions focussed on perceived facilitators and challenges of decision-making when choosing treatments for endometriosis. Transcribed qualitative data were thematically analysed and verified by multiple coders, using the template approach.
Results: Four themes were identified: (1) Identifying and setting priorities; (2) HPs' lack of time and perceived lack of knowledge; (3) Patient-centred care and SDM, including patient capacity; and (4) Decision-making blinded by hope. This is the first known study to explore HPs' perspectives on patient decision-making challenges in endometriosis.
Discussion: Findings draw attention to the difficulties people with endometriosis experience when assessing and choosing treatments, highlighting the need for a comprehensive PtDA intervention to support this decision-making.
{"title":"Perceived challenges in treatment decision-making for endometriosis: healthcare professional perspectives.","authors":"Lynda Fallon, Annie Y S Lau, Donna Ciccia, Tanya Jane Duckworth, Chantelle Pereira, Emily Kopp, Valentina Perica, Kerry A Sherman","doi":"10.1080/21642850.2024.2383469","DOIUrl":"10.1080/21642850.2024.2383469","url":null,"abstract":"<p><strong>Background: </strong>Endometriosis, a systemic chronic inflammatory condition which has no cure, has a high symptom burden that can negatively impact every facet of life. Given the absence of a gold-standard treatment, the best symptom management regimen in endometriosis is heavily reliant on a patient's values and preferences, making shared decision-making (SDM) vital. However, a comprehensive patient decision aid (PtDA) intervention that could facilitate patient decision-making and promote SDM is lacking in endometriosis, and there is little research on the decisional support needs of individuals with this condition. This qualitative study aimed to explore healthcare professional (HP) perspectives of their clients' decisional support needs when choosing treatments to manage endometriosis symptoms, with a view to evaluating the need for a PtDA.</p><p><strong>Methods: </strong>Australian HPs identified as specialising in endometriosis care (<i>N</i> = 13) were invited to participate in a short interview over the Internet by phone. Questions focussed on perceived facilitators and challenges of decision-making when choosing treatments for endometriosis. Transcribed qualitative data were thematically analysed and verified by multiple coders, using the template approach.</p><p><strong>Results: </strong>Four themes were identified: (1) Identifying and setting priorities; (2) HPs' lack of time and perceived lack of knowledge; (3) Patient-centred care and SDM, including patient capacity; and (4) Decision-making blinded by hope. This is the first known study to explore HPs' perspectives on patient decision-making challenges in endometriosis.</p><p><strong>Discussion: </strong>Findings draw attention to the difficulties people with endometriosis experience when assessing and choosing treatments, highlighting the need for a comprehensive PtDA intervention to support this decision-making.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2383469"},"PeriodicalIF":2.4,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11295683/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141888997","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-12eCollection Date: 2024-01-01DOI: 10.1080/21642850.2024.2376585
Minh D Pham, Tu T Tran, Tuyen Van Duong, Binh N Do, Loan T Dang, Dung H Nguyen, Trung A Hoang, Hoang C Nguyen, Lan T H Le, Linh V Pham, Lien T H Nguyen, Hoi T Nguyen, Nga T Trieu, Thinh V Do, Manh V Trinh, Tung H Ha, Dung T Phan, Thao T P Nguyen, Kien T Nguyen
Background: Receiving hemodialysis treatment makes end-stage renal disease (ESRD) patients highly vulnerable amidst the COVID-19 pandemic. Hence, their kidney disease quality of life (KDQOL) is affected. We aimed to examine the association between fear of COVID-19 (FCoV-19) and KDQOL, and the effect modification of Health literacy (HL) on this association.
Material and methods: A survey was conducted at 8 hospitals from July 2020 to March 2021 on 972 patients. Data collection includes socio-demographic factors, clinical parameters, HL, digital healthy diet literacy (DDL), hemodialysis diet knowledge (HDK), FCoV-19, suspected COVID-19 symptoms (S-COVID-19-S), and KDQOL.
Results: Higher HL scores B = 0.13 (95% CI = 0.06-0.21, p = 0.001) and HDK scores B = 0.58 (95% CI = 0.31-0.85, p = 0.001) were associated with higher KDQOL scores. Whereas, S-COVID-19-S B = -6.12 (95% CI = -7.66 to - 4.58, p = 0.001) and FCoV-19 B = -0.91 (95% CI = -1.03 to - 0.80, p = 0.001) were associated with lower KDQOL scores. Notably, higher HL scores significantly attenuate the negative impact of FCoV-19 on overall KDQOL and the kidney disease component summary.
Conclusions: In hemodialysis patients, FCoV-19 and S-COVID-19-S were associated with a lower KDQOL. Health literacy significantly mitigates the negative impact of FCoV-19 on KDQOL. Strategic public health interventions to improve HL are suggested to protect patient's KDQOL during the pandemic.
背景:接受血液透析治疗的终末期肾病(ESRD)患者极易受到 COVID-19 大流行的影响。因此,他们的肾病生活质量(KDQOL)会受到影响。我们旨在研究对 COVID-19 的恐惧(FCoV-19)与 KDQOL 之间的关联,以及健康素养(HL)对这种关联的影响:2020年7月至2021年3月,在8家医院对972名患者进行了调查。数据收集包括社会人口学因素、临床参数、健康素养、数字健康饮食素养(DDL)、血液透析饮食知识(HDK)、FCoV-19、疑似 COVID-19 症状(S-COVID-19-S)和 KDQOL:较高的 HL 评分 B = 0.13 (95% CI = 0.06-0.21, p = 0.001) 和 HDK 评分 B = 0.58 (95% CI = 0.31-0.85, p = 0.001) 与较高的 KDQOL 评分相关。而 S-COVID-19-S B = -6.12 (95% CI = -7.66 to - 4.58, p = 0.001) 和 FCoV-19 B = -0.91 (95% CI = -1.03 to - 0.80, p = 0.001) 与较低的 KDQOL 评分相关。值得注意的是,HL评分越高,FCoV-19对总体KDQOL和肾脏疾病部分总结的负面影响就越小:结论:在血液透析患者中,FCoV-19 和 S-COVID-19-S 与较低的 KDQOL 有关。健康素养大大减轻了 FCoV-19 对 KDQOL 的负面影响。建议采取战略性公共卫生干预措施来改善健康素养,以在大流行期间保护患者的 KDQOL。
{"title":"Associations of COVID-19-related fear with kidney disease quality of life and its subscales among hemodialysis patients as modified by health literacy: a multi-hospital survey.","authors":"Minh D Pham, Tu T Tran, Tuyen Van Duong, Binh N Do, Loan T Dang, Dung H Nguyen, Trung A Hoang, Hoang C Nguyen, Lan T H Le, Linh V Pham, Lien T H Nguyen, Hoi T Nguyen, Nga T Trieu, Thinh V Do, Manh V Trinh, Tung H Ha, Dung T Phan, Thao T P Nguyen, Kien T Nguyen","doi":"10.1080/21642850.2024.2376585","DOIUrl":"10.1080/21642850.2024.2376585","url":null,"abstract":"<p><strong>Background: </strong>Receiving hemodialysis treatment makes end-stage renal disease (ESRD) patients highly vulnerable amidst the COVID-19 pandemic. Hence, their kidney disease quality of life (KDQOL) is affected. We aimed to examine the association between fear of COVID-19 (FCoV-19) and KDQOL, and the effect modification of Health literacy (HL) on this association.</p><p><strong>Material and methods: </strong>A survey was conducted at 8 hospitals from July 2020 to March 2021 on 972 patients. Data collection includes socio-demographic factors, clinical parameters, HL, digital healthy diet literacy (DDL), hemodialysis diet knowledge (HDK), FCoV-19, suspected COVID-19 symptoms (S-COVID-19-S), and KDQOL.</p><p><strong>Results: </strong>Higher HL scores B = 0.13 (95% CI = 0.06-0.21, <i>p</i> = 0.001) and HDK scores B = 0.58 (95% CI = 0.31-0.85, <i>p</i> = 0.001) were associated with higher KDQOL scores. Whereas, S-COVID-19-S B = -6.12 (95% CI = -7.66 to - 4.58, <i>p</i> = 0.001) and FCoV-19 B = -0.91 (95% CI = -1.03 to - 0.80, <i>p</i> = 0.001) were associated with lower KDQOL scores. Notably, higher HL scores significantly attenuate the negative impact of FCoV-19 on overall KDQOL and the kidney disease component summary.</p><p><strong>Conclusions: </strong>In hemodialysis patients, FCoV-19 and S-COVID-19-S were associated with a lower KDQOL. Health literacy significantly mitigates the negative impact of FCoV-19 on KDQOL. Strategic public health interventions to improve HL are suggested to protect patient's KDQOL during the pandemic.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2376585"},"PeriodicalIF":2.4,"publicationDate":"2024-07-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11249155/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141619855","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-10eCollection Date: 2024-01-01DOI: 10.1080/21642850.2024.2377716
Ellern Eng Hui, Pei Boon Ooi, Sook Khuan Chow, Jung Shan Hwang, Suat Cheng Peh, Jane Kimm Lii Teh, Shin Ling Wu, Wan Syamimee Wan Ghazali, Siew Mooi Ching
Background: As the recognition of psychological factors in chronic illness management grows, this study examined the interplay of psychological traits - grit, self-efficacy, resilience, and nature-relatedness - and their collective impact on the Quality of Life (QoL) among patients with rheumatoid arthritis (RA) in Malaysia.
Methods: A cross-sectional study was conducted among 222 patients with RA at a private hospital in Malaysia. Utilizing validated scales, including the Connor-Davidson Resilience Scale, Short Grit Scale, Nature Relatedness Scale, and Arthritis Self Efficacy Scale, data were collected. Pearson Product-moment Correlation analyses assessed the relationships between variables, and a multiple mediation analysis explored the mediating effects of resilience, grit, and self-efficacy on the relationship between nature-relatedness and QoL.
Findings: Of the 222 participants (86% female, mean age = 56.03, S.D. = 13.42), the analysis revealed a significant mediating role of resilience in the relationship between nature-relatedness and QoL among RA patients (b = -.117, SE = .042, 95% BCa CI [-.208, -.046]). Although grit and self-efficacy positively correlated with QoL, they did not serve as significant mediators in the nature-relatedness - QoL relationship. This highlights the pivotal role of building a sense of resiliency among patients with RA.
Interpretation: Individuals with RA are not only resilient in terms of their psychological traits such as grit, self-efficacy, and general resilience but also exhibit resilience in their connection and interaction with the natural environment (nature-relatedness). This holistic concept recognizes that fostering resilience in both psychological aspects and the context of one's environment is crucial for promoting overall well-being, particularly in the management of chronic illnesses like RA. It emphasizes the interconnectedness of psychological factors and environmental engagement in contributing to an individual's ability to cope and thrive despite health challenges.
研究背景随着人们对心理因素在慢性疾病管理中的作用的认识不断提高,本研究探讨了心理特征(勇气、自我效能感、复原力和与自然相关性)的相互作用及其对马来西亚类风湿性关节炎(RA)患者生活质量(QoL)的共同影响:马来西亚一家私立医院对 222 名类风湿关节炎患者进行了横断面研究。数据收集采用了经过验证的量表,包括康纳-戴维森复原力量表、简短勇气量表、自然相关性量表和关节炎自我效能量表。Pearson Product-moment Correlation 分析评估了变量之间的关系,多重中介分析探讨了复原力、勇气和自我效能对自然相关性与 QoL 之间关系的中介作用:在 222 名参与者(86% 为女性,平均年龄 = 56.03,S.D. = 13.42)中,分析表明抗逆力在 RA 患者的自然相关性与 QoL 之间的关系中具有显著的中介作用(b = -.117,SE = .042,95% BCa CI [-.208,-.046])。虽然勇气和自我效能与 QoL 呈正相关,但它们在自然相关性与 QoL 的关系中并没有起到显著的中介作用。这凸显了在 RA 患者中建立抗逆意识的关键作用:RA患者不仅在心理特征(如勇气、自我效能感和一般复原力)方面具有复原力,而且在与自然环境的联系和互动(自然相关性)方面也表现出复原力。这一整体概念认识到,培养心理方面和个人环境方面的抗逆力对于促进整体健康至关重要,尤其是在管理像 RA 这样的慢性疾病时。它强调了心理因素和环境参与的相互关联性,这有助于个人在面临健康挑战时仍能应对并茁壮成长。
{"title":"A survey exploring the nexus of psychological traits, nature connection, and quality of life among patients with rheumatoid arthritis.","authors":"Ellern Eng Hui, Pei Boon Ooi, Sook Khuan Chow, Jung Shan Hwang, Suat Cheng Peh, Jane Kimm Lii Teh, Shin Ling Wu, Wan Syamimee Wan Ghazali, Siew Mooi Ching","doi":"10.1080/21642850.2024.2377716","DOIUrl":"10.1080/21642850.2024.2377716","url":null,"abstract":"<p><strong>Background: </strong>As the recognition of psychological factors in chronic illness management grows, this study examined the interplay of psychological traits - grit, self-efficacy, resilience, and nature-relatedness - and their collective impact on the Quality of Life (QoL) among patients with rheumatoid arthritis (RA) in Malaysia.</p><p><strong>Methods: </strong>A cross-sectional study was conducted among 222 patients with RA at a private hospital in Malaysia. Utilizing validated scales, including the Connor-Davidson Resilience Scale, Short Grit Scale, Nature Relatedness Scale, and Arthritis Self Efficacy Scale, data were collected. Pearson Product-moment Correlation analyses assessed the relationships between variables, and a multiple mediation analysis explored the mediating effects of resilience, grit, and self-efficacy on the relationship between nature-relatedness and QoL.</p><p><strong>Findings: </strong>Of the 222 participants (86% female, mean age = 56.03, S.D. = 13.42), the analysis revealed a significant mediating role of resilience in the relationship between nature-relatedness and QoL among RA patients (b = -.117, SE = .042, 95% BCa CI [-.208, -.046]). Although grit and self-efficacy positively correlated with QoL, they did not serve as significant mediators in the nature-relatedness - QoL relationship. This highlights the pivotal role of building a sense of resiliency among patients with RA.</p><p><strong>Interpretation: </strong>Individuals with RA are not only resilient in terms of their psychological traits such as grit, self-efficacy, and general resilience but also exhibit resilience in their connection and interaction with the natural environment (nature-relatedness). This holistic concept recognizes that fostering resilience in both psychological aspects and the context of one's environment is crucial for promoting overall well-being, particularly in the management of chronic illnesses like RA. It emphasizes the interconnectedness of psychological factors and environmental engagement in contributing to an individual's ability to cope and thrive despite health challenges.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2377716"},"PeriodicalIF":2.4,"publicationDate":"2024-07-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11249149/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141619843","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-06eCollection Date: 2024-01-01DOI: 10.1080/21642850.2024.2371134
Line Merete Mediå, Lena Fauske, Solrun Sigurdardottir, Kristin J Billaud Feragen, Anne Waehre
Background: Differences of Sex Development (DSD) are congenital conditions where the chromosomal, gonadal and anatomical sex characteristics do not strictly belong to male or female categories, or that belong to both at the same time. Surgical interventions for individuals with DSD remain controversial, among affected individuals, caregivers, and health-care providers. A lack of evidence in support of, for deferring, or for avoiding surgery complicates the decision-making process. This study explores Norwegian health-care professionals' (HCPs) perspectives on decision-making in DSD-related surgeries and the dilemmas they are facing in this process.
Methods: Focus group interviews with 14 HCPs integrated into or collaborating with multidisciplinary DSD teams were analyzed using reflexive thematic analysis.
Results: Two overarching dilemmas shed light on the intricate considerations and challenges that HCPs encounter when guiding affected individuals and caregivers through surgical decision-making processes in the context of DSD. The first theme describes how shared decision-making was found to be influenced by fear of stigma and balancing the interplay between concepts of normality, personal experiences and external expectations when navigating the child's and caregivers' needs. The second theme illuminated dilemmas due to a lack of evidence-based practice. The core concepts within each theme were the dilemmas health-care professionals face during consultations with caregivers and affected individuals.
Conclusion: HCPs were aware of the controversies with DSD-related surgeries. However, they struggled to reconcile knowledge with parents' wishes for surgery and faced dilemmas making decisions in the best interests of the child. This study draws attention to the benefits of increased knowledge on the consequences of performing or withholding surgery as well as incorporating tools enabling shared decision-making between HCPs and affected individuals/caregivers.
{"title":"Differences of sex development and surgical decisions: focus group interviews with health care professionals in Norway.","authors":"Line Merete Mediå, Lena Fauske, Solrun Sigurdardottir, Kristin J Billaud Feragen, Anne Waehre","doi":"10.1080/21642850.2024.2371134","DOIUrl":"10.1080/21642850.2024.2371134","url":null,"abstract":"<p><strong>Background: </strong>Differences of Sex Development (DSD) are congenital conditions where the chromosomal, gonadal and anatomical sex characteristics do not strictly belong to male or female categories, or that belong to both at the same time. Surgical interventions for individuals with DSD remain controversial, among affected individuals, caregivers, and health-care providers. A lack of evidence in support of, for deferring, or for avoiding surgery complicates the decision-making process. This study explores Norwegian health-care professionals' (HCPs) perspectives on decision-making in DSD-related surgeries and the dilemmas they are facing in this process.</p><p><strong>Methods: </strong>Focus group interviews with 14 HCPs integrated into or collaborating with multidisciplinary DSD teams were analyzed using reflexive thematic analysis.</p><p><strong>Results: </strong>Two overarching dilemmas shed light on the intricate considerations and challenges that HCPs encounter when guiding affected individuals and caregivers through surgical decision-making processes in the context of DSD. The first theme describes how shared decision-making was found to be influenced by fear of stigma and balancing the interplay between concepts of normality, personal experiences and external expectations when navigating the child's and caregivers' needs. The second theme illuminated dilemmas due to a lack of evidence-based practice. The core concepts within each theme were the dilemmas health-care professionals face during consultations with caregivers and affected individuals.</p><p><strong>Conclusion: </strong>HCPs were aware of the controversies with DSD-related surgeries. However, they struggled to reconcile knowledge with parents' wishes for surgery and faced dilemmas making decisions in the best interests of the child. This study draws attention to the benefits of increased knowledge on the consequences of performing or withholding surgery as well as incorporating tools enabling shared decision-making between HCPs and affected individuals/caregivers.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2371134"},"PeriodicalIF":2.4,"publicationDate":"2024-07-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11229732/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141558665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-06-18eCollection Date: 2024-01-01DOI: 10.1080/21642850.2024.2365931
Loes van den Bekerom, Laurens C van Gestel, Jan W Schoones, Jet Bussemaker, Marieke A Adriaanse
Background: Behavior change interventions can unintendedly widen existing socio-economic health inequalities. Understanding why interventions are (in)effective among people with lower socio-economic position (SEP) is essential. Therefore, this scoping review aims to describe what is reported about the behavior change techniques (BCTs) applied within interventions and their effectiveness in encouraging physical activity and healthy eating, and reducing smoking and alcohol consumption according to SEP.
Methods: A systematic search was conducted in 12 electronic databases, and 151 studies meeting the eligibility criteria were included and coded for health behavioral outcomes, SEP-operationalization, BCTs (type and number) and effectiveness.
Results: Findings suggest that approaches for measuring, defining and substantiating lower SEP vary. Current studies of behavior change interventions for people of different SEP do not systematically identify BCTs, making systematic evaluation of BCT effectiveness impossible. The effectiveness of interventions is mainly evaluated by overall intervention outcomes and SEP-moderation effects are mostly not assessed.
Conclusion: Using different SEP-operationalizations and not specifying BCTs hampers systematic evidence accumulation regarding effective (combinations of) BCTs for the low SEP population. To learn which BCTs effectively improve health behaviors among people with lower SEP, future intervention developers should justify how SEP is operationalized and must systematically describe and examine BCTs.
{"title":"Health behavior interventions among people with lower socio-economic position: a scoping review of behavior change techniques and effectiveness.","authors":"Loes van den Bekerom, Laurens C van Gestel, Jan W Schoones, Jet Bussemaker, Marieke A Adriaanse","doi":"10.1080/21642850.2024.2365931","DOIUrl":"10.1080/21642850.2024.2365931","url":null,"abstract":"<p><strong>Background: </strong>Behavior change interventions can unintendedly widen existing socio-economic health inequalities. Understanding why interventions are (in)effective among people with lower socio-economic position (SEP) is essential. Therefore, this scoping review aims to describe what is reported about the behavior change techniques (BCTs) applied within interventions and their effectiveness in encouraging physical activity and healthy eating, and reducing smoking and alcohol consumption according to SEP.</p><p><strong>Methods: </strong>A systematic search was conducted in 12 electronic databases, and 151 studies meeting the eligibility criteria were included and coded for health behavioral outcomes, SEP-operationalization, BCTs (type and number) and effectiveness.</p><p><strong>Results: </strong>Findings suggest that approaches for measuring, defining and substantiating lower SEP vary. Current studies of behavior change interventions for people of different SEP do not systematically identify BCTs, making systematic evaluation of BCT effectiveness impossible. The effectiveness of interventions is mainly evaluated by overall intervention outcomes and SEP-moderation effects are mostly not assessed.</p><p><strong>Conclusion: </strong>Using different SEP-operationalizations and not specifying BCTs hampers systematic evidence accumulation regarding effective (combinations of) BCTs for the low SEP population. To learn which BCTs effectively improve health behaviors among people with lower SEP, future intervention developers should justify how SEP is operationalized and must systematically describe and examine BCTs.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2365931"},"PeriodicalIF":2.4,"publicationDate":"2024-06-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11188964/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141431842","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-05-31eCollection Date: 2024-01-01DOI: 10.1080/21642850.2024.2358915
Greta M Steckhan, Lisa M Warner, Lena Fleig
Introduction: The aim of this study was to evaluate the German falls prevention program 'Staying safe and active in old age - falls prevention', which is already established in practice.
Methods: The single-arm intervention study consisted of two time points, 6 months apart, to evaluate the multifactorial falls prevention program (n = 125 at Time 2). We observed the groups and their trainers and assessed which behavior change techniques (BCTs) were used. According to our evaluation framework, changes in the following three domains were assessed: (a) fall-related variables (i.e. number of falls, fear of falling), (b) physical functioning (i.e. performance-based gait speed, coordination, self-reported leg strength, balance, as well as habitual execution of the exercises), and (c) psychosocial functioning (i.e. quality of life, activities of daily living, mobility, and loneliness). Linear mixed models were used to determine changes in each variable.
Results: Demonstration of behavior was the most frequently used BCT. The program showed significant benefits for fear of falling, balance, coordination, habitual execution, and loneliness over time (Cohen's d between -0.59 and 1.73). Number of falls, gait speed, coordination (dual task), activities of daily living, and quality of life were maintained (Cohen's d between -0.26 and 0.30), whereas leg strength and mobility decreased significantly at Time 2 (Cohen's d = -0.55 and -0.36).
Discussion: Group-based falls prevention programs may facilitate social integration among older adults and may also enhance and maintain physical functioning in old age.Trial registration: German Clinical Trials Register identifier: DRKS00012321.
{"title":"Falls prevention is more than just promoting physical health: evaluation of the group-based, out-patient prevention program 'Staying safe and active in old age - falls prevention'.","authors":"Greta M Steckhan, Lisa M Warner, Lena Fleig","doi":"10.1080/21642850.2024.2358915","DOIUrl":"10.1080/21642850.2024.2358915","url":null,"abstract":"<p><strong>Introduction: </strong>The aim of this study was to evaluate the German falls prevention program 'Staying safe and active in old age - falls prevention', which is already established in practice.</p><p><strong>Methods: </strong>The single-arm intervention study consisted of two time points, 6 months apart, to evaluate the multifactorial falls prevention program (<i>n</i> = 125 at Time 2). We observed the groups and their trainers and assessed which behavior change techniques (BCTs) were used. According to our evaluation framework, changes in the following three domains were assessed: (a) <i>fall-related variables</i> (i.e. number of falls, fear of falling), (b) <i>physical functioning</i> (i.e. performance-based gait speed, coordination, self-reported leg strength, balance, as well as habitual execution of the exercises), and (c) <i>psychosocial functioning</i> (i.e. quality of life, activities of daily living, mobility, and loneliness). Linear mixed models were used to determine changes in each variable.</p><p><strong>Results: </strong><i>Demonstration of behavior</i> was the most frequently used BCT. The program showed significant benefits for fear of falling, balance, coordination, habitual execution, and loneliness over time (Cohen's <i>d</i> between -0.59 and 1.73). Number of falls, gait speed, coordination (dual task), activities of daily living, and quality of life were maintained (Cohen's <i>d</i> between -0.26 and 0.30), whereas leg strength and mobility decreased significantly at Time 2 (Cohen's <i>d</i> = -0.55 and -0.36).</p><p><strong>Discussion: </strong>Group-based falls prevention programs may facilitate social integration among older adults and may also enhance and maintain physical functioning in old age.<b>Trial registration:</b> German Clinical Trials Register identifier: DRKS00012321.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2358915"},"PeriodicalIF":2.7,"publicationDate":"2024-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11146244/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141237528","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-05-30eCollection Date: 2024-01-01DOI: 10.1080/21642850.2024.2361005
Caroline Charlton, Angela M Rodrigues
Background: Cervical cancer is a common cancer among young women aged 25-29 in England, and the NHS cervical screening leaflet is the first point of contact for those being invited for their first screening. This study aimed to explore how young women (18-24) understand and engage with the leaflet, as well as the barriers and facilitators associated with its interpretation, engagement, and screening intentions.
Methods: The study used a mixed-methods approach, including a survey (n = 120) to identify interpretation difficulties and how they were affected by different characteristics, and a follow-up interview (n = 10) to assess the utility of the leaflet, identify issues with its practicality, and determine the factors that influence screening intentions.
Results: The survey results showed that interpretation difficulties were common, particularly regarding HPV assessment, screening results, additional tests/treatment, and screening risks. Lower interpretation accuracy was associated with lower numeracy scores and non-white ethnicity. Despite these difficulties, participants had high confidence and motivation to engage with the leaflet. The interviews revealed knowledge gaps, issues with the leaflet's practicality, and a preference for digital information. Factors that were identified as barriers and facilitators of leaflet interpretation, engagement, and screening intentions included knowledge, social influence, beliefs about consequences, environmental context and resources, social role and identity, emotions and intentions.
Conclusion: The current leaflet does not provide enough information for young women to make an informed decision about screening attendance. Implementing a digital invitation featuring simplified gist representation, targeted behaviour change techniques (BCTs), videos, and interactive tools can enhance education and promote screening behaviour. Future research should consider using digital tools and strategies to address existing barriers related to interpretation and engagement.
{"title":"How do young women approaching screening age interpret the NHS cervical screening leaflet? A mixed methods study of identifying interpretation difficulties, barriers, facilitators, and leaflet interpretation, engagement and future screening behaviour.","authors":"Caroline Charlton, Angela M Rodrigues","doi":"10.1080/21642850.2024.2361005","DOIUrl":"10.1080/21642850.2024.2361005","url":null,"abstract":"<p><strong>Background: </strong>Cervical cancer is a common cancer among young women aged 25-29 in England, and the NHS cervical screening leaflet is the first point of contact for those being invited for their first screening. This study aimed to explore how young women (18-24) understand and engage with the leaflet, as well as the barriers and facilitators associated with its interpretation, engagement, and screening intentions.</p><p><strong>Methods: </strong>The study used a mixed-methods approach, including a survey (<i>n</i> = 120) to identify interpretation difficulties and how they were affected by different characteristics, and a follow-up interview (<i>n</i> = 10) to assess the utility of the leaflet, identify issues with its practicality, and determine the factors that influence screening intentions.</p><p><strong>Results: </strong>The survey results showed that interpretation difficulties were common, particularly regarding HPV assessment, screening results, additional tests/treatment, and screening risks. Lower interpretation accuracy was associated with lower numeracy scores and non-white ethnicity. Despite these difficulties, participants had high confidence and motivation to engage with the leaflet. The interviews revealed knowledge gaps, issues with the leaflet's practicality, and a preference for digital information. Factors that were identified as barriers and facilitators of leaflet interpretation, engagement, and screening intentions included knowledge, social influence, beliefs about consequences, environmental context and resources, social role and identity, emotions and intentions.</p><p><strong>Conclusion: </strong>The current leaflet does not provide enough information for young women to make an informed decision about screening attendance. Implementing a digital invitation featuring simplified gist representation, targeted behaviour change techniques (BCTs), videos, and interactive tools can enhance education and promote screening behaviour. Future research should consider using digital tools and strategies to address existing barriers related to interpretation and engagement.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2361005"},"PeriodicalIF":2.7,"publicationDate":"2024-05-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11146246/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141237530","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-05-29eCollection Date: 2024-01-01DOI: 10.1080/21642850.2024.2351939
Emma Norris, Aoife O'Mahony, Rory Coyne, Tugce Varol, James A Green, James Reynolds, Elaine Toomey
Open Science practices are integral to increasing transparency, reproducibility, and accessibility of research in health psychology and behavioral medicine. Drives to facilitate Open Science practices are becoming increasingly evident in journal editorial policies, including the establishment of new paper formats such as Registered Reports and Data Notes. This paper provides: (i) an overview of the current state of Open Science policies within health psychology and behavioral medicine, (ii) a call for submissions to an Article Collection of Registered Reports and Data Notes as new paper formats within the journal of Health Psychology & Behavioral Medicine, (iii) an overview of Registered Reports and Data Notes, and (iv) practical considerations for authors and reviewers of Registered Reports and Data Notes.
{"title":"Demystifying Open Science in health psychology and behavioral medicine: a practical guide to Registered Reports and Data Notes.","authors":"Emma Norris, Aoife O'Mahony, Rory Coyne, Tugce Varol, James A Green, James Reynolds, Elaine Toomey","doi":"10.1080/21642850.2024.2351939","DOIUrl":"10.1080/21642850.2024.2351939","url":null,"abstract":"<p><p>Open Science practices are integral to increasing transparency, reproducibility, and accessibility of research in health psychology and behavioral medicine. Drives to facilitate Open Science practices are becoming increasingly evident in journal editorial policies, including the establishment of new paper formats such as Registered Reports and Data Notes. This paper provides: (i) an overview of the current state of Open Science policies within health psychology and behavioral medicine, (ii) a call for submissions to an Article Collection of Registered Reports and Data Notes as new paper formats within the journal of <i>Health Psychology & Behavioral Medicine</i>, (iii) an overview of Registered Reports and Data Notes, and (iv) practical considerations for authors and reviewers of Registered Reports and Data Notes.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2351939"},"PeriodicalIF":2.7,"publicationDate":"2024-05-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11138224/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141179673","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}