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Comprehensive needs assessment tool for informal cancer caregivers (CNAT-ICs): Instrument development and cross-sectional validation study 癌症非正规护理人员综合需求评估工具(CNAT-ICs):工具开发和横断面验证研究
IF 3.1 Q1 NURSING Pub Date : 2024-09-19 DOI: 10.1016/j.ijnsa.2024.100240
Eranthi Weeratunga , Sampatha Goonewardena , Lalitha Meegoda

Background

Growing cancer incidence and its subsequent burden is a worldwide concern. Needs assessment for caregivers has recently received growing attention, as it identifies specific unmet needs. The remaining tools have been established within the healthcare context of Western countries and have been studied only in some Asian populations; it seems appropriate to develop needs assessment tools that apply to a wider ethnic and socio-cultural context.

Objective

This study planned to adapt and examine the psychometric properties of the CNAT-C for the Sri Lankan informal caregivers for wider applicability.

Design

An instrument development and cross-sectional validation study was conducted.

Setting

Apeksha Hospital Maharagama, Sri Lanka (National Cancer Institute).

Participants

A sample of 226 informal caregivers (ICs) providing palliative care for patients with advanced cancer was selected.

Methods

A CNAT-C (41 items; seven factors) was incorporated and used after a cross-cultural adaptation following WHO guidelines after the permission and pilot test. ICs completed the socio-demographic and clinical details along with the validated Centre for Epidemiological Studies-Depression (CES-D), and the World Health Organization-Quality of Life-Brief (WHOQOL-BREF). Internal consistency and test-retest were used to check the reliability. Convergent and divergent validity of the Sinhala version of CNAT (S-CNAT) was confirmed using the CES-D scale and WHOQOL-BREF. Construct validity was evaluated using the exploratory factor analysis (EFA) and confirmatory factor analysis (CFA).

Results

Most of the participants were female (60 %) and married (72 %), and the mean age was 41.78 (SD+14.54). Face and content validity were established during the cross-cultural adaptation. Cronbach's alpha was 0.903 for the overall S-CNAT and the test-retest reliability was 0.965. The S-CNAT was associated positively with the CES-D while negatively with the WHOQOL-BREF. Both EFA and CFA discovered a structure contained seven factors (35 items); domain named as healthcare staff/nurses’ support and information, physical/practical needs, medical officers’ support, psychological needs, social/family support, spiritual/religious support, and hospital facilities/service.

Conclusions

The Sinhala version of CNAT is shown to have adequate validity and reliability in assessing the comprehensive and multidimensional/unmet needs of informal caregivers of patients with advanced cancer (S-CNAT-ICs). It would be a helpful tool to determine the unmet needs of ICs and guide future interventions to meet those needs and enhance or maintain the quality of life for patients and their informal caregivers.
背景日益增长的癌症发病率及其带来的负担是全世界关注的问题。针对护理人员的需求评估最近受到越来越多的关注,因为它能确定未得到满足的具体需求。其余的工具都是在西方国家的医疗保健背景下建立的,而且只在一些亚洲人群中进行过研究;看来开发适用于更广泛的种族和社会文化背景的需求评估工具是合适的。方法 CNAT-C(41 个项目;7 个因子)在经过许可和试点测试后,按照世界卫生组织的指导原则进行了跨文化改编,并被纳入和使用。ICs填写了社会人口学和临床详情,以及经过验证的流行病学研究中心抑郁(CES-D)和世界卫生组织生活质量简报(WHOQOL-BREF)。内部一致性和重复测试用于检查可靠性。使用 CES-D 量表和 WHOQOL-BREF 确认了僧伽罗语版 CNAT(S-CNAT)的收敛效度和发散效度。采用探索性因子分析(EFA)和确认性因子分析(CFA)对结构效度进行了评估。结果大多数参与者为女性(60%)和已婚者(72%),平均年龄为 41.78 岁(SD+14.54)。在跨文化适应过程中建立了面效度和内容效度。整个 S-CNAT 的 Cronbach's alpha 为 0.903,测试-再测信度为 0.965。S-CNAT 与 CES-D 呈正相关,而与 WHOQOL-BREF 呈负相关。EFA 和 CFA 发现了一个包含 7 个因子(35 个条目)的结构;这些因子的领域分别为医护人员/护士的支持和信息、身体/实践需求、医务人员的支持、心理需求、社会/家庭支持、精神/宗教支持以及医院设施/服务。该工具有助于确定非正规照护者尚未满足的需求,并指导未来的干预措施,以满足这些需求,提高或维持患者及其非正规照护者的生活质量。
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引用次数: 0
Development and psychometric evaluation of the self-care of informal caregivers inventory 非正规护理人员自我护理清单的开发和心理测量评估
IF 3.1 Q1 NURSING Pub Date : 2024-09-12 DOI: 10.1016/j.ijnsa.2024.100237
Negin Dorri , Barbara Riegel

Background

In recent years, a growing body of literature on informal caregivers’ health and well-being has emerged, highlighting the need for a tool to measure their self-care practices.

Objective

The aim of the study was to develop a theory-based instrument measuring the self-care behaviors of informal caregivers and test its psychometric properties.

Design

The initial phase of instrument development entailed a detailed, six-step process (conceptualization, theoretical adaptation, back-translation and cultural adaptation, cognitive interviewing, item enhancement, and content validity), followed by formal psychometric testing (participant engagement, validity, internal consistency reliability, test-retest reliability).

Setting

Study conducted at a hospital located in Tehran, Iran.

Participants

A sample of 234 informal caregivers of cancer outpatients receiving treatment in oncology wards was enrolled. Caregivers had to be 18 years or older, recognized as the primary caregiver by the patient, and willing to provide informed consent.

Methods

The Self-Care of Informal Caregivers Inventory items comprise three dimensions: self-care maintenance (11 items), self-care monitoring (7 items), and self-care management (9 items), which achieved a content validity index rating of 100 % in a panel of experts. Data were collected from caregivers during routine clinic visits. Construct validity was verified through exploratory structural equation modelling and reliability was verified using Cronbach's α and multidimensional model-based reliability. Test-retest reliability was evaluated using the Intraclass Correlation Coefficient.

Results

All three dimensions showed good model fit indices (self-care maintenance: Comparative Fit Index = 1.00, Tucker-Lewis Index = 0.99, Root Mean Square Error of Approximation = 0.044; self-care monitoring: Comparative Fit Index = 1.00, Tucker-Lewis Index = 1.00, Root Mean Square Error of Approximation = 0.027; self-care management: Comparative Fit Index = 0.99, Tucker-Lewis Index = 0.99, Root Mean Square Error of Approximation = 0.048) and Cronbach's α of 0.88, 0.88, and 0.91, respectively. The overall multidimensional model-based reliability was 0.93. The Intraclass Correlation Coefficient values for the three dimensions were 0.94, 0.60, and 0.51, respectively.

Conclusion

Preliminary testing provides support for use of the Self-Care of Informal Caregivers Inventory in research. Using this theory-based instrument to assess the self-care practices of informal caregivers can assist in identifying topics to discuss and opportunities for guidance.

Tweetable Abstract

The Self-Care of Informal Caregivers Inventory: A validated tool for informal caregivers is useful for research. #Informalcaregivers #SelfCare

背景近年来,有关非正规护理人员的健康和福祉的文献越来越多,这凸显了人们对衡量其自我护理行为的工具的需求。目的本研究旨在开发一种基于理论的工具,用于衡量非正规护理人员的自我护理行为,并测试其心理测量特性。设计工具开发的初始阶段需要经过详细的六步流程(概念化、理论调整、回译和文化调整、认知访谈、项目增强和内容效度),然后进行正式的心理测试(参与者参与、有效性、内部一致性可靠性、测试重复可靠性)。方法非正规护理人员自我护理量表的项目包括三个方面:自我护理维护(11 个项目)、自我护理监测(7 个项目)和自我护理管理(9 个项目)。数据是在常规门诊就诊时从护理人员处收集的。通过探索性结构方程模型验证了结构效度,并使用克朗巴赫α和基于多维模型的信度验证了信度。结果 所有三个维度均显示出良好的模型拟合指数(自我保健维护:比较拟合指数 = 1.0):比较拟合指数 = 1.00,Tucker-Lewis 指数 = 0.99,近似均方根误差 = 0.044;自我护理监测:比较拟合指数 = 1.00,Tucker-Lewis 指数 = 0.99,近似均方根误差 = 0.044:比较拟合指数 = 1.00,塔克-刘易斯指数 = 1.00,近似均方根误差 = 0.027;自我护理管理:比较拟合指数 = 0.99,塔克-刘易斯指数 = 0.99,近似均方根误差 = 0.048)和克朗巴赫α分别为 0.88、0.88 和 0.91。基于多维模型的总体信度为 0.93。三个维度的类内相关系数分别为 0.94、0.60 和 0.51。使用这一基于理论的工具来评估非正规护理人员的自我护理实践,有助于确定讨论主题和指导机会:非正式照顾者自我照顾量表:非正式照顾者的有效工具有助于研究。#非正式照顾者 #自我照顾
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引用次数: 0
Practice of blood pressure self-monitoring and associated factors among hypertensive patients on follow-up visits at hospitals, West Shoa Zone, Oromia, Ethiopia, 2022…An institution-based cross-sectional study 2022 年埃塞俄比亚奥罗莫西肖亚区医院随访的高血压患者自我监测血压的做法及相关因素......一项基于机构的横断面研究
IF 3.1 Q1 NURSING Pub Date : 2024-09-10 DOI: 10.1016/j.ijnsa.2024.100236
Nimona Amena , Adamu Birhanu , Lammi Atomsa , Dawit Teklehymanot , Befkad Derese Tilahun

Introduction

Blood pressure self-monitoring is patients' regular use of personal blood pressure measurement equipment to measure their blood pressure outside of a clinical environment. Inadequate blood pressure self-monitoring remains a significant problem faced by healthcare providers and populations in the prevention of Hypertension. This study is to assess the practice of blood pressure self-monitoring and associated factors among hypertensive patients on follow-up visits at Hospitals, West Shoa zone, Oromia, Ethiopia, 2022.

Methods

An institution-based cross-sectional quantitative study supported by a qualitative study was carried out on 412 hypertensive patients from September 01–30/09/2022. An interviewer-administered questionnaire was used to collect data, and a simple random sampling technique was employed to select the study participants. Data were entered into a computer using the Kobo toolbox and exported to Statical package of social science Version 26 for analysis. Binary logistic regression analysis was run to assess the association between the dependent and independent variables and Variables with P- value < 0.25 were entered into a multivariate logistic regression to control the effects of potential confounding factors. P-value of <0.05 was taken as a cutoff point to declare a statistically significant association between independent and dependent variables.

Result

The proportion of blood pressure self-monitoring practice among hypertensive patients on follow-up visits at hospitals in the West Shoa zone was 19.6 %. Educational level [AOR=7.49, 95 %CI (3.00, 8.67)], income [AOR=3.14, 95 %CI (1.21, 8.13)], co-morbidities [AOR=5.55, 95 %CI (2.74, 11.24)], recommendation toward self-monitoring [AOR=2.40, 95 %CI (1.15, 5.03)] and awareness of self-monitoring [AOR=8.54, 95 %CI (3.54, 10.60)] were factors significantly associated with blood pressure self-monitoring practice.

Conclusion and Recommendation

The proportion of blood pressure self-monitoring among hypertensive patients on follow-up visits at hospitals in the West Shoa zone was low. The practice of blood pressure self-monitoring needs to be deliberated by health education programs and recommended to minimize hypertension complications.

导言自我血压监测是指患者在临床环境之外定期使用个人血压测量设备测量血压。自我血压监测不足仍然是医疗服务提供者和人群在预防高血压方面面临的一个重要问题。本研究旨在评估 2022 年埃塞俄比亚奥罗米亚州西肖亚区医院随访的高血压患者进行血压自我监测的情况及相关因素。方法:2022 年 9 月 1 日至 30 日,对 412 名高血压患者进行了一项以机构为基础的横断面定量研究,并辅以一项定性研究。研究采用访谈员发放问卷的方式收集数据,并采用简单随机抽样技术选取研究对象。数据使用 Kobo 工具箱输入计算机,并导出到社会科学统计软件包 26 版进行分析。二元逻辑回归分析用于评估因变量和自变量之间的关联,P 值为 < 0.25 的变量被输入到多元逻辑回归中,以控制潜在混杂因素的影响。P值为0.05时,自变量与因变量之间的联系具有统计学意义。结果在西肖亚区医院随访的高血压患者中,有自我监测血压习惯的比例为19.6%。教育水平[AOR=7.49,95 %CI (3.00,8.67)]、收入[AOR=3.14,95 %CI (1.21,8.13)]、合并疾病[AOR=5.55,95 %CI (2.74,11.24)]、对自我监测的建议[AOR=2.40,95 %CI (1.15,5.03)]和对自我监测的认识[AOR=8.54,95 %CI (3.54,10.60)]均与自变量有显著相关性。结论和建议在西肖亚区医院随访的高血压患者中,自我监测血压的比例较低。自我监测血压的做法需要在健康教育计划中加以考虑和推荐,以最大限度地减少高血压并发症。
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引用次数: 0
The impact of the nurse practice environment, workload, and professional support on job outcomes and standards of care at primary health care clinics in South Africa: A structural equation model approach 护士执业环境、工作量和专业支持对南非初级卫生保健诊所工作成果和护理标准的影响:结构方程模型法
IF 3.1 Q1 NURSING Pub Date : 2024-09-10 DOI: 10.1016/j.ijnsa.2024.100241
Prudence Ditlopo , Laetitia C. Rispel , Peter Van Bogaert , Duane Blaauw

Background

There is substantial evidence on the associations between a positive nurse practice environment and improved nurse and patient outcomes, as well as the factors that mediate these associations, in high-income countries and in hospital settings. The knowledge gaps in African and primary health care settings motivated this empirical study.

Objective

The objective of this study was to examine the impact of the dimensions of the nurse practice environment, specifically human resource management, foundations for nursing care, and participation in clinic affairs, on job outcomes and standards of care.

Design

A cross-sectional study was conducted between November 2021 and June 2022.

Setting

180 primary health care clinics in two South African provinces of Gauteng and North West.

Participants

665 nurses of all categories.

Methods

A causal model was developed with pathways between the nurse practice environment dimensions and the outcomes of job satisfaction, intention to leave, and standards of care. A set of standardised instruments was used to measure the study variables. Using structural equation modelling, workload and professional support were tested as potential mediators between the nurse practice environment and the outcome variables.

Results

The nurses scored the domain of foundations for nursing care 71.2 out of 100 on average, indicating high agreement, while the mean scores for nurses’ participation in clinic affairs and human resources management were lower at 68.0 and 61.7 respectively. Although nurses expressed moderate satisfaction with professional support (67.7), they were less satisfied with their workload (52.2). The mean score of overall job satisfaction was moderate (58.9), with 53.8 % of the nurses reporting that they intended leaving the clinic where they were working. Thirty-six percent intended leaving the nursing profession, indicating low intention to stay. The final mediation model was judged to fit the data adequately based on goodness-of-fit indices, confirming that workload and professional support had a mediating role between the nurse practice environment dimensions of interest and both nurses’ job outcomes and standards of care.

Conclusions

We have highlighted the value of supportive practice environments, effective workload management, and enhanced professional support in improving nurses’ job outcomes and satisfaction with standards of care. Improving nurses’ practice environments at primary health care level may have a wide-ranging impact on the performance of the health system. Therefore, primary health care facility managers should ensure that workload is distributed equitably, professional support for nurses is enhanced, and the overall work environment is improved.

背景有大量证据表明,在高收入国家和医院环境中,积极的护士执业环境与改善护士和患者的治疗效果之间存在关联,而且这些关联的中介因素也存在关联。本研究的目的是探讨护士执业环境各方面因素(特别是人力资源管理、护理基础和参与诊所事务)对工作成果和护理标准的影响。设计2021年11月至2022年6月期间进行了一项横断面研究。设置南非豪登省和西北省两个省的180家初级卫生保健诊所。参与者665名各类护士。方法建立了一个因果模型,在护士执业环境维度与工作满意度、离职意向和护理标准等结果之间建立了路径。使用一套标准化工具来测量研究变量。结果护士对护理基础领域的平均评分为 71.2 分(满分 100 分),表示高度认同,而对护士参与诊所事务和人力资源管理的平均评分较低,分别为 68.0 分和 61.7 分。虽然护士对专业支持表示中度满意(67.7 分),但对工作量的满意度较低(52.2 分)。总体工作满意度的平均值为中等(58.9),53.8%的护士表示打算离开所在诊所。有 36% 的人打算离开护理行业,这表明他们的留职意愿较低。根据拟合优度指数判断,最终的中介模型与数据充分拟合,证实工作量和专业支持在护士实践环境相关维度与护士的工作成果和护理标准之间具有中介作用。改善基层医疗机构护士的执业环境可能会对医疗系统的绩效产生广泛的影响。因此,基层医疗机构管理者应确保公平分配工作量,加强对护士的专业支持,改善整体工作环境。
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引用次数: 0
Understanding frailty and its opposites from community-dwelling older peoples’ perspectives: A phenomenological qualitative study 从社区老年人的角度理解虚弱及其对立面:现象学定性研究
IF 3.1 Q1 NURSING Pub Date : 2024-09-06 DOI: 10.1016/j.ijnsa.2024.100238
Rianne DJ Golbach , Nanda Kleinenberg-Talsma , Fons van der Lucht , Johannes SM Hobbelen , Harriët Jager-Wittenaar , Evelyn J Finnema

Background

the global population is ageing. As older people become more susceptible to frailty, an increase in frailty prevalence is also expected. Although frailty has been defined before in research, older peoples’ perceptions of frailty do not always coincide with those used in research or medical settings. Further exploring community-dwelling older people's viewpoints regarding frailty is essential for tailored care and policy.

Aim

the aim of this study was to explore the perspectives of Dutch community-dwelling older people regarding frailty and its opposing concepts.

Methods

a phenomenological qualitative study was conducted for which we carried out semi-structured interviews with independently living older people aged ≥65. Following the interviews, the participants filled out the Tilburg Frailty Indicator.

Results

the different domains of frailty: ‘physical’, ‘psychological’, and ‘social’, were recognized by participants. In addition, other aspects, such as financial capacity and digital functioning, have been identified. Four aspects of the meaning of frailty were identified in the category of other frailty definitions: ‘dependency’, ‘frailty as getting hurt’, ‘frailty as prone to deterioration’, and ‘frailty as experiences of loss and sacrifice’. Participants also described the opposites of frailty, which could also be distinguished according to the ‘physical’, ‘psychological’, and ‘social’ domains. In addition, participants mentioned the following concepts as opposing frailty: ‘vitality’, ‘resilience’, ‘independence’, ‘autonomy’, and ‘ambition’.

Conclusion

we found that frailty and its opposites share similar aspects, including physical, psychological, and social dimensions. Additionally, older people perceived cognition as an essential aspect of frailty. The psychological dimension seemed more dominant in concepts opposed to frailty, which raises opportunities to focus on the positive aspects and build on older people's (psychological) capabilities in managing frailty and its consequences. Based on these findings, policymakers and care professionals should consider the perspectives of older people regarding frailty and its opposing concepts.

背景全球人口正在老龄化。随着老年人越来越容易体弱,预计体弱的发生率也会增加。虽然研究中已经对虚弱进行了定义,但老年人对虚弱的看法并不总是与研究或医疗环境中使用的看法一致。本研究旨在探讨荷兰社区老年人对虚弱及其对立概念的看法。研究方法我们对年龄≥65 岁、独立生活的老年人进行了半结构化访谈,开展了一项现象学定性研究。结果参与者认识到虚弱的不同领域:"身体"、"心理 "和 "社会"。此外,经济能力和数字功能等其他方面也得到了确认。在其他虚弱定义类别中,确定了虚弱含义的四个方面:依赖性"、"虚弱是受伤"、"虚弱是容易恶化 "以及 "虚弱是失去和牺牲的经历"。与会者还描述了虚弱的对立面,这些对立面也可以按照 "生理"、"心理 "和 "社会 "领域加以区分。此外,参与者还提到了以下与虚弱相对的概念:"活力"、"韧性"、"独立"、"自主 "和 "雄心"。此外,老年人认为认知是体弱的一个重要方面。在与体弱相对的概念中,心理层面似乎更占主导地位,这就为我们提供了关注积极方面的机会,并利用老年人的(心理)能力来管理体弱及其后果。基于这些发现,决策者和护理专业人员应考虑老年人对虚弱及其对立概念的看法。
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引用次数: 0
Influential factors affecting nursing performance amid COVID-19: A cross-sectional study on nurse preparedness for infectious diseases 在 COVID-19 中影响护理绩效的影响因素:关于护士应对传染病准备情况的横断面研究
IF 3.1 Q1 NURSING Pub Date : 2024-09-06 DOI: 10.1016/j.ijnsa.2024.100239
Kyung-sook Cha , Dohyun Lee

Background

The emergence of infectious diseases such as SARS, MERS, and COVID-19 underscores the need for effective nursing preparedness.

Objectives

This cross-sectional study sought to pinpoint the factors that impact nursing performance during the COVID-19 pandemic, focusing on nurses' self-efficacy, work environment, knowledge, and attitudes.

Design

The study utilized a cross-sectional design.

Settings & participants

Between December 13, 2021, and January 21, 2022, an online and offline survey was conducted with 314 nurses who provided in-person care in tertiary and general hospitals throughout South Korea.

Methods

Using t-tests and ANOVA, the research compared nursing performance based on various demographic and work-related characteristics like age, gender, education, marital status, and other working conditions. A research model was formulated via structural equation modeling, positioning nursing performance as the dependent variable. The independent variables included career experience (indirect effect), work environment (indirect effect), COVID-19 knowledge (indirect effect), attitude toward COVID-19 (direct effect), and self-efficacy (direct effect). Data analysis was carried out using SPSS 26 and AMOS 28.

Results

The study demonstrated that self-efficacy and attitude toward COVID-19 significantly influence nursing performance, as reflected by robust critical ratios (CR) for self-efficacy (CR = 11.291, p < 0.001) and attitude (CR = 5.133, p < 0.001). They account for 43 % (R2 = 0.43) of the variability of nursing performance. Self-efficacy was positively predicted by clinical experience (CR = 3.160, p = 0.002) and work environment (CR = 4.328, p < 0.001), while attitude was similarly influenced (CR = 3.557 and 2.926, respectively). However, clinical experience and work environment only explained 8 % (R2 = 0.08) of self-efficacy and 16 % (R2 = 0.16) of attitude. Knowledge about COVID-19 exhibited a statistically insignificant influence in the dynamics.

Conclusions

This study, conducted among Korean nurses during the COVID-19 pandemic, reveals that self-efficacy and attitudes towards COVID-19 are key predictors of nursing performance, overshadowing knowledge's influence. These findings suggest the critical role of psychological factors in healthcare delivery during crises and underscore the need for enhanced focus on developing self-efficacy and positive attitudes in nursing education and professional development. Additionally, demographic and professional variables, including age, clinical experience, educational level, and marital status affect nursing performance.
背景SARS、MERS 和 COVID-19 等传染病的出现凸显了做好有效护理准备的必要性。目标本横断面研究旨在找出 COVID-19 大流行期间影响护理绩效的因素,重点关注护士的自我效能、工作环境、知识和态度。设置& 参与者在 2021 年 12 月 13 日至 2022 年 1 月 21 日期间,对韩国各地的三级医院和综合医院中亲自提供护理服务的 314 名护士进行了在线和离线调查。研究方法使用 t 检验和方差分析,比较了基于年龄、性别、教育、婚姻状况和其他工作条件等各种人口统计学和工作相关特征的护理绩效。通过结构方程模型建立了一个研究模型,将护理绩效作为因变量。自变量包括职业经验(间接影响)、工作环境(间接影响)、COVID-19 知识(间接影响)、对 COVID-19 的态度(直接影响)和自我效能(直接影响)。研究结果表明,自我效能和对 COVID-19 的态度对护理绩效有显著影响,自我效能(CR = 11.291,p <0.001)和态度(CR = 5.133,p <0.001)的稳健临界比率(CR)反映了这一点。它们占护理绩效变异性的 43% (R2 = 0.43)。临床经验(CR = 3.160,p = 0.002)和工作环境(CR = 4.328,p <0.001)对自我效能有积极的预测作用,而态度也有类似的影响(分别为 CR = 3.557 和 2.926)。然而,临床经验和工作环境只能解释 8% 的自我效能(R2 = 0.08)和 16% 的态度(R2 = 0.16)。结论 在 COVID-19 大流行期间对韩国护士进行的这项研究表明,自我效能感和对 COVID-19 的态度是预测护理绩效的关键因素,其影响远远超过知识的影响。这些研究结果表明,心理因素在危机期间的医疗保健服务中起着至关重要的作用,并强调了在护理教育和专业发展中加强对培养自我效能感和积极态度的关注的必要性。此外,人口统计学和专业变量,包括年龄、临床经验、教育水平和婚姻状况也会影响护理绩效。
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引用次数: 0
The lived experience of renal cachexia: An interpretive phenomenological analysis 肾恶病质的生活经历:解释现象学分析
IF 3.1 Q1 NURSING Pub Date : 2024-08-22 DOI: 10.1016/j.ijnsa.2024.100235
Carolyn Blair , Joanne Shields , Robert Mullan , William Johnston , Andrew Davenport , Denis Fouque , Kamyar Kalantar-Zadeh , Peter Maxwell , Clare McKeaveney , Helen Noble , Sam Porter , David Seres , Adrian Slee , Ian Swaine , Miles Witham , Joanne Reid

Background

Chronic kidney disease is common, affecting up to 13 % of the global population, and is predicted to become the fifth leading cause of 'life years lost' by 2040. Individuals with end-stage kidney disease commonly develop complications such as protein-energy wasting and cachexia which further worsens their prognosis. The syndrome of ‘renal cachexia’ is poorly understood, under-diagnosed and even if recognised has limited treatment options.

Objective

To explore the lived experience of renal cachexia for individuals with end-stage kidney disease and the interrelated experiences of their carers.

Design

This interpretive phenomenological study was designed to facilitate an in-depth exploration of how patients and carers experience of renal cachexia. To improve and document the quality, transparency, and consistency of patient and public involvement in this study the Guidance for Reporting Involvement of Patients and the Public-Short Format was followed.

Setting

The study was conducted across two nephrology directorates, within two healthcare trusts in the United Kingdom.

Participants

Seven participants who met the inclusion criteria were recruited for this study, four patients (three female, one male) and three carers (two male, one female).

Methods

We employed a purposive sampling strategy. Data collection was conducted between July 2022 and December 2023. Interviews were semi-structured, audio-recorded, transcribed verbatim and analysed in six steps by two researchers using interpretive phenomenological analysis. Ethical approval was approved by the Office for Research Ethics Committees Northern Ireland (Reference: 22/NI/0107).

Results

Analysis generated six group experiential themes: the lived experience of appetite loss, functional decline and temporal coping, weight loss a visual metaphor of concern, social withdrawal and vulnerability, the emotional toll of eating challenges and psychological strain amidst a lack of information about cachexia.

Conclusion

This is the first qualitative study exploring the lived experience of renal cachexia for patients and carers. Our study highlights that psycho-social and educational support is urgently needed. Additionally, healthcare professionals need better information provision to help them to recognise and respond to the needs of this population. Further research is required to develop models of holistic support which could help patients and carers cope with the impact of renal cachexia and optimally manage this syndrome within the family unit.

Registration

N/A.

背景 慢性肾脏病很常见,影响全球 13% 的人口,预计到 2040 年将成为导致 "寿命损失 "的第五大原因。终末期肾病患者通常会出现蛋白能量消耗和恶病质等并发症,这进一步恶化了他们的预后。目标探索终末期肾病患者的肾脏恶病质生活体验及其照护者的相关体验。设计这项解释现象学研究旨在深入探讨患者和照护者如何体验肾脏恶病质。为了提高和记录患者和公众参与本研究的质量、透明度和一致性,我们遵循了《患者和公众参与报告指南--简短格式》。参与者本研究招募了七名符合纳入标准的参与者,其中包括四名患者(三名女性,一名男性)和三名照护者(两名男性,一名女性)。数据收集工作于 2022 年 7 月至 2023 年 12 月期间进行。访谈采用半结构化、录音、逐字转录的方式,并由两名研究人员采用解释现象学分析法分六个步骤进行分析。结果分析产生了六组体验主题:食欲不振、功能衰退和临时应对的生活体验、体重下降是一种视觉隐喻、社交退缩和脆弱性、饮食挑战带来的情感伤害以及在缺乏恶病质相关信息情况下的心理压力。 结论这是第一项探索肾脏恶病质患者和护理者生活体验的定性研究。我们的研究强调了社会心理和教育支持的迫切需要。此外,医护人员需要更好地提供信息,以帮助他们认识和应对这一人群的需求。我们需要进一步研究开发整体支持模式,以帮助患者和照顾者应对肾恶病质的影响,并在家庭单位中对这种综合征进行最佳管理。
{"title":"The lived experience of renal cachexia: An interpretive phenomenological analysis","authors":"Carolyn Blair ,&nbsp;Joanne Shields ,&nbsp;Robert Mullan ,&nbsp;William Johnston ,&nbsp;Andrew Davenport ,&nbsp;Denis Fouque ,&nbsp;Kamyar Kalantar-Zadeh ,&nbsp;Peter Maxwell ,&nbsp;Clare McKeaveney ,&nbsp;Helen Noble ,&nbsp;Sam Porter ,&nbsp;David Seres ,&nbsp;Adrian Slee ,&nbsp;Ian Swaine ,&nbsp;Miles Witham ,&nbsp;Joanne Reid","doi":"10.1016/j.ijnsa.2024.100235","DOIUrl":"10.1016/j.ijnsa.2024.100235","url":null,"abstract":"<div><h3>Background</h3><p>Chronic kidney disease is common, affecting up to 13 % of the global population, and is predicted to become the fifth leading cause of 'life years lost' by 2040. Individuals with end-stage kidney disease commonly develop complications such as protein-energy wasting and cachexia which further worsens their prognosis. The syndrome of ‘renal cachexia’ is poorly understood, under-diagnosed and even if recognised has limited treatment options.</p></div><div><h3>Objective</h3><p>To explore the lived experience of renal cachexia for individuals with end-stage kidney disease and the interrelated experiences of their carers.</p></div><div><h3>Design</h3><p>This interpretive phenomenological study was designed to facilitate an in-depth exploration of how patients and carers experience of renal cachexia. To improve and document the quality, transparency, and consistency of patient and public involvement in this study the Guidance for Reporting Involvement of Patients and the Public-Short Format was followed.</p></div><div><h3>Setting</h3><p>The study was conducted across two nephrology directorates, within two healthcare trusts in the United Kingdom.</p></div><div><h3>Participants</h3><p>Seven participants who met the inclusion criteria were recruited for this study, four patients (three female, one male) and three carers (two male, one female).</p></div><div><h3>Methods</h3><p>We employed a purposive sampling strategy. Data collection was conducted between July 2022 and December 2023. Interviews were semi-structured, audio-recorded, transcribed verbatim and analysed in six steps by two researchers using interpretive phenomenological analysis. Ethical approval was approved by the Office for Research Ethics Committees Northern Ireland (Reference: 22/NI/0107).</p></div><div><h3>Results</h3><p>Analysis generated six group experiential themes: the lived experience of appetite loss, functional decline and temporal coping, weight loss a visual metaphor of concern, social withdrawal and vulnerability, the emotional toll of eating challenges and psychological strain amidst a lack of information about cachexia.</p></div><div><h3>Conclusion</h3><p>This is the first qualitative study exploring the lived experience of renal cachexia for patients and carers. Our study highlights that psycho-social and educational support is urgently needed. Additionally, healthcare professionals need better information provision to help them to recognise and respond to the needs of this population. Further research is required to develop models of holistic support which could help patients and carers cope with the impact of renal cachexia and optimally manage this syndrome within the family unit.</p></div><div><h3>Registration</h3><p>N/A.</p></div>","PeriodicalId":34476,"journal":{"name":"International Journal of Nursing Studies Advances","volume":"7 ","pages":"Article 100235"},"PeriodicalIF":3.1,"publicationDate":"2024-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2666142X24000626/pdfft?md5=ec906371cb41ebd24b2b06fe016e369f&pid=1-s2.0-S2666142X24000626-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142272801","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Self-management in the post-hair transplantation recovery period among patients with androgenetic alopecia: A qualitative study 雄激素性脱发患者在植发后恢复期的自我管理:定性研究
IF 3.1 Q1 NURSING Pub Date : 2024-08-19 DOI: 10.1016/j.ijnsa.2024.100234
Liu Shichang, Zhang Jufang, Yang Xiangying, Wu Yali, Ning Li

Background

The success of hair transplantation surgeries for androgenetic alopecia is evaluated by postoperative long-term outcomes. Patients' self-management during the long recovery period affects this outcome.

Objective

This study aimed to explore patients' self-management status, facilitators, and impediments in the postoperative period and to provide a reference for developing a postoperative self-management intervention program.

Methods

Patients who underwent hair transplantation for androgenetic alopecia were selected using purposive sampling. They were interviewed using one-to-one semi-structured interviews at a general tertiary hospital in Hangzhou from March to April 2022. Qualitative research analysis software Nvivo 12.0 was used to analyze the collected data.

Results

The self-management of postoperative patients with androgenetic alopecia during the recovery period encompasses six areas: more problems with postoperative medication (e.g., not being able to take medication on time) and wound care (e.g., not daring to shampoo, etc.), not being able to review their postoperative condition on time (due to busy schedules at work and at home), more hindrances to the establishment of good living habits (affected by overtime work, socialising, and bad habits of the people around them), and seeking positive ways of relieving bad emotions (stress, anxiety, depression, etc.), worrying about one's image during recovery and taking the initiative to obtain and use resources to promote recovery (through the Internet, books, etc.)

Conclusions

Various factors impact the postoperative self-management abilities of patients, including medication, shampooing, and emotions. It is essential to design support programs to enhance these abilities and improve long-term hair transplantation outcomes.

背景雄激素性脱发的植发手术成功与否,要通过术后的长期疗效来评价。本研究旨在探讨患者在术后的自我管理状况、促进因素和阻碍因素,为制定术后自我管理干预方案提供参考。2022年3月至4月,在杭州市一家综合性三级甲等医院对他们进行了一对一半结构式访谈。结果雄激素性脱发术后患者在恢复期的自我管理包括六个方面:术后用药(如不能按时服药)和伤口护理(如不敢洗头等)问题较多、不敢洗头等)、不能及时复查术后情况(由于工作和家庭的繁忙)、建立良好生活习惯的障碍增多(受加班、应酬、周围人不良习惯的影响)、寻求缓解不良情绪的积极方法(压力、焦虑、抑郁等。结论影响患者术后自我管理能力的因素很多,包括用药、洗发和情绪等。设计支持计划以提高这些能力并改善长期植发效果至关重要。
{"title":"Self-management in the post-hair transplantation recovery period among patients with androgenetic alopecia: A qualitative study","authors":"Liu Shichang,&nbsp;Zhang Jufang,&nbsp;Yang Xiangying,&nbsp;Wu Yali,&nbsp;Ning Li","doi":"10.1016/j.ijnsa.2024.100234","DOIUrl":"10.1016/j.ijnsa.2024.100234","url":null,"abstract":"<div><h3>Background</h3><p>The success of hair transplantation surgeries for androgenetic alopecia is evaluated by postoperative long-term outcomes. Patients' self-management during the long recovery period affects this outcome.</p></div><div><h3>Objective</h3><p>This study aimed to explore patients' self-management status, facilitators, and impediments in the postoperative period and to provide a reference for developing a postoperative self-management intervention program.</p></div><div><h3>Methods</h3><p>Patients who underwent hair transplantation for androgenetic alopecia were selected using purposive sampling. They were interviewed using one-to-one semi-structured interviews at a general tertiary hospital in Hangzhou from March to April 2022. Qualitative research analysis software Nvivo 12.0 was used to analyze the collected data.</p></div><div><h3>Results</h3><p>The self-management of postoperative patients with androgenetic alopecia during the recovery period encompasses six areas: more problems with postoperative medication (e.g., not being able to take medication on time) and wound care (e.g., not daring to shampoo, etc.), not being able to review their postoperative condition on time (due to busy schedules at work and at home), more hindrances to the establishment of good living habits (affected by overtime work, socialising, and bad habits of the people around them), and seeking positive ways of relieving bad emotions (stress, anxiety, depression, etc.), worrying about one's image during recovery and taking the initiative to obtain and use resources to promote recovery (through the Internet, books, etc.)</p></div><div><h3>Conclusions</h3><p>Various factors impact the postoperative self-management abilities of patients, including medication, shampooing, and emotions. It is essential to design support programs to enhance these abilities and improve long-term hair transplantation outcomes.</p></div>","PeriodicalId":34476,"journal":{"name":"International Journal of Nursing Studies Advances","volume":"7 ","pages":"Article 100234"},"PeriodicalIF":3.1,"publicationDate":"2024-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2666142X24000614/pdfft?md5=8af42989f33b1735ea2ebe669bceda3b&pid=1-s2.0-S2666142X24000614-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142089038","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the reasons behind nurses' intentions to leave their hospital or profession: A cross-sectional survey 探索护士打算离开医院或职业的原因:横断面调查
IF 3.1 Q1 NURSING Pub Date : 2024-08-10 DOI: 10.1016/j.ijnsa.2024.100232
Marco Enea , Laura Maniscalco , Neeltje de Vries , Anke Boone , Olivia Lavreysen , Kamil Baranski , Silvana Miceli , Alessandra Savatteri , Walter Mazzucco , Santo Fruscione , Malgorzata Kowalska , Peter de Winter , Szymon Szemik , Lode Godderis , Domenica Matranga

Background

Multiple factors can fuel nurses’ intention to leave their employing hospital or their profession. Job dissatisfaction and burnout are contributors to this decision. Sociodemographic and work context factors can also play a role in explaining nurses’ intention to leave.

Objective

To investigate the role of sociodemographic and work context factors, including job resources, job demands, job dissatisfaction, depersonalization, and emotional exhaustion, on nurses’ intention to leave their hospital or their profession.

Design

Multicentre cross-sectional study.

Setting(s)

Eight European hospitals, two per each country, including Belgium, the Netherlands, Italy, and Poland.

Participants

From May 16 to September 30, 2022, we collected 1,350 complete responses from nurses working at the selected hospitals (13 % response rate).

Methods

The intention to leave was assessed through two 5-Likert scale outcomes, agreeing with the intention to leave the profession and the intention to leave the hospital. Logistic regression models were used for statistical analysis.

Results

At the multivariable analysis, a higher intention to leave the hospital was observed for: younger age, having served on the frontline against COVID-19, lack of quipment, living in the Netherlands, emotional exhaustion, dissatisfaction with work prospects, and dissatisfaction with the use of professional abilities. There was a higher intention to leave the profession for: younger age, living in the Netherlands, having work-related health problems, depersonalization, emotional exhaustion, low possibilities of professional development, dissatisfaction with work prospects, lack of use of professional abilities, overall ob issatisfaction, and dissatisfaction with salary. Nurses living in Italy expressed the lowest intention to leave.

Conclusion

While confirming the role of job dissatisfaction and burnout, we found higher intention to leave for young nurses, nurses with work-related health problems, and caregivers during the COVID-19 pandemic. Dissatisfaction with work prospects, professional development, and salary also increased the intention to leave. We call for educators, managers, and policymakers to address these factors to retain at-risk nursing categories, implementing strategies to mitigate intentions to leave.

背景多种因素会促使护士有意离开其聘用医院或其职业。工作不满和职业倦怠是导致护士做出离职决定的原因。调查社会人口和工作环境因素(包括工作资源、工作要求、工作不满、人格解体和情感衰竭)对护士离开医院或其职业的意向的影响。参与者2022年5月16日至9月30日,我们收集了1350名在选定医院工作的护士的完整回复(回复率为13%)。方法通过两个5-Likert量表结果评估离职意向,即同意离职意向和离职意向。结果在多变量分析中,下列因素的离职意愿较高:年龄较小、曾在前线抗击 COVID-19、缺乏设备、居住在荷兰、情绪疲惫、对工作前景不满意以及对专业能力的使用不满意。年龄较小、居住在荷兰、有与工作相关的健康问题、人格解体、情感衰竭、专业发展可能性低、对工作前景不满意、专业能力得不到发挥、总体不满意和对薪酬不满意的护士离职意愿较高。结论在证实工作不满和职业倦怠的作用的同时,我们发现在 COVID-19 大流行期间,年轻护士、有工作相关健康问题的护士和护理人员的离职意愿较高。对工作前景、职业发展和薪酬的不满也会增加离职意向。我们呼吁教育者、管理者和政策制定者解决这些因素,以留住处于风险中的护士类别,实施减少离职意向的策略。
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引用次数: 0
Describing the status quo of person-centred dementia care in different types of care units in German nursing homes: A convergent mixed methods study 描述德国养老院不同类型护理单元以人为本的痴呆症护理现状:聚合混合方法研究
IF 3.1 Q1 NURSING Pub Date : 2024-08-10 DOI: 10.1016/j.ijnsa.2024.100233
Anna Louisa Hoffmann-Hoffrichter , Mike Rommerskirch-Manietta , Johannes Michael Bergmann , Martina Roes , Bernhard Holle , Rebecca Palm

Background

The policies and mission statements of nursing homes support the implementation of person-centred dementia care. The Dementia Policy Questionnaire assesses the content of person-centred dementia care in policies. To date, it is unknown whether these policies exist exclusively in dementia care units and whether the policies are consistent with the mission statements of nursing homes.

Objective

We aimed to (1) investigate nursing home care unit types regarding the existence of policies measured by the Dementia Policy Questionnaire, (2) explore whether these policies are addressed in the mission statements of the nursing homes, and (3) integrate both results.

Design

This is a convergent mixed methods study performed with a quantitative and qualitative dataset that was collected in the BeStaDem survey (2020).

Setting

The BeStaDem survey included licensed nursing homes in Germany.

Participants

A total of 134 nursing home administrators provided informed consent to participate in the BeStaDem survey.

Methods

For quantitative data, we performed Fisher's exact test to identify differences in the Dementia Policy Questionnaire item distribution of several types of care units (aim 1). To support the results of Fisher's exact test, we additionally applied logistic regression analysis. For qualitative data, we analyzed the mission statements deductively with the qualitative content analysis method (aim 2). For integration, we used a convergent triangulation approach (aim 3).

Results

The quantitative data collected from 134 German nursing homes show significant associations among person-centred dementia care policies, such as behavior assessment, and nursing homes with dementia care units. Regarding the qualitative data, of the 60 mission statements in total, eight mission statements of nursing homes with dementia care units exclusively address aspects such as dementia-specific interventions. The convergent triangulation approach shows that the answers given by the nursing homes in the quantitative survey are not always consistent with what they address in their mission statements.

Conclusions

Nursing homes with dementia care units provide more person-centred dementia care policies than other care unit types do but mostly do not address these aspects in their mission statements. The implementation of person-centredness benefits from the existence of policies and mission statements if nursing homes clearly address what is meant by person-centred dementia care in their nursing home.

背景疗养院的政策和使命宣言有助于实施以人为本的痴呆症护理。痴呆症政策问卷调查评估了政策中以人为中心的痴呆症护理内容。迄今为止,这些政策是否只存在于痴呆症护理单元,以及这些政策是否与疗养院的使命宣言相一致,尚不得而知。我们的目的是:(1)调查疗养院护理单元类型,了解是否存在以痴呆症政策问卷为衡量标准的政策;(2)探讨这些政策是否在疗养院的使命宣言中有所涉及;(3)整合这两项结果。设计这是一项收敛性混合方法研究,使用的定量和定性数据集是在 BeStaDem 调查(2020 年)中收集的。为了支持费雪精确检验的结果,我们还进行了逻辑回归分析。对于定性数据,我们采用定性内容分析法对使命陈述进行了演绎分析(目的 2)。结果从 134 家德国养老院收集的定量数据显示,以人为本的痴呆症护理政策(如行为评估)与设有痴呆症护理单元的养老院之间存在显著关联。在定性数据方面,在总共 60 份使命陈述中,有 8 家设有痴呆症护理单元的养老院的使命陈述专门涉及痴呆症特定干预等方面。收敛三角测量法显示,养老院在定量调查中给出的答案与他们在使命宣言中涉及的内容并不总是一致的。结论与其他护理单元类型相比,设有痴呆症护理单元的养老院提供了更多以人为本的痴呆症护理政策,但在他们的使命宣言中大多没有涉及这些方面。如果养老院能明确说明以人为本的失智症护理在其养老院中的含义,那么以人为本的理念就能从政策和使命宣言的存在中受益。
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International Journal of Nursing Studies Advances
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