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Soins; la revue de reference infirmiere最新文献

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Des pharmacies contre l’insécurité alimentaire ? 药房如何解决粮食不安全问题?
Q4 Nursing Pub Date : 2023-12-01 Epub Date: 2023-11-25 DOI: 10.1016/j.soin.2023.10.001
Daniel Maroudy
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引用次数: 0
L’anorexie mentale : du diagnostic à la prise en charge. 神经性厌食症:从诊断到治疗。
Q4 Nursing Pub Date : 2023-12-01 Epub Date: 2023-11-25 DOI: 10.1016/j.soin.2023.10.004
Jean-Pierre Bouchard
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引用次数: 0
[Anorexia nervosa: demographic, socio-economic and cultural data still too limited]. [神经性厌食症:人口、社会经济和文化数据仍然过于有限]。
Q4 Nursing Pub Date : 2023-12-01 Epub Date: 2023-11-25 DOI: 10.1016/j.soin.2023.10.006
Nancy Stiegler, Jean-Pierre Bouchard

Although eating disorders are a public health issue, treating anorexia nervosa from a demographic and socio-economic perspective remains a challenge. Data are scarce, patchy and often of questionable quality. Such a lack of data on a somatopsychic illness with serious repercussions is a real problem, since reliable, longitudinal and detailed information could provide additional answers in understanding the illness, both in terms of age, sex and gender structure, and in terms of family, social and environmental factors.

尽管饮食失调是一个公共卫生问题,但从人口和社会经济角度治疗神经性厌食症仍然是一项挑战。数据稀缺、零散,而且往往质量可疑。对于一种具有严重影响的躯体精神疾病来说,数据的缺乏是一个真正的问题,因为可靠、纵向和详细的信息可以从年龄、性别和性别结构,以及家庭、社会和环境因素等方面为了解这种疾病提供更多的答案。
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引用次数: 0
[Care of newborns and infants with epidermolysis bullosa]. [新生儿和患有大疱性表皮松解症的婴儿的护理]。
Q4 Nursing Pub Date : 2023-11-01 Epub Date: 2023-10-23 DOI: 10.1016/j.soin.2023.09.006
Marion Arnaud, Mathilde Leloup

When a baby is born, the first bonds of attachment are slowly formed. Primary care, such as feeding, changing, carrying, rocking or putting the child to sleep, is very important for the development of these bonds. In the event of early hospitalization, and especially in the case of a newborn with fragile skin, parents are deprived of this first care, which is a key moment they looked forward to during pregnancy. Feelings of fear and guilt are bound to develop during the establishment of these first bonds. That's why it's essential to support these families as early as possible, and involve them as much as possible in their baby's care.

当婴儿出生时,最初的依恋纽带会慢慢形成。初级保健,如喂养、换尿布、搬运、摇晃或哄孩子入睡,对这些纽带的发展非常重要。在早期住院的情况下,尤其是皮肤脆弱的新生儿,父母被剥夺了这种第一次护理,这是他们在怀孕期间期待的关键时刻。在建立这些最初的纽带的过程中,恐惧和内疚感必然会发展。这就是为什么尽早支持这些家庭,并让他们尽可能多地参与婴儿护理至关重要。
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引用次数: 0
[Growing up with an EBH, an example of pediatric-adult transition in the field of rare diseases]. [与EBH一起长大,这是罕见病领域儿童-成人转变的一个例子]。
Q4 Nursing Pub Date : 2023-11-01 Epub Date: 2023-10-20 DOI: 10.1016/j.soin.2023.09.008
Emmanuelle Bourrat

The transition from pediatrics to adult wards concerns all chronic diseases with a pediatric onset, but there are a number of specific features in the case of severe forms of hereditary epidermolysis bullosa: worsening wound surface and chronicity with age, appearance or increase in certain complications (carcinological, renal, nutritional, dental), sometimes difficult therapeutic choices, sometimes life-threatening prognosis. But one of the major problems limiting the patient's autonomy is the difficulty of finding a paramedic to take over skin care, often provided from birth by a parent who has become a caregiver through necessity.

从儿科到成人病房的过渡涉及所有儿童发病的慢性疾病,但在严重形式的遗传性大疱性表皮松解症的情况下有许多特定特征:随着年龄的增长、某些并发症(癌症、肾脏、营养、牙科)的出现或增加,伤口表面和慢性性恶化,有时治疗选择困难,有时危及生命的预后。但限制患者自主性的一个主要问题是,很难找到护理人员来接管皮肤护理,而皮肤护理通常是由父母从出生起就提供的,而父母在必要时成为了护理人员。
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引用次数: 0
[Architecture as experience, living differently with the philosophy of John Dewey]. [建筑是一种体验,与约翰·杜威的哲学不同地生活]。
Q4 Nursing Pub Date : 2023-11-01 Epub Date: 2023-10-23 DOI: 10.1016/j.soin.2023.09.016
Hugo Martin

If architecture can be considered an art form, it is at the cost of reconfiguring what we consider to be an aesthetic experience. Thus conceived as processes, not finished objects, refuting the separation between the active creator and the passive spectator and between ideas, actions and affects, the architectural projects accompanied and documented by the urban and architectural experiments laboratory la Preuve par 7 engage a collective, experimental, sensitive and political understanding of their discipline.

如果建筑可以被视为一种艺术形式,那么它是以重新配置我们所认为的美学体验为代价的。因此,城市和建筑实验实验室la Preuve par 7所伴随和记录的建筑项目被认为是过程,而不是成品,驳斥了主动创作者和被动观众之间以及思想、行动和影响之间的分离,对其学科进行了集体、实验、敏感和政治的理解。
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引用次数: 0
[Cutaneous squamous cell carcinomas: a complication of severe forms of hereditary epidermolysis bullosa]. [皮肤鳞状细胞癌:严重遗传性大疱性表皮松解症的并发症]。
Q4 Nursing Pub Date : 2023-11-01 Epub Date: 2023-10-23 DOI: 10.1016/j.soin.2023.09.010
Emmanuelle Bourrat

Despite an increase in life expectancy and quality of life for patients suffering from severe forms of hereditary epidermolysis bullosa, the occurrence of one or more cutaneous squamous cell carcinomas remains a sometimes serious complication, sometimes life-threatening as early as adolescence. These carcinomas occur preferably on chronic wounds or dystrophic scars in areas not exposed to the sun, and are generally multifocal and recurrent. Their clinical and histological diagnosis is difficult. Regular medical and paramedical monitoring of the skin during dressing repairs enables early detection and rapid, curative surgical management. The pathophysiology of these cutaneous carcinomas is the subject of research aimed at proposing non-surgical alternatives to the patients concerned.

尽管患有严重遗传性大疱性表皮松解症的患者的预期寿命和生活质量有所提高,但一种或多种皮肤鳞状细胞癌的发生有时仍然是一种严重的并发症,有时甚至在青春期就危及生命。这些癌最好发生在未暴露于阳光下的慢性伤口或营养不良疤痕上,通常是多灶性和复发性的。他们的临床和组织学诊断是困难的。在敷料修复过程中,对皮肤进行定期的医疗和辅助医疗监测,可以早期发现并进行快速、有效的手术管理。这些皮肤癌的病理生理学是旨在为相关患者提出非手术替代方案的研究主题。
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引用次数: 1
[Hygiene care and local treatment of skin and mucous membranes in autoimmune bullous diseases]. [自身免疫性大疱性疾病的皮肤和粘膜的卫生保健和局部治疗]。
Q4 Nursing Pub Date : 2023-11-01 Epub Date: 2023-10-20 DOI: 10.1016/j.soin.2023.09.012
Laetitia Natier, Barbara Gouard, Jennifer Delente, Christelle Le Roux-Villet

As part of its therapeutic patient education program, the Avicenne hospital in the Paris region invites patients with an autoimmune bullous disease to a workshop dedicated to local skin and mucous membrane care. Together, a nurse, patient partners and patients review best practices in hygiene care and treatment of the skin, eyes, nose, mouth, genitals and anus. This is essential for healing lesions and avoiding local complications.

作为其治疗性患者教育计划的一部分,巴黎地区的Avicenne医院邀请自身免疫性大疱病患者参加一个专门针对当地皮肤和粘膜护理的研讨会。护士、患者伙伴和患者一起审查皮肤、眼睛、鼻子、嘴巴、生殖器和肛门的卫生护理和治疗的最佳实践。这对于治愈病变和避免局部并发症至关重要。
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引用次数: 0
[The main autoimmune bullous diseases]. [主要的自身免疫性大疱性疾病]。
Q4 Nursing Pub Date : 2023-11-01 Epub Date: 2023-10-20 DOI: 10.1016/j.soin.2023.09.003
Christelle Le Roux-Villet

Autoimmune bullous diseases are disorders in which the immune system mistakenly attacks certain molecules that act as "glue" in the various layers of the skin, leading to the formation of bullae or vesicles. A bulla is a liquid-containing lesion over five millimeters in size on the skin or mucous membranes. It forms due to a loss of cohesion between the epidermis and dermis, or between keratinocytes within the epidermis. Diagnosis is based on biopsies, which show the presence of autoantibodies and the depth of skin detachment. A blood test can be used to identify circulating autoantibodies.

自身免疫性大疱性疾病是指免疫系统错误地攻击皮肤各层中充当“粘合剂”的某些分子,导致形成大疱或小泡的疾病。大疱是指皮肤或粘膜上大小超过5毫米的含有液体的病变。它的形成是由于表皮和真皮之间或表皮内角质形成细胞之间的内聚力丧失。诊断是基于活检,显示自身抗体的存在和皮肤脱落的深度。血液测试可以用来识别循环中的自身抗体。
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引用次数: 0
Maladies bulleuses : acteurs médicaux et paramédicaux essentiels aux bons soins. 大疱性疾病:对良好护理至关重要的医疗和辅助医疗行为者。
Q4 Nursing Pub Date : 2023-11-01 Epub Date: 2023-10-23 DOI: 10.1016/j.soin.2023.09.002
Teddy Cittée
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引用次数: 0
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Soins; la revue de reference infirmiere
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