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Motricite Cerebrale最新文献

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Éditorial 社论
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.09.003
P. Toullet (Rédacteur en chef)
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引用次数: 0
PIPA MOTEUR : Programme d’Intervention Précoce Accompagné Moteur pour les enfants à très haut risque de paralysie cérébrale 运动PIPA:针对脑瘫高风险儿童的运动辅助早期干预计划
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.08.001
M. Coquery, S. Paviot, L.A. Phelix, H. Daudé

The Early Medico-Psychological Action Center (CAMSP) in Montpellier has set up PIPA, which is an accompanied precocious intervention program for children presenting vulnerability factors at birth, and their parents. In this program, between three and four months of corrected age, when a newborn is presenting a very high risk of developing a cerebral palsy, an intensification of the neuromotor follow-up is proposed (MOTOR PIPA). This program is based on on international recommendations concerning: the earliest possible diagnosis with evaluations based on current scientific data, active involvement from parents in the child's therapeutic project, enrichment of the child's environment, intensification of neuromotor stimulations. In addition, we use a partnership notebook as well as filmed session videos.

蒙彼利埃的早期医学心理行动中心(CAMSP)设立了PIPA,这是一项针对出生时存在脆弱因素的儿童及其父母的伴随性早熟干预计划。在这个项目中,在矫正年龄的三到四个月之间,当新生儿出现患脑瘫的高风险时,建议加强神经运动随访(MOTOR PIPA)。该计划基于以下国际建议:根据当前科学数据进行评估,尽可能早地进行诊断,父母积极参与儿童的治疗项目,丰富儿童的环境,加强神经运动刺激。此外,我们使用合作伙伴笔记本以及拍摄的会话视频。
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引用次数: 0
Quelles installations et appareillages pour les jeunes enfants en situation de handicap moteur sévère ? Pour quels objectifs ? Avec quel partenariat ? 为严重运动障碍的幼儿提供哪些设施和设备?为了什么目的?与什么伙伴关系?
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.09.002
I. Yanez , L. Cheikh

The multidisciplinary therapeutic and educational team at the Ramdam Inclusive child care centre welcomes 30% of children with cerebral palsy among able-bodied children in the neighbourhood. The facilities of these young children with severe motor disabilities are essential they aim to preserve their orthopedic capital, to avoid choking spells, and to optimize their functional possibilities (motor, visual, communicational and relational) in their environment, at home as well as at their child care centre. They thus participate in their early social inclusion. From the multifactorial assessment of children's disorders and capacities, their occupations and their environment, to the co-construction of relevant objectives, partnership with the different actors is essential. We will emphasize the importance of this transdisciplinary work (and more specifically between the occupational therapist, the physiotherapist and the orthoprothesist, in close partnership with families and doctors), from the first “foam homemade installations” by the occupational therapist in the Ramdam child-care centre, to the orthopedic equipments made by the orthoprothesist. We will illustrate our constructive approach with some clinical vignettes of young children with severe motor disabilities, with the gradual introduction of facilities depending on the child's evolution, the parents’ requests and their progress in discovering their “different” child, proposals from the multidisciplinary team, while taking into account the specific and personalized goals for each child.

Ramdam包容性儿童保育中心的多学科治疗和教育团队欢迎附近30%的健全儿童中的脑瘫儿童。这些患有严重运动障碍的幼儿的设施至关重要——他们的目的是保护他们的矫形资本,避免窒息,并优化他们在环境、家庭和儿童保育中心的功能可能性(运动、视觉、交流和关系)。因此,他们参与了早期的社会融合。从对儿童的障碍和能力、职业和环境的多因素评估,到相关目标的共同构建,与不同行为者的伙伴关系至关重要。我们将强调这项跨学科工作的重要性(更具体地说,是职业治疗师、理疗师和矫形师之间,与家庭和医生密切合作),从职业治疗师在拉姆达姆儿童保育中心的第一个“自制泡沫装置”到矫形师制造的矫形设备。我们将用一些严重运动障碍幼儿的临床小插曲来说明我们的建设性方法,根据孩子的进化、父母的要求和他们在发现“不同”孩子方面的进展,多学科团队的建议,同时考虑到每个孩子的具体和个性化目标。
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引用次数: 0
Emma Livingstone, lauréate du prix de la Fondation Paralysie Cérébrale au congrès de l’EACD
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.07.001
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引用次数: 0
De l’évolution des représentations du handicap à l’évolution des modèles de conception des appareillages 从残疾表现的演变到设备设计模型的演变
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.09.001
P. Toullet, A. Jouve

The device occupies an important place in the therapeutic arsenal used in cerebral palsy. The molded seat (or seat corset), the pelvic-pedal splints for verticalization, the night splints represent the daily life of a large number of cerebral palsy subjects. Unfortunately, it is a source of pain or discomfort, which limits its use when the initial objectives seemed relevant. The tools allowing the development of the specifications of these devices have evolved in connection with the representation that we have of disability and of the person with a disability. This evolution opens up new perspectives in the representation and design of the device: This would no longer be only a tool for compensating for a deficiency but that of an adaptive and enabling tool.

该装置在脑瘫治疗中占有重要地位。模制座椅(或座椅胸衣)、用于垂直化的骨盆踏板夹板、夜间夹板代表了大量脑瘫患者的日常生活。不幸的是,它是疼痛或不适的来源,这限制了它在最初目标似乎相关时的使用。允许开发这些设备规格的工具是随着我们对残疾人和残疾人的描述而发展起来的。这一演变为设备的表示和设计开辟了新的视角:这将不再只是一种弥补缺陷的工具,而是一种适应性和使能性的工具。
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引用次数: 0
Pour une vision éclairée du guidage moteur : le Hands on au service du Hands off 对于发动机引导的照明视图:手动开启服务于手动关闭
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/j.motcer.2023.05.001
P. Toullet (Rédacteur en chef)
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引用次数: 0
Issue contents 发布内容
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/S0245-5919(23)00036-5
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引用次数: 0
Un compromis dans l’appareillage pour soutenir les activités de la vie quotidienne : l’orthèse DYNAMIQUE FLEXA 支持日常生活活动的设备妥协:FLEXA动态矫形器
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/j.motcer.2023.03.004
M. Genin Journet

Objective

To assess the impact of dynamic and compressive orthosis on daily life for patient with impaired proprioceptive system.

Method

In this article is presented two case study along with hypothesis on the effect of the orthosis on daily activity for handicapped people with impaired proprioception: Rett syndrom and chromosomal anomaly with autism spectrum disorder (ASD) associated.

Results

The orthosis has an impact on several everyday activities by helping difficult activities for the patient like walking or refine manual coordination. Also, it has a preventive action, by lowering fall risk or facilitate gripping approach.

Conclusion

The orthosis can’t substitute the reeducation nor the associated equipment like corset. The effect of this system appears positive and sustain the interest of French studies to promote and facilitate the use for our patients on daily basis.

目的评价动态加压矫形器对本体感觉系统受损患者日常生活的影响。方法本文介绍了两个案例研究,以及矫形器对本体感觉受损的残疾人日常活动影响的假设:Rett综合征和染色体异常与自闭症谱系障碍(ASD)相关。结果矫形器通过帮助患者进行困难的活动,如步行或改善手动协调,对患者的日常活动产生了影响。此外,它还具有预防作用,通过降低跌倒风险或促进抓握方法。结论矫形器不能代替劳教,也不能代替紧身胸衣等相关器械。该系统的效果似乎是积极的,并保持了法国研究的兴趣,以促进和促进我们患者的日常使用。
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引用次数: 0
Agenda 议程
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/j.motcer.2023.05.002
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引用次数: 0
Caractéristiques cliniques, épidémiologiques et facteurs associés aux fonctions motrices globales chez les enfants atteints de paralysie cérébrale au Nord-ouest du Maroc 摩洛哥西北部脑瘫儿童整体运动功能的临床、流行病学特征及相关因素
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/j.motcer.2023.03.005
M. Mouilly , B. El Bouhali , A.O. Ahami

The objective is to study the epidemiological and clinical profile and determine the factors associated with gross motor function in cerebral palsy patients. We conducted a descriptive cross-sectional study with prospective collection of patients (between 0–16 years old) who were diagnosed as cerebral palsy and referred for possible treatment at the reception and rehabilitation center for maladjusted children during the period. from July 01, 2021 to 01 June, 2022. Patients with progressive encephalopathy and those with genetic neurological pathology were excluded. A total of 117 children meeting the inclusion criteria were recruited. The male sex was the most represented with a sex ratio of 1.60. The mean age at diagnosis was 26.9 (± 12.46) months or 2.24 years. The aetiologies found were mainly perinatal with a frequency of 67%, mainly dominated by prematurity. Spastic cases were the most dominant (71.4%), topographically, (73.2%) of our population was quadriplegic, on the GMFCS, children classified as grade IV and V tend to represent two thirds of our population. population. CT abnormalities were found in 83.8 % of patients who were able to perform a brain scan. In total, 63.6 % of patients presented with seizures as an associated disorder. The main aetiologies of cerebral palsy are perinatal causes mainly dominated by prematurity, neonatal asphyxia and sequelae of kernicterus, health programs should focus on areas aimed at improving prevention, care and education of the various stakeholders.

目的是研究脑瘫患者的流行病学和临床特征,并确定与大体运动功能相关的因素。我们对被诊断为脑瘫的患者(0-16岁)进行了一项描述性横断面研究,这些患者在此期间被转诊到适应不良儿童的接收和康复中心接受可能的治疗。自2021年7月1日至2022年6月1日。排除进行性脑病患者和遗传性神经病变患者。共招募了117名符合入选标准的儿童。男性代表性最高,性别比为1.60。诊断时的平均年龄为26.9(±12.46)个月或2.24岁。发现的病因主要是围产期,发生率为67%,主要是早产。痉挛病例最为常见(71.4%),从地形上看,(73.2%)我们的人群是四肢瘫痪,在GMFCS中,被归类为IV级和V级的儿童往往占我们人口的三分之二。人口在能够进行脑部扫描的患者中,83.8%的患者发现了CT异常。总的来说,63.6%的患者将癫痫发作作为一种相关疾病。脑瘫的主要病因是围产期原因,主要是早产、新生儿窒息和kernicterus后遗症,健康计划应重点关注旨在改善各种利益相关者的预防、护理和教育的领域。
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引用次数: 0
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Motricite Cerebrale
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