Pub Date : 2023-10-01DOI: 10.1016/j.motcer.2023.08.001
M. Coquery, S. Paviot, L.A. Phelix, H. Daudé
The Early Medico-Psychological Action Center (CAMSP) in Montpellier has set up PIPA, which is an accompanied precocious intervention program for children presenting vulnerability factors at birth, and their parents. In this program, between three and four months of corrected age, when a newborn is presenting a very high risk of developing a cerebral palsy, an intensification of the neuromotor follow-up is proposed (MOTOR PIPA). This program is based on on international recommendations concerning: the earliest possible diagnosis with evaluations based on current scientific data, active involvement from parents in the child's therapeutic project, enrichment of the child's environment, intensification of neuromotor stimulations. In addition, we use a partnership notebook as well as filmed session videos.
{"title":"PIPA MOTEUR : Programme d’Intervention Précoce Accompagné Moteur pour les enfants à très haut risque de paralysie cérébrale","authors":"M. Coquery, S. Paviot, L.A. Phelix, H. Daudé","doi":"10.1016/j.motcer.2023.08.001","DOIUrl":"https://doi.org/10.1016/j.motcer.2023.08.001","url":null,"abstract":"<div><p>The Early Medico-Psychological Action Center (CAMSP) in Montpellier has set up PIPA, which is an accompanied precocious intervention program for children presenting vulnerability factors at birth, and their parents. In this program, between three and four months of corrected age, when a newborn is presenting a very high risk of developing a cerebral palsy, an intensification of the neuromotor follow-up is proposed (MOTOR PIPA). This program is based on on international recommendations concerning: the earliest possible diagnosis with evaluations based on current scientific data, active involvement from parents in the child's therapeutic project, enrichment of the child's environment, intensification of neuromotor stimulations. In addition, we use a partnership notebook as well as filmed session videos.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 3","pages":"Pages 84-88"},"PeriodicalIF":0.0,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50198057","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-01DOI: 10.1016/j.motcer.2023.09.002
I. Yanez , L. Cheikh
The multidisciplinary therapeutic and educational team at the Ramdam Inclusive child care centre welcomes 30% of children with cerebral palsy among able-bodied children in the neighbourhood. The facilities of these young children with severe motor disabilities are essential they aim to preserve their orthopedic capital, to avoid choking spells, and to optimize their functional possibilities (motor, visual, communicational and relational) in their environment, at home as well as at their child care centre. They thus participate in their early social inclusion. From the multifactorial assessment of children's disorders and capacities, their occupations and their environment, to the co-construction of relevant objectives, partnership with the different actors is essential. We will emphasize the importance of this transdisciplinary work (and more specifically between the occupational therapist, the physiotherapist and the orthoprothesist, in close partnership with families and doctors), from the first “foam homemade installations” by the occupational therapist in the Ramdam child-care centre, to the orthopedic equipments made by the orthoprothesist. We will illustrate our constructive approach with some clinical vignettes of young children with severe motor disabilities, with the gradual introduction of facilities depending on the child's evolution, the parents’ requests and their progress in discovering their “different” child, proposals from the multidisciplinary team, while taking into account the specific and personalized goals for each child.
{"title":"Quelles installations et appareillages pour les jeunes enfants en situation de handicap moteur sévère ? Pour quels objectifs ? Avec quel partenariat ?","authors":"I. Yanez , L. Cheikh","doi":"10.1016/j.motcer.2023.09.002","DOIUrl":"https://doi.org/10.1016/j.motcer.2023.09.002","url":null,"abstract":"<div><p>The multidisciplinary therapeutic and educational team at the Ramdam Inclusive child care centre welcomes 30% of children with cerebral palsy among able-bodied children in the neighbourhood. The facilities of these young children with severe motor disabilities are essential they aim to preserve their orthopedic capital, to avoid choking spells, and to optimize their functional possibilities (motor, visual, communicational and relational) in their environment, at home as well as at their child care centre. They thus participate in their early social inclusion. From the multifactorial assessment of children's disorders and capacities, their occupations and their environment, to the co-construction of relevant objectives, partnership with the different actors is essential. We will emphasize the importance of this transdisciplinary work (and more specifically between the occupational therapist, the physiotherapist and the orthoprothesist, in close partnership with families and doctors), from the first “foam homemade installations” by the occupational therapist in the Ramdam child-care centre, to the orthopedic equipments made by the orthoprothesist. We will illustrate our constructive approach with some clinical vignettes of young children with severe motor disabilities, with the gradual introduction of facilities depending on the child's evolution, the parents’ requests and their progress in discovering their “different” child, proposals from the multidisciplinary team, while taking into account the specific and personalized goals for each child.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 3","pages":"Pages 96-103"},"PeriodicalIF":0.0,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50197638","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-01DOI: 10.1016/j.motcer.2023.07.001
{"title":"Emma Livingstone, lauréate du prix de la Fondation Paralysie Cérébrale au congrès de l’EACD","authors":"","doi":"10.1016/j.motcer.2023.07.001","DOIUrl":"10.1016/j.motcer.2023.07.001","url":null,"abstract":"","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 3","pages":"Pages 72-73"},"PeriodicalIF":0.0,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41613799","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-01DOI: 10.1016/j.motcer.2023.09.001
P. Toullet, A. Jouve
The device occupies an important place in the therapeutic arsenal used in cerebral palsy. The molded seat (or seat corset), the pelvic-pedal splints for verticalization, the night splints represent the daily life of a large number of cerebral palsy subjects. Unfortunately, it is a source of pain or discomfort, which limits its use when the initial objectives seemed relevant. The tools allowing the development of the specifications of these devices have evolved in connection with the representation that we have of disability and of the person with a disability. This evolution opens up new perspectives in the representation and design of the device: This would no longer be only a tool for compensating for a deficiency but that of an adaptive and enabling tool.
{"title":"De l’évolution des représentations du handicap à l’évolution des modèles de conception des appareillages","authors":"P. Toullet, A. Jouve","doi":"10.1016/j.motcer.2023.09.001","DOIUrl":"https://doi.org/10.1016/j.motcer.2023.09.001","url":null,"abstract":"<div><p>The device occupies an important place in the therapeutic arsenal used in cerebral palsy. The molded seat (or seat corset), the pelvic-pedal splints for verticalization, the night splints represent the daily life of a large number of cerebral palsy subjects. Unfortunately, it is a source of pain or discomfort, which limits its use when the initial objectives seemed relevant. The tools allowing the development of the specifications of these devices have evolved in connection with the representation that we have of disability and of the person with a disability. This evolution opens up new perspectives in the representation and design of the device: This would no longer be only a tool for compensating for a deficiency but that of an adaptive and enabling tool.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 3","pages":"Pages 89-95"},"PeriodicalIF":0.0,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50197644","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-06-01DOI: 10.1016/j.motcer.2023.05.001
P. Toullet (Rédacteur en chef)
{"title":"Pour une vision éclairée du guidage moteur : le Hands on au service du Hands off","authors":"P. Toullet (Rédacteur en chef)","doi":"10.1016/j.motcer.2023.05.001","DOIUrl":"10.1016/j.motcer.2023.05.001","url":null,"abstract":"","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 2","pages":"Page 33"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47557068","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-06-01DOI: 10.1016/j.motcer.2023.03.004
M. Genin Journet
Objective
To assess the impact of dynamic and compressive orthosis on daily life for patient with impaired proprioceptive system.
Method
In this article is presented two case study along with hypothesis on the effect of the orthosis on daily activity for handicapped people with impaired proprioception: Rett syndrom and chromosomal anomaly with autism spectrum disorder (ASD) associated.
Results
The orthosis has an impact on several everyday activities by helping difficult activities for the patient like walking or refine manual coordination. Also, it has a preventive action, by lowering fall risk or facilitate gripping approach.
Conclusion
The orthosis can’t substitute the reeducation nor the associated equipment like corset. The effect of this system appears positive and sustain the interest of French studies to promote and facilitate the use for our patients on daily basis.
{"title":"Un compromis dans l’appareillage pour soutenir les activités de la vie quotidienne : l’orthèse DYNAMIQUE FLEXA","authors":"M. Genin Journet","doi":"10.1016/j.motcer.2023.03.004","DOIUrl":"10.1016/j.motcer.2023.03.004","url":null,"abstract":"<div><h3>Objective</h3><p>To assess the impact of dynamic and compressive orthosis on daily life for patient with impaired proprioceptive system.</p></div><div><h3>Method</h3><p>In this article is presented two case study along with hypothesis on the effect of the orthosis on daily activity for handicapped people with impaired proprioception: Rett syndrom and chromosomal anomaly with autism spectrum disorder (ASD) associated.</p></div><div><h3>Results</h3><p>The orthosis has an impact on several everyday activities by helping difficult activities for the patient like walking or refine manual coordination. Also, it has a preventive action, by lowering fall risk or facilitate gripping approach.</p></div><div><h3>Conclusion</h3><p>The orthosis can’t substitute the reeducation nor the associated equipment like corset. The effect of this system appears positive and sustain the interest of French studies to promote and facilitate the use for our patients on daily basis.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 2","pages":"Pages 44-53"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43519357","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-06-01DOI: 10.1016/j.motcer.2023.03.005
M. Mouilly , B. El Bouhali , A.O. Ahami
The objective is to study the epidemiological and clinical profile and determine the factors associated with gross motor function in cerebral palsy patients. We conducted a descriptive cross-sectional study with prospective collection of patients (between 0–16 years old) who were diagnosed as cerebral palsy and referred for possible treatment at the reception and rehabilitation center for maladjusted children during the period. from July 01, 2021 to 01 June, 2022. Patients with progressive encephalopathy and those with genetic neurological pathology were excluded. A total of 117 children meeting the inclusion criteria were recruited. The male sex was the most represented with a sex ratio of 1.60. The mean age at diagnosis was 26.9 (± 12.46) months or 2.24 years. The aetiologies found were mainly perinatal with a frequency of 67%, mainly dominated by prematurity. Spastic cases were the most dominant (71.4%), topographically, (73.2%) of our population was quadriplegic, on the GMFCS, children classified as grade IV and V tend to represent two thirds of our population. population. CT abnormalities were found in 83.8 % of patients who were able to perform a brain scan. In total, 63.6 % of patients presented with seizures as an associated disorder. The main aetiologies of cerebral palsy are perinatal causes mainly dominated by prematurity, neonatal asphyxia and sequelae of kernicterus, health programs should focus on areas aimed at improving prevention, care and education of the various stakeholders.
{"title":"Caractéristiques cliniques, épidémiologiques et facteurs associés aux fonctions motrices globales chez les enfants atteints de paralysie cérébrale au Nord-ouest du Maroc","authors":"M. Mouilly , B. El Bouhali , A.O. Ahami","doi":"10.1016/j.motcer.2023.03.005","DOIUrl":"10.1016/j.motcer.2023.03.005","url":null,"abstract":"<div><p>The objective is to study the epidemiological and clinical profile and determine the factors associated with gross motor function in cerebral palsy patients. We conducted a descriptive cross-sectional study with prospective collection of patients (between 0–16 years old) who were diagnosed as cerebral palsy and referred for possible treatment at the reception and rehabilitation center for maladjusted children during the period. from July 01, 2021 to 01 June, 2022. Patients with progressive encephalopathy and those with genetic neurological pathology were excluded. A total of 117 children meeting the inclusion criteria were recruited. The male sex was the most represented with a sex ratio of 1.60. The mean age at diagnosis was 26.9 (±<!--> <!-->12.46) months or 2.24 years. The aetiologies found were mainly perinatal with a frequency of 67%, mainly dominated by prematurity. Spastic cases were the most dominant (71.4%), topographically, (73.2%) of our population was quadriplegic, on the GMFCS, children classified as grade IV and V tend to represent two thirds of our population. population. CT abnormalities were found in 83.8 % of patients who were able to perform a brain scan. In total, 63.6 % of patients presented with seizures as an associated disorder. The main aetiologies of cerebral palsy are perinatal causes mainly dominated by prematurity, neonatal asphyxia and sequelae of kernicterus, health programs should focus on areas aimed at improving prevention, care and education of the various stakeholders.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"44 2","pages":"Pages 54-61"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48118722","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}