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Pour une vision éclairée du guidage moteur : le Hands on au service du Hands off 对于发动机引导的照明视图:手动开启服务于手动关闭
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/j.motcer.2023.05.001
P. Toullet (Rédacteur en chef)
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引用次数: 0
Issue contents 发布内容
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/S0245-5919(23)00036-5
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引用次数: 0
Un compromis dans l’appareillage pour soutenir les activités de la vie quotidienne : l’orthèse DYNAMIQUE FLEXA 支持日常生活活动的设备妥协:FLEXA动态矫形器
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/j.motcer.2023.03.004
M. Genin Journet

Objective

To assess the impact of dynamic and compressive orthosis on daily life for patient with impaired proprioceptive system.

Method

In this article is presented two case study along with hypothesis on the effect of the orthosis on daily activity for handicapped people with impaired proprioception: Rett syndrom and chromosomal anomaly with autism spectrum disorder (ASD) associated.

Results

The orthosis has an impact on several everyday activities by helping difficult activities for the patient like walking or refine manual coordination. Also, it has a preventive action, by lowering fall risk or facilitate gripping approach.

Conclusion

The orthosis can’t substitute the reeducation nor the associated equipment like corset. The effect of this system appears positive and sustain the interest of French studies to promote and facilitate the use for our patients on daily basis.

目的评价动态加压矫形器对本体感觉系统受损患者日常生活的影响。方法本文介绍了两个案例研究,以及矫形器对本体感觉受损的残疾人日常活动影响的假设:Rett综合征和染色体异常与自闭症谱系障碍(ASD)相关。结果矫形器通过帮助患者进行困难的活动,如步行或改善手动协调,对患者的日常活动产生了影响。此外,它还具有预防作用,通过降低跌倒风险或促进抓握方法。结论矫形器不能代替劳教,也不能代替紧身胸衣等相关器械。该系统的效果似乎是积极的,并保持了法国研究的兴趣,以促进和促进我们患者的日常使用。
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引用次数: 0
Agenda 议程
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/j.motcer.2023.05.002
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引用次数: 0
Caractéristiques cliniques, épidémiologiques et facteurs associés aux fonctions motrices globales chez les enfants atteints de paralysie cérébrale au Nord-ouest du Maroc 摩洛哥西北部脑瘫儿童整体运动功能的临床、流行病学特征及相关因素
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/j.motcer.2023.03.005
M. Mouilly , B. El Bouhali , A.O. Ahami

The objective is to study the epidemiological and clinical profile and determine the factors associated with gross motor function in cerebral palsy patients. We conducted a descriptive cross-sectional study with prospective collection of patients (between 0–16 years old) who were diagnosed as cerebral palsy and referred for possible treatment at the reception and rehabilitation center for maladjusted children during the period. from July 01, 2021 to 01 June, 2022. Patients with progressive encephalopathy and those with genetic neurological pathology were excluded. A total of 117 children meeting the inclusion criteria were recruited. The male sex was the most represented with a sex ratio of 1.60. The mean age at diagnosis was 26.9 (± 12.46) months or 2.24 years. The aetiologies found were mainly perinatal with a frequency of 67%, mainly dominated by prematurity. Spastic cases were the most dominant (71.4%), topographically, (73.2%) of our population was quadriplegic, on the GMFCS, children classified as grade IV and V tend to represent two thirds of our population. population. CT abnormalities were found in 83.8 % of patients who were able to perform a brain scan. In total, 63.6 % of patients presented with seizures as an associated disorder. The main aetiologies of cerebral palsy are perinatal causes mainly dominated by prematurity, neonatal asphyxia and sequelae of kernicterus, health programs should focus on areas aimed at improving prevention, care and education of the various stakeholders.

目的是研究脑瘫患者的流行病学和临床特征,并确定与大体运动功能相关的因素。我们对被诊断为脑瘫的患者(0-16岁)进行了一项描述性横断面研究,这些患者在此期间被转诊到适应不良儿童的接收和康复中心接受可能的治疗。自2021年7月1日至2022年6月1日。排除进行性脑病患者和遗传性神经病变患者。共招募了117名符合入选标准的儿童。男性代表性最高,性别比为1.60。诊断时的平均年龄为26.9(±12.46)个月或2.24岁。发现的病因主要是围产期,发生率为67%,主要是早产。痉挛病例最为常见(71.4%),从地形上看,(73.2%)我们的人群是四肢瘫痪,在GMFCS中,被归类为IV级和V级的儿童往往占我们人口的三分之二。人口在能够进行脑部扫描的患者中,83.8%的患者发现了CT异常。总的来说,63.6%的患者将癫痫发作作为一种相关疾病。脑瘫的主要病因是围产期原因,主要是早产、新生儿窒息和kernicterus后遗症,健康计划应重点关注旨在改善各种利益相关者的预防、护理和教育的领域。
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引用次数: 0
Un Fablab mobile en Bretagne 布列塔尼的移动FabLab
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/j.motcer.2023.04.001
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引用次数: 0
Polyhandicap et accès aux soins : le modèle interventionnel des soins palliatifs 多重残疾和获得护理:姑息治疗的介入模式
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/j.motcer.2023.03.003
C. Allaire , S. Calmanti , A. Ferreira , V. Laouanan , C. Derouette , V. Tsimba , A. Brosseau-Beauvir , P. Le Moine

In order to improve the care of children with severe psychomotor impairment, this project proposed to apply the interventional model of pediatric palliative care to children without life threatening conditions. An initial semi-directive interview carried out at family homes made an inventory of the situation of the children and their families. The care needs identified led to interventions for 6 to 12 months. A care quality assessment questionnaire and an open satisfaction questionnaire were sent to the families. The 28 families included expressed difficulties and shortcomings in their health course. The needs relate to the medical, psychological, and social spheres, underlining the need for linking the different partners of care. The interventions mainly consisted of coordination, as well as the start of projects for requests for respite and training, particularly in pain assessment. The end-of-study questionnaires particularly show satisfaction with the initial interview, but no impact on quality of life was found. We found that the parents of children with severe psychomotor impairment are asking for an extended interview in their living environment to express their difficulties and their needs, as is usually offered by palliative care teams. The various requests from families can be answered by linking the different care partners, but also by setting up systems dedicated to severe psychomotor impairment.

为了改善对严重精神运动障碍儿童的护理,该项目提出将儿科姑息治疗的介入模式应用于没有生命危险的儿童。在家庭之家进行的初步半指导性访谈对儿童及其家庭的情况进行了盘点。确定的护理需求导致干预6至12个月。向这些家庭发送了护理质量评估问卷和开放式满意度问卷。包括在内的28个家庭表示,他们的健康课程存在困难和不足。这些需求涉及医疗、心理和社会领域,强调了将不同的护理伙伴联系起来的必要性。干预措施主要包括协调,以及启动请求喘息和培训的项目,特别是在疼痛评估方面。研究结束时的问卷调查尤其显示出对初次面试的满意度,但没有发现对生活质量的影响。我们发现,患有严重精神运动障碍的儿童的父母要求在他们的生活环境中进行长期面谈,以表达他们的困难和需求,这通常是姑息治疗团队提供的。家庭的各种请求可以通过联系不同的护理伙伴来回答,也可以通过建立专门针对严重精神运动障碍的系统来回答。
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引用次数: 0
Itinéraire thérapeutique des enfants atteints de paralysie cérébrale admis en médecine physique et de réadaptation (MPR) à Abidjan en 2018 2018年阿比让物理和康复医学(MPR)录取的脑瘫儿童治疗行程
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/j.motcer.2023.04.002
A.D. Alloh, K.M. Djossou, A. Tia, G.R. Koffi, N.M. Sie, D.J. Bombo

Objective

To analyze the different stages of the medical and rehabilitation follow-up of children with cerebral palsy (CP) before their admission to the PMR department.

Methods

Cross-sectional study analyzing the care pathway of 58 children with PC before their admission to the MPR department of the Yopougon University Hospital over the period from June to September 2018.

Results

The majority of children with male CP (58.6%) were the first or second child in the siblings. The parents lived as a couple (84%) and resided in the city of Abidjan (87%) but the children lived with both parents in 77.6%. Diagnosis made in a university hospital (46.5%) or in a clinic private (29.3%) by specialists in pediatrics (53.4%) and neurology (34.5%). The time to diagnosis was more than 6 months in 55.2 %. These parents used several therapies: medical (62.07%), traditional (31.03%) and spiritual (6.90%). The most used therapeutic route was medical-traditional-medical (29.3%). The factors influencing the choice of route were the parents’ culture and beliefs (75.9%) and family and economic factors.

Conclusion

Need to develop a precise therapeutic circuit for children with CP.

目的分析脑瘫患儿入院前不同阶段的医疗和康复随访情况。方法横断面研究分析了2018年6月至9月期间58名PC儿童入住Yopougon大学医院MPR科前的护理途径。结果大多数男性CP儿童(58.6%)是兄弟姐妹中的第一个或第二个孩子。父母是一对夫妻(84%),居住在阿比让市(87%),但77.6%的孩子与父母共同生活。儿科专家(53.4%)和神经病学专家在大学医院(46.5%)或私人诊所(29.3%)进行诊断(34.5%)。55.2%的孩子诊断时间超过6个月。这些父母使用了几种疗法:医学(62.07%),传统(31.03%)和精神(6.90%)。最常用的治疗途径是医学-传统医学(29.3%)。影响途径选择的因素是父母的文化和信仰(75.9%)以及家庭和经济因素。结论需要开发一种精确的儿童CP治疗电路。
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引用次数: 0
La stimulation basale, une pédagogie de la rencontre au quotidien 基础刺激,一种日常遭遇的教学法
Q4 Medicine Pub Date : 2023-03-01 DOI: 10.1016/j.motcer.2023.02.001
C. Pagano

Basal stimulation is a humanistic and psycho-pedagogical approach that takes into account the fundamental and specific needs of people with severe disabilities. It invites people with restricted perception, movement and communication abilities to meet in their daily lives. The basal approach helps to find ways of meeting through touch and by a right physical and psychic proximity in the activities of daily life, taking into account the singularity of the person, as well as their difficulties and their motor, sensory, relational and cognitive skills. It is neither a manual nor a recipe book because the basal approach is not a method but a way of thinking and reflecting on the support of people (children and adults) in situations of great dependence and vulnerability by putting the person, his or her skills, resources and way of being in the world at the centre.

基础刺激是一种人文和心理教育方法,考虑到严重残疾人的基本和具体需求。它邀请感知、行动和沟通能力有限的人在日常生活中见面。基本方法有助于在日常生活活动中找到通过触摸和适当的身体和心理接近来会面的方式,同时考虑到人的独特性,以及他们的困难以及他们的运动、感官、关系和认知技能。它既不是一本手册,也不是一本食谱,因为基本方法不是一种方法,而是一种思考和反思在极度依赖和脆弱的情况下人们(儿童和成年人)支持的方式,将个人、他或她的技能、资源和生活方式放在中心。
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引用次数: 0
La rééducation pédiatrique de la paralysie cérébrale utilisant les niveaux d’évolution motrice répond-elle aux attendus actuels de pratique professionnelle en kinésithérapie ? Enquête par entretiens d’autoconfrontation 使用运动进化水平的儿科脑瘫康复是否符合当前物理治疗专业实践的预期?通过自我沟通访谈进行调查
Q4 Medicine Pub Date : 2023-03-01 DOI: 10.1016/j.motcer.2023.01.001
C. Courtabessis

Introduction

Cerebral palsy is the largest cause of motor deficiency in children. However their best practice recommendations for rehabilitation spark debate. The relevance of the work of “motor development milestone” is criticized in this regard. This study aims to identify the professional practice expectations and to observe whether invariants can be observed during care built on the work of “motor development milestone” for children with cerebral palsy (CP) in order to know whether they meet these expectations.

Method

A literature review was conducted to identify the expectations of professional practice for the rehabilitation of CP children using qualitative analysis sorted by thematization to construct an analysis grid. An observational study of practice by a selfconfrontation interview with 3 independent physiotherapists was carried out. The interviews were analyzed using the grid in order to first identify possible invariants of practice and then, if necessary, to link them to the expectations of professional practice.

Results

Forty-one “sub-headings” were identified to describe the professional practice expectations for the rehabilitation of CP children. Analysis of the self-confrontation interviews showed that 24 subheadings were common to all 3 observations. The subheadings most represented in the literature review were most often encountered during the sessions.

Discussion/Conclusion

The results suggest that there are practice invariants in rehabilitation using NEM for CP children and that they partially meet practice expectations. The development of good practice guidelines, the EBP and patient expectations require justification of therapeutic choices and their performance. Their formalization must be developed in order to make them assessable according to validated scientific standards.

引言脑瘫是儿童运动功能障碍的主要原因。然而,他们关于康复的最佳实践建议引发了争论。“电机发展里程碑”工作的相关性在这方面受到批评。本研究旨在确定专业实践期望,并观察在脑瘫儿童“运动发展里程碑”工作的基础上,在护理过程中是否可以观察到不变量,以了解它们是否满足这些期望。方法通过文献综述,采用按主题化排序的定性分析构建分析网格,确定CP儿童康复专业实践的期望值。通过对3名独立物理治疗师的自我对抗访谈,对实践进行了观察性研究。使用网格对访谈进行分析,以便首先确定实践的可能不变量,然后在必要时将其与专业实践的期望联系起来。结果确定了41个“小标题”来描述CP儿童康复的专业实践期望。对自我对抗访谈的分析表明,所有3项观察共有24个副标题。文献综述中最具代表性的副标题在会议期间最常见。讨论/结论研究结果表明,在CP儿童使用NEM的康复中存在实践不变量,并且它们部分满足实践期望。良好实践指南、EBP和患者期望的制定需要对治疗选择及其表现进行证明。必须发展它们的形式化,以便根据经过验证的科学标准对其进行评估。
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引用次数: 0
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Motricite Cerebrale
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