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Éditorial
Q4 Medicine Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.11.001
P. Toullet, A. Jouve
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引用次数: 0
Introduction de la journée 今天的介绍
Q4 Medicine Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.10.008
J.-C. Riou , A. Jouve

The Multihandicap Resource Center (CRMH) is dedicated to polyhandicap. The CRMH carries out activities aimed at families and professionals and is involved in various institutional and associative groups. Orthopedic disorders caused by neurological impairments significantly impact the quality of life of children with polyhandicap. Therefore, we have chosen this theme for the 2023 day of sharing and reflection. The purpose of this meeting is to enhance the care of individuals with PIMD.

多残障资源中心(CRMH)致力于多残障人士。家庭健康委员会开展针对家庭和专业人员的活动,并参与各种机构和协会团体。神经损伤引起的骨科疾病显著影响多残儿的生活质量。因此,我们选择了这个主题作为2023年的分享和反思日。本次会议的目的是加强对PIMD患者的护理。
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引用次数: 0
Le suivi médical global et orthopédique de l’enfant porteur de handicap. Présentation faite par le Docteur Bombart Camus dans le cadre des journées du CRMH : suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris 残疾儿童的全球医疗和骨科监测。2023年6月9日,巴黎,庞巴迪·加米斯博士在CRMH日:多残疾儿童的骨科随访中所作的报告
Q4 Medicine Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.10.007
V. Bombart Camus , A. Jouve

The medical management of orthopedic disorders in children with polyhandicap is inseparable from the care provided for all aspects of their general health. Cutaneous, oral-dental, digestive, respiratory, bladder, and intestinal disorders are intricately linked to the neuro-orthopedic condition of the individual. Therefore, it is essential to assess the state of these organs and the functioning of these functions in order to unravel the cause-and-effect relationships of these impairments. Orthopedic disorders develop in their own right. The primary disorder generates secondary impairments. The pursuit of functional strategies may further deteriorate the orthopedic condition in the long run. Various rehabilitative approaches, combined with the use of orthoses, can help prevent or limit deterioration of the body's physical capabilities. Medical and surgical interventions aim to minimize the expression of spasticity and restore orthopedic function (joint mobility and muscle length) as much as possible. All proposed therapies should be part of the individualized plan for the person with PIMD.

对多残儿童骨科疾病的医疗管理离不开对其整体健康各个方面的护理。皮肤、口腔-牙齿、消化、呼吸、膀胱和肠道疾病与个体的神经-骨科状况有着复杂的联系。因此,有必要评估这些器官的状态和这些功能的功能,以解开这些损伤的因果关系。骨科疾病有其自身的发展。原发性疾病会产生继发性损伤。从长远来看,追求功能策略可能会进一步恶化骨科状况。各种康复方法,结合使用矫形器,可以帮助防止或限制身体机能的恶化。医学和外科干预的目的是尽量减少痉挛的表现,并尽可能恢复骨科功能(关节活动和肌肉长度)。所有建议的治疗方法都应该是PIMD患者个性化计划的一部分。
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引用次数: 0
Conception du siège moulé : le point de vue de l’orthoprothésiste. Présentation faite par Louisa Cheick* et Julien Marcuzzi,* dans le cadre des journées du CRMH : suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris 模压座椅的设计:正畸医生的观点。2023年6月9日,巴黎,Louisa Cheick*和Julien Marcuzzi在CRMH日:多残疾儿童的骨科随访中所做的报告
Q4 Medicine Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.10.004
L. Cheick , J. Marcuzzi , A. Jouve

The fabrication of a molded orthopedic seat for a child with PIMD is carried out in our practice as orthoprosthetists through a series of successive steps. The proper functioning of each step is crucial for the final quality of the product. Precision in the specifications is essential: the reasons for considering the seat and the characteristics expected from its fabrication. The perspective of users (families, educational teams) is essential. The presence of a therapist who is familiar with the child and the specifications is also necessary. The quality of assessments performed by the medical and rehabilitative team, as well as those carried out by the orthoprosthetists, is necessary to validate the specifications based on the unique situation of each child. The orthoprosthetist has various technical means to create the molding of the specific body part and then to manufacture the seat. Different additions are used to finalize the customization of the installation.

在我们作为矫形义肢医师的实践中,通过一系列连续的步骤,为患有PIMD的儿童制作了一个模塑矫形座椅。每个步骤的正确运作对产品的最终质量至关重要。规格的精确性是至关重要的:考虑阀座的原因和其制造所期望的特性。用户(家庭、教育团队)的视角至关重要。熟悉孩子和规范的治疗师在场也是必要的。医疗和康复小组进行的评估以及矫形义肢专家进行的评估的质量对于根据每个儿童的独特情况验证规范是必要的。矫形师有各种技术手段来创造特定身体部位的成型,然后制造座位。使用不同的添加项来完成安装的定制。
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引用次数: 0
Prise en charge chirurgicale de l’enfant polyhandicapé. Présentation faite par Mathilde Gaume dans le cadre des journées du CRMH : suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris 多残疾儿童的外科护理。玛蒂尔德·高梅(Mathilde Gaume)于2023年6月9日在巴黎举行的CRMH日:多残疾儿童的骨科随访
Q4 Medicine Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.10.002
M. Gaume , A. Jouve

The orthopedic surgical indication in the context of polyhandicap should always be made with a comprehensive understanding of the child's medical, family, and social situation. Therefore, it should be determined through extensive consultation with the family and the relevant medical, educational, and rehabilitative teams. The targeted objectives should align completely with the individual plan of the subject. Post-operative follow-ups and constraints should also be considered in the context of the individual's uniqueness, their behavior, and communication style. At times, the surgeon may need to exercise restraint. We will illustrate our practice through some fairly common indications.

在多残疾的情况下,骨科手术指征应该在全面了解儿童的医疗、家庭和社会状况的基础上做出。因此,应该通过与家属和相关医疗、教育和康复团队的广泛协商来确定。有针对性的目标应该与受试者的个人计划完全一致。术后随访和限制也应考虑到个体的独特性,他们的行为和沟通方式。有时,外科医生可能需要克制。我们将通过一些相当常见的迹象来说明我们的实践。
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引用次数: 0
La Prise en charge kinésithérapique à l’EEAP Les Amis de Laurence. Présentation faite par Luisa Aparicio Hurtado et Nadja Le Nail dans le cadre des journées du CRMH : Suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris 在eeap Les Amis de Laurence进行物理治疗。Luisa Aparicio Hurtado和Nadja Le Nail在CRMH日的背景下所做的报告:多残疾儿童的矫形随访,2023年6月9日,巴黎
Q4 Medicine Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.10.006
L. Aparicio Hurtado , N. Le Nail , A. Jouve

One of the goals of physiotherapy in facilities for children with polyhandicap is to combat the onset and development of orthopedic disorders. We aim to actively engage each child based on their abilities. Additionally, we implement installations and orthoses in the child's daily life. Our work is inherently collaborative with parents and other members of the educational team, in order to share observations, technical expertise, and to determine responsibilities throughout the child's daily life.

在多残儿童设施中进行物理治疗的目标之一是对抗骨科疾病的发生和发展。我们的目标是根据每个孩子的能力积极地吸引他们。此外,我们在孩子的日常生活中实施装置和矫形器。我们的工作本质上是与家长和教育团队的其他成员合作,以便分享观察结果、技术专长,并确定孩子日常生活中的责任。
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引用次数: 0
Agenda 议程
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.09.004
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引用次数: 0
Évaluation de la fiabilité de l’examen clinique de la hanche de l’enfant paralysé cérébral 脑瘫儿童髋关节临床检查的可靠性评估
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.06.001
A. Jouve, P. Toullet

The incidence of cerebromotor disorders of cerebral palsied subjects on their orthopedic state is a constant: excess contractions leading to misalignments, muscular and periarticular retractions, displacements of mobility sectors, bone deformations These orthopedic consequences are correlated to the degree motor impairment. Rehabilitation, orthopaedic, medical and surgical treatments find their relevance all the more so if the factors of the disorders are correctly identified, evaluated qualitatively and quantitatively. The contributions of clinical and paraclinical examinations complement each other to provide professionals with the richest range possible. In 1991, Dr Alain Lespargot described a clinical examination allowing to define the sectors of mobility where the hip is in a situation of satisfactory centering or on the contrary, of less centering. This article studies the interest of this examination in addition to radiography. This is a first step to show that this clinical examination effectively accounts for the centering situation of the hips flexed around 90°. It is reliable and reproducible. However, it requires some practice and repetition, like many of our other professional gestures.

脑瘫受试者在骨科状态下的大脑运动障碍发生率是恒定的:过度收缩导致错位、肌肉和关节周围收缩、活动区移位、骨骼变形。这些骨科后果与运动损伤程度相关。如果能够正确识别、定性和定量评估疾病的因素,康复、整形、医疗和外科治疗就会发现它们的相关性。临床和临床旁检查的贡献相辅相成,为专业人员提供尽可能丰富的范围。1991年,Alain Lespargot博士描述了一项临床检查,该检查允许定义髋关节处于令人满意的居中或相反的较少居中情况下的活动区域。除了射线照相术外,本文还研究了这种检查的兴趣。这是表明这种临床检查有效地解释了髋关节弯曲约90°的居中情况的第一步。它是可靠和可重复的。然而,它需要一些练习和重复,就像我们的许多其他专业手势一样。
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引用次数: 0
Éditorial 社论
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.09.003
P. Toullet (Rédacteur en chef)
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引用次数: 0
PIPA MOTEUR : Programme d’Intervention Précoce Accompagné Moteur pour les enfants à très haut risque de paralysie cérébrale 运动PIPA:针对脑瘫高风险儿童的运动辅助早期干预计划
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.08.001
M. Coquery, S. Paviot, L.A. Phelix, H. Daudé

The Early Medico-Psychological Action Center (CAMSP) in Montpellier has set up PIPA, which is an accompanied precocious intervention program for children presenting vulnerability factors at birth, and their parents. In this program, between three and four months of corrected age, when a newborn is presenting a very high risk of developing a cerebral palsy, an intensification of the neuromotor follow-up is proposed (MOTOR PIPA). This program is based on on international recommendations concerning: the earliest possible diagnosis with evaluations based on current scientific data, active involvement from parents in the child's therapeutic project, enrichment of the child's environment, intensification of neuromotor stimulations. In addition, we use a partnership notebook as well as filmed session videos.

蒙彼利埃的早期医学心理行动中心(CAMSP)设立了PIPA,这是一项针对出生时存在脆弱因素的儿童及其父母的伴随性早熟干预计划。在这个项目中,在矫正年龄的三到四个月之间,当新生儿出现患脑瘫的高风险时,建议加强神经运动随访(MOTOR PIPA)。该计划基于以下国际建议:根据当前科学数据进行评估,尽可能早地进行诊断,父母积极参与儿童的治疗项目,丰富儿童的环境,加强神经运动刺激。此外,我们使用合作伙伴笔记本以及拍摄的会话视频。
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Motricite Cerebrale
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