Motricite Cerebrale最新文献

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Le professeur Stéphane Sizonenko représente la Fondation Paralysie Cérébrale au Conseil Scientifique de la Fondation pour la recherche sur le cerveau (FRC) Stephane Sizonenko教授在大脑研究基金会（FRC）科学委员会代表脑瘫基金会。

Q4 Medicine

Motricite Cerebrale

Pub Date : 2025-06-01 DOI: 10.1016/j.motcer.2025.04.001

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Éditorial 社论

Q4 Medicine

Motricite Cerebrale

Pub Date : 2025-06-01 DOI: 10.1016/j.motcer.2025.06.001

L. Vinet (Rédactrice en chef)

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Le contact initial en masso-kinésitherapie avec les enfants atteints de paralysie cérébrale 脑瘫儿童在按摩理疗中的首次接触

Q4 Medicine

Motricite Cerebrale

Pub Date : 2025-06-01 DOI: 10.1016/j.motcer.2025.05.001

M. Sentis , M. Collet

Background

A child with cerebral palsy or in the process of being diagnosed has numerous motor, sensory, cognitive and emotional impairments. These children need early medical intervention and rehabilitation to optimize their abilities. Physiotherapists are faced with several challenges right from the outset. The main objective of an initial session is to get the child and parents on board, and this is not always easy or intuitive when parents are in the process of mourning the loss of their ideal child, and when children are not always communicative, or even have certain cognitive and sensory impairments. So how do physios go about meeting a child with cerebral palsy? What methods facilitate this encounter and the patient/rehabilitator relationship?

Method

Human and social science research was carried out. Physiotherapists working with children with cerebral palsy in institutes or private practice were interviewed in individual semi-directive interviews following the COREQ guidelines. The interviews were transcribed and analyzed by recurring themes, using manual coding to highlight the results.

Results

The physiotherapist's environment would condition their approach to the child, notably through the presence of the parents. Each would use facilitating factors and mention obstacles to create positive engrams in children. There appeared to be a common understanding of the time needed for the child to grasp the environment and the physiotherapy objectives, as well as the freedom given to the child to adhere to or not to the proposed exercises.

Discussion

Even if the external validity of the results is not possible with five physiotherapists respondents, a comparison with current literature concerning certain theories is possible. Indeed, the notions of child observation and the importance of touch and sensoriality confirm and enrich the physiotherapists’ testimonies.

Conclusion

The aim of this first meeting is to establish a real therapeutic collaboration with the youngster and his family. Observation would be a facilitating factor. The importance of the first interaction with the child is crucial for physiotherapists and must be carefully considered by these professionals for the follow-up of this long-term rehabilitation.

患有脑瘫或正在被诊断为脑瘫的儿童有许多运动、感觉、认知和情绪障碍。这些儿童需要早期医疗干预和康复，以优化他们的能力。物理治疗师从一开始就面临着一些挑战。最初治疗的主要目标是让孩子和父母一起接受治疗，当父母正在哀悼失去理想孩子的过程中，当孩子不总是沟通，甚至有一定的认知和感觉障碍时，这并不总是容易或直观的。那么理疗师是如何治疗脑瘫患儿的呢？有什么方法促进这种接触和病人/康复者的关系？方法进行人文社会科学研究。根据COREQ指南，对在研究所或私人诊所治疗脑瘫儿童的物理治疗师进行了单独的半指导性访谈。访谈被记录下来，并通过反复出现的主题进行分析，使用手动编码来突出结果。结果物理治疗师的环境会影响他们对孩子的态度，特别是通过父母的在场。每个人都会利用促进因素，提到障碍，给孩子们留下积极的印象。对于孩子掌握环境和物理治疗目标所需的时间，以及给予孩子坚持或不坚持拟议练习的自由，似乎有一个共同的理解。即使五名物理治疗师的调查结果不可能具有外部有效性，但与当前有关某些理论的文献进行比较是可能的。事实上，儿童观察的概念以及触摸和感官的重要性证实并丰富了物理治疗师的证词。结论第一次会议的目的是与青少年及其家人建立真正的治疗合作。观察将是一个促进因素。与儿童的第一次互动的重要性对物理治疗师来说是至关重要的，这些专业人员必须仔细考虑这种长期康复的后续工作。

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引用次数: 0

L’effet de répétition espacée en neuro-rééducation : une stratégie pour optimiser la récupération motrice et cognitive 神经康复中的间隔重复效应：优化运动和认知恢复的策略

Q4 Medicine

Motricite Cerebrale

Pub Date : 2025-03-01 DOI: 10.1016/j.motcer.2025.01.002

R. Tedeschi

引用次数: 0

Le conseil scientifique de la Fondation Paralysie Cérébrale accueille de nouveaux membres 脑瘫基金会科学委员会欢迎新成员

Q4 Medicine

Motricite Cerebrale

Pub Date : 2025-03-01 DOI: 10.1016/j.motcer.2025.01.001

引用次数: 0

Éditorial 社论

Q4 Medicine

Motricite Cerebrale

Pub Date : 2025-03-01 DOI: 10.1016/j.motcer.2025.03.001

L. Vinet (Rédactrice en chef)

引用次数: 0

Agenda 议程

Q4 Medicine

Motricite Cerebrale

Pub Date : 2025-03-01 DOI: 10.1016/j.motcer.2025.03.002

引用次数: 0

Soins de réadaptation à base communautaire au Sénégal : quand le numérique améliore l’accès et la qualité des services 塞内加尔以社区为基础的康复保健：当数字技术改善服务的获取和质量时

Q4 Medicine

Motricite Cerebrale

Pub Date : 2025-03-01 DOI: 10.1016/j.motcer.2025.02.001

E.M. Piedboeuf-Boen , K. Dulieu , K. Afetse Ganyo , P. D’Ans , L. Houx

Introduction

Evaluation of the implementation of a telerehabilitation for community-based relays (CBR) trained to care for children with cerebral palsy and their family (CP) in Senegal.

Methodology

Prospective observational study comparing 2 rehabilitation usual care procedures for children with CP, accompanied by CBR: telesupervision group (TSG) and no telesupervision group (NTSG). The TSG benefited from remote monitoring, via 5 telesupervision sessions, one session every 6 weeks, while the NTSG benefited from the usual CBR monitoring.

Results

Thirty-nine children were included in the study, including twenty in the telesupervised group. Mean age 8.44 years, 69% GMFCS V, 72% malnourished and 64% below the poverty line. In both groups, children improved their GMFM score, autonomy and nutritional status. Compared to the initial situation, a significant improvement in dressing function was observed in the TSG (P = 0.019). Telesupervision improved the CBR's technical, ethical and communication skills (P ≤ 0.0001), as well as the families theoretical knowledge and body care practice (P = 0.002, P = 0.008). Telesupervision reduced distances travelled, duration of care and financial costs (P ≤ 0.0001).

Conclusion

Telesupervision is a solution to the lack of qualified rehabilitators in Senegal. It reduces costs, improves family involvement and CBR skills. The system is simple, accessible and meets the standards of evidence-based approaches.

对塞内加尔为照顾脑瘫儿童及其家庭（CP）而培训的社区接力员（CBR）远程康复实施情况进行评估。方法采用前瞻性观察研究方法，比较远程监护组（TSG）和无远程监护组（NTSG）两种慢性阻塞性脑瘫患儿伴行CBR的康复常规护理方案。TSG受益于远程监测，通过5次远程监督会议，每6周一次会议，而NTSG受益于通常的CBR监测。结果共纳入39例患儿，其中远程监护组20例。平均年龄8.44岁，69%营养不良，72%营养不良，64%低于贫困线。两组儿童的GMFM评分、自主性和营养状况都有所改善。与初始情况相比，TSG的修整功能有显著改善（P = 0.019）。远程监护提高了CBR的技术、伦理和沟通能力（P≤0.0001），提高了家属的理论知识和身体护理实践（P = 0.002, P = 0.008）。远程监护缩短了路程、护理时间和财务成本（P≤0.0001）。结论远程监护是解决塞内加尔缺乏合格康复人员的有效途径。它降低了成本，提高了家庭参与度和CBR技能。该系统简单易用，符合循证方法的标准。

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Q4 Medicine

Motricite Cerebrale

Pub Date : 2024-11-22 DOI: 10.1016/j.motcer.2024.11.002

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Éditorial 编辑

Q4 Medicine

Motricite Cerebrale

Pub Date : 2024-11-22 DOI: 10.1016/j.motcer.2024.11.001

P. Toullet , L. Vinet

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