Pub Date : 2024-11-08DOI: 10.1016/j.motcer.2024.10.003
G. Drewnowski
The tailor-made medical apparatus assists people with cerebral palsy throughout their lives and every day. The tailor-made medical apparatus is an element that can help them alongside medical and surgical treatments. The aim of orthopaedic devices is to improve posture and function, and in these areas, assessment and anticipation are essential. However, in addition to its orthopaedic benefits, orthotics also entail several constraints. And it alone cannot treat the consequences of cerebral palsy. That is why it is particularly important for the objectives of the brace to be jointly defined by the patient, his or her family and professionals. The equipment also requires regular readjustments. For all these reasons, Therapeutic Patient Education is an invaluable tool for helping people to live as well as possible with an orthopaedic device.
{"title":"Appareillage et paralysie cérébrale : regard d’une patiente experte","authors":"G. Drewnowski","doi":"10.1016/j.motcer.2024.10.003","DOIUrl":"10.1016/j.motcer.2024.10.003","url":null,"abstract":"<div><div>The tailor-made medical apparatus assists people with cerebral palsy throughout their lives and every day. The tailor-made medical apparatus is an element that can help them alongside medical and surgical treatments. The aim of orthopaedic devices is to improve posture and function, and in these areas, assessment and anticipation are essential. However, in addition to its orthopaedic benefits, orthotics also entail several constraints. And it alone cannot treat the consequences of cerebral palsy. That is why it is particularly important for the objectives of the brace to be jointly defined by the patient, his or her family and professionals. The equipment also requires regular readjustments. For all these reasons, <em>Therapeutic Patient Education</em> is an invaluable tool for helping people to live as well as possible with an orthopaedic device.</div></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"45 4","pages":"Pages 119-121"},"PeriodicalIF":0.0,"publicationDate":"2024-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142701592","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-05DOI: 10.1016/j.motcer.2024.10.002
P. Le Moine
Pain is an unpleasant sensory or emotional experience. The mechanism that generates pain can be nociceptive, neuropathic or nociplastic. The nociceptive nervous system physiologically protects our body. The painful message produced by mechanical, thermal, or chemical stimulation anywhere in the body travels through the nerves and then the spinal cord. It reaches the brain via two pathways transmitting information differently. After relay to the thalamus, the painful message is integrated at the cortical level according to a matrix system at three levels: information, perception, modulation. Neuropathic pain is caused by a dysfunction of the injured nervous system. The sensations are of particular quality and localized in a territory corresponding to the somatotopy of the nervous system. Nociplastic pain is secondary to a disturbance of the central nervous system which produces mixed sensations in various territories. These are frequently chronic pains whose genesis is complex, affecting the person suffering as a whole. Understanding the physiology of pain and identifying the generating mechanism makes it possible to adapt treatment modalities.
{"title":"Qu’est-ce que la douleur ? Définition et neurophysiologie","authors":"P. Le Moine","doi":"10.1016/j.motcer.2024.10.002","DOIUrl":"10.1016/j.motcer.2024.10.002","url":null,"abstract":"<div><div>Pain is an unpleasant sensory or emotional experience. The mechanism that generates pain can be nociceptive, neuropathic or nociplastic. The nociceptive nervous system physiologically protects our body. The painful message produced by mechanical, thermal, or chemical stimulation anywhere in the body travels through the nerves and then the spinal cord. It reaches the brain via two pathways transmitting information differently. After relay to the thalamus, the painful message is integrated at the cortical level according to a matrix system at three levels: information, perception, modulation. Neuropathic pain is caused by a dysfunction of the injured nervous system. The sensations are of particular quality and localized in a territory corresponding to the somatotopy of the nervous system. Nociplastic pain is secondary to a disturbance of the central nervous system which produces mixed sensations in various territories. These are frequently chronic pains whose genesis is complex, affecting the person suffering as a whole. Understanding the physiology of pain and identifying the generating mechanism makes it possible to adapt treatment modalities.</div></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"45 4","pages":"Pages 104-108"},"PeriodicalIF":0.0,"publicationDate":"2024-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142701590","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-05DOI: 10.1016/j.motcer.2024.10.001
{"title":"TEAM & CO : une avancée majeure pour le développement en France des thérapies motrices intensives pour les enfants avec paralysie cérébrale et leurs familles","authors":"","doi":"10.1016/j.motcer.2024.10.001","DOIUrl":"10.1016/j.motcer.2024.10.001","url":null,"abstract":"","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"45 4","pages":"Pages 102-103"},"PeriodicalIF":0.0,"publicationDate":"2024-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142701595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-05DOI: 10.1016/j.motcer.2024.07.002
M. Maze, L. Rey, N. Pinsault
Introduction
People with cerebral palsy undergo lifelong care. In the literature, motor rehabilitation courses have been shown to be of interest. However, nowadays there are no data describing the use of motor rehabilitation courses by children and adolescents with cerebral palsy in France.
Methods
A questionnaire was distributed online to families of children and adolescents with cerebral palsy. A descriptive analysis was carried out.
Results
Twenty-two questionnaires were analyzed. Fifty percent of participants have completed or are about to complete at least one motor rehabilitation course. The courses identified by the families were the Pacte stay (8.3%), the Hand and Arm Bimanual Intensive Therapy Including Lower Extremities method (33.3%), the Medek method (8.3%) and the Kids Avenger course (8.3%). The majority did not know the title of the course or the method used (41.7%). Families can make significant financial and travel commitments to participate. They want information about motor rehabilitation courses, but don’t necessarily know where to find them. The study shows that health professionals and social networks are the main vehicles for this information.
Discussion
Participation in motor rehabilitation courses does not appear to be related to the type of cerebral palsy. There is a contrast between the courses shown to be effective in the literature and those carried out by the population.
{"title":"Étude sur le recours aux stages de rééducation motrice chez des enfants atteints de paralysie cérébrale","authors":"M. Maze, L. Rey, N. Pinsault","doi":"10.1016/j.motcer.2024.07.002","DOIUrl":"10.1016/j.motcer.2024.07.002","url":null,"abstract":"<div><h3>Introduction</h3><div>People with cerebral palsy undergo lifelong care. In the literature, motor rehabilitation courses have been shown to be of interest. However, nowadays there are no data describing the use of motor rehabilitation courses by children and adolescents with cerebral palsy in France.</div></div><div><h3>Methods</h3><div>A questionnaire was distributed online to families of children and adolescents with cerebral palsy. A descriptive analysis was carried out.</div></div><div><h3>Results</h3><div>Twenty-two questionnaires were analyzed. Fifty percent of participants have completed or are about to complete at least one motor rehabilitation course. The courses identified by the families were the Pacte stay (8.3%), the Hand and Arm Bimanual Intensive Therapy Including Lower Extremities method (33.3%), the Medek method (8.3%) and the Kids Avenger course (8.3%). The majority did not know the title of the course or the method used (41.7%). Families can make significant financial and travel commitments to participate. They want information about motor rehabilitation courses, but don’t necessarily know where to find them. The study shows that health professionals and social networks are the main vehicles for this information.</div></div><div><h3>Discussion</h3><div>Participation in motor rehabilitation courses does not appear to be related to the type of cerebral palsy. There is a contrast between the courses shown to be effective in the literature and those carried out by the population.</div></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"45 4","pages":"Pages 109-118"},"PeriodicalIF":0.0,"publicationDate":"2024-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142701591","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-01DOI: 10.1016/j.motcer.2024.07.001
{"title":"Martin Gough et Niek De Taeye, lauréats des prix de la Fondation Paralysie Cérébrale au congrès de l’EACD 2024","authors":"","doi":"10.1016/j.motcer.2024.07.001","DOIUrl":"10.1016/j.motcer.2024.07.001","url":null,"abstract":"","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"45 3","pages":"Pages 97-98"},"PeriodicalIF":0.0,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142169070","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-01DOI: 10.1016/j.motcer.2024.06.006
D.A. Alloh , R. Koffi , S. Kouassi , A. Tia , C.N. Sie , J.D. Bombo
Objective
Evaluate at the psychosocial level, the experience of parents of children with cerebral palsy in Abidjan (RCI).
Methods
Analytical multicenter cross-sectional study carried out over 3 months (April-June 2021) from a sample of 246 biological parents or non-parents of children followed for cerebral palsy. Scales used: Hospital Anxiety and Depression Scale and Family Impact of Childhood Disability scale.
Results
Parents aged between 30 and 40 (44.3 %), living with a partner (n = 190) and attending school in 81.7 % of cases. The mean score of the positive FICD items was 14.5 out of 10 and that of the negative items was 20 out of 40, reflecting the presence of symptoms of anxiety and depression in 25 cases (10.3 %) and 22 cases (9 %) respectively in parents. The severity of children's motor impairments was associated with the occurrence of anxiety among parents (P = 0.01) despite their religious faith (P = 0.03). There was no significant association between the children's clinical and sociodemographic parameters, the parents’ religious faith and the parents’ onset of depression (P > 0.05).
Conclusion
Childhood CP had an impact on parents’ psychosocial experiences. This impact was associated with the severity of the child's motor impairment, but the social and economic discomfort was independent of the parents’ social and cultural background and family beliefs and ties. Psychological support for parents of children with CP should not be ignored in the follow-up of these children.
{"title":"Vécu psychosocial des parents d’enfants atteints de paralysie cérébrale à Abidjan en 2021","authors":"D.A. Alloh , R. Koffi , S. Kouassi , A. Tia , C.N. Sie , J.D. Bombo","doi":"10.1016/j.motcer.2024.06.006","DOIUrl":"10.1016/j.motcer.2024.06.006","url":null,"abstract":"<div><h3>Objective</h3><p>Evaluate at the psychosocial level, the experience of parents of children with cerebral palsy in Abidjan (RCI).</p></div><div><h3>Methods</h3><p>Analytical multicenter cross-sectional study carried out over 3 months (April-June 2021) from a sample of 246 biological parents or non-parents of children followed for cerebral palsy. Scales used: Hospital Anxiety and Depression Scale and Family Impact of Childhood Disability scale.</p></div><div><h3>Results</h3><p>Parents aged between 30 and 40 (44.3 %), living with a partner (<em>n</em> <!-->=<!--> <!-->190) and attending school in 81.7 % of cases. The mean score of the positive FICD items was 14.5 out of 10 and that of the negative items was 20 out of 40, reflecting the presence of symptoms of anxiety and depression in 25 cases (10.3 %) and 22 cases (9 %) respectively in parents. The severity of children's motor impairments was associated with the occurrence of anxiety among parents (<em>P</em> <!-->=<!--> <!-->0.01) despite their religious faith (<em>P</em> <!-->=<!--> <!-->0.03). There was no significant association between the children's clinical and sociodemographic parameters, the parents’ religious faith and the parents’ onset of depression (<em>P</em> <!-->><!--> <!-->0.05).</p></div><div><h3>Conclusion</h3><p>Childhood CP had an impact on parents’ psychosocial experiences. This impact was associated with the severity of the child's motor impairment, but the social and economic discomfort was independent of the parents’ social and cultural background and family beliefs and ties. Psychological support for parents of children with CP should not be ignored in the follow-up of these children.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"45 3","pages":"Pages 83-88"},"PeriodicalIF":0.0,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142169069","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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