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英文 中文
Agenda 议程
Q4 Medicine Pub Date : 2024-09-01 DOI: 10.1016/j.motcer.2024.08.002
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引用次数: 0
Développement d’un livret de rééducation pour la prise en charge de la sialorrhée antérieure chez les enfants atteints de paralysie cérébrale 为治疗脑瘫儿童的前溢液编写康复手册
Q4 Medicine Pub Date : 2024-09-01 DOI: 10.1016/j.motcer.2024.06.005
R. Bard-Pondarré, J. Dohin, S. Chopard, E. Chaléat-Valayer

Introduction

As part of the TOXSIALO-2 study (currently underway) on the drug treatment of drooling in children with cerebral palsy (CP), training material has been developed to intensify and standardize rehabilitation management.

Methods

A working group of experts (6 speech and language therapists, 1 occupational therapist, 2 rehabilitation doctors) in the care of CP children with persistent drooling has drawn up a booklet of exercises based on their clinical expertise, presented in an accessible and fun way, to be carried out daily at home as part of an approach based on individualized objectives.

Results

Using the Goal Attainment Scaling methodology, the booklet enables the functional goals to be defined with the child and his or her family (based on the difficulties encountered in daily life as a result of hypersialorrhoea). The therapist can then choose exercises that relate to the deficient skills and individualize them from among the 29 clearly illustrated exercises described in the booklet, divided into 4 key areas of swallowing: nasal breathing, oral sensory information, swallowing reflex and orofacial muscle strengthening. The booklet also enables therapists to monitor compliance with the rehabilitation program.

Discussion and conclusion

The booklet can help families to carry out self-rehabilitation or stimulation exercises at home to reduce sialorrhoea. In research, the booklet should also make it possible to better standardize oromotor rehabilitation associated with medical or surgical therapies in this indication, thereby improving the reliability of the therapy.

方法由专家组成的工作组(6 名言语和语言治疗师、1 名职业治疗师、2 名康复医生)根据他们的临床专业知识编写了一本练习小册子,以通俗易懂和寓教于乐的方式介绍,作为基于个性化目标的方法的一部分,每天在家中进行练习。成果这本小册子采用了目标实现量表法(Goal Attainment Scaling methodology),能够与儿童及其家人一起确定功能目标(根据因多涎症而在日常生活中遇到的困难)。然后,治疗师可以从手册中描述的 29 个图文并茂的练习中选择与不足技能相关的练习,并将其个性化,这些练习分为吞咽的 4 个关键领域:鼻腔呼吸、口腔感觉信息、吞咽反射和口面部肌肉强化。这本小册子还可以帮助治疗师监测康复计划的执行情况。讨论和结论这本小册子可以帮助家庭在家中进行自我康复或刺激练习,以减少流涎。在研究中,这本小册子还可以更好地规范与内科或外科治疗相关的口腔运动康复,从而提高治疗的可靠性。
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引用次数: 0
Douleur, souffrance et besoins psychologiques des jeunes atteints de paralysie cérébrale 脑瘫青少年的疼痛、痛苦和心理需求
Q4 Medicine Pub Date : 2024-09-01 DOI: 10.1016/j.motcer.2024.06.004
M. Derome

The text reviews the challenges faced by young people with cerebral palsy. We underline their suffering and its related aspects (suffering regarding pain, suffering regarding the gaze of others, suffering regarding the view of themselves). The article highlights the importance of communicating with these young people, to address these different issues. It aims to encourage healthcare prefessionals to listen to them carefully and to support them in expressing their emotions, even non-verbally. The author shares her experience of using hypnosis or relaxation to help young people suffering from cerebral palsy to overcome their pain. This work aims to take better account of the psychological needs of young people with cerebral palsy, such as the need for security, surroundings, affection, the need to be heard, the need to build their identity and to get positive feedback. It highlights the importance of an empathetic and holistic approach to meet these needs and to promote their well-being.

文中回顾了脑瘫青少年所面临的挑战。我们强调了他们的痛苦及其相关方面(因疼痛而痛苦、因他人的目光而痛苦、因对自己的看法而痛苦)。文章强调了与这些年轻人沟通以解决这些不同问题的重要性。文章旨在鼓励医护人员认真倾听他们的心声,支持他们表达自己的情绪,即使是非言语的表达。作者分享了她使用催眠或放松法帮助脑瘫患者克服痛苦的经验。这部作品旨在更好地考虑脑瘫青少年的心理需求,如对安全感、周围环境、亲情的需求,被倾听的需求,建立自我认同和获得积极反馈的需求。它强调了以移情和全面的方法满足这些需求并促进其福祉的重要性。
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引用次数: 0
Traitement du pied varus de l’enfant atteint de paralysie cérébrale unilatérale par neurostimulation fibulaire superficielle : étude rétrospective 通过腓浅神经刺激治疗单侧脑瘫儿童的足外翻:回顾性研究
Q4 Medicine Pub Date : 2024-06-01 DOI: 10.1016/j.motcer.2024.04.002
P. Granier , M. Godde , M. Maréchal , J. Meyer-Sauvage

Objective

To assess the effect of superficial fibular transcutaneous neurostimulation as a treatment for hypertonic varus foot in children with unilateral cerebral palsy.

Method

We made a retrospective assessment of a transcutaneous electric stimulation protocol, applied on the superficial fibular nerve territory 3 hours per day during 3 months. We measured and compared maximum foot varus angle during swing phase and during stance, and fore-foot supination angle at initial contact and at mid-stance, on gait video captures before and after stimulation.

Results

Five children with unilateral cerebral palsy were included in this retrospective study. Their mean age was 8.5 years, and the average follow up after the end of the electric stimulation was 12 months. Statistical analysis was made with non-parametric Wilcoxon test. We found a significant decrease of fore-foot supination angle at initial contact (P = 0.042) and a significant decrease of rear-foot varus angle at mid-stance (P = 0.039), one month after the end of the electric stimulation, compared with the measures before electric stimulation. We found non-significant decrease of supination angle at mid-stance and maximal varus angle during swing phase.

Conclusion

Superficial fibular transcutaneous neurostimulation seams to be an effective treatment for hypertonic varus foot in children with unilateral cerebral palsy. Our findings are limited by the retrospective design of our study, and the small sample size. These encouraging results need to be confirmed by a bigger comparative prospective survey.

方法 我们对经皮电刺激方案进行了回顾性评估,该方案在 3 个月内每天对腓浅神经区域进行 3 小时刺激。我们测量并比较了刺激前后步态视频截图中摆动期和站立期的最大足外翻角度,以及初始接触和站立中期的前足上翻角度。他们的平均年龄为 8.5 岁,电刺激结束后的平均随访时间为 12 个月。统计分析采用非参数 Wilcoxon 检验。我们发现,与电刺激前的测量结果相比,电刺激结束一个月后,初次接触时的前足上翻角明显减少(P = 0.042),中段站立时的后足外翻角明显减少(P = 0.039)。结论腓浅经皮神经刺激似乎是治疗单侧脑瘫儿童高张力足外翻的有效方法。我们的研究结果受到回顾性设计和样本量较小的限制。这些令人鼓舞的结果还需要更大规模的前瞻性对比调查来证实。
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引用次数: 0
Une présidente pour le Conseil scientifique de la fondation Paralysie cérébrale 脑瘫基金会任命科学顾问委员会新主席
Q4 Medicine Pub Date : 2024-06-01 DOI: 10.1016/j.motcer.2024.05.001
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引用次数: 0
Polyhandicap, appareillage orthopédique et psychomotricité – réflexion – témoignage 多重残疾、矫形器和精神错乱--思考的食粮--个人陈述
Q4 Medicine Pub Date : 2024-06-01 DOI: 10.1016/j.motcer.2024.04.001
C. Humeau

The people suffering multiple disabilities are surrounded by a lot of orthopedic appliance. Directly in contact with their body, they impact the psychomotor functions, the path to self-discovery, the exploration of the environment and of other people. Learning to be comfortable with this body is also crucial. This text, far from being comprehensive, brings a testimony and a reflection on the orthopedic appliance in light of the basic psychomotor functions.

身患多种残疾的人身边有很多矫形器具。这些矫形器与他们的身体直接接触,影响着他们的心理运动功能、自我发现之路、对环境和他人的探索。学习如何自如地适应这个身体也至关重要。这篇文章远非包罗万象,而是从基本的心理运动功能出发,对矫形器进行见证和反思。
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引用次数: 0
Agenda 议程
Q4 Medicine Pub Date : 2024-06-01 DOI: 10.1016/j.motcer.2024.06.002
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引用次数: 0
Les troubles de l’oralité alimentaire 饮食失调
Q4 Medicine Pub Date : 2024-06-01 DOI: 10.1016/j.motcer.2024.02.002
A. Jacquelin

Oral-facial motor disorders sometimes seem obvious in patients with cerebral palsy, but what about oral disorders? This question will lead us to discuss the act of eating, the meal and the development of the orofacial sphere in its various components: sucking – swallowing – chewing; sensoriality; ventilation; phonation – articulation (though the latter is not covered in this article). We will look at the issue of testing and referral.

在脑瘫患者中,口面部运动障碍有时似乎很明显,但口腔方面的障碍又如何呢?这个问题将引导我们讨论进食行为、进餐和口面部发育的各个环节:吸吮-吞咽-咀嚼;感觉;通气;发音-发声(但后者不在本文讨论之列)。我们将探讨测试和转诊问题。
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引用次数: 0
Éditorial 编辑
Q4 Medicine Pub Date : 2024-06-01 DOI: 10.1016/j.motcer.2024.06.001
P. Toullet
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引用次数: 0
Profil épidémiologique, clinique et thérapeutique des troubles psychomoteurs des enfants suivis au centre pour handicapés physiques « Shirika La Umoja » de Goma au Nord-Kivu du 1er janvier 2010 au 31 juillet 2018 2010 年 1 月 1 日至 2018 年 7 月 31 日在北基伍戈马 "Shirika La Umoja "肢体残疾人中心接受治疗的儿童精神运动障碍的流行病学、临床和治疗概况
Q4 Medicine Pub Date : 2024-06-01 DOI: 10.1016/j.motcer.2024.01.001
H. Tshongo Kataliko , N. Matata , J. Kakule Katenge , B. Ngalanga Wa Kiverengi , P. Haghuma Katenge , A.-M. Nzinga Luzolo , R. Bitwe Mihanda , H. Nkakudulu Bikuku

Objective

The objective is to highlight the epidemiological, clinical and therapeutic profile of children with cerebral palsy followed in rehabilitation.

Methodology

This is a descriptive and retrospective study conducted on 1135 children with cerebral palsy followed in rehabilitation at the center “Shirika la Umoja” in Goma from 2010 to 2018. Information was collected from medical records and completed by parents.

Results

The predominance was male (57.4%), age 7–12 months was predominant. The deliveries were in 90% by vaginal delivery. The etiologies were perinatal asphyxia (41.9%), neonatal infections (13.7%), and neonatal jaundice (11.6%). They all consulted for a psychomotor development disorder associated with axial hypotonia (59.6%), seizures (27.4%), and limb spasticity (25.7%). The diagnosis was made by assessing the motor progression level. BMI children were spastic (47.8%), dyskinetic (24.4%), quadriplegic (55.8%), and hemiplegic (12.8%). The treatment consisted of neuromotor education, perceptive-motor facilitation, Le Métayer's “Niveau d’évolution mortice” (N.E.M), Bobath's method, respiratory physiotherapy, psychomotricity, parental awareness, and mobilisation. The evolution was marked by 53% abandonment of the treatment and 9.4% acquired or improved their walking.

Conclusion

Although the re-education and rehabilitation treatment was well administered, the therapeutic outcome was not favourable with a predominance of treatment abandonment.

方法这是一项描述性和回顾性研究,研究对象是2010年至2018年在戈马 "Shirika la Umoja "中心接受康复治疗的1135名脑瘫儿童。结果男性占多数(57.4%),年龄以7-12个月为主。90%的婴儿经阴道分娩。病因是围产期窒息(41.9%)、新生儿感染(13.7%)和新生儿黄疸(11.6%)。他们都因精神运动发育障碍就诊,伴有轴性肌张力低下(59.6%)、癫痫发作(27.4%)和肢体痉挛(25.7%)。诊断是通过评估运动发展水平做出的。BMI 患儿中,痉挛型占 47.8%,运动障碍型占 24.4%,四肢瘫痪型占 55.8%,偏瘫型占 12.8%。治疗方法包括神经运动教育、感知运动促进、勒梅塔耶的 "瘫痪进化模型"(N.E.M)、博巴特方法、呼吸理疗、心理治疗、家长认知和动员。结论虽然再教育和康复治疗实施得很好,但治疗效果并不理想,放弃治疗的患者占多数。
{"title":"Profil épidémiologique, clinique et thérapeutique des troubles psychomoteurs des enfants suivis au centre pour handicapés physiques « Shirika La Umoja » de Goma au Nord-Kivu du 1er janvier 2010 au 31 juillet 2018","authors":"H. Tshongo Kataliko ,&nbsp;N. Matata ,&nbsp;J. Kakule Katenge ,&nbsp;B. Ngalanga Wa Kiverengi ,&nbsp;P. Haghuma Katenge ,&nbsp;A.-M. Nzinga Luzolo ,&nbsp;R. Bitwe Mihanda ,&nbsp;H. Nkakudulu Bikuku","doi":"10.1016/j.motcer.2024.01.001","DOIUrl":"10.1016/j.motcer.2024.01.001","url":null,"abstract":"<div><h3>Objective</h3><p>The objective is to highlight the epidemiological, clinical and therapeutic profile of children with cerebral palsy followed in rehabilitation.</p></div><div><h3>Methodology</h3><p>This is a descriptive and retrospective study conducted on 1135 children with cerebral palsy followed in rehabilitation at the center “Shirika la Umoja” in Goma from 2010 to 2018. Information was collected from medical records and completed by parents.</p></div><div><h3>Results</h3><p>The predominance was male (57.4%), age 7–12 months was predominant. The deliveries were in 90% by vaginal delivery. The etiologies were perinatal asphyxia (41.9%), neonatal infections (13.7%), and neonatal jaundice (11.6%). They all consulted for a psychomotor development disorder associated with axial hypotonia (59.6%), seizures (27.4%), and limb spasticity (25.7%). The diagnosis was made by assessing the motor progression level. BMI children were spastic (47.8%), dyskinetic (24.4%), quadriplegic (55.8%), and hemiplegic (12.8%). The treatment consisted of neuromotor education, perceptive-motor facilitation, Le Métayer's “Niveau d’évolution mortice” (N.E.M), Bobath's method, respiratory physiotherapy, psychomotricity, parental awareness, and mobilisation. The evolution was marked by 53% abandonment of the treatment and 9.4% acquired or improved their walking.</p></div><div><h3>Conclusion</h3><p>Although the re-education and rehabilitation treatment was well administered, the therapeutic outcome was not favourable with a predominance of treatment abandonment.</p></div>","PeriodicalId":39498,"journal":{"name":"Motricite Cerebrale","volume":"45 2","pages":"Pages 60-65"},"PeriodicalIF":0.0,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141139078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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Motricite Cerebrale
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