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Prise en charge chirurgicale de l’enfant polyhandicapé. Présentation faite par Mathilde Gaume dans le cadre des journées du CRMH : suivi orthopédique de l’enfant polyhandicapé, 9 juin 2023, Paris 多残疾儿童的外科护理。玛蒂尔德·高梅(Mathilde Gaume)于2023年6月9日在巴黎举行的CRMH日:多残疾儿童的骨科随访
Q4 Medicine Pub Date : 2023-12-01 DOI: 10.1016/j.motcer.2023.10.002
M. Gaume , A. Jouve

The orthopedic surgical indication in the context of polyhandicap should always be made with a comprehensive understanding of the child's medical, family, and social situation. Therefore, it should be determined through extensive consultation with the family and the relevant medical, educational, and rehabilitative teams. The targeted objectives should align completely with the individual plan of the subject. Post-operative follow-ups and constraints should also be considered in the context of the individual's uniqueness, their behavior, and communication style. At times, the surgeon may need to exercise restraint. We will illustrate our practice through some fairly common indications.

在多残疾的情况下,骨科手术指征应该在全面了解儿童的医疗、家庭和社会状况的基础上做出。因此,应该通过与家属和相关医疗、教育和康复团队的广泛协商来确定。有针对性的目标应该与受试者的个人计划完全一致。术后随访和限制也应考虑到个体的独特性,他们的行为和沟通方式。有时,外科医生可能需要克制。我们将通过一些相当常见的迹象来说明我们的实践。
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引用次数: 0
Agenda 议程
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.09.004
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引用次数: 0
Évaluation de la fiabilité de l’examen clinique de la hanche de l’enfant paralysé cérébral 脑瘫儿童髋关节临床检查的可靠性评估
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.06.001
A. Jouve, P. Toullet

The incidence of cerebromotor disorders of cerebral palsied subjects on their orthopedic state is a constant: excess contractions leading to misalignments, muscular and periarticular retractions, displacements of mobility sectors, bone deformations These orthopedic consequences are correlated to the degree motor impairment. Rehabilitation, orthopaedic, medical and surgical treatments find their relevance all the more so if the factors of the disorders are correctly identified, evaluated qualitatively and quantitatively. The contributions of clinical and paraclinical examinations complement each other to provide professionals with the richest range possible. In 1991, Dr Alain Lespargot described a clinical examination allowing to define the sectors of mobility where the hip is in a situation of satisfactory centering or on the contrary, of less centering. This article studies the interest of this examination in addition to radiography. This is a first step to show that this clinical examination effectively accounts for the centering situation of the hips flexed around 90°. It is reliable and reproducible. However, it requires some practice and repetition, like many of our other professional gestures.

脑瘫受试者在骨科状态下的大脑运动障碍发生率是恒定的:过度收缩导致错位、肌肉和关节周围收缩、活动区移位、骨骼变形。这些骨科后果与运动损伤程度相关。如果能够正确识别、定性和定量评估疾病的因素,康复、整形、医疗和外科治疗就会发现它们的相关性。临床和临床旁检查的贡献相辅相成,为专业人员提供尽可能丰富的范围。1991年,Alain Lespargot博士描述了一项临床检查,该检查允许定义髋关节处于令人满意的居中或相反的较少居中情况下的活动区域。除了射线照相术外,本文还研究了这种检查的兴趣。这是表明这种临床检查有效地解释了髋关节弯曲约90°的居中情况的第一步。它是可靠和可重复的。然而,它需要一些练习和重复,就像我们的许多其他专业手势一样。
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引用次数: 0
Éditorial 社论
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.09.003
P. Toullet (Rédacteur en chef)
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引用次数: 0
PIPA MOTEUR : Programme d’Intervention Précoce Accompagné Moteur pour les enfants à très haut risque de paralysie cérébrale 运动PIPA:针对脑瘫高风险儿童的运动辅助早期干预计划
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.08.001
M. Coquery, S. Paviot, L.A. Phelix, H. Daudé

The Early Medico-Psychological Action Center (CAMSP) in Montpellier has set up PIPA, which is an accompanied precocious intervention program for children presenting vulnerability factors at birth, and their parents. In this program, between three and four months of corrected age, when a newborn is presenting a very high risk of developing a cerebral palsy, an intensification of the neuromotor follow-up is proposed (MOTOR PIPA). This program is based on on international recommendations concerning: the earliest possible diagnosis with evaluations based on current scientific data, active involvement from parents in the child's therapeutic project, enrichment of the child's environment, intensification of neuromotor stimulations. In addition, we use a partnership notebook as well as filmed session videos.

蒙彼利埃的早期医学心理行动中心(CAMSP)设立了PIPA,这是一项针对出生时存在脆弱因素的儿童及其父母的伴随性早熟干预计划。在这个项目中,在矫正年龄的三到四个月之间,当新生儿出现患脑瘫的高风险时,建议加强神经运动随访(MOTOR PIPA)。该计划基于以下国际建议:根据当前科学数据进行评估,尽可能早地进行诊断,父母积极参与儿童的治疗项目,丰富儿童的环境,加强神经运动刺激。此外,我们使用合作伙伴笔记本以及拍摄的会话视频。
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引用次数: 0
Quelles installations et appareillages pour les jeunes enfants en situation de handicap moteur sévère ? Pour quels objectifs ? Avec quel partenariat ? 为严重运动障碍的幼儿提供哪些设施和设备?为了什么目的?与什么伙伴关系?
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.09.002
I. Yanez , L. Cheikh

The multidisciplinary therapeutic and educational team at the Ramdam Inclusive child care centre welcomes 30% of children with cerebral palsy among able-bodied children in the neighbourhood. The facilities of these young children with severe motor disabilities are essential they aim to preserve their orthopedic capital, to avoid choking spells, and to optimize their functional possibilities (motor, visual, communicational and relational) in their environment, at home as well as at their child care centre. They thus participate in their early social inclusion. From the multifactorial assessment of children's disorders and capacities, their occupations and their environment, to the co-construction of relevant objectives, partnership with the different actors is essential. We will emphasize the importance of this transdisciplinary work (and more specifically between the occupational therapist, the physiotherapist and the orthoprothesist, in close partnership with families and doctors), from the first “foam homemade installations” by the occupational therapist in the Ramdam child-care centre, to the orthopedic equipments made by the orthoprothesist. We will illustrate our constructive approach with some clinical vignettes of young children with severe motor disabilities, with the gradual introduction of facilities depending on the child's evolution, the parents’ requests and their progress in discovering their “different” child, proposals from the multidisciplinary team, while taking into account the specific and personalized goals for each child.

Ramdam包容性儿童保育中心的多学科治疗和教育团队欢迎附近30%的健全儿童中的脑瘫儿童。这些患有严重运动障碍的幼儿的设施至关重要——他们的目的是保护他们的矫形资本,避免窒息,并优化他们在环境、家庭和儿童保育中心的功能可能性(运动、视觉、交流和关系)。因此,他们参与了早期的社会融合。从对儿童的障碍和能力、职业和环境的多因素评估,到相关目标的共同构建,与不同行为者的伙伴关系至关重要。我们将强调这项跨学科工作的重要性(更具体地说,是职业治疗师、理疗师和矫形师之间,与家庭和医生密切合作),从职业治疗师在拉姆达姆儿童保育中心的第一个“自制泡沫装置”到矫形师制造的矫形设备。我们将用一些严重运动障碍幼儿的临床小插曲来说明我们的建设性方法,根据孩子的进化、父母的要求和他们在发现“不同”孩子方面的进展,多学科团队的建议,同时考虑到每个孩子的具体和个性化目标。
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引用次数: 0
Emma Livingstone, lauréate du prix de la Fondation Paralysie Cérébrale au congrès de l’EACD
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.07.001
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引用次数: 0
De l’évolution des représentations du handicap à l’évolution des modèles de conception des appareillages 从残疾表现的演变到设备设计模型的演变
Q4 Medicine Pub Date : 2023-10-01 DOI: 10.1016/j.motcer.2023.09.001
P. Toullet, A. Jouve

The device occupies an important place in the therapeutic arsenal used in cerebral palsy. The molded seat (or seat corset), the pelvic-pedal splints for verticalization, the night splints represent the daily life of a large number of cerebral palsy subjects. Unfortunately, it is a source of pain or discomfort, which limits its use when the initial objectives seemed relevant. The tools allowing the development of the specifications of these devices have evolved in connection with the representation that we have of disability and of the person with a disability. This evolution opens up new perspectives in the representation and design of the device: This would no longer be only a tool for compensating for a deficiency but that of an adaptive and enabling tool.

该装置在脑瘫治疗中占有重要地位。模制座椅(或座椅胸衣)、用于垂直化的骨盆踏板夹板、夜间夹板代表了大量脑瘫患者的日常生活。不幸的是,它是疼痛或不适的来源,这限制了它在最初目标似乎相关时的使用。允许开发这些设备规格的工具是随着我们对残疾人和残疾人的描述而发展起来的。这一演变为设备的表示和设计开辟了新的视角:这将不再只是一种弥补缺陷的工具,而是一种适应性和使能性的工具。
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引用次数: 0
Pour une vision éclairée du guidage moteur : le Hands on au service du Hands off 对于发动机引导的照明视图:手动开启服务于手动关闭
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/j.motcer.2023.05.001
P. Toullet (Rédacteur en chef)
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引用次数: 0
Issue contents 发布内容
Q4 Medicine Pub Date : 2023-06-01 DOI: 10.1016/S0245-5919(23)00036-5
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引用次数: 0
期刊
Motricite Cerebrale
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