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The Value of a Regional Living COVID-19 Registry and the Challenges of Keeping It Alive 2019冠状病毒病疫情区域动态登记册的价值以及维持该登记册的挑战
J. Hanna, T. Chen, C. Portales-Castillo, D. Newhart, K. Schantz, K. Rozzi, J. Bress, E. Lesho
Background: The need for rapid access to regularly updated patient data for hypothesis testing, surge planning, and epidemiologic investigations underscore the value of updated registries that clinicians, researchers, and policy makers can easily access for local and regional planning. We sought to create an adaptive, living registry containing detailed clinical and epidemiologic and outcome data from SARS-CoV-2-PCR-positive patients in our healthcare system. Methods: From 03/13/202 onward, demographics, comorbidities, outpatient medications, along with 75 laboratory, 2 imaging, 19 therapeutic, and 4 outcome-related parameters were manually extracted from the electronic medical record of SARS-CoV-2 positive patients. These parameters were entered on a registry featuring calculation, graphing tools, pivot tables, and a macro programming language. Initially, two internal medicine residents populated the database, then professional data abstractors populated the registry. When the National Center for Immunization and Respiratory Diseases released their COVID-19 case report form for public access, we adapted it and used it on a browser-based, metadata-driven electronic data capture software platform. Statistics were performed in R and Minitab. Results: At the time of this submission, 200,807 SARS-CoV-2 RT-PCR tests were performed on 107,604 distinct patients. 3699 (3.4%) of those have had positive results. Of those, 399 (11%) have had the more than 75 parameters full entered in the registry. The average follow-up period was 25 days (range 21-34 days). Age, male gender, diabetes, hypertension, cardiovascular disease, kidney disease, and cancer were associated with hospital admission (all p values < 0.01), but not ICU admission. Statin, ACEI-ARB, and acid suppressant use were associated with admission (all p values < 0.03). Obesity and history of autoimmune disease were not associated with need for admission. Supplemental oxygen, vasopressor requirement, and outpatient statin use were associated with increased mortality (all p values < 0.03). Conclusion: A living COVID-19 registry represents a mechanism to facilitate optimal sharing of data between providers, consumers, health information networks, and health plans through technology-enabled, secure-access electronic health information. Our approach also involves a diversity of new roles in the field, such as using residents, staff, and the quality department, in addition to professional data extractors and the health informatics team. However, due to the overwhelming number of infections that continues to accelerate, and the labor/time intense nature of the project, only 11% of all patients with COVID-19 had all parameters entered in the registry. Therefore, this report also offers lessons learned and discusses sustainability issues, should others wish to establish a registry. It also highlights the local and broader public health significance of the registry.
背景:为了进行假设检验、激增计划和流行病学调查,需要快速获取定期更新的患者数据,这强调了更新登记的价值,临床医生、研究人员和政策制定者可以方便地访问这些登记,以便进行地方和区域规划。我们试图创建一个适应性的生活登记处,其中包含我们医疗系统中sars - cov -2- pcr阳性患者的详细临床、流行病学和结局数据。方法:从2002年3月13日起,从SARS-CoV-2阳性患者的电子病历中手动提取人口统计学、合并症、门诊用药以及75项实验室、2项影像学、19项治疗和4项结局相关参数。这些参数输入到具有计算、绘图工具、数据透视表和宏编程语言的注册表中。最初,由两名内科医生填充数据库,然后由专业的数据抽象人员填充注册表。当国家免疫和呼吸疾病中心发布COVID-19病例报告表供公众查阅时,我们对其进行了修改,并在基于浏览器的元数据驱动的电子数据采集软件平台上使用。在R和Minitab中进行统计。结果:在提交本报告时,对107,604名不同的患者进行了200,807次SARS-CoV-2 RT-PCR检测。其中3699例(3.4%)有阳性结果。其中,399(11%)已经在注册表中完整输入了超过75个参数。平均随访25天(21 ~ 34天)。年龄、男性、糖尿病、高血压、心血管疾病、肾脏疾病和癌症与住院相关(p值均< 0.01),但与ICU住院无关。他汀类药物、ACEI-ARB和抑酸药的使用与入院相关(p值均< 0.03)。肥胖和自身免疫性疾病史与住院需求无关。补充氧气、血管加压素需求和门诊他汀类药物使用与死亡率增加相关(p值均< 0.03)。结论:2019冠状病毒病疫情活体登记是一种机制,可通过技术支持、可安全访问的电子卫生信息,促进提供者、消费者、卫生信息网络和卫生计划之间的数据优化共享。我们的方法还涉及该领域的各种新角色,例如除了使用专业数据提取器和卫生信息学团队外,还使用住院医生、工作人员和质量部门。然而,由于大量感染持续加速,以及该项目的劳动/时间紧张的性质,只有11%的COVID-19患者在注册表中输入了所有参数。因此,如果其他国家希望建立登记处,本报告也提供了经验教训,并讨论了可持续性问题。它还突出了该登记处在当地和更广泛的公共卫生方面的意义。
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引用次数: 1
Functions and Outcomes of Personal Health Records for Patients with Chronic Diseases: A Systematic Review. 慢性病患者个人健康记录的功能和结果:系统综述。
Somayeh Paydar, Hassan Emami, Farkhondeh Asadi, Hamid Moghaddasi, Azamossadat Hosseini

Introduction: The personal health record (PHR) makes it possible for patients to access, manage, track, and share their health information. By engaging patients in chronic disease care, they will be active members in decision-making and healthcare management.

Objectives: This study aimed to identify the functions and outcomes of PHR for patients with four major groups of chronic diseases (cardiovascular diseases, cancers, diabetes, and chronic respiratory diseases).

Method: A systematic review was conducted on studies published in PubMed, Scopus, Web of Science, and Embase. Searching and screening were performed using the keyword of "Personal Health Record" without time limitation, and ended in August 2018.

Results: In total, 3742 studies were retrieved, 35 of which met the inclusion criteria. Out of these 35, 18 studies were conducted in the United States, 24 studies were related to patients with diabetes, and 32 studies focused on tethered PHRs. Moreover, in 25 studies, the function of viewing and reading medical records and personal health information was provided for three groups of chronic patients. Results showed that the use of PHRs helps the management and control of chronic diseases (10 studies).

Conclusion: It is recommended that integrated PHRs with comprehensive functions and features were designed in order to support patient independence and empowerment in self-management, decrease the number of referrals to health centers, and reduce the costs imposed on families and society.

简介:个人健康记录(PHR)使患者能够访问、管理、跟踪和共享他们的健康信息。通过让患者参与慢性病护理,他们将成为决策和医疗保健管理的积极成员。目的:本研究旨在确定四大类慢性疾病(心血管疾病、癌症、糖尿病和慢性呼吸系统疾病)患者的PHR功能和结果。方法:系统回顾PubMed、Scopus、Web of Science和Embase上发表的相关研究。以“个人健康档案”为关键词进行检索筛选,无时间限制,截止到2018年8月。结果:共检索到3742项研究,其中35项符合纳入标准。在这35项研究中,有18项研究是在美国进行的,24项研究与糖尿病患者有关,32项研究侧重于栓系phrr。此外,在25项研究中,为三组慢性患者提供了查看和阅读病历和个人健康信息的功能。结果表明,使用PHRs有助于慢性病的管理和控制(10项研究)。结论:建议设计功能全面的综合医疗责任档案,以支持患者自主和自主管理,减少转诊次数,降低家庭和社会的成本。
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引用次数: 0
Examining Individual Transition from Healthcare to Information Technology Roles Using the Theory of Planned Behavior. 使用计划行为理论检查个人从医疗保健到信息技术角色的转变。
Rebecca Johnston, Barbara HewittHewitt, Alexander McLeod, Jackie Moczygemba

Many health information management (HIM) positions, including coders and transcriptionists, are evolving due to the widespread adoption of electronic health records (EHR) and other automated entry systems. Thus, focus for roles associated with those positions are changing and new positions to manage and manipulate the data collected in the new systems. This study seeks to identify which factors influence HIM professionals' decision to transition from a traditional HIM role to an information technology (IT) position. An online survey was sent to these individuals to determine which factors influenced their decision to consider a transition from healthcare roles to information technology using the theory of planned behavior. In other words, this study explored whether these individuals were influenced by attitudes, normative beliefs, and self-efficacy to consider transitioning from healthcare roles to information technology positions. In order to better understand whether education played a role in this behavior, an additional element, education efficacy was added. The findings revealed that these health information management professionals are not considering a transition from healthcare positions to IT roles.

由于电子健康记录(EHR)和其他自动输入系统的广泛采用,许多健康信息管理(HIM)职位,包括编码员和转录员,正在不断发展。因此,与这些职位相关的角色的焦点正在发生变化,新的职位将管理和操作在新系统中收集的数据。本研究旨在找出哪些因素影响信息管理专业人员从传统的信息管理角色转向信息技术(IT)职位的决定。我们向这些个人发送了一份在线调查,以确定哪些因素影响了他们考虑使用计划行为理论从医疗保健角色过渡到信息技术的决定。换句话说,本研究探讨了这些个体是否受到态度、规范信念和自我效能的影响,以考虑从医疗保健角色过渡到信息技术职位。为了更好地理解教育是否在这种行为中发挥了作用,我们增加了一个额外的因素,教育功效。调查结果显示,这些医疗信息管理专业人员并没有考虑从医疗保健职位过渡到IT角色。
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引用次数: 0
Electronic Health Record (EHR) Abstraction. 电子健康记录(EHR)抽象。
Amal A Alzu'bi, Valerie J M Watzlaf, Patty Sheridan

The purpose of electronic health record (EHR) abstraction includes collection of data related to administrative coding functions, quality improvement, clinical registry functions and clinical research. This article examines the different abstraction methods, such as manual abstraction, simple query, and natural language processing (NLP). It also discusses the advantages and disadvantages of each of those methods. The process used for successful EHR abstraction is also discussed and includes the scope and resources needed (time, budget, type of healthcare professionals RHIA, RHIT, etc.). The relationship between EHRs and the clinical registry is also examined with a focus on validity of the data extracted. Future research in this area to examine abstraction methods across hospitals who do data abstraction are being finalized for a future publication.

电子健康档案(EHR)抽象的目的包括收集与管理编码功能、质量改进、临床登记功能和临床研究相关的数据。本文研究了不同的抽象方法,例如手动抽象、简单查询和自然语言处理(NLP)。本文还讨论了每种方法的优缺点。还讨论了用于成功提取EHR的流程,包括所需的范围和资源(时间、预算、医疗保健专业人员RHIA、RHIT等类型)。电子病历和临床登记之间的关系也被检查,重点是数据提取的有效性。在该领域的未来研究,以检查跨医院进行数据抽象的抽象方法,正在为未来的出版物最终确定。
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引用次数: 0
Clinical Data Abstraction: A Research Study. 临床数据摘要:一项研究
Valerie J M Watzlaf, Patty T Sheridan, Amal A Alzu'bi, Laura Chau

This is the second part in a two-part research study on clinical data abstraction.1 Clinical data abstraction is the process of capturing key administrative and clinical data elements from a medical record. Very little is known about how the abstraction function is organized and managed today. A research study to gather data on how the clinical data abstraction function is managed in healthcare organizations across the country was performed. Results show that the majority of the healthcare organizations surveyed have a decentralized system, still perform the abstraction in-house as part of the coding workflow, and use manual abstraction followed by natural language processing (NLP) and simple query. The qualifications and training of abstractors varied across abstraction functions, however coders followed by nurses and health information management (HIM) professionals were the three top performers in abstraction. While, in general, abstraction is decentralized in most enterprises, two enterprise-wide abstraction models emerged from our study. In Model 1, the HIM department is responsible for coding, as well as all of the abstraction functions except the cancer registry and trauma registry abstraction. In Model 2, the quality department is responsible for all of the abstraction functions except the cancer registry, trauma registry, and coding function.

1 临床数据摘要是从医疗记录中获取关键的管理和临床数据元素的过程。1 临床数据抽取是指从病历中获取关键的行政和临床数据元素的过程。目前,人们对抽取功能的组织和管理方式知之甚少。为了收集全国医疗机构如何管理临床数据摘要功能的数据,我们开展了一项调查研究。结果显示,大多数受访医疗机构都有一个分散的系统,仍在内部进行摘要,作为编码工作流程的一部分,并使用人工摘要,然后进行自然语言处理(NLP)和简单查询。不同抽象功能的抽象人员的资质和培训各不相同,但编码员、护士和医疗信息管理 (HIM) 专业人员是抽象工作中表现最出色的三类人员。一般来说,大多数企业的抽取工作都是分散进行的,但我们的研究发现了两种企业范围内的抽取模式。在模式 1 中,医疗信息管理部门负责编码以及除癌症登记和创伤登记抽取以外的所有抽取功能。在模式 2 中,质量部门负责除癌症登记、创伤登记和编码功能以外的所有抽象功能。
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引用次数: 0
Privacy Officers: Who They are and Where They Work. 隐私官:他们是谁,他们在哪里工作。
Amanda Walden, Kendall Cortelyou-Ward, Alice Noblin

The study's objective is to examine the role of healthcare privacy officers, including their personal and organizational knowledge, and the facilities where they work. A survey was conducted of privacy officers that are members of the American Health Information Management Association (AHIMA). This resulted in 123 responses that were analyzed for this study. Descriptive statistics were used to characterize factors. The results showed the characteristics predominant among privacy officers are female, higher age, employed in healthcare for numerous years, mostly hold credentials, higher educated, with higher self-reported knowledge levels. Privacy officers are housed in several departments, with the majority within health information management (HIM). Their facilities are typically acute-care hospitals or healthcare systems located in states without additional privacy laws and are primarily non-profit.

该研究的目的是考察医疗保健隐私官的角色,包括他们的个人和组织知识,以及他们工作的设施。对美国健康信息管理协会(AHIMA)成员中的隐私官员进行了一项调查。这项研究分析了123个回复。描述性统计用于表征因素。结果显示,隐私官的主要特征是女性,年龄较大,在医疗保健行业工作多年,大多持有证书,受过高等教育,自我报告的知识水平较高。隐私官员被安置在几个部门,其中大多数在卫生信息管理部门。他们的设施通常是位于没有额外隐私法的州的急症护理医院或医疗保健系统,并且主要是非营利性的。
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引用次数: 0
A Virtual Leadership Program's Impact on Employee Leadership Development at a Healthcare Organization. 虚拟领导力项目对医疗机构员工领导力发展的影响。
Charlene Banta, Kelly Doran, Erin Duncan, Patty Heiderscheit, Rhonda Jensen, Jenny Jorgenson, Barb Rechtzigel, Sarah Shtylla

In this study, we explored the effectiveness of the virtual organizational leadership development program at Mayo Clinic. The purpose of this study was to explain how a virtual leadership development program impacted employee leadership efficacy. The research questions addressed how the program affected participant promotions, how the program learning objectives were implemented by participants, and how the program impacted participants. Collection tools included satisfaction surveys, interviews, and data reflecting promotion rates. Participants appreciated the advantages of the virtual format of the program and the quality of the instructors. They completed the program with enhanced communication skills, the ability to influence positive change, and increased self-awareness. Opportunities for program improvement included incorporating real-world projects to give participants the ability to practice the leadership skills taught, the ability to be paired with a mentor, and a second part to the program to explore the leadership competencies at a more advanced level.

在本研究中,我们探讨了虚拟组织领导力发展项目在梅奥诊所的有效性。本研究的目的是解释虚拟领导力发展计划如何影响员工的领导效能。研究问题涉及该计划如何影响参与者的晋升,参与者如何实施该计划的学习目标,以及该计划如何影响参与者。收集工具包括满意度调查、访谈和反映晋升率的数据。与会者对课程虚拟形式的优势和教师的素质表示赞赏。他们完成项目后,沟通技巧、影响积极变化的能力和自我意识都有所提高。项目改进的机会包括结合现实世界的项目,让参与者有能力实践所教授的领导技能,与导师配对的能力,以及项目的第二部分,在更高级的水平上探索领导能力。
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引用次数: 0
Informatics-Supported Diabetes Prevention Programming in West Virginia. 西弗吉尼亚州信息学支持的糖尿病预防规划。
Adam Baus, Samantha Shawley-Brzoska, Jessica Wright, Sheryn Carey, Erikah DeFrehn Berry, Sandra Burrell, Megan Ross, Cecil Pollard, Audrey Semel, Andrea Calkins, Divya Gadde, Traci Jarrett

Addressing diabetes, prediabetes, and related health conditions such as high blood pressure, high cholesterol, obesity, and physical inactivity are critical public health priorities for the United States, particularly West Virginia. Preventing chronic conditions through early identification of risk and intervention to reduce risk is essential. Primary care and community-based programs need a more connected informatics system by which they work in tandem to identify, refer, treat, and track target populations. This case study in quality improvement examines the effectiveness of national diabetes prevention programming in West Virginia via the West Virginia Health Connection initiative, which was designed to provide such an informatics structure. Cohort analysis reveals an average weight loss of 13.6 pounds-or 6.3 percent total body weight loss-per person. These changes represent decreased risk of diabetes incidence and increased healthcare savings. Lessons learned are applicable to other areas aiming to build and sustain a data-informed health analytics network.

解决糖尿病、前驱糖尿病和相关健康状况,如高血压、高胆固醇、肥胖和缺乏体育活动,是美国,特别是西弗吉尼亚州的关键公共卫生优先事项。通过早期识别风险和干预以降低风险来预防慢性病是至关重要的。初级保健和以社区为基础的项目需要一个更紧密联系的信息系统,通过该系统,它们可以协同工作,以识别、转诊、治疗和跟踪目标人群。本关于质量改进的案例研究通过西弗吉尼亚州健康连接倡议考察了西弗吉尼亚州国家糖尿病预防规划的有效性,该倡议旨在提供这样一个信息结构。队列分析显示,平均每人体重减轻13.6磅,或体重减轻6.3%。这些变化意味着糖尿病发病率的降低和医疗费用的增加。吸取的经验教训适用于旨在建立和维持数据知情的卫生分析网络的其他领域。
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引用次数: 0
Predictive Model Based on Health Data Analysis for Risk of Readmission in Disease-Specific Cohorts. 基于健康数据分析的疾病特异性队列再入院风险预测模型
Md Shahid Ansari, Abhay Kumar Alok, Dinesh Jain, Santu Rana, Sunil Gupta, Roopa Salwan, Svetha Venkatesh

Background: Intervention planning to reduce 30-day readmission post-acute myocardial infarction (AMI) in an environment of resource scarcity can be improved by readmission prediction score. The aim of study is to derive and validate a prediction model based on routinely collected hospital data for identification of risk factors for all-cause readmission within zero to 30 days post discharge from AMI.

Methods: Our study includes 2,849 AMI patient records (January 2005 to December 2014) from a tertiary care facility in India. EMR with ICD-10 diagnosis, admission, pathological, procedural and medication data is used for model building. Model performance is analyzed for different combination of feature groups and diabetes sub-cohort. The derived models are evaluated to identify risk factors for readmissions.

Results: The derived model using all features has the highest discrimination in predicting readmission, with AUC as 0.62; (95 percent confidence interval) in internal validation with 70/30 split for derivation and validation. For the sub-cohort of diabetes patients (1359) the discrimination is slightly better with AUC 0.66; (95 percent CI;). Some of the positively associated predictive variables, include age group 80-90, medicine class administered during index admission (Anti-ischemic drugs, Alpha 1 blocker, Xanthine oxidase inhibitors), additional procedure in index admission (Dialysis). While some of the negatively associated predictive variables, include patient demography (Male gender), medicine class administered during index admission (Betablocker, Anticoagulant, Platelet inhibitors, Anti-arrhythmic).

Conclusions: Routinely collected data in the hospital's clinical and administrative data repository can identify patients at high risk of readmission following AMI, potentially improving AMI readmission rate.

背景:资源稀缺环境下减少急性心肌梗死(AMI)后30天再入院的干预计划可以通过再入院预测评分来改善。本研究的目的是推导并验证基于常规收集的医院数据的预测模型,用于识别AMI出院后0 - 30天内全因再入院的危险因素。方法:我们的研究包括来自印度三级医疗机构的2849例AMI患者记录(2005年1月至2014年12月)。EMR与ICD-10诊断、入院、病理、程序和用药数据用于模型构建。分析了不同特征组组合和糖尿病亚群的模型性能。对导出的模型进行评估,以确定再入院的危险因素。结果:综合所有特征的推导模型预测再入院的判别性最高,AUC为0.62;(95%置信区间)在内部验证中,70/30分割用于推导和验证。对于糖尿病患者亚队列(1359),鉴别能力略好,AUC为0.66;(95% CI;)。一些正相关的预测变量包括80-90岁年龄组、入院时使用的药物类别(抗缺血药物、α - 1阻滞剂、黄嘌呤氧化酶抑制剂)、入院时的附加程序(透析)。而一些负相关的预测变量,包括患者人口统计学(男性),入院时使用的药物类别(β受体阻滞剂,抗凝血剂,血小板抑制剂,抗心律失常)。结论:在医院的临床和管理数据库中常规收集数据可以识别AMI后再入院的高风险患者,潜在地提高AMI再入院率。
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引用次数: 0
An Interdisciplinary Approach to Reducing Errors in Extracted Electronic Health Record Data for Research. 减少用于研究的电子健康记录数据错误的跨学科方法。
Neelkamal Soares, Sorabh Singhal, Casey Kloosterman, Teresa Bailey

Erroneous electronic health record (EHR) data capture is a barrier to preserving data integrity. We assessed the impact of an interdisciplinary process in minimizing EHR data loss from prescription orders. We implemented a three-step approach to reduce data loss due to missing medication doses: Step 1-A data analyst updated the request code to optimize data capture; Step 2-A pharmacist and physician identified variations in EHR prescription workflows; and Step 3-The clinician team determined daily doses for patients with multiple prescriptions in the same encounter. The initial report contained 1421 prescriptions, with 377 (26.5 percent) missing dosages. Missing dosages reduced to 361 (26.3 percent) prescriptions following Step 1, and twenty-three (1.7 percent) records after Step 2. After Step 3, 1210 prescriptions remained, including 16 (1.3 percent) prescriptions missing doses. Prescription data is susceptible to missing values due to multiple data capture workflows. Our approach minimized data loss, improving its validity in retrospective research.

错误的电子健康记录(EHR)数据采集是维护数据完整性的一个障碍。我们评估了跨学科流程对尽量减少处方单造成的电子病历数据丢失的影响。我们采用了一种三步法来减少因药物剂量缺失而造成的数据丢失:第 1 步:数据分析师更新请求代码以优化数据采集;第 2 步:药剂师和医生确定电子病历处方工作流程中的变化;第 3 步:临床医生团队确定同一病例中有多个处方的患者的每日剂量。初始报告包含 1421 份处方,其中 377 份(26.5%)缺少剂量。步骤 1 后,缺失剂量的处方减少到 361 份(26.3%),步骤 2 后,缺失剂量的记录减少到 23 份(1.7%)。步骤 3 后,仍有 1210 张处方,其中包括 16 张(1.3%)缺失剂量的处方。由于多重数据采集工作流程,处方数据很容易出现缺失值。我们的方法最大限度地减少了数据丢失,提高了回顾性研究的有效性。
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引用次数: 0
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Perspectives in health information management / AHIMA, American Health Information Management Association
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