M. Srikar, Reny Raju, Nikita Dadlani, D. Swaminathan, P. Vaidhyanathan, S. Meera
India is a socioculturally and linguistically diverse country. Most often individuals grow up exposed to more than one language. Apart from exposure to native and community languages, there is a growing preference for English as the language of formal education and employment. Previous studies demonstrated that bilingual children with autism spectrum disorder (ASD) develop language similar to their monolingual nonverbal IQ-matched ASD peers. However, most of these studies have been conducted in countries in which English is the primary language for majority of the population. Although existing studies support a bilingual environment for children with ASD, professionals still seem to advise families' use of a monolingual approach. This paper reviews and discusses factors that influence the selection of language(s) for intervention in young children with ASD in bi/multilingual environments. These are discussed under three areas namely, (1) language environment of the child, (2) parent/caregivers' perspectives regarding bi/multilingual exposure, and (3) medium of education and availability of intervention services. This paper also highlights the complexities involved in the language selection process for intervention using four case vignettes. Based on the review and findings from the case vignettes, it is evident that there is a need for (1) sensitizing fellow professionals regarding the increasing shift toward a bi/multilingual approach, (2) formulating guidelines for this decision-making process, and (3) continuing to develop an evidence base for adopting multilingual approach for intervention in a socioculturally and linguistically diverse country like India.
{"title":"Often Encountered but Rarely Reported: Challenges in Selecting Language(s) for Intervention in Bi/Multilingual Children with Autism Spectrum Disorder","authors":"M. Srikar, Reny Raju, Nikita Dadlani, D. Swaminathan, P. Vaidhyanathan, S. Meera","doi":"10.1055/s-0042-1743492","DOIUrl":"https://doi.org/10.1055/s-0042-1743492","url":null,"abstract":"India is a socioculturally and linguistically diverse country. Most often individuals grow up exposed to more than one language. Apart from exposure to native and community languages, there is a growing preference for English as the language of formal education and employment. Previous studies demonstrated that bilingual children with autism spectrum disorder (ASD) develop language similar to their monolingual nonverbal IQ-matched ASD peers. However, most of these studies have been conducted in countries in which English is the primary language for majority of the population. Although existing studies support a bilingual environment for children with ASD, professionals still seem to advise families' use of a monolingual approach. This paper reviews and discusses factors that influence the selection of language(s) for intervention in young children with ASD in bi/multilingual environments. These are discussed under three areas namely, (1) language environment of the child, (2) parent/caregivers' perspectives regarding bi/multilingual exposure, and (3) medium of education and availability of intervention services. This paper also highlights the complexities involved in the language selection process for intervention using four case vignettes. Based on the review and findings from the case vignettes, it is evident that there is a need for (1) sensitizing fellow professionals regarding the increasing shift toward a bi/multilingual approach, (2) formulating guidelines for this decision-making process, and (3) continuing to develop an evidence base for adopting multilingual approach for intervention in a socioculturally and linguistically diverse country like India.","PeriodicalId":41283,"journal":{"name":"Journal of Child Science","volume":" ","pages":""},"PeriodicalIF":0.3,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43164584","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Manar Al-lawama, J. Albaramki, Arwa Kiswani, Sara Kussad, R. Odeh, E. Altamimi
Analbuminemia is a rare autosomal recessive disease characterized by extremely low or zero levels of circulating serum albumin. The diagnosis is made by ruling out other causes of hypoalbuminemia and should be confirmed by gene mutation analysis. In this article, we describe the clinical findings of a preterm neonate born to a consanguineous family who presented with progressive lower limb edema at the age of 7 days and who was confirmed as having congenital analbuminemia by genetic testing (homozygous mutation ALB NP_000468.1: p. Val78CysfsTer2) and hypothyroidism. This is the first case of congenital analbuminemia to be reported from Jordan.
{"title":"Congenital Analbuminemia Associated with Hypothyroidism in a Preterm Neonate: The First Case from a Highly Consanguineous Community","authors":"Manar Al-lawama, J. Albaramki, Arwa Kiswani, Sara Kussad, R. Odeh, E. Altamimi","doi":"10.1055/s-0042-1757149","DOIUrl":"https://doi.org/10.1055/s-0042-1757149","url":null,"abstract":"Analbuminemia is a rare autosomal recessive disease characterized by extremely low or zero levels of circulating serum albumin. The diagnosis is made by ruling out other causes of hypoalbuminemia and should be confirmed by gene mutation analysis. In this article, we describe the clinical findings of a preterm neonate born to a consanguineous family who presented with progressive lower limb edema at the age of 7 days and who was confirmed as having congenital analbuminemia by genetic testing (homozygous mutation ALB NP_000468.1: p. Val78CysfsTer2) and hypothyroidism. This is the first case of congenital analbuminemia to be reported from Jordan.","PeriodicalId":41283,"journal":{"name":"Journal of Child Science","volume":" ","pages":""},"PeriodicalIF":0.3,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45575709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
The preschool period is marked by the development of several domains such as communication, cognition, social skills, and literacy skills. As language and literacy skills overlap during the preschool period, it is important to understand the dynamics of language and literacy in early school years. Due to language diversity, India does not bear a single-language system, and often the language spoken at home may not be the same at school for curricular instructions. Therefore, the present study focuses on the influence of script in bi- or multilingual scenarios in India. More importantly, the home language may or may not have its specific script; thus, facilitating early literacy skills at home can be questionable. The study followed a cross-sectional study design. One hundred and forty participants were divided into two groups based on their native language (Malayalam and Tulu groups). Each group was further divided based on their age, younger and older groups. An early literacy checklist and a parent perception questionnaire were developed to assess the early literacy skills in second language (L2). The findings revealed a developmental trend in early literacy skills in children with the older group performing better than the younger group. The study results also shed light on this less researched domain of influence of native script on L2 learning in a linguistically diverse country like India. The study's findings emphasize the parental understanding of the importance of home literacy–based activities for children and evaluation of early literacy skills which will help in early identification and treatment.
{"title":"Does Native Script Exposure Influence Second Language Early Literacy Skills?: A Preliminary Study in South Indian Preschoolers","authors":"Megha Mohan, T. Francis, J. Bhat","doi":"10.1055/s-0042-1743491","DOIUrl":"https://doi.org/10.1055/s-0042-1743491","url":null,"abstract":"The preschool period is marked by the development of several domains such as communication, cognition, social skills, and literacy skills. As language and literacy skills overlap during the preschool period, it is important to understand the dynamics of language and literacy in early school years. Due to language diversity, India does not bear a single-language system, and often the language spoken at home may not be the same at school for curricular instructions. Therefore, the present study focuses on the influence of script in bi- or multilingual scenarios in India. More importantly, the home language may or may not have its specific script; thus, facilitating early literacy skills at home can be questionable. The study followed a cross-sectional study design. One hundred and forty participants were divided into two groups based on their native language (Malayalam and Tulu groups). Each group was further divided based on their age, younger and older groups. An early literacy checklist and a parent perception questionnaire were developed to assess the early literacy skills in second language (L2). The findings revealed a developmental trend in early literacy skills in children with the older group performing better than the younger group. The study results also shed light on this less researched domain of influence of native script on L2 learning in a linguistically diverse country like India. The study's findings emphasize the parental understanding of the importance of home literacy–based activities for children and evaluation of early literacy skills which will help in early identification and treatment.","PeriodicalId":41283,"journal":{"name":"Journal of Child Science","volume":" ","pages":""},"PeriodicalIF":0.3,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48149163","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mind–body interventions, one of the major categories of complementaryandalternativemedicine (CAM), includepractices that are based on thehumanmind but that have an effect on the human body and physical health, such as meditation, prayer, and mental healing.1 Prayer means “begging to Allah, calling someone, sending something somewhere.” Prayer is the human heart’s conversation with Allah and seeking his blessing and help. Prayer is the servant reaching the level of addressing his Lord in the face of an extraordinary event. Ubudiyyet means “serving, slavery, excessive devotion to someone.” Worship is an endless way of speaking from man to Allah. Salah (namaz) is a form of worship inwhich a person establishes a direct relationshipwithAllah. Amanwas created to worship Allah.2 Herein, we present our observations about the use of prayer by parents of ill children to attract the attention of health caregivers to parents’ spiritual needs. In previous research, Losier et al3 found that approximately 13% of caregivers reported using CAM for their child in the pediatric emergency department. The most common CAM therapies used were homeopathy (20%), prayer/spiritual approaches (19.7%), and massage therapy (16.7%).3 Sawni et al4 reported that the use of CAM was 15% and the most common types of CAM therapies used were folk remedies/home remedies (59%), herbs (41%), prayer healing (14%), and massage therapy (10%). In another series, 48.8% of the patients had received at least one alternative therapy among pediatric emergency department patients. The most common were massage (16%), chiropractic therapy (9.8%), relaxation (7.2%), meditation (6.2%), aromatherapy (6.1%), and spiritual healing (4.3%).5 In our country, parents commonly use CAM including prayer for their children’s health. Top et al6 reported that 97.7% of parents of ill children had used at least one CAMmethod for mostly respiratory complaints, and 17.5%mothers used prayer. In another study, 77.2% ofmothers of children with developmental disabilities reported using at least oneCAMtreatment, and32.9%mothers usedprayer.7 In a study from Özyazicioğlu et al,8 42.29% of mothers reported using one ormore CAM therapies for their childwith a chronic disease, use of prayer was in 17.24%. In our clinical practice, wehave observed thatmost parents use CAM treatments, and the most commonly used CAM treatments are prayer by parents and/or by hodja, herbal medicine, and massage. Most parents of ill children pray to Allah for their children’s health; however,manyparents donot openly pray at their children’s bedside because they hesitate the reactionofhealth careprofessionals. Second,most families believe that results were the best when both prayer and conventional medicine were integrated. The prayed parents found spiritual peace and comfort because they believe the following spiritual/religious teachings. It is established by the people of reality that the illnesses of innocent children are like training for their
{"title":"Use of Prayer by Parents in Pediatric Emergency Department Patients","authors":"H. Çaksen","doi":"10.1055/s-0042-1757141","DOIUrl":"https://doi.org/10.1055/s-0042-1757141","url":null,"abstract":"Mind–body interventions, one of the major categories of complementaryandalternativemedicine (CAM), includepractices that are based on thehumanmind but that have an effect on the human body and physical health, such as meditation, prayer, and mental healing.1 Prayer means “begging to Allah, calling someone, sending something somewhere.” Prayer is the human heart’s conversation with Allah and seeking his blessing and help. Prayer is the servant reaching the level of addressing his Lord in the face of an extraordinary event. Ubudiyyet means “serving, slavery, excessive devotion to someone.” Worship is an endless way of speaking from man to Allah. Salah (namaz) is a form of worship inwhich a person establishes a direct relationshipwithAllah. Amanwas created to worship Allah.2 Herein, we present our observations about the use of prayer by parents of ill children to attract the attention of health caregivers to parents’ spiritual needs. In previous research, Losier et al3 found that approximately 13% of caregivers reported using CAM for their child in the pediatric emergency department. The most common CAM therapies used were homeopathy (20%), prayer/spiritual approaches (19.7%), and massage therapy (16.7%).3 Sawni et al4 reported that the use of CAM was 15% and the most common types of CAM therapies used were folk remedies/home remedies (59%), herbs (41%), prayer healing (14%), and massage therapy (10%). In another series, 48.8% of the patients had received at least one alternative therapy among pediatric emergency department patients. The most common were massage (16%), chiropractic therapy (9.8%), relaxation (7.2%), meditation (6.2%), aromatherapy (6.1%), and spiritual healing (4.3%).5 In our country, parents commonly use CAM including prayer for their children’s health. Top et al6 reported that 97.7% of parents of ill children had used at least one CAMmethod for mostly respiratory complaints, and 17.5%mothers used prayer. In another study, 77.2% ofmothers of children with developmental disabilities reported using at least oneCAMtreatment, and32.9%mothers usedprayer.7 In a study from Özyazicioğlu et al,8 42.29% of mothers reported using one ormore CAM therapies for their childwith a chronic disease, use of prayer was in 17.24%. In our clinical practice, wehave observed thatmost parents use CAM treatments, and the most commonly used CAM treatments are prayer by parents and/or by hodja, herbal medicine, and massage. Most parents of ill children pray to Allah for their children’s health; however,manyparents donot openly pray at their children’s bedside because they hesitate the reactionofhealth careprofessionals. Second,most families believe that results were the best when both prayer and conventional medicine were integrated. The prayed parents found spiritual peace and comfort because they believe the following spiritual/religious teachings. It is established by the people of reality that the illnesses of innocent children are like training for their","PeriodicalId":41283,"journal":{"name":"Journal of Child Science","volume":" ","pages":""},"PeriodicalIF":0.3,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46608073","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
E. Memar, Moeinadin Safavi, M. Moradinejad, V. Ziaee
Localized scleroderma is an uncommon autoimmune disease characterized by fibrosis of the skin and underlying tissue without involvement of blood vessels or internal organs. It usually affects children during later childhood, and early presentation of localized scleroderma during infancy is rare. In the current study, we report a child with localized scleroderma-related presentations occurring at birth. A 2-day-old male neonate presented with a firm, erythematous, and slightly pigmented plaque on his left thigh, leading to a change in the diameter of the affected foot and contracture of the left knee. At the age of 7 months, he was referred to our rheumatology clinic with normal growth and development. Laboratory studies, including urine and blood high-performance liquid chromatography assay, antinuclear antibodies, antitopoisomerase I, and rheumatic factor, were in the normal range. No signs of ocular involvement were noted during ophthalmological consultation. Skin biopsy showed mild acanthosis and collagen bundles, which replaced the fat around the sweat glands. A final diagnosis of localized scleroderma was made. Treatment was started with oral prednisolone, oral methotrexate (MTX), and colchicine. The skin lesion stopped progressing after 3 months of treatment. Steroid was then tapered over 6 months, while MTX and colchicine were continued for 2 years. Localized scleroderma during early infancy is a rare disease, but it should be considered as a differential in infants with erythematous and firm lesions on their body at birth because early treatment can prevent future complications.
{"title":"The First Presentation of Localized Scleroderma at Birth: Scleroderma as a Differential Diagnosis of Congenital Skin Lesion","authors":"E. Memar, Moeinadin Safavi, M. Moradinejad, V. Ziaee","doi":"10.1055/s-0041-1741055","DOIUrl":"https://doi.org/10.1055/s-0041-1741055","url":null,"abstract":"\u0000 Localized scleroderma is an uncommon autoimmune disease characterized by fibrosis of the skin and underlying tissue without involvement of blood vessels or internal organs. It usually affects children during later childhood, and early presentation of localized scleroderma during infancy is rare. In the current study, we report a child with localized scleroderma-related presentations occurring at birth. A 2-day-old male neonate presented with a firm, erythematous, and slightly pigmented plaque on his left thigh, leading to a change in the diameter of the affected foot and contracture of the left knee. At the age of 7 months, he was referred to our rheumatology clinic with normal growth and development. Laboratory studies, including urine and blood high-performance liquid chromatography assay, antinuclear antibodies, antitopoisomerase I, and rheumatic factor, were in the normal range. No signs of ocular involvement were noted during ophthalmological consultation. Skin biopsy showed mild acanthosis and collagen bundles, which replaced the fat around the sweat glands. A final diagnosis of localized scleroderma was made. Treatment was started with oral prednisolone, oral methotrexate (MTX), and colchicine. The skin lesion stopped progressing after 3 months of treatment. Steroid was then tapered over 6 months, while MTX and colchicine were continued for 2 years. Localized scleroderma during early infancy is a rare disease, but it should be considered as a differential in infants with erythematous and firm lesions on their body at birth because early treatment can prevent future complications.","PeriodicalId":41283,"journal":{"name":"Journal of Child Science","volume":" ","pages":""},"PeriodicalIF":0.3,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42837756","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
New neurological morbidity post pediatric intensive care (PIC) poses substantial problems, with a need to understand the relationship of outcome to blood pressure (BP) targets. The aim of the study is to see whether a change from a higher BP targeted strategy to a permissive one improved outcomes for development of new neurological morbidity, length of stay (LOS), and PIC-acquired infection. A retrospective cohort analysis was undertaken, comparing outcomes before and after the change. The higher BP cohort targets were set using standardized age-based centiles. In the permissive cohort, lower BPs were allowed, dependent on physiological variables. Targeted treatment continued throughout the critical illness. New neurological morbidity was defined as any deterioration from baseline, attributable to the admission, measured by post discharge clinical and records review over a minimum period of 4 years. Results were analyzed with IBM SPSS Statistics v26. Of 123 admissions in the permissive and 214 admissions in the higher BP target cohorts, 88 (72%) and 188 (88%) survived without new neurological morbidity (permissive vs. higher cohort OR 0.348 [95% CI 0.197–0.613] p <0.001). Median LOS was 2 (interquartile [IQ] range 2–5) and 3 (IQ range 2–6) days for the permissive and higher cohorts, respectively (p = 0.127). Three (2.4%) and 7 (3.3%) admissions in the permissive and higher BP cohorts respectively suffered PIC-acquired infection (p = 0.666). A higher BP targeted strategy was associated with protection from new neurological morbidity as compared with a permissive strategy, supporting the need for prospective studies into BP targets.
{"title":"A Retrospective Cohort Study Comparing Outcomes of Pediatric Intensive Care Patients after Changing from Higher to Permissive Blood Pressure Targets","authors":"Ahmed Shakir Mohammed, H. Klonin","doi":"10.1055/s-0042-1757915","DOIUrl":"https://doi.org/10.1055/s-0042-1757915","url":null,"abstract":"New neurological morbidity post pediatric intensive care (PIC) poses substantial problems, with a need to understand the relationship of outcome to blood pressure (BP) targets. The aim of the study is to see whether a change from a higher BP targeted strategy to a permissive one improved outcomes for development of new neurological morbidity, length of stay (LOS), and PIC-acquired infection. A retrospective cohort analysis was undertaken, comparing outcomes before and after the change. The higher BP cohort targets were set using standardized age-based centiles. In the permissive cohort, lower BPs were allowed, dependent on physiological variables. Targeted treatment continued throughout the critical illness. New neurological morbidity was defined as any deterioration from baseline, attributable to the admission, measured by post discharge clinical and records review over a minimum period of 4 years. Results were analyzed with IBM SPSS Statistics v26. Of 123 admissions in the permissive and 214 admissions in the higher BP target cohorts, 88 (72%) and 188 (88%) survived without new neurological morbidity (permissive vs. higher cohort OR 0.348 [95% CI 0.197–0.613] p <0.001). Median LOS was 2 (interquartile [IQ] range 2–5) and 3 (IQ range 2–6) days for the permissive and higher cohorts, respectively (p = 0.127). Three (2.4%) and 7 (3.3%) admissions in the permissive and higher BP cohorts respectively suffered PIC-acquired infection (p = 0.666). A higher BP targeted strategy was associated with protection from new neurological morbidity as compared with a permissive strategy, supporting the need for prospective studies into BP targets.","PeriodicalId":41283,"journal":{"name":"Journal of Child Science","volume":" ","pages":""},"PeriodicalIF":0.3,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44279525","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Aim To determine whether being small for gestational age (SGA) is associated with increased mortality and short-term morbidity for extremely low birth weight (ELBW) babies at Townsville University Hospital (TUH). Methods All babies with a birth weight of <1,000 g born at TUH between January 1, 2010 and January 1, 2021 were included. Data from the neonatal unit's NeoDATA database were used to compare mortality and short-term morbidity outcomes for babies categorized as SGA (birth weight <10th centile) or not. Statistical analyses were used to determine associations between being SGA and survival to discharge, intubation for mechanical ventilation, duration of respiratory support, chronic neonatal lung disease (CNLD), home oxygen, intraventricular hemorrhage (IVH), periventricular leukomalacia (PVL), retinopathy of prematurity (ROP), necrotizing enterocolitis (NEC), sepsis, time to full enteral feeds, and duration of admission. Results Of 461 ELBW babies, 62 (13.4%) were SGA. The SGA babies were significantly smaller at 714 (580–850) versus 810 (700–885) g (p < 0.001) and of advanced gestational age at 28.6 (26.6–30.2) versus 25.4 (24.4–26.6) weeks (p < 0.001). No significant difference in mortality existed, with 85% of SGA babies and 84% of others surviving. On univariate analysis, being SGA was associated with significant reductions in intubation for mechanical ventilation (p < 0.001), duration of respiratory support (p < 0.001), intraventricular hemorrhage (p = 0.002), NEC (p = 0.037), and admission duration (p = 0.038). After controlling for confounding factors, no outcomes were independently associated with being SGA. Logistic regression found survival was associated with birth weight (p = 0.030), gestational age (p = 0.007), and antenatal corticosteroids (p = 0.008). Conclusions Being SGA is not an independent predictor of mortality nor adverse short-term morbidity for ELBW babies.
{"title":"Being Small for Gestational Age does not Change Short-Term Outcomes for Extremely Low Birth Weight Babies at Townsville University Hospital","authors":"Natalee Williamson, G. Alcock, Y. Kandasamy","doi":"10.1055/s-0042-1757612","DOIUrl":"https://doi.org/10.1055/s-0042-1757612","url":null,"abstract":"\u0000 Aim To determine whether being small for gestational age (SGA) is associated with increased mortality and short-term morbidity for extremely low birth weight (ELBW) babies at Townsville University Hospital (TUH).\u0000 Methods All babies with a birth weight of <1,000 g born at TUH between January 1, 2010 and January 1, 2021 were included. Data from the neonatal unit's NeoDATA database were used to compare mortality and short-term morbidity outcomes for babies categorized as SGA (birth weight <10th centile) or not. Statistical analyses were used to determine associations between being SGA and survival to discharge, intubation for mechanical ventilation, duration of respiratory support, chronic neonatal lung disease (CNLD), home oxygen, intraventricular hemorrhage (IVH), periventricular leukomalacia (PVL), retinopathy of prematurity (ROP), necrotizing enterocolitis (NEC), sepsis, time to full enteral feeds, and duration of admission.\u0000 Results Of 461 ELBW babies, 62 (13.4%) were SGA. The SGA babies were significantly smaller at 714 (580–850) versus 810 (700–885) g (p < 0.001) and of advanced gestational age at 28.6 (26.6–30.2) versus 25.4 (24.4–26.6) weeks (p < 0.001). No significant difference in mortality existed, with 85% of SGA babies and 84% of others surviving. On univariate analysis, being SGA was associated with significant reductions in intubation for mechanical ventilation (p < 0.001), duration of respiratory support (p < 0.001), intraventricular hemorrhage (p = 0.002), NEC (p = 0.037), and admission duration (p = 0.038). After controlling for confounding factors, no outcomes were independently associated with being SGA. Logistic regression found survival was associated with birth weight (p = 0.030), gestational age (p = 0.007), and antenatal corticosteroids (p = 0.008).\u0000 Conclusions Being SGA is not an independent predictor of mortality nor adverse short-term morbidity for ELBW babies.","PeriodicalId":41283,"journal":{"name":"Journal of Child Science","volume":"1 1","pages":""},"PeriodicalIF":0.3,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"57975468","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Our main aim of this article was to show that central venous catheter (CVC) can be an easy-to-use, less-complicated catheter application such as peripherally inserted central catheter and umbilical catheter placement in the neonatal intensive care unit. We here described our experience with subclavian vein catheterization. Neonates who had venous access through subclavian central catheterization were assessed retrospectively. Data such as gestational age, age at the time of catheter insertion, birth weight, and gender were collected. In addition, problems related to catheterization during hospitalization were documented. This study comprised 40 newborns, 22 male and 18 female, with a mean gestational week of 29.57 ± 3.80 weeks and a mean gestational weight of 2067.50 ± 545.97 g. Due to occlusion, catheters were switched in five cases twice and in three cases once, totaling 53 catheterizations on 40 newborns. None of our patients had pneumothorax or hemothorax. On the postoperative 8th and 21st days, the catheter was withdrawn due to catheter infection in two (5%) patients, and catheter cultures revealed coagulase negative Staphylococcus aureus in both cases. Even in preterm infants, subclavian central venous catheterization is a safe and straightforward technique of gaining venous access in expert hands in the neonatal intensive care unit.
{"title":"Central Subclavian Catheterization in Newborns: Single-Center Experience","authors":"S. Gurel, A. Gözen, M. Bektas","doi":"10.1055/s-0041-1741425","DOIUrl":"https://doi.org/10.1055/s-0041-1741425","url":null,"abstract":"Our main aim of this article was to show that central venous catheter (CVC) can be an easy-to-use, less-complicated catheter application such as peripherally inserted central catheter and umbilical catheter placement in the neonatal intensive care unit. We here described our experience with subclavian vein catheterization. Neonates who had venous access through subclavian central catheterization were assessed retrospectively. Data such as gestational age, age at the time of catheter insertion, birth weight, and gender were collected. In addition, problems related to catheterization during hospitalization were documented. This study comprised 40 newborns, 22 male and 18 female, with a mean gestational week of 29.57 ± 3.80 weeks and a mean gestational weight of 2067.50 ± 545.97 g. Due to occlusion, catheters were switched in five cases twice and in three cases once, totaling 53 catheterizations on 40 newborns. None of our patients had pneumothorax or hemothorax. On the postoperative 8th and 21st days, the catheter was withdrawn due to catheter infection in two (5%) patients, and catheter cultures revealed coagulase negative Staphylococcus aureus in both cases. Even in preterm infants, subclavian central venous catheterization is a safe and straightforward technique of gaining venous access in expert hands in the neonatal intensive care unit.","PeriodicalId":41283,"journal":{"name":"Journal of Child Science","volume":" ","pages":""},"PeriodicalIF":0.3,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49005751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
F. Alatas, Aldisa Ayu Pratiwi, A. Kurniawan, A. Pudjiadi
Soil-transmitted helminth infection is endemic in Indonesia, with cases of reinfection despite individualized therapy and a mass treatment program. Three cases of multiple helminth infections were described that might be associated with chronic bloody diarrhea and stunted growth. These case series alert pediatricians that untreated helminthic infections are part of the differential diagnosis in children with gastrointestinal bleeding. Environmental surveillance should be performed in high-risk areas to prevent reinfection and growth alteration. In endemic areas, bloody diarrhea warns for an early routine fecal analysis. Correct diagnosis, prompt treatment, and source control are crucial to prevent long-term complications.
{"title":"Emerging Multiple Parasite Reinfection as Neglected Tropical Disease: A Case Series","authors":"F. Alatas, Aldisa Ayu Pratiwi, A. Kurniawan, A. Pudjiadi","doi":"10.1055/s-0042-1743196","DOIUrl":"https://doi.org/10.1055/s-0042-1743196","url":null,"abstract":"Soil-transmitted helminth infection is endemic in Indonesia, with cases of reinfection despite individualized therapy and a mass treatment program. Three cases of multiple helminth infections were described that might be associated with chronic bloody diarrhea and stunted growth. These case series alert pediatricians that untreated helminthic infections are part of the differential diagnosis in children with gastrointestinal bleeding. Environmental surveillance should be performed in high-risk areas to prevent reinfection and growth alteration. In endemic areas, bloody diarrhea warns for an early routine fecal analysis. Correct diagnosis, prompt treatment, and source control are crucial to prevent long-term complications.","PeriodicalId":41283,"journal":{"name":"Journal of Child Science","volume":" ","pages":""},"PeriodicalIF":0.3,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44566225","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Cerebral palsy (CP) is a common non-progressive neurodevelopmental disorder which causes developmental disabilities in children. Varied interventions for CP exist to address medical and physical needs but with limited effectiveness evidence. Environmental enrichment (EE) is an animal model intervention for many neurodevelopmental disorders, including CP, with considerable positive effects. This case report defines the Homeostasis-Enrichment-Plasticity (HEP) approach, which is based upon principles of EE and ecological theories of development and describes its use to promote the developmental and functional skills of an infant with CP. Parent interviews and assessment data were completed before and after intervention. For the interested parameters data was gathered by developmental history, systematic observation of behaviors in the clinical setting and at home, Beck Anxiety Inventory (BAI), Infant-Toddler Symptom Checklist, the Sensory Profile Infant/Toddler, Peabody Developmental Motor Scales-2, Gross Motor Function Measurement-88 (GMFM-88), the Gross Motor Function Classification System (GMFCS), and Pediatric Evaluation of Disability Inventory (PEDI). The HEP approach intervention was implemented one time per week for 12 months. Following the HEP approach intervention, self-regulation and sensory processing scores improved. GMFM-88 total score improved from 45/264 to 123/264. The Peabody found all gross motor (54–110), fine motor (65–117), and total motor quotient (119–227) scores improved after intervention. Post-intervention observations showed obvious gross motor progress with movement from GMFCS Level IV to Level I. Performance on the Functional Skills Scales and Caregiver Assistance Scales of PEDI also demonstrated notable improvements. BAI scores revealed low anxiety scores for both the mother (13/63 points) and father (14/63) before intervention. These scores did not change after intervention. A definition and detailed description of the HEP approach intervention is presented here for the first time. The case report demonstrated preliminary evidence for the effectiveness of the HEP approach on self-regulation, sensory processing, motor development, functional skills, and caregiver assistance with an infant with CP. Additional studies are needed to validate the findings.
{"title":"Exploring Effects of the HEP (Homeostasis-Enrichment-Plasticity) Approach as a Comprehensive Therapy Intervention for an Infant with Cerebral Palsy: A Case Report","authors":"A. Balıkcı","doi":"10.1055/s-0042-1757913","DOIUrl":"https://doi.org/10.1055/s-0042-1757913","url":null,"abstract":"Cerebral palsy (CP) is a common non-progressive neurodevelopmental disorder which causes developmental disabilities in children. Varied interventions for CP exist to address medical and physical needs but with limited effectiveness evidence. Environmental enrichment (EE) is an animal model intervention for many neurodevelopmental disorders, including CP, with considerable positive effects. This case report defines the Homeostasis-Enrichment-Plasticity (HEP) approach, which is based upon principles of EE and ecological theories of development and describes its use to promote the developmental and functional skills of an infant with CP. Parent interviews and assessment data were completed before and after intervention. For the interested parameters data was gathered by developmental history, systematic observation of behaviors in the clinical setting and at home, Beck Anxiety Inventory (BAI), Infant-Toddler Symptom Checklist, the Sensory Profile Infant/Toddler, Peabody Developmental Motor Scales-2, Gross Motor Function Measurement-88 (GMFM-88), the Gross Motor Function Classification System (GMFCS), and Pediatric Evaluation of Disability Inventory (PEDI). The HEP approach intervention was implemented one time per week for 12 months. Following the HEP approach intervention, self-regulation and sensory processing scores improved. GMFM-88 total score improved from 45/264 to 123/264. The Peabody found all gross motor (54–110), fine motor (65–117), and total motor quotient (119–227) scores improved after intervention. Post-intervention observations showed obvious gross motor progress with movement from GMFCS Level IV to Level I. Performance on the Functional Skills Scales and Caregiver Assistance Scales of PEDI also demonstrated notable improvements. BAI scores revealed low anxiety scores for both the mother (13/63 points) and father (14/63) before intervention. These scores did not change after intervention. A definition and detailed description of the HEP approach intervention is presented here for the first time. The case report demonstrated preliminary evidence for the effectiveness of the HEP approach on self-regulation, sensory processing, motor development, functional skills, and caregiver assistance with an infant with CP. Additional studies are needed to validate the findings.","PeriodicalId":41283,"journal":{"name":"Journal of Child Science","volume":"1 1","pages":""},"PeriodicalIF":0.3,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41456960","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}