Pub Date : 2024-05-20DOI: 10.1332/23978821y2024d000000045
Gary Higgs, M. Langford
Deep-seated problems facing the residential and nursing care home sector have been compounded by the impacts of the pandemic, underfunding and the cost-of-living crisis. This study aims to investigate how patterns of access to registered residential and nursing care places changed in the period spanning lockdowns and demonstrate how spatial analytical techniques can be used to examine the potential impacts of ongoing pressures on geographical patterns of access. Findings identify variations in access to provision hidden within aggregate figures that can help stakeholders monitor the current and projected availability of places as part of an overall package of care provision.
{"title":"Geographical and temporal variations in the provision of registered older people long-term care home places in Wales","authors":"Gary Higgs, M. Langford","doi":"10.1332/23978821y2024d000000045","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000045","url":null,"abstract":"Deep-seated problems facing the residential and nursing care home sector have been compounded by the impacts of the pandemic, underfunding and the cost-of-living crisis. This study aims to investigate how patterns of access to registered residential and nursing care places changed in the period spanning lockdowns and demonstrate how spatial analytical techniques can be used to examine the potential impacts of ongoing pressures on geographical patterns of access. Findings identify variations in access to provision hidden within aggregate figures that can help stakeholders monitor the current and projected availability of places as part of an overall package of care provision.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2024-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141118888","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-05-02DOI: 10.1332/23978821y2024d000000040
Edward Pomeroy, Francesca Fiori
The COVID-19 pandemic imposed the suspension of many care services, and families had to choose between adhering to lockdown measures or caring for vulnerable relatives. This study revisits the Informal Care Model by explicitly incorporating the role of changing circumstances during the pandemic to understand care provision by adult children. Using nationally representative data from the UK, statistical analyses reveal that the usual suspects, such as women, were more likely to undertake additional care tasks. However, they also highlight new enabling factors for care provision that have arisen from the pandemic, such as the ability to work from home.
{"title":"Changing care provision in times of changing contexts: the experience of adult children during the pandemic in the UK","authors":"Edward Pomeroy, Francesca Fiori","doi":"10.1332/23978821y2024d000000040","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000040","url":null,"abstract":"The COVID-19 pandemic imposed the suspension of many care services, and families had to choose between adhering to lockdown measures or caring for vulnerable relatives. This study revisits the Informal Care Model by explicitly incorporating the role of changing circumstances during the pandemic to understand care provision by adult children. Using nationally representative data from the UK, statistical analyses reveal that the usual suspects, such as women, were more likely to undertake additional care tasks. However, they also highlight new enabling factors for care provision that have arisen from the pandemic, such as the ability to work from home.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2024-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141129906","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-05-01DOI: 10.1332/239788221X16819328227036
Sally Stapley, Claire Pentecost, Rachel Collins, Catherine Quinn, Eleanor Dawson, Jeanette M Thom, Linda Clare
Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers' accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and 'caring beyond capacity' due to unmet needs within the caring role, therein highlighting the limitations of building individual resilience only. Timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout.
{"title":"'Caring beyond capacity' during the coronavirus pandemic: resilience and family carers of people with dementia from the IDEAL cohort.","authors":"Sally Stapley, Claire Pentecost, Rachel Collins, Catherine Quinn, Eleanor Dawson, Jeanette M Thom, Linda Clare","doi":"10.1332/239788221X16819328227036","DOIUrl":"10.1332/239788221X16819328227036","url":null,"abstract":"<p><p>Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers' accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and 'caring beyond capacity' due to unmet needs within the caring role, therein highlighting the limitations of building individual resilience only. Timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout.</p>","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7615928/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46064340","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-25DOI: 10.1332/23978821y2024d000000038
Karen Christensen, Jan Andersen, O. Askheim, Mariya Bikova
The conceptualisation of a caring democracy provides strong arguments against neoliberal welfare states. However, there is currently a knowledge gap regarding how non-market-oriented welfare states are striving to reach their intention of a caring democracy. Based on a qualitative study, this article uses the case of Norwegian long-term care services for older people to provide insight into how this intention is practised in everyday care service settings when the current development is about active citizenship. The findings show ethical dilemmas for care managers and healthcare professionals, positioned on the front line of combining the creation of active citizens with the democratisation of services.
{"title":"Towards active citizenship and caring democracy? User participation in Norwegian long-term care","authors":"Karen Christensen, Jan Andersen, O. Askheim, Mariya Bikova","doi":"10.1332/23978821y2024d000000038","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000038","url":null,"abstract":"The conceptualisation of a caring democracy provides strong arguments against neoliberal welfare states. However, there is currently a knowledge gap regarding how non-market-oriented welfare states are striving to reach their intention of a caring democracy. Based on a qualitative study, this article uses the case of Norwegian long-term care services for older people to provide insight into how this intention is practised in everyday care service settings when the current development is about active citizenship. The findings show ethical dilemmas for care managers and healthcare professionals, positioned on the front line of combining the creation of active citizens with the democratisation of services.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2024-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140657117","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-25DOI: 10.1332/23978821y2024d000000035
Heli Tiirola, Veli-Matti Poutanen, P. Auvinen, Kristiina Tyynelä-Korhonen, Riitta Vornanen, Liisa Pylkkänen
We examine the unmet needs for information and support of cancer patients and carers. A questionnaire study was performed among patients (n = 135) and carers (n = 73) at Kuopio University Hospital, Finland. Data are analysed using SPSS 27 by t-test, cross-tabulation and cluster and variance analyses. Patients and carers received less support than information. Older and less-educated individuals and males had more unmet needs. Carers received less information and support than patients. Carers expressed unmet needs particularly when they had limited opportunities to discuss with healthcare professionals. Individual needs of patients and carers should be addressed throughout the cancer care pathway.
我们研究了癌症患者和照护者尚未得到满足的信息和支持需求。我们对芬兰库奥皮奥大学医院的患者（135 人）和照护者（73 人）进行了问卷调查。数据使用 SPSS 27 通过 t 检验、交叉表、聚类分析和方差分析进行分析。患者和照护者获得的支持少于信息。年龄较大、教育程度较低的患者和男性未满足的需求较多。照护者获得的信息和支持少于患者。照护者在与医护人员进行讨论的机会有限的情况下，其需求尤其得不到满足。患者和照护者的个人需求应在整个癌症护理过程中得到满足。
{"title":"Unmet needs for information and support of cancer patients and carers: a structured questionnaire study","authors":"Heli Tiirola, Veli-Matti Poutanen, P. Auvinen, Kristiina Tyynelä-Korhonen, Riitta Vornanen, Liisa Pylkkänen","doi":"10.1332/23978821y2024d000000035","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000035","url":null,"abstract":"We examine the unmet needs for information and support of cancer patients and carers. A questionnaire study was performed among patients (n = 135) and carers (n = 73) at Kuopio University Hospital, Finland. Data are analysed using SPSS 27 by t-test, cross-tabulation and cluster and variance analyses. Patients and carers received less support than information. Older and less-educated individuals and males had more unmet needs. Carers received less information and support than patients. Carers expressed unmet needs particularly when they had limited opportunities to discuss with healthcare professionals. Individual needs of patients and carers should be addressed throughout the cancer care pathway.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2024-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140653516","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-22DOI: 10.1332/23978821y2024d000000036
B. Deusdad, Marija Djurdjevic, Karen A.E. Hall
Although the European Commission has promoted the use of co-creation methodology for social services, this innovative practice has not yet been uniformly introduced in Europe. The SoCaTel platform was released with open access to promote and implement a digital co-creation platform involving all stakeholders, especially older adults and their carers, in long-term care. Using an innovative methodology applied in four European sites (Spain, Finland, Ireland and Hungary), in this article, we investigate the acceptance of this technology among older adults, its effectivity as a virtual support tool in the context of COVID-19 and its potential for developing digital repertoires.
{"title":"Participation of older adults in the digital co-creation of long-term care services with the SoCaTel platform","authors":"B. Deusdad, Marija Djurdjevic, Karen A.E. Hall","doi":"10.1332/23978821y2024d000000036","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000036","url":null,"abstract":"Although the European Commission has promoted the use of co-creation methodology for social services, this innovative practice has not yet been uniformly introduced in Europe. The SoCaTel platform was released with open access to promote and implement a digital co-creation platform involving all stakeholders, especially older adults and their carers, in long-term care. Using an innovative methodology applied in four European sites (Spain, Finland, Ireland and Hungary), in this article, we investigate the acceptance of this technology among older adults, its effectivity as a virtual support tool in the context of COVID-19 and its potential for developing digital repertoires.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2024-04-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140673595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-17DOI: 10.1332/23978821y2024d000000033
Poland Lai
This article seeks to advance our understanding of the care experiences of people living with the effects of disability, ageing and other social locations during the COVID-19 pandemic. Drawing on key informant interviews (n = 8) and results from an anonymous online survey (n = 36), this article provides evidence of how people with disabilities and older adults in Ontario, Canada, experienced disruptions in different types of care in their multiple caring relationships. The results describe why they were not able to access the care that they needed during a period when activities began to resume and how their caring relationships had been disrupted. The impact of disruption on people with disabilities, older adults and others in their care relationships was exacerbated by barriers rooted in ableism, ageism and other forms of exclusion. This study demonstrates the importance of addressing unmet care needs by moving beyond the dichotomy of ‘carer’ and ‘cared for’.
{"title":"Disruptions in care among disabled people and older adults during the COVID-19 pandemic: evidence from Ontario, Canada","authors":"Poland Lai","doi":"10.1332/23978821y2024d000000033","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000033","url":null,"abstract":"This article seeks to advance our understanding of the care experiences of people living with the effects of disability, ageing and other social locations during the COVID-19 pandemic. Drawing on key informant interviews (n = 8) and results from an anonymous online survey (n = 36), this article provides evidence of how people with disabilities and older adults in Ontario, Canada, experienced disruptions in different types of care in their multiple caring relationships. The results describe why they were not able to access the care that they needed during a period when activities began to resume and how their caring relationships had been disrupted. The impact of disruption on people with disabilities, older adults and others in their care relationships was exacerbated by barriers rooted in ableism, ageism and other forms of exclusion. This study demonstrates the importance of addressing unmet care needs by moving beyond the dichotomy of ‘carer’ and ‘cared for’.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2024-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140693978","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-17DOI: 10.1332/23978821y2024d000000034
Obert Tawodzera, Jon Glasby
The UK’s adult social care system faces severe challenges, including funding shortages, unmet needs and an overburdened workforce. Resultantly, there is a push for high-quality evidence in service enhancement and resource allocation. Using evidence to improve services is essential, but questions arise about best practices for identifying ‘what works’, integrating evidence into everyday practice and addressing resource constraints. Findings from a 2021 UK survey and consultative forums with stakeholders across adult social care underscore concerns about implementing evidence-based practices and highlight the need for increased collaboration to expand the evidence base. These findings shed light on stakeholders’ perspectives regarding factors shaping adult social care practices, opportunities for evidence to play a greater role, definitions of valid evidence and priorities for change. Improved communication and coordination within the sector are crucial to enhance evidence-based decision making, focus limited resources on proven strategies and shape a more effective, evidence-informed adult social care system.
{"title":"Who decides ‘what works’, and how does it get implemented? Insights from the UK’s new centre for implementing evidence in adult social care","authors":"Obert Tawodzera, Jon Glasby","doi":"10.1332/23978821y2024d000000034","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000034","url":null,"abstract":"The UK’s adult social care system faces severe challenges, including funding shortages, unmet needs and an overburdened workforce. Resultantly, there is a push for high-quality evidence in service enhancement and resource allocation. Using evidence to improve services is essential, but questions arise about best practices for identifying ‘what works’, integrating evidence into everyday practice and addressing resource constraints. Findings from a 2021 UK survey and consultative forums with stakeholders across adult social care underscore concerns about implementing evidence-based practices and highlight the need for increased collaboration to expand the evidence base. These findings shed light on stakeholders’ perspectives regarding factors shaping adult social care practices, opportunities for evidence to play a greater role, definitions of valid evidence and priorities for change. Improved communication and coordination within the sector are crucial to enhance evidence-based decision making, focus limited resources on proven strategies and shape a more effective, evidence-informed adult social care system.","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2024-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140694280","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-17DOI: 10.1332/23978821y2024d000000037
Andrea Barbieri, E. Rossero
{"title":"Training is caring: promoting youth mental health through peer-led viticultural practice","authors":"Andrea Barbieri, E. Rossero","doi":"10.1332/23978821y2024d000000037","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000037","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2024-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140693177","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-15DOI: 10.1332/23978821y2024d000000032
Sayendri Panchadhyayi
{"title":"Care and Support Rights after Neoliberalism: Balancing Competing Claims through Policy and Law by Yvette Maker (2022)","authors":"Sayendri Panchadhyayi","doi":"10.1332/23978821y2024d000000032","DOIUrl":"https://doi.org/10.1332/23978821y2024d000000032","url":null,"abstract":"","PeriodicalId":43660,"journal":{"name":"International Journal of Care and Caring","volume":null,"pages":null},"PeriodicalIF":1.4,"publicationDate":"2024-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140703307","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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