Pub Date : 2024-11-14eCollection Date: 2024-01-01DOI: 10.1080/20473869.2024.2362007
Ghaleb H Alnahdi, Arwa Alwadei, Susanne Schwab
This comprehensive study delves into the family quality of life (FQOL) of caregivers in Saudi Arabia, focusing on those caring for individuals with autism, intellectual disabilities, and other disabilities and those without any disabilities. Employing the Arabic version of the Beach Center FQOL Scale, the research encompasses a diverse group of 1065 family members. It reveals that caregivers of individuals without disabilities experience notably higher FQOL, especially in domains such as family interaction, parenting, emotional, and physical/material well-being. The study also identifies unique FQOL challenges encountered by caregivers of individuals with autism. These insights underscore the necessity for specific support mechanisms catering to the distinct needs of caregivers, particularly those handling autism-related challenges, highlighting a critical area for targeted interventions and policy formulation.
{"title":"Family quality of life of caregivers of individuals with autism, with other disabilities, and without disabilities: the case of Saudi Arabia.","authors":"Ghaleb H Alnahdi, Arwa Alwadei, Susanne Schwab","doi":"10.1080/20473869.2024.2362007","DOIUrl":"10.1080/20473869.2024.2362007","url":null,"abstract":"<p><p>This comprehensive study delves into the family quality of life (FQOL) of caregivers in Saudi Arabia, focusing on those caring for individuals with autism, intellectual disabilities, and other disabilities and those without any disabilities. Employing the Arabic version of the Beach Center FQOL Scale, the research encompasses a diverse group of 1065 family members. It reveals that caregivers of individuals without disabilities experience notably higher FQOL, especially in domains such as family interaction, parenting, emotional, and physical/material well-being. The study also identifies unique FQOL challenges encountered by caregivers of individuals with autism. These insights underscore the necessity for specific support mechanisms catering to the distinct needs of caregivers, particularly those handling autism-related challenges, highlighting a critical area for targeted interventions and policy formulation.</p>","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"70 6","pages":"1010-1021"},"PeriodicalIF":1.5,"publicationDate":"2024-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11571730/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142677257","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-14eCollection Date: 2024-01-01DOI: 10.1080/20473869.2024.2378241
Nadera Alborno, Ghina Kalaji
This paper explored the transition of a disability inclusive employment programme in a private landscaping company into a standalone social enterprise ENABLE, offering horticultural training and sustainable jobs for individuals with intellectual and developmental disabilities (IDD). The research question that guided this study is: How did ENABLE evolve from a sheltered employment programme into a social enterprise that provides sustainable employment for persons with IDD? And what is the prevailing influence on the employees and the society at large? Through qualitative descriptive analysis, we explored ENABLE's development, operations, and community influence. Multiple data collection methods were utilized including semi-structured interviews with key employers, observation of employees with IDD during their working hours, and analysis of related documents. By critically analysing this journey, this study contributes to the literature on entrepreneurial inclusive employment for individuals with IDD, addressing challenges faced by organisations that support disability employment in the UAE and beyond.
{"title":"Social entrepreneurship - inclusive disability employment in the UAE.","authors":"Nadera Alborno, Ghina Kalaji","doi":"10.1080/20473869.2024.2378241","DOIUrl":"10.1080/20473869.2024.2378241","url":null,"abstract":"<p><p>This paper explored the transition of a disability inclusive employment programme in a private landscaping company into a standalone social enterprise ENABLE, offering horticultural training and sustainable jobs for individuals with intellectual and developmental disabilities (IDD). The research question that guided this study is: How did ENABLE evolve from a sheltered employment programme into a social enterprise that provides sustainable employment for persons with IDD? And what is the prevailing influence on the employees and the society at large? Through qualitative descriptive analysis, we explored ENABLE's development, operations, and community influence. Multiple data collection methods were utilized including semi-structured interviews with key employers, observation of employees with IDD during their working hours, and analysis of related documents. By critically analysing this journey, this study contributes to the literature on entrepreneurial inclusive employment for individuals with IDD, addressing challenges faced by organisations that support disability employment in the UAE and beyond.</p>","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"70 6","pages":"1044-1055"},"PeriodicalIF":1.5,"publicationDate":"2024-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11571729/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142677261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-14eCollection Date: 2024-01-01DOI: 10.1080/20473869.2024.2397223
Eman Gaad, Nadera Alborno
{"title":"Social inclusion for individuals with developmental disabilities in the Middle East.","authors":"Eman Gaad, Nadera Alborno","doi":"10.1080/20473869.2024.2397223","DOIUrl":"10.1080/20473869.2024.2397223","url":null,"abstract":"","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"70 6","pages":"973-975"},"PeriodicalIF":1.5,"publicationDate":"2024-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11571747/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142677262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-25eCollection Date: 2025-01-01DOI: 10.1080/20473869.2024.2418170
Tendral Rajagopal, Velayutham Chandrashekaran
The paper advocates for the necessity of inclusive media literacy education (MLE) and equal opportunities for young adults with autism spectrum disorder (ASD), which is in alignment with the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) 2008 and the Sustainable Development Goal 4 Quality Education (SDG, 2030). It underscores the commitment to 'leaving no one behind', a core tenet of the SDGs, by focusing on developing digital empathy and inclusive MLE for young adults with ASD in the digital age. The study aims to empower young adults with ASD in Chennai, India, with media literacy and digital empathy through a one-day hands-on workshop and to assess the impact of this educational intervention on their understanding and application of media literacy in their daily lives. The paper employs a mixed-method approach that integrates experimental-qualitative research and the data is analysed using 'qualitative reflexive' thematic analysis. The study's findings demonstrate significant improvements in the participants' abilities to discern fake news, learn digital empathy and cybersecurity by engaging responsibly with digital media, and include MLE in their academic curriculum. The paper suggests that such educational interventions can enhance digital empathy and media literacy among young adults with ASD.
{"title":"\"Leaving no one behind\": digital empathy and inclusive media literacy education for young adults on the autism spectrum.","authors":"Tendral Rajagopal, Velayutham Chandrashekaran","doi":"10.1080/20473869.2024.2418170","DOIUrl":"https://doi.org/10.1080/20473869.2024.2418170","url":null,"abstract":"<p><p>The paper advocates for the necessity of inclusive media literacy education (MLE) and equal opportunities for young adults with autism spectrum disorder (ASD), which is in alignment with the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) 2008 and the Sustainable Development Goal 4 Quality Education (SDG, 2030). It underscores the commitment to 'leaving no one behind', a core tenet of the SDGs, by focusing on developing digital empathy and inclusive MLE for young adults with ASD in the digital age. The study aims to empower young adults with ASD in Chennai, India, with media literacy and digital empathy through a one-day hands-on workshop and to assess the impact of this educational intervention on their understanding and application of media literacy in their daily lives. The paper employs a mixed-method approach that integrates experimental-qualitative research and the data is analysed using 'qualitative reflexive' thematic analysis. The study's findings demonstrate significant improvements in the participants' abilities to discern fake news, learn digital empathy and cybersecurity by engaging responsibly with digital media, and include MLE in their academic curriculum. The paper suggests that such educational interventions can enhance digital empathy and media literacy among young adults with ASD.</p>","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"71 1","pages":"190-202"},"PeriodicalIF":1.5,"publicationDate":"2024-10-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11774148/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143068521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-09eCollection Date: 2025-01-01DOI: 10.1080/20473869.2024.2411511
Linda K M Veerman, Stian Orm, Krister W Fjermestad, Torun M Vatne, Yngvild B Haukeland, Paula S Sterkenburg, Agnes M Willemen
Objectives: The Negative Adjustment Scale (NAS) is used to measure adjustment to having a sibling with a disability. However, several adaptations to the scale have been made, and implementation varies across studies and countries. This study examined the psychometric properties across different versions and provides directions for future use and development of the NAS.
Methods: The sample comprised 400 siblings aged 6-16 years old from Norway, the Netherlands and Belgium. Measurement invariance was assessed across age groups (8-11 vs. 12-16 years) and translations (Norwegian vs. Dutch), using a multi-group confirmatory factor analysis. The psychometric properties of the parent version were assessed among 102 parents from the Dutch sample.
Results: The internal consistency of the NAS was acceptable to good in all versions. A single factor model held across age groups and translations, although higher order invariance was not supported. The child and parent report versions of the NAS did not significantly correlate.
Conclusions: The NAS generally has sufficient psychometric properties. However, these vary across age groups, translations, and informants, causing the NAS to be less appropriate for comparisons between groups. Further adaptation of the NAS or developing a new scale for siblings of children with disabilities, is advised.
{"title":"Measuring adjustment of siblings of children with disabilities: psychometric properties across translations, age groups and informants.","authors":"Linda K M Veerman, Stian Orm, Krister W Fjermestad, Torun M Vatne, Yngvild B Haukeland, Paula S Sterkenburg, Agnes M Willemen","doi":"10.1080/20473869.2024.2411511","DOIUrl":"https://doi.org/10.1080/20473869.2024.2411511","url":null,"abstract":"<p><strong>Objectives: </strong>The Negative Adjustment Scale (NAS) is used to measure adjustment to having a sibling with a disability. However, several adaptations to the scale have been made, and implementation varies across studies and countries. This study examined the psychometric properties across different versions and provides directions for future use and development of the NAS.</p><p><strong>Methods: </strong>The sample comprised 400 siblings aged 6-16 years old from Norway, the Netherlands and Belgium. Measurement invariance was assessed across age groups (8-11 vs. 12-16 years) and translations (Norwegian vs. Dutch), using a multi-group confirmatory factor analysis. The psychometric properties of the parent version were assessed among 102 parents from the Dutch sample.</p><p><strong>Results: </strong>The internal consistency of the NAS was acceptable to good in all versions. A single factor model held across age groups and translations, although higher order invariance was not supported. The child and parent report versions of the NAS did not significantly correlate.</p><p><strong>Conclusions: </strong>The NAS generally has sufficient psychometric properties. However, these vary across age groups, translations, and informants, causing the NAS to be less appropriate for comparisons between groups. Further adaptation of the NAS or developing a new scale for siblings of children with disabilities, is advised.</p>","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"71 1","pages":"4-17"},"PeriodicalIF":1.5,"publicationDate":"2024-10-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11774191/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143068613","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-08eCollection Date: 2024-01-01DOI: 10.1080/20473869.2024.2387403
Berkan Şahin
{"title":"Evaluation of carotid intima media thickness as an early marker of atherosclerosis in children and adolescents with autism spectrum disorder: a case-control study.","authors":"Berkan Şahin","doi":"10.1080/20473869.2024.2387403","DOIUrl":"10.1080/20473869.2024.2387403","url":null,"abstract":"","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"70 7","pages":"1126"},"PeriodicalIF":1.5,"publicationDate":"2024-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11660379/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142878262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-12DOI: 10.1080/20473869.2024.2401684
Gülay Manav, Gonca Karayağız Muslu, Ayşegül Göktaş, Recep Kara
This study was conducted to examine the relationship between middle school children’s attitudes toward their disabled peers and their empathy skills.This study involved 353 students, who were aged ...
本研究旨在探讨初中生对残疾同伴的态度与他们的移情能力之间的关系。
{"title":"Examining the relationship between middle school children’s attitudes toward their disabled peers and empathy skills","authors":"Gülay Manav, Gonca Karayağız Muslu, Ayşegül Göktaş, Recep Kara","doi":"10.1080/20473869.2024.2401684","DOIUrl":"https://doi.org/10.1080/20473869.2024.2401684","url":null,"abstract":"This study was conducted to examine the relationship between middle school children’s attitudes toward their disabled peers and their empathy skills.This study involved 353 students, who were aged ...","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"21 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-09-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142225543","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-12DOI: 10.1080/20473869.2024.2402124
Zhigao Liang, David Lee, Juanjuan Zuo, Shuang Liang
A literature review was conducted to examine the existing studies on visual schedules to increase academic-related on-task behaviors for individuals with autism. Systematic searches of electronic d...
{"title":"The use of visual schedules to increase academic-related on-task behaviors of individuals with autism: a literature review","authors":"Zhigao Liang, David Lee, Juanjuan Zuo, Shuang Liang","doi":"10.1080/20473869.2024.2402124","DOIUrl":"https://doi.org/10.1080/20473869.2024.2402124","url":null,"abstract":"A literature review was conducted to examine the existing studies on visual schedules to increase academic-related on-task behaviors for individuals with autism. Systematic searches of electronic d...","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"18 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-09-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142249039","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-12DOI: 10.1080/20473869.2024.2401683
Qianqian Wang, Minjie Ma, Ke Zhao, Huizhong He, Tingzhao Wang
Mastering Chinese handwriting is a fundamental skill, yet it poses a challenging task for children with intellectual disability (ID). Socioeconomic status (SES) and home literacy environment (HLE) ...
{"title":"Home literacy environment mediated socioeconomic status’ impact on handwriting skill of children with intellectual disabilities","authors":"Qianqian Wang, Minjie Ma, Ke Zhao, Huizhong He, Tingzhao Wang","doi":"10.1080/20473869.2024.2401683","DOIUrl":"https://doi.org/10.1080/20473869.2024.2401683","url":null,"abstract":"Mastering Chinese handwriting is a fundamental skill, yet it poses a challenging task for children with intellectual disability (ID). Socioeconomic status (SES) and home literacy environment (HLE) ...","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"61 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-09-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142225540","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}