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Journal of Mental Health Research in Intellectual Disabilities最新文献

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Applying the Technology Acceptance Model to Digital Mental Health Interventions: A Qualitative Exploration with Adults with Intellectual Disabilities 将技术接受模型应用于数字心理健康干预:对智力残疾成人的定性探索
IF 2.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2020-11-13 DOI: 10.1080/19315864.2021.1929597
Leen Vereenooghe, Felix Trussat, Katja Baucke
ABSTRACT Introduction : Digital mental health interventions are on the rise; yet people with intellectual disabilities are not generally seen as their potential users. This study aims to explore the accessability of two mainstream online mood-management programmes. Methods : Using a qualitative study design, 12 adults with intellectual disabilities were interviewed while accessing moodgym and iFightDepression®. Thematic analysis was used to explore the programs’ accessibility according to the technology acceptance model. Results : The programs’ ease-of-use was considered in terms of visual appeal, support needs, and essential skills for independent program use. Perceived usefulness concerned participants’ understanding of the purpose and expected personal benefits associated with the interventions. Finally, intention to use and motivation to interact with the interventions were key aspects of participants’ attititudes toward them. Conclusion : Improving intervention accessibility is a first important step to ensure people with intellectual disabilities can understand the purpose and content of digital mental health interventions.
数字心理健康干预正在兴起;然而,智障人士通常不被视为它们的潜在用户。本研究旨在探讨两种主流在线情绪管理课程的可及性。方法:采用定性研究设计,对12名智力障碍成人进行访谈,同时使用moodgym和iFightDepression®软件。采用主题分析法,根据技术接受模型对项目的可达性进行探讨。结果:程序的易用性是根据视觉吸引力、支持需求和独立程序使用的基本技能来考虑的。感知有用性涉及参与者对干预目的和预期个人利益的理解。最后,使用干预措施的意愿和与干预措施互动的动机是参与者对干预措施态度的关键方面。结论:提高干预的可及性是确保智障人士能够理解数字心理健康干预的目的和内容的重要一步。
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引用次数: 6
‘How to cope with stress?’ Determinants of coping strategies used by parents raising children with intellectual disabilities, other developmental disorders and typically developing children. A cross-sectional study from Poland “如何应对压力?”“父母养育有智力障碍、其他发育障碍和正常发育儿童的应对策略的决定因素。”一项来自波兰的横断面研究
IF 2.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2020-11-10 DOI: 10.1080/19315864.2020.1832166
A. Kurowská, M. Kózka, A. Majda
ABSTRACT Introduction: Constructive coping strategies play an important role during childcare processes. We examined the determinants of coping strategies used by parents raising children with intellectual disabilities or other developmental disorders and by parents with typically developing children. Methods: The cross-sectional study was carried out in Cracow. The participants in the survey were 507 caregivers. The research used the Mini-COPE Inventory for Measurement–Coping with Stress and the General Self-Efficacy Scale. Results: Parents of disabled children and parents of children without disabilities used the strategy of active coping most often and the strategy of substance use the least. Sociodemographic variables such as age, place of residence, education, and sociodemographic situation determined the type of strategy for dealing with stress. The statistical analysis showed the relationship between parents’ self-efficacy and type of coping strategy. Conclusion: There is a need to develop individualized family psychological support programs to stimulate caregivers’ constructive coping strategies.
摘要简介:建设性应对策略在儿童保育过程中发挥着重要作用。我们研究了智力残疾或其他发育障碍儿童的父母和正常发育儿童的父母所使用的应对策略的决定因素。方法:在克拉科夫进行横断面研究。参与调查的是507名护理人员。本研究采用Mini-COPE压力应对量表和一般自我效能量表。结果:残疾儿童家长和非残疾儿童家长使用积极应对策略的频率最高,使用物质使用策略的频率最低。诸如年龄、居住地、教育程度和社会人口状况等社会人口变量决定了应对压力的策略类型。统计分析表明,父母的自我效能感与应对策略类型之间存在相关关系。结论:有必要开发个性化的家庭心理支持项目,以激发照顾者的建设性应对策略。
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引用次数: 12
Adults with Intellectual and Developmental Disabilities Presenting to a Psychiatric Emergency Department: A Descriptive Analysis and Predictors of Admission 精神科急诊科的智力和发育障碍成人:一项描述性分析和入院预测因素
IF 2.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2020-10-01 DOI: 10.1080/19315864.2020.1822963
Natasha A. Fernandes, Amanda Sawyer, J. Zaheer, Y. Lunsky
ABSTRACT Introduction: This study presents demographic and clinical profiles of adults with intellectual and developmental disabilities seen at a psychiatric emergency department (ED). Predictors of admission were also identified. Methods: A retrospective chart review conducted from Oct 2016 to Jan 2017. Results: A total of 73 patients representing 105 visits were identified with suicidality or self-harm being the most frequent presentation. Information from third party sources (collateral) was recorded in the hospital chart 43% of the time. Thirty-six percent of the 105 visits resulted in hospitalization. Patients who were admitted were more likely to have collateral obtained (RR = 2.0, p <.01), restraints used (RR = 2.5, p < .001), and friend/family (RR = 2.9, p < .01) or the police (RR = 2.3, p = .03) present. Conclusion: Study findings suggest that adults with intellectual and developmental disabilities commonly present to the specialized psychiatric emergency department setting. Many of these patients are inadequately supported and need stronger connections to community-based resources. Collateral information should more frequently be obtained and disability considerations could be better incorporated into management plans.
摘要:本研究介绍了在精神科急诊科(ED)就诊的智力和发育障碍成人的人口统计学和临床概况。还确定了入院的预测因素。方法:2016年10月至2017年1月进行回顾性图表复习。结果:共有73名患者代表105次就诊被确定为自杀或自残是最常见的表现。来自第三方来源(附属品)的信息记录在医院图表中的比例为43%。在105次访问中,有36%的人住院。入院的患者更有可能获得侧枝(RR = 2.0, p < 0.01),使用约束(RR = 2.5, p < 0.001),以及朋友/家人(RR = 2.9, p < 0.01)或警察(RR = 2.3, p = 0.03)在场。结论:研究结果表明,智力和发育障碍的成年人通常出现在专门的精神科急诊科。其中许多患者得不到充分支持,需要加强与社区资源的联系。应更经常地获得附带资料,残疾方面的考虑可以更好地纳入管理计划。
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引用次数: 3
Raising a Child with Autism Spectrum Disorder: A Systematic Review of the Literature Investigating Parenting Stress 养育自闭症谱系障碍儿童:调查父母压力的文献系统综述
IF 2.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2020-10-01 DOI: 10.1080/19315864.2020.1822962
V. Enea, D. Rusu
ABSTRACT Introduction: This systematic literature review aims to (a) identify how the parenting stress was used in the empirical studies as an independent, outcome, moderator and mediator variable, (b) identify the predictors of parenting stress in parents of children with ASD, (c) identify how parenting stress relates with mental health, and (d) make suggestions for future research. Methods: A systematic search for peer-reviewed articles on parenting stress resulted in 45 studies meeting specific inclusion criteria. Results: Child’s problem behaviors and sensory problems are the strongest predictors for parenting stress that persisted over a two-year period. Single young mothers with maladaptive coping strategies who have an ASD child with problem behaviors and sensory difficulties are most at risk for high levels of parenting stress and poor mental health. Conclusion: Parenting stress negatively impacted the parental mental health-related quality of life. Directions for future research include assessing socio-cultural factors related to parenting stress across different cultures.
摘要引言:本系统文献综述旨在(a)确定父母教养压力在实证研究中如何作为独立变量、结果变量、调节变量和中介变量,(b)确定自闭症儿童父母教养压力的预测因素,(c)确定父母教养压力与心理健康的关系,以及(d)为未来的研究提出建议。方法:系统检索同行评议的关于养育压力的文章,得到45项符合特定纳入标准的研究。结果:孩子的问题行为和感官问题是持续两年的养育压力的最强预测因素。单身的年轻母亲如果有一个有问题行为和感觉困难的ASD孩子,她们的应对策略不适应的风险最大,她们的养育压力很大,心理健康状况也很差。结论:父母压力对父母心理健康相关生活质量有负向影响。未来的研究方向包括评估不同文化背景下与养育压力相关的社会文化因素。
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引用次数: 23
Do the severity of Intellectual Disability and /or the presence of neurodevelopmental disorders influence the onset of dementia in people with Down syndrome? 智力残疾的严重程度和/或神经发育障碍的存在是否影响唐氏综合征患者痴呆的发生?
IF 2.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2020-10-01 DOI: 10.1080/19315864.2020.1822964
M. Anderson, Katy Oak, R. Goodey, Karen Dodd, R. Shankar
ABSTRACT Introduction Having a diagnosis of Down syndrome (DS) is associated with intellectual disability (ID), pervasive developmental disorders and Alzheimer’s dementia (AD). The association between these conditions has not been well evaluated. This paper looks to examine the current evidence pertaining to the relationship between dementia in people with DS and severity of ID and the presence of pervasive developmental disorders. Methods A scoping review using PRISMA guidance was undertaken. Medline, Cochrane database, NHS evidence, Trial registers and Open Grey were searched in December 2018 and an updated search was completed in July 2020. Three search strategies were used to retrieve articles relating to DS, dementia, pervasive developmental disorders (including autism, autism spectrum disorder (ASD) and attention-deficit hyperactivity disorder (ADHD)) and severity of ID. Studies were included if they met the pre-defined inclusion criteria of investigating an association between autism/ASD, ADHD, or severity of ID and the development of dementia in people with DS. Studies were excluded if they did not include primary data, if the population included non-Down causes of ID, or if no specific outcome measure related to comorbid autism/ASD, ADHD, or severity of ID and dementia in people with a diagnosis of DS were reported. There were no exclusions related to study design. Papers were assessed for quality using the Mixed Methods Appraisal Tool (MMAT). Results: The search identified 15 papers, publishing results from 12 studies, relating to severity of ID, DS and dementia. No papers were identified relating to pervasive developmental disorders, DS and dementia. There is limited evidence on how severity of ID impacts on the presentation, diagnosis, management or prognosis of dementia in people with DS. However, no evidence was found on comorbid pervasive developmental disorders, DS and dementia. Conclusion: This paper has identified multiple areas for future research. There is an urgent need for longitudinal studies into the presentation, development and progression of dementia in people with DS ensuring the severity of ID and comorbid pervasive developmental conditions are captured regularly to understand their influence on the dementia etiology and outcome.
唐氏综合征(DS)诊断与智力残疾(ID)、广泛性发育障碍和阿尔茨海默氏痴呆(AD)相关。这些情况之间的联系还没有得到很好的评价。本文旨在研究目前有关退行性痴呆与ID严重程度和广泛性发育障碍之间关系的证据。方法采用PRISMA指南进行范围综述。2018年12月检索了Medline、Cochrane数据库、NHS证据、试验登记册和Open Grey,并于2020年7月完成了更新的检索。使用三种搜索策略检索与退行性障碍、痴呆、广泛性发育障碍(包括自闭症、自闭症谱系障碍(ASD)和注意力缺陷多动障碍(ADHD))和ID严重程度相关的文章。如果研究符合预定义的纳入标准,即调查自闭症/ASD、ADHD或ID严重程度与DS患者痴呆发展之间的关系,则纳入研究。如果研究不包括原始数据,如果人群中包括非唐氏原因的ID,或者没有报道与诊断为DS的患者的共病自闭症/ASD, ADHD或ID和痴呆严重程度相关的特定结果测量,则排除研究。没有与研究设计相关的排除。使用混合方法评估工具(MMAT)评估论文的质量。结果:搜索确定了15篇论文,发表了12项研究的结果,涉及ID, DS和痴呆的严重程度。未发现与广泛性发育障碍、退行性痴呆相关的论文。关于ID严重程度如何影响DS患者痴呆的表现、诊断、管理或预后的证据有限。然而,没有证据表明共病的广泛性发育障碍,退行性痴呆。结论:本文确定了未来研究的多个领域。迫切需要对退行性痴呆患者痴呆的表现、发展和进展进行纵向研究,确保定期捕获ID的严重程度和共病的普遍发育状况,以了解它们对痴呆病因和结果的影响。
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引用次数: 0
Socialization in Adults with Intellectual Disability: The Effects of Gender, Mental Illness, Setting Type, and Level of Intellectual Disability 智力残疾成人的社会化:性别、精神疾病、环境类型和智力残疾水平的影响
IF 2.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2020-09-20 DOI: 10.1080/19315864.2020.1815914
M. Djordjević, N. Glumbić, H. Memišević
ABSTRACT Introduction The goal of this study was to examine socialization in adults with intellectual disability in relation to gender, level of intellectual disability, mental illness, and setting type. Methods The sample consisted of 120 participants (60 males and 60 females), aged between 20 and 56 years, divided into two groups: 1. participants with intellectual disability without the diagnosis of mental illness (ID only) and 2. participants with dual diagnosis (intellectual disability and mental illness). Socialization subscale from the Vineland Adaptive Behavior Scale was used for the assessment of socialization. Results Level of intellectual disability and mental illness had significant effects on socialization scores. In addition to this, interaction effect of gender and level of intellectual disability had a significant effect on socialization. Setting type did not have a significant effect on socialization. Conclusion These results can be very useful in identifying participants with intellectual disability who might need additional individualized support programs in the area of socialization.
摘要:本研究的目的是研究智力残疾成人的社会化与性别、智力残疾水平、精神疾病和环境类型的关系。方法120名年龄在20 ~ 56岁之间的男性60名,女性60名。无精神疾病诊断的智力残疾参与者(仅限ID)和2。双重诊断(智力残疾和精神疾病)的参与者。采用Vineland适应行为量表的社会化子量表进行社会化评估。结果智力障碍和精神疾病水平对社会化得分有显著影响。此外,性别和智力残疾水平的交互作用对社会化有显著影响。环境类型对社会化没有显著影响。结论这些结果对于识别智力残疾的参与者是非常有用的,他们可能需要在社会化领域额外的个性化支持项目。
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引用次数: 4
Effects of MBSR Parent Intervention on Internalizing Problems in Children: ASD Status as a Moderator 正念减压父母干预对儿童内化问题的影响:ASD状态的调节作用
IF 2.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2020-09-10 DOI: 10.1080/19315864.2020.1815913
Hadley A. McGregor, Catherine M. Sanner, Cameron L. Neece
ABSTRACT Introduction Children with developmental delays (DD), particularly autism spectrum disorders (ASD), are at high risk for increased levels of behavior problems and developing internalizing problems. While previous literature has highlighted the impact of parental stress on the development of behavioral problems broadly in children with DD, research on the relation between parenting stress and internalizing problems in children with ASD is scarce. Growing evidence has supported Mindfulness-Based Stress Reduction (MBSR) as an effective intervention for reducing stress among parents of children with DD. These reductions in parent stress are also associated with subsequent reductions in their children’s behavior problem; however, to our knowledge, the effects of MBSR and reductions in parent stress on internalizing problems in children with DD have not been examined. Method The current study utilized data from Mindful Awareness for Parenting Stress (MAPS) which consisted of families of 80 preschool children with developmental delays (DD) whose parents reported high levels of stress. Specifically, we investigated whether decreases in parenting stress as a result of engagement in a MBSR intervention would lead to reductions in internalizing behavior problems among children with DD, and whether this relation was moderated by the child’s ASD status. Additionally, we examined whether individual increases in the mindful facets of acting with awareness and nonjudgment, from pre- to post- treatment, would lead to reductions in internalizing problems among children with DD, and whether this relation was moderated by the child’s ASD status. Results Children of parents in the MBSR treatment group had greater reductions in internalizing problems compared to children whose parents were in the waitlist-control group, b= −5.71, p <.05. We also found that children of parents who reported greater increases in acting with awareness post-treatment had a greater reduction in internalizing problems, b= −2.57, p<.05. Additionally, children whose parents had greater increases in nonjudgment post-treatment had a greater reduction in internalizing problems, b= −1.85, p<.05. However, ASD status was not a significant moderator in either analysis, ps >.05. Conclusions These findings have important implications regarding the relation between parenting stress and internalizing problems in children with DD. This treatment offers a novel approach to treating comorbid internalizing problems in children with DD. Parents’ use of MBSR provides a method of early intervention, which may ameliorate the development of internalizing problems over time. The current study helps to inform future parenting interventions by highlighting the importance of addressing specific facets of mindfulness in interventions which may lead to greater reductions in internalizing problems in vulnerable populations such as children with DD Figure 1.
发育迟缓(DD)儿童,特别是自闭症谱系障碍(ASD)儿童,其行为问题和内化问题的发生率较高。虽然以前的文献已经广泛地强调了父母压力对DD儿童行为问题发展的影响,但关于父母压力与ASD儿童内化问题之间关系的研究却很少。越来越多的证据支持正念减压(MBSR)是一种有效的干预措施,可以减轻患有DD的孩子的父母的压力。父母压力的减少也与孩子行为问题的减少有关。然而,据我们所知,正念减压和减少父母压力对DD儿童内化问题的影响尚未得到检验。方法本研究利用父母压力意识(MAPS)的数据,该数据由80名父母报告高压力水平的发育迟缓(DD)学龄前儿童的家庭组成。具体来说,我们调查了参与正念减压干预是否会减少育儿压力,从而减少DD儿童的内化行为问题,以及这种关系是否会被儿童的ASD状态所调节。此外,我们研究了从治疗前到治疗后,个体在有意识和不判断行为的注意方面的增加是否会导致DD儿童内化问题的减少,以及这种关系是否会被儿童的ASD状态所调节。结果父母在正念减压治疗组的孩子比父母在等候名单对照组的孩子有更大的内在问题减少,b= - 5.71, p .05。结论本研究结果对父母压力与DD患儿内化问题之间的关系具有重要意义,为治疗DD患儿共病内化问题提供了一种新的方法。父母使用正念减压疗法提供了一种早期干预的方法,可能随着时间的推移改善内化问题的发展。目前的研究通过强调在干预中解决正念特定方面的重要性,有助于为未来的育儿干预提供信息,这可能会导致更大程度上减少弱势群体(如DD儿童)的内化问题(图1)。
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引用次数: 3
Patterns of Behavior and Medical Comorbidities in Down syndrome 唐氏综合症的行为模式和医学合并症
IF 2.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2020-07-02 DOI: 10.1080/19315864.2020.1790064
L. Patel, Kristine Wolter-Warmerdam, F. Hickey
ABSTRACT Introduction Children and young adults with Down syndrome can demonstrate increased behavior problems compared to their typically developing peers through childhood and adolescence. This study aims to: (1) identify common patterns of behaviors in children and young adults with Down syndrome and (2) assess potential medical comorbidities that could increase the risk for behavioral challenges. Methods This retrospective, cross-sectional study identifies common patterns of behaviors in 378 children and young adults between 2 and 22 years of age with Down syndrome receiving care at a single medical center. Results Composite scores were developed for each of the four study factors: (1) Externalization, (2) Apprehension, (3) Internalization, and (4) Harm/Unrest. Analysis of variance was conducted on the influence of comorbidities on the four factors. Results indicated that the impact of attention deficit hyperactivity disorder, Autism, feeding problems, heart defect, infantile spasms, obstructive sleep apnea, and prematurity on problematic behaviors were statistically significant. Conclusions Our findings highlight the importance of addressing medical comorbidities to potentially reduce problematic behavior, while also identifying neurodevelopmental differences that result in categorical behavioral challenges for children and young adults with Down syndrome.
与正常发育的同龄人相比,患有唐氏综合症的儿童和青少年在童年和青春期表现出更多的行为问题。本研究旨在:(1)确定患有唐氏综合症的儿童和年轻人的共同行为模式;(2)评估可能增加行为挑战风险的潜在医学合并症。方法:本回顾性横断面研究确定了在同一医疗中心接受治疗的378名2至22岁唐氏综合症儿童和年轻人的共同行为模式。结果:(1)外化,(2)忧虑,(3)内化,(4)伤害/不安四个研究因素的综合得分。对合并症对四个因素的影响进行方差分析。结果表明,注意缺陷多动障碍、自闭症、喂养问题、心脏缺陷、婴儿痉挛、阻塞性睡眠呼吸暂停和早产对问题行为的影响具有统计学意义。结论:我们的研究结果强调了解决医疗合并症的重要性,以潜在地减少问题行为,同时也确定了导致唐氏综合症儿童和青年行为挑战的神经发育差异。
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引用次数: 2
Creating Capable Communities for People with Intellectual Disabilities: Challenges and Opportunities 为智障人士创建有能力的社区:挑战与机遇
IF 2.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2020-07-02 DOI: 10.1080/19315864.2020.1783039
S. Lennard, R. Sharpe, R. Goodey, Sharon Hudson, R. Shankar
ABSTRACT Introduction People with learning disabilities in the United Kingdom are being incarcerated in hospital settings due to lack of suitable community care and support. Factors influencing discharge from institutional/hospital care to enable successful community living have not been explored systematically. Method A systematic review using the PRISMA guidance identified studies via five electronic database searches of Medline, CINAHL, Embase, psychINFO, and Cochrane Library. A predesigned inclusion/exclusion criterion was applied to selected articles. A thematic analysis approach was used. Results Six qualitative and twelve quantitative articles were identified and divided into three broad themes of support, housing, and health. A further nineteen articles were identified as of peripheral interest. Conclusion Factors affording a successful transition from hospital/institution to community are discussed. Suitable standards of housing, staff support/training, and health-care access influence the success of sustainable repatriation. An evidence-based tool kit is proposed from available factors to enable safe, sustainable, and timely discharge.
在英国,由于缺乏适当的社区护理和支持,有学习障碍的人被监禁在医院。影响机构/医院护理出院以实现成功社区生活的因素尚未系统探讨。方法采用PRISMA指南,通过Medline、CINAHL、Embase、psychINFO和Cochrane Library等5个电子数据库进行系统评价。对选定的文章采用预先设计的纳入/排除标准。采用了专题分析方法。结果确定了6篇定性文章和12篇定量文章,并将其分为支持、住房和健康三大主题。另有19篇文章被确定为次要利益。结论讨论了从医院/机构向社区成功过渡的因素。适当的住房标准、工作人员支助/培训和获得保健服务影响可持续遣返的成功。根据现有因素,提出了一套基于证据的工具包,以实现安全、可持续和及时的排放。
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引用次数: 4
The Intersectionality of Ethnicity/race and Intellectual and Developmental Disabilities: Impact on Health Profiles, Service Access and Mortality 族裔/种族与智力和发育残疾的相互关系:对健康状况、服务获取和死亡率的影响
IF 2.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2020-07-02 DOI: 10.1080/19315864.2020.1790702
A. Hassiotis
The coronavirus pandemic continues to be a serious global problem with very significant consequences for individual health, wellbeing and economic stability. As we learn more about the disease and its prognosis, several facts have emerged about onset, spread and fatality rates. One of the most striking findings is that of people from Black Asian and Minority Ethnic (BAME) groups bearing more severe forms of the illness and consequently dying at higher rates than their white counterparts. This disparity has been seen in many countries as reports about the characteristics of those infected and hospitalized are being published (Patel et al., 2020). Particular concerns have been raised about what might be driving this increased susceptibility to the virus including the role of widely suspected structural inequalities. A group of people who are exceedingly vulnerable, usually underserved and often stigmatized and discriminated against are those with intellectual and developmental disabilities. Those who are at the intersection of BAME and intellectual and developmental disabilities are likely to fare less well. There has been some research in people with intellectual and developmental disabilities from BAME groups but only a small proportion examines health status. Robertson et al. (2019) found 23 studies reporting on health status and service use in people with intellectual and developmental disabilities living in the UK. BAME status was associated with 4fold increase in abnormal blood glucose levels; a diagnosis of psychosis; lower likelihood to have his/her mental ill-health recognized by a family carer. South Asian families in particular were less likely to access specialist intellectual disability services for a mental health problem and reported increased social care needs. Analysis of US-based databases such as the Adult Consumer Survey of the National Indicators Project (Bershadsky et al., 2014) indicated that ethnicity (White non-Hispanic, Black non-Hispanic, Hispanic) was an important variable in accessing 6 public health preventive programs although the differences dissipated when person characteristics were accounted for. Another study
冠状病毒大流行仍然是一个严重的全球性问题,对个人健康、福祉和经济稳定产生非常严重的影响。随着我们对这种疾病及其预后的了解越来越多,有关发病、传播和死亡率的一些事实已经浮出水面。其中最引人注目的发现之一是,来自亚洲黑人和少数民族(BAME)群体的人患有更严重的疾病,因此死亡率高于白人。随着关于感染者和住院患者特征的报告的发表,许多国家都看到了这种差异(Patel等人,2020年)。人们特别关注的是,是什么可能导致对该病毒的易感性增加,包括广泛怀疑的结构性不平等的作用。智力和发育障碍者是一群极其脆弱、通常得不到充分服务、经常被污名化和歧视的人。那些处于BAME和智力和发育障碍的交叉点的人可能不太好。有一些研究是针对来自BAME群体的智力和发育障碍者进行的,但只有一小部分研究考察了健康状况。Robertson等人(2019)发现了23项研究,报告了生活在英国的智力和发育障碍患者的健康状况和服务使用情况。BAME状态与异常血糖水平升高4倍相关;精神病的诊断;他/她的精神疾病得到家庭照顾者承认的可能性较低。南亚家庭尤其不太可能就精神健康问题获得专门的智力残疾服务,并报告社会护理需求增加。对国家指标项目成人消费者调查等美国数据库的分析(Bershadsky等人,2014年)表明,种族(非西班牙裔白人、非西班牙裔黑人、西班牙裔)是获得6项公共卫生预防计划的重要变量,尽管当考虑到个人特征时,差异就消失了。另一项研究
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引用次数: 5
期刊
Journal of Mental Health Research in Intellectual Disabilities
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