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Care for children with cerebral palsy during the COVID-19 pandemic: South African family caregiver perspectives COVID-19大流行期间脑瘫儿童的护理:南非家庭照顾者的观点
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-06-12 DOI: 10.1080/17450128.2023.2224975
S. Adams, S. Moi
ABSTRACT The SARS-CoV−2 (COVID−19) virus severely impacted children around the globe; however, the impact on children with disabilities, such as cerebral palsy (CP) has been exacerbated due to the significant changes to their daily routines, and access to services and supports. During the spread of COVID−19, the country imposed restrictions and subsequent lockdown. The care demands may be compounded for children with CP and their families living in South Africa due to existing inequalities, and economic and access barriers. The study explored the access and support experiences of caregivers caring for children with CP during the COVID−19 pandemic in South Africa. A qualitative research design was employed. Eighteen caregivers consisting of 16 mothers and 2 fathers participated in the current study using semi-structured interviews on access and support needs for their children with CP. Thematic analysis of the data yielded themes related to: (1) fear of the unknown, (2) navigating changing caregiver roles, (3) financial stressors, and (4) opportunity despite adversity. While the lockdown measures continue to change and ease, it is important that provisions are made for children and their families both during and after the pandemic such as financial, social, family, and environmental support. In addition, recommendations for healthcare professionals working with vulnerable children and their families have been provided.
SARS-CoV - 2 (COVID - 19)病毒严重影响全球儿童;然而,对残疾儿童(如脑瘫)的影响已经加剧,因为他们的日常生活发生了重大变化,获得了服务和支持。在COVID - 19传播期间,该国实施了限制和随后的封锁。由于现有的不平等、经济和准入障碍,生活在南非的CP儿童及其家庭的护理需求可能会更加复杂。该研究探讨了在南非COVID - 19大流行期间照顾CP儿童的护理人员的获取和支持经验。本研究采用质性研究设计。由16位母亲和2位父亲组成的18位照顾者参与了目前的研究,使用半结构化访谈来了解他们患有CP的孩子的获取和支持需求。数据的主题分析产生了以下主题:(1)对未知的恐惧,(2)如何应对照顾者角色的变化,(3)经济压力,(4)逆境中的机会。在封锁措施不断改变和放松的同时,重要的是,在大流行期间和之后,为儿童及其家人提供财政、社会、家庭和环境支持。此外,还为从事弱势儿童及其家庭工作的保健专业人员提供了建议。
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引用次数: 0
Examining the effectiveness of a group hope intervention program in Syrian refugee children: A pilot study 检验叙利亚难民儿童团体希望干预计划的有效性:一项试点研究
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-05-24 DOI: 10.1080/17450128.2023.2216476
Aslihan Ataman, Burcu Uysal
ABSTRACT The purpose of this study was to investigate the effectiveness of a 6-session hope-based intervention program on the levels of hope and psychological resilience of Syrian refugee children. The pre-test post-test control group design was implemented. A total of 42 Syrian refugee students in 5th grade participated in the study. 2 × 2 mixed ANOVA, independent sample t-test, and dependent sample t-test were conducted for data analysis. Mixed ANOVA revealed that the intervention group had more improvement in hope and psychological resilience scores compared to the control group. Dependent sample t-test revealed that while the hope and resilience scores of the intervention group were maintained, the hope scores of the control group significantly decreased. Independent sample t-test revealed a statistically significant difference between the post-test hope scores of the groups. Research findings supported that hope-oriented approaches can be effective in improving the resilience of Syrian refugee children in the long term.
摘要本研究的目的是调查基于希望的6期干预计划对叙利亚难民儿童的希望水平和心理韧性的有效性。实施测试前-测试后对照组设计。共有42名五年级的叙利亚难民学生参加了这项研究。2. × 数据分析采用2个混合方差分析、独立样本t检验和依赖样本t检验。混合方差分析显示,与对照组相比,干预组在希望和心理韧性得分方面有更多的改善。依赖样本t检验显示,在干预组的希望和恢复力得分保持不变的同时,对照组的希望得分显著下降。独立样本t检验显示,两组的测试后希望得分之间存在统计学上的显著差异。研究结果支持,从长远来看,以希望为导向的方法可以有效提高叙利亚难民儿童的复原力。
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引用次数: 0
Vulnerability to drug use and risky sexual behaviours: youth and adolescents coping with trauma and stress in protracted displacement in Abuja 易受药物使用和危险性行为影响:阿布贾长期流离失所的青年和青少年应对创伤和压力
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-05-24 DOI: 10.1080/17450128.2023.2217385
P. Ekoh, U. Okoye, Okwukwe Faith Ekoh
ABSTRACT Internally displaced youth and adolescents may continue to suffer from displacement-associated trauma and stress many years after initial displacement. Hence, our study initially aimed to qualitatively explore how displaced youth and adolescents in Nigeria are coping with the trauma and stress associated with protracted displacement. However, through serendipity, results from the thematic analysis of semi-structured interviews from 22 displaced youths and nine professionals in Abuja revealed that in addition to some positive coping mechanisms, some displaced young males turn to drugs, while some young women turn to transactional sex and multiple sexual partners to deal with the impact of protracted displacement. This may lead to increased crime, morbidity, and mortality, thus requiring immediate intervention. This paper concluded by recommending that social workers help displaced youth and adolescents deal with their current stressors by advocating for the improvement of their living situation while also working with other professionals to intervene on the issue of drug misuse and unhealthy sexual behaviours through continuous education.
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引用次数: 0
Supporting HIV self-management in adolescents to be resilient and thrive: an intervention development study 支持青少年的艾滋病毒自我管理,使其具有适应力并茁壮成长:一项干预发展研究
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-05-11 DOI: 10.1080/17450128.2023.2206172
Talitha Crowley, Frances De Lange-Cloete
ABSTRACT Self-management programs or interventions focus on self-empowerment to improve skills, abilities and behaviors needed to control a chronic condition and may be of great value for adolescents living with HIV (ALWH). The aim of this study was to develop a self-management intervention called Self-Management in Adolescents to be Resilient and Thrive (S-SMART), for ALWH aged 15 to 19 years using the principles of intervention mapping (IM). We conducted a needs assessment and developed a logic model for change based on factors influencing self-management amongst ALWH on the level of the individual and environment. Program outcomes and objectives were identified based on formative qualitative and quantitative research, a systematic review and theory. We then selected theory-based models and practical strategies and developed a 12-week program consisting of individual activities completed in a workbook or smartphone application, five peer-group sessions and three individual coaching sessions. Content validity was determined by consulting nine local and international experts and 18 key stakeholders (11 ALWH and seven healthcare workers) through four focus groups in the Cape Metropole of the Western Cape, South Africa. The intervention will now be pilot tested for feasibility and acceptability.
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引用次数: 0
Effect of transcutaneous vagus nerve stimulation on daytime sleepiness, depression, and study engagement in college students: a randomized controlled trial 经皮迷走神经刺激对大学生日间嗜睡、抑郁和学习投入的影响:一项随机对照试验
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-03-28 DOI: 10.1080/17450128.2023.2196097
H. Waki, Takuya Suzuki, Y. Minakawa, Naruto Yoshida, S. Miyazaki, T. Hisajima
ABSTRACT Many college students experience daytime sleepiness. Daytime sleepiness is reportedly associated with poor academic performance, suicide, depression, and traffic accidents. This parallel-group randomized controlled trial study aimed to examine the effect of self-care using transcutaneous vagus nerve stimulation (taVNS) in college students with sleepiness and depression. Thirty-four college students (age 21.5 ± 0.1 years, 21 men and 13 women) were assigned to a control or taVNS group. For taVNS, an electro-stimulator was used to deliver 100 Hz pulses at an intensity below each participant’s pain threshold (3.0–8.0 mV) for 30 min. taVNS was performed 30 min before bedtime every day for 28 days. Daytime sleepiness, depression, study engagement, and sleep quality were measured using the Japanese version of the Epworth Sleepiness Scale (ESS-J), Japanese version of the Beck Depression Inventory-II (BDI-II-J), Japanese version of the Utrecht Work Engagement Scale for Students (UWES-S-J), Japanese version of the Pittsburgh Sleep Quality Index (PSQI-J), and Silmee™ Bar Type Lite. Autonomic nervous system activities were measured using high-frequency (HF) and low-frequency (LF) components of heart rate variability. Parasympathetic and sympathetic nervous system activities were indicated by the HF value and LF/HF ratio, respectively. The change in each group from day 28 to day 1 was calculated and analysed. The ESS-J, BDI-II-J, UWES-S-J, and PSQI-J (sleep quality and daytime dysfunction) scores improved, and the LF/HF ratio decreased in the taVNS group compared with the control group. Self-care using taVNS suppresses the sympathetic nervous system during sleep, which may improve sleep quality, daytime sleepiness, depression, and study engagement.
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引用次数: 0
Effect of caregiver depression on adolescent internalising and externalising behaviour: findings from a longitudinal study in a high-risk South African environment 照顾者抑郁对青少年内化和外化行为的影响:来自高风险南非环境的纵向研究结果
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-03-23 DOI: 10.1080/17450128.2023.2192994
S. du Toit, K. Haag, M. Tomlinson, L. Sherr, Marguerite Marlow, J. Stewart, S. Skeen
ABSTRACT Adolescents living in low- and-middle incomeand middle-income countries are at a particular risk of poor mental health. Caregiver mental health plays a crucial role in a child’s emotional and behavioural development and may directly impact a child’s risk for future development of mental health problems. Data collected as part of a two-decade longitudinal multiphase research project were used. Participants, originally women in their third trimester of pregnancy (n = 449), were recruited from a peri-urban impoverished community outside of Cape Town, South Africa, and assessed at several time-points over subsequent years. Data collected during the three phases of the research were used to assess the effects of early and current caregiver depression on adolescent internalising and externalising behaviour. Analyses of Covariance models were used to explore the effect of caregiver depression on adolescent internalising and externalising behaviour, while controlling for multiple covariates. We analysed data for 313 adolescent participants and their primary caregivers. Caregiver depression patterns had a significant main effect on externalising behaviour, F(3,305) = 4.10 (p = 0.007), but not on internalising behaviour, F(3,305) = 2.71 (p = 0.09). Post-hoc analysis showed that those adolescents exposed to early and current caregiver depression scored on average 3.83 points (95% CI [0.99; 6.66]) higher in externalising behaviour than those exposed to no caregiver depression. Also, adolescents who experienced a change in caregiver, compared to those whose biological mother were still their primary caregiver, reported significantly higher levels of externalising behaviour F(1,305) = 5.10, p = 0.03. The study findings provide crucial insight into critical periods of risk, as well as opportunities for prevention. Preventive interventions should ideally target caregivers and adolescents to prevent or reduce behavioural problems and disrupt intergenerational cycles of mental disorders or behavioural problems.
生活在中低收入和中等收入国家的青少年心理健康状况不佳的风险特别大。照顾者的心理健康在儿童的情绪和行为发展中起着至关重要的作用,并可能直接影响儿童未来心理健康问题发展的风险。数据收集作为一个20年的纵向多阶段研究项目的一部分使用。参与者,最初是怀孕晚期的妇女(n = 449),从南非开普敦外的城郊贫困社区招募,并在随后几年的几个时间点进行评估。在研究的三个阶段收集的数据被用来评估早期和现在的照顾者抑郁对青少年内化和外化行为的影响。在控制多协变量的情况下,采用协方差分析模型探讨照顾者抑郁对青少年内化和外化行为的影响。我们分析了313名青少年参与者及其主要照顾者的数据。照顾者抑郁模式对外化行为有显著的主要影响,F(3305) = 4.10 (p = 0.007),但对内化行为没有影响,F(3305) = 2.71 (p = 0.09)。事后分析显示,那些暴露于早期和当前照顾者抑郁症的青少年平均得分为3.83分(95% CI [0.99;6.66])的外化行为高于那些没有受到照顾者抑郁的人。此外,与那些生母仍然是主要照顾者的青少年相比,经历了照顾者变化的青少年报告了显着更高水平的外化行为F(1,305) = 5.10, p = 0.03。这项研究的发现为风险的关键时期提供了重要的见解,以及预防的机会。预防性干预措施最好是针对照顾者和青少年,以预防或减少行为问题,并破坏精神障碍或行为问题的代际循环。
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引用次数: 0
A cross-sectional online survey of COVID-19 vaccine acceptance among adolescents in Medan, Indonesia 印度尼西亚棉兰青少年接受新冠肺炎疫苗情况的横断面在线调查
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-03-15 DOI: 10.1080/17450128.2023.2188337
T. B. Purnama, Insani Arrafi, I. Ikhwan, Liliek Pratiwi, Tri Suci Rahmayani, Ayu Sajida Da’ad Arini
ABSTRACT The COVID-19 vaccination can help to reduce the spread of the COVID-19 virus. Low vaccine acceptance among adolescents could exacerbate the risk of COVID-19. The purpose of this study is to determine the prevalence of COVID-19 vaccine acceptance and risk factors among adolescents. This study used cross-sectional with adolescents who are domiciled in Medan City. The sample was gathered through an online survey, and the data was analysed using bivariate and multivariate statistics (Multiple Logistic Regression). According to the findings, 96.2% of respondents are aware of the COVID-19 vaccination programme, and 47.9% are willing to be vaccinated. Social media was predominantly a source of information on COVID-19 vaccination among respondents. The results revealed that economic status, social media information, and knowing the vaccination program had an influence on COVID-19 vaccine acceptance. Health education and promotion amongst the targeted group is needed to increase future COVID-19 vaccine coverage.
摘要新冠肺炎疫苗接种有助于减少新冠肺炎病毒的传播。青少年对疫苗的接受率低可能会加剧新冠肺炎的风险。本研究的目的是确定青少年中新冠肺炎疫苗接受率和风险因素。这项研究对居住在棉兰市的青少年进行了横断面调查。样本通过在线调查收集,并使用双变量和多变量统计(多元逻辑回归)对数据进行分析。根据调查结果,96.2%的受访者了解新冠肺炎疫苗接种计划,47.9%的受访者愿意接种疫苗。社交媒体主要是受访者中新冠肺炎疫苗接种的信息来源。结果显示,经济状况、社交媒体信息和对疫苗接种计划的了解对新冠肺炎疫苗的接受度有影响。需要在目标群体中进行健康教育和宣传,以提高未来新冠肺炎疫苗的覆盖率。
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引用次数: 0
Untangling the ‘health paradox’ among adolescent girls: the role of immigration status, depression, and decision-making 解开青春期女孩的“健康悖论”:移民身份、抑郁和决策的作用
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-02-24 DOI: 10.1080/17450128.2023.2182931
Anastasiia Timmer, Cathrine Jacobsen
ABSTRACT The ‘health paradox’ is a phenomenon in which immigrants report better health than their native-born counterparts despite experiencing numerous adversities. This study examines the ‘health paradox’ among adolescent girls in the U.S. and evaluates the understudied pathways and conditions in the immigration status-health link, including the role of emotional (i.e. depressive symptoms) and cognitive (i.e. decision-making) domains. Drawing on Wave I (1994–1995) and Wave II (1996) of a nationally representative longitudinal study of adolescents (Add Health), a series of regression models was conducted to explore the relationship between girls’ immigration status and health (N = 6,543). Further, mean centered multiplicative terms and the KHB decomposition procedure were used to assess the moderating and mediating effects of depressive symptoms and decision-making. Results reveal that, in general, foreign-born girls enjoy better health as compared to their native-born counterparts, which is partially explained by their fewer depressive symptoms. Importantly, however, the experience of higher levels of depressive symptoms appears to decrease immigrant girls’ resilience. The ability to be thoughtful and reflective when making choices serves as a health protective factor among girls overall, suggesting the need to foster adolescent girls’ decision-making skills to improve their health. Policy recommendation based on our findings are discussed.
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引用次数: 1
Exploring childhood experiences and family contexts as risk factors for drug use in the lives of young drug users in the Western Cape, South Africa 探索童年经历和家庭背景作为南非西开普省年轻吸毒者生活中吸毒的危险因素
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-02-22 DOI: 10.1080/17450128.2023.2179149
E. Rich, M. Londt, L. Holtman
ABSTRACT The use of drugs amongst adolescents and youth has become a global phenomenon and South Africa is no exception. This paper aims to explore the familial contexts and childhood experiences leading up to the drug-taking pathways of young drug users. A qualitative approach was utilized to gather demographic from a purposive sample of 41 young (14–19 years) drug users, at five drug treatment centres in the Western Cape of South Africa. Additionally, participants could agree to participate in an in-depth interview or to provide a written life history account. A thematic data analysis was applied, and the results uncovered a range of family-related risk factors such as family structure (single motherhood and absent fatherhood), and other negative family functioning and practices such as troubled parent-child relationships, poor family communication/interactions, parental/family substance abuse, and conflict-ridden, stressful and often violent and abusive family situations. The findings suggest that prevention initiatives should focus on strengthening family functioning by reducing high conflict, stress, violent and abusive family situations, as well as aim to enhance the caregiver-child relationship. Prevention strategies should encourage live-in and non-live-in fathers to be actively involved in the lives of their children and should aim to reduce parental/caregiver substance abuse.
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引用次数: 0
The relationship between social media use and collective identity among the HIV/AIDS-affected adolescents: from the online social support perspective 受艾滋病毒/艾滋病影响的青少年使用社交媒体与集体认同之间的关系:从网络社会支持的角度
IF 1.1 Q4 FAMILY STUDIES Pub Date : 2023-02-21 DOI: 10.1080/17450128.2023.2182932
Lin Zhang
ABSTRACT Research has suggested social media use plays an important role in forming collective identity among marginalized groups. From the online social support perspective, this study aims to explore the relationship between social media use and collective identity of HIV/AIDS-affected adolescents. A field survey was conducted in Wen Lou village (a famous Chinese ‘AIDS Village’) and valid questionnaires were completed by the HIV/AIDS-affected adolescents. A linear regression analysis was conducted to detect how demographic variables, social media use and online social support predict the collective identity of the HIV/AIDS-affected adolescents. For social media use, △R2 = 0.157, p < .05; and for online social support, △R2 = 0.358, p < .001, specifically for instrumental support, β = .281, p < .05. Preference for social media use and online social support positively predict their collective identity, but social media use intensity negatively predicts their collective identity. There are no significant differences in the levels of social media use intensity, preference for social media use, online social support and collective identity between different genders of the HIV/AIDS-affected adolescents. The level of ‘ideology’ is quite low, many participants did not show negative emotions for being a member of the ‘AIDS Village’ adolescents, or show hatred to people outside the ‘AIDS Village’.
摘要研究表明,社交媒体的使用在边缘群体形成集体认同方面发挥着重要作用。从网络社会支持的角度,本研究旨在探讨受艾滋病毒/艾滋病影响的青少年的社交媒体使用与集体身份之间的关系。在中国著名的“艾滋病村”文楼村进行了实地调查,并对受艾滋病影响的青少年进行了有效问卷调查。进行了线性回归分析,以检测人口统计变量、社交媒体使用和在线社会支持如何预测受艾滋病毒/艾滋病影响的青少年的集体身份。对于社交媒体的使用,△R2 = 0.157,p < .05;以及对于在线社交支持,△R2 = 0.358,p < .001,专门用于仪器支持,β = .281,p < .05.对社交媒体使用的偏好和在线社交支持对他们的集体身份有正向预测作用,但社交媒体使用强度对他们的群体身份有负向预测作用。受艾滋病毒/艾滋病影响的不同性别青少年在社交媒体使用强度、社交媒体使用偏好、在线社会支持和集体认同水平方面没有显著差异。“意识形态”水平相当低,许多参与者没有表现出作为“艾滋病村”青少年成员的负面情绪,也没有表现出对“艾滋病村’以外的人的仇恨。
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引用次数: 1
期刊
Vulnerable Children and Youth Studies
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