Pub Date : 2023-04-30DOI: 10.1080/17496535.2023.2201990
Mig Burgess Walsh
ABSTRACT In this paper I am reflecting on ‘asking for help’ as a mental health patient. I use myself as a case study to consider the process and what needs to be addressed to make it easier.
{"title":"The Vicious Circle of Reaching Out and Asking for Help – A Mental Health Patient’s Perspective","authors":"Mig Burgess Walsh","doi":"10.1080/17496535.2023.2201990","DOIUrl":"https://doi.org/10.1080/17496535.2023.2201990","url":null,"abstract":"ABSTRACT In this paper I am reflecting on ‘asking for help’ as a mental health patient. I use myself as a case study to consider the process and what needs to be addressed to make it easier.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":" ","pages":""},"PeriodicalIF":1.0,"publicationDate":"2023-04-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43408533","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-17DOI: 10.1080/17496535.2023.2198774
Raewyn Tudor
ABSTRACT Recently Feminist New Materialism has emerged as a field that questions the capability of critique to offer substantive change and calls for more affirmative forms of criticality which add to, rather than subtract from, alternate ways of living in the world. This ‘affirmative turn’ is an emerging influence in social work where it is taken up to disrupt human-centred notions of agency and engage with the non-human and more-than-human relations that make up the material-social world. This paper adds to this work, utilizing Karen Barad’s concept and method of diffraction to critically engage with trauma-informed practice, a current popular approach in social work that draws on neuroscience and social theory. Specifically, diffraction is used to put neuro-trauma theory into conversation with Extended Emotion theory, and through reading the insights they offer, re-configure trauma-informed social work as situated, embodied, relational practices for making differences that matter in the world. This example also suggests what diffraction makes possible for social work as an onto-ethical mode of affirmative critique.
{"title":"‘Making Cuts that Matter’ in Social Work: A Diffractive Experiment with Trauma-informed Practice","authors":"Raewyn Tudor","doi":"10.1080/17496535.2023.2198774","DOIUrl":"https://doi.org/10.1080/17496535.2023.2198774","url":null,"abstract":"ABSTRACT Recently Feminist New Materialism has emerged as a field that questions the capability of critique to offer substantive change and calls for more affirmative forms of criticality which add to, rather than subtract from, alternate ways of living in the world. This ‘affirmative turn’ is an emerging influence in social work where it is taken up to disrupt human-centred notions of agency and engage with the non-human and more-than-human relations that make up the material-social world. This paper adds to this work, utilizing Karen Barad’s concept and method of diffraction to critically engage with trauma-informed practice, a current popular approach in social work that draws on neuroscience and social theory. Specifically, diffraction is used to put neuro-trauma theory into conversation with Extended Emotion theory, and through reading the insights they offer, re-configure trauma-informed social work as situated, embodied, relational practices for making differences that matter in the world. This example also suggests what diffraction makes possible for social work as an onto-ethical mode of affirmative critique.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":" ","pages":""},"PeriodicalIF":1.0,"publicationDate":"2023-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48302368","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/17496535.2023.2209931
Ana M. Sobočan, Ian Calliou
Research is an essential component of social justice, social welfare, community work, social policy, and social work. However, engaging in research processes inevitably brings up ethical complexities and challenges. From questions of power and privilege to issues of responsibility and relationships, ethical concerns permeate all stages of research. As researchers, we are constantly confronted with dilemmas and controversies that require us to make moral and ethical choices. In this special issue of Ethics and Social Welfare, we aim to promote exchange and discussion on issues, challenges, and problems arising from the conducting of research in these fields. Our goal is to explore the ethical dimensions of research in social justice, social welfare, community work, social policy, and related areas and to highlight the experiences, practices, and strategies that can help researchers conduct their work in a responsible and morally defensible manner. The ethical lens in research, we believe, must extend beyond legalistic and codified understanding of research ethics to address the socio-political embeddedness of ethical principles, and explore how research can serve as a means of providing knowledge, improving social justice, realizing human rights, and mobilizing social equality and inclusion. Researchers are social actors; their choices, decisions and conduct contribute to the generation and legitimation of knowledges and to the reproduction and/or transformation of existing social relations. This special issue was initiated to provide a meeting place of cultures, practices, practitioners, and research communities. In many cultures, the ‘meeting place’ is a sacred space where people gather to share stories, connect with each other, and learn from one another. In the context of this special issue, we use the metaphor of the meeting place to explore the intersection of ethics and research in social justice, social welfare, community work, social policy, and social work. Conducting research in these fields means engaging with complex ethical issues that require careful consideration and reflection. As practitioners and academics, we have a responsibility to ensure that our research is conducted in a responsible and morally defensible manner, while also adhering to relevant ethical principles. This special issue of Ethics and Social Welfare provides a platform for researchers to come together, share their experiences and challenges, and exchange strategies for conducting research that is grounded in ethical principles and values. Through this ‘meeting place’, we hope to build a community of practice that is committed to advancing research that is socially just, inclusive, and transformative. This meeting point of practice, ethics, discussions, and reflection is about an assembly of equals. It is a place to observe, listen, reflect, and celebrate. In creating this space, we have joined a variety of voices in the hope that what is shared may be amplified
{"title":"Editorial","authors":"Ana M. Sobočan, Ian Calliou","doi":"10.1080/17496535.2023.2209931","DOIUrl":"https://doi.org/10.1080/17496535.2023.2209931","url":null,"abstract":"Research is an essential component of social justice, social welfare, community work, social policy, and social work. However, engaging in research processes inevitably brings up ethical complexities and challenges. From questions of power and privilege to issues of responsibility and relationships, ethical concerns permeate all stages of research. As researchers, we are constantly confronted with dilemmas and controversies that require us to make moral and ethical choices. In this special issue of Ethics and Social Welfare, we aim to promote exchange and discussion on issues, challenges, and problems arising from the conducting of research in these fields. Our goal is to explore the ethical dimensions of research in social justice, social welfare, community work, social policy, and related areas and to highlight the experiences, practices, and strategies that can help researchers conduct their work in a responsible and morally defensible manner. The ethical lens in research, we believe, must extend beyond legalistic and codified understanding of research ethics to address the socio-political embeddedness of ethical principles, and explore how research can serve as a means of providing knowledge, improving social justice, realizing human rights, and mobilizing social equality and inclusion. Researchers are social actors; their choices, decisions and conduct contribute to the generation and legitimation of knowledges and to the reproduction and/or transformation of existing social relations. This special issue was initiated to provide a meeting place of cultures, practices, practitioners, and research communities. In many cultures, the ‘meeting place’ is a sacred space where people gather to share stories, connect with each other, and learn from one another. In the context of this special issue, we use the metaphor of the meeting place to explore the intersection of ethics and research in social justice, social welfare, community work, social policy, and social work. Conducting research in these fields means engaging with complex ethical issues that require careful consideration and reflection. As practitioners and academics, we have a responsibility to ensure that our research is conducted in a responsible and morally defensible manner, while also adhering to relevant ethical principles. This special issue of Ethics and Social Welfare provides a platform for researchers to come together, share their experiences and challenges, and exchange strategies for conducting research that is grounded in ethical principles and values. Through this ‘meeting place’, we hope to build a community of practice that is committed to advancing research that is socially just, inclusive, and transformative. This meeting point of practice, ethics, discussions, and reflection is about an assembly of equals. It is a place to observe, listen, reflect, and celebrate. In creating this space, we have joined a variety of voices in the hope that what is shared may be amplified","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":"17 1","pages":"105 - 108"},"PeriodicalIF":1.0,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41832861","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/17496535.2023.2209364
Naseem S. Tayebi, M. von Köppen, P. Plunger, Susanne Börner, Sarah Banks
ABSTRACT This article comprises a short case exemplifying ethical challenges arising for a participatory researcher working with Afghan women refugees during the Covid-19 pandemic in Germany. The researcher is an Iranian-German woman, qualified as a midwife, undertaking doctoral research on refugees’ access to reproductive health care. Disclosures about some women’s experience of domestic violence are made, which raise ethical issues for the researcher relating to personal-professional boundaries, roles and responsibilities. Two commentaries are given on this case from participatory researchers based in Germany, UK and Austria. Both commentaries highlight the relevance of the ethics of care for participatory research and for this research in particular, which entails very close relationships between the doctoral researcher and the refugee women with whom she is researching. The first commentary analyses the research process in terms of Tronto’s five phases of care, while the second illustrates the importance of caring institutions in supporting researchers working on sensitive topics.
{"title":"Researching with Care – Participatory Health Research with Afghan Women Refugees in Germany During the Covid-19 Pandemic: A Case with Commentaries","authors":"Naseem S. Tayebi, M. von Köppen, P. Plunger, Susanne Börner, Sarah Banks","doi":"10.1080/17496535.2023.2209364","DOIUrl":"https://doi.org/10.1080/17496535.2023.2209364","url":null,"abstract":"ABSTRACT This article comprises a short case exemplifying ethical challenges arising for a participatory researcher working with Afghan women refugees during the Covid-19 pandemic in Germany. The researcher is an Iranian-German woman, qualified as a midwife, undertaking doctoral research on refugees’ access to reproductive health care. Disclosures about some women’s experience of domestic violence are made, which raise ethical issues for the researcher relating to personal-professional boundaries, roles and responsibilities. Two commentaries are given on this case from participatory researchers based in Germany, UK and Austria. Both commentaries highlight the relevance of the ethics of care for participatory research and for this research in particular, which entails very close relationships between the doctoral researcher and the refugee women with whom she is researching. The first commentary analyses the research process in terms of Tronto’s five phases of care, while the second illustrates the importance of caring institutions in supporting researchers working on sensitive topics.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":"17 1","pages":"229 - 235"},"PeriodicalIF":1.0,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43754502","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/17496535.2023.2210343
M. Barnes, T. Brannelly, A. Rogers
{"title":"Researching with Care – A Discursive Book Review","authors":"M. Barnes, T. Brannelly, A. Rogers","doi":"10.1080/17496535.2023.2210343","DOIUrl":"https://doi.org/10.1080/17496535.2023.2210343","url":null,"abstract":"","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":"17 1","pages":"238 - 251"},"PeriodicalIF":1.0,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43007261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/17496535.2023.2204448
P. Blundell
ABSTRACT Professional boundaries are an important aspect of social work theory and praxis – yet it is an underexplored topic within the research literature. Research often explores specific types of professional boundary issue rather than exploring social workers’ boundary stories or boundary narratives. In contrast, this qualitative study explored UK social workers’ broader understanding and experience of professional boundaries. This paper will examine one of the research themes – Humour as a boundary breaker. By using humour, social workers were able to break down the boundaries that often impede effective practice. Participants also used humour to build connections with service users, colleagues and other professionals. Nonetheless, there were various aspects of this practice that raised serious issues related to power, prejudice and discrimination. This theme is important to explore because of how relevant it was for participants’ practice and because humour is also an underexplored topic within the social work literature.
{"title":"Humour as a Boundary-Breaker in Social Work Practice","authors":"P. Blundell","doi":"10.1080/17496535.2023.2204448","DOIUrl":"https://doi.org/10.1080/17496535.2023.2204448","url":null,"abstract":"ABSTRACT Professional boundaries are an important aspect of social work theory and praxis – yet it is an underexplored topic within the research literature. Research often explores specific types of professional boundary issue rather than exploring social workers’ boundary stories or boundary narratives. In contrast, this qualitative study explored UK social workers’ broader understanding and experience of professional boundaries. This paper will examine one of the research themes – Humour as a boundary breaker. By using humour, social workers were able to break down the boundaries that often impede effective practice. Participants also used humour to build connections with service users, colleagues and other professionals. Nonetheless, there were various aspects of this practice that raised serious issues related to power, prejudice and discrimination. This theme is important to explore because of how relevant it was for participants’ practice and because humour is also an underexplored topic within the social work literature.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":"17 1","pages":"206 - 220"},"PeriodicalIF":1.0,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48689638","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/17496535.2023.2205654
E. Hanson, F. Lewis, F. Barbabella, R. Hoefman, G. Casu, L. Boccaletti, A. Leu, V. Hlebec, Irena Bolko, S. Santini, M. Svensson, S. Becker, L. Magnusson
ABSTRACT Adolescent young carers (AYCs) are a sub-group of young carers who carry out significant or substantial caring tasks and assume a level of responsibility which would usually be associated with an adult. They are a potentially vulnerable group of minors because of the risk factors associated with their caring role. AYCs face a critical transition phase from adolescence to adulthood often with a lack of tailored support from service providers. The recently completed European funded ‘ME-WE’ project, which forms the focus of this paper, aimed to change the ‘status quo’ by advancing the situation of AYCs in Europe, via responsive research and knowledge translation actions. This paper outlines the participatory, co-creation approach employed in the project to optimise AYC’s involvement. It describes the ethical framework adopted by the project consortium to ensure the wellbeing of AYCs within all project activities. Ethical issues that arose in the field study work in all six countries are presented, followed by a discussion of the level of success or otherwise of the consortium to address these issues. The paper concludes with lessons learned regarding ethically responsible research with and for AYCs that are likely transferable to other vulnerable research groups and pan-European projects.
{"title":"Ethical Considerations When Conducting Pan-European Research with and for Adolescent Young Carers","authors":"E. Hanson, F. Lewis, F. Barbabella, R. Hoefman, G. Casu, L. Boccaletti, A. Leu, V. Hlebec, Irena Bolko, S. Santini, M. Svensson, S. Becker, L. Magnusson","doi":"10.1080/17496535.2023.2205654","DOIUrl":"https://doi.org/10.1080/17496535.2023.2205654","url":null,"abstract":"ABSTRACT Adolescent young carers (AYCs) are a sub-group of young carers who carry out significant or substantial caring tasks and assume a level of responsibility which would usually be associated with an adult. They are a potentially vulnerable group of minors because of the risk factors associated with their caring role. AYCs face a critical transition phase from adolescence to adulthood often with a lack of tailored support from service providers. The recently completed European funded ‘ME-WE’ project, which forms the focus of this paper, aimed to change the ‘status quo’ by advancing the situation of AYCs in Europe, via responsive research and knowledge translation actions. This paper outlines the participatory, co-creation approach employed in the project to optimise AYC’s involvement. It describes the ethical framework adopted by the project consortium to ensure the wellbeing of AYCs within all project activities. Ethical issues that arose in the field study work in all six countries are presented, followed by a discussion of the level of success or otherwise of the consortium to address these issues. The paper concludes with lessons learned regarding ethically responsible research with and for AYCs that are likely transferable to other vulnerable research groups and pan-European projects.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":"17 1","pages":"125 - 158"},"PeriodicalIF":1.0,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46751652","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/17496535.2023.2206671
P. Joseph
ABSTRACT For qualitative researchers seeking the perspectives of people with unusual characteristics or circumstances, compliance with expectations about participant anonymity can be difficult, if not impossible. In the age of internet communications and emerging research methodologies, traditional strategies require ongoing re-examination to ensure cohesion between a project’s ethical framework and its research practice. This paper reflects on the approach to informed consent used in a study with parent carers whose children had high-level support needs. A two-step process of written consent was developed in response to concerns about the possible re-identification of these parents as a result of their highly individual circumstances. This approach acknowledged the potential for identification, and maximised participants’ agency in choosing the level of risk that they were comfortable to accommodate. The paper discusses the researcher’s and participants’ responses to the adapted consent process and recommends that researchers and ethics review committees remain open to the development of collaborative and innovative approaches that are also culturally and contextually relevant, to enable people to contribute perspectives that might otherwise be silenced by the very ethical frameworks that purport to protect their interests.
{"title":"‘It’s All Public Anyway’: A Collaborative Navigation of Anonymity and Informed Consent in a Study with Identifiable Parent Carers","authors":"P. Joseph","doi":"10.1080/17496535.2023.2206671","DOIUrl":"https://doi.org/10.1080/17496535.2023.2206671","url":null,"abstract":"ABSTRACT For qualitative researchers seeking the perspectives of people with unusual characteristics or circumstances, compliance with expectations about participant anonymity can be difficult, if not impossible. In the age of internet communications and emerging research methodologies, traditional strategies require ongoing re-examination to ensure cohesion between a project’s ethical framework and its research practice. This paper reflects on the approach to informed consent used in a study with parent carers whose children had high-level support needs. A two-step process of written consent was developed in response to concerns about the possible re-identification of these parents as a result of their highly individual circumstances. This approach acknowledged the potential for identification, and maximised participants’ agency in choosing the level of risk that they were comfortable to accommodate. The paper discusses the researcher’s and participants’ responses to the adapted consent process and recommends that researchers and ethics review committees remain open to the development of collaborative and innovative approaches that are also culturally and contextually relevant, to enable people to contribute perspectives that might otherwise be silenced by the very ethical frameworks that purport to protect their interests.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":"17 1","pages":"191 - 205"},"PeriodicalIF":1.0,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41815353","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/17496535.2023.2209363
P. Narayanan, M. Brear, Pinky N Shabangu, B. Groot, Charlotte van den Eijnde, Sarah Banks
ABSTRACT This article starts with a case outlining ethical challenges encountered in participatory action research (PAR) on vaccine hesitancy in rural India during Covid-19. Community researchers were recruited by a not-for-profit organisation, with the aim of both discovering the reasons for vaccine hesitancy and encouraging take-up. This raised issues about the roles and responsibilities of local researchers in their own communities, where they might be blamed for adverse reactions to vaccination. They and their mentor struggled with balancing societal protection against individual rights to make choices. These themes are explored in two commentaries discussing the difficulties in balancing ethics in public health (prioritising societal benefits), social research (protecting participants from harm and respecting their rights not to be involved) and participatory research practices (maximising democratic participation and decision-making). As discussed in the first commentary, often these cohere, but tensions can arise. The second commentary also raises the issue of epistemic justice, questioning the extent to which the villagers could have a say in the design, implementation and interpretation of the research, and the dangers of not hearing the voices and arguments of people who reject vaccination. The case and commentaries highlight the complexities of PAR and additional challenges in a public health context.
{"title":"Ethical Issues in Participatory Action Research on Covid-appropriate Behaviour and Vaccine Hesitancy in India: A Case with Commentaries","authors":"P. Narayanan, M. Brear, Pinky N Shabangu, B. Groot, Charlotte van den Eijnde, Sarah Banks","doi":"10.1080/17496535.2023.2209363","DOIUrl":"https://doi.org/10.1080/17496535.2023.2209363","url":null,"abstract":"ABSTRACT This article starts with a case outlining ethical challenges encountered in participatory action research (PAR) on vaccine hesitancy in rural India during Covid-19. Community researchers were recruited by a not-for-profit organisation, with the aim of both discovering the reasons for vaccine hesitancy and encouraging take-up. This raised issues about the roles and responsibilities of local researchers in their own communities, where they might be blamed for adverse reactions to vaccination. They and their mentor struggled with balancing societal protection against individual rights to make choices. These themes are explored in two commentaries discussing the difficulties in balancing ethics in public health (prioritising societal benefits), social research (protecting participants from harm and respecting their rights not to be involved) and participatory research practices (maximising democratic participation and decision-making). As discussed in the first commentary, often these cohere, but tensions can arise. The second commentary also raises the issue of epistemic justice, questioning the extent to which the villagers could have a say in the design, implementation and interpretation of the research, and the dangers of not hearing the voices and arguments of people who reject vaccination. The case and commentaries highlight the complexities of PAR and additional challenges in a public health context.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":"17 1","pages":"221 - 228"},"PeriodicalIF":1.0,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46781661","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/17496535.2023.2211756
S. O'Sullivan, E. Desmond, Margaret Buckley
ABSTRACT This paper focuses on ethics in community-based participatory research (CBPR) from inception to post-publication. Central to CBPR is a collaborative, partnership approach that recognises the strengths of partners and engages their distinctive voice and knowledge in the research process. While the ethical complexities that arise in the course of research practice in CBPR can transcend individual projects, they are also grounded in the particularity of the project, community, and research partners. This paper reflects on the experiences of two participatory social policy research projects on housing in Ireland, conducted over the past three years. These projects involved collaborating with older people living in rural areas nationwide and with residents of small communities on offshore islands. The paper explores the ethics of engagement (regarding methods of involvement and access), and the ethics of representation (incorporating the depiction and sharing of research findings) and argues that researchers must pay attention to the specificity of each project and be alive to generating an organic research ethics in how research is set up, conducted, represented, and disseminated. In so doing, we can better foster agency and authenticity in the relationships developed throughout research processes and reflect on and meet shared values and responsibilities.
{"title":"The Ethics of Engagement and Representation in Community-based Participatory Research","authors":"S. O'Sullivan, E. Desmond, Margaret Buckley","doi":"10.1080/17496535.2023.2211756","DOIUrl":"https://doi.org/10.1080/17496535.2023.2211756","url":null,"abstract":"ABSTRACT This paper focuses on ethics in community-based participatory research (CBPR) from inception to post-publication. Central to CBPR is a collaborative, partnership approach that recognises the strengths of partners and engages their distinctive voice and knowledge in the research process. While the ethical complexities that arise in the course of research practice in CBPR can transcend individual projects, they are also grounded in the particularity of the project, community, and research partners. This paper reflects on the experiences of two participatory social policy research projects on housing in Ireland, conducted over the past three years. These projects involved collaborating with older people living in rural areas nationwide and with residents of small communities on offshore islands. The paper explores the ethics of engagement (regarding methods of involvement and access), and the ethics of representation (incorporating the depiction and sharing of research findings) and argues that researchers must pay attention to the specificity of each project and be alive to generating an organic research ethics in how research is set up, conducted, represented, and disseminated. In so doing, we can better foster agency and authenticity in the relationships developed throughout research processes and reflect on and meet shared values and responsibilities.","PeriodicalId":46151,"journal":{"name":"Ethics and Social Welfare","volume":"17 1","pages":"159 - 174"},"PeriodicalIF":1.0,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"60111187","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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