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Should we Relax Abortion Reporting Requirements in Great Britain?
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-02-13 DOI: 10.1007/s10728-025-00512-7
Jordan A Parsons

In Great Britain, abortion has long proven to be contentious in the context of policy making, with it remaining a criminal offence. Despite progress over the last decade to permit home use of abortion medications and remote consultation, we have seen prosecutions in recent years. Regulatory frameworks such as this have been framed as 'abortion exceptionalism', such that termination of pregnancy is far more tightly regulated than comparable healthcare. One example of this exceptionalism is the strict abortion reporting requirements found in Great Britain. Per these requirements, any doctor providing abortion care must notify the relevant Chief Medical Officer or Public Health Scotland of each and every termination, including a startling amount of information about the patient. The extent of these requirements raises serious questions in relation to patient confidentiality and is, I suggest, an outlier in these terms. Further, it is questionable whether such reporting can be in any way said to be in the public interest. I begin by outlining the Abortion Regulations 1991, which apply in England and Wales, before considering the updated Scottish approach brought about by the Abortion (Scotland) Amendment Regulations 2021. I then move to examine the abortion reporting requirements against our general conception of patient confidentiality, highlighting the discordance. I ultimately argue that the requirements are not adequately justified and represent yet another, often forgotten, example of abortion exceptionalism in Great Britain. Thus, I suggest that all three nations that comprise Great Britain ought to further revise their approach to abortion data.

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引用次数: 0
Exploring Consent to Use Real-World Data in Lung Cancer Radiotherapy: Decision of a Citizens' Jury for an 'Informed Opt-Out' Approach.
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-02-10 DOI: 10.1007/s10728-025-00510-9
Arbaz Kapadi, Hannah Turner-Uaandja, Rebecca Holley, Kate Wicks, Leila Hamrang, Brian Turner, Tjeerd van Staa, Catherine Bowden, Annie Keane, Gareth Price, Corinne Faivre-Finn, David French, Caroline Sanders, Søren Holm, Sarah Devaney

An emerging approach to complement randomised controlled trial (RCT) data in the development of radiotherapy treatments is to use routinely collected 'real-world' data (RWD). RWD is the data collected as standard-of-care about all patients during their usual cancer care pathway. Given the nature of this data, important questions remain about the permissibility and acceptability of using RWD in routine practice. We involved and engaged with patients, carers and the public in a two-day citizens' jury to understand their views and obtain decisions regarding two key issues: (1) preferred approaches to consent for the use of RWD within the context of patients receiving radiotherapy for lung cancer in RAPID-RT and (2) how RWD use should be best communicated to patients. Individual views were polled using questionnaires at various stages of the jury, whilst group discussion activities prompted further dialogue about the rationale behind choices of consent. Key decisions obtained from the jury include: (1) an opt-out approach to consent for the use of RWD; (2) the opt-out approach to consent should be informed. Furthermore, it was advised that information and communication regarding the consent process and use of RWD should be accessible, clear and available in a variety of formats. It is important that the consent process for patient data use is underpinned by principles of autonomy and transparency with clear channels of communication between those asking for and giving consent. Moreover, the process of seeking consent from patients should be proportionate to the risks presented from their participation.

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引用次数: 0
A Study on Consumer-Centric Health Information Provision Strategy Using SWOT-AHP -Focusing on the National Health Information Portal.
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-02-04 DOI: 10.1007/s10728-024-00505-y
Jaeeun Baek

Approximately 70% of Koreans access health and medical information online. Health information providers play a crucial role in enhancing public health by ensuring that individuals can effectively consume and utilize this information according to their information-seeking behaviors. However, existing tools for evaluating health information websites have significant limitations. These tools are often one-size-fits-all and lack strategic recommendations for delivering consumer-centered health information. There is a clear need for alternative approaches beyond merely identifying the quality factors that satisfy consumers. A Strengths, Weaknesses, Opportunities, and Threats-Analytic Hierarchy Process (SWOT-AHP) evaluates both internal and external environmental factors of a health information website, which provides strategies based on the prioritization and weighting of quality factors. Specifically, the 'National Health Information Portal,' a platform provided by the Korea Disease Control and Prevention Agency, was assessed through a comprehensive review of prior research and a SWOT analysis, followed by an AHP survey involving 15 experts specializing in health information websites. The findings of the analysis indicate that the most effective development strategy is the SO (Strengths-Opportunities) strategy. This study highlights the need to move beyond uniform evaluation tools and consider the dynamic and complex nature of the Internet, emphasizing the importance of developing prioritized strategies based on evaluations from both consumers and providers.

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引用次数: 0
Factors Associated with the Use of Complementary and Alternative Medicine in Rural Northern Victoria, Australia. 澳大利亚维多利亚州北部农村使用补充和替代医学的相关因素。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-01-17 DOI: 10.1007/s10728-024-00508-9
Andrew J Hamilton, Lisa Bourke, Geetha Ranmuthugala, Kristen M Glenister, David Simmons

About one-third of Australians use the services of complementary and alternative medicine (CAM); but debate about the role of CAM in public healthcare is vociferous. Despite this, the mechanisms driving CAM healthcare choices are not well understood, especially in rural Australia. From 2016 to 2018, 2,679 persons from the Goulburn Valley, northern Victoria, were surveyed, 28% (755) of whom reporting visiting CAM practitioners. A Generalized Linear Mixed Model was used to assess associations between various socio-demographic variables and the use of CAM services. The strongest significant inverse (p < 0.05) association with CAM use overall was being unemployed, with markedly lower odds of using CAM than those employed full-time (OR 0.22 [0.12, 0.41]). The next strongest inverse relationship was being retired (OR 0.44 [0.30, 0.65]). The strongest positive associations were with English spoken at home (OR 2.38 [1.34, 4.24]), private health insurance (hospital cover) (1.57 [1.28, 1.91]), being Australian born (OR 1.61 [1.14, 2.28]), and female sex (1.25 [1.02, 1.52])). Females had significantly higher odds of using osteopathy than males (OR 1.98 [1.33, 2.96]) but there were no significant sex differences for chiropractic or massage. This is the first such study conducted solely for a rural Australian population. The drivers of CAM use differed from previous nation-wide studies and they varied across modalities. The factors identified here as being associated with CAM use could be used by CAM practitioners in developing person-centred services. Similarly, the findings are relevant to primary-care services in understanding what sectors of society might eschew conventional health care for CAM in rural regions, where health services are often limited.

大约三分之一的澳大利亚人使用补充和替代医学服务;但是关于辅助医学在公共医疗中的作用的争论却非常激烈。尽管如此,驱动CAM医疗选择的机制还不是很清楚,特别是在澳大利亚农村。从2016年到2018年,来自维多利亚州北部古尔本山谷的2679人接受了调查,其中28%(755人)报告访问了CAM医生。使用广义线性混合模型来评估各种社会人口变量与CAM服务使用之间的关联。最强显著逆(p
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引用次数: 0
What is the Best Approach to Removing the Social Stigma from the Diagnosis of Gender Dysphoria? 从性别焦虑症的诊断中去除社会污名的最佳方法是什么?
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-01-09 DOI: 10.1007/s10728-024-00509-8
Charalampos Milionis

Historically, the transgender population has faced prejudice and discrimination within society. The purpose of diagnostic terms is to direct clinical care and facilitate insurance coverage. However, the existence of a medical diagnosis for gender nonconformity can exacerbate the stigmatization of transgender people with adverse consequences on their emotional health and social life. Whether transgenderism and gender dysphoria are indeed a psychopathological condition or even any kind of nosological entity is a contested issue. Many advocates of human rights, trans activists, social scientists, and clinicians support either the removal of gender incongruence from the list of mental disorders or at least its transfer to a separate category. Reforming the classification is an intermediate step toward depathologization and permits access to transgender-related care. Nonetheless, it partly preserves the stigma associated with abnormality and puts the availability of psychiatric care at risk. A more radical approach dictates that the classification of diseases serves exclusively medical purposes and must be dissociated from the respect for the legitimacy of one's autonomy and dignity. In the long term, only a swing in societal values can detach stigma from mental and physical illnesses. Enhancing collective respect for life, human rights, and diversity is the best way to achieve cohesion and well-being among members of society. Health professionals can be pioneers of social change in this field.

从历史上看,跨性别人群在社会上一直面临着偏见和歧视。诊断术语的目的是指导临床护理和促进保险范围。然而,存在性别不一致的医学诊断可能加剧对跨性别者的污名化,对他们的情感健康和社会生活产生不利后果。跨性别主义和性别不安是否确实是一种精神病理状态,甚至是任何一种疾病实体,这是一个有争议的问题。许多人权倡导者、跨性别活动家、社会科学家和临床医生都支持将性别不一致从精神障碍的列表中删除,或者至少将其转移到一个单独的类别。改革分类是走向去病理性化的中间步骤,并允许获得与跨性别有关的护理。尽管如此,它在一定程度上保留了与异常有关的污名,并使精神科护理的可用性面临风险。一种更为激进的做法是,疾病分类完全用于医疗目的,必须与尊重个人自主和尊严的合法性分开。从长远来看,只有社会价值观的转变才能将精神和身体疾病的污名化。加强对生命、人权和多样性的集体尊重,是实现社会成员之间的凝聚力和福祉的最佳途径。卫生专业人员可以成为这一领域社会变革的先驱。
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引用次数: 0
Prudent Physician Anger in Patient-Physician Interactions. 医患互动中的谨慎医师愤怒。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-01-03 DOI: 10.1007/s10728-024-00506-x
Stephen Buetow

This paper questions the conventional wisdom that physicians must suppress anger in response to patient misbehaviour. It distinguishes the emotion of anger from its expression, which leans toward concerned frustration and disappointment for the sake of professionalism in patient care. Drawing on the framework of person-centred health care as a virtue ethic, the paper first suggests four reasons why and when physician anger toward patient behaviour may occasionally be appropriate: the inevitability of sometimes feeling angry, anger as a cognitive and behavioural resource, physician well-being, and potential patient benefit. The paper then proposes five conditions under which physician anger displays may be prudent as a measured response that balances emotional expression with professional conduct: ethical intention, rational justification, proportionality, problem-focused constructive expression, and precision. Potential benefits of this conceptualization of prudent anger include improved physician wellbeing, enhanced communication, and patient education to address perceived patient misbehaviour. The paper advocates for a cultural shift in health care environments to help allow for more authentic expression of physician frustration, aiming to harness prudent anger as a catalyst for positive change in patient-physician relationships and systemic improvements in health care delivery.

这篇论文质疑传统的智慧,医生必须抑制愤怒,以回应病人的不当行为。它区分了愤怒的情绪和愤怒的表达,愤怒的表达倾向于关心的沮丧和失望,这是为了专业地照顾病人。利用以人为本的医疗保健作为一种美德伦理的框架,本文首先提出了医生对患者行为偶尔愤怒的四个原因:有时感到愤怒是不可避免的,愤怒作为一种认知和行为资源,医生的福祉,以及潜在的患者利益。然后,论文提出了五个条件,在这些条件下,医生的愤怒表现可能是谨慎的,作为一种平衡情绪表达和职业行为的有衡量的反应:道德意图、理性辩护、相称性、以问题为中心的建设性表达和准确性。谨慎愤怒概念化的潜在好处包括提高医生的幸福感,加强沟通,以及对患者的教育,以解决患者的不当行为。本文提倡在医疗环境中进行文化转变,以帮助医生更真实地表达沮丧,旨在利用谨慎的愤怒作为催化剂,促进医患关系的积极变化和医疗服务的系统性改进。
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引用次数: 0
Deconstructing the Self-Other Binary in Care Networks by Unravelling Professional' Perspectives through an Intersectional Lens. 通过交叉镜头揭示专业人士的观点,解构护理网络中的自我-他者二元。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-01-03 DOI: 10.1007/s10728-024-00504-z
Aldiene Henrieke Hengelaar, Margo van Hartingsveldt, Tineke Abma, Petra Verdonk

In many western countries informal care is conceived as the answer to the increasing care demand. Little is known how formal and informal caregivers collaborate in the context of an diverse ageing population. The aim of this study was to gain insight in how professionals' perspectives regarding the collaboration with informal carers with a migration background are framed and shaped by intersecting aspects of diversity. We used an intersectionality informed qualitative design with informal conversations (N = 12) and semi-structured interviews (N = 17) with healthcare professionals working with clients with Acquired Brain Injury. Two critical friends were involved in the analysis which was substantiated by a participatory analysis with a community of practice. We identified four interrelated themes: (a) 'The difficult Other' in which professionals reflected on carers with a migration background causing 'difficulties'; (b) 'The dependent Other' refers to professionals' realization that 'difficulties' are intensified by the context in which care takes place; (c) in 'The uncomfortable self' professionals describe how feelings of insecurities evoked by the Other are associated with an inability to act 'professionally', and; (d) 'The reflexive self' shows how some professionals reflect on their own identities and identify their blind spots in collaboration within a care network. These themes demonstrate the tensions, biases and power imbalances between carers and professionals, which may explain some of the existing health disparities perpetuated through care networks.

在许多西方国家,非正式护理被认为是对日益增长的护理需求的回答。在人口老龄化多样化的背景下,正式和非正式护理人员是如何合作的,人们知之甚少。本研究的目的是深入了解专业人员与具有移民背景的非正式照顾者合作的观点是如何通过多样性的交叉方面来构建和塑造的。我们采用了交叉性定性设计,其中包括非正式对话(N = 12)和半结构化访谈(N = 17),访谈对象为治疗后发性脑损伤患者的医疗保健专业人员。两个重要的朋友参与了分析,这是由实践社区的参与性分析证实的。我们确定了四个相互关联的主题:(a)“困难的他者”,专业人员反思具有移民背景的护理人员造成的“困难”;(b)“依赖他人”指的是专业人员认识到,“困难”会因护理发生的环境而加剧;(c)在“不舒服的自我”中,专业人士描述了由他人引起的不安全感如何与无法“专业”行事相关联,并且;(d)“反身性自我”展示了一些专业人士如何在护理网络合作中反思自己的身份,并识别自己的盲点。这些主题表明了护理人员和专业人员之间的紧张关系、偏见和权力不平衡,这可能解释了通过护理网络长期存在的一些现有健康差距。
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引用次数: 0
Impact of the COVID-19 Pandemic on Subjective Well-Being and Quality of Life: A Comprehensive Bibliometric and Thematic Analysis. COVID-19大流行对主观幸福感和生活质量的影响:一项综合文献计量学和专题分析。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-12-31 DOI: 10.1007/s10728-024-00507-w
Alper Aytekin, Rukiye Ayaz, Ahmet Ayaz

This study employs bibliometric and thematic analysis to evaluate the growing body of research on subjective well-being and quality of life during the COVID-19 pandemic. The findings underscore the pandemic's profound impacts on global health, evidenced by a notable increase in studies addressing mental health and quality of life, fostered by international scientific collaboration. Keyword analysis reveals critical themes, including the pandemic's influence on mental health, physical activity, and social support systems. This research provides valuable insights into the long-term consequences of the pandemic and highlights adaptive strategies for managing future crises. By identifying key trends and research gaps, the study serves as an essential resource for academics, policymakers, and public health practitioners, offering a roadmap for future investigations.

本研究采用文献计量学和专题分析来评估越来越多的关于COVID-19大流行期间主观幸福感和生活质量的研究。调查结果强调了这一流行病对全球健康的深远影响,在国际科学合作的推动下,针对心理健康和生活质量的研究显著增加就是证明。关键词分析揭示了关键主题,包括大流行对精神卫生、身体活动和社会支持系统的影响。这项研究为大流行的长期后果提供了宝贵的见解,并强调了管理未来危机的适应性战略。通过确定关键趋势和研究差距,该研究为学术界、政策制定者和公共卫生从业人员提供了重要资源,为未来的调查提供了路线图。
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引用次数: 0
Beyond Individual Responsibilisation: How Social Relations are Mobilised in Communication About a Dementia Self-Testing App. 超越个人责任:关于痴呆症自测应用程序的沟通如何调动社会关系。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-12-27 DOI: 10.1007/s10728-024-00498-8
Alexandra Kapeller

Research on mobile health (mHealth) applications has investigated how such technologies contribute to a responsibilisation of users/patients. This literature largely focuses on the individual responsibilities constructed by the apps and the neoliberal environments that enable the positioning of the user as responsible. With this focus, this scholarship is less attentive to the role of social relations in responsibilisation. In this article, I demonstrate how relational responsibilities are constructed in the communication of a North American self-testing app for "early changes in cognition". Through an analysis of qualitative expert interviews and images on the app's web presence, I show how social relations are, in fact, mobilised in the construction of the responsibilities to support the user in the test situation, to take the test for the sake of others, and to make others take the test. Based on this analysis, I argue that the role of social relations should receive more attention in the literature on responsibilisation, because they lead to additional, sometimes gendered responsibilities that a focus on individual responsibilities would miss.

关于移动医疗(mHealth)应用程序的研究调查了这些技术如何促进用户/患者的责任。这些文献主要关注应用程序和新自由主义环境构建的个人责任,这些环境使用户能够定位为负责任的用户。有了这种关注,这种学术就不那么关注社会关系在责任中的作用。在本文中,我将演示如何在北美自测应用程序的“认知早期变化”沟通中构建关系责任。通过对定性专家访谈和app网站上的图片进行分析,我展示了社会关系实际上是如何被调动起来的,在测试情境中支持用户、为了别人而考试、让别人去考试的责任建构中。基于这一分析,我认为社会关系的作用应该在关于责任的文献中得到更多的关注,因为它们会导致额外的,有时是性别责任,而关注个人责任会忽略这些责任。
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引用次数: 0
Mandatory COVID-19 Vaccination in the Health Sector: a Comparative Approach Between the Greek and American Examples. 卫生部门强制接种 COVID-19 疫苗:希腊与美国实例的比较方法。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-12-15 DOI: 10.1007/s10728-024-00502-1
Ioanna Pervou, Panagiotis Mpogiatzidis

A few months after national vaccination campaigns were initiated around early 2021, the discussion regarding the mandatory vaccination of healthcare workers started gaining ground in most European states and also in the United States. The debate on whether healthcare workers should be required to be vaccinated has been fueled by three main reasons: the high transmissibility rate of the Delta variant, which posed a significant risk to national healthcare systems across Europe and the Americas, as well placing high pressure on intensive care units even in the summer months (a); states' inability to impose general lockdowns and social distancing measures during the 2022 winter due to financial hardship and fears of an ongoing recession (b); and governmental unwillingness to implement restrictive measures, having in mind their populations' tiredness from previous lockdowns (c). This paper will explore the legal and managerial implications of mandatory vaccination among healthcare workers and will argue that it has the capacity to be a successful part of effective national healthcare systems in the search for responsible professionals to staff them. It will argue that national vaccination strategies are dependent on states' national healthcare models. It will show how the major difference in healthcare models of the two states chosen as examples have affected their vaccination policies and their reception by healthcare personnel. Finally, it will prove that the advantages of mandatory vaccination for healthcare personnel outweigh prospected disadvantages, irrespective of ethical, or legal justification is applied. This research will go through the key points of the legislative provisions of the two states (a); it will delve into their legal (b) and managerial implications (c); and finally, it will go through the policy questions which arose (d). It will prove how selective mandatory vaccination policies may be applied to national healthcare systems with foundational differences in their conception. Thus, it will demonstrate that selective mandatory vaccination is a viable option both for models approaching health from a societal perspective, and from the liberal ones.

在2021年初前后启动全国疫苗接种运动几个月后,关于卫生保健工作者强制接种疫苗的讨论开始在大多数欧洲国家和美国取得进展。关于是否应该要求卫生保健工作者接种疫苗的辩论主要有三个原因:德尔塔病毒变体的高传播率,对整个欧洲和美洲的国家卫生保健系统构成了重大风险,并且即使在夏季也给重症监护病房带来了巨大压力(a);由于财政困难和对持续衰退的担忧,各国无法在2022年冬季实施全面封锁和保持社会距离措施(b);政府不愿意实施限制性措施,考虑到他们的人口从以前的封锁中感到疲倦(c)。本文将探讨在卫生保健工作者中强制接种疫苗的法律和管理含义,并将认为它有能力成为有效的国家卫生保健系统中寻找负责任的专业人员的成功组成部分。它将争辩说,国家疫苗接种战略取决于各州的国家卫生保健模式。它将展示作为例子的两个州的保健模式的主要差异如何影响了它们的疫苗接种政策和保健人员对疫苗的接受。最后,它将证明,强制接种疫苗的卫生保健人员的优点大于预期的缺点,无论伦理或法律理由适用。本研究将梳理两州立法规定的重点(a);它将深入研究其法律(b)和管理影响(c);最后,它将通过出现的政策问题(d)。它将证明如何选择性强制性疫苗接种政策可以应用于国家卫生保健系统的基本概念的差异。因此,它将证明,无论是从社会角度还是从自由角度来看,选择性强制接种疫苗都是一种可行的选择。
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引用次数: 0
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