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Shared Decision-Making with the "Professionally-Driven Zone of Patient or Surrogate Discretion" Model and its Application in Acute Care. “专业驱动区患者或代理裁量权”模型的共同决策及其在急症护理中的应用。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-05-20 DOI: 10.1007/s10728-025-00524-3
Joshua T Landry

Shared decision-making ("SDM") has increased in acceptance and become a gold standard in medical decision-making over the last two decades. Despite this, there continues to be disagreement about several facets of SDM that many existing models or versions do not sufficiently address, including: that there is a lack of agreement about which version or model of SDM to utilize in practice; that there are practical limitations on when SDM ought to be utilized; that SDM may be required to use different "harm thresholds" when making decisions for patients who have lost decision-making capacity or competence, or for those who have never had such capacity in the first place; and that many existing models of SDM succumb to what is known as the "framing problem," among other concerns. Elsewhere, this author presented a model of SDM titled, the Professionally-Driven Zone of Patient or Surrogate Discretion (or, Professionally-Driven ZPSD) as a more comprehensive and defensible way forward. This article sets out to expand on the expected benefits of the model, and apply it to several case studies in the acute-care setting in order to demonstrate its functionality as a model of SDM.

在过去的二十年里,共同决策(SDM)越来越被接受,并成为医疗决策的黄金标准。尽管如此,关于SDM的几个方面仍然存在分歧,许多现有的模型或版本没有充分解决这些问题,包括:在实践中使用SDM的哪个版本或模型缺乏共识;在何时应利用可持续发展机制方面存在实际限制;SDM在为丧失决策能力或能力的病人或从一开始就没有这种能力的病人做决定时,可能被要求使用不同的“伤害阈值”;许多现有的SDM模型屈服于所谓的“框架问题”,以及其他问题。在其他地方,作者提出了一个SDM模型,标题为专业驱动的患者或代理自由裁量权区域(或专业驱动的ZPSD),作为一个更全面和更可靠的前进方向。本文旨在扩展该模型的预期收益,并将其应用于急性护理环境中的几个案例研究,以证明其作为SDM模型的功能。
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引用次数: 0
Data Privacy in Medical Informatics and Electronic Health Records: A Bibliometric Analysis. 医学信息学和电子健康记录中的数据隐私:文献计量学分析。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-05-14 DOI: 10.1007/s10728-025-00519-0
Kemal Hakan Gulkesen, Esra Tokur Sonuvar

This study aims to evaluate scientific publications on "Medical Informatics" and "Data Privacy" using a bibliometric approach to identify research trends, the most studied topics, and the countries and institutions with the highest publication output. The search was carried out utilizing the WoS Clarivate Analytics tool across SCIE journals. Subsequently, text mining, keyword clustering, and data visualization were applied through the use of VOSviewer and Tableau Desktop software. Between 1975 and 2023, a total of 7,165 articles were published on the topic of data privacy. The number of articles has been increasing each year. The text mining and clustering analysis identified eight main clusters in the literature: (1) Mobile Health/Telemedicine/IOT, (2) Security/Encryption/Authentication, (3) Big Data/AI/Data Science, (4) Anonymization/Digital Phenotyping, (5) Genomics/Biobank, (6) Ethics, (7) Legal Issues, (8) Cloud Computing. On a country basis, the United States was identified as the most active country in this field, producing the most publications and receiving the highest number of citations. China, the United Kingdom, Canada, and Australia also emerged as significant countries. Among these clusters, "Mobile Health/Telemedicine/IOT," "Security/Encryption/Authentication," and "Cloud Computing" technologies stood out as the most prominent and extensively studied topics in the intersection of medical informatics and data privacy.

本研究旨在利用文献计量学方法评估“医学信息学”和“数据隐私”方面的科学出版物,以确定研究趋势、研究最多的主题以及出版产量最高的国家和机构。检索是利用WoS Clarivate Analytics工具在SCIE期刊中进行的。随后,通过使用VOSviewer和Tableau Desktop软件进行文本挖掘、关键字聚类和数据可视化。从1975年到2023年,共有7165篇关于数据隐私的文章发表。文章的数量每年都在增加。文本挖掘和聚类分析确定了文献中的八个主要聚类:(1)移动健康/远程医疗/物联网,(2)安全/加密/认证,(3)大数据/人工智能/数据科学,(4)匿名化/数字表型,(5)基因组学/生物银行,(6)伦理学,(7)法律问题,(8)云计算。就国家而言,美国被确定为这一领域最活跃的国家,出版的出版物最多,被引用的次数最多。中国、英国、加拿大和澳大利亚也成为重要国家。在这些集群中,“移动健康/远程医疗/物联网”、“安全/加密/认证”和“云计算”技术是医疗信息学与数据隐私交叉领域最突出、研究最广泛的主题。
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引用次数: 0
Correction: A Study on Consumer-Centric Health Information Provision Strategy Using SWOT-AHP-Focusing on the National Health Information Portal. 更正:基于swot - ahp的以消费者为中心的卫生信息提供策略研究——以国家卫生信息门户网站为例。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-04-11 DOI: 10.1007/s10728-025-00515-4
Jaeeun Baek
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引用次数: 0
Double Threshold Prioritarianism - Some Problems and Solutions. 双门槛优先主义——若干问题及解决办法。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-03-28 DOI: 10.1007/s10728-025-00517-2
Adam Ehlert
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引用次数: 0
Prudent Physician Anger in Patient-Physician Interactions. 医患互动中的谨慎医师愤怒。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-03-01 Epub Date: 2025-01-03 DOI: 10.1007/s10728-024-00506-x
Stephen Buetow

This paper questions the conventional wisdom that physicians must suppress anger in response to patient misbehaviour. It distinguishes the emotion of anger from its expression, which leans toward concerned frustration and disappointment for the sake of professionalism in patient care. Drawing on the framework of person-centred health care as a virtue ethic, the paper first suggests four reasons why and when physician anger toward patient behaviour may occasionally be appropriate: the inevitability of sometimes feeling angry, anger as a cognitive and behavioural resource, physician well-being, and potential patient benefit. The paper then proposes five conditions under which physician anger displays may be prudent as a measured response that balances emotional expression with professional conduct: ethical intention, rational justification, proportionality, problem-focused constructive expression, and precision. Potential benefits of this conceptualization of prudent anger include improved physician wellbeing, enhanced communication, and patient education to address perceived patient misbehaviour. The paper advocates for a cultural shift in health care environments to help allow for more authentic expression of physician frustration, aiming to harness prudent anger as a catalyst for positive change in patient-physician relationships and systemic improvements in health care delivery.

这篇论文质疑传统的智慧,医生必须抑制愤怒,以回应病人的不当行为。它区分了愤怒的情绪和愤怒的表达,愤怒的表达倾向于关心的沮丧和失望,这是为了专业地照顾病人。利用以人为本的医疗保健作为一种美德伦理的框架,本文首先提出了医生对患者行为偶尔愤怒的四个原因:有时感到愤怒是不可避免的,愤怒作为一种认知和行为资源,医生的福祉,以及潜在的患者利益。然后,论文提出了五个条件,在这些条件下,医生的愤怒表现可能是谨慎的,作为一种平衡情绪表达和职业行为的有衡量的反应:道德意图、理性辩护、相称性、以问题为中心的建设性表达和准确性。谨慎愤怒概念化的潜在好处包括提高医生的幸福感,加强沟通,以及对患者的教育,以解决患者的不当行为。本文提倡在医疗环境中进行文化转变,以帮助医生更真实地表达沮丧,旨在利用谨慎的愤怒作为催化剂,促进医患关系的积极变化和医疗服务的系统性改进。
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引用次数: 0
Do Doctors Have a Responsibility to Challenge the Distorting Influence of Commerce on Healthcare Delivery? The Case of Assisted Reproductive Technology. 医生是否有责任质疑商业对医疗服务的扭曲影响?辅助生殖技术案例。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-03-01 Epub Date: 2024-11-19 DOI: 10.1007/s10728-024-00500-3
Craig Stanbury, Ian Kerridge, Ainsley J Newson, Narcyz Ghinea, Wendy Lipworth

Medicine has always existed in a marketplace, and there have been extensive discussions about the ethical implications of commerce in health care. For the most part, this discussion has focused on health professionals' interactions with pharmaceutical and other health technology industries, with less attention given to other types of commercial influences, such as corporatized health services and fee-for-service practice. This is a significant lacuna because in many jurisdictions, some or all of healthcare is delivered in the private sector. Using the exemplar of Assisted Reproductive Technologies (ART), this paper asks: what, if any, responsibilities do doctors have to challenge the distorting influence of commerce in healthcare, other than those arising from their own interactions with health technology companies? ART provides a good focus for this question because it is an area of practice that has historically been provided in the private sector. First, we describe a range of concepts that offer helpful heuristics for capturing how and when doctors can reasonably be said to have responsibilities to resist commercial distortion, including: complicity, acquiescence, wilful ignorance, non-wilful ignorance, and duplicity. Second, we present ways that individual doctors can act to stop questionable behaviour on the part of their colleagues, clinics/corporations, and their profession. Third, we note that there are many situations where change cannot be achieved by individuals acting alone, and so we consider the responsibilities of health professionals as collectives as well as the role that professional bodies and regulators should play.

医学一直存在于市场之中,人们一直在广泛讨论商业在医疗保健中的伦理影响。在大多数情况下,这种讨论主要集中在医疗专业人员与制药业和其他医疗技术行业的互动上,而较少关注其他类型的商业影响,如公司化医疗服务和收费服务实践。这是一个重大空白,因为在许多司法管辖区,部分或全部医疗服务都是由私营部门提供的。本文以辅助生殖技术(ART)为例,提出以下问题:除了医生自身与医疗技术公司之间的互动所产生的责任之外,医生还有什么责任来挑战商业对医疗保健的扭曲性影响?抗逆转录病毒疗法(ART)为这一问题提供了一个很好的焦点,因为它是一个历来由私营部门提供的实践领域。首先,我们描述了一系列概念,这些概念提供了有用的启发式方法,以把握医生如何以及何时可以被合理地认为有责任抵制商业扭曲,这些概念包括:共谋、默许、故意无知、非故意无知和两面派。其次,我们提出了医生个人可以采取行动制止其同事、诊所/公司以及其职业的可疑行为的方法。第三,我们注意到,在许多情况下,单靠个人的力量是无法改变现状的,因此我们考虑了作为集体的医疗专业人员的责任,以及专业机构和监管者应该发挥的作用。
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引用次数: 0
Mandatory COVID-19 Vaccination in the Health Sector: a Comparative Approach Between the Greek and American Examples. 卫生部门强制接种 COVID-19 疫苗:希腊与美国实例的比较方法。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-03-01 Epub Date: 2024-12-15 DOI: 10.1007/s10728-024-00502-1
Ioanna Pervou, Panagiotis Mpogiatzidis

A few months after national vaccination campaigns were initiated around early 2021, the discussion regarding the mandatory vaccination of healthcare workers started gaining ground in most European states and also in the United States. The debate on whether healthcare workers should be required to be vaccinated has been fueled by three main reasons: the high transmissibility rate of the Delta variant, which posed a significant risk to national healthcare systems across Europe and the Americas, as well placing high pressure on intensive care units even in the summer months (a); states' inability to impose general lockdowns and social distancing measures during the 2022 winter due to financial hardship and fears of an ongoing recession (b); and governmental unwillingness to implement restrictive measures, having in mind their populations' tiredness from previous lockdowns (c). This paper will explore the legal and managerial implications of mandatory vaccination among healthcare workers and will argue that it has the capacity to be a successful part of effective national healthcare systems in the search for responsible professionals to staff them. It will argue that national vaccination strategies are dependent on states' national healthcare models. It will show how the major difference in healthcare models of the two states chosen as examples have affected their vaccination policies and their reception by healthcare personnel. Finally, it will prove that the advantages of mandatory vaccination for healthcare personnel outweigh prospected disadvantages, irrespective of ethical, or legal justification is applied. This research will go through the key points of the legislative provisions of the two states (a); it will delve into their legal (b) and managerial implications (c); and finally, it will go through the policy questions which arose (d). It will prove how selective mandatory vaccination policies may be applied to national healthcare systems with foundational differences in their conception. Thus, it will demonstrate that selective mandatory vaccination is a viable option both for models approaching health from a societal perspective, and from the liberal ones.

在2021年初前后启动全国疫苗接种运动几个月后,关于卫生保健工作者强制接种疫苗的讨论开始在大多数欧洲国家和美国取得进展。关于是否应该要求卫生保健工作者接种疫苗的辩论主要有三个原因:德尔塔病毒变体的高传播率,对整个欧洲和美洲的国家卫生保健系统构成了重大风险,并且即使在夏季也给重症监护病房带来了巨大压力(a);由于财政困难和对持续衰退的担忧,各国无法在2022年冬季实施全面封锁和保持社会距离措施(b);政府不愿意实施限制性措施,考虑到他们的人口从以前的封锁中感到疲倦(c)。本文将探讨在卫生保健工作者中强制接种疫苗的法律和管理含义,并将认为它有能力成为有效的国家卫生保健系统中寻找负责任的专业人员的成功组成部分。它将争辩说,国家疫苗接种战略取决于各州的国家卫生保健模式。它将展示作为例子的两个州的保健模式的主要差异如何影响了它们的疫苗接种政策和保健人员对疫苗的接受。最后,它将证明,强制接种疫苗的卫生保健人员的优点大于预期的缺点,无论伦理或法律理由适用。本研究将梳理两州立法规定的重点(a);它将深入研究其法律(b)和管理影响(c);最后,它将通过出现的政策问题(d)。它将证明如何选择性强制性疫苗接种政策可以应用于国家卫生保健系统的基本概念的差异。因此,它将证明,无论是从社会角度还是从自由角度来看,选择性强制接种疫苗都是一种可行的选择。
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引用次数: 0
Physician Burnout: The Making of a Crisis. 医生职业倦怠:危机的形成。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-03-01 Epub Date: 2024-11-14 DOI: 10.1007/s10728-024-00496-w
Paul J Wojda

This essay places contemporary efforts to understand and respond to the crisis of physician burnout in historical perspective, proposing that the origins of such efforts lie in nineteenth century concerns over "nervous exhaustion," well before the term "physician burnout" was coined by social scientists in the early 1970s. Only very recently, however, have physician-scholars started to bring more sophisticated tools to bear in conceptualizing the problem, moving from a "systems approach" to the most recent efforts to frame the issue as a problem of corporate culture. The essay proposes that these different approaches to physician burnout illustrate the changing self-images of the medical profession over the last century and a half. Because such self-images are embedded in normative assumptions, contextualizing physician burnout in these terms reveals the crisis to be as much social and political as professional.

这篇文章从历史的角度阐述了当代理解和应对医生职业倦怠危机的努力,提出这种努力的起源是十九世纪对 "神经衰竭 "的担忧,远早于社会科学家在二十世纪七十年代初创造的 "医生职业倦怠 "一词。然而,直到最近,医生学者才开始使用更先进的工具来概念化这一问题,从 "系统方法 "到最近将这一问题归结为企业文化问题的努力。文章认为,这些不同的医生职业倦怠研究方法说明了医疗行业在过去一个半世纪中不断变化的自我形象。由于这种自我形象根植于规范性假设之中,因此从这些角度来分析医生职业倦怠问题,就会发现这场危机既是职业性的,也是社会性和政治性的。
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引用次数: 0
What is the Best Approach to Removing the Social Stigma from the Diagnosis of Gender Dysphoria? 从性别焦虑症的诊断中去除社会污名的最佳方法是什么?
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-03-01 Epub Date: 2025-01-09 DOI: 10.1007/s10728-024-00509-8
Charalampos Milionis

Historically, the transgender population has faced prejudice and discrimination within society. The purpose of diagnostic terms is to direct clinical care and facilitate insurance coverage. However, the existence of a medical diagnosis for gender nonconformity can exacerbate the stigmatization of transgender people with adverse consequences on their emotional health and social life. Whether transgenderism and gender dysphoria are indeed a psychopathological condition or even any kind of nosological entity is a contested issue. Many advocates of human rights, trans activists, social scientists, and clinicians support either the removal of gender incongruence from the list of mental disorders or at least its transfer to a separate category. Reforming the classification is an intermediate step toward depathologization and permits access to transgender-related care. Nonetheless, it partly preserves the stigma associated with abnormality and puts the availability of psychiatric care at risk. A more radical approach dictates that the classification of diseases serves exclusively medical purposes and must be dissociated from the respect for the legitimacy of one's autonomy and dignity. In the long term, only a swing in societal values can detach stigma from mental and physical illnesses. Enhancing collective respect for life, human rights, and diversity is the best way to achieve cohesion and well-being among members of society. Health professionals can be pioneers of social change in this field.

从历史上看,跨性别人群在社会上一直面临着偏见和歧视。诊断术语的目的是指导临床护理和促进保险范围。然而,存在性别不一致的医学诊断可能加剧对跨性别者的污名化,对他们的情感健康和社会生活产生不利后果。跨性别主义和性别不安是否确实是一种精神病理状态,甚至是任何一种疾病实体,这是一个有争议的问题。许多人权倡导者、跨性别活动家、社会科学家和临床医生都支持将性别不一致从精神障碍的列表中删除,或者至少将其转移到一个单独的类别。改革分类是走向去病理性化的中间步骤,并允许获得与跨性别有关的护理。尽管如此,它在一定程度上保留了与异常有关的污名,并使精神科护理的可用性面临风险。一种更为激进的做法是,疾病分类完全用于医疗目的,必须与尊重个人自主和尊严的合法性分开。从长远来看,只有社会价值观的转变才能将精神和身体疾病的污名化。加强对生命、人权和多样性的集体尊重,是实现社会成员之间的凝聚力和福祉的最佳途径。卫生专业人员可以成为这一领域社会变革的先驱。
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引用次数: 0
Immigration Policy as a Social Determinant of Health among Brazilian Immigrants in the United States: A Narrative Review. 移民政策作为美国巴西移民健康的社会决定因素:叙述性综述》。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-03-01 Epub Date: 2024-11-12 DOI: 10.1007/s10728-024-00499-7
Erick da Luz Scherf, Sahar Badiezadeh

The pervasive effects of increasingly restrictive migration policies on the health of immigrant populations in the U.S. have been well-documented, but not so much concerning the unique experiences of Brazilian immigrants, a subgroup of the Latino/a/x population. Considering that, this narrative review article employs a research design that is both conceptual and exploratory-to understand the possible connections and associations between restrictive immigration policies and negative health outcomes among Brazilian immigrants in the U.S. Findings indicate that Brazilian immigrants in the U.S. face an array of health and non-health related challenges, including racism and poor working conditions, with undocumented individuals experiencing worse outcomes. Studies highlight the complex relationship between immigration policies and health and emphasize the detrimental effects of deportation fear, healthcare access obstacles, and mental health repercussions due to hostile immigration policymaking and generalized anti-immigrant sentiment. More research is needed to understand the unique challenges faced by the Brazilian immigrant population concerning several mental and physical health outcomes.

越来越多的限制性移民政策对美国移民健康的普遍影响已被充分记录,但对巴西移民(拉丁裔/a/x 人口中的一个亚群体)的独特经历却鲜有报道。考虑到这一点,这篇叙述性综述文章采用了一种既概念性又探索性的研究设计,以了解限制性移民政策与美国巴西移民的负面健康结果之间可能存在的联系和关联。研究突显了移民政策与健康之间的复杂关系,并强调了由于敌意的移民政策制定和普遍的反移民情绪而造成的递解出境恐惧、获得医疗保健的障碍和心理健康影响等不利影响。需要开展更多的研究,以了解巴西移民在若干身心健康结果方面所面临的独特挑战。
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引用次数: 0
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