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System's Crisis Resilience as a Societal Crisis: Knowledge Structure and Gaze of the Finnish Health Care System. 作为社会危机的系统危机复原力:芬兰医疗保健系统的知识结构与目光。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-01-22 DOI: 10.1007/s10728-023-00479-3
Matias Heikkilä, Ossi Heino, Pauli Rautiainen

The crisis resilience of vital social systems is currently the target of constant development efforts in Finland, as their drifting into crisis would weaken societies' functional abilities, safety, and security. This is also the case regarding the Finnish health care system. In an attempt to move beyond existing frameworks of crisis imagination, this article takes an unconventional stance by elucidating endogenous crisis dynamics present in the Finnish health care system. Delphi process was conducted for top experts in Finnish health care and crisis management. With a dissensus-seeking orientation, our aim was to fertilize disagreements among panelists to reveal key vulnerabilities in the health system. Despite our efforts to evoke dissensus, the panelists ended up generating a consensus that aims to protect the underlying assumptions of the health system's knowledge structure. Through inductive analysis of expert discourses, the data was analyzed through our research question "what constitutes a crisis-proof health system and a crisis-prone health system". What is framed as a strength of the system by our panelists, namely the ability to maintain legitimacy, improve efficiency, and guarantee continuity, can still have questionable implications that are left ungrasped. A system's theory approach illustrates how such effects can develop and escalate beyond the reach of social interventions, and thus be predisposed to cause objectionable yet concealed social crises. The discussion illustrates how these endogenous crisis dynamics could be seen to materialize in real-life cases.

重要社会系统的抗危机能力是芬兰目前不断努力发展的目标,因为这些系统陷入危机会削弱社会的功能能力、安全和保障。芬兰的医疗保健系统也是如此。为了超越现有的危机想象框架,本文采取了一种非常规的立场,阐明了芬兰医疗保健系统中存在的内生危机动态。本文对芬兰医疗保健和危机管理领域的顶级专家进行了德尔菲法研究。在寻求共识的导向下,我们的目标是在专家小组成员之间弥合分歧,以揭示医疗系统中的关键薄弱环节。尽管我们努力唤起共识,但小组成员最终还是达成了共识,旨在保护医疗系统知识结构的基本假设。通过对专家论述的归纳分析,我们通过研究问题 "什么是可应对危机的医疗卫生系统和易发生危机的医疗卫生系统 "对数据进行了分析。我们的专家小组成员将其归结为系统的优势,即维持合法性、提高效率和保证连续性的能力,但这些优势也可能会带来一些未被理解的问题。系统理论的方法说明了这种影响是如何在社会干预范围之外发展和升级的,从而容易引发令人反感但又被掩盖的社会危机。讨论说明了在现实生活中如何可以看到这些内生的危机动态。
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引用次数: 0
The Doctor-Patient Relationship, Partnership Theory, and the Patient as Partner: Finding a Balance Between Domination and Partnership 医患关系、伙伴关系理论和作为合作伙伴的患者:在支配与合作之间寻求平衡
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-01-20 DOI: 10.1007/s10728-023-00473-9
Charles J. Kowalski, Richard W. Redman, Adam J. Mrdjenovich

It is perhaps most useful to approach the Doctor-Patient relationship (DPR) by admitting that it’s complicated. We review some of the strategies that have been employed to mitigate this complexity, zeroing in on one that promises to capture the main features of the DPR without eliminating some of its more important, existential components; pieces of the puzzle that must be retained if we are to avoid oversimplification and the errors that can arise by ignoring important foundational properties. We believe that a useful way to look at the DPR and to capture essential features that must be balanced in the process is provided by Partnership Theory and its definition in terms of the so-called domination and partnership systems. We apply this theory to the DPR and investigate the implications of this application to health care. We see that in the absence of mitigating circumstances, adoption of the patient-as-partner model serves healthcare well and is flexible enough to accommodate circumstances that dictate modifications.

在处理医患关系(DPR)时,承认它的复杂性也许是最有用的方法。我们回顾了为缓解这种复杂性而采用的一些策略,其中有一种策略有望抓住医患关系的主要特征,同时又不会忽略其中一些更重要的存在要素;如果我们要避免过度简化和因忽略重要的基础属性而可能产生的错误,就必须保留拼图的一部分。我们认为,"伙伴关系理论"(Partnership Theory)及其所谓的 "支配与伙伴关系体系"(dominination and partnership systems)的定义,为我们提供了一种审视 DPR 的有用方法,并抓住了在这一过程中必须加以平衡的基本特征。我们将这一理论应用于 DPR,并研究其对医疗保健的影响。我们发现,在没有不利因素的情况下,采用 "患者即伙伴 "模式能够很好地服务于医疗保健,并且具有足够的灵活性,能够适应需要修改的情况。
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引用次数: 0
The Lifeworld of the Complex Care Hospital Doctor: A Complex Adaptive Phenomenological Study. 复杂护理医院医生的生活世界:复杂适应现象学研究》。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-01-19 DOI: 10.1007/s10728-023-00474-8
Felice Borghmans, Stella Laletas, Harvey Newnham, Venesser Fernandes

The ever-increasing prevalence of chronic conditions over the last half century has gradually altered the demographic of patients admitted to acute care settings; environments traditionally associated with episodic care rather than chronic and complex healthcare. In consequence, the lifeworld of the hospital medical doctor often entails healthcare for a complex, multi-morbid, patient cohort. This paper examines the experience of providing complex healthcare in the pressurised and fast-paced acute care setting. Four medical doctors from two metropolitan health services were interviewed and their data were analysed using a combinatorial framework of phenomenology and complexity theory. The horizon of complex care revealed itself as dynamic, expansive, immersive, and relational, entailing a specialised kind of practice that is now common in acute care settings. Yet this practice has made inroads largely without heralding the unique nature and potential of its ground. Herein lies opportunity for complex care clinicians to expand notions of health and illness, and to shape research, practice, and system design, for a future in which care for health complexity is optimised, irrespective of care settings.

在过去的半个世纪里,慢性病的发病率不断上升,逐渐改变了急症护理环境中的病人构成;传统上,急症护理环境与偶发疾病护理而非慢性病和复杂疾病护理相关联。因此,医院医生的生活世界往往需要为复杂、多病的病人群体提供医疗服务。本文探讨了在压力大、节奏快的急诊环境中提供复杂医疗服务的经验。我们采访了来自两个大都市医疗服务机构的四名医生,并采用现象学和复杂性理论的组合框架对他们的数据进行了分析。复杂性护理的视野是动态的、广阔的、身临其境的和关系性的,需要一种特殊的实践,这种实践现在在急症护理环境中很常见。然而,这种做法在很大程度上没有宣传其独特的性质和潜力。复杂性护理临床医生在此有机会扩展健康与疾病的概念,并塑造研究、实践和系统设计,从而在未来优化复杂性健康护理,而不论护理环境如何。
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引用次数: 0
Flourishing, Mental Health Professionals and the Role of Normative Dialogue. 幸福、心理健康专业人员和规范性对话的作用。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-01-12 DOI: 10.1007/s10728-023-00478-4
Hazem Zohny, Julian Savulescu, Gin S Malhi, Ilina Singh

This paper explores the dilemma faced by mental healthcare professionals in balancing treatment of mental disorders with promoting patient well-being and flourishing. With growing calls for a more explicit focus on patient flourishing in mental healthcare, we address two inter-related challenges: the lack of consensus on defining positive mental health and flourishing, and how professionals should respond to patients with controversial views on what is good for them. We discuss the relationship dynamics between healthcare providers and patients, proposing that 'liberal' approaches can provide a pragmatic framework to address disagreements about well-being in the context of flourishing-oriented mental healthcare. We acknowledge the criticisms of these approaches, including the potential for unintended paternalism and distrust. To mitigate these risks, we conclude by suggesting a mechanism to minimize the likelihood of unintended paternalism and foster patient trust.

本文探讨了精神医疗专业人员在平衡精神障碍治疗与促进患者福祉和发展时所面临的困境。随着越来越多的人呼吁在精神医疗保健中更加明确地关注患者的健康成长,我们探讨了两个相互关联的挑战:对积极心理健康和健康成长的定义缺乏共识,以及专业人员应如何应对对什么是对自己有益的观点有争议的患者。我们讨论了医疗服务提供者与患者之间的关系动态,提出 "自由主义 "方法可以提供一个务实的框架,在以蓬勃发展为导向的心理医疗保健中解决有关幸福的分歧。我们承认对这些方法的批评,包括可能会产生意想不到的家长作风和不信任。为了降低这些风险,我们最后提出了一种机制,以最大限度地减少意外家长式管理的可能性,并促进患者的信任。
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引用次数: 0
A Qualitative Research Survey on Cardiologist’s Ethical Stance in Cases of Moral Dilemmas in Cardiology Clinics 关于心脏病医生在心脏病诊所道德困境中的伦理立场的定性研究调查
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-01-03 DOI: 10.1007/s10728-023-00476-6
Banu Buruk, Perihan Elif Ekmekci, Aksüyek Savaş Çelebi, Begüm Güneş

This study sought to determine cardiologists’ degrees of ethical awareness and preferred courses of action for ethical dilemmas frequently encountered in clinical settings. For this evaluation, an online survey was created and sent to cardiologists affiliated with various academic posts in Ankara, Turkey. The survey included ten cases with various ethical considerations selected from our book, “Clinic Ethics with Cases from Cardiology.” Four possible action choices were defined for each case. Participants were asked to choose one or more of these preferences. In addition, a fictional change was made in each case’s context without changing the original ethical issue, and participants were asked whether an attitude different from the first chosen one was preferred. The participation ratio was 49/185 (26%), consent ratio 47/185 (25,4%), and completion ratio 44/185 (23,7%). Nine of the ten scenario changes did not change participants’ preferred action. For most questions, action preferences were concentrated between the two options. Although legal regulations did not reduce ethical dilemmas, they clarified physicians’ action preferences. Similarly, as an obscure moral issue gained prominence, physicians were forced to draw clearer lines in their actions. External factors such as healthcare emergencies can change physicians’ ethical dilemma-solving attitudes.

本研究旨在确定心脏病专家对伦理的认识程度,以及他们对临床中经常遇到的伦理困境的首选处理方案。为进行评估,我们制作了一份在线调查问卷,并发送给土耳其安卡拉不同学术岗位的心脏病专家。调查内容包括从我们的著作《心脏病学临床伦理案例》中选取的十个具有各种伦理考虑因素的案例。每个案例都有四种可能的行动选择。要求参与者选择其中一个或多个。此外,在不改变原有伦理问题的情况下,对每个案例的背景进行了虚构的改变,并询问参与者是否更倾向于与第一种选择不同的态度。参与比例为 49/185(26%),同意比例为 47/185(25.4%),完成比例为 44/185(23.7%)。在 10 个情景变化中,有 9 个没有改变参与者的首选行动。对于大多数问题,行动偏好集中在两个选项之间。虽然法律规定并没有减少道德困境,但却明确了医生的行动偏好。同样,当一个模糊的道德问题变得突出时,医生也不得不在行动中划出更清晰的界限。医疗紧急情况等外部因素会改变医生解决道德困境的态度。
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引用次数: 0
An Egalitarian Perspective on Information Sharing: The Example of Health Care Priorities 信息共享的平等主义视角:以医疗保健优先事项为例
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2023-12-30 DOI: 10.1007/s10728-023-00475-7

Abstract

In health care, the provision of pertinent information to patients is not just a moral imperative but also a legal obligation, often articulated through the lens of obtaining informed consent. Codes of medical ethics and many national laws mandate the disclosure of basic information about diagnosis, prognosis, and treatment alternatives. However, within publicly funded health care systems, other kinds of information might also be important to patients, such as insights into the health care priorities that underlie treatment offers made. While conventional perspectives do not take this as an obligatory part of the information to be shared with patients, perhaps through viewing it as clinically “non-actionable,” we advocate for a paradigm shift. Our proposition diverges from the traditional emphasis on actionability. We contend that honoring patients as equal moral agents necessitates, among other principles, a commitment to honesty. Withholding specific categories of information pertinent to patients’ comprehension of their situation is inherently incompatible with this principle. In this article, we advocate for a recalibration of the burden of proof. Rather than requiring special justifications for adding to the standard set of information items, we suggest that physicians should be able to justify excluding relevant facts about the patient’s situation and the underlying considerations shaping health care professionals’ choices. This perspective prioritizes transparency and empowers patients with a comprehensive understanding, aligning with the ethos of respect for the patient as person.

摘要 在医疗保健领域,向患者提供相关信息不仅是一项道德要求,也是一项法律义务,通常是通过获得知情同意的角度来阐述的。医学伦理守则和许多国家的法律都规定,必须披露有关诊断、预后和治疗方案的基本信息。然而,在政府资助的医疗系统中,其他类型的信息对病人来说也可能是重要的,比如对所提供的治疗方案所依据的医疗优先事项的深入了解。虽然传统观点并不把这些信息视为必须与患者共享的信息,也许是认为这些信息在临床上是 "不可操作的",但我们主张进行模式转变。我们的主张与强调可操作性的传统观点不同。我们认为,尊重患者作为平等的道德主体,除其他原则外,还必须承诺诚实。隐瞒与患者理解自身情况相关的特定类别信息本质上不符合这一原则。在本文中,我们主张重新调整举证责任。我们建议,医生不需要为增加标准信息项目提供特殊理由,而是应该能够为排除与患者情况相关的事实以及影响医护人员选择的基本考虑因素提供正当理由。这种观点将透明度放在首位,使患者能够全面了解情况,符合尊重患者人格的精神。
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引用次数: 0
The Effects of Introducing a Harm Threshold for Medical Treatment Decisions for Children in the Courts of England & Wales: An (Inter)National Case Law Analysis 英格兰和威尔士法院在儿童医疗决定中引入伤害阈值的影响:国家间判例法分析
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2023-12-18 DOI: 10.1007/s10728-023-00472-w
Veronica M. E. Neefjes

The case of Charlie Gard sparked an ongoing public and academic debate whether in court decisions about medical treatment for children in England & Wales the best interests test should be replaced by a harm threshold. However, the literature has scantly considered (1) what the impact of such a replacement would be on future litigation and (2) how a harm threshold should be introduced: for triage or as standard for decision-making. This article directly addresses these gaps, by first analysing reported cases in England & Wales about medical treatment in the context of a S31 order, thus using a harm threshold for triage and second comparing court decisions about medical treatment for children in England & Wales based on the best interest test with Dutch and German case law using a harm threshold. The investigation found that whilst no substantial increase of parental discretion can be expected an introduction of a harm threshold for triage would change litigation. In particular, cases in which harm is limited, currently only heard when there are concerns about parental decision-making, may be denied a court hearing as might cases in which the child has lost their capacity to suffer. Applying a harm threshold for triage in decisions about withholding or withdrawing life-sustaining treatment might lead to a continuation of medical treatment that could be considered futile.

查理-加德一案引发了公众和学术界持续不断的讨论,即在英格兰和威尔士,有关儿童医疗的法庭裁决中,最大利益检验标准是否应被伤害阈值所取代。然而,文献很少考虑:(1)这种替代对未来诉讼的影响;(2)应如何引入伤害阈值:用于分流还是作为决策标准。本文直接针对这些空白,首先分析了英格兰和威尔士在 S31 命令背景下有关医疗的报告案例,从而使用伤害阈值进行分流;其次比较了英格兰和威尔士法院基于最佳利益检验做出的有关儿童医疗的判决与荷兰和德国使用伤害阈值的判例法。调查发现,虽然预计父母的自由裁量权不会大幅增加,但引入伤害阈值进行分流会改变诉讼。特别是,目前只有在对父母的决策表示担忧时才会审理的伤害有限的案件,可能会像儿童丧失受苦能力的案件一样,被剥夺法庭听证的机会。在决定暂停或撤消维持生命的治疗时,采用伤害分流阈值可能会导致继续进行可能被认为是徒劳的治疗。
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引用次数: 0
What’s Good About Inclusion? An Ethical Analysis of the Ideal of Social Inclusion for People with Profound Intellectual and Multiple Disabilities 包容有什么好处?对严重智障和多重残疾人士社会包容理想的伦理分析
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2023-12-11 DOI: 10.1007/s10728-023-00470-y
Simon van der Weele, Femmianne Bredewold

‘Social inclusion’ is the leading ideal in services and care for people with intellectual disabilities in most countries in the Global North. ‘Social inclusion’ can refer simply to full equal rights, but more often it is taken to mean something like ‘community participation’. This narrow version of social inclusion has become so ingrained that it virtually goes unchallenged. The presumption appears to be that there is a clear moral consensus that this narrow understanding of social inclusion is good. However, that moral consensus is not clear in the case of people with profound intellectual and/or multiple disabilities (PIMD), who are not able to express their needs and preferences verbally. Moreover, social inclusion has proven to be difficult to conceptualize and implement for people with PIMD. Therefore, it becomes imperative to ask about the ethical rationale of the narrow understanding of social inclusion. For what reasons do we think social inclusion is good? And do those reasons also apply for people with PIMD? This article addresses these questions by providing an ethical analysis of the ideal of social inclusion for people with PIMD. It discusses four ethical arguments for social inclusion and probes their relevance for people with PIMD. The article argues that none of these arguments fully convince of the value of the narrow understanding of social inclusion for people with PIMD. It ends with advocating for an ethical space for imagining a good life for people with PIMD otherwise.

在全球北方的大多数国家,"社会包容 "是为智障人士提供服务和护理的主要理想。社会包容 "可以简单地指完全平等的权利,但更多时候它被认为是 "社区参与 "的意思。这种狭义的社会包容已经根深蒂固,几乎不受质疑。人们似乎假定,对社会包容的这种狭义理解是好的,这在道德上已形成明确的共识。然而,对于无法用语言表达自己的需求和偏好的深度智力残疾和/或多重残疾人士(PIMD)来说,这种道德共识并不明确。此外,事实证明,对深度智障和/或多重残疾人士来说,社会包容很难概念化和实施。因此,当务之急是要问一问对社会包容的狭隘理解的伦理依据是什么。我们为什么认为社会包容是好事?这些理由是否也适用于 PIMD 患者?本文针对这些问题,从伦理角度分析了社会包容对多发性情感障碍患者的理想意义。文章讨论了社会包容的四个伦理论点,并探讨了这些论点与 PIMD 患者的相关性。文章认为,这些论点都不能让人完全信服狭义的社会包容对 PIMD 患者的价值。文章最后倡导为多发性精神障碍患者提供一个想象美好生活的伦理空间。
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引用次数: 0
Blacklisting Health Insurance Premium Defaulters: Is Denial of Medical Care Ethically Justifiable? 将医疗保险费拖欠者列入黑名单:拒绝医疗服务是否合乎道德?
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2023-12-01 Epub Date: 2023-07-27 DOI: 10.1007/s10728-023-00464-w
Hanna Glaus, Daniel Drewniak, Julian W März, Nikola Biller-Andorno

Rising health insurance costs and the cost of living crisis are likely leading to an increase in unpaid health insurance bills in many countries. In Switzerland, a particularly drastic measure to sanction defaulting insurance payers is employed. Since 2012, Swiss cantons - who have to cover most of the bills of defaulting payers - are allowed by federal law to blacklist them and to restrict their access to medical care to emergencies.In our paper, we briefly describe blacklisting in the context of the Swiss healthcare system before we examine the ethical issues involved in light of what is known about its social and health impacts. We found no evidence that blacklisting serves as an effective way of recovering unpaid health insurance contributions or of strengthening solidarity within the health insurance system. Furthermore, the ambiguous definitions of what constitutes an emergency treatment and the incompatibility of the denial of medical care with the obligation to provide professional assistance complicate the implementation of blacklists and expose care providers to enormous pressure.Therefore, we conclude that blacklists and the (partial) denial of medical care not only pose profound ethical problems but are also unsuitable for fulfilling the purpose for which they were introduced.

在许多国家,不断上升的医疗保险费用和生活费用危机可能导致未付医疗保险费用增加。在瑞士,采取了一项特别严厉的措施来制裁违约的保险付款人。自2012年以来,联邦法律允许瑞士各州将违约付款人列入黑名单,并限制他们在紧急情况下获得医疗服务。瑞士各州必须承担违约付款人的大部分账单。在我们的论文中,我们简要地描述了黑名单在瑞士医疗保健系统的背景下,我们检查了什么是已知的关于其社会和健康影响的光所涉及的伦理问题。我们没有发现任何证据表明,黑名单是一种有效的方式来收回未付的医疗保险缴款或加强医疗保险系统内的团结。此外,关于什么是紧急治疗的模糊定义以及拒绝提供医疗服务与提供专业援助的义务不相容,使黑名单的执行复杂化,并使护理提供者面临巨大压力。因此,我们的结论是,黑名单和(部分)拒绝提供医疗服务不仅造成了深刻的道德问题,而且也不适合实现引入它们的目的。
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引用次数: 0
Uninformed Origins: Should We Be Advising Parents on the Source of Medicines and Therapies? 不知情的来源:我们应该就药物和疗法的来源向父母提出建议吗?
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2023-12-01 Epub Date: 2023-08-03 DOI: 10.1007/s10728-023-00458-8
Tara E Ness, Zachary J Tabb, Janet Malek, Frank X Placencia

Respecting patient autonomy through the process of soliciting informed consent is a cornerstone of clinical ethics. In pediatrics, until a child becomes an adult or legally emancipated, that ethical tenet takes the form of respect for parental decision-making authority. In instances of respecting religious beliefs, doing so is not always apparent and sometimes the challenge lies not only in the healthcare provider's familiarity of religious restrictions but also their knowledge of medical interventions themselves which might conflict with those restrictions. We examine a case of a newborn receiving animal-derived surfactant, a common scenario in neonatology, and present considerations for providers to weigh when confronting when such an intervention might conflict with parent's religious beliefs. We end with strategizing ways to address this issue as a medical community.

通过征求知情同意的过程尊重患者的自主权是临床伦理的基石。在儿科学中,在孩子长大成人或获得法律上的自由之前,这种伦理原则的形式是尊重父母的决策权。在尊重宗教信仰的情况下,这样做并不总是显而易见的,有时挑战不仅在于医疗保健提供者对宗教限制的熟悉程度,而且在于他们对可能与这些限制相冲突的医疗干预措施本身的了解。我们研究了一个新生儿接受动物源性表面活性剂的病例,这是新生儿学中常见的情况,并提出了提供者在面对这种干预可能与父母的宗教信仰相冲突时要权衡的考虑。最后,我们将为医学界解决这一问题制定策略。
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引用次数: 0
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