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Premature Death as a Normative Concept. 作为规范概念的过早死亡。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-06-01 Epub Date: 2024-01-26 DOI: 10.1007/s10728-023-00471-x
Preben Sørheim, Mathias Barra, Ole Frithjof Norheim, Espen Gamlund, Carl Tollef Solberg

The practical goal of preventing premature death seems uncontroversial. But the term 'premature death' is vague with several, sometimes conflicting definitions. This ambiguity results in several conceptions with which not all will agree. Moreover, the normative rationale behind the goal of preventing premature deaths is masked by the operational definition of existing measures. In this article, we argue that 'premature death' should be recognized as a normative concept. We propose that normative theories should be used to justify measures of premature death to provide them with normative validity and public legitimacy.

预防过早死亡的实际目标似乎没有争议。但是,"过早死亡 "一词的定义模糊不清,有时甚至相互矛盾。这种模糊性导致了几种并非所有人都同意的概念。此外,现有措施的操作定义也掩盖了预防过早死亡这一目标背后的规范原理。在本文中,我们认为 "过早死亡 "应被视为一个规范性概念。我们建议使用规范理论来证明过早死亡措施的合理性,使其具有规范有效性和公共合法性。
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引用次数: 0
Correction: What's Good About Inclusion? An Ethical Analysis of the Ideal of Social Inclusion for People with Profound Intellectual and Multiple Disabilities. 更正:包容有什么好处?对严重智障和多重残疾人士融入社会理想的伦理分析》。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-06-01 Epub Date: 2024-02-02 DOI: 10.1007/s10728-024-00481-3
Simon van der Weele, Femmianne Bredewold
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引用次数: 0
Patient Knowledge and Trust in Health Care. A Theoretical Discussion on the Relationship Between Patients' Knowledge and Their Trust in Health Care Personnel in High Modernity. 患者对医疗保健的了解和信任。高现代性条件下患者知识与对医护人员信任关系的理论探讨。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-06-01 Epub Date: 2023-10-09 DOI: 10.1007/s10728-023-00467-7
Stein Conradsen, Henrik Vardinghus-Nielsen, Helge Skirbekk

In this paper we aim to discuss a theoretical explanation for the positive relationship between patients' knowledge and their trust in healthcare personnel. Our approach is based on John Dewey's notion of continuity. This notion entails that the individual's experiences are interpreted as interrelated to each other, and that knowledge is related to future experience, not merely a record of the past. Furthermore, we apply Niklas Luhmann's theory on trust as a way of reducing complexity and enabling action. Anthony Giddens' description and analysis of the high modern society provides a frame for discussing the preconditions for patient-healthcare personnel interaction. High modernity is dominated by expert systems and demands trust in these. We conclude that patient knowledge and trust in healthcare personnel is related because both knowledge and trust are future- and action-oriented concepts. The traits of high modernity provides opportunities and challenges as the personnel can and must perform discretion. This discretion must be made in a context where knowledge is considered uncertain and preliminary.

在本文中,我们旨在讨论患者的知识与他们对医护人员的信任之间正相关关系的理论解释。我们的方法是基于约翰·杜威的连续性概念。这一概念意味着个人的经历被解释为相互关联,知识与未来的经历有关,而不仅仅是过去的记录。此外,我们将Niklas Luhmann的信任理论应用于降低复杂性和促进行动。安东尼·吉登斯对高等现代社会的描述和分析为讨论患者与医护人员互动的前提条件提供了一个框架。高度现代化是由专家系统主导的,需要对这些系统的信任。我们得出结论,患者的知识和对医护人员的信任是相关的,因为知识和信任都是面向未来和行动的概念。高度现代化的特点为人员能够而且必须行使自由裁量权提供了机遇和挑战。这种自由裁量权必须在知识被认为是不确定和初步的情况下作出。
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引用次数: 0
Health-Oriented Environmental Categories, Individual Health Environments, and the Concept of Environment in Public Health. 以健康为导向的环境类别、个人健康环境和公共卫生中的环境概念。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-06-01 Epub Date: 2024-01-29 DOI: 10.1007/s10728-023-00477-5
Annette K F Malsch, Anton Killin, Marie I Kaiser

The term 'environment' is not uniformly defined in the public health sciences, which causes crucial inconsistencies in research, health policy, and practice. As we shall indicate, this is somewhat entangled with diverging pathogenic and salutogenic perspectives (research and policy priorities) concerning environmental health. We emphasise two distinct concepts of environment in use by the World Health Organisation. One significant way these concepts differ concerns whether the social environment is included. Divergence on this matter has profound consequences for the understanding of health and disease, for measures derived from that understanding targeting health promotion and disease prevention, and consequently, for epistemic structures and concept development in scientific practice. We hope to improve the given situation in public health by uncovering these differences and by developing a fruitful way of thinking about environment. Firstly, we side with the salutogenic conception of environment as a health resource (as well as a source of health risks). Secondly, we subdivide the concept of environment into four health-oriented environmental categories (viz., natural, built-material, socio-cultural, and psychosocial) and we link these with other theoretical notions proposed in the health sciences literature. Thirdly, we propose that in public health 'environment' should be understood as consisting of all extrinsic factors that influence or are influenced by the health, well-being, and development of an individual. Consequently, none of the four categories should be excluded from the concept of environment. We point out the practical relevance and fruitfulness of the conception of environment as a health source and frame this in causal terms, representing individual health environments as causal networks. Throughout, we side with the view that for the design of human health-promoting settings, increased attention and consideration of environmental resources of salutogenic potential is particularly pressing.

环境 "一词在公共卫生科学中的定义并不统一,这导致了研究、卫生政策和实践中的严重不一致。正如我们将要指出的,这在某种程度上与有关环境健康的致病和致救观点(研究和政策优先事项)的分歧纠缠在一起。我们强调世界卫生组织使用的两种不同的环境概念。这些概念的一个重要区别在于是否包括社会环境。在这一问题上的分歧对健康和疾病的理解、对从这种理解中得出的以促进健康和预防疾病为目标的措施,进而对科学实践中的认识结构和概念发展都有深远的影响。我们希望通过揭示这些分歧和发展一种富有成效的环境思维方式来改善公共卫生领域的现状。首先,我们支持将环境作为一种健康资源(以及健康风险的来源)的有益概念。其次,我们将环境概念细分为四个以健康为导向的环境类别(即自然、物质建筑、社会文化和社会心理),并将这些类别与健康科学文献中提出的其他理论概念联系起来。第三,我们提出,在公共卫生领域,"环境 "应被理解为包括所有影响或被影响个人健康、福祉和发展的外在因素。因此,这四个类别中的任何一个都不应排除在环境概念之外。我们指出了环境作为健康来源这一概念的现实意义和丰硕成果,并以因果关系为框架,将个体健康环境表述为因果网络。我们始终认为,在设计促进人类健康的环境时,更多地关注和考虑具有促进健康潜力的环境资源尤为迫切。
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引用次数: 0
The Ethics of Decentralized Clinical Trials and Informed Consent: Taking Technologies' Soft Impacts into Account. 分散临床试验和知情同意的伦理:考虑技术的软影响。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-05-19 DOI: 10.1007/s10728-024-00483-1
Tessa I van Rijssel, Ghislaine J M W van Thiel, Johannes J M van Delden

Decentralized clinical trials (DCTs) have the potential to advance the conduct of clinical trials, but raise several ethical issues, including obtaining valid informed consent. The debate on the ethical issues resulting from digitalization is predominantly focused on direct risks relating to for example data protection, safety, and data quality. We submit however, that a broader view on ethical aspects of DCTs is needed to touch upon the new challenges that come with the DCT practice. Digitalization has impacts that go beyond its direct purposes, by shaping behaviors, experiences, social relations, and values. We examine four elements of the informed consent procedure that are affected by DCTs, while taking these soft impacts of technologies into account: (i) informing participants and testing understanding, (ii) freedoms in relation to responsibilities and burdens, (iii) trust in participant-researcher relations, and (iv) impacts on the concept of privacy. Our analysis reveals that a broad view is key for optimal conduct of DCTs. In addition, it provides insight into the ethical impacts of DCTs on informed consent. Technologies such as DCTs potentially have profound impacts which are not immediately addressed by the existing regulatory frameworks, but nonetheless important to recognize. These findings can guide future practices of DCTs to foster the important values of clinical research in this novel approach for conducting clinical trials.

分散式临床试验(DCT)有可能推动临床试验的开展,但也会引发一些伦理问题,包括获得有效的知情同意。关于数字化带来的伦理问题的讨论主要集中在与数据保护、安全性和数据质量等相关的直接风险上。但我们认为,需要从更广的视角来看待 DCT 的伦理问题,以应对 DCT 实践带来的新挑战。数字化通过塑造行为、体验、社会关系和价值观,产生了超越其直接目的的影响。我们研究了知情同意程序中受 DCT 影响的四个要素,同时考虑到技术的这些软影响:(i) 告知参与者并测试其理解程度,(ii) 与责任和负担相关的自由,(iii) 参与者与研究者关系中的信任,以及 (iv) 对隐私概念的影响。我们的分析表明,广阔的视野是优化开展 DCT 的关键。此外,我们还深入分析了 DCT 对知情同意的伦理影响。像 DCT 这样的技术可能会产生深远的影响,而现有的监管框架并没有立即解决这些问题,但认识到这一点非常重要。这些发现可以指导未来的 DCT 实践,在这种新颖的临床试验方法中促进临床研究的重要价值。
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引用次数: 0
Moral Distress and Nursing Education: Curricular and Pedagogical Strategies for a Complex Phenomenon. 道德压力与护理教育:针对复杂现象的课程和教学策略》。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-03-01 Epub Date: 2023-09-04 DOI: 10.1007/s10728-023-00468-6
Sadie Deschenes, Cathryn van Kessel

Moral distress is a common phenomenon among nurses and is related to the complicated work environments and complex nature of ethical situations in day-to-day nursing practice. Moral distress impacts nurses as well as patient care and the health care system. Few strategies have been identified for instructors to effectively engage with learners when communicating about moral distress. We discuss two key curricular and pedagogical strategies that should be utilized when learning about moral distress: difficult knowledge' and 'terror management theory'. Whether it is with new nursing students or experienced nurses, there is necessary learning that needs to occur on moral distress. Difficult knowledge' and 'terror management theory', when implemented, can provide a starting point for both the learner and the instructor to discuss the emotionally difficult and complex topic of moral distress. Knowledge about moral distress has the potential to mitigate its negative effects, therefore it is vital to consider educational strategies to teach nurses about this complex phenomenon.

道德困扰是护士中的一种普遍现象,与日常护理实践中复杂的工作环境和道德状况的复杂性有关。道德困扰影响着护士以及病人护理和医疗保健系统。在与学习者交流道德困扰时,很少有教员能找到有效的策略。我们讨论了在学习道德困扰时应采用的两种关键课程和教学策略:"困难知识 "和 "恐怖管理理论"。无论是护理专业的新生还是经验丰富的护士,都需要对道德困扰进行必要的学习。困难知识 "和 "恐怖管理理论 "的实施可以为学习者和教师提供一个起点,以讨论道德困扰这一情感上困难而复杂的话题。有关精神痛苦的知识有可能减轻其负面影响,因此,考虑采取教育策略向护士传授有关这一复杂现象的知识至关重要。
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引用次数: 0
The Ethics of Population Policy for the Two Worlds of Population Conditions. 两个世界人口状况下的人口政策伦理。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-03-01 Epub Date: 2023-07-21 DOI: 10.1007/s10728-023-00462-y
Ming-Jui Yeh, Po-Han Lee

Population policy has taken two divergent trajectories. In the developing part of the world, controlling population growth has been a major tune of the debate more than a half-century ago. In the more developed part of the world, an inverse pattern results in the discussion over the facilitation of population growth. The ethical debates on population policy have primarily focused on the former and ignored the latter. This paper proposes a more comprehensive account that justifies states' population policy interventions. We first consider the reasons that support pro-natalist policies to enhance fertility rates and argue that these policies are ethically problematic. We then establish an ethics of population policy grounded on account of self-sustaining the body politic, which consists of four criteria: survival, replacement, accountability, and solidarity. We discuss the implications of this account regarding birth-control and pro-natalist policies, as well as non-procreative policies such as immigration, adoption, and unintended baby-saving strategies.

人口政策经历了两条不同的轨迹。在世界的发展中地区,控制人口增长是半个多世纪前辩论的主要议题。在世界较发达地区,关于促进人口增长的讨论则呈现出相反的模式。关于人口政策的伦理辩论主要集中在前者,而忽视了后者。本文提出了一种更全面的解释,为国家的人口政策干预提供依据。我们首先考虑了支持提高生育率的亲生育政策的原因,并认为这些政策在伦理上是有问题的。然后,我们建立了基于政治体自我维持的人口政策伦理,其中包括四个标准:生存、替代、问责和团结。我们讨论了这一论述对节育和支持生育政策以及移民、领养和意外保胎策略等非生育政策的影响。
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引用次数: 0
Why Health-enhancing Nudges Fail. 为什么促进健康的建议会失败?
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-03-01 Epub Date: 2023-07-21 DOI: 10.1007/s10728-023-00459-7
Thomas Schramme

Nudges are means to influence the will formation of people to make specific choices more likely. My focus is on nudges that are supposed to improve the health condition of individuals and populations over and above the direct prevention of disease. I point out epistemic and moral problems with these types of nudges, which lead to my conclusion that health-enhancing nudges fail. They fail because we cannot know which choices enhance individual health-properly understood in a holistic way-and because health-enhancing nudges are often themselves bad for our health. They can be bad for our health because they assume inferior agency in their targets and accordingly regularly lead to appropriate resentment and anger-strong emotions which go along with an increased risk of health impairments. Briefly, health-enhancing nudges fail because they are based on persistent ignorance and on a presumptuous attitude.

暗示是影响人们意志形成的手段,使人们更有可能做出特定的选择。我的重点是那些除了直接预防疾病之外,还能改善个人和群体健康状况的干预措施。我指出了这些类型的 "暗示 "在认识论和道德上存在的问题,并由此得出结论:改善健康的 "暗示 "是失败的。它们之所以失败,是因为我们无法知道哪些选择可以增进个人健康--从整体上正确理解--还因为增进健康的干预措施本身往往不利于我们的健康。它们可能对我们的健康不利,因为它们假定目标的代理权较低,因此经常导致适当的怨恨和愤怒--强烈的情绪伴随着健康受损风险的增加。简而言之,促进健康的暗示之所以失败,是因为它们建立在持续的无知和自以为是的态度之上。
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引用次数: 0
Consent for Medical Treatment: What is 'Reasonable'? 同意接受治疗:什么是 "合理"?
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-03-01 Epub Date: 2023-08-19 DOI: 10.1007/s10728-023-00466-8
Abeezar Ismail Sarela

The General Medical Council (GMC) instructs doctors to act 'reasonably' in obtaining consent from patients. However, the GMC does not explain what it means to be reasonable: it is left to doctors to figure out the substance of this instruction. The GMC relies on the Supreme Court's judgment in Montgomery v Lanarkshire Health Board; and it can be assumed that the judges' idea of reasonability is adopted. The aim of this paper is to flesh out this idea of reasonability. This idea is commonly personified as the audience that has to be satisfied by the doctor's justification for offering, or withholding, certain treatments and related information. In case law, this audience shifted from a reasonable doctor to a 'reasonable person in the patient's position'; and Montgomery expands the audience to include 'particular' patients, too. Senior judges have clarified that the reasonable person is a normative ideal, and not a sociological construct; but they do not set out the characteristics of this ideal. John Rawls has conceived the reasonable person-ideal as one that pursues fair terms of co-operation with other members of society. An alternative ideal can be inferred from the feminist ethic of care. However, the reasonable patient from Montgomery does not align with either theoretical ideal; but, instead, is an entirely rational being. Such a conception conflicts with both real-life constraints on rationality and the doctor's duty to care for the patient, and it challenges the practice of medicine.

医学总会(GMC)要求医生在征得病人同意时要 "合理 "行事。然而,GMC 并没有解释 "合理 "的含义:医生们只能自己去理解这一指令的实质。GMC 依据的是最高法院在 Montgomery 诉 Lanarkshire Health Board 一案中的判决;可以认为,该案采用了法官对合理性的理解。本文旨在充实这一合理性理念。这一概念通常被人格化为医生提供或拒绝提供某些治疗及相关信息的理由必须满足的受众。在判例法中,受众从合理的医生转变为 "处于患者地位的合理的人";蒙哥马利案则将受众扩大到 "特定 "患者。资深法官明确指出,合理的人是一种规范性的理想,而不是一种社会学建构;但他们并没有阐明这一理想的特征。约翰-罗尔斯(John Rawls)将 "合理的人 "理想设想为追求与社会其他成员合作的公平条件。从女权主义的护理伦理中可以推断出另一种理想。然而,蒙哥马利笔下的通情达理的病人并不符合这两种理论理想,相反,他是一个完全理性的人。这种观念既与现实生活中对理性的限制相冲突,也与医生照顾病人的职责相冲突,是对医学实践的挑战。
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引用次数: 0
Gendering the Pandemic: Women's Health Disparities From a Human Rights Perspective. 大流行病的性别化:从人权角度看妇女的健康差异。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-03-01 Epub Date: 2023-07-21 DOI: 10.1007/s10728-023-00463-x
JhuCin Rita Jhang, Po-Han Lee

As COVID-19 keeps impacting the world, its impact is felt differently by people of different sexes and genders. International guidelines and research on gender inequalities and women's rights during the pandemic have been published. However, data from Taiwan is lacking. This study aims to fill the gap to increase our knowledge regarding this issue and provide policy recommendations. This study is part of a more extensive project in response to the fourth state report concerning the implementation of the Convention on the Elimination of All Forms of Discrimination against Women in Taiwan in 2022. We have drawn on the guidelines and documents published by the United Nations human rights bodies, conducted interviews with advocacy and professional practitioners, and hosted a study group comprising students and teachers from the National Taiwan University College of Public Health to supplement the interview data. The data were analyzed thematically. The results include five themes: (1) particular health risks to carers (primarily women); (2) COVID-related measures' impact on women's health and health behaviors; (3) highly gendered psychological maladjustment; (4) increase in gender-based violence and domestic violence; and (5) mental health inequities and intersectionality. The study has global implications for societies of similar sociopolitical contexts and developmental statuses. To truly live up to the standard of CEDAW and other international human rights principles, we ask that central and local government be more aware of these lived experiences and adjust their policies accordingly, accounting for gender sensitivity.

随着 COVID-19 不断影响世界,不同性别的人对其影响的感受也不尽相同。关于大流行期间性别不平等和妇女权利的国际指南和研究已经出版。然而,却缺乏来自台湾的数据。本研究旨在填补这一空白,以增加我们对这一问题的了解并提供政策建议。本研究是为回应 2022 年台湾执行《消除对妇女一切形式歧视公约》第四次国家报告而开展的更广泛项目的一部分。我们参考了联合国人权机构发布的指导方针和文件,对倡导者和专业从业人员进行了访谈,并接待了一个由台湾大学公共卫生学院师生组成的研究小组,以补充访谈数据。对数据进行了专题分析。结果包括五个主题:(1) 照顾者(主要是女性)的特殊健康风险;(2) COVID 相关措施对女性健康和健康行为的影响;(3) 高度性别化的心理不适应;(4) 基于性别的暴力和家庭暴力的增加;(5) 心理健康的不平等和交叉性。这项研究对具有类似社会政治背景和发展状况的社会具有全球性影响。为了真正达到《消除对妇女一切形式歧视公约》和其他国际人权原则的标准,我们要求中央和地方政府更多地了解这些生活经历,并相应地调整政策,考虑到性别敏感性。
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引用次数: 0
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