首页 > 最新文献

Health Care Analysis最新文献

英文 中文
Attitudes About NIPT Routinisation: A Report from a Qualitative Study of 20 UK Healthcare Professionals. 对NIPT常规化的态度:一份来自20名英国医疗保健专业人员的定性研究报告。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-02-21 DOI: 10.1007/s10728-025-00513-6
Peter D Young

All healthcare professionals (HCPs) have responsibilities to provide information to patients according to the duties found within UK decision-making guidance and with regards to theory about the doctor-patient relationship. While routinisation can be understood in a number of different ways, this paper is concerned with how routines might negatively affect patients in the decision-making process. Therefore, in this manuscript, medical decision making is understood as problematically routine when a medical test or procedure is framed as a standard one and-given the way options are presented-it is implied that someone can decide to use that test or treatment without being given sufficient opportunities to think through their choices. Routinisation, when understood in this way, can affect the quality and amount of information provided to patients and the ways in which patients reflect upon their choices when making decisions. With the introduction of non-invasive prenatal testing (NIPT) into the UK healthcare system, bioethicists have questioned whether this new technology will be routinised and what the implications of routinisation on the decision-making process might be. While there have been numerous studies investigating the views and attitudes of pregnant women who use NIPT, there are fewer studies that look at the views and attitudes of healthcare professionals (HCPs). This study interviewed 20 UK-based HCPs who either offer NIPT or counselled pregnant women on the use of NIPT. One important finding was that many HCPs held the attitude that the NIPT decision-making process had become routine, however there was disagreement about whether routine NIPT was problematic or not. This study provides insights about the context that surrounds decision making for NIPT, and it raises important questions about how NIPT routinisation might be evaluated.

所有医疗保健专业人员(HCPs)都有责任根据英国决策指南规定的职责以及医患关系理论向患者提供信息。虽然常规化可以有多种不同的理解方式,但本文关注的是常规化如何在决策过程中对患者产生负面影响。因此,在本手稿中,医疗决策被理解为有问题的常规化,即当一项医疗检查或程序被设定为标准检查或程序,并且鉴于选项的呈现方式,这意味着某人可以决定使用该检查或治疗,而无需获得充分的机会来思考他们的选择。按照这种方式理解,常规化会影响向患者提供信息的质量和数量,以及患者在做出决定时思考自己选择的方式。随着无创产前检测(NIPT)被引入英国医疗系统,生命伦理学者对这项新技术是否会被常规化以及常规化对决策过程的影响提出了质疑。虽然有许多研究调查了使用 NIPT 的孕妇的观点和态度,但很少有研究调查医疗保健专业人员(HCPs)的观点和态度。本研究采访了英国 20 位提供 NIPT 或为孕妇使用 NIPT 提供咨询的医护人员。一个重要发现是,许多 HCPs 认为 NIPT 决策过程已成为常规,但对于常规 NIPT 是否存在问题存在分歧。这项研究提供了有关 NIPT 决策背景的见解,并就如何评估 NIPT 常规化提出了重要问题。
{"title":"Attitudes About NIPT Routinisation: A Report from a Qualitative Study of 20 UK Healthcare Professionals.","authors":"Peter D Young","doi":"10.1007/s10728-025-00513-6","DOIUrl":"10.1007/s10728-025-00513-6","url":null,"abstract":"<p><p>All healthcare professionals (HCPs) have responsibilities to provide information to patients according to the duties found within UK decision-making guidance and with regards to theory about the doctor-patient relationship. While routinisation can be understood in a number of different ways, this paper is concerned with how routines might negatively affect patients in the decision-making process. Therefore, in this manuscript, medical decision making is understood as problematically routine when a medical test or procedure is framed as a standard one and-given the way options are presented-it is implied that someone can decide to use that test or treatment without being given sufficient opportunities to think through their choices. Routinisation, when understood in this way, can affect the quality and amount of information provided to patients and the ways in which patients reflect upon their choices when making decisions. With the introduction of non-invasive prenatal testing (NIPT) into the UK healthcare system, bioethicists have questioned whether this new technology will be routinised and what the implications of routinisation on the decision-making process might be. While there have been numerous studies investigating the views and attitudes of pregnant women who use NIPT, there are fewer studies that look at the views and attitudes of healthcare professionals (HCPs). This study interviewed 20 UK-based HCPs who either offer NIPT or counselled pregnant women on the use of NIPT. One important finding was that many HCPs held the attitude that the NIPT decision-making process had become routine, however there was disagreement about whether routine NIPT was problematic or not. This study provides insights about the context that surrounds decision making for NIPT, and it raises important questions about how NIPT routinisation might be evaluated.</p>","PeriodicalId":46740,"journal":{"name":"Health Care Analysis","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143469560","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Study on Consumer-Centric Health Information Provision Strategy Using SWOT-AHP -Focusing on the National Health Information Portal. 基于SWOT-AHP的以消费者为中心的卫生信息提供策略研究——以国家卫生信息门户网站为例
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-02-04 DOI: 10.1007/s10728-024-00505-y
Jaeeun Baek

Approximately 70% of Koreans access health and medical information online. Health information providers play a crucial role in enhancing public health by ensuring that individuals can effectively consume and utilize this information according to their information-seeking behaviors. However, existing tools for evaluating health information websites have significant limitations. These tools are often one-size-fits-all and lack strategic recommendations for delivering consumer-centered health information. There is a clear need for alternative approaches beyond merely identifying the quality factors that satisfy consumers. A Strengths, Weaknesses, Opportunities, and Threats-Analytic Hierarchy Process (SWOT-AHP) evaluates both internal and external environmental factors of a health information website, which provides strategies based on the prioritization and weighting of quality factors. Specifically, the 'National Health Information Portal,' a platform provided by the Korea Disease Control and Prevention Agency, was assessed through a comprehensive review of prior research and a SWOT analysis, followed by an AHP survey involving 15 experts specializing in health information websites. The findings of the analysis indicate that the most effective development strategy is the SO (Strengths-Opportunities) strategy. This study highlights the need to move beyond uniform evaluation tools and consider the dynamic and complex nature of the Internet, emphasizing the importance of developing prioritized strategies based on evaluations from both consumers and providers.

大约70%的韩国人在网上获取健康和医疗信息。卫生信息提供者通过确保个人能够根据其信息寻求行为有效地消费和利用这些信息,在加强公共卫生方面发挥至关重要的作用。然而,现有的评估健康信息网站的工具有很大的局限性。这些工具往往一刀切,缺乏提供以消费者为中心的健康信息的战略建议。显然,除了仅仅确定满足消费者的质量因素外,还需要其他方法。优势、劣势、机会和威胁-层次分析法(SWOT-AHP)对健康信息网站的内部和外部环境因素进行了评价,并根据质量因素的优先级和权重提供了策略。具体来说,疾病管理本部提供的平台“国民健康信息门户网站”,是在综合分析之前的研究结果和SWOT分析之后,由15名健康信息网站专家参与的AHP调查后得出的结果。分析结果表明,最有效的发展战略是优势-机会战略。本研究强调需要超越统一的评估工具,并考虑互联网的动态和复杂性质,强调基于消费者和提供商的评估制定优先战略的重要性。
{"title":"A Study on Consumer-Centric Health Information Provision Strategy Using SWOT-AHP -Focusing on the National Health Information Portal.","authors":"Jaeeun Baek","doi":"10.1007/s10728-024-00505-y","DOIUrl":"10.1007/s10728-024-00505-y","url":null,"abstract":"<p><p>Approximately 70% of Koreans access health and medical information online. Health information providers play a crucial role in enhancing public health by ensuring that individuals can effectively consume and utilize this information according to their information-seeking behaviors. However, existing tools for evaluating health information websites have significant limitations. These tools are often one-size-fits-all and lack strategic recommendations for delivering consumer-centered health information. There is a clear need for alternative approaches beyond merely identifying the quality factors that satisfy consumers. A Strengths, Weaknesses, Opportunities, and Threats-Analytic Hierarchy Process (SWOT-AHP) evaluates both internal and external environmental factors of a health information website, which provides strategies based on the prioritization and weighting of quality factors. Specifically, the 'National Health Information Portal,' a platform provided by the Korea Disease Control and Prevention Agency, was assessed through a comprehensive review of prior research and a SWOT analysis, followed by an AHP survey involving 15 experts specializing in health information websites. The findings of the analysis indicate that the most effective development strategy is the SO (Strengths-Opportunities) strategy. This study highlights the need to move beyond uniform evaluation tools and consider the dynamic and complex nature of the Internet, emphasizing the importance of developing prioritized strategies based on evaluations from both consumers and providers.</p>","PeriodicalId":46740,"journal":{"name":"Health Care Analysis","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143190799","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Deconstructing the Self-Other Binary in Care Networks by Unravelling Professional' Perspectives through an Intersectional Lens. 通过交叉镜头揭示专业人士的观点,解构护理网络中的自我-他者二元。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-01-03 DOI: 10.1007/s10728-024-00504-z
Aldiene Henrieke Hengelaar, Margo van Hartingsveldt, Tineke Abma, Petra Verdonk

In many western countries informal care is conceived as the answer to the increasing care demand. Little is known how formal and informal caregivers collaborate in the context of an diverse ageing population. The aim of this study was to gain insight in how professionals' perspectives regarding the collaboration with informal carers with a migration background are framed and shaped by intersecting aspects of diversity. We used an intersectionality informed qualitative design with informal conversations (N = 12) and semi-structured interviews (N = 17) with healthcare professionals working with clients with Acquired Brain Injury. Two critical friends were involved in the analysis which was substantiated by a participatory analysis with a community of practice. We identified four interrelated themes: (a) 'The difficult Other' in which professionals reflected on carers with a migration background causing 'difficulties'; (b) 'The dependent Other' refers to professionals' realization that 'difficulties' are intensified by the context in which care takes place; (c) in 'The uncomfortable self' professionals describe how feelings of insecurities evoked by the Other are associated with an inability to act 'professionally', and; (d) 'The reflexive self' shows how some professionals reflect on their own identities and identify their blind spots in collaboration within a care network. These themes demonstrate the tensions, biases and power imbalances between carers and professionals, which may explain some of the existing health disparities perpetuated through care networks.

在许多西方国家,非正式护理被认为是对日益增长的护理需求的回答。在人口老龄化多样化的背景下,正式和非正式护理人员是如何合作的,人们知之甚少。本研究的目的是深入了解专业人员与具有移民背景的非正式照顾者合作的观点是如何通过多样性的交叉方面来构建和塑造的。我们采用了交叉性定性设计,其中包括非正式对话(N = 12)和半结构化访谈(N = 17),访谈对象为治疗后发性脑损伤患者的医疗保健专业人员。两个重要的朋友参与了分析,这是由实践社区的参与性分析证实的。我们确定了四个相互关联的主题:(a)“困难的他者”,专业人员反思具有移民背景的护理人员造成的“困难”;(b)“依赖他人”指的是专业人员认识到,“困难”会因护理发生的环境而加剧;(c)在“不舒服的自我”中,专业人士描述了由他人引起的不安全感如何与无法“专业”行事相关联,并且;(d)“反身性自我”展示了一些专业人士如何在护理网络合作中反思自己的身份,并识别自己的盲点。这些主题表明了护理人员和专业人员之间的紧张关系、偏见和权力不平衡,这可能解释了通过护理网络长期存在的一些现有健康差距。
{"title":"Deconstructing the Self-Other Binary in Care Networks by Unravelling Professional' Perspectives through an Intersectional Lens.","authors":"Aldiene Henrieke Hengelaar, Margo van Hartingsveldt, Tineke Abma, Petra Verdonk","doi":"10.1007/s10728-024-00504-z","DOIUrl":"https://doi.org/10.1007/s10728-024-00504-z","url":null,"abstract":"<p><p>In many western countries informal care is conceived as the answer to the increasing care demand. Little is known how formal and informal caregivers collaborate in the context of an diverse ageing population. The aim of this study was to gain insight in how professionals' perspectives regarding the collaboration with informal carers with a migration background are framed and shaped by intersecting aspects of diversity. We used an intersectionality informed qualitative design with informal conversations (N = 12) and semi-structured interviews (N = 17) with healthcare professionals working with clients with Acquired Brain Injury. Two critical friends were involved in the analysis which was substantiated by a participatory analysis with a community of practice. We identified four interrelated themes: (a) 'The difficult Other' in which professionals reflected on carers with a migration background causing 'difficulties'; (b) 'The dependent Other' refers to professionals' realization that 'difficulties' are intensified by the context in which care takes place; (c) in 'The uncomfortable self' professionals describe how feelings of insecurities evoked by the Other are associated with an inability to act 'professionally', and; (d) 'The reflexive self' shows how some professionals reflect on their own identities and identify their blind spots in collaboration within a care network. These themes demonstrate the tensions, biases and power imbalances between carers and professionals, which may explain some of the existing health disparities perpetuated through care networks.</p>","PeriodicalId":46740,"journal":{"name":"Health Care Analysis","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2025-01-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142923470","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Beyond Individual Responsibilisation: How Social Relations are Mobilised in Communication About a Dementia Self-Testing App. 超越个人责任:关于痴呆症自测应用程序的沟通如何调动社会关系。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-12-27 DOI: 10.1007/s10728-024-00498-8
Alexandra Kapeller

Research on mobile health (mHealth) applications has investigated how such technologies contribute to a responsibilisation of users/patients. This literature largely focuses on the individual responsibilities constructed by the apps and the neoliberal environments that enable the positioning of the user as responsible. With this focus, this scholarship is less attentive to the role of social relations in responsibilisation. In this article, I demonstrate how relational responsibilities are constructed in the communication of a North American self-testing app for "early changes in cognition". Through an analysis of qualitative expert interviews and images on the app's web presence, I show how social relations are, in fact, mobilised in the construction of the responsibilities to support the user in the test situation, to take the test for the sake of others, and to make others take the test. Based on this analysis, I argue that the role of social relations should receive more attention in the literature on responsibilisation, because they lead to additional, sometimes gendered responsibilities that a focus on individual responsibilities would miss.

关于移动医疗(mHealth)应用程序的研究调查了这些技术如何促进用户/患者的责任。这些文献主要关注应用程序和新自由主义环境构建的个人责任,这些环境使用户能够定位为负责任的用户。有了这种关注,这种学术就不那么关注社会关系在责任中的作用。在本文中,我将演示如何在北美自测应用程序的“认知早期变化”沟通中构建关系责任。通过对定性专家访谈和app网站上的图片进行分析,我展示了社会关系实际上是如何被调动起来的,在测试情境中支持用户、为了别人而考试、让别人去考试的责任建构中。基于这一分析,我认为社会关系的作用应该在关于责任的文献中得到更多的关注,因为它们会导致额外的,有时是性别责任,而关注个人责任会忽略这些责任。
{"title":"Beyond Individual Responsibilisation: How Social Relations are Mobilised in Communication About a Dementia Self-Testing App.","authors":"Alexandra Kapeller","doi":"10.1007/s10728-024-00498-8","DOIUrl":"https://doi.org/10.1007/s10728-024-00498-8","url":null,"abstract":"<p><p>Research on mobile health (mHealth) applications has investigated how such technologies contribute to a responsibilisation of users/patients. This literature largely focuses on the individual responsibilities constructed by the apps and the neoliberal environments that enable the positioning of the user as responsible. With this focus, this scholarship is less attentive to the role of social relations in responsibilisation. In this article, I demonstrate how relational responsibilities are constructed in the communication of a North American self-testing app for \"early changes in cognition\". Through an analysis of qualitative expert interviews and images on the app's web presence, I show how social relations are, in fact, mobilised in the construction of the responsibilities to support the user in the test situation, to take the test for the sake of others, and to make others take the test. Based on this analysis, I argue that the role of social relations should receive more attention in the literature on responsibilisation, because they lead to additional, sometimes gendered responsibilities that a focus on individual responsibilities would miss.</p>","PeriodicalId":46740,"journal":{"name":"Health Care Analysis","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-12-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142899236","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Childbirth as Fault Lines: Justifications in Physician-Patient Interactions About Postnatal Rehabilitation. 分娩是断层线:关于产后康复的医患互动中的理由。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-12-01 Epub Date: 2024-06-27 DOI: 10.1007/s10728-024-00486-y
Xin Li, Yinong Tian, Yanping Meng, Lanzhong Wang, Yonggang Su

Research on justifications has shown their significance in advice-giving, decision-making and children disputes. However, the majority of studies gloss over practical functions of justifications in patient-physician interactions as they are often expected and pursued by patients and in turn, are adopted by physicians to support their stance and authority. This study, through conversation analysis (CA), aims to explore a) what are pragmatic functions of justifications in patient-physician interaction? b) how and when do physicians unfold their justifications for treatment recommendations? c) how do physicians deal with different responses based on their epistemic and deontic domains?. A total of 32 video-recordings between postpartum women and physicians are collected and studied. Four pragmatic functions of justifications drawn upon by physicians are explored: justifications as face-saving, reassurance, risk discussion and clarification-seeking. Despite physicians' attempts to justify their positions as less challenged by patients, this is not the entire picture as they demonstrate their desire to resolve patients' concerns and coordinate their viewpoints to achieve the best practice that facilitates patients' well-being.

关于 "理由 "的研究表明,"理由 "在提供建议、决策和儿童纠纷中具有重要意义。然而,大多数研究都忽略了辩解在医患互动中的实用功能,因为辩解往往是患者所期待和追求的,反过来,医生也会采用辩解来支持自己的立场和权威。本研究通过会话分析(CA),旨在探讨:a) 在医患互动中,理由的实用功能是什么;b) 医生如何以及何时为治疗建议提出理由;c) 医生如何根据其认识论和道义论领域处理不同的反应。本研究共收集并研究了 32 段产后妇女与医生之间的视频录像。研究探讨了医生提出的四种实用性理由:面子理由、保证理由、风险讨论理由和寻求澄清理由。尽管医生试图证明他们的立场较少受到病人的质疑,但这并不是全部,因为他们表现出希望解决病人的担忧并协调他们的观点,以实现有利于病人福祉的最佳做法。
{"title":"Childbirth as Fault Lines: Justifications in Physician-Patient Interactions About Postnatal Rehabilitation.","authors":"Xin Li, Yinong Tian, Yanping Meng, Lanzhong Wang, Yonggang Su","doi":"10.1007/s10728-024-00486-y","DOIUrl":"10.1007/s10728-024-00486-y","url":null,"abstract":"<p><p>Research on justifications has shown their significance in advice-giving, decision-making and children disputes. However, the majority of studies gloss over practical functions of justifications in patient-physician interactions as they are often expected and pursued by patients and in turn, are adopted by physicians to support their stance and authority. This study, through conversation analysis (CA), aims to explore a) what are pragmatic functions of justifications in patient-physician interaction? b) how and when do physicians unfold their justifications for treatment recommendations? c) how do physicians deal with different responses based on their epistemic and deontic domains?. A total of 32 video-recordings between postpartum women and physicians are collected and studied. Four pragmatic functions of justifications drawn upon by physicians are explored: justifications as face-saving, reassurance, risk discussion and clarification-seeking. Despite physicians' attempts to justify their positions as less challenged by patients, this is not the entire picture as they demonstrate their desire to resolve patients' concerns and coordinate their viewpoints to achieve the best practice that facilitates patients' well-being.</p>","PeriodicalId":46740,"journal":{"name":"Health Care Analysis","volume":" ","pages":"312-337"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471509","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Sustainability as an Intrinsic Moral Concern for Solidaristic Health Care. 可持续性是团结医疗的内在道德关怀。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-12-01 Epub Date: 2023-09-04 DOI: 10.1007/s10728-023-00469-5
Marcel Verweij, Hans Ossebaard

Environmental pollution and greenhouse gas emissions that contribute to climate change have adverse impacts on global health. Somewhat paradoxically, health care systems that aim to prevent and cure disease are themselves major emitters and polluters. In this paper we develop a justification for the claim that solidaristic health care systems should include sustainability as one of the criteria for determining which health interventions are made available or reimbursed - and which not. There is however a complication: most adverse health effects due to climate change do occur elsewhere in the world. If solidarity would commit us to take care of everyone's health, worldwide, it might imply that solidaristic health system cannot justifiably restrict universal access to their own national populations. In response we explain health solidarity is to be considered as a moral ideal. Such an ideal does not specify what societies owe to whom, but it does have moral implications. We argue that ignoring sustainability in political decision making about what health care is to be offered, would amount to betrayal of the ideal of solidarity.

造成气候变化的环境污染和温室气体排放对全球健康产生了不利影响。有点自相矛盾的是,旨在预防和治疗疾病的医疗保健系统本身就是主要的排放者和污染者。在本文中,我们提出了一个理由,即团结互助的医疗保健系统应将可持续性作为标准之一,以决定哪些医疗干预措施可以使用或报销--哪些不可以。然而,还有一个复杂的问题:气候变化对健康造成的大多数不利影响确实发生在世界其他地方。如果团结一致让我们承诺在全球范围内照顾到每个人的健康,那么这可能意味着团结一致的卫生系统不能合理地限制本国人口普遍获得医疗服务。对此,我们解释说,健康团结应被视为一种道德理想。这种理想并没有明确规定社会对谁负有什么责任,但它确实具有道德意义。我们认为,在做出提供何种医疗保健服务的政治决策时,如果忽视可持续性,就等于背叛了团结的理想。
{"title":"Sustainability as an Intrinsic Moral Concern for Solidaristic Health Care.","authors":"Marcel Verweij, Hans Ossebaard","doi":"10.1007/s10728-023-00469-5","DOIUrl":"10.1007/s10728-023-00469-5","url":null,"abstract":"<p><p>Environmental pollution and greenhouse gas emissions that contribute to climate change have adverse impacts on global health. Somewhat paradoxically, health care systems that aim to prevent and cure disease are themselves major emitters and polluters. In this paper we develop a justification for the claim that solidaristic health care systems should include sustainability as one of the criteria for determining which health interventions are made available or reimbursed - and which not. There is however a complication: most adverse health effects due to climate change do occur elsewhere in the world. If solidarity would commit us to take care of everyone's health, worldwide, it might imply that solidaristic health system cannot justifiably restrict universal access to their own national populations. In response we explain health solidarity is to be considered as a moral ideal. Such an ideal does not specify what societies owe to whom, but it does have moral implications. We argue that ignoring sustainability in political decision making about what health care is to be offered, would amount to betrayal of the ideal of solidarity.</p>","PeriodicalId":46740,"journal":{"name":"Health Care Analysis","volume":" ","pages":"261-271"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11532315/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10137919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Ethical, Psychological and Social Un/certainties in the Face of Deemed Consent for Organ Donation in England. 在英格兰,面对器官捐献的 "视为同意",伦理、心理和社会方面的不确定性。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-12-01 Epub Date: 2024-09-24 DOI: 10.1007/s10728-024-00492-0
Laura L Machin, Elizabeth Wrench, Jessie Cooper, Heather Dixon, Mark Wilkinson

Deemed consent legislation for deceased organ donation was introduced in England in 2020, and is considered a vital part of the new UK NHS Blood and Transplant's 10-year strategy to increase consent for organ donation. Despite the legislation containing safeguards to protect the public, the introduction of deemed consent creates ethical, psychological and social un/certainties for healthcare professionals in their practice. In this paper, we offer insights into healthcare professionals' perspectives on deemed consent, drawn from interview data with 24 healthcare professionals in an NHS Trust in England, prior to the introduction of the legislation. Whilst participants supported deemed consent in principle, they were concerned that it would present a threat to the nature of donation as a 'gift'; the notion of informed consent (or non-consent); and the autonomy of donors, their relatives, and their own roles as health professionals, posing dilemmas for practice. We argue that healthcare professionals present themselves as guardians of potential (non)donors and thus as having ethics and integrity in their own practice. We draw conclusions around the values and principles that matter to healthcare professionals when contemplating consent in deceased donation which will be useful for organ donation committees and ethics forums.

英国于 2020 年引入了已故器官捐献的 "视为同意 "立法,该立法被视为英国国家医疗服务系统血液与移植部门新十年战略的重要组成部分,旨在提高器官捐献的同意率。尽管该立法包含保护公众的保障措施,但 "视为同意 "的引入给医护专业人员的实践带来了伦理、心理和社会方面的不确定性。在本文中,我们通过对英国国家医疗服务系统(NHS)一家信托机构的 24 名医护专业人员的访谈数据,深入探讨了医护专业人员对 "视为同意 "的看法。虽然参与者原则上支持 "视为同意",但他们担心这会对捐赠作为 "礼物 "的性质、知情同意(或非同意)的概念、捐赠者及其亲属的自主权以及他们作为医疗专业人员的角色构成威胁,从而给实践带来两难境地。我们认为,医护专业人员是潜在(非)捐献者的监护人,因此在其自身的实践中应遵守职业道德和诚信。我们围绕医护专业人员在考虑同意死者捐献时所关注的价值观和原则得出结论,这将对器官捐献委员会和伦理论坛有所帮助。
{"title":"Ethical, Psychological and Social Un/certainties in the Face of Deemed Consent for Organ Donation in England.","authors":"Laura L Machin, Elizabeth Wrench, Jessie Cooper, Heather Dixon, Mark Wilkinson","doi":"10.1007/s10728-024-00492-0","DOIUrl":"10.1007/s10728-024-00492-0","url":null,"abstract":"<p><p>Deemed consent legislation for deceased organ donation was introduced in England in 2020, and is considered a vital part of the new UK NHS Blood and Transplant's 10-year strategy to increase consent for organ donation. Despite the legislation containing safeguards to protect the public, the introduction of deemed consent creates ethical, psychological and social un/certainties for healthcare professionals in their practice. In this paper, we offer insights into healthcare professionals' perspectives on deemed consent, drawn from interview data with 24 healthcare professionals in an NHS Trust in England, prior to the introduction of the legislation. Whilst participants supported deemed consent in principle, they were concerned that it would present a threat to the nature of donation as a 'gift'; the notion of informed consent (or non-consent); and the autonomy of donors, their relatives, and their own roles as health professionals, posing dilemmas for practice. We argue that healthcare professionals present themselves as guardians of potential (non)donors and thus as having ethics and integrity in their own practice. We draw conclusions around the values and principles that matter to healthcare professionals when contemplating consent in deceased donation which will be useful for organ donation committees and ethics forums.</p>","PeriodicalId":46740,"journal":{"name":"Health Care Analysis","volume":" ","pages":"272-289"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11532317/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142308756","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"I Do Not Believe We Should Disclose Everything to an Older Patient": Challenges and Ethical Concerns in Clinical Decision-Making in Old-Age Care in Ethiopia. "我不认为我们应该向老年患者披露一切":埃塞俄比亚老年护理临床决策中的挑战和伦理问题。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-12-01 Epub Date: 2024-10-01 DOI: 10.1007/s10728-024-00494-y
Kirubel Manyazewal Mussie, Mirgissa Kaba, Jenny Setchell, Bernice Simone Elger

Clinical decision-making in old-age care is a complex and ethically sensitive process. Despite its importance, research addressing the challenges of clinical decision-making in old-age care within this cultural context is limited. This study aimed to explore the challenges and ethical concerns in clinical decision-making in old-age care in Ethiopia. This qualitative study employed an inductive approach with data collected via semi-structured interviews with 20 older patients and 26 health professionals recruited from healthcare facilities in Ethiopia. Data were analysed using reflexive thematic analysis. Our analysis identified three key themes. First, participants highlighted perceptions that older patients' religious beliefs interfere with the clinical decisions both older patients and health professionals make. Second, older patients often receive limited information from health professionals about their diagnosis and treatment. Third, families of older patients appear to strongly influence clinical decisions made by older patients or health professionals. This research enhances the understanding of clinical decision-making in old-age care within Ethiopia, a context where such research is scarce. As a result, this study contributes towards advancing the deliberation of ethical dilemmas that health professionals who work with older patients in Ethiopia might face. A key implication of the study is that there is a need for more ethics and cultural competence training for health professionals working with older patients in Ethiopia.

老年护理中的临床决策是一个复杂且具有伦理敏感性的过程。尽管其重要性不言而喻,但针对这种文化背景下养老护理临床决策挑战的研究却十分有限。本研究旨在探讨埃塞俄比亚老年护理临床决策中的挑战和伦理问题。这项定性研究采用归纳法,通过对埃塞俄比亚医疗机构中的 20 名老年患者和 26 名医疗专业人员进行半结构化访谈收集数据。数据采用反思性主题分析法进行分析。我们的分析确定了三个关键主题。首先,参与者强调,他们认为老年患者的宗教信仰会干扰老年患者和医疗专业人员做出的临床决定。第二,老年患者从医护人员那里获得的有关其诊断和治疗的信息往往很有限。第三,老年患者的家人似乎对老年患者或医疗专业人员的临床决定有很大影响。这项研究加深了人们对埃塞俄比亚老年护理临床决策的了解,因为在埃塞俄比亚,此类研究十分匮乏。因此,本研究有助于推动埃塞俄比亚从事老年患者工作的医疗专业人员对可能面临的伦理困境的思考。本研究的一个重要意义在于,有必要对埃塞俄比亚从事老年患者工作的卫生专业人员进行更多的伦理和文化能力培训。
{"title":"\"I Do Not Believe We Should Disclose Everything to an Older Patient\": Challenges and Ethical Concerns in Clinical Decision-Making in Old-Age Care in Ethiopia.","authors":"Kirubel Manyazewal Mussie, Mirgissa Kaba, Jenny Setchell, Bernice Simone Elger","doi":"10.1007/s10728-024-00494-y","DOIUrl":"10.1007/s10728-024-00494-y","url":null,"abstract":"<p><p>Clinical decision-making in old-age care is a complex and ethically sensitive process. Despite its importance, research addressing the challenges of clinical decision-making in old-age care within this cultural context is limited. This study aimed to explore the challenges and ethical concerns in clinical decision-making in old-age care in Ethiopia. This qualitative study employed an inductive approach with data collected via semi-structured interviews with 20 older patients and 26 health professionals recruited from healthcare facilities in Ethiopia. Data were analysed using reflexive thematic analysis. Our analysis identified three key themes. First, participants highlighted perceptions that older patients' religious beliefs interfere with the clinical decisions both older patients and health professionals make. Second, older patients often receive limited information from health professionals about their diagnosis and treatment. Third, families of older patients appear to strongly influence clinical decisions made by older patients or health professionals. This research enhances the understanding of clinical decision-making in old-age care within Ethiopia, a context where such research is scarce. As a result, this study contributes towards advancing the deliberation of ethical dilemmas that health professionals who work with older patients in Ethiopia might face. A key implication of the study is that there is a need for more ethics and cultural competence training for health professionals working with older patients in Ethiopia.</p>","PeriodicalId":46740,"journal":{"name":"Health Care Analysis","volume":" ","pages":"290-311"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11532312/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142362226","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Recontextualization and Imagination: The Public Health Professional and the U.S. Health Care System. 重新语境化与想象力:公共卫生专业人员与美国医疗保健系统》。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-12-01 Epub Date: 2024-05-20 DOI: 10.1007/s10728-024-00482-2
William Minter

Based on a qualitative study, this paper explores how United States public health professionals view and think about the existing U.S. healthcare system, while also allowing these study participants to imagine new ways of structuring and practicing public health. Using semi-structured qualitative interviews, I show how public health professionals engage with the concept of "the social" and their personal experiences with public health to question the status quo. By giving public health professionals space in which to imagine changes and different ways of practicing public health, I demonstrate the effectiveness of imagination as a capacity that public health professionals possess to take the lead in creating the changes they hope for.

本文基于一项定性研究,探讨了美国公共卫生专业人员如何看待和思考现有的美国医疗保健体系,同时也让这些研究参与者想象构建和实践公共卫生的新方式。通过半结构式定性访谈,我展示了公共卫生专业人员如何利用 "社会 "概念和他们在公共卫生方面的个人经历来质疑现状。通过为公共卫生专业人员提供想象变革和不同的公共卫生实践方式的空间,我展示了想象力作为公共卫生专业人员所拥有的一种能力,在创造他们所希望的变革中发挥主导作用的有效性。
{"title":"Recontextualization and Imagination: The Public Health Professional and the U.S. Health Care System.","authors":"William Minter","doi":"10.1007/s10728-024-00482-2","DOIUrl":"10.1007/s10728-024-00482-2","url":null,"abstract":"<p><p>Based on a qualitative study, this paper explores how United States public health professionals view and think about the existing U.S. healthcare system, while also allowing these study participants to imagine new ways of structuring and practicing public health. Using semi-structured qualitative interviews, I show how public health professionals engage with the concept of \"the social\" and their personal experiences with public health to question the status quo. By giving public health professionals space in which to imagine changes and different ways of practicing public health, I demonstrate the effectiveness of imagination as a capacity that public health professionals possess to take the lead in creating the changes they hope for.</p>","PeriodicalId":46740,"journal":{"name":"Health Care Analysis","volume":" ","pages":"338-347"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141065767","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Epistemic Policies of Anti-Ageing Medicines in the European Union. 欧盟抗衰老药物的认识论政策》。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-11-19 DOI: 10.1007/s10728-024-00497-9
Guillermo Marín Penella

Anti-ageing medicines are products intended to extend lifespan and healthspan in humans that have a good potential use in public health policies. In the European Union, their development, production and consumption are dependent on regulatory science performed by the European Medicines Agency and its associated epistemic policies. They impose, among other things, an unfavourable burden of proof, a strict standard of proof and meta-methodological constrictions related to some theoretical issues. This results in a distribution of errors that tends to reduce false positives while increasing false negatives, leading to a set of social consequences that are generally accepted when the focus is placed on conventional medicines. However, when the same epistemic policies are applied to anti-ageing medicines, the distribution of errors is imbalanced, and undesirable outcomes like research discouragement and waiting time extensions appear. Three possible strategies that policymakers could implement to unblock the situation are presented for future reflection: the consideration of ageing as a disease, the application of methodological asymmetry and the use of biomarkers during clinical research.

抗衰老药物是旨在延长人类寿命和健康寿命的产品,在公共卫生政策中具有良好的潜在用途。在欧盟,抗衰老药物的开发、生产和消费取决于欧洲药品管理局的监管科学及其相关的认识论政策。这些政策规定了不利的举证责任、严格的举证标准以及与某些理论问题相关的元方法限制等。这导致错误的分布趋向于减少假阳性,同时增加假阴性,从而导致一系列社会后果,当重点放在传统药物上时,这些后果被普遍接受。然而,当同样的认识论政策适用于抗衰老药物时,误差分布就会失衡,出现阻碍研究和延长等待时间等不良后果。本文提出了政策制定者可以实施的三种策略,以缓解这一局面,供今后思考:将老龄化视为一种疾病、应用方法不对称以及在临床研究中使用生物标志物。
{"title":"The Epistemic Policies of Anti-Ageing Medicines in the European Union.","authors":"Guillermo Marín Penella","doi":"10.1007/s10728-024-00497-9","DOIUrl":"10.1007/s10728-024-00497-9","url":null,"abstract":"<p><p>Anti-ageing medicines are products intended to extend lifespan and healthspan in humans that have a good potential use in public health policies. In the European Union, their development, production and consumption are dependent on regulatory science performed by the European Medicines Agency and its associated epistemic policies. They impose, among other things, an unfavourable burden of proof, a strict standard of proof and meta-methodological constrictions related to some theoretical issues. This results in a distribution of errors that tends to reduce false positives while increasing false negatives, leading to a set of social consequences that are generally accepted when the focus is placed on conventional medicines. However, when the same epistemic policies are applied to anti-ageing medicines, the distribution of errors is imbalanced, and undesirable outcomes like research discouragement and waiting time extensions appear. Three possible strategies that policymakers could implement to unblock the situation are presented for future reflection: the consideration of ageing as a disease, the application of methodological asymmetry and the use of biomarkers during clinical research.</p>","PeriodicalId":46740,"journal":{"name":"Health Care Analysis","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-11-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142669045","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Health Care Analysis
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1