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Severity and Temporality in Healthcare Priority Setting - A Case for A Condition-specific Affectable Time-neutral Approach. 医疗保健优先级设定中的严重性和时间性--特定病症可影响时间的中性方法案例。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-10-24 DOI: 10.1007/s10728-024-00493-z
Lars Sandman, Niklas Juth

Priority setting of scarce resources in healthcare is high on the agenda of most healthcare systems implying a need to develop robust foundations for making fair allocation decisions. One central factor for such decisions in needs-based systems, following both empirical studies and theoretical analyses, is severity. However, it has been noted that severity is an under-theorized concept. One such aspect is how severity should relate to temporality. There is a rich discussion on temporality and distributive justice, however, this discussion needs to be adapted to the practical and ethical requirements of healthcare priority setting principles at mid-level. In this article, we analyze how temporal aspects should be taken into account when assessing severity as a modifier for cost-effectiveness. We argue that when assessing the severity of a condition, we have reason to look at complete conditions from a time-neutral perspective, meaning that we take the full affectable stretch of the condition into account without modifying severity as patients move through the temporal stretch and without discounting the future. We do not find support for taking the 'shape' of a condition into account per se, e.g. whether the severity has a declining or inclining curve, or that severity is intermittent rather than continuous. In order to take severity seriously, we argue that we have reason to apply a quantified approach where every difference in severity should impact on priority setting. In conclusion, we find that this approach is practically useful in actual priority setting.

确定医疗保健领域稀缺资源的优先次序是大多数医疗保健系统的重要议程,这意味着需要为做出公平分配的决定奠定坚实的基础。根据经验研究和理论分析,在以需求为基础的系统中,此类决策的一个核心因素是严重程度。然而,人们注意到,严重程度是一个理论化程度不高的概念。其中一个方面就是严重性与时间性的关系。关于时间性和分配公正的讨论非常丰富,但这种讨论需要适应中层医疗保健优先级设定原则的实际和伦理要求。在本文中,我们分析了在评估作为成本效益修饰符的严重性时应如何考虑时间性。我们认为,在评估病情严重程度时,我们有理由从时间中性的角度来看待完整的病情,也就是说,我们要考虑到病情的全部可影响范围,而不随着患者在时间范围内的变化而改变严重程度,也不对未来进行折现。我们并不支持考虑病情本身的 "形状",例如严重程度是呈下降曲线还是倾斜曲线,或者严重程度是间歇性的而非持续性的。为了认真对待严重程度,我们认为有理由采用一种量化方法,即严重程度的每一个差异都应影响优先级的确定。总之,我们发现这种方法在实际确定优先事项时非常实用。
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引用次数: 0
Exploring the Broader Benefits of Obesity Prevention Community-based Interventions From the Perspective of Multiple Stakeholders. 从多方利益相关者的角度探索肥胖预防社区干预措施的更广泛益处。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-10-03 DOI: 10.1007/s10728-024-00495-x
J Jacobs, M Nichols, N Ward, M Sultana, S Allender, V Brown

Community-based interventions (CBIs) show promise as effective and cost-effective obesity prevention initiatives. CBIs are typically complex interventions, including multiple settings, strategies and stakeholders. Cost-effectiveness evidence, however, generally only considers a narrow range of costs and benefits associated with anthropometric outcomes. While it is recognised that the complexity of CBIs may result in broader non-health societal and community benefits, the identification, measurement, and quantification of these outcomes is limited. This study aimed to understand the perspectives of stakeholders on the broader benefits of CBIs and their measurement, as well as perceptions of CBI cost-effectiveness. Purposive sampling was used to recruit participants from three stakeholder groups (lead researchers, funders, and community stakeholders of CBIs). Online semi-structured interviews were conducted, taking a constructivist approach. Coding, theme development and analysis were based on published guidance for thematic analysis. Twenty-six stakeholders participated in the interviews (12 lead researchers; 7 funders; 6 community stakeholders). Six key themes emerged; (1) Impacts of CBIs (health impacts and broader impacts); (2) Broader benefits were important to stakeholders; (3) Measurement of benefits are challenging; (4) CBIs were considered cost-effective; (5) Framing CBIs for community engagement (6) Making equitable impacts and sustaining changes-successes and challenges. Across all stakeholders, broader benefits, particularly the establishment of networks and partnerships within communities, were seen as important outcomes of CBIs. Participants viewed the CBI approach to obesity prevention as cost-effective, however, there were challenges in measuring, quantifying and valuing broader benefits. Development of tools to measure and quantify broader benefits would allow for more comprehensive evaluation of the cost-effectiveness of CBIs for obesity prevention.

以社区为基础的干预措施(CBIs)有望成为有效且具有成本效益的肥胖预防措施。社区干预措施通常是复杂的干预措施,包括多种环境、策略和利益相关者。然而,成本效益证据一般只考虑与人体测量结果相关的成本和效益的狭窄范围。尽管人们认识到社区参与式干预的复杂性可能会带来更广泛的非健康社会和社区效益,但对这些成果的识别、衡量和量化却十分有限。本研究旨在了解利益相关者对社区健康倡议更广泛益处的看法及其衡量方法,以及对社区健康倡议成本效益的看法。研究采用了有针对性的抽样方法,从三个利益相关者群体(主要研究人员、资助者和社区支持行动的社区利益相关者)中招募参与者。采用建构主义方法进行了在线半结构式访谈。编码、主题发展和分析均基于已发布的主题分析指南。26 名利益相关者参加了访谈(12 名主要研究人员;7 名资助者;6 名社区利益相关者)。出现了六个关键主题:(1)社区参与倡议的影响(对健康的影响和更广泛的影响);(2)更广泛的益处对利益相关者很重要;(3)益处的衡量具有挑战性;(4)社区参与倡议被认为具有成本效益;(5)为社区参与社区参与倡议制定框架;(6)产生公平影响和维持变化--成功与挑战。在所有利益相关者中,更广泛的益处,特别是在社区内建立网络和伙伴关系,被视为社区参与倡议的重要成果。与会者认为社区参与预防肥胖症的方法具有成本效益,但在衡量、量化和评估更广泛的效益方面存在挑战。开发测量和量化更广泛效益的工具将有助于更全面地评估社区参与预防肥胖的成本效益。
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引用次数: 0
Cooperation in Return-to-work Interventions for Common Mental Disorders: An Ideal Theory Analysis of Actors, Goals, and Ethical Obstacles 常见精神障碍重返工作岗位干预中的合作:行为者、目标和伦理障碍的理想理论分析
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-09-17 DOI: 10.1007/s10728-024-00491-1
Thomas Hartvigsson, Lars Sandman, Gunnar Bergström, Elisabeth Björk Brämberg

The rise in the number of people on sick leave for common mental disorders is a growing concern, both from a societal and individual perspective. One common suggestion to improve the return-to-work process is increased cooperation between the relevant parties, including at least the employer, the social insurance agency and health care. This suggestion is often made on the presumption that all parties share the common goal of reintegrating the patient-employee back into the workplace. In this paper we investigate this presumption by mapping out the ethical frameworks of these three key actors in any return-to-work process. We show that although the goals of these actors often, and to a large extent, overlap there are potential differences and tensions between their respective goals. Further, we emphasise that there may be other limitations to an actor’s participation in the process. In particular the health care system is required to respect patient autonomy and confidentiality. There is also an inherent tension in the dual roles of health care professionals as therapists and expert witnesses in work ability assessment. In conclusion, there are potential tensions between the key actors in the return-to-work process. These tensions need to be addressed in order to enable an increased cooperation between actors and to facilitate the development of a feasible plan of action for all parties, including the employee.

从社会和个人角度来看,因常见精神障碍而请病假的人数不断增加日益引起人们的关注。改善重返工作岗位过程的一个常见建议是加强相关各方(至少包括雇主、社会保险机构和医疗保健机构)之间的合作。提出这一建议的前提通常是,所有各方都有一个共同的目标,即让病人和雇员重返工作岗位。在本文中,我们通过对重返工作岗位过程中这三个关键参与者的伦理框架进行分析,对这一假设进行了研究。我们表明,尽管这些参与者的目标经常而且在很大程度上是重叠的,但他们各自的目标之间存在潜在的差异和紧张关系。此外,我们还强调,参与者在参与过程中可能会受到其他限制。特别是医疗系统必须尊重病人的自主权和保密性。在工作能力评估中,医疗保健专业人员既是治疗师,又是专家证人,他们的双重角色也存在内在的紧张关系。总之,重返工作岗位过程中的主要参与者之间存在潜在的紧张关系。这些矛盾需要加以解决,以便加强参与者之间的合作,促进为包括雇员在内的各方制定可行的行动计划。
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引用次数: 0
Legal Regulation, Financial Incentives and Professional Autonomy in the Prioritisation of Norwegian Specialist Health Services 挪威专科医疗服务优先次序中的法律规定、经济激励和专业自主权
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-09-17 DOI: 10.1007/s10728-024-00489-9
Afsaneh Bjorvatn, Even Nilssen

To study hospital physicians’ awareness and perceptions of the legal and financial regulations, and their impact on professional discretion regarding equity in access to treatment and quality of care. A sample of 637 physicians in the Norwegian specialist healthcare services selected from a survey conducted by the Institute for Studies of the Medical Profession. The paper investigates how legal and financial policy instruments affect the application of professional discretion regarding the prioritisation of specialist health services. Descriptive statistics and regressions were conducted for the analyses. Compared with financial incentives, legal regulations (laws, priority rules and guidelines) were assessed to be less negative external interventions in the exercise of medical and professional judgement. The empirical analyses revealed a positive tendency in physicians’ assessments of the impact of legal regulations on treatment equity and healthcare quality, but negative attitudes towards financial instruments. The variations revealed are attributable to various structural and epistemic features of the legal–bureaucratic and economic models of administration in this area of the welfare state. Legal and financial regulations are imposed to achieve certain social goals and values. The findings of this study can provide further insight for the health authorities in other countries concerning implementation of such regulations in the specialist healthcare services.

研究医院医生对法律和财务规定的认识和看法,以及这些规定对公平获得治疗和医疗质量方面的专业判断力的影响。从医学专业研究所进行的一项调查中选取了挪威专科医疗服务机构的637名医生作为样本。本文研究了法律和财政政策工具如何影响专业人员在确定专科医疗服务优先次序方面的自由裁量权的应用。分析采用了描述性统计和回归方法。与财政激励措施相比,法律法规(法律、优先规则和指南)被认为是对行使医疗和专业判断力负面影响较小的外部干预措施。实证分析表明,医生对法律法规对治疗公平性和医疗质量的影响的评价呈积极趋势,但对金融工具的评价则呈消极态度。所揭示的差异可归因于福利国家这一领域的法律-官僚和经济管理模式的各种结构性和认识论特征。法律和金融法规的实施是为了实现某些社会目标和价值。本研究的结果可以为其他国家的卫生当局在专科医疗服务中实施此类法规提供进一步的启示。
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引用次数: 0
Being a Doctor: From Treating Individual Patients to Maximising Community Health and Social Justice. 作为一名医生:从治疗个别病人到最大限度地促进社区健康和社会正义。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-09-01 Epub Date: 2024-05-23 DOI: 10.1007/s10728-024-00484-0
Suet Voon Yu, Gerlese S Åkerlind

This study examined variation in medical practitioners' practice-based conceptions of what it means to be a doctor, based on interviews with 30 clinicians who were also medical educators. Participants included general practitioners, surgeons and physicians (non-surgical specialists). Participants were asked to draw a concept map of 'being a doctor', followed by semi-structured interviews using a phenomenographic research design. Three conceptions were identified, varyingly focused on (1) treating patients' medical problems; (2) maximising patients' well-being; and (3) maximising community health. Each conception was distinguished by variation in awareness of six underlying dimensions of being a doctor: (1) doctors' actions; (2) treatment success; (3) patients' actions; (4) patients' well-being; (5) community needs; and (6) social justice. Whilst all participants included dimensions 1 and 2 in their described practice, numerous participants did not include dimensions 3 and 4, i.e. did not take the patients' role and the impact of patients' psychosocial context into account in their practice. This is concerning, especially amongst medical educators, given the widely acknowledged importance of patient-centred care in medical practice. Similarly, only some of the participants considered community health needs and felt a broader social responsibility beyond their responsibility to individual patients. These findings highlight aspects of the medical profession that need to be further emphasised in medical training and continuing professional development.

本研究通过对 30 名临床医生(同时也是医学教育工作者)的访谈,考察了医疗从业人员对医生含义的基于实践的概念的差异。参与者包括全科医生、外科医生和内科医生(非外科专家)。要求参与者绘制 "作为医生 "的概念图,然后采用现象学研究设计进行半结构式访谈。确定了三种不同的概念,分别侧重于:(1) 治疗病人的医疗问题;(2) 最大限度地增进病人的福祉;(3) 最大限度地增进社区健康。每种观念的区别在于对作为医生的六个基本方面的认识不同:(1) 医生的行为;(2) 治疗的成功;(3) 病人的行为;(4) 病人的福祉;(5) 社区需求;(6) 社会公正。虽然所有参与者都在其描述的实践中包含了维度 1 和维度 2,但许多参与者没有包含维度 3 和维度 4,即在其实践中没有考虑患者的角色和患者社会心理背景的影响。鉴于以患者为中心的护理在医疗实践中的重要性已得到广泛认可,这种情况令人担忧,尤其是在医学教育工作者中。同样,只有部分参与者考虑到了社区的健康需求,并认为除了对个别患者负责之外,他们还承担着更广泛的社会责任。这些调查结果表明,在医学培训和继续职业发展中,需要进一步强调医学专业的方方面面。
{"title":"Being a Doctor: From Treating Individual Patients to Maximising Community Health and Social Justice.","authors":"Suet Voon Yu, Gerlese S Åkerlind","doi":"10.1007/s10728-024-00484-0","DOIUrl":"10.1007/s10728-024-00484-0","url":null,"abstract":"<p><p>This study examined variation in medical practitioners' practice-based conceptions of what it means to be a doctor, based on interviews with 30 clinicians who were also medical educators. Participants included general practitioners, surgeons and physicians (non-surgical specialists). Participants were asked to draw a concept map of 'being a doctor', followed by semi-structured interviews using a phenomenographic research design. Three conceptions were identified, varyingly focused on (1) treating patients' medical problems; (2) maximising patients' well-being; and (3) maximising community health. Each conception was distinguished by variation in awareness of six underlying dimensions of being a doctor: (1) doctors' actions; (2) treatment success; (3) patients' actions; (4) patients' well-being; (5) community needs; and (6) social justice. Whilst all participants included dimensions 1 and 2 in their described practice, numerous participants did not include dimensions 3 and 4, i.e. did not take the patients' role and the impact of patients' psychosocial context into account in their practice. This is concerning, especially amongst medical educators, given the widely acknowledged importance of patient-centred care in medical practice. Similarly, only some of the participants considered community health needs and felt a broader social responsibility beyond their responsibility to individual patients. These findings highlight aspects of the medical profession that need to be further emphasised in medical training and continuing professional development.</p>","PeriodicalId":46740,"journal":{"name":"Health Care Analysis","volume":" ","pages":"224-242"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141082413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Choosing to Provide: Early Medical Abortion and Clinician Conscience in Ireland. 选择提供:爱尔兰的早期医学堕胎与临床医生的良知》(Early Medical Abortion and Clinician Conscience in Ireland)。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-09-01 DOI: 10.1007/s10728-024-00490-2
Mary Donnelly, Claire Murray

Providers are essential to the delivery of abortion care. Yet, they often occupy an ambiguous space in political discourse around abortion. The introduction of a new abortion service in Ireland invites us to look afresh at providers. Since the Health (Regulation of Termination of Pregnancy) Act 2018 came into force, by far the most common form of abortion care has been early medical abortion (EMA). This is typically provided by General Practitioners (GPs), with approximately 10% of GPs having chosen to provide EMA. This article draws on an empirical study of providers to investigate their motivations for, and experiences of, provision and their views on colleagues who have not chosen to provide. The study shows that for many providers, the choice to provide was grounded in a moral commitment to protecting women's rights to autonomy and health and ensuring that the harms of the past were not repeated. The article argues that notwithstanding increased normalisation of EMA in Ireland, conscience still has a role to play in abortion care provision and it is important to reflect on the various aspects of this role.

提供者对于提供堕胎护理至关重要。然而,在有关堕胎的政治讨论中,她们往往占据着模糊的位置。爱尔兰引入新的堕胎服务,促使我们重新审视提供者。自 2018 年《健康(终止妊娠监管)法案》生效以来,迄今为止最常见的堕胎护理形式是早期药物流产(EMA)。这通常由全科医生(GP)提供,约有 10%的全科医生选择提供 EMA。本文通过对提供者的实证研究,调查他们提供服务的动机和经历,以及他们对未选择提供服务的同事的看法。研究表明,对许多提供者而言,选择提供是基于对保护妇女自主权和健康权以及确保过去的伤害不再重演的道德承诺。文章认为,尽管 EMA 在爱尔兰日趋正常化,但良知在提供堕胎护理方面仍可发挥作用,对这一作用的各个方面进行反思非常重要。
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引用次数: 0
Women's and Provider's Moral Reasoning About the Permissibility of Coercion in Birth: A Descriptive Ethics Study. 妇女和助产士关于分娩中是否允许胁迫的道德推理:一项描述性伦理研究。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-09-01 Epub Date: 2024-01-23 DOI: 10.1007/s10728-024-00480-4
Johanna Eichinger, Andrea Büchler, Louisa Arnold, Michael Rost

Evidence shows that during birth women frequently experience unconsented care, coercion, and a loss of autonomy. For many countries, this contradicts both the law and medical ethics guidelines, which emphasize that competent and fully informed women's autonomy must always be respected. To better understand this discordance, we empirically describe perinatal maternity care providers' and women's moral deliberation surrounding coercive measures during birth. Data were obtained from 1-on-1 interviews with providers (N = 15) and women (N = 14), and a survey of women (N = 118). Analyses focused on an in-depth exploration of responses to a question on the permissibility of coercion in birth whose wording was borrowed from a Swiss medical-ethical guideline. Reasons for and against a principle permissibility of coercive measures in birth were grouped into clusters of reasons to build a coherent explanatory framework. Factors considered morally relevant when deliberating on coercion included women's decisional capacity, beneficence/non-maleficence, authority through knowledge on the part of providers, flaws of the medical system, or the imperative to protect the most vulnerable. Also, we identified various misconceptions, such as the conviction that a pathological birth can justify coercion or that fetal rights can justifiably infringe on women's autonomy. Information and education on the issue of coercion in birth are urgently needed to enable women to fully exercise their reproductive autonomy, to prevent long-term adverse health outcomes of women and children, and to reconcile the medical vigilance which has lead to a reduction of perinatal morbidity and mortality with women's enfranchisement in their own care.

有证据表明,妇女在分娩过程中经常经历未经同意的护理、胁迫和自主权的丧失。在许多国家,这与法律和医学伦理准则相悖,后者强调必须始终尊重有能力和充分知情的妇女的自主权。为了更好地理解这一矛盾,我们通过实证研究描述了围产期产科护理人员和产妇对分娩过程中强制措施的道德考量。数据来源于对服务提供者(15 人)和产妇(14 人)的一对一访谈,以及对产妇(118 人)的调查。分析的重点是对有关分娩时是否允许采取强制措施的问题的回答进行深入探讨,该问题的措辞借鉴了瑞士的医疗伦理指南。为了建立一个连贯的解释框架,我们将支持和反对在分娩时采取强制措施原则的理由进行了分组。在讨论强制措施时,被认为与道德相关的因素包括妇女的决定能力、受益/非渎职、提供者通过知识获得的权威、医疗系统的缺陷或保护最弱势群体的必要性。此外,我们还发现了各种误解,如认为病理分娩可以成为胁迫的理由,或认为胎儿权利可以合理地侵犯妇女的自主权。为了使妇女能够充分行使其生育自主权,防止对妇女和儿童的健康造成长期不利影响,并使降低围产期发病率和死亡率的医疗警戒与妇女在其自身护理中的权利相协调,我们迫切需要开展有关胁迫分娩问题的宣传和教育。
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引用次数: 0
The Use of a Comprehensive Concept of Capability for Wellbeing Assessment: A Best-Fit Framework Synthesis. 使用综合能力概念进行福祉评估:最佳框架综述。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-08-19 DOI: 10.1007/s10728-024-00488-w
Jasper Ubels, Karla Hernandez-Villafuerte, Erica Niebauer, Michael Schlander

Developing an instrument with the capability approach can be challenging, since the capability concept of Sen is ambiguous concerning the burdens that people experience whilst achieving their capabilities. A solution is to develop instruments with a comprehensive concept of capability, such as the concept of 'option-freedom'. This study aims to develop a theoretical framework for instrument development with the concept of option-freedom. A best-fit framework synthesis was conducted with seven qualitative papers by one researcher. Two researchers supported the synthesis by discussing interim results during the synthesis. A priori concepts of option-freedom were used to deductively code against. Themes and subthemes were developed inductively when data did not match a priori themes. Seven paper were identified that fulfilled the eligibility criteria. Four themes emerged from the synthesis. (1) Option Wellbeing represents a range of options that need to be satisfied for individuals to experience wellbeing. (2) Self-Realization represents that there are experiences in an individual's life that have value beyond realizing options. (3) Perceived Access to Options represents the perceived ability of individuals to realize freedoms. (4) Perceived Control represents the experience of having control. Developing an instrument with the proposed framework has two benefits. First, it acknowledges the importance of assessing impediments in realizing capabilities for wellbeing assessment. Secondly, the themes form a broad informational base by including themes related to subjective wellbeing. Future research should study the feasibility of implementing the framework for instrument development.

由于森的能力概念对于人们在实现其能力时所承受的负担并不明确,因此采用能力方法来开发工具可能具有挑战性。解决的办法是开发具有全面能力概念的工具,如 "选择自由 "概念。本研究旨在为使用 "选择自由 "概念开发工具制定一个理论框架。一位研究人员对七篇定性论文进行了最佳框架综合。两位研究人员在综合过程中对临时结果进行了讨论,为综合提供了支持。选择自由的先验概念被用来对其进行演绎编码。当数据与先验主题不一致时,则以归纳的方式确定主题和次主题。确定了七篇符合资格标准的论文。综合得出四个主题。(1) 选择性幸福代表了个人体验幸福所需要满足的一系列选择。(2) 自我实现是指个人生活中的一些经历具有超越实现选择的价值。(3) 感知到的选择机会代表个人感知到的实现自由的能力。(4) 感知到的控制权代表拥有控制权的体验。利用拟议框架开发一种工具有两个好处。首先,它承认了评估实现能力的障碍对于福祉评估的重要性。其次,通过纳入与主观幸福感相关的主题,这些主题形成了广泛的信息基础。未来的研究应研究在工具开发中实施该框架的可行性。
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引用次数: 0
The Role of Transparency in Digital Contact Tracing During COVID-19: Insights from an Expert Survey. COVID-19 期间透明度在数字联系人追踪中的作用:专家调查的启示。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2024-06-23 DOI: 10.1007/s10728-024-00485-z
Dennis Krämer, Elisabeth Brachem, Lydia Schneider-Reuter, Isabella D'Angelo, Jochen Vollmann, Joschka Haltaufderheide

Health technologies such as apps for digital contract tracing [DCT] played a crucial role in containing and combating infections during the COVID-19 pandemic. Their primary function was to prevent the spread of SARS-CoV-2 by consistently generating and disseminating information related to various events such as encounters, vaccinations or infections. While the functionality of DCT has been well researched, the necessity of transparency in the use of DCT and the consent to share sensitive information such as users' health, vaccination and location status remains unclear. On one hand, DCT enabled the continuous monitoring of various risk factors, including data-based calculations of infection probabilities. On the other hand, digital monitoring of health risks was closely associated with various uncertainties, such as the ambiguous storage of personal data and its potential future misuse, e.g., by tech companies or health authorities. Our contribution aims to retrospectively analyze the COVID-19 pandemic from a post-pandemic perspective and utilize it as a case study for the implementation of new technological measures. We argue that under the condition of voluntary use of DCT, transparency plays a key role in convincing individuals to install health technologies on their mobile devices, keep them activated and consent to the sharing of sensitive data. We support our argument with qualitative data from an expert survey conducted between 2020 and 2021 and analyzed according to the principles of Grounded Theory.

在 COVID-19 大流行期间,数字合同追踪 [DCT] 应用程序等卫生技术在遏制和抗击感染方面发挥了至关重要的作用。它们的主要功能是通过持续生成和传播与各种事件(如相遇、接种疫苗或感染)相关的信息来防止 SARS-CoV-2 的传播。虽然对 DCT 的功能进行了深入研究,但 DCT 使用的透明度以及同意共享用户健康、疫苗接种和位置状态等敏感信息的必要性仍不明确。一方面,DCT 能够持续监测各种风险因素,包括基于数据的感染概率计算。另一方面,对健康风险的数字监测与各种不确定因素密切相关,如个人数据的模糊存储及其未来可能被滥用,如被科技公司或卫生当局滥用。我们的贡献旨在从大流行后的角度回顾分析 COVID-19 大流行,并将其作为实施新技术措施的案例研究。我们认为,在自愿使用 DCT 的条件下,透明度在说服个人在其移动设备上安装健康技术、保持其激活状态并同意共享敏感数据方面发挥着关键作用。我们在 2020 年至 2021 年期间开展了一项专家调查,并根据基础理论的原则进行了分析。
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引用次数: 0
Understanding the Normativity of Health Technology Assessment: Ontological, Moral, and Epistemological Commitments. 理解卫生技术评估的规范性:本体论、道德和认识论承诺。
IF 1.9 3区 哲学 Q2 ETHICS Pub Date : 2024-06-17 DOI: 10.1007/s10728-024-00487-x
Bart Bloemen, Wija Oortwijn, Gert Jan van der Wilt

The inherent normativity of HTA can be conceptualized as a result of normative commitments, a concept that we further specify to encompass moral, epistemological and ontological commitments at play in the practice of HTA. Based on examples from literature, and an analysis of the example of assessing Non-Invasive Prenatal Testing (NIPT), we will show that inevitable normative decisions in conducting an assessment commits the HTA practitioner to moral (regarding what makes a health technology desirable), ontological (regarding which effects of health technology are conceivable), and epistemological (regarding how to obtain reliable information about health technology) norms. This highlights and supports the need for integrating normative analysis and stakeholder participation, providing guidance to HTA practitioners when making normative choices. This will foster a shared understanding between those who conduct, use, or are impacted by assessments regarding what are conceivable and desirable outcomes of using health technology, and how to collect reliable information to assess whether these outcomes are (going to be) realized. It also provides more insight into the implications of different normative choices.

HTA 固有的规范性可被概念化为规范性承诺的结果,我们进一步明确了这一概念,以涵盖在 HTA 实践中发挥作用的道德、认识论和本体论承诺。根据文献中的例子和对无创产前检测(NIPT)评估例子的分析,我们将说明在进行评估时不可避免的规范性决策会使 HTA 从业者对道德(关于什么是可取的医疗技术)、本体论(关于医疗技术的哪些效果是可以想象的)和认识论(关于如何获得医疗技术的可靠信息)规范做出承诺。这凸显并支持了将规范分析与利益相关者参与相结合的必要性,在做出规范选择时为 HTA 从业人员提供指导。这将促进进行评估、使用评估或受评估影响的人员之间达成共识,即使用卫生技术的可想象和理想结果是什么,以及如何收集可靠信息以评估这些结果是否(将要)实现。它还能让人们更深入地了解不同规范选择的影响。
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引用次数: 0
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Health Care Analysis
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