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'It's a cultural thing': excuses used by health professionals on providing inclusive care. “这是文化问题”:卫生专业人员在提供包容性护理时使用的借口。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2022-03-01 Epub Date: 2020-11-22 DOI: 10.1080/14461242.2020.1846581
Zubaidah Mohamed Shaburdin, Lisa Bourke, Olivia Mitchell, Trudie Newman

Although health services in Australia have an aim to provide inclusive care for their patients/clients, this study highlights how barriers to care can lie at the centre of patient-provider interactions. Racial microaggression is a subtle form of racism that can occur in health settings, leading to further exclusion for First Nations Australians, immigrants and refugees. This paper is guided by Derrida's approach to deconstructionism by unpacking how language is used by health professionals - as holders of organisational power - and how they construct 'truths' or discourses about clients that historically have been marginalised by health services and system. Data comprise 21 interviews with staff from two rural health services. It identified three racial microaggressions were used to justify the challenges of providing care to people from First Nations, immigrant and refugee backgrounds: (1) Participants problematised culture(s) of service users; (2) participants implied cultural superiority in their conceptualisation of 'other' cultures; and (3) participants shared stories of inactions, discomfort and relegating of responsibility. The findings identified these discourses as forms of racial microaggression that can potentially lead to further exclusion of people seeking services and support.

尽管澳大利亚的卫生服务旨在为患者/客户提供包容性护理,但这项研究强调了护理障碍如何处于患者与提供者互动的中心。种族微侵略是一种微妙的种族主义形式,可能发生在卫生环境中,导致土著澳大利亚人、移民和难民进一步受到排斥。本文以德里达的解构主义方法为指导,通过揭示卫生专业人员如何使用语言-作为组织权力的持有者-以及他们如何构建关于历史上被卫生服务和系统边缘化的客户的“真理”或话语。数据包括对两个农村卫生服务机构工作人员的21次访谈。它确定了三种种族微侵犯被用来证明向来自第一民族、移民和难民背景的人提供护理的挑战是合理的:(1)参与者对服务使用者文化的问题化;(2)参与者在对“其他”文化的概念化中隐含文化优越感;(3)参与者分享了无所作为、不舒服和推卸责任的故事。研究发现,这些话语是种族微侵略的形式,可能会导致寻求服务和支持的人进一步被排斥。
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引用次数: 8
Doing peer work in mental health services: Unpacking different enactments of lived experiences. 在心理健康服务中做同伴工作:拆解不同的生活经历。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2022-03-01 Epub Date: 2021-01-19 DOI: 10.1080/14461242.2020.1865183
Malene Lue Kessing

Mental health services are increasingly employing peer workers (PWs), individuals who have lived experiences with mental health problems, to support patients and be part of mental health care teams. While the employment of PWs continues to increase, little is known about how the function unfolds in practice. This paper explores the broader context in which the PWs navigate and the concrete outcomes and everyday issues that exist at the individual level. Methodologically, the paper draws on 22 interviews with PWs employed in the mental health services in Denmark. Theoretically, it combines Lipsky's (1980) theory on street-level bureaucrats with sociological discussions concerning the lay-expert divide. The analysis shows that PWs experience both role ambiguity and goal uncertainty and that they use substantial discretion in determining the nature, amount and quality of their peer practices. This - combined with the PWs' diverse lived experiences - calls for a heterogeneous understanding of peer work and therefore the analysis presents three categories of peer workers: PWs as (1) a representative of patients' lifeworld, (2) an interdisciplinary professional and (3) an 'expert by experience'. These categories display PWs different enactments of their lived experiences and reveal ambiguities tied to the lay-expert divide.

精神卫生服务越来越多地雇用有过精神卫生问题经历的同侪工作者(PWs)来支持病人并成为精神卫生保健团队的一部分。虽然PWs的使用不断增加,但人们对其功能在实践中如何发挥知之甚少。本文探讨了pw所处的更广泛的背景,以及个人层面上存在的具体结果和日常问题。在方法上,本文对丹麦精神卫生服务机构雇用的22名战俘进行了访谈。从理论上讲,它将利普斯基(Lipsky, 1980)关于街头官僚的理论与关于外行-专家鸿沟的社会学讨论结合起来。分析表明,pw经历了角色模糊和目标不确定性,并且他们在确定同伴实践的性质、数量和质量时使用了大量的自由裁量权。这一点,再加上PWs的不同生活经历,要求对同伴工作有不同的理解,因此分析提出了三类同伴工作者:PWs是(1)患者生活世界的代表,(2)跨学科专业人员和(3)“经验专家”。这些类别显示了PWs对其生活经历的不同演绎,并揭示了与外行-专家划分相关的模糊性。
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引用次数: 6
' … breaks down silos': allied health clinicians' perceptions of informal interprofessional interactions in the healthcare workplace. “……打破孤岛”:专职健康临床医生对医疗保健工作场所非正式跨专业互动的看法。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2022-03-01 Epub Date: 2021-03-04 DOI: 10.1080/14461242.2021.1886865
Olivia King, Nicole Shaw

Informal interprofessional interactions have gained interest in recent interprofessional care, education, health services and social sciences research literature. Some of the established benefits associated with these interactions include enhanced communication, teamwork, research translation and the provision of safer care. Limited evidence about how informal interprofessional interactions are perceived by the allied health workforce, exists. The survey conducted at a large Australian health service explored allied health clinicians' perceptions of the benefits, challenges and enablers of informal interprofessional interactions and their recommendations to improve opportunities for these workplace interactions. Sixty-four responses were analysed descriptively (for close-ended questions) and using a framework analysis approach, informed by Bourdieu's social space theory (for open-ended questions). Perceived benefits were aligned with three themes: teams and organisations, individual clinicians and service-users. Challenges to, and enablers of, informal interprofessional interactions were identified according to five themes: socio-cultural practices, physical environment, timing-related factors, individual and organisational factors. Participant recommendations to increase opportunities for informal interprofessional workplace interactions for allied health reflected three of the aforementioned themes: socio-cultural practices, physical environment and organisational factors. This theoretically-informed analysis may aid in the development of strategies to support these types of workplace interactions and realise the benefits identified.

非正式的专业间互动在最近的专业间护理、教育、保健服务和社会科学研究文献中引起了人们的兴趣。与这些互动相关的一些已确定的益处包括加强沟通、团队合作、研究翻译和提供更安全的护理。关于联合卫生工作人员如何感知非正式的专业间互动的证据有限。这项在澳大利亚一家大型卫生服务机构进行的调查探讨了专职卫生临床医生对非正式专业间互动的好处、挑战和促成因素的看法,以及他们对改善这些工作场所互动机会的建议。在布迪厄的社会空间理论(开放式问题)的指导下,对64个回答进行了描述性分析(封闭式问题),并使用了框架分析方法。感知到的利益与三个主题一致:团队和组织,个人临床医生和服务用户。根据五个主题确定了非正式专业间互动的挑战和推动因素:社会文化实践、物理环境、时间相关因素、个人和组织因素。与会者提出的关于增加专职保健工作场所非正式跨专业互动机会的建议反映了上述三个主题:社会文化习俗、自然环境和组织因素。这种理论上的分析可能有助于制定策略,以支持这些类型的工作场所互动,并实现所确定的好处。
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引用次数: 5
Heavy drinking as phenomenon: gender and agency in accounts of men's heavy drinking. 酗酒作为一种现象:男性酗酒行为的性别与能动性。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2022-03-01 Epub Date: 2020-12-09 DOI: 10.1080/14461242.2020.1850317
Renae Fomiatti, Michael Savic, Suzanne Fraser, Michael Edwards, Adrian Farrugia

Alcohol consumption is a significant public health concern in Australia, with men disproportionately represented in treatment for health issues related to heavy drinking. Despite this, little is known about the experiences of these men or the gender dynamics that may shape heavy drinking. Increasingly, the treatment of alcohol and other drug-related issues, including those related to heavy drinking, is based on a biopsychosocial approach. Within this framework, heavy drinking is understood as a symptom of individual pathology in the context of various social 'factors' that influence individual capacity to exercise agency. Following the work of Karen Barad, this article employs a feminist science studies account of agency to formulate heavy drinking as a gendered 'phenomenon': enacted and sustained through the 'intra-action' of other phenomena. Drawing on interviews with men who drink heavily, our analysis explores how the phenomenon of men's heavy drinking materialises through the intra-actions of gender, isolation and healthcare. We argue that heavy drinking is not a sign of failed individual agency but an expression of entangled agencies. In concluding, we suggest it is possible to enhance the well-being of men who drink heavily by addressing specific gendered intra-actions in the making of heavy drinking.

在澳大利亚,饮酒是一个重大的公共卫生问题,在与酗酒有关的健康问题的治疗中,男性所占比例过高。尽管如此,人们对这些男性的经历或可能导致酗酒的性别动态知之甚少。治疗酒精和其他与毒品有关的问题,包括与酗酒有关的问题,越来越多地以生物心理社会方法为基础。在这个框架内,酗酒被理解为在影响个人行使代理能力的各种社会“因素”背景下的个体病理症状。继Karen Barad的工作之后,这篇文章采用了一种女性主义科学研究,将酗酒作为一种性别“现象”来表述:通过其他现象的“内部行为”来制定和维持。通过对酗酒男性的采访,我们的分析探讨了男性酗酒现象是如何通过性别、孤立和医疗保健等内部因素实现的。我们认为,酗酒不是个体代理失败的标志,而是代理纠缠的表现。总之,我们建议,通过解决导致酗酒的特定性别内部行为,有可能提高酗酒男性的幸福感。
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引用次数: 6
How Polish medical students are socialised to cooperate with the pharmaceutical industry: a focus group study of the importance of informal, hidden and null curricula. 波兰医科学生如何社会化与制药业合作:非正式、隐蔽和无效课程重要性的焦点小组研究。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2022-03-01 Epub Date: 2021-03-30 DOI: 10.1080/14461242.2021.1899842
Marta Makowska

This study analysed how Polish medical students are socialised to cooperate with the pharmaceutical industry via informal, hidden, and null curricula. Nine focus groups were run with medical students in their second year and upwards at three Polish medical universities. Initially, most students had difficulty in discerning pharmaceutical companies' presence in their education, but on reflection they all recognised this presence. Students said that they were surrounded by small medical gifts provided by companies, met pharmaceutical representatives, and took part in events for physicians organised and/or sponsored by the pharmaceutical industry. Nevertheless, they did not think they were the main target of the industry's marketing activities, saying that these were largely aimed at practicing doctors, and that they were only targeted as opportunities arose. Students' statements make it clear that their socialisation takes place within a culture which consents to medical professionals' cooperation with the industry. Medical students come to perceive cooperation with the industry as natural, and benefits from the industry as a privilege of doctors. Medical schools can prevent this by introducing guidelines, conflict of interest polices, and changing the formal curriculum, but the need for such measures is not currently recognised in Poland.

本研究分析了波兰医科学生如何通过非正式、隐蔽和无效的课程与制药行业合作。在波兰的三所医科大学中,对二年级及以上的医科学生进行了九个焦点小组的研究。最初,大多数学生很难辨别出制药公司在他们的教育中的存在,但经过反思,他们都认识到了这种存在。学生们说,他们被公司提供的小型医疗礼物包围,会见了制药代表,并参加了由制药行业组织和/或赞助的医生活动。然而,他们并不认为自己是该行业营销活动的主要目标,称这些活动主要针对执业医生,只有在机会出现时才会针对他们。学生们的陈述清楚地表明,他们的社交活动发生在一种允许医疗专业人员与行业合作的文化中。医学生逐渐将与行业合作视为理所当然,并将行业利益视为医生的特权。医学院可以通过引入指导方针、利益冲突政策和改变正式课程来防止这种情况,但是波兰目前还没有认识到采取这些措施的必要性。
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引用次数: 4
Situational expectations and surveillance in families affected by dementia: organising uncertainties of ageing and cognition. 受痴呆症影响的家庭中的情境期望和监视:组织衰老和认知的不确定性。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2022-03-01 Epub Date: 2021-02-16 DOI: 10.1080/14461242.2021.1888653
James Rupert Fletcher

Recent political processes have rendered people with dementia an increasingly surveilled population. Surveillance is a contentious issue within dementia research, spanning technological monitoring, biomarker research and epidemiological data gathering. This paper explores surveillance in the relationships of people affected by dementia, how older relatives both with and without diagnoses are surveilled in everyday interactions, and the importance of expectations in guiding surveillance. This paper presents data from 41 in-depth interviews with people affected by dementia living in the community in the United Kingdom. Agedness was a key contributor to expectations that a person may have dementia, based on previous experiences, media accounts and wider awareness. Expectations provoked surveillance in interactions, with participants looking for signs of dementia when interacting with older relatives. Older people also enacted self-surveillance, monitoring their own behaviour. Various actions could be attributed to dementia because interpretation is malleable, partly vindicating expectations while leaving some uncertainties. Expectant surveillance transformed people's experiences because they organised their own actions, and interpreted those of others, in line with pre-existing meanings. The ability to interpret behaviours to fit expectations can bring coherence to uncertainties of ageing, cognition and dementia, but risks ascribing dementia to many older people who straddle those uncertainties.

最近的政治进程使痴呆症患者成为日益受到监控的人群。监测是痴呆症研究中一个有争议的问题,涉及技术监测、生物标志物研究和流行病学数据收集。本文探讨了监测痴呆症患者之间的关系,如何在日常互动中监测患有和未诊断的老年亲属,以及期望在指导监测中的重要性。本文提供了41个深度访谈的数据,这些访谈对象是生活在英国社区的痴呆症患者。根据以往的经历、媒体报道和更广泛的认识,衰老是人们认为一个人可能患有痴呆症的一个关键因素。期望在互动中引发了监督,参与者在与年长的亲戚互动时寻找痴呆症的迹象。老年人也会进行自我监督,监控自己的行为。各种行为可以归因于痴呆症,因为解释是可塑的,部分证明预期是正确的,同时留下一些不确定性。期待的监视改变了人们的经历,因为他们组织自己的行为,并根据预先存在的意义解释他人的行为。将行为解释为符合预期的能力可以为衰老、认知和痴呆症的不确定性带来连贯性,但也有可能将痴呆症归咎于跨越这些不确定性的许多老年人。
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引用次数: 0
Reconfiguring time: optimisation and authenticity in accounts of people surviving with advanced cancer. 重新配置时间:晚期癌症患者生存记录的优化和真实性。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2022-03-01 Epub Date: 2021-04-22 DOI: 10.1080/14461242.2021.1918016
Stefanie Plage, Emma Kirby

Increasingly, people live longer with advanced cancer, despite having no prospect of full recovery. Ongoing survival is owed to early detection and effective disease management, yet experienced as highly precarious. In this article we explore how cancer chronicity brings into effect a pre-occupation with time, what time is to people with advanced cancer, and what socio-cultural norms inflect everyday practices. We analyse 20 interviews conducted in Queensland, Australia with 11 participants with advanced cancer, to trace the intersections of what time means, what people do with time, and what time feels like. Drawing on scholarship on the moralities around ill health, we discuss how awareness of time emerges in cancer chronicity and raises moral questions on how to live well. Here, imperatives of optimisation (urging people with advanced cancer to make the most of limited time) intersect with imperatives of authenticity (marked by emphasis on how to live one's own best life). These dynamics reveal expressions of living with advanced cancer in morally viable ways. Such ontological processes have implications for the lived experience of people with advanced cancer, their families and oncological care.

尽管没有完全康复的希望,但晚期癌症患者的寿命越来越长。持续的生存归功于早期发现和有效的疾病管理,但经历了高度不稳定。在这篇文章中,我们将探讨癌症的慢性性如何影响人们对时间的关注,时间对晚期癌症患者意味着什么,以及社会文化规范对日常行为的影响。我们分析了在澳大利亚昆士兰州进行的20次访谈,其中11名参与者患有晚期癌症,以追踪时间的含义,人们如何利用时间以及时间的感觉。借鉴健康不良的道德方面的学术研究,我们讨论了时间意识是如何在癌症慢性中出现的,并提出了如何生活得更好的道德问题。在这里,优化的必要性(敦促晚期癌症患者充分利用有限的时间)与真实性的必要性(强调如何过自己最好的生活)交织在一起。这些动态揭示了晚期癌症患者在道德上可行的生活方式。这种本体论过程对晚期癌症患者的生活经历、他们的家庭和肿瘤护理都有影响。
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引用次数: 3
Unequal neurorehabilitation trajectories – a longitudinal case study combining field structures with social Class–Based Capital Conversion 不平等的神经康复轨迹——结合领域结构与社会阶级资本转换的纵向案例研究
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2022-02-27 DOI: 10.1080/14461242.2021.2007161
Mette Ryssel Bystrup, A. Hindhede, Hanne Pallesen, L. Aadal, Kristian Larsen
ABSTRACT Inequalities in illness, service provision, and outcomes are well documented in the Nordic universal welfare state. The ways in which inequalities are produced during illness recovery trajectories remain largely unknown. Long-term brain injury rehabilitation in this context provides a window into veiled aspects of inequality and the underlying mechanisms. We examine inequality empirically by combing framing field structures with the classed abilities of families to mobilise capital after a severe acquired brain injury (severe ABI). Using a Bourdieuan theoretical framework, informed by the concepts of field, doxa, cultural health capital (CHC), and rehabilitation capital (RC), we designed a longitudinal case study encompassing professional records, observations, and interviews that tracked and analysed subjects' trajectories. We found that families’ consistent accumulation and conversion of capital was crucial after a severe ABI because of the multifaceted rehabilitation process involving many different field specific agendas and doxas. This study supplements previous concepts (CHC and RC) developed in a health care context by including other rehabilitation contexts. These disparities in forms of capital amongst social classes result in winners and losers and were reflected in the rehabilitation trajectories of the young adults, characterised by continuity on one extreme and broken trajectories on the other.
北欧普遍福利国家在疾病、服务提供和结果方面的不平等都有很好的记录。在疾病康复过程中产生不平等的方式在很大程度上仍然未知。在这种情况下,长期脑损伤康复为不平等和潜在机制的隐藏方面提供了一个窗口。我们通过将框架场结构与家庭在严重获得性脑损伤(严重ABI)后动员资本的分类能力相结合,实证地检查了不平等。利用布迪安理论框架,结合场域、doxa、文化健康资本(CHC)和康复资本(RC)的概念,我们设计了一个纵向案例研究,包括专业记录、观察和访谈,跟踪和分析了受试者的轨迹。我们发现,在严重的ABI之后,家庭持续的资本积累和转换是至关重要的,因为多方面的康复过程涉及许多不同的领域特定议程和doxas。本研究通过纳入其他康复背景,补充了先前在卫生保健背景下发展的概念(CHC和RC)。这些社会阶层之间资本形式的差异导致了赢家和输家,并反映在年轻人的康复轨迹中,其特征是一个极端的连续性和另一个极端的断裂轨迹。
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引用次数: 2
Afflexivity in post-qualitative inquiry: prioritising affect and reflexivity in the evaluation of a health information website. 质后探究的反身性:健康资讯网站评价中情感与反身性的优先性。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2021-11-01 Epub Date: 2021-09-14 DOI: 10.1080/14461242.2021.1976068
Jenny Setchell, Rebecca Olson, Merrill Turpin, Nathalia Costa, Tim Barlott, Kate O'Halloran, Britta Wigginton, Paul Hodges

Increasingly, people turn to online sources for health information, creating human-non-human relationalities. Health websites are considered accessible in scope and convenience but can have limited capacity to accommodate complexities. There are concerns about who gets to 'assemble' with these resources, and who is excluded. Guided by Ahmed's socio-political theories of emotions, we questioned our feelings as we intra-acted with a consumer information website about back pain (MyBackPain). This encouraged us to approach resource evaluation in a way that alters conventional rational/cognitive judgement processes. Our inquiry was 'supra-disciplinary' involving public health, sociology, allied health and consumer collaborators. Specifically, we considered relationality - the feelings circulating between bodies/objects and implicated in MyBackPain's affective practices; impressions - the marks, images or beliefs MyBackPain makes on bodies/objects; and directionality - how these intra-actions pushed in some directions and away from others. Although Ahmed would likely not consider herself 'post-humanist', we argue that her socio-political theories of how objects and emotions entangle are of great interest to furthering critical post-human understandings of health. Rather than threatening decision-making, we suggest that feelings (and their affects) are central to it. The article demonstrates the productive potential of critical post-human inquiry in identifying/countering 'othering' possibilities, and catalysing a 'nomadic shift' towards new human-non-human formations.

人们越来越多地转向在线资源获取健康信息,创造了人类与非人类的关系。健康网站在范围和便利性方面被认为是可访问的,但处理复杂性的能力有限。人们担心谁可以“集结”这些资源,谁被排除在外。在艾哈迈德关于情绪的社会政治理论的指导下,我们在与一个关于背痛的消费者信息网站(MyBackPain)互动时,询问了自己的感受。这鼓励我们以一种改变传统理性/认知判断过程的方式来进行资源评估。我们的调查是“跨学科的”,涉及公共卫生、社会学、联合卫生和消费者合作者。具体来说,我们考虑了关联性——在身体/物体之间循环的感觉,并与MyBackPain的情感实践有关;impressions—MyBackPain在身体/物体上留下的标记、图像或信念;方向性——这些内部行为是如何向某些方向推进而远离其他方向的。虽然艾哈迈德可能不认为自己是“后人文主义者”,但我们认为,她关于物体和情感如何纠缠的社会政治理论对进一步批判性地理解后人类的健康有着极大的兴趣。我们认为感觉(及其影响)是决策的核心,而不是威胁决策。本文展示了批判性后人类探究在识别/对抗“他者”可能性方面的生产潜力,并促进了向新的人类-非人类形态的“游牧转变”。
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引用次数: 4
Lost in translation? Beyond sex as a biological variable in animal research. 迷失在翻译中?超越性别在动物研究中的生物学变量。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2021-11-01 Epub Date: 2021-08-27 DOI: 10.1080/14461242.2021.1969981
Madeleine Pape

In this article, I develop a feminist posthumanist account of biomedical policymaking as a material-discursive intervention that shapes the emergence of phenomena in the scientific laboratory. The setting is United States (U.S.) biomedicine, where a recent policy of the National Institutes of Health has mandated the consideration of sex in basic and preclinical research. Called Sex as a Biological Variable (SABV), the mandate configures cell lines and animal models as the next frontier in the project of advancing gender equity in biomedical research. Given sex and gender are increasingly recognised as having complex, entangled, and dynamic effects on human health and illness, how do laboratory animals respond to their attempted enrolment in this regulatory intervention? Through a qualitative analysis of this policy domain, I show how laboratory animals reveal the context-specific character of sex, its multiplicity and elusiveness as a so-called biological variable, and the considerable work needed to shore up human ideologies of sex as a pervasive cross-species form of binary difference. I suggest that while regulatory interventions constrain patterns of mattering, they also serve as agential openings in which laboratory animals can 'kick back' and reconfigure the pursuit of knowledge, particularly as it relates to difference and health.

在这篇文章中,我发展了一种女权主义的后人文主义的生物医学政策制定,作为一种物质话语干预,塑造了科学实验室中现象的出现。背景是美国生物医学,美国国立卫生研究院最近的一项政策要求在基础研究和临床前研究中考虑性别。这项名为“性别作为生物变量”(SABV)的任务将细胞系和动物模型配置为推进生物医学研究中性别平等项目的下一个前沿领域。鉴于性别和社会性别越来越被认为对人类健康和疾病具有复杂、纠缠和动态的影响,实验动物对它们试图加入这种监管干预的反应如何?通过对这一政策领域的定性分析,我展示了实验动物是如何揭示性别的特定环境特征的,它的多样性和难以捉摸的所谓的生物变量,以及需要大量的工作来支持性别的人类意识形态作为一种普遍的跨物种形式的二元差异。我认为,虽然监管干预限制了重要的模式,但它们也作为一种代理的开放,在这种开放中,实验动物可以“放松”并重新配置对知识的追求,特别是在与差异和健康有关的方面。
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引用次数: 5
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