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'To have a plan': teachers' perceptions of working with a literacy instruction combining phonics and comprehension applications for students with intellectual disability and communication difficulties. 要有计划":教师对为智障和有沟通障碍的学生提供结合语音和理解应用的识字教学的看法。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-04-22 DOI: 10.1080/17483107.2024.2340094
Jenny Samuelsson, Jakob Åsberg Johnels, Emil Holmer, Lisa Palmqvist, Mikael Heimann, Monica Reichenberg, Mats Lundälv, Gunilla Thunberg

Purpose: Students with intellectual disabilities (ID) typically have difficulties with literacy learning, often not acquiring basic literacy skills. Research and practical experience indicate that when these students are provided with evidence-based instruction, including comprehension as well as phonemic strategies, literacy may develop.

Methods: In this study, four pairs of teachers were interviewed regarding their perceptions of a 12-week digital literacy intervention that focused on both phonics and comprehension strategies. The intervention aimed to enhance literacy and communication development in students aged 7-21, who had mild to severe ID.

Results and conclusion: Four themes were identified in the analysis. It was seen that the teachers found it valuable to have access to two apps accessing and facilitating the use of different literacy strategies in meeting the needs of individual students. This digital format was also perceived as positive, contributing to creating a supportive and systematic learning environment that enhanced and increased literacy learning. The teachers recurringly also talked about the positive influence of participating in research, lifting the strong focus, and positive attention as very important for both teachers and students.

目的:智障(ID)学生通常在识字学习方面存在困难,往往无法掌握基本的识字技能。研究和实践经验表明,如果为这些学生提供循证教学,包括理解和音位策略,他们的识字能力就会得到发展:在这项研究中,我们对四对教师进行了访谈,了解他们对为期 12 周的数字识字干预的看法,该干预侧重于语音和理解策略。该干预旨在提高 7-21 岁轻度至重度智障学生的读写能力和沟通能力:在分析中确定了四个主题。教师们发现,能够使用两个应用程序来访问和促进不同识字策略的使用,以满足个别学生的需求,是非常有价值的。这种数字形式也被认为是积极的,有助于创造一个支持性和系统性的学习环 境,加强和提高识字学习。教师们还反复谈到了参与研究的积极影响,认为研究的重点突出和积极关注对教师和 学生都非常重要。
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引用次数: 0
Assistive products for older adults in China: self-reported need, services, and satisfaction. 中国老年人辅助产品:自我报告的需求、服务和满意度。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-04-18 DOI: 10.1080/17483107.2024.2338134
Ailin Mao, Hua Jiang, Liquan Dong, Mei Yan, Yuejian Shan

Purpose: Older adults may abandon or discontinue the use of assistive products due to low levels of satisfaction. Only few studies have examined need and satisfaction related to the use of assistive products for this group in China. As such, research is needed to improve satisfaction with assistive products and related services.

Method: This study used technology acceptance theory to examine the self-reported need for, and ownership of, assistive products among older adults in China, as well as to examine the association between services and satisfaction with assistive products; the underlying mechanism of this association was also assessed. The current study used the rapid assistive technology assessment (rATA) questionnaire designed by the World Health Organization (WHO) for stratified and cluster sampling. A total of 2,158 older adults living in China were interviewed. The multiple regression analysis was used to examine the independent and interactive associations between services and satisfaction. Heterogeneity and robustness tests were also undertaken.

Results: The self-reported need for assistive products pertained mainly to vision, and together with ownership, the need gap has not yet been addressed. Both pre-sale (β = 0.600, p < 0.01) and follow-up services (β = 0.270, p < 0.01) were positively correlated with satisfaction, which in turn shows heterogeneity when it comes to the types of assistive products.

Conclusion: Providing accessible services, especially follow-up services, will help older adults be more satisfied with their assistive products, thus ultimately ensuring the continued use of products.

目的:老年人可能会因满意度低而放弃或停止使用辅助产品。在中国,只有少数研究对这一群体使用辅助产品的需求和满意度进行了调查。因此,需要开展研究以提高对辅助产品和相关服务的满意度。研究方法本研究采用技术接受理论,考察了中国老年人自我报告的辅助产品需求和拥有情况,并考察了服务与辅助产品满意度之间的关联;同时还评估了这种关联的内在机制。本研究采用世界卫生组织(WHO)设计的快速辅助技术评估(rATA)问卷进行分层抽样和分组抽样。共访问了 2,158 名中国老年人。研究采用多元回归分析法来检验服务与满意度之间的独立关联和交互关联。同时还进行了异质性和稳健性检验:结果:自我报告的辅助产品需求主要与视力有关,加上所有权问题,需求缺口尚未得到解决。销售前(β = 0.600,p p 结论:提供无障碍服务,尤其是后续服务,将有助于提高老年人对其辅助产品的满意度,从而最终确保产品的持续使用。
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引用次数: 0
A mixed-methods study examining perceptions of fear of falling among community-dwelling people who use wheelchairs full-time. 一项混合方法研究,探讨了全职使用轮椅的社区居民对跌倒恐惧的看法。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-05-20 DOI: 10.1080/17483107.2024.2347312
JongHun Sung, Joseph Peters, Wendy Bartlo, Laura A Rice

Objective: There is growing evidence that fear of falling (FOF) is common in people who use wheelchairs full-time and negatively influence their performance of daily activities and quality of life. The purpose of this study was to gain an in-depth understanding of perceptions related to FOF among people who use wheelchairs full-time.

Methods: Mixed-method analysis was conducted using semi-structured interviews and surveys to gain insight into FOF. Surveys included demographic information; Spinal Cord Injury-Fall Concerns Scale (SCI-FCS); a questionnaire that directly assesses FOF and associated activity curtailment; and Fall Control Scale (FCS).

Results: Among 39 participants (age = 43.1 ± 15.6 years, disability duration = 21.2 ± 11.1 years), 27 participants (69%) reported FOF. Participants with less perceived ability to control falls indexed by FCS reported higher SCI-FCS scores, indicating greater FOF (rs = -0.384, p = 0.016). Qualitative findings revealed that participants felt that FOF developed due to sustaining fall-related injuries or limited ability to recover from a fall. Some participants perceived falling as a part of their lives. They believed that it was not the cause of developing FOF.

Conclusions: Among people who use wheelchairs full-time, FOF is prevalent and may develop due to fears of sustaining injuries or being unable to get up after falling. Developing an evidenced-based education protocol aimed at managing falls (e.g., establishing a fall recovery strategy and education on techniques to reduce injury during falls) is needed to minimize FOF people who use wheelchairs full-time.

目的:越来越多的证据表明,害怕跌倒(FOF)在全职使用轮椅的人群中很常见,并对他们的日常活动能力和生活质量产生了负面影响。本研究旨在深入了解全职使用轮椅者对 FOF 的看法:采用半结构式访谈和调查的混合方法进行分析,以深入了解 FOF。调查内容包括人口统计学信息、脊髓损伤-跌倒关注量表(SCI-FCS)、直接评估FOF和相关活动减少情况的问卷以及跌倒控制量表(FCS):在 39 名参与者(年龄 = 43.1 ± 15.6 岁,残疾时间 = 21.2 ± 11.1 年)中,27 名参与者(69%)报告了 FOF。以 FCS 为指标,认为控制跌倒能力较弱的参与者报告的 SCI-FCS 分数较高,表明其 FOF 较高(rs = -0.384,p = 0.016)。定性研究结果显示,参与者认为 FOF 的形成是由于受到与跌倒有关的伤害或跌倒后恢复能力有限。一些参与者认为跌倒是他们生活的一部分。他们认为,这并不是形成 FOF 的原因:结论:在全职使用轮椅的人群中,FOF 非常普遍,其形成原因可能是担心摔倒后受伤或无法站起来。为了最大限度地减少全职使用轮椅者的 FOF,有必要制定一个以证据为基础的教育方案,旨在管理跌倒(例如,制定跌倒恢复策略和教育减少跌倒时受伤的技巧)。
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引用次数: 0
Does bilateral hearing aid fitting improve spatial hearing ability: a systematic review and meta-analysis. 双侧助听器验配是否能提高空间听力能力:系统回顾和荟萃分析。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-02-22 DOI: 10.1080/17483107.2024.2316293
Sathish Kumar, Srikanth Nayak, Vibha Kanagokar, Arivudai Nambi Pitchai Muthu

Objectives: The ability to localize sound sources is crucial for everyday listening, as it contributes to spatial awareness and the detection of warning signs. Individuals with hearing impairment have poorer localization abilities, which further deteriorate when they are fitted with a hearing aid. Although numerous studies have addressed this phenomenon, there is a lack of systematic evidence. The aim of the current systematic review is to address the following research question, "Do behavioural measures of spatial hearing ability improve with bilateral hearing aid fitting compared to the unaided hearing condition?"

Design: A comprehensive search was conducted by two independent authors utilizing electronic databases, using various electronic databases, covering the period of 1965 to 2022. The inclusion and exclusion criteria were formulated using the Population, Intervention, Compression, Outcome, and Study design (PICOS) format, and the certainty of evidence was determined using the Grading of Recommendations Assessment, Development, and Evaluation (GRADE) guidelines.

Results: The comprehensive search resulted in 2199 studies, 17 studies for qualitative synthesis and 15 studies for quantitative synthesis. The collected data was divided into two groups, namely vertical and horizontal localization. The results of the quantitative analysis indicate that the localization performance was significantly better in the unaided condition for both vertical and horizontal planes. The certainty of our evidence was judged to be moderate, meaning that "we are moderately confident in the effect estimate. The true effect is likely to be close to the estimate of the effect, but there is a possibility that it is substantially different".

Conclusion: The review findings demonstrate that the bilateral fitting of the hearing aid did not effectively preserve spatial cues, which resulted in poorer localization performance irrespective of the plane of assessment.

Review registration: Prospective Register of Systematic Reviews (PROSPERO); CRD42022358164.

目标:声源定位能力对日常听力至关重要,因为它有助于空间意识和警示信号的检测。听力受损者的定位能力较差,当他们佩戴助听器后,这种能力会进一步下降。尽管有许多研究对这一现象进行了探讨,但缺乏系统性的证据。本系统综述旨在解决以下研究问题:"与无助听条件相比,双侧助听器验配是否会改善空间听力能力的行为测量?"设计:两位独立作者利用各种电子数据库进行了全面检索,检索时间涵盖 1965 年至 2022 年。纳入和排除标准采用人群、干预、压缩、结果和研究设计(PICOS)格式制定,证据的确定性采用建议评估、发展和评价分级(GRADE)指南确定:综合搜索结果为 2199 项研究,其中 17 项研究用于定性综合,15 项研究用于定量综合。收集到的数据分为两组,即纵向定位和横向定位。定量分析结果表明,在无辅助条件下,垂直和水平面的定位性能都明显更好。我们的证据确定性被判定为中等,即 "我们对效果估计值有中等程度的信心。真实效果很可能与效果估计值接近,但也有可能存在较大差异":综述结果表明,助听器的双侧验配并不能有效保留空间线索,这导致无论在哪个评估平面上,定位性能都较差:综述注册:系统综述前瞻性注册(PROSPERO);CRD42022358164。
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引用次数: 0
Digital tools to support technology-enabled budget management in people with acquired brain injury: a rapid review. 支持后天性脑损伤患者技术辅助预算管理的数字工具:快速审查。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-03-07 DOI: 10.1080/17483107.2024.2323146
François Prats, Mohamed-Amine Choukou, Walter Wittich, Simon Beaulieu-Bonneau, Olivier Piquer, Sarah Cherrier, Frédérique Poncet

People with acquired brain injuries (ABI) face financial challenges that affect their daily lives. Managing finances is a crucial activity that can help avoid social isolation. However, this task becomes difficult for people with ABI because of their cognitive impairments. Recent advances in digital technology can help people with ABI manage their finances more effectively. This study aims to identify and describe available digital tools that can help ABI in budget management, and identify their effectiveness, barriers and facilitators to implementation. To address this issue, we conducted a rapid review of academic databases followed by a modified Google/Google Scholar search to identify the digital tools to support budgeting tasks (DBT) used and tested by people with ABI. Our rapid review included only two articles on the use of DBT. The first study showed that common portable electronic devices were acceptable and desirable as memory and organisational aids for people with ABI. The second study documented the development of a DBT and the perception of users (research participants) who found it appealing and user-friendly. However, for both articles, the technologies used are outdated and lack information on barriers and facilitators to using DBT. In conclusion, this literature review revealed that digital technologies have the potential to support budget management in people with ABI, but technology needs to be made available on the market to benefit the users. Further research and development are needed to create new ways to help people with brain injuries manage their budgets.

后天性脑损伤 (ABI) 患者面临着影响其日常生活的财务挑战。理财是一项至关重要的活动,有助于避免社会孤立。然而,由于认知障碍,这项任务对于后天性脑损伤患者来说变得十分困难。数字技术的最新进展可以帮助有 ABI 的人更有效地管理自己的财务。本研究旨在识别和描述可帮助有 ABI 人士进行预算管理的现有数字工具,并确定其有效性、实施障碍和促进因素。为解决这一问题,我们对学术数据库进行了快速查阅,随后又对谷歌/谷歌学术进行了修改搜索,以确定 ABI 使用和测试过的支持预算任务(DBT)的数字工具。我们的快速检索只收录了两篇关于使用 DBT 的文章。第一项研究表明,常见的便携式电子设备可作为有 ABI 的人的记忆和组织辅助工具,这一点是可以接受的,也是可取的。第二项研究记录了 DBT 的开发过程以及用户(研究参与者)的看法,他们认为 DBT 既吸引人又方便使用。然而,这两篇文章所使用的技术都已经过时,而且缺乏有关使用 DBT 的障碍和促进因素的信息。总之,本次文献综述显示,数字技术有潜力为有自闭症的患者的预算管理提供支持,但需要在市场上提供技术才能使用户受益。我们需要进一步研究和开发新的方法来帮助脑损伤患者管理他们的预算。
{"title":"Digital tools to support technology-enabled budget management in people with acquired brain injury: a rapid review.","authors":"François Prats, Mohamed-Amine Choukou, Walter Wittich, Simon Beaulieu-Bonneau, Olivier Piquer, Sarah Cherrier, Frédérique Poncet","doi":"10.1080/17483107.2024.2323146","DOIUrl":"10.1080/17483107.2024.2323146","url":null,"abstract":"<p><p>People with acquired brain injuries (ABI) face financial challenges that affect their daily lives. Managing finances is a crucial activity that can help avoid social isolation. However, this task becomes difficult for people with ABI because of their cognitive impairments. Recent advances in digital technology can help people with ABI manage their finances more effectively. This study aims to identify and describe available digital tools that can help ABI in budget management, and identify their effectiveness, barriers and facilitators to implementation. To address this issue, we conducted a rapid review of academic databases followed by a modified Google/Google Scholar search to identify the digital tools to support budgeting tasks (DBT) used and tested by people with ABI. Our rapid review included only two articles on the use of DBT. The first study showed that common portable electronic devices were acceptable and desirable as memory and organisational aids for people with ABI. The second study documented the development of a DBT and the perception of users (research participants) who found it appealing and user-friendly. However, for both articles, the technologies used are outdated and lack information on barriers and facilitators to using DBT. In conclusion, this literature review revealed that digital technologies have the potential to support budget management in people with ABI, but technology needs to be made available on the market to benefit the users. Further research and development are needed to create new ways to help people with brain injuries manage their budgets.</p>","PeriodicalId":47806,"journal":{"name":"Disability and Rehabilitation-Assistive Technology","volume":" ","pages":"2797-2805"},"PeriodicalIF":1.9,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140050724","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A smart handheld magnifier for reflowing printed text notices in public spaces. 一款智能手持放大镜,用于在公共场所重新显示印刷文字通知。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-04-01 DOI: 10.1080/17483107.2024.2333904
Frode Eika Sandnes, Nechrvan Murad, Mohammad Khaled, Fadl El Nassani

Purpose: Individuals with reduced vision may rely on handheld magnifiers for near reading of texts on household items such as food packaging and far reading of information notices and signposts. Smartphones have become favoured magnification devices due to their pervasiveness. Users typically take a photo of the text, view the image with magnification and explore details by panning in two-dimensions. However, two-dimensional panning is cumbersome, confusing and slow.

Materials and methods: To improve the magnification experience, we implemented a proof-of-concept magnifier that reflows text to fit the device's viewport width. The user navigates through the text by scrolling up/down. Our implementation relies on a novel pixel-based text reflow image analysis algorithm.

Results: The prototype can successfully reflow text printed on sheets of paper such as notices. Initial tests showed that users preferred the smart digital magnifier over ordinary magnification.

Conclusions: More work is needed to successfully handle other important use cases such as electronic information boards and household product packaging. We discuss open challenges and future directions for smart magnifiers.

目的:视力减退者可能会依赖手持放大镜来近距离阅读食品包装等家居用品上的文字,以及远距离阅读信息公告和路标。智能手机因其普及性而成为最受欢迎的放大设备。用户通常会拍摄文字的照片,放大后查看图像,并通过二维平移探索细节。然而,二维平移操作繁琐、易混淆且速度慢:为了改善放大体验,我们实施了一个概念验证放大镜,它可以重新显示文本以适应设备的视口宽度。用户通过上下滚动浏览文本。我们的实现依赖于一种新颖的基于像素的文本回流图像分析算法:结果:原型可以成功地回流打印在纸张上的文本,例如通知。初步测试表明,与普通放大镜相比,用户更喜欢智能数字放大镜:要成功处理电子信息板和家用产品包装等其他重要用例,还需要做更多的工作。我们讨论了智能放大镜面临的挑战和未来的发展方向。
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引用次数: 0
Identification and assessment of Electronic Aids for Daily Living considered essential by persons with high level tetraplegia: a case series. 识别和评估被高度四肢瘫痪者视为必需的日常生活电子辅助工具:案例系列。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-03-04 DOI: 10.1080/17483107.2024.2323145
Jacquie Ripat, Cherry Nixdorf, Kristine C Cowley

Although assistive technology (AT) is recognized as a basic human right, access to AT, and particularly electronic aids to daily living (EADL), is limited. We aimed to understand how persons with high level spinal cord injury (SCI) prioritize EADL needs and assess satisfaction and efficacy of self-identified EADL. Thus, in this case series, we recruited three participants with C4, C5 or C6 SCI receiving in-patient SCI rehabilitation. Each received dedicated occupational therapy-based assistance in identifying EADL items within an unrestricted envelope of support ($5000 CDN) for use in maximizing physical independence and supporting their return to community-based living. Items identified were categorized by need (emergency/security; home environment control; or virtual access to the outside world). Each participant selected distinct EADL. Evaluation of selected EADL items indicated very high satisfaction. The selected EADL contributed to participants' returns to employment, community life, or reduced requirements for attendant services. These findings suggest that identification of essential technology should reflect the unique needs of each person and the context in which it will be used. These findings also support use of mainstream technology to meet EADL needs of individuals with limited physical abilities.

尽管辅助技术(AT)被认为是一项基本人权,但获得辅助技术,特别是日常生活电子辅助工具(EADL)的机会却很有限。我们的目的是了解高度脊髓损伤(SCI)患者如何优先考虑 EADL 需求,并评估自我认定的 EADL 的满意度和有效性。因此,在本病例系列中,我们招募了三名患有 C4、C5 或 C6 SCI 并正在接受 SCI 住院康复治疗的参与者。每个人都在不受限制的支持范围内(5000 加元)接受了专门的职业治疗援助,以确定 EADL 项目,用于最大限度地提高身体独立性和支持他们重返社区生活。确定的项目按需求分类(紧急/安全;家庭环境控制;或与外部世界的虚拟联系)。每位参与者都选择了不同的 EADL。对所选的生活自理能力项目的评估表明,满意度非常高。所选的 EADL 有助于参与者重返工作岗位、重返社区生活或减少对护理服务的需求。这些研究结果表明,基本技术的确定应反映每个人的独特需求和使用环境。这些研究结果还支持使用主流技术来满足身体能力有限的个人在日常生活中的需求。
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引用次数: 0
Duet playing in dementia care: a new therapeutic music technology. 痴呆症护理中的二重奏:一种新的治疗音乐技术。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-05-24 DOI: 10.1080/17483107.2024.2351498
Jennifer Nicol, Janeen Loehr, Justin Christensen, Jennifer Lang, Shelley Peacock

Purpose: Supporting the relational worlds of people living with dementia, especially the spousal dyad, is a growing focus in dementia care as is advancing the therapeutic use of music in dementia care. This paper describes a mixed-methods, multi-phase, iterative research study designed to develop the Music Memory Makers (MMM) Duet System, a novel therapeutic music technology, that allows non-musicians to play a personalized repertoire of songs arranged as duets.

Methods: Following a pilot phase to iteratively assess and refine the MMM Duet System for recreational and therapeutic purposes, multiple sources of data were used to investigate five older spousal dyads' experiences with the system, two couples living with dementia and three who were not. We assessed perceptions of task difficulty, joint agency, and enjoyment as well as therapeutic benefits associated with enhancing the spousal relationship and sense of couplehood.

Results: Findings suggest playing meaningful songs together is an enjoyable interactive activity that prompts musical reminiscence, involves joint agency, and supports relationship continuity within a relational, positive approach to dementia care. All couples mastered the task, none evaluated it as "very challenging," and positive couple interactions were evoked, commonly before and after playing the duets.

Conclusions: The MMM Duet System is recommended for further research and development as an innovative way to support couples living with dementia with commercial implications, and as a new music technology suitable for use as a research tool.

目的:支持痴呆症患者的关系世界,尤其是配偶双方的关系世界,是痴呆症护理领域日益关注的焦点,也是推进音乐在痴呆症护理中的治疗性应用的焦点。本文介绍了一项混合方法、多阶段、迭代研究,旨在开发新型治疗音乐技术 "音乐记忆制造者(MMM)二重奏系统",该系统允许非音乐家以二重奏的形式演奏个性化曲目:方法:在试验阶段对 MMM 二重奏系统进行反复评估和改进,以用于娱乐和治疗目的之后,我们利用多种数据来源调查了五对老年配偶使用该系统的体验,其中两对夫妇患有痴呆症,另外三对夫妇没有痴呆症。我们评估了对任务难度、共同作用和乐趣的看法,以及与增进配偶关系和夫妻感情相关的治疗益处:结果:研究结果表明,共同演奏有意义的歌曲是一项令人愉悦的互动活动,它能激发音乐回忆,促进共同参与,并在积极的老年痴呆症护理方法中促进夫妻关系的延续。所有夫妇都掌握了这项任务,没有人认为这项任务 "非常具有挑战性",而且在演奏二重唱之前和之后,通常都能唤起夫妇间的积极互动:建议进一步研究和开发 MMM 二重奏系统,将其作为支持老年痴呆症患者夫妇的一种创新方法,具有商业意义,同时也是一种适合用作研究工具的新音乐技术。
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引用次数: 0
Effect of adaptive sports on quality of life in individuals with disabilities who use wheelchairs: a mixed-methods systematic review. 适应性运动对使用轮椅的残疾人生活质量的影响:混合方法系统综述。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-02-08 DOI: 10.1080/17483107.2024.2313110
Panpan Chen, Hongjun Yu, Cheng-Feng Lin, Jiaqi Guo, Jeannette Elliott, Adam Bleakney, Yih-Kuen Jan

Purpose: Adaptive sports participation has been shown to improve quality of life (QoL) in individual with disabilities. However, inconsistent results in various domains of QoL exist in the literature. The objective of this mixed-methods systematic review is to identify and synthesize evidence from quantitative and qualitative studies on the effect of adaptive sports on QoL in individuals with disabilities who use wheelchairs for mobility.

Methods: A systematic literature review of quantitative, qualitative, and mixed-methods research on the effect of adaptive sports on QoL was conducted on five databases (Scopus, Web of Science, PsycINFO, Medline, and PubMed). Quality appraisal was conducted by two authors by using the Mixed Methods Appraisal Tool.

Results: This review identified 4 key findings from 41 studies, including 31 quantitative and 10 qualitative studies. First, individuals with disabilities using wheelchairs for mobility who actively engaged in adaptive sports tend to report higher QoL scores compared with those who were inactive or did not participate. Second, the relationship between the duration of regular participation in adaptive sports and QoL scores exhibited inconsistent results. Third, a multi-component adaptive sports program demonstrates the potential to further improve QoL scores. Last, qualitative investigations reveal that participation in adaptive sports positively influences various domains of well-being in wheelchair users, including encompassing physical and emotional well-being, interpersonal relationships, material well-being, personal development, self-determination, and social inclusion.

Conclusion: This review provides a comprehensive relationship between adaptive sports participation and QoL of wheelchair users. This study identifies the value of multi-component interventions and demonstrates the diverse positive influences of adaptive sports on well-being.

目的:事实证明,参加适应性体育运动可以提高残疾人的生活质量(QoL)。然而,文献中对 QoL 各个领域的研究结果并不一致。本混合方法系统性综述的目的是从定量和定性研究中找出并综合有关适应性运动对使用轮椅行动的残疾人生活质量影响的证据:在五个数据库(Scopus、Web of Science、PsycINFO、Medline 和 PubMed)中对有关适应性运动对 QoL 影响的定量、定性和混合方法研究进行了系统的文献综述。两位作者使用混合方法评估工具进行了质量评估:本综述从 41 项研究(包括 31 项定量研究和 10 项定性研究)中发现了 4 项主要发现。首先,使用轮椅代步的残疾人如果积极参加适应性运动,其 QoL 得分往往高于不积极参加或不参加适应性运动的人。其次,定期参加适应性运动的持续时间与 QoL 分数之间的关系表现出不一致的结果。第三,一项多成分适应性运动计划显示出进一步提高 QoL 分数的潜力。最后,定性调查显示,参与适应性运动对轮椅使用者的各个幸福领域都有积极影响,包括身体和情感幸福、人际关系、物质幸福、个人发展、自我决定和社会包容:本综述全面阐述了轮椅使用者参与适应性运动与 QoL 之间的关系。本研究确定了多成分干预措施的价值,并展示了适应性运动对幸福感的各种积极影响。
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引用次数: 0
Positive and negative experiences of caregivers helping power wheelchair users: a mixed-method study. 护理人员帮助电动轮椅使用者的积极和消极体验:一项混合方法研究。
IF 1.9 4区 医学 Q2 REHABILITATION Pub Date : 2024-11-01 Epub Date: 2024-02-11 DOI: 10.1080/17483107.2024.2313080
Delphine Labbé, Daryl G Yao, William C Miller, François Routhier, Paula W Rushton, Louise Demers, W Ben Mortenson

Purpose: This study aimed to better understand how the powered wheelchair (PWC) impacts the experiences of family caregivers of PWC users, and explore the strategies and resources used by caregivers to cope with their role.

Materials and methods: This mixed-methods study was part of a larger cross-sectional research study conducted in four Canadian cities. Twenty-three family caregivers of PWC users, who provided at least 2 h of support per week, completed the Power Mobility Caregiver Assistive Technology Outcome (PM-CATOM), an 18-item measure assessing PWC-related and overall burden experienced by family caregivers. We also conducted semi-structured interviews and analysed them using inductive content analysis.

Results: From the quantitative PM-CATOM results, the caregivers perceived low level of burden for the wheelchair-related items, (Median:4.5; Range 3 to 5). Most perceived burden when physically helping the wheelchair user and when providing verbal hints. In terms of overall help, the caregivers experienced some level of burden (Median 3.5: Range 3 to 5). Most caregivers identified burden associated with the limitation to their recreational and/or leisure activities (52.2%) and feeling that they have more to do than they can handle. We identified 3 themes in the interviews: the burden experiences of caring for PWC users, the positive experiences of caregiving, and the coping strategies and resources used by caregivers of PWC users.

Conclusion: Our study showed that understanding the experiences of caregivers of AT users is central as they are directly and indirectly impacted by the PWC in their lives and caregiving roles.

目的:本研究旨在更好地了解电动轮椅(PWC)如何影响电动轮椅使用者的家庭照顾者的经历,并探索照顾者应对其角色所使用的策略和资源:这项混合方法研究是在加拿大四个城市进行的大型横断面研究的一部分。23名每周至少提供2小时支持的电动轮椅使用者的家庭照护者完成了 "电动助行器照护者辅助技术成果"(PM-CATOM),这是一项由18个项目组成的测量,用于评估家庭照护者所经历的与电动轮椅相关的整体负担。我们还进行了半结构化访谈,并采用归纳内容分析法对访谈内容进行了分析:从 PM-CATOM 的量化结果来看,照顾者对轮椅相关项目的负担感知较低(中位数:4.5;范围:3 至 5)。大多数人在实际帮助轮椅使用者和提供口头提示时感觉到了负担。在整体帮助方面,照顾者感受到了一定程度的负担(中位数:3.5;范围:3-5)。大多数照护者认为负担与他们的娱乐和/或休闲活动受到限制有关(52.2%),并感觉他们要做的事情比他们所能处理的要多。我们在访谈中发现了3个主题:照顾普西儿童患者的负担体验、照顾过程中的积极体验,以及普西儿童患者照顾者使用的应对策略和资源:我们的研究表明,了解辅助器具使用者照护者的经历至关重要,因为他们的生活和照护角色都直接或间接地受到了普什旺斯中心的影响。
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Disability and Rehabilitation-Assistive Technology
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