Although a number of established practices are known to promote good outcomes for persons with psychiatric disabilities, significant challenges remain. As scholars and practitioners, we must work to ensure that psychiatric rehabilitative services are culturally relevant, accessible to the people who need them, and reflective of the needs and lived experiences of persons with psychiatric disabilities in today's context. Facilitating access to culturally relevant services involves conducting foundational research on the effectiveness and efficacy of established practices in diverse samples; tailoring existing services and developing new services to better meet the needs of diverse populations; and delivering such services in a manner that reduces health care disparities. Promoting service accessibility entails putting research findings into practice; ensuring that a trained workforce is available to provide services; and aligning policies and funding. Enhancing the relevance and impact of psychiatric rehabilitation services requires incorporating the perspectives of persons with lived experience across all phases of research and program delivery. The author's goal is for the research published in Psychiatric Rehabilitation Journal (PRJ) to address these critical issues. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
虽然已知有一些既定做法可以促进精神残疾者的良好结果,但仍然存在重大挑战。作为学者和从业者,我们必须努力确保精神康复服务在文化上是相关的,对有需要的人来说是可获得的,并反映当今背景下精神残疾人士的需求和生活经历。促进获得与文化有关的服务涉及在不同样本中对既定做法的有效性和功效进行基础研究;调整现有服务和发展新服务,以更好地满足不同人群的需要;并以减少医疗保健差距的方式提供这些服务。促进服务无障碍需要将研究成果付诸实践;确保有训练有素的劳动力提供服务;调整政策和资金。加强精神康复服务的相关性和影响需要在研究和项目实施的各个阶段纳入有生活经验的人的观点。作者的目标是发表在《精神病学康复杂志》(PRJ)上的研究来解决这些关键问题。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"A shared commitment to recovery for persons with psychiatric disabilities.","authors":"Kristen M Abraham","doi":"10.1037/prj0000641","DOIUrl":"https://doi.org/10.1037/prj0000641","url":null,"abstract":"<p><p>Although a number of established practices are known to promote good outcomes for persons with psychiatric disabilities, significant challenges remain. As scholars and practitioners, we must work to ensure that psychiatric rehabilitative services are culturally relevant, accessible to the people who need them, and reflective of the needs and lived experiences of persons with psychiatric disabilities in today's context. Facilitating access to culturally relevant services involves conducting foundational research on the effectiveness and efficacy of established practices in diverse samples; tailoring existing services and developing new services to better meet the needs of diverse populations; and delivering such services in a manner that reduces health care disparities. Promoting service accessibility entails putting research findings into practice; ensuring that a trained workforce is available to provide services; and aligning policies and funding. Enhancing the relevance and impact of psychiatric rehabilitation services requires incorporating the perspectives of persons with lived experience across all phases of research and program delivery. The author's goal is for the research published in <i>Psychiatric Rehabilitation Journal</i> (<i>PRJ)</i> to address these critical issues. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":"48 1","pages":"1-2"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143671470","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-03-01Epub Date: 2024-12-12DOI: 10.1037/prj0000634
Matthew Turissini, Angela L Rollins, Allan Kimaina, Florence Jaguga, Julius Barasa, Lily Okeyo, Mercy Kimaiyo, Richard Matundura, Gilliane Kosgei, Naomi Kipkorir, Neal Patel, Edith Kamaru Kwobah
Objective: People living with severe and persistent mental illness (SPMI) in Kenya lack access to recovery-based services. In this study, we assessed changes in recovery in people living with SPMI in Kenya 6 months after receiving services at the Moi Teaching and Referral Hospital Nawiri Recovery and Skills Centre (Nawiri).
Methods: A retrospective evaluation was conducted using a pretest/posttest design analyzing Nawiri care program data collected on admission and 6 months after discharge for recovery metrics.
Results: Thirty patients, with an average age of 33 years and of whom 57% are female, met criteria for the study, with the most common mental diagnoses being schizophrenia (60%) and bipolar mood disorder (30%); 76% of participants met the definition of extreme poverty and had a median of two psychiatric admissions in the 12 months before admission. Patients improved significantly on recovery outcomes 6 months after receiving care at Nawiri, including decreased psychiatric hospitalizations (from 1.33 to 0.07), improved rates of independence in life skills (75.9%-96.7%), improved engagement in income generating activities (23.3%-63.3%), improved food security (69.0%-96.7%), decreased days of functional impairment from symptoms (3.7 to 1.7 days in past week), decreased substance use (53.3%-13.8%), and improved engagement in outpatient mental health care (50.0%-93.3%).
Conclusions and implications for practice: People living with SPMI had improved recovery 6 months after receiving residential psychiatric rehabilitation services in western Kenya. A more robust evaluation of program effectiveness and implementation is recommended to help explore generalizability and scalability to other resource limited settings. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Evaluating changes in recovery in people living with severe and persistent mental illness after psychiatric rehabilitation services at Moi Teaching and Referral Hospital, Eldoret, Kenya.","authors":"Matthew Turissini, Angela L Rollins, Allan Kimaina, Florence Jaguga, Julius Barasa, Lily Okeyo, Mercy Kimaiyo, Richard Matundura, Gilliane Kosgei, Naomi Kipkorir, Neal Patel, Edith Kamaru Kwobah","doi":"10.1037/prj0000634","DOIUrl":"10.1037/prj0000634","url":null,"abstract":"<p><strong>Objective: </strong>People living with severe and persistent mental illness (SPMI) in Kenya lack access to recovery-based services. In this study, we assessed changes in recovery in people living with SPMI in Kenya 6 months after receiving services at the Moi Teaching and Referral Hospital Nawiri Recovery and Skills Centre (Nawiri).</p><p><strong>Methods: </strong>A retrospective evaluation was conducted using a pretest/posttest design analyzing Nawiri care program data collected on admission and 6 months after discharge for recovery metrics.</p><p><strong>Results: </strong>Thirty patients, with an average age of 33 years and of whom 57% are female, met criteria for the study, with the most common mental diagnoses being schizophrenia (60%) and bipolar mood disorder (30%); 76% of participants met the definition of extreme poverty and had a median of two psychiatric admissions in the 12 months before admission. Patients improved significantly on recovery outcomes 6 months after receiving care at Nawiri, including decreased psychiatric hospitalizations (from 1.33 to 0.07), improved rates of independence in life skills (75.9%-96.7%), improved engagement in income generating activities (23.3%-63.3%), improved food security (69.0%-96.7%), decreased days of functional impairment from symptoms (3.7 to 1.7 days in past week), decreased substance use (53.3%-13.8%), and improved engagement in outpatient mental health care (50.0%-93.3%).</p><p><strong>Conclusions and implications for practice: </strong>People living with SPMI had improved recovery 6 months after receiving residential psychiatric rehabilitation services in western Kenya. A more robust evaluation of program effectiveness and implementation is recommended to help explore generalizability and scalability to other resource limited settings. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"32-41"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-03-01Epub Date: 2024-12-02DOI: 10.1037/prj0000629
Sophia Shuster, Yunlai Gui, Alessia McGowan, Matthew Cotter, Isaac J Wert, Alexandria Selloni, Shreya Vaidya, Olivia Neu, Cansu Sarac, Melanie Formica, Kate Gwyther, Marija Krcmar, Jessica Spark, Patrick McGorry, Barnaby Nelson, Shaynna N Herrera, Cheryl M Corcoran
Objective: Prior qualitative studies show that individuals with psychoticlike experiences express difficulties concerning their identity. However, previous work has studied individuals at clinical high risk for psychosis (CHR) and individuals with first-episode psychosis (FEP) separately. Here, we compare the experiences of individuals at CHR, individuals with FEP, and healthy individuals.
Methods: Participants included 70 individuals at CHR (57% female, Mage = 19.2 ± 3.0), 50 individuals with FEP (56% female, Mage = 20.4 ± 2.9), and 70 healthy individuals (67% female, Mage = 21.1 ± 2.8). Participants completed 30-45-min open-ended interviews. Trained research staff reviewed interview transcripts and conducted an iterative thematic analysis to identify major themes.
Results: Themes related to distress, social difficulties, trauma, gratitude, and communication were spontaneously described by both individuals at CHR and individuals with FEP, with individuals at CHR describing suspiciousness more than individuals with FEP (42% vs. 22%), χ²(1, 120) = 4.95, p = .03, and individuals with FEP discussing adaptive integration of mental health struggles into their identity more than individuals at CHR (56% vs. 36%), χ²(1, 120) = 4.87, p = .03. Healthy individuals endorsed future orientation more than individuals at CHR (69% vs. 49%), χ²(1, 140) = 5.77, p = .02, and individuals with FEP (69% vs. 48%) χ²(1, 120) = 5.14, p = .02. All groups endorsed essentialist beliefs: CHR (31%), FEP (43%), and healthy controls (44%).
Conclusions and implications for practice: Individuals at CHR and with FEP spontaneously discuss issues related to their identities in ways that are informed and shaped by the social milieu. The bidirectional nature of these struggles reinforces a need for integrated care through psychiatric rehabilitation, with a specific focus on identity development. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Psychosis and the self: How spontaneous discussions of subjective experiences compare in the clinical high-risk and first-episode psychosis populations.","authors":"Sophia Shuster, Yunlai Gui, Alessia McGowan, Matthew Cotter, Isaac J Wert, Alexandria Selloni, Shreya Vaidya, Olivia Neu, Cansu Sarac, Melanie Formica, Kate Gwyther, Marija Krcmar, Jessica Spark, Patrick McGorry, Barnaby Nelson, Shaynna N Herrera, Cheryl M Corcoran","doi":"10.1037/prj0000629","DOIUrl":"10.1037/prj0000629","url":null,"abstract":"<p><strong>Objective: </strong>Prior qualitative studies show that individuals with psychoticlike experiences express difficulties concerning their identity. However, previous work has studied individuals at clinical high risk for psychosis (CHR) and individuals with first-episode psychosis (FEP) separately. Here, we compare the experiences of individuals at CHR, individuals with FEP, and healthy individuals.</p><p><strong>Methods: </strong>Participants included 70 individuals at CHR (57% female, <i>M</i><sub>age</sub> = 19.2 ± 3.0), 50 individuals with FEP (56% female, <i>M</i><sub>age</sub> = 20.4 ± 2.9), and 70 healthy individuals (67% female, <i>M</i><sub>age</sub> = 21.1 ± 2.8). Participants completed 30-45-min open-ended interviews. Trained research staff reviewed interview transcripts and conducted an iterative thematic analysis to identify major themes.</p><p><strong>Results: </strong>Themes related to distress, social difficulties, trauma, gratitude, and communication were spontaneously described by both individuals at CHR and individuals with FEP, with individuals at CHR describing suspiciousness more than individuals with FEP (42% vs. 22%), <i>χ</i>²(1, 120) = 4.95, <i>p</i> = .03, and individuals with FEP discussing adaptive integration of mental health struggles into their identity more than individuals at CHR (56% vs. 36%), <i>χ</i>²(1, 120) = 4.87, <i>p</i> = .03. Healthy individuals endorsed future orientation more than individuals at CHR (69% vs. 49%), <i>χ</i>²(1, 140) = 5.77, <i>p</i> = .02, and individuals with FEP (69% vs. 48%) <i>χ</i>²(1, 120) = 5.14, <i>p</i> = .02. All groups endorsed essentialist beliefs: CHR (31%), FEP (43%), and healthy controls (44%).</p><p><strong>Conclusions and implications for practice: </strong>Individuals at CHR and with FEP spontaneously discuss issues related to their identities in ways that are informed and shaped by the social milieu. The bidirectional nature of these struggles reinforces a need for integrated care through psychiatric rehabilitation, with a specific focus on identity development. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"42-53"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142773731","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-03-01Epub Date: 2025-02-10DOI: 10.1037/prj0000635
Regina Skar-Fröding, Hanne Clausen, Torleif Ruud, Jurate Šaltyte Benth, Mina Veland, Kristin S Heiervang
Objective: Longitudinal investigation of associations between personal and clinical recovery is important to understand how the relationship unfolds over time. This prospective study investigated associations between personal recovery and clinical symptoms, and personal recovery and psychosocial functioning, at baseline and 18-month follow-up, among service users with psychosis.
Method: Data were collected from 318 service users with psychosis and their clinicians from 32 clinical sites across Norway at baseline and after 18 months. Personal recovery was measured using the Questionnaire About the Process of Recovery. Linear mixed models with random intercepts for units were estimated to test the association between personal recovery and clinical symptoms, and personal recovery and psychosocial functioning.
Results: Greater severity of symptoms and lower level of functioning were associated with lower personal recovery assessed at both baseline and follow-up. Greater severity of symptoms and lower level of functioning measured at baseline predicted lower personal recovery at follow-up. In addition, personal recovery decreased over time for those with a greater severity of symptoms but increased over time for those with a high level of functioning.
Conclusions and implications for practice: Overall, this study confirms the relationship between clinical recovery and personal recovery. Both clinical symptoms and level of functioning were associated with personal recovery, indicating that both aspects are important for personal recovery. These findings suggest that it might be beneficial to support both clinical and personal recovery in the treatment of people with psychosis. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的:纵向调查个人和临床康复之间的关系是重要的,以了解如何随着时间的推移展开的关系。本前瞻性研究调查了基线期和18个月随访期间精神病患者服务使用者的个人康复与临床症状、个人康复与社会心理功能之间的关系。方法:在基线和18个月后,收集来自挪威32个临床站点的318名精神病患者及其临床医生的数据。采用《康复过程问卷》测量个人康复情况。估计具有随机截距单位的线性混合模型,以检验个人康复与临床症状以及个人康复与社会心理功能之间的关联。结果:在基线和随访中,更严重的症状和更低的功能水平与更低的个人恢复相关。在基线时测量的症状严重程度越高,功能水平越低,随访时的个人恢复水平越低。此外,随着时间的推移,那些症状更严重的人的个人恢复能力会下降,而那些功能水平较高的人的个人恢复能力会随着时间的推移而增加。结论和实践启示:总体而言,本研究证实了临床康复与个人康复之间的关系。临床症状和功能水平都与个人康复有关,表明这两个方面对个人康复都很重要。这些发现表明,在精神病患者的治疗中,支持临床和个人康复可能是有益的。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"The relationship between personal recovery, clinical symptoms, and psychosocial functioning over time among service users with psychosis.","authors":"Regina Skar-Fröding, Hanne Clausen, Torleif Ruud, Jurate Šaltyte Benth, Mina Veland, Kristin S Heiervang","doi":"10.1037/prj0000635","DOIUrl":"10.1037/prj0000635","url":null,"abstract":"<p><strong>Objective: </strong>Longitudinal investigation of associations between personal and clinical recovery is important to understand how the relationship unfolds over time. This prospective study investigated associations between personal recovery and clinical symptoms, and personal recovery and psychosocial functioning, at baseline and 18-month follow-up, among service users with psychosis.</p><p><strong>Method: </strong>Data were collected from 318 service users with psychosis and their clinicians from 32 clinical sites across Norway at baseline and after 18 months. Personal recovery was measured using the Questionnaire About the Process of Recovery. Linear mixed models with random intercepts for units were estimated to test the association between personal recovery and clinical symptoms, and personal recovery and psychosocial functioning.</p><p><strong>Results: </strong>Greater severity of symptoms and lower level of functioning were associated with lower personal recovery assessed at both baseline and follow-up. Greater severity of symptoms and lower level of functioning measured at baseline predicted lower personal recovery at follow-up. In addition, personal recovery decreased over time for those with a greater severity of symptoms but increased over time for those with a high level of functioning.</p><p><strong>Conclusions and implications for practice: </strong>Overall, this study confirms the relationship between clinical recovery and personal recovery. Both clinical symptoms and level of functioning were associated with personal recovery, indicating that both aspects are important for personal recovery. These findings suggest that it might be beneficial to support both clinical and personal recovery in the treatment of people with psychosis. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"23-31"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Objective: Personal recovery has become a guiding vision in mental health care, and peer workers play a key role in assisting individuals on their recovery journey. As a component of training to prepare for this role, peer workers need to engage with their own life story, in order to support recovery in both them and in the service users they will assist. The purpose of the present study was to explore the impact of life story work on peer workers.
Method: Fifteen individuals training to be peer workers were interviewed to explore the impact of telling and listening to life stories. Reflexive thematic analysis involving two analysts was conducted.
Results: Three main themes were identified: (a) life story work as identity reconstruction, (b) social connection through life story sharing, and (c) negative impacts of engaging with life stories in peer worker training. Each theme was connected to a number of subthemes.
Conclusions and implications for practice: Life story work can both facilitate personal recovery in peer workers during their training and aid them in utilizing their stories in their future peer worker roles. Training needs to prepare peer workers to deal with the future role-related challenges of life story work. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的:个人康复已成为精神卫生保健的指导愿景,同伴工作者在帮助个人康复过程中发挥着关键作用。作为为这一角色做准备的培训的一个组成部分,同伴工作者需要参与他们自己的生活故事,以支持他们和他们将帮助的服务用户的康复。本研究旨在探讨生活故事工作对同侪员工的影响。方法:对15名被培训为同伴工作者的个体进行访谈,探讨讲述和倾听生活故事的影响。进行了两名分析人员参与的反身性主题分析。结果:确定了三个主要主题:(a)生活故事工作作为身份重建,(b)通过生活故事分享建立社会联系,以及(c)在同伴工作者培训中参与生活故事的负面影响。每个主题都与若干次主题相连。结论和对实践的启示:生活故事工作既可以促进同伴工作者在培训期间的个人恢复,也可以帮助他们在未来的同伴工作者角色中利用他们的故事。培训需要让同侪员工做好准备,以应对未来生活故事工作中与角色相关的挑战。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"The impact of life story work during peer worker training: Identity reconstruction, social connection, and recovery.","authors":"Rikke Amalie Agergaard Jensen, Signe Lehn Brand, Tine Holm, Mike Slade, Dorthe Kirkegaard Thomsen","doi":"10.1037/prj0000639","DOIUrl":"10.1037/prj0000639","url":null,"abstract":"<p><strong>Objective: </strong>Personal recovery has become a guiding vision in mental health care, and peer workers play a key role in assisting individuals on their recovery journey. As a component of training to prepare for this role, peer workers need to engage with their own life story, in order to support recovery in both them and in the service users they will assist. The purpose of the present study was to explore the impact of life story work on peer workers.</p><p><strong>Method: </strong>Fifteen individuals training to be peer workers were interviewed to explore the impact of telling and listening to life stories. Reflexive thematic analysis involving two analysts was conducted.</p><p><strong>Results: </strong>Three main themes were identified: (a) life story work as identity reconstruction, (b) social connection through life story sharing, and (c) negative impacts of engaging with life stories in peer worker training. Each theme was connected to a number of subthemes.</p><p><strong>Conclusions and implications for practice: </strong>Life story work can both facilitate personal recovery in peer workers during their training and aid them in utilizing their stories in their future peer worker roles. Training needs to prepare peer workers to deal with the future role-related challenges of life story work. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"13-22"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143415837","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-03-01Epub Date: 2024-07-18DOI: 10.1037/prj0000613
Carmit-Noa Shpigelman, Netta Galimidi, Matat Kal
Objective: Persons who cope with serious mental illness (SMI) without immediate physical risk to themselves or others have the right to refuse to be treated. Treatment refusal has implications not only for the individual but also for the family, especially the primary caregivers. Still, less is known about the phenomenon of family burden while coping with a situation where the family member with SMI refuses treatment and lives in the community. The present study aimed to understand and describe the caregivers' lived experience of family burden in the context of treatment refusal among their relatives.
Methods: Using a descriptive phenomenological qualitative approach and a semi-structured interview guide, 15 family caregivers of persons with SMI refusing to receive medicinal treatment and rehabilitation services were interviewed. Inductive thematic analysis was conducted on the interview transcripts.
Results: The caregivers described a complex experience of ongoing and intense burden that had a negative impact on the family cohesion and the caregivers' well-being. Four themes related to the perceived reasons for treatment refusal, the caregivers' experience of the family burden and cohesion, and coping with this situation were identified.
Conclusions and implications for practice: The findings demonstrate the unique family burden experienced by the caregivers, mainly as they are the only ones supporting the individual with SMI who refuses treatment. Practitioners should support these families throughout their coping process-from understanding the reasons for the refusal of treatment to continuous support in their daily coping by locating the control of the situation on the family level. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"\"It's like a kind of chronic pain that goes with you\": Understanding the phenomenon of family burden as experienced by primary caregivers of persons with serious mental illness who refuse treatment.","authors":"Carmit-Noa Shpigelman, Netta Galimidi, Matat Kal","doi":"10.1037/prj0000613","DOIUrl":"10.1037/prj0000613","url":null,"abstract":"<p><strong>Objective: </strong>Persons who cope with serious mental illness (SMI) without immediate physical risk to themselves or others have the right to refuse to be treated. Treatment refusal has implications not only for the individual but also for the family, especially the primary caregivers. Still, less is known about the phenomenon of family burden while coping with a situation where the family member with SMI refuses treatment and lives in the community. The present study aimed to understand and describe the caregivers' lived experience of family burden in the context of treatment refusal among their relatives.</p><p><strong>Methods: </strong>Using a descriptive phenomenological qualitative approach and a semi-structured interview guide, 15 family caregivers of persons with SMI refusing to receive medicinal treatment and rehabilitation services were interviewed. Inductive thematic analysis was conducted on the interview transcripts.</p><p><strong>Results: </strong>The caregivers described a complex experience of ongoing and intense burden that had a negative impact on the family cohesion and the caregivers' well-being. Four themes related to the perceived reasons for treatment refusal, the caregivers' experience of the family burden and cohesion, and coping with this situation were identified.</p><p><strong>Conclusions and implications for practice: </strong>The findings demonstrate the unique family burden experienced by the caregivers, mainly as they are the only ones supporting the individual with SMI who refuses treatment. Practitioners should support these families throughout their coping process-from understanding the reasons for the refusal of treatment to continuous support in their daily coping by locating the control of the situation on the family level. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"80-88"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141634997","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-03-01Epub Date: 2025-02-13DOI: 10.1037/prj0000640
Jill R Laquidara, Katelyn Furgason, Lindsay M Banks, Sophia Saavedra, Sarah Hope Lincoln
Objective: Internalized stigma, a stigmatized view of oneself, is a prevalent issue in individuals with schizophrenia spectrum disorders (SSDs). Past evidence has suggested that internalized stigma may contribute to lower levels of functional recovery and lower engagement with mental health treatment in this population. The present study first involved a quantitative portion to check whether the current sample aligned with the literature regarding internalized stigma's links with functional recovery and treatment engagement. Then, a qualitative analysis examined participants' perceptions of whether and how their experiences with internalized stigma are related to their functional recovery and treatment engagement.
Methods: Adult participants in the United States (N = 29) with diagnoses of schizophrenia or schizoaffective disorder completed self-report quantitative measures of internalized stigma, treatment engagement, and functional recovery, and then, they answered open-ended written questions on their perspectives. Data were collected in the Years 2022-2023.
Results: Quantitative results indicate that internalized stigma was associated with lower functional recovery and lower treatment engagement, aligning with prior findings in the literature. Qualitative analysis of written responses revealed that many but not all participants perceive internalized stigma as impacting their functioning and treatment engagement. Themes are described in detail and involve relationship issues, difficulty leaving the house, self-doubt, and decreased engagement with treatment providers.
Conclusions and implications for practice: Internalized stigma is a prevalent issue with varying impacts on individuals with SSDs. This study highlights the importance of addressing internalized stigma and its consequences as a part of mental health treatment for individuals with SSDs. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的:精神分裂症谱系障碍(SSDs)患者普遍存在内化耻辱感,即对自我的耻辱感。过去的证据表明,内化的耻辱感可能导致这一人群的功能恢复水平较低,并且较少接受心理健康治疗。本研究首先涉及定量部分,以检查当前样本是否与关于内化耻辱与功能恢复和治疗参与的联系的文献一致。然后,定性分析检查了参与者对他们的内化耻辱经历是否以及如何与他们的功能恢复和治疗参与相关的看法。方法:美国29名被诊断为精神分裂症或分裂情感性障碍的成年参与者完成了内化耻辱、治疗参与和功能恢复的自我报告定量测量,然后,他们回答了关于他们观点的开放式书面问题。数据收集于2022-2023年。结果:定量结果表明,内化耻辱感与较低的功能恢复和较低的治疗参与度相关,与先前文献的发现一致。对书面答复的定性分析显示,许多(但不是所有)参与者认为内化的耻辱影响了他们的功能和治疗参与。详细描述了主题,包括关系问题,难以离开家,自我怀疑,减少与治疗提供者的接触。结论和对实践的影响:内化耻辱是一个普遍存在的问题,对ssd患者有不同的影响。这项研究强调了解决内化耻辱及其后果作为ssd患者心理健康治疗的一部分的重要性。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Perceived impacts of internalized stigma in individuals with schizophrenia and schizoaffective disorder.","authors":"Jill R Laquidara, Katelyn Furgason, Lindsay M Banks, Sophia Saavedra, Sarah Hope Lincoln","doi":"10.1037/prj0000640","DOIUrl":"10.1037/prj0000640","url":null,"abstract":"<p><strong>Objective: </strong>Internalized stigma, a stigmatized view of oneself, is a prevalent issue in individuals with schizophrenia spectrum disorders (SSDs). Past evidence has suggested that internalized stigma may contribute to lower levels of functional recovery and lower engagement with mental health treatment in this population. The present study first involved a quantitative portion to check whether the current sample aligned with the literature regarding internalized stigma's links with functional recovery and treatment engagement. Then, a qualitative analysis examined participants' perceptions of whether and how their experiences with internalized stigma are related to their functional recovery and treatment engagement.</p><p><strong>Methods: </strong>Adult participants in the United States (<i>N</i> = 29) with diagnoses of schizophrenia or schizoaffective disorder completed self-report quantitative measures of internalized stigma, treatment engagement, and functional recovery, and then, they answered open-ended written questions on their perspectives. Data were collected in the Years 2022-2023.</p><p><strong>Results: </strong>Quantitative results indicate that internalized stigma was associated with lower functional recovery and lower treatment engagement, aligning with prior findings in the literature. Qualitative analysis of written responses revealed that many but not all participants perceive internalized stigma as impacting their functioning and treatment engagement. Themes are described in detail and involve relationship issues, difficulty leaving the house, self-doubt, and decreased engagement with treatment providers.</p><p><strong>Conclusions and implications for practice: </strong>Internalized stigma is a prevalent issue with varying impacts on individuals with SSDs. This study highlights the importance of addressing internalized stigma and its consequences as a part of mental health treatment for individuals with SSDs. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"3-12"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143415835","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-03-01Epub Date: 2024-07-25DOI: 10.1037/prj0000625
Eliana Rohr, Lara Antebi, G Eric Jarvis, Rob Whitley
Objective: The overall aim of this study was to elicit and document the recovery-related perspectives and experiences of Haredi Jews with lived experience of mental illness living in Canada. A more focused objective was to specifically explore self-identified facilitators and barriers toward recovery from mental illness in this group.
Methods: We conducted a qualitative study involving semistructured interviews with 20 women who (a) identified as Haredi Jews, (b) had used mental health services in recent years, and (c) were 18+ years of age. Interviews were transcribed and analyzed using thematic analysis techniques.
Results: Four prominent themes emerged from the analysis. The first two themes were predominantly facilitators, and the last two themes were predominantly barriers. These themes were (i) a close-knit, supportive, and lively community with considerable social capital; (ii) Judaic beliefs and practices regarding Gd, daily life, and health care giving structure, meaning, and purpose; (iii) community stigma and self-stigma, often related to marriageability of self or offspring, as well as notions of perfection; and (iv) a lack of wider mental health literacy, despite participants speaking positively about mental health services such as medication and therapy.
Conclusions and implications for practice: This study indicates several individual-level and community-level factors that are reported to facilitate recovery in Haredi Jews. However, problems of stigma and mental health literacy remain an issue. Targeted antistigma programs, such as co-constructed contact-based educational interventions, may be helpful in contributing to a community climate that further facilitates recovery. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"\"Sheltered and secure\": Facilitators and barriers toward recovery for Haredi Jewish women with mental illness.","authors":"Eliana Rohr, Lara Antebi, G Eric Jarvis, Rob Whitley","doi":"10.1037/prj0000625","DOIUrl":"10.1037/prj0000625","url":null,"abstract":"<p><strong>Objective: </strong>The overall aim of this study was to elicit and document the recovery-related perspectives and experiences of Haredi Jews with lived experience of mental illness living in Canada. A more focused objective was to specifically explore self-identified facilitators and barriers toward recovery from mental illness in this group.</p><p><strong>Methods: </strong>We conducted a qualitative study involving semistructured interviews with 20 women who (a) identified as Haredi Jews, (b) had used mental health services in recent years, and (c) were 18+ years of age. Interviews were transcribed and analyzed using thematic analysis techniques.</p><p><strong>Results: </strong>Four prominent themes emerged from the analysis. The first two themes were predominantly facilitators, and the last two themes were predominantly barriers. These themes were (i) a close-knit, supportive, and lively community with considerable social capital; (ii) Judaic beliefs and practices regarding Gd, daily life, and health care giving structure, meaning, and purpose; (iii) community stigma and self-stigma, often related to marriageability of self or offspring, as well as notions of perfection; and (iv) a lack of wider mental health literacy, despite participants speaking positively about mental health services such as medication and therapy.</p><p><strong>Conclusions and implications for practice: </strong>This study indicates several individual-level and community-level factors that are reported to facilitate recovery in Haredi Jews. However, problems of stigma and mental health literacy remain an issue. Targeted antistigma programs, such as co-constructed contact-based educational interventions, may be helpful in contributing to a community climate that further facilitates recovery. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"54-61"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-03-01Epub Date: 2024-07-18DOI: 10.1037/prj0000620
Shinichi Nagata, Shintaro Kono, Kimiko Tanaka, Koji Ota, Emi Hirasawa, Daisuke Kato
Objective: Ikigai is a Japanese concept of a life worth living and related to eudaimonic well-being. Supporting the pursuit of ikigai is of central importance to recovery-oriented psychiatric rehabilitation for people with serious mental illnesses (SMI). While research suggests that work, leisure, and social relationships are potential sources of ikigai, people with SMI have restricted access to these as they encounter systemic barriers to participating in such activities. This study investigated how people with SMI in Japan pursued sources of ikigai in the face of barriers.
Methods: A total of 21 community-living individuals who had SMI and were recruited from community psychiatric rehabilitation service providers in Japan participated in the study. Photo-elicitation interviews were conducted, and the interview transcripts were analyzed using reflexive thematic analysis.
Results: Three themes were generated: (a) self-determination as a key to ikigai, (b) explorations needed to identify sources of ikigai, and (c) navigating the challenges to engage in the explorations. It was found that a self-determined activity tends to be a source of ikigai. However, participants had to grapple with challenges because identifying a source of ikigai involved the exploration of their personal interests, and the exploration could not be continued without managing the stigma of mental illness.
Conclusions and implications for practice: Results suggest that ikigai cannot be achieved instantly. To achieve eudaimonic well-being outcomes, psychiatric rehabilitation professionals should allow consumers to choose activities based on their personal interests and encourage them to try out various activities while they provide continued support to overcome stigma. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Exploring interests: A pathway to ikigai and eudaimonic well-being among people with serious mental illness.","authors":"Shinichi Nagata, Shintaro Kono, Kimiko Tanaka, Koji Ota, Emi Hirasawa, Daisuke Kato","doi":"10.1037/prj0000620","DOIUrl":"10.1037/prj0000620","url":null,"abstract":"<p><strong>Objective: </strong>Ikigai is a Japanese concept of a life worth living and related to eudaimonic well-being. Supporting the pursuit of <i>ikigai</i> is of central importance to recovery-oriented psychiatric rehabilitation for people with serious mental illnesses (SMI). While research suggests that work, leisure, and social relationships are potential sources of <i>ikigai</i>, people with SMI have restricted access to these as they encounter systemic barriers to participating in such activities. This study investigated how people with SMI in Japan pursued sources of <i>ikigai</i> in the face of barriers.</p><p><strong>Methods: </strong>A total of 21 community-living individuals who had SMI and were recruited from community psychiatric rehabilitation service providers in Japan participated in the study. Photo-elicitation interviews were conducted, and the interview transcripts were analyzed using reflexive thematic analysis.</p><p><strong>Results: </strong>Three themes were generated: (a) self-determination as a key to <i>ikigai</i>, (b) explorations needed to identify sources of <i>ikigai</i>, and (c) navigating the challenges to engage in the explorations. It was found that a self-determined activity tends to be a source of <i>ikigai</i>. However, participants had to grapple with challenges because identifying a source of <i>ikigai</i> involved the exploration of their personal interests, and the exploration could not be continued without managing the stigma of mental illness.</p><p><strong>Conclusions and implications for practice: </strong>Results suggest that <i>ikigai</i> cannot be achieved instantly. To achieve eudaimonic well-being outcomes, psychiatric rehabilitation professionals should allow consumers to choose activities based on their personal interests and encourage them to try out various activities while they provide continued support to overcome stigma. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"62-70"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141634998","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-03-01Epub Date: 2024-07-08DOI: 10.1037/prj0000616
Astrid Meyer, Stephen F Austin, Tobias Vitger, Lisa Korsbek
Objective: This study explores the experiences of young adults with psychosis using a smartphone application to promote patient activation and support shared decision making in their outpatient treatment.
Method: Semistructured interviews were conducted with eight participants who had access to the app while receiving mental health treatment. Qualitative data from the interviews were analyzed using thematic analysis aimed at experiences of interacting with the app.
Results: Four themes were extracted from the interviews: supporting users with memory difficulties, giving symptoms substance, a new source of information to guide conversations, and the challenge of capturing complex experiences digitally. While the majority of the themes highlight the benefits of using the app in ways that may facilitate communication between patient and provider, the participants also described some negative experiences when interacting with the app concerning failure to communicate nuances and emotional states satisfyingly.
Conclusion and implications for practice: Experiences with the app were double sided. On the one hand, the use of the app supports communication, and conversely, interaction with the app can create limitations and new challenges for communication. There is a need for more research to understand the use of mental health smartphone apps and their role in supporting interactive processes such as shared decision making in mental health. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
研究目的本研究探讨了患有精神病的年轻人在门诊治疗过程中使用智能手机应用程序促进患者积极性和支持共同决策的经验:对八名在接受精神健康治疗期间使用过该应用程序的参与者进行了半结构式访谈。采用主题分析法对访谈中的定性数据进行了分析,旨在了解与应用程序互动的体验:从访谈中提取了四个主题:为有记忆障碍的用户提供支持、赋予症状实质意义、引导对话的新信息来源以及以数字方式捕捉复杂体验所面临的挑战。虽然大多数主题都强调了使用该应用程序的好处,即可以促进患者和医疗服务提供者之间的沟通,但参与者也描述了在与该应用程序互动时的一些负面体验,即无法令人满意地传达细微差别和情绪状态:使用该应用程序的体验是双面的。一方面,应用程序的使用支持了沟通,另一方面,与应用程序的互动也会给沟通带来限制和新的挑战。有必要开展更多研究,以了解心理健康智能手机应用程序的使用情况及其在支持互动过程(如心理健康共同决策)中的作用。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
{"title":"\"I was able to share more details\": The experiences of using a smartphone application to support shared decision making in young people with psychosis.","authors":"Astrid Meyer, Stephen F Austin, Tobias Vitger, Lisa Korsbek","doi":"10.1037/prj0000616","DOIUrl":"10.1037/prj0000616","url":null,"abstract":"<p><strong>Objective: </strong>This study explores the experiences of young adults with psychosis using a smartphone application to promote patient activation and support shared decision making in their outpatient treatment.</p><p><strong>Method: </strong>Semistructured interviews were conducted with eight participants who had access to the app while receiving mental health treatment. Qualitative data from the interviews were analyzed using thematic analysis aimed at experiences of interacting with the app.</p><p><strong>Results: </strong>Four themes were extracted from the interviews: <i>supporting users with memory difficulties, giving symptoms substance, a new source of information to guide conversations,</i> and <i>the challenge of capturing complex experiences digitally.</i> While the majority of the themes highlight the benefits of using the app in ways that may facilitate communication between patient and provider, the participants also described some negative experiences when interacting with the app concerning failure to communicate nuances and emotional states satisfyingly.</p><p><strong>Conclusion and implications for practice: </strong>Experiences with the app were double sided. On the one hand, the use of the app supports communication, and conversely, interaction with the app can create limitations and new challenges for communication. There is a need for more research to understand the use of mental health smartphone apps and their role in supporting interactive processes such as shared decision making in mental health. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"71-79"},"PeriodicalIF":1.8,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141559982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}