Pub Date : 2024-12-01Epub Date: 2024-07-25DOI: 10.1037/prj0000599
Kelly Allott, Allie Pert, Audrey Rattray, Ruth E Cooper, Josefine Winther Davy, Lisa Grünwald, Mark Horowitz, Joanna Moncrieff, Bram-Sieben Rosema, Magenta Simmons, Alexandra Stainton, Anne Emilie Stürup, Eóin Killackey
Objective: To examine the evidence and practice of antipsychotic dose reduction from the lens of biomedical ethics (specifically principlism) to support evidence-based practice and patient choice and self-determination.
Methods: An overview of the evidence from randomized controlled trials of antipsychotic dose reduction versus maintenance is presented. This is followed by a theoretical examination of the four key biomedical ethical principles of autonomy, nonmaleficence, beneficence, and justice and how they apply in the case of antipsychotic dose reduction.
Results: Existing clinical trial research is dominated by relapse as the primary outcome, with dose reduction associated with a higher risk of relapse than maintenance. Few studies have measured other patient-centered outcomes but have shown preliminary evidence for superior cognitive functioning, lower negative symptoms, and better functioning following dose reduction. Respect for autonomy is a cornerstone of psychiatric rehabilitation, and this includes the right of people to choose to reduce or discontinue antipsychotic medication. Reduced capacity for treatment decision making can be supported. Autonomy and appraisal of nonmaleficence and beneficence associated with dose reduction can be facilitated through shared or supported decision making. Clinicians should continue to strive for justice through the fair allocation of resources to support all people who request antipsychotic dose reduction.
Conclusions and implications for practice: Clinicians have a responsibility to balance the four core ethical principles to the best of their ability when supporting a person in their recovery journey. Exploring, trialing, and supporting antipsychotic dose reduction may be part of this process if that is the patient's choice. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
目的从生物医学伦理学(特别是原则主义)的视角审视抗精神病药物减量的证据和实践,以支持循证实践和患者的选择与自决:方法:概述抗精神病药物减量与维持剂量随机对照试验的证据。方法:概述了抗精神病药物减量与维持剂量随机对照试验的证据,然后从理论上探讨了自主、非渎职、受益和公正这四项关键的生物医学伦理原则,以及这些原则如何适用于抗精神病药物减量的情况:现有的临床试验研究主要以复发为主要结果,与维持治疗相比,减量治疗的复发风险更高。很少有研究对其他以患者为中心的结果进行测量,但有初步证据表明,减量后患者的认知功能更佳,阴性症状更少,功能更完善。尊重自主权是精神康复的基石,这包括患者选择减少或停用抗精神病药物的权利。治疗决策能力的降低可以得到支持。可以通过共同决策或辅助决策来促进自主性,并评估与减少剂量相关的非牟利性和牟利性。临床医生应继续努力,通过公平分配资源,为所有要求减少抗精神病药物剂量的患者提供支持,从而实现公正:临床医生有责任在支持患者康复的过程中,尽其所能平衡四项核心伦理原则。如果患者选择减少抗精神病药物的剂量,那么探索、试验和支持减少剂量可能是这一过程的一部分。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
{"title":"An ethics analysis of antipsychotic dose reduction and discontinuation: Principles for supporting recovery from psychosis.","authors":"Kelly Allott, Allie Pert, Audrey Rattray, Ruth E Cooper, Josefine Winther Davy, Lisa Grünwald, Mark Horowitz, Joanna Moncrieff, Bram-Sieben Rosema, Magenta Simmons, Alexandra Stainton, Anne Emilie Stürup, Eóin Killackey","doi":"10.1037/prj0000599","DOIUrl":"10.1037/prj0000599","url":null,"abstract":"<p><strong>Objective: </strong>To examine the evidence and practice of antipsychotic dose reduction from the lens of biomedical ethics (specifically principlism) to support evidence-based practice and patient choice and self-determination.</p><p><strong>Methods: </strong>An overview of the evidence from randomized controlled trials of antipsychotic dose reduction versus maintenance is presented. This is followed by a theoretical examination of the four key biomedical ethical principles of autonomy, nonmaleficence, beneficence, and justice and how they apply in the case of antipsychotic dose reduction.</p><p><strong>Results: </strong>Existing clinical trial research is dominated by relapse as the primary outcome, with dose reduction associated with a higher risk of relapse than maintenance. Few studies have measured other patient-centered outcomes but have shown preliminary evidence for superior cognitive functioning, lower negative symptoms, and better functioning following dose reduction. Respect for autonomy is a cornerstone of psychiatric rehabilitation, and this includes the right of people to choose to reduce or discontinue antipsychotic medication. Reduced capacity for treatment decision making can be supported. Autonomy and appraisal of nonmaleficence and beneficence associated with dose reduction can be facilitated through shared or supported decision making. Clinicians should continue to strive for justice through the fair allocation of resources to support all people who request antipsychotic dose reduction.</p><p><strong>Conclusions and implications for practice: </strong>Clinicians have a responsibility to balance the four core ethical principles to the best of their ability when supporting a person in their recovery journey. Exploring, trialing, and supporting antipsychotic dose reduction may be part of this process if that is the patient's choice. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"291-302"},"PeriodicalIF":1.2,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761723","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-01Epub Date: 2024-07-25DOI: 10.1037/prj0000621
Priscilla P Oomen, Claudia J P Simons, Kim Broekmans-Madikrama, Machteld Marcelis
Objective: Personalized dose optimization is desirable to improve subjective well-being and support rehabilitation. Therefore, N = 1 trials investigating tools to self-manage functional outcomes during dose optimization are necessary. The aim of this pilot study was to determine in two N = 1 trials whether an experience sampling method (ESM) smartphone app could be used to monitor and detect changes in subjective well-being and psychotic experiences during and after dose reduction.
Method: Two participants with a psychotic disorder in remission underwent gradual dose reduction under a longitudinal self-monitoring paradigm, accompanied by regular clinical monitoring by the attending physician. Subjective well-being was monitored with an (ESM) app through momentary affective experience (positive and negative affect) and physical well-being (tiredness, feeling unwell, and pain). Momentary psychotic experiences were assessed with four items. Time-series linear regression models were used to detect changes in reduction phases compared to baseline.
Results: Whereas significant improvements in subjective well-being and psychotic experiences during dose reduction were detected in one participant, the opposite was demonstrated for the other participant, showing worsened subjective well-being and increased psychotic experiences in the reduction phase compared to baseline.
Conclusions and implications for practice: Self-monitoring with an ESM smartphone app offers a tool for detecting changes in subjective well-being and psychotic experiences during antipsychotic dose reduction. In this way, ESM may increase an individual's sense of control and empowerment. It may further facilitate dose optimization and shared decision-making at an individual level, which is required considering the high heterogeneity in psychotic disorders. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
目的:个性化剂量优化是改善主观幸福感和支持康复的理想选择。因此,有必要进行 N = 1 试验,研究在剂量优化期间自我管理功能结果的工具。本试验研究旨在通过两项 N = 1 试验确定是否可以使用经验取样法(ESM)智能手机应用程序来监测和检测减量期间和减量后主观幸福感和精神病体验的变化:方法:两名患有缓解期精神病的参与者在主治医生的定期临床监测下,在纵向自我监测范式下逐渐减少剂量。主观幸福感通过(ESM)应用程序进行监测,包括瞬间情感体验(积极和消极情感)和身体幸福感(疲倦、不适和疼痛)。瞬时精神病体验通过四个项目进行评估。采用时间序列线性回归模型来检测与基线相比在减轻阶段的变化:结果:一名受试者在减量期间的主观幸福感和精神病性体验均有明显改善,而另一名受试者的情况恰恰相反,与基线相比,减量阶段的主观幸福感恶化,精神病性体验增加:使用ESM智能手机应用程序进行自我监测,为检测抗精神病药物减量期间主观幸福感和精神病性体验的变化提供了一种工具。通过这种方式,ESM 可以增强个人的控制感和能力。考虑到精神障碍的高度异质性,它可以进一步促进剂量优化和个体层面的共同决策。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
{"title":"Monitoring momentary subjective well-being and psychotic experiences during antipsychotic dose reduction: Two single-case time series experience sampling method pilot study.","authors":"Priscilla P Oomen, Claudia J P Simons, Kim Broekmans-Madikrama, Machteld Marcelis","doi":"10.1037/prj0000621","DOIUrl":"10.1037/prj0000621","url":null,"abstract":"<p><strong>Objective: </strong>Personalized dose optimization is desirable to improve subjective well-being and support rehabilitation. Therefore, <i>N</i> = 1 trials investigating tools to self-manage functional outcomes during dose optimization are necessary. The aim of this pilot study was to determine in two <i>N</i> = 1 trials whether an experience sampling method (ESM) smartphone app could be used to monitor and detect changes in subjective well-being and psychotic experiences during and after dose reduction.</p><p><strong>Method: </strong>Two participants with a psychotic disorder in remission underwent gradual dose reduction under a longitudinal self-monitoring paradigm, accompanied by regular clinical monitoring by the attending physician. Subjective well-being was monitored with an (ESM) app through momentary affective experience (positive and negative affect) and physical well-being (tiredness, feeling unwell, and pain). Momentary psychotic experiences were assessed with four items. Time-series linear regression models were used to detect changes in reduction phases compared to baseline.</p><p><strong>Results: </strong>Whereas significant improvements in subjective well-being and psychotic experiences during dose reduction were detected in one participant, the opposite was demonstrated for the other participant, showing worsened subjective well-being and increased psychotic experiences in the reduction phase compared to baseline.</p><p><strong>Conclusions and implications for practice: </strong>Self-monitoring with an ESM smartphone app offers a tool for detecting changes in subjective well-being and psychotic experiences during antipsychotic dose reduction. In this way, ESM may increase an individual's sense of control and empowerment. It may further facilitate dose optimization and shared decision-making at an individual level, which is required considering the high heterogeneity in psychotic disorders. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"329-338"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761725","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Most individuals in recovery are likely to attempt discontinuing their prescribed medication at least once. The collection of articles in this special issue uses research with quantitative and qualitative methods, reviews of the literature, conceptualization of theory, and first-person accounts from various perspectives to begin to shift the field of psychiatric rehabilitation from a narrow focus on symptom reduction and a fear-driven emphasis on medication adherence to a new perspective in which dilemmas and strong feelings about medication use are commonplace. We issue a call to action for training psychiatric rehabilitation practitioners, who often have the most direct and frequent interactions with people in recovery, to explore their clients' experiences with using medication and its impact on a range of life domains. Rehabilitation, recovery, and medication have ongoing mutual influences and require an inclusive, multidimensional framework that integrates complex ongoing interactions between personal, societal, and biological processes and assures that treatment decisions are in alignment with recovery goals. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
大多数处于康复期的人都可能至少尝试过一次停药。本特刊所收集的文章采用了定量和定性的研究方法、文献综述、理论概念化以及不同视角的第一人称叙述,开始将精神康复领域从狭隘地关注症状减轻和受恐惧驱使而强调坚持用药转变为一种新的视角,在这种视角下,关于用药的两难境地和强烈感受是司空见惯的。我们呼吁对精神康复从业者进行培训,让他们探索客户的用药经历及其对一系列生活领域的影响,因为他们往往与康复者有着最直接、最频繁的互动。康复、恢复和用药之间存在着持续的相互影响,需要一个包容性的多维框架来整合个人、社会和生物过程之间复杂的持续互动,并确保治疗决策与康复目标相一致。(PsycInfo Database Record (c) 2024 APA, all rights reserved)。
{"title":"Broadening understanding of individual choices about psychiatric medication use in psychiatric rehabilitation.","authors":"David Roe, Helene Speyer","doi":"10.1037/prj0000630","DOIUrl":"10.1037/prj0000630","url":null,"abstract":"<p><p>Most individuals in recovery are likely to attempt discontinuing their prescribed medication at least once. The collection of articles in this special issue uses research with quantitative and qualitative methods, reviews of the literature, conceptualization of theory, and first-person accounts from various perspectives to begin to shift the field of psychiatric rehabilitation from a narrow focus on symptom reduction and a fear-driven emphasis on medication adherence to a new perspective in which dilemmas and strong feelings about medication use are commonplace. We issue a call to action for training psychiatric rehabilitation practitioners, who often have the most direct and frequent interactions with people in recovery, to explore their clients' experiences with using medication and its impact on a range of life domains. Rehabilitation, recovery, and medication have ongoing mutual influences and require an inclusive, multidimensional framework that integrates complex ongoing interactions between personal, societal, and biological processes and assures that treatment decisions are in alignment with recovery goals. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":"47 4","pages":"279-282"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142830275","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-01Epub Date: 2024-10-17DOI: 10.1037/prj0000617
Anonymous
A brief autoethnographic commentary that describes the harms of a pervasive emphasis on medications and medication adherence in the treatment of schizophrenia, including within "best practice" early psychosis programs. The narrative emphasizes the extent to which, in spite of endless rhetoric of person-centered, recovery-oriented care, the reality remains that medication-centric treatment tends to dominate clinical services and programs, fueling the objectification and alienation of service users, and ultimately, in all too many cases, disengagement. The author's personal experiences are provided as an illustration of the potentially devastating impacts that a narrow and rigid focus on medications (and medicalized clinical relationships) can have. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
这是一篇简短的自述性评论,描述了在精神分裂症的治疗过程中,包括在 "最佳实践 "的早期精神病项目中,普遍强调药物治疗和坚持服药所带来的危害。文章强调,尽管以人为本、以康复为导向的护理理念不绝于耳,但现实情况仍然是,以药物治疗为中心的治疗方法往往主导着临床服务和项目,助长了对服务使用者的物化和疏远,最终,在太多的案例中,导致了服务使用者的脱离。作者以自己的亲身经历为例,说明了狭隘、僵化地关注药物治疗(以及医疗化的临床关系)可能带来的破坏性影响。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
{"title":"Harms of a single story: A researcher's personal narrative and plea for change.","authors":"Anonymous","doi":"10.1037/prj0000617","DOIUrl":"10.1037/prj0000617","url":null,"abstract":"<p><p>A brief autoethnographic commentary that describes the harms of a pervasive emphasis on medications and medication adherence in the treatment of schizophrenia, including within \"best practice\" early psychosis programs. The narrative emphasizes the extent to which, in spite of endless rhetoric of person-centered, recovery-oriented care, the reality remains that medication-centric treatment tends to dominate clinical services and programs, fueling the objectification and alienation of service users, and ultimately, in all too many cases, disengagement. The author's personal experiences are provided as an illustration of the potentially devastating impacts that a narrow and rigid focus on medications (and medicalized clinical relationships) can have. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"348-350"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-12-01Epub Date: 2024-07-18DOI: 10.1037/prj0000606
Jesse Gates, Carli Ellinghaus, Lee Valentine, Ilias Kamitsis, Alexandra Stainton, Susy Harrigan, Andrew Thompson, Mario Alvarez-Jimenez, Stephen Wood, Andrea Polari, John F Gleeson, Cali Bartholomeusz, Kelly Allott, Eóin Killackey, Sarah Bendall
Objective: The current guidelines recommend continuation of antipsychotic medication for a minimum of at least 1 year following a first episode of psychosis (FEP). There have been several trials investigating whether early dose reduction or cessation leads to improved functional outcomes. The aim of this study was to explore the experience of consenting to and participating in a randomized controlled trial (RCT) of antipsychotic medication cessation.
Method: Five participants in the Reduce trial-an RCT evaluating early antipsychotic medication dose reduction/cessation following FEP-aged 22-24 years completed a semistructured qualitative interview following the RCT. Interpretive phenomenological analysis was undertaken to understand the key themes.
Results: A superordinate theme was derived from interviews: the Liminal Space of FEP and treatment. Themes within the Liminal Space included: rejection versus identification with psychosis, medication as symbolic of illness versus wellness, embodiment of wellness and illness with medication, medication as symbolic of independence versus dependence, discovery of independence when autonomously choosing medication, the Reduce trial offered safety to navigate the liminal space, and self-exploration versus altruism.
Conclusions and implications for practice: The experience and treatment of FEP involves young people feeling torn between multiple, competing perspectives, demands, and priorities. Participation in an RCT exploring dose reduction provided additional supports contributing to the perception of greater safety to navigate their own experiences of treatment that was appropriate for them. When treatment is experienced as collaborative, involves shared decision making and support, other than medication, young people feel more equipped to navigate the liminal space. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"The liminal space of first-episode psychosis and its treatment: A qualitative study exploring the experience of young people participating in an antipsychotic dose reduction randomized controlled trial.","authors":"Jesse Gates, Carli Ellinghaus, Lee Valentine, Ilias Kamitsis, Alexandra Stainton, Susy Harrigan, Andrew Thompson, Mario Alvarez-Jimenez, Stephen Wood, Andrea Polari, John F Gleeson, Cali Bartholomeusz, Kelly Allott, Eóin Killackey, Sarah Bendall","doi":"10.1037/prj0000606","DOIUrl":"10.1037/prj0000606","url":null,"abstract":"<p><strong>Objective: </strong>The current guidelines recommend continuation of antipsychotic medication for a minimum of at least 1 year following a first episode of psychosis (FEP). There have been several trials investigating whether early dose reduction or cessation leads to improved functional outcomes. The aim of this study was to explore the experience of consenting to and participating in a randomized controlled trial (RCT) of antipsychotic medication cessation.</p><p><strong>Method: </strong>Five participants in the Reduce trial-an RCT evaluating early antipsychotic medication dose reduction/cessation following FEP-aged 22-24 years completed a semistructured qualitative interview following the RCT. Interpretive phenomenological analysis was undertaken to understand the key themes.</p><p><strong>Results: </strong>A superordinate theme was derived from interviews: the Liminal Space of FEP and treatment. Themes within the Liminal Space included: rejection versus identification with psychosis, medication as symbolic of illness versus wellness, embodiment of wellness and illness with medication, medication as symbolic of independence versus dependence, discovery of independence when autonomously choosing medication, the Reduce trial offered safety to navigate the liminal space, and self-exploration versus altruism.</p><p><strong>Conclusions and implications for practice: </strong>The experience and treatment of FEP involves young people feeling torn between multiple, competing perspectives, demands, and priorities. Participation in an RCT exploring dose reduction provided additional supports contributing to the perception of greater safety to navigate their own experiences of treatment that was appropriate for them. When treatment is experienced as collaborative, involves shared decision making and support, other than medication, young people feel more equipped to navigate the liminal space. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"313-321"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141634962","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-01Epub Date: 2024-07-25DOI: 10.1037/prj0000615
Kevin Rice, Gytis Simaitis, Francesca Pernice
Objective: The COVID-19 pandemic had a profound impact on the mental health of individuals with serious mental illness, with restricting social gatherings and limiting access to essential community and psychosocial support services. For programs like clubhouses, adapting typically in-person programming to online settings led to the creation of virtual clubhouse programming that persists at many sites even after reopening. Although it has been documented how clubhouses adapted their programming online, it has not been investigated at the individual level how those programs were utilized over time, by different member cohorts, and how they persist in comparison to one another.
Method: The present article presents descriptive and inferential statistics, analysis of variance, and secondary trend analysis of the Fountain House clubhouse in-person and virtual engagements of three member cohorts who enrolled in either three time periods before pandemic restrictions (the prior cohort), during pandemic restrictions (the pandemic cohort), and after lockdown restrictions (the reopening cohort).
Result: Initial findings show that the prior cohort sustained their overall rate of engagement across time periods. The pandemic cohort had a significantly higher rate of engagement than the prior cohort within the during period but demonstrated a significant decrease in engagement rate between the during and after period. Prior and pandemic cohorts had statistically similar virtual and in-person engagement ratios in the after period, but the reopen cohort differed significantly with a predominant ratio of in-person engagements.
Conclusions and implications for practice: Member engagement trends within in-person and virtual offerings across the three different pandemic related time periods indicate important considerations for the sustainability and innovation of clubhouse virtual programming. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
目的:COVID-19 大流行对严重精神疾病患者的心理健康产生了深远的影响,限制了社交聚会,限制了获得基本的社区和社会心理支持服务的途径。对于像会所这样的项目来说,将典型的面对面项目调整为在线项目,导致了虚拟会所项目的产生,甚至在许多会所重新开张后,虚拟会所项目依然存在。虽然有文献记载了会所是如何调整其在线计划的,但还没有在个人层面上调查过这些计划是如何随着时间的推移被不同的会员群体所利用的,以及它们是如何相互比较而持续存在的:本文介绍了描述性和推论性统计、方差分析以及对喷泉之家会所亲身参与和虚拟参与的二次趋势分析,这些会员分别在大流行限制之前(之前的队列)、大流行限制期间(大流行队列)和封锁限制之后(重新开放队列)的三个时间段注册:初步研究结果表明,先前组群在不同时期的总体参与率保持不变。在封锁期间,大流行人群的参与率明显高于之前人群,但在封锁期间和封锁后人群的参与率明显下降。在之后的时间段内,之前的队列和大流行队列的虚拟参与率和亲身参与率在统计上相似,但重新开放的队列则有很大不同,亲身参与率占主导地位:在三个不同的大流行相关时期,会员参与面对面活动和虚拟活动的趋势表明,会所虚拟活动的可持续性和创新性是需要考虑的重要因素。(PsycInfo Database Record (c) 2024 APA, all rights reserved)。
{"title":"Clubhouse virtual programming: A trend analysis of member engagement patterns before, during, and after pandemic lockdown.","authors":"Kevin Rice, Gytis Simaitis, Francesca Pernice","doi":"10.1037/prj0000615","DOIUrl":"10.1037/prj0000615","url":null,"abstract":"<p><strong>Objective: </strong>The COVID-19 pandemic had a profound impact on the mental health of individuals with serious mental illness, with restricting social gatherings and limiting access to essential community and psychosocial support services. For programs like clubhouses, adapting typically in-person programming to online settings led to the creation of virtual clubhouse programming that persists at many sites even after reopening. Although it has been documented how clubhouses adapted their programming online, it has not been investigated at the individual level how those programs were utilized over time, by different member cohorts, and how they persist in comparison to one another.</p><p><strong>Method: </strong>The present article presents descriptive and inferential statistics, analysis of variance, and secondary trend analysis of the Fountain House clubhouse in-person and virtual engagements of three member cohorts who enrolled in either three time periods before pandemic restrictions (the prior cohort), during pandemic restrictions (the pandemic cohort), and after lockdown restrictions (the reopening cohort).</p><p><strong>Result: </strong>Initial findings show that the prior cohort sustained their overall rate of engagement across time periods. The pandemic cohort had a significantly higher rate of engagement than the prior cohort within the during period but demonstrated a significant decrease in engagement rate between the during and after period. Prior and pandemic cohorts had statistically similar virtual and in-person engagement ratios in the after period, but the reopen cohort differed significantly with a predominant ratio of in-person engagements.</p><p><strong>Conclusions and implications for practice: </strong>Member engagement trends within in-person and virtual offerings across the three different pandemic related time periods indicate important considerations for the sustainability and innovation of clubhouse virtual programming. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"200-208"},"PeriodicalIF":1.2,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761724","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-01Epub Date: 2024-07-18DOI: 10.1037/prj0000604
Francesca Pernice, Liza M Hinchey, Kevin Rice, Amber Michon, Jessica Drews, Mackenzie Jenuwine, Alan Doyle, Elliot Madison, Lisa Kessler, Craig Bayer, Cyrus Napolitano, Kinga Jedrzejczak, John Delman
Objective: The theory of social practice describes a therapeutic community process for people living with serious mental illness, while the methods involve engaging people to become collaborators and contributors to a social environment. Confusion in the mental health field surrounding the applied methods of social practice-as occurring within the clubhouse model-has not been sufficiently addressed. This article aims to outline the methodology of social practice, as well as provide guidance on its practical application.
Methods: Specific constructs of social practice are defined, and empirical support is provided to emphasize how practices to support recovery are applied in the clubhouse.
Results: Five key elements of social practice-that is, transformational social design, engagement, relationship development, natural feedback and intervention, and transitional environments-are described. Practical examples of therapeutic techniques associated with each element are also provided.
Conclusions and implications for practice: Social practice addresses the social determinants of health by focusing on five key elements that support individual and community recovery. Here, we detail social practice techniques utilized in the clubhouse as a way of unifying theory, providing practical guidance to mental health professionals and improving the measurement of community as therapy for serious mental illness. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"The method and application of social practice in the clubhouse.","authors":"Francesca Pernice, Liza M Hinchey, Kevin Rice, Amber Michon, Jessica Drews, Mackenzie Jenuwine, Alan Doyle, Elliot Madison, Lisa Kessler, Craig Bayer, Cyrus Napolitano, Kinga Jedrzejczak, John Delman","doi":"10.1037/prj0000604","DOIUrl":"10.1037/prj0000604","url":null,"abstract":"<p><strong>Objective: </strong>The theory of <i>social practice</i> describes a therapeutic community process for people living with serious mental illness, while the methods involve engaging people to become collaborators and contributors to a social environment. Confusion in the mental health field surrounding the applied methods of social practice-as occurring within the clubhouse model-has not been sufficiently addressed. This article aims to outline the methodology of social practice, as well as provide guidance on its practical application.</p><p><strong>Methods: </strong>Specific constructs of social practice are defined, and empirical support is provided to emphasize how practices to support recovery are applied in the clubhouse.</p><p><strong>Results: </strong>Five key elements of social practice-that is, transformational social design, engagement, relationship development, natural feedback and intervention, and transitional environments-are described. Practical examples of therapeutic techniques associated with each element are also provided.</p><p><strong>Conclusions and implications for practice: </strong>Social practice addresses the social determinants of health by focusing on five key elements that support individual and community recovery. Here, we detail social practice techniques utilized in the clubhouse as a way of unifying theory, providing practical guidance to mental health professionals and improving the measurement of community as therapy for serious mental illness. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"270-277"},"PeriodicalIF":1.2,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141634963","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-01Epub Date: 2024-06-17DOI: 10.1037/prj0000605
Joy Agner, Lisa Nakamura, Tyra M Kaukau, Maileen Liu, Adriana Botero, Haley Churchill, Derwin Teranishi, Flora Patton, Kelly Cogo, Tiffany Cha
Objective: This study examines adaptations, successes, and persistent challenges engaging members in virtual or hybrid community-based psychosocial rehabilitation centers called Clubhouses.
Methods: Fifteen members and staff from five Clubhouses across two Hawaiian Islands participated in a virtual Photovoice process.
Results: Results illustrated several unexpected positive outcomes from the transition to hybrid or virtual formats including opportunities for growth, learning new technology, cross-Clubhouse collaborations, deepened relationships, and better access to some hard-to-reach members. Persistent challenges included members reporting "something missing" in the socioemotional quality of virtual engagement and losing members who had low digital literacy or who preferred in-person engagement.
Conclusions and implications for practice: Overall, participants described that virtual Clubhouse supported their wellness by fostering a sense of purpose, companionship, and potential, despite sustained uncertainty from the COVID-19 pandemic. However, they also made clear that virtual and hybrid formats should be a complement to, not a replacement for, in-person Clubhouse services. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Creative virtual engagement: Successes and challenges supporting people with serious mental illness in hybrid Clubhouse environments.","authors":"Joy Agner, Lisa Nakamura, Tyra M Kaukau, Maileen Liu, Adriana Botero, Haley Churchill, Derwin Teranishi, Flora Patton, Kelly Cogo, Tiffany Cha","doi":"10.1037/prj0000605","DOIUrl":"10.1037/prj0000605","url":null,"abstract":"<p><strong>Objective: </strong>This study examines adaptations, successes, and persistent challenges engaging members in virtual or hybrid community-based psychosocial rehabilitation centers called Clubhouses.</p><p><strong>Methods: </strong>Fifteen members and staff from five Clubhouses across two Hawaiian Islands participated in a virtual Photovoice process.</p><p><strong>Results: </strong>Results illustrated several unexpected positive outcomes from the transition to hybrid or virtual formats including opportunities for growth, learning new technology, cross-Clubhouse collaborations, deepened relationships, and better access to some hard-to-reach members. Persistent challenges included members reporting \"something missing\" in the socioemotional quality of virtual engagement and losing members who had low digital literacy or who preferred in-person engagement.</p><p><strong>Conclusions and implications for practice: </strong>Overall, participants described that virtual Clubhouse supported their wellness by fostering a sense of purpose, companionship, and potential, despite sustained uncertainty from the COVID-19 pandemic. However, they also made clear that virtual and hybrid formats should be a complement to, not a replacement for, in-person Clubhouse services. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"209-218"},"PeriodicalIF":1.2,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141332282","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-01Epub Date: 2023-10-05DOI: 10.1037/prj0000581
Christina Mutschler, Kelly McShane, Rachel Liebman, Sana Junaid
Objective: The Clubhouse model of psychosocial rehabilitation supports the personal recovery of individuals with severe mental health challenges. To date, there has never been a multisite, longitudinal study examining the outcomes of Clubhouse members in Canada. Therefore, the purpose of the present study was to longitudinally assess the psychosocial outcomes and hospitalization rates of Clubhouse members from six Clubhouses across Canada. An exploratory aim of this study was to assess the psychosocial impact of the COVID-19 pandemic on Clubhouse members.
Method: The present study used a participatory approach with six accredited Clubhouses across Canada. A total of 462 Clubhouse members consented to participate in the study. Members completed a questionnaire battery every 6 months over a 2-year period (five data points total). The last three data points were collected during the COVID-19 pandemic. Primary outcomes included community functioning, measured by the Multnomah Community Ability Scale, and self-reported hospitalization rates. Data were analyzed using multilevel growth models.
Results: The results of the analysis indicated stability over the study period in community functioning and rates of hospitalization. Subscales of community functioning, including interference in functioning and behavioral problems improved over the course of the study, while adjustment to the community and social competence remained stable.
Conclusions and implications for practice: The consistency in outcomes across the study is notable, due to the worldwide impact of COVID-19 on mental health. Clubhouses may have had a buffering effect for members, in that membership diminished the impact of the pandemic on mental health. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"A multisite longitudinal evaluation of Canadian clubhouse members: Impact on hospitalizations and community functioning.","authors":"Christina Mutschler, Kelly McShane, Rachel Liebman, Sana Junaid","doi":"10.1037/prj0000581","DOIUrl":"10.1037/prj0000581","url":null,"abstract":"<p><strong>Objective: </strong>The Clubhouse model of psychosocial rehabilitation supports the personal recovery of individuals with severe mental health challenges. To date, there has never been a multisite, longitudinal study examining the outcomes of Clubhouse members in Canada. Therefore, the purpose of the present study was to longitudinally assess the psychosocial outcomes and hospitalization rates of Clubhouse members from six Clubhouses across Canada. An exploratory aim of this study was to assess the psychosocial impact of the COVID-19 pandemic on Clubhouse members.</p><p><strong>Method: </strong>The present study used a participatory approach with six accredited Clubhouses across Canada. A total of 462 Clubhouse members consented to participate in the study. Members completed a questionnaire battery every 6 months over a 2-year period (five data points total). The last three data points were collected during the COVID-19 pandemic. Primary outcomes included community functioning, measured by the Multnomah Community Ability Scale, and self-reported hospitalization rates. Data were analyzed using multilevel growth models.</p><p><strong>Results: </strong>The results of the analysis indicated stability over the study period in community functioning and rates of hospitalization. Subscales of community functioning, including interference in functioning and behavioral problems improved over the course of the study, while adjustment to the community and social competence remained stable.</p><p><strong>Conclusions and implications for practice: </strong>The consistency in outcomes across the study is notable, due to the worldwide impact of COVID-19 on mental health. Clubhouses may have had a buffering effect for members, in that membership diminished the impact of the pandemic on mental health. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"193-199"},"PeriodicalIF":1.2,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41167869","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-01Epub Date: 2023-12-14DOI: 10.1037/prj0000588
Francesca M Pernice, Liza M Hinchey, Kevin Rice, Jessica Drews, Amber Michon, Mackenzie Jenuwine, Janay Christian, Alan Doyle, Elliott Madison, Lisa Kessler, Craig Bayer, Cyrus Napolitano, Kinga Jedrzejczak
Objective: Though the efficacy of the Clubhouse model's interventions and practices in supporting recovery from serious mental illness (SMI) have been demonstrated by prior research, the causal mechanisms and theory driving these outcomes have yet to be comprehensively defined. This theory article aims to synthesize existing knowledge of these methods to define a unified theory of social practice, outline its role in SMI recovery, and discuss future implications.
Method: Historical, theoretical, and practical foundations of social practice were synthesized to define a current theory of social practice and expand the term to apply to the methods and interventions that define the Clubhouse model.
Results: Based on prior theory and findings, we define social practice as "the informed application of a specialized form of environmental therapy that utilizes an intentional community to assist people in their recovery." Key facets of social practice in the Clubhouse model of SMI recovery are discussed, including the efficacy of the practice in addressing SMI outcomes such as isolation and low self-efficacy, as well as its impact on both internal and external motivational forces.
Conclusions and implications for practice: The theory of social practice describes a process of engaging people to become collaborators and contributors to a social environment. This article describes the philosophy and practices of Clubhouses and introduces the theory of social practice as an empirical means of unifying and communicating the methods, practices, and outcomes of both the Clubhouse model and the broader implications of intentional community as therapy. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
目的:虽然会所模式的干预措施和实践在支持严重精神疾病(SMI)康复方面的功效已被先前的研究证实,但驱动这些成果的因果机制和理论仍有待全面界定。这篇理论文章旨在综合这些方法的现有知识,定义一个统一的社会实践理论,概述其在重性精神病康复中的作用,并讨论未来的影响:方法:综合社会实践的历史、理论和实践基础,定义当前的社会实践理论,并扩展该术语,使其适用于定义会所模式的方法和干预措施:根据先前的理论和研究结果,我们将社会实践定义为 "在知情的情况下应用一种专门的环境疗法,利用一个有意图的社区来帮助人们康复"。我们讨论了社会实践在会所SMI康复模式中的关键方面,包括社会实践在解决SMI结果(如孤独和低自我效能)方面的功效,以及它对内部和外部动力的影响:社会实践理论描述了一个让人们成为社会环境的合作者和贡献者的过程。本文描述了会所的理念和实践,并介绍了社会实践理论,作为统一和交流会所模式的方法、实践和结果的实证手段,以及意向性社区作为疗法的更广泛意义。(PsycInfo Database Record (c) 2023 APA,保留所有权利)。
{"title":"Community as therapy: The theory of social practice.","authors":"Francesca M Pernice, Liza M Hinchey, Kevin Rice, Jessica Drews, Amber Michon, Mackenzie Jenuwine, Janay Christian, Alan Doyle, Elliott Madison, Lisa Kessler, Craig Bayer, Cyrus Napolitano, Kinga Jedrzejczak","doi":"10.1037/prj0000588","DOIUrl":"10.1037/prj0000588","url":null,"abstract":"<p><strong>Objective: </strong>Though the efficacy of the Clubhouse model's interventions and practices in supporting recovery from serious mental illness (SMI) have been demonstrated by prior research, the causal mechanisms and theory driving these outcomes have yet to be comprehensively defined. This theory article aims to synthesize existing knowledge of these methods to define a unified theory of social practice, outline its role in SMI recovery, and discuss future implications.</p><p><strong>Method: </strong>Historical, theoretical, and practical foundations of social practice were synthesized to define a current theory of social practice and expand the term to apply to the methods and interventions that define the Clubhouse model.</p><p><strong>Results: </strong>Based on prior theory and findings, we define social practice as \"the informed application of a specialized form of environmental therapy that utilizes an intentional community to assist people in their recovery.\" Key facets of social practice in the Clubhouse model of SMI recovery are discussed, including the efficacy of the practice in addressing SMI outcomes such as isolation and low self-efficacy, as well as its impact on both internal and external motivational forces.</p><p><strong>Conclusions and implications for practice: </strong>The theory of social practice describes a process of engaging people to become collaborators and contributors to a social environment. This article describes the philosophy and practices of Clubhouses and introduces the theory of social practice as an empirical means of unifying and communicating the methods, practices, and outcomes of both the Clubhouse model and the broader implications of intentional community as therapy. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"260-269"},"PeriodicalIF":1.2,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138811641","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}