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Unmet supportive care needs among survivors of stroke in Australia: A cross-sectional study. 澳大利亚中风幸存者未满足的支持性护理需求:一项横断面研究。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-07-25 DOI: 10.1037/rep0000568
Kristy Fakes, Mariko Carey, Amy Waller, Erin Forbes, Jude Czerenkowski, Joshua Dizon, Robert Sanson-Fisher

Purpose/objective: To examine, among survivors of stroke: (a) the prevalence of and most frequently reported unmet needs; and (b) the sociodemographic and clinical factors associated with higher counts of unmet needs.

Research method/design: A cross-sectional study was undertaken with survivors of stroke recently discharged from eight hospitals in Australia, with institutional board approval. Survivors were mailed one survey for completion after their discharge from hospital. Unmet needs were measured by the Longer-Term Unmet Needs After Stroke (LUNS) tool. The number and percentage of participants who reported unmet needs were calculated. The association of sociodemographic factors, type of stroke, and thrombolysis treatment to total LUNS scores was examined using mixed ordinal logistic regression.

Results: A total of 402 survivors (35% of those approached) between April 2018 to December 2019 returned a completed survey. 83% reported at least one unmet need. The most frequently reported unmet need was needing more information about their stroke (n = 239, 61%). Those who identified as Aboriginal and/or Torres Strait Islander had approximately 5.6-fold higher odds (OR = 5.59, p = .025) of having more longer-term unmet needs compared to those who did not identify as Aboriginal and/or Torres Strait Islander.

Conclusions/implications: Unmet needs are common in recently discharged survivors of stroke. These findings may be used to inform strategies that support recovery. Providing more information may help reduce unmet needs among survivors of stroke. Enhanced hospital discharge planning and enhanced community services for survivors may help better prepare them and their caregivers for the return home. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的/目标:研究方法/设计:研究方法/设计:在获得机构委员会批准后,对最近从澳大利亚 8 家医院出院的中风幸存者进行了横断面研究。幸存者在出院后会收到一份调查问卷。未满足的需求通过 "中风后长期未满足的需求"(LUNS)工具进行测量。计算了报告需求未得到满足的参与者人数和百分比。采用混合序数逻辑回归法研究了社会人口学因素、中风类型和溶栓治疗与 LUNS 总分的关系:在 2018 年 4 月至 2019 年 12 月期间,共有 402 名幸存者(占受访者的 35%)返回了填写完整的调查问卷。83%的人报告至少有一项需求未得到满足。最常报告的未满足需求是需要更多有关中风的信息(n = 239,61%)。与那些未被认定为土著居民和/或托雷斯海峡岛民的人相比,那些被认定为土著居民和/或托雷斯海峡岛民的人有更多长期未满足需求的几率要高出约 5.6 倍(OR = 5.59,p = .025):未满足的需求在最近出院的中风幸存者中很常见。这些发现可用于制定支持康复的策略。提供更多信息可能有助于减少中风幸存者未满足的需求。为幸存者加强出院规划和社区服务可帮助他们及其照护者为回家做好更充分的准备。(PsycInfo Database Record (c) 2024 APA, all rights reserved)。
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引用次数: 0
Sex-positive sexuality post-spinal cord injury: A systematic review and qualitative metasynthesis. 脊髓损伤后的性积极性:系统回顾与定性综合。
IF 1.9 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-07-25 DOI: 10.1037/rep0000573
Blaze Ireland, Roxanna Nasseri Pebdani, Marita Heck, Asmita Mudholkar, Michèle Verdonck

Purpose/objective: Many qualitative studies have focused on sex and spinal cord injury (SCI), often taking a deficit lens to interpretation and reporting. However, it is important to understand what can facilitate positive sexuality for people with SCI; therefore this study examines facilitators of sexuality for people with SCI.

Research method/design: A systematic review and metasynthesis of 38 qualitative papers (published before February 2024) on sexuality for people with SCI was conducted following Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Thematic synthesis was conducted in three stages: line-by-line coding; the identification of common descriptive themes across papers; and the generation of novel analytical themes.

Results: Thirty-eight eligible papers were analyzed. Thematic synthesis resulted in four common descriptive themes that were linked to positive sexuality: (a) being sexually active; (b) trying new and other ways of sexual expression; (c) having a positive relationship with a partner; and (d) peer support. These descriptive themes were interrelated and incorporated in two in-depth analytical themes: (a) redefining sexuality and (b) establishing a sexual identity.

Conclusions/implications: This study highlights facilitators to sexuality post-SCI. In order to maintain a sex-positive approach to sexuality rehabilitation for people with SCI, sexuality facilitators should remain at the forefront of sexual rehabilitation. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的/目标:许多定性研究都关注性与脊髓损伤(SCI)问题,但在解释和报告时往往采用缺陷视角。然而,了解什么能够促进脊髓损伤患者积极的性行为是非常重要的;因此,本研究探讨了脊髓损伤患者性行为的促进因素:研究方法/设计:根据《系统综述和元分析首选报告项目》(Preferred Reporting Items for Systematic Reviews and Meta-Analyses)指南,对 38 篇有关 SCI 患者性行为的定性论文(2024 年 2 月之前发表)进行了系统综述和元综合。专题综述分三个阶段进行:逐行编码;确定各篇论文的共同描述性主题;生成新的分析性主题:对 38 篇符合条件的论文进行了分析。专题综合得出了与积极性行为相关的四个共同描述性主题:(a) 性生活活跃;(b) 尝试新的和其他的性表达方式;(c) 与伴侣保持积极的关系;(d) 同伴支持。这些描述性主题相互关联,并被纳入两个深入分析主题:(a) 重新定义性行为;(b) 确立性身份:本研究突出强调了促进后性健康的因素。为了保持对 SCI 患者性康复的积极态度,性促进者应始终站在性康复的最前沿。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
On their own: Business profitability and job satisfaction among self-employed with chronic health conditions. 自力更生:慢性健康状况个体户的业务盈利能力和工作满意度。
IF 2.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-05-01 Epub Date: 2023-11-13 DOI: 10.1037/rep0000525
Wafaa Sowan, Dana Yagil, Efrat Mishor, Miri Cohen

Objectives: This study examined (a) characteristics of maintenance of business activity among self-employed individuals with chronic health conditions (CHCs) and (b) the relationships of coping strategies with maintenance of business activity.

Method: This cross-sectional study involved 294 self-employed participants aged 26-77 who were at most 2 years since their diagnosis and had one of the following CHCs: cancer (23.4%), cardiac disease (21.7%), respiratory disease (36.2%), or inflammatory bowel disease (18.6%). Participants answered questionnaires on workability limitations, business maintenance, sense of mastery, and coping strategies.

Results: Participants reported a substantial decrease in business profitability since their CHC diagnosis but high job satisfaction. The structural equation model had good fit indicators and revealed that the association between workability limitations and lower maintenance of business profitability was partially mediated by lower use of disengaged coping strategies. The association between sense of mastery and job satisfaction was partially mediated by engaged and disengaged coping strategies.

Conclusions: Self-employed individuals with CHCs are at risk of declining of business profitability; however, degree of workability limitations alone did not explain business profitability maintenance or job satisfaction, but it was related to coping resources and strategies. Interventions that strengthen personal resources and promote engaged coping strategies should be provided with direct support to business maintenance. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的:本研究考察了(a)慢性健康状况个体户维持经营活动的特点和(b)应对策略与维持经营活动的关系。方法:这项横切面研究涉及294名年龄在26-77岁之间的个体经营参与者,他们自诊断以来最多2年,患有以下CHCs之一:癌症(23.4%),心脏病(21.7%),呼吸系统疾病(36.2%)或炎症性肠病(18.6%)。参与者回答了关于可操作性限制、业务维护、掌握感和应对策略的问卷。结果:参与者报告了自CHC诊断以来业务盈利能力的大幅下降,但工作满意度较高。结构方程模型具有较好的拟合指标,表明可操作性限制与较低的企业盈利能力维持之间的关系部分中介于较低的离职应对策略的使用。掌握感与工作满意度之间的关系被投入和脱离应对策略部分中介。结论:个体CHCs患者存在企业盈利能力下降的风险;然而,单纯的可操作性限制程度并不能解释企业盈利能力的维持或工作满意度,但它与应对资源和策略有关。应向加强个人资源和促进参与式应对策略的干预措施提供直接支持,以维持业务。(PsycInfo数据库记录(c) 2023 APA,版权所有)。
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引用次数: 0
A 5-year longitudinal structural equation model of social isolation and probable major depression among participants with spinal cord injury. 脊髓损伤参与者的社会隔离和可能的重度抑郁症的 5 年纵向结构方程模型。
IF 2.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-05-01 Epub Date: 2024-03-21 DOI: 10.1037/rep0000533
Chao Li, Susan Newman, Jillian M R Clark, James S Krause

Objective: To develop longitudinal structural models of social isolation and probable major depression (PMD) over a 5-year interval among participants with spinal cord injury (SCI).

Design: Longitudinal structural equation modeling of self-report assessments collected during two follow-ups (2013 as Time 1, 2018 as Time 2) of a 45-year multicohort longitudinal study. Participants (n = 557) were identified from a specialty hospital in the Southeastern United States and two Midwestern hospitals and were initially enrolled in 1973-1974, 1984-1985, 1993-1994, or 2003-2004. PMD symptomology was measured by the Patient Health Questionnaire-9 (PHQ-9) and was defined by PHQ-9 scores ≥ 10. Social isolation was represented by two latent dimensions: social disconnectedness, objective component measured by activities, and perceived isolation, based on subjective appraisals. Structural equation modeling assessed the relationship among social disconnectedness and perceived isolation measured at Time 1 and PMD measured at Times 1 and 2.

Results: Both social disconnectedness and perceived isolation, measured at Time 1, were significantly related with PMD measured at Time 1 (rSD_Time 1 and PMD_Time 1 = .49, p < .001; rPI_Time 1 and PMD_Time 1 = .66, p < .001) and Time 2 (rSD_Time 1 and PMD_Time 2 = .37, p < .001; rPI_Time 1 and PMD_Time 2 = .54, p < .001), indicating participants with greater perceived isolation and social disconnectedness were more likely to have greater likelihood of PMD, both cross-sectionally and longitudinally. Perceived isolation was more strongly related to PMD compared with social disconnectedness.

Conclusion: Social isolation was associated with both current and future depression symptoms. People with more years post-SCI were less likely to have PMD. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的建立脊髓损伤(SCI)参与者5年间社会隔离和可能的重度抑郁症(PMD)的纵向结构模型:对一项为期 45 年的多队列纵向研究的两次随访(2013 年为时间 1,2018 年为时间 2)中收集的自我报告评估结果进行纵向结构方程建模。参与者(n = 557)来自美国东南部的一家专科医院和中西部的两家医院,最初分别于 1973-1974 年、1984-1985 年、1993-1994 年或 2003-2004 年注册。PMD症状通过患者健康问卷-9(PHQ-9)进行测量,PHQ-9得分≥10分即为PMD症状。社会孤立由两个潜在维度表示:社会脱节(通过活动测量的客观成分)和感知孤立(基于主观评价)。结构方程模型评估了在时间 1 测定的社会隔离度和感知到的隔离度与在时间 1 和时间 2 测定的 PMD 之间的关系:结果:在时间 1 测得的社会脱节感和感知到的孤独感与在时间 1(rSD_Time 1 和 PMD_Time 1 = .49,p < .001;rPI_Time 1 和 PMD_Time 1 = .66,p < .001)和时间 2(rSD_Time 1 和 PMD_Time 2 = .37,p < .001;rPI_Time 1 和 PMD_Time 2 = .54,p < .001),表明无论是横向还是纵向,感知到孤立感和与社会脱节程度越高的参与者患 PMD 的可能性越大。与社会疏离感相比,感知到的孤独感与 PMD 的关系更为密切:结论:社会隔离与当前和未来的抑郁症状有关。结论:社会隔离与当前和未来的抑郁症状有关,SCI后年数越长的人患PMD的可能性越小。(PsycInfo Database Record (c) 2024 APA, 版权所有)。
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引用次数: 0
Longitudinal health outcomes in caregivers of military members with traumatic brain injury. 脑外伤军人护理人员的纵向健康结果。
IF 2.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-05-01 Epub Date: 2023-12-21 DOI: 10.1037/rep0000522
Tracey A Brickell, Brian J Ivins, Megan M Wright, Louis M French, Rael T Lange

Purpose/objective: To examine longitudinal change in health-related quality of life (HRQOL) in caregivers of service members/veterans with traumatic brain injury and factors associated with clinically elevated symptoms.

Research method/design: Caregivers (N = 220) completed nine HRQOL outcome measures and 10 risk factor measures at a baseline evaluation and follow-up evaluation 3 years later. Caregiver's responses on the nine HRQOL outcome measures were classified into four clinical change categories based on the presence/absence of clinically elevated T-scores (≥ 60 T) at baseline and follow-up: (a) Persistent (baseline ≥ 60T + follow-up ≥ 60 T), (b) Developed (baseline < 60 T + follow-up ≥ 60 T), (c) Improved (baseline ≥ 60 T + follow-up < 60 T), and (d) Asymptomatic (baseline < 60 T + follow-up < 60 T). A clinical change composite score was calculated by summing the number of Persistent or Developed HRQOL outcome measures and used to create three clinical change groups: (a) No Symptoms (n = 69, zero measures), (b) Some Symptoms (n = 88, one to three measures), and (c) Numerous Symptoms (n = 63, four to nine measures).

Results: Of the nine HRQOL outcome measures, Bodily Pain, Perceived Stress, Sleep-Related Impairment, and Fatigue were most frequently classified as Persistent or Developed from baseline to follow-up in the entire sample. A linear relationship was found between the vast majority of risk factors across the three clinical change groups at baseline and follow-up (Numerous > Some > None). The risk factors were correlated with the number of elevated HRQOL symptoms at baseline and follow-up. Most Asymptomatic or Persistent caregivers did not have meaningful change (≥ 1 SD) in HRQOL scores. A sizable proportion of Developed or Improved caregivers had either meaningful or no change in HRQOL scores.

Conclusions/implications: There is a need for ongoing clinical services for military caregivers. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的/目标:研究方法/设计:护理人员(N = 220)在基线评估和 3 年后的随访评估中完成了 9 项 HRQOL 结果测量和 10 项风险因素测量。根据基线和随访时是否存在临床升高的 T 值(≥ 60 T),将照顾者对 9 项 HRQOL 结果测量的反应分为 4 个临床变化类别:(a)持续(基线≥ 60 T + 随访≥ 60 T);(b)发展(基线 < 60 T + 随访≥ 60 T);(c)改善(基线≥ 60 T + 随访 < 60 T);以及(d)无症状(基线 < 60 T + 随访 < 60 T)。通过将持续或发展的 HRQOL 结果指标的数量相加,计算出临床变化综合得分,并用于创建三个临床变化组:(a) 无症状(n = 69,0 个指标),(b) 部分症状(n = 88,1 到 3 个指标),(c) 大量症状(n = 63,4 到 9 个指标):结果:在九项 HRQOL 结果测量中,身体疼痛、感知压力、睡眠相关损害和疲劳在整个样本中从基线到随访期间最常被归类为持续性或发展性。在基线和随访的三个临床变化组别中,发现绝大多数风险因素之间存在线性关系(大量 > 一些 > 无)。风险因素与基线和随访时 HRQOL 症状升高的数量相关。大多数无症状或持续存在症状的照护者的 HRQOL 评分没有发生有意义的变化(≥ 1 SD)。相当大比例的 "发展型 "或 "改善型 "照护者的 HRQOL 评分要么出现有意义的变化,要么没有变化:结论/意义:需要为军队护理人员提供持续的临床服务。(PsycInfo Database Record (c) 2023 APA,保留所有权利)。
{"title":"Longitudinal health outcomes in caregivers of military members with traumatic brain injury.","authors":"Tracey A Brickell, Brian J Ivins, Megan M Wright, Louis M French, Rael T Lange","doi":"10.1037/rep0000522","DOIUrl":"10.1037/rep0000522","url":null,"abstract":"<p><strong>Purpose/objective: </strong>To examine longitudinal change in health-related quality of life (HRQOL) in caregivers of service members/veterans with traumatic brain injury and factors associated with clinically elevated symptoms.</p><p><strong>Research method/design: </strong>Caregivers (<i>N</i> = 220) completed nine HRQOL outcome measures and 10 risk factor measures at a baseline evaluation and follow-up evaluation 3 years later. Caregiver's responses on the nine HRQOL outcome measures were classified into four clinical change categories based on the presence/absence of clinically elevated <i>T</i>-scores (≥ 60 T) at baseline and follow-up: (a) Persistent (baseline ≥ 60T + follow-up ≥ 60 T), (b) Developed (baseline < 60 T + follow-up ≥ 60 T), (c) Improved (baseline ≥ 60 T + follow-up < 60 T), and (d) Asymptomatic (baseline < 60 T + follow-up < 60 T). A clinical change composite score was calculated by summing the number of Persistent or Developed HRQOL outcome measures and used to create three clinical change groups: (a) No Symptoms (<i>n</i> = 69, zero measures), (b) Some Symptoms (<i>n</i> = 88, one to three measures), and (c) Numerous Symptoms (<i>n</i> = 63, four to nine measures).</p><p><strong>Results: </strong>Of the nine HRQOL outcome measures, Bodily Pain, Perceived Stress, Sleep-Related Impairment, and Fatigue were most frequently classified as Persistent or Developed from baseline to follow-up in the entire sample. A linear relationship was found between the vast majority of risk factors across the three clinical change groups at baseline and follow-up (Numerous > Some > None). The risk factors were correlated with the number of elevated HRQOL symptoms at baseline and follow-up. Most Asymptomatic or Persistent caregivers did not have meaningful change (≥ 1 SD) in HRQOL scores. A sizable proportion of Developed or Improved caregivers had either meaningful or no change in HRQOL scores.</p><p><strong>Conclusions/implications: </strong>There is a need for ongoing clinical services for military caregivers. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"135-144"},"PeriodicalIF":2.7,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138832333","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perceived stress and pain interference in acute rehabilitation following spinal cord injury: Resilience as a moderator. 脊髓损伤后急性康复过程中的感知压力和疼痛干扰:复原力是调节因素。
IF 2.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-05-01 Epub Date: 2023-12-21 DOI: 10.1037/rep0000532
Elizabeth J Richardson, Emily C McKinley, J Scott Richards

Purpose/objective: Higher levels of resilience is associated with improved pain outcomes in chronic pain and other neurological populations, but the role of resilience in pain following spinal cord injury (SCI) remains unclear. This study examined resilience as a moderator in the relationship between perceived stress and both pain intensity and interference during acute rehabilitation for SCI.

Research method/design: Individuals admitted to inpatient rehabilitation acutely following SCI (N = 57) completed measures of perceived stress, resilience, pain intensity, and interference. The Johnson-Neyman procedure was used to examine significance of conditional relationships that emerged.

Results: Resilience was found to moderate the relationship between perceived stress and pain interference, but not pain intensity, during inpatient rehabilitation.

Conclusions/implications: When resilience is low, perceived stress has a more profound and adverse impact on pain interference during inpatient rehabilitation, suggesting therapeutic strategies that build components of resilience are needed during acute rehabilitation following SCI. The relationship between stress, resilience, and pain may differ postinpatient rehabilitation for SCI and warrants further investigation. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的/目标:在慢性疼痛和其他神经系统人群中,较高水平的抗挫折能力与疼痛结果的改善有关,但抗挫折能力在脊髓损伤(SCI)后疼痛中的作用仍不清楚。本研究探讨了在脊髓损伤急性康复期间,抗逆力作为感知压力与疼痛强度和干扰之间关系的调节因素:研究方法/设计: SCI 急性康复住院患者(57 人)完成了感知压力、复原力、疼痛强度和干扰的测量。采用约翰逊-奈曼程序检查出现的条件关系的显著性:结果:研究发现,在住院康复期间,恢复力能够调节感知压力与疼痛干扰之间的关系,但不能调节疼痛强度:当恢复力较低时,感知到的压力会对住院康复期间的疼痛干扰产生更深远、更不利的影响,这表明在脊髓损伤后的急性康复期间需要采取能够增强恢复力的治疗策略。压力、恢复力和疼痛之间的关系在 SCI 住院康复后可能会有所不同,值得进一步研究。(PsycInfo Database Record (c) 2023 APA,保留所有权利)。
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引用次数: 0
Cognitive remediation for schizophrenia: Clinician perspectives on implementation barriers and facilitators. 精神分裂症的认知矫正:临床医生对实施障碍和促进因素的看法。
IF 2.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-05-01 Epub Date: 2024-03-21 DOI: 10.1037/rep0000552
Rosalie Ariane Eva Altman, Maree Reser, Eric Josiah Tan, Susan Lee Rossell

Objectives: Neurocognitive deficits in schizophrenia have a major impact on functioning; however, they remain poorly targeted by available treatment offerings. Cognitive remediation (CR) is effective in improving neurocognition and functioning. Despite clinical guidelines for schizophrenia recommending CR, it is still not readily available in clinical services and sizeable attrition rates are reported in clinical trials.

Method: To elucidate the barriers and facilitators of CR access and engagement, we conducted a mixed methods qualitative-dominant study with 12 clinicians in Australia, in 2021, with 1 hr interviews and additional rating scales completed.

Results: Thematic analysis highlighted four themes (cognitive symptoms, CR intervention, motivation and engagement in CR, and CR implementation), and 14 subthemes. Clinicians emphasized the broad impact of cognitive deficits and outlined pros and cons of different CR approaches. Several factors were suggested as impacting engagement, including motivation assessments/techniques, neurocognitive insight, illness, and demographic factors. Lack of routine implementation in Australia was unanimously espoused and partly explained by a need for cost-effectiveness analyses, remote and flexible delivery, and increasing service resource provision and staff training in CR.

Conclusions: This study offers key insights into CR access, while recommending methods for optimizing CR implementation and dissemination to improve recovery outcomes of people diagnosed with schizophrenia. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目标:精神分裂症患者的神经认知缺陷对其功能有重大影响;然而,现有的治疗方法却很少针对这些缺陷。认知矫正(CR)能有效改善神经认知和功能。尽管精神分裂症的临床指南推荐进行认知矫正,但临床服务机构仍无法随时提供认知矫正服务,而且临床试验中也报告了相当高的减员率:为了阐明获得 CR 和参与 CR 的障碍和促进因素,我们于 2021 年在澳大利亚对 12 名临床医生进行了一项以定性为主的混合方法研究,并完成了 1 小时的访谈和额外的评分量表:主题分析强调了四个主题(认知症状、 CR 干预、CR 动机和参与、CR 实施)和 14 个次主题。临床医生强调了认知缺陷的广泛影响,并概述了不同 CR 方法的利弊。他们提出了影响参与度的几个因素,包括动机评估/技术、神经认知洞察力、疾病和人口因素。他们一致认为澳大利亚缺乏常规实施,部分原因是需要进行成本效益分析、远程和灵活交付,以及增加 CR 方面的服务资源供应和人员培训:本研究提供了有关 CR 使用情况的重要见解,同时建议了优化 CR 实施和传播的方法,以改善精神分裂症患者的康复效果。(PsycInfo Database Record (c) 2024 APA, 版权所有)。
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引用次数: 0
Harmonizing federal interagency traumatic brain injury research data to examine depression and suicide-related outcomes. 统一联邦机构间脑外伤研究数据,检查抑郁和自杀相关结果。
IF 2.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-05-01 Epub Date: 2024-03-21 DOI: 10.1037/rep0000547
Maya E O'Neil, Danielle Krushnic, Kate Clauss, William Baker-Robinson, Sara Hannon, David C Cameron, Lawrence Cook, Meike Niederhausen, Josh Kaplan, Lisa A Brenner

Objective: This proof-of-concept study was conducted to establish the feasibility of compiling Federal Interagency Traumatic Brain Injury Research (FITBIR) data pertaining to depression and suicide risk, with the secondary goal of improving understanding regarding these outcomes. FITBIR is a national repository of participant-level traumatic brain injury (TBI) data designed to address methodological limitations (e.g., small sample size, heterogeneity of injuries).

Method: FITBIR studies with TBI severity and measures related to depression and suicidal ideation were identified. Data were harmonized across relevant studies and grouped to identify "probable depression" and suicidal ideation, resulting in a large, combined sample. Rates of probable depression and suicidal ideation were described across the available studies, considering the influence of demographic and/or injury-related factors on outcomes.

Results: Cross-sectional studies meeting criteria included four studies with depression outcomes and two with suicidal ideation outcomes. Two studies reported data appropriate for comparative analyses on depression. Combined results suggested that approximately 71% of participants were categorized as having probable depression. Participants with a history of mild TBI had 2.54 greater odds of probable depression (95% confidence interval [1.93, 3.34]) than those without a history of TBI.

Conclusions: Methods, harmonization code, and meta-databases related to TBI, probable depression, and suicidal ideation are now publicly available on the FITBIR website. Even with limited data, harmonization of FITBIR studies can serve as the basis for ongoing TBI and mental health research. Analyses will be more robust in the future as more studies with relevant outcome data are added to the FITBIR database. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目标:本概念验证研究旨在确定汇编有关抑郁和自杀风险的联邦机构间脑损伤研究(FITBIR)数据的可行性,其次是为了加深对这些结果的了解。FITBIR 是一个全国性的参与者级创伤性脑损伤 (TBI) 数据库,旨在解决方法学上的局限性(如样本量小、损伤的异质性):方法:确定了具有创伤性脑损伤严重程度以及抑郁和自杀意念相关测量指标的 FITBIR 研究。对相关研究的数据进行了统一,并进行了分组,以确定 "可能的抑郁 "和自杀意念,从而获得了大量的综合样本。考虑到人口统计学因素和/或受伤相关因素对结果的影响,对现有研究中可能患有抑郁症和有自杀倾向的比率进行了描述:符合标准的横断面研究包括四项抑郁结果研究和两项自杀意念结果研究。两项研究报告的数据适合用于抑郁症的比较分析。综合结果显示,约有 71% 的参与者被归类为可能患有抑郁症。与无轻度创伤性脑损伤史的参与者相比,有轻度创伤性脑损伤史的参与者患可能抑郁症的几率要高出 2.54(95% 置信区间 [1.93, 3.34]):有关创伤性脑损伤、疑似抑郁症和自杀意念的方法、统一代码和元数据库现已在 FITBIR 网站上公布。即使数据有限,FITBIR 研究的协调也可以作为正在进行的创伤性脑损伤和心理健康研究的基础。随着更多具有相关结果数据的研究被添加到 FITBIR 数据库中,未来的分析将更加有力。(PsycInfo Database Record (c) 2024 APA, 版权所有)。
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引用次数: 0
Differential associations between insight and quality-of-life dimensions among individuals with schizophrenia. 精神分裂症患者的洞察力与生活质量之间的差异。
IF 2.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-05-01 Epub Date: 2024-03-28 DOI: 10.1037/rep0000551
Guillaume Barbalat, Lisa Maréchal, Julien Plasse, Isabelle Chéreau-Boudet, Benjamin Gouache, Emilie Legros-Lafarge, Catherine Massoubre, Nathalie Guillard-Bouhet, Frédéric Haesebaert, Renaud F Cohen, Nicolas Franck

Purpose/objective: In schizophrenia, insight, the recognition that one has a medical illness that requires treatment, has long been related to deteriorated quality of life. Yet, insight and quality of life are broad constructs that encompass several dimensions. Here, we investigated differential associations between insight and quality-of-life dimensions using a psychological network approach.

Research method/design: We extracted data from the French network of rehabilitation centers REHABase (January 2016 to December 2022, N = 1,056). Our psychological network analysis modeled insight and quality of life as a network of interacting dimensions: three insight dimensions (awareness of illness, reattribution of symptoms to the disease, and recognition of treatment need) and eight quality-of-life dimensions (autonomy, physical and psychosocial well-being, relationships with family, friends and romantic partners, resilience, and self-esteem).

Results: Insight was negatively associated with quality of life. Our psychological network analysis revealed a strong negative association between awareness of disease and self-esteem. Both dimensions were the strongest nodes in the overall network. Our network analysis also revealed a significant but positive connection between recognition of treatment needs and resilience.

Conclusion/implications: While insight and quality of life are overall negatively associated, we found both negative and positive connections between insight and quality-of-life dimensions. The negative relationship between insight and quality of life may reflect the deleterious effects of diagnostic labeling on a patient's self-esteem. Yet, acknowledgment of treatment needs may have positive effects on quality of life and may promote recovery, perhaps because it emphasizes the need for support rather than labels and abnormalities. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的/目标:长期以来,精神分裂症患者的洞察力(即认识到自己患有需要治疗的疾病)一直与生活质量的下降有关。然而,洞察力和生活质量是包含多个方面的广泛概念。在此,我们采用心理网络方法研究了洞察力与生活质量之间的不同关联:我们从法国康复中心网络REHABase中提取了数据(2016年1月至2022年12月,N = 1,056)。我们的心理网络分析将洞察力和生活质量建模为一个由相互作用的维度组成的网络:三个洞察力维度(对疾病的认识、将症状重新归因于疾病、认识到治疗的必要性)和八个生活质量维度(自主性、身体和心理健康、与家人、朋友和恋爱伴侣的关系、复原力和自尊):洞察力与生活质量呈负相关。我们的心理网络分析显示,对疾病的认识与自尊之间存在很强的负相关。这两个维度是整个网络中最强的节点。我们的网络分析还显示,对治疗需求的认识与复原力之间存在显著但积极的联系:虽然洞察力和生活质量总体上呈负相关,但我们发现洞察力和生活质量之间既有负相关也有正相关。洞察力和生活质量之间的负相关可能反映了诊断标签对患者自尊的有害影响。然而,承认治疗需求可能会对生活质量产生积极影响,并促进康复,这可能是因为它强调的是对支持的需求,而不是标签和异常。(PsycInfo Database Record (c) 2024 APA, 版权所有)。
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引用次数: 0
Do depressive and anxiety symptoms influence the construct validity of Multiple Sclerosis Walking Scale-12 scores? 抑郁和焦虑症状是否会影响多发性硬化症步行量表-12 评分的构建有效性?
IF 2.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2024-05-01 Epub Date: 2024-01-01 DOI: 10.1037/rep0000534
Petra Šilić, Catherine D Jones, Brenda Jeng, Robert W Motl

Purpose/objective: Walking dysfunction, depression, and anxiety are prevalent, burdensome, and interrelated outcomes in persons with multiple sclerosis (MS). The 12-item Multiple Sclerosis Walking Scale (MSWS-12) is a common patient-reported outcome (PRO) of walking dysfunction in research and practice involving MS, but the construct validity of its scores might be influenced by symptoms of depression and anxiety. This study examined if symptoms of depression and anxiety influenced the construct validity of MSWS-12 scores.

Research method/design: The sample included 189 participants with MS who completed the MSWS-12, Hospital Anxiety and Depression Scale (HADS-Depression subscale [HADS-D] and HADS-Anxiety subscale [HADS-A]), 6-minute walk (6MW), and timed 25-foot walk (T25FW). We conducted bivariate correlation analysis to examine the associations between MSWS-12 scores and both the 6MW and T25FW, while controlling for HADS-D and HADS-A scores.

Results: MSWS-12 scores were significantly correlated with the 6MW (r = -.752), T25FW (r = .694), HADS-D (r = .405), and HADS-A (r = .235). The correlations between MSWS-12 and 6MW (pr = -.725) and T25FW (pr = .685) did not change when controlling for HADS-D and HADS-A scores. The correlations between MSWS-12 and 6MW (r = -.708 and r = -.726) and T25FW (r = .687 and r = .748) were strong in subsamples with elevated HADS-D and HADS-A scores.

Conclusions/implications: Our results strengthen the validity evidence for MSWS-12 scores as a PRO of walking dysfunction in MS, including among those with symptoms of depression and anxiety. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

目的/目标:行走功能障碍、抑郁和焦虑是多发性硬化症(MS)患者普遍存在的、负担沉重且相互关联的结果。在涉及多发性硬化症的研究和实践中,12 项多发性硬化症行走量表(MSWS-12)是一种常见的患者报告的行走功能障碍结果(PRO),但其得分的构建有效性可能会受到抑郁和焦虑症状的影响。本研究探讨了抑郁和焦虑症状是否会影响 MSWS-12 评分的结构效度:样本包括 189 名完成 MSWS-12、医院焦虑抑郁量表(HADS-抑郁分量表 [HADS-D] 和 HADS-焦虑分量表 [HADS-A])、6 分钟步行(6MW)和 25 英尺定时步行(T25FW)的多发性硬化症患者。在控制 HADS-D 和 HADS-A 评分的前提下,我们进行了双变量相关分析,以研究 MSWS-12 评分与 6MW 和 T25FW 之间的关联:结果:MSWS-12 分数与 6MW (r = -.752)、T25FW (r = .694)、HADS-D (r = .405) 和 HADS-A (r = .235) 有明显相关性。在控制 HADS-D 和 HADS-A 评分后,MSWS-12 与 6MW (pr = -.725) 和 T25FW (pr = .685) 之间的相关性没有变化。在HADS-D和HADS-A评分升高的子样本中,MSWS-12与6MW(r = -.708 和 r = -.726)和T25FW(r = .687和r = .748)之间的相关性很强:我们的研究结果加强了 MSWS-12 评分作为多发性硬化症患者(包括伴有抑郁和焦虑症状的患者)行走功能障碍 PRO 的有效性证据。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
{"title":"Do depressive and anxiety symptoms influence the construct validity of Multiple Sclerosis Walking Scale-12 scores?","authors":"Petra Šilić, Catherine D Jones, Brenda Jeng, Robert W Motl","doi":"10.1037/rep0000534","DOIUrl":"10.1037/rep0000534","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Walking dysfunction, depression, and anxiety are prevalent, burdensome, and interrelated outcomes in persons with multiple sclerosis (MS). The 12-item Multiple Sclerosis Walking Scale (MSWS-12) is a common patient-reported outcome (PRO) of walking dysfunction in research and practice involving MS, but the construct validity of its scores might be influenced by symptoms of depression and anxiety. This study examined if symptoms of depression and anxiety influenced the construct validity of MSWS-12 scores.</p><p><strong>Research method/design: </strong>The sample included 189 participants with MS who completed the MSWS-12, Hospital Anxiety and Depression Scale (HADS-Depression subscale [HADS-D] and HADS-Anxiety subscale [HADS-A]), 6-minute walk (6MW), and timed 25-foot walk (T25FW). We conducted bivariate correlation analysis to examine the associations between MSWS-12 scores and both the 6MW and T25FW, while controlling for HADS-D and HADS-A scores.</p><p><strong>Results: </strong>MSWS-12 scores were significantly correlated with the 6MW (<i>r</i> = -.752), T25FW (<i>r</i> = .694), HADS-D (<i>r</i> = .405), and HADS-A (<i>r</i> = .235). The correlations between MSWS-12 and 6MW (pr = -.725) and T25FW (pr = .685) did not change when controlling for HADS-D and HADS-A scores. The correlations between MSWS-12 and 6MW (<i>r</i> = -.708 and <i>r</i> = -.726) and T25FW (<i>r</i> = .687 and <i>r</i> = .748) were strong in subsamples with elevated HADS-D and HADS-A scores.</p><p><strong>Conclusions/implications: </strong>Our results strengthen the validity evidence for MSWS-12 scores as a PRO of walking dysfunction in MS, including among those with symptoms of depression and anxiety. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"129-134"},"PeriodicalIF":2.7,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139080975","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Rehabilitation Psychology
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