Purpose/objective: Medical assistance in dying (MAiD) is permitted in certain U.S. jurisdictions and other countries for suffering associated with terminal physical illness, such as advanced cancer, progressive neurological disease, and major organ failure, in which natural death is foreseeable. In a few European countries and Canada, eligibility for MAiD has recently been extended for nonterminal chronic health conditions and severe psychiatric illnesses that are considered to be irremediable.
Results: For psychologists, this expansion of eligibility for MAiD in other countries raises considerable questions within cultural, moral, and ethical contexts.
Design: This commentary is based on personal reflections within the framework of the foundational principles of rehabilitation psychology given our knowledge of how MAiD potentially differentially impacts the disability community.
Conclusions/implications: Rehabilitation psychologists need to grapple with the complexity of the issues to begin to forecast the research, education, practice standards, and policies that are needed before legislation is proposed in the United States. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的/目标:在某些美国司法管辖区和其他国家,允许对与晚期身体疾病(如晚期癌症、进行性神经系统疾病和主要器官衰竭)相关的痛苦提供临终医疗援助(MAiD),这些疾病可以预见自然死亡。在一些欧洲国家和加拿大,最近延长了被认为无法补救的非晚期慢性健康状况和严重精神疾病的MAiD资格。结果:对于心理学家来说,其他国家MAiD资格的扩大在文化、道德和伦理背景下提出了相当大的问题。设计:这篇评论是基于个人在康复心理学基本原则框架内的思考,考虑到我们对MAiD如何潜在地影响残疾人社区的了解。结论/启示:康复心理学家需要与问题的复杂性作斗争,开始预测在美国提出立法之前所需的研究、教育、实践标准和政策。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Cultural, moral, and ethical considerations in the inclusion of nonterminal conditions and mental illness in medical assistance in dying (MAiD) laws.","authors":"Kathleen S Brown","doi":"10.1037/rep0000597","DOIUrl":"10.1037/rep0000597","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Medical assistance in dying (MAiD) is permitted in certain U.S. jurisdictions and other countries for suffering associated with terminal physical illness, such as advanced cancer, progressive neurological disease, and major organ failure, in which natural death is foreseeable. In a few European countries and Canada, eligibility for MAiD has recently been extended for nonterminal chronic health conditions and severe psychiatric illnesses that are considered to be irremediable.</p><p><strong>Results: </strong>For psychologists, this expansion of eligibility for MAiD in other countries raises considerable questions within cultural, moral, and ethical contexts.</p><p><strong>Design: </strong>This commentary is based on personal reflections within the framework of the foundational principles of rehabilitation psychology given our knowledge of how MAiD potentially differentially impacts the disability community.</p><p><strong>Conclusions/implications: </strong>Rehabilitation psychologists need to grapple with the complexity of the issues to begin to forecast the research, education, practice standards, and policies that are needed before legislation is proposed in the United States. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":"70 2","pages":"123-130"},"PeriodicalIF":1.7,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144022428","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-05-01Epub Date: 2024-08-22DOI: 10.1037/rep0000570
Justin E Karr, Agnes E White, T K Logan
Purpose/objective: The current study examined the psychometric properties of common mental health questionnaires among women survivors of intimate partner violence (IPV) with and without brain injuries due to IPV and evaluated whether women with and without IPV-related brain injuries differed in depression, anxiety, and posttraumatic stress disorder (PTSD) symptom severity.
Research method/design: Women survivors of IPV with and without IPV-related brain injuries were recruited online through Prolific (N = 205, M = 39.8 ± 11.9 years old, 83.9% non-Hispanic White, 42.4% college-educated). They completed the eight-item Patient Health Questionnaire (PHQ-8), seven-item Generalized Anxiety Disorder scale (GAD-7), and PTSD Checklist for the Diagnostic and Statistical Manual of Mental Disorders (fifth edition) (PCL-5). Model fit and internal consistency were estimated for each scale. Groups were compared on mental health symptom severity, with and without controlling for age, education, and IPV severity.
Results: Both one-factor and multifactor models showed excellent fit for all scales. PHQ-8 (ω = .91), GAD-7 (ω = .94), and PCL-5 total scores (ω = .95) had strong reliability, and all subscale scores had acceptable-to-strong reliability (ω range = .79-.94). Women with IPV-related brain injuries reported greater physical IPV severity, higher rates of depression, and higher somatic anxiety and PTSD symptom severity. No group differences in mental health symptoms were significant after controlling for IPV severity.
Conclusions/implications: The PHQ-8, GAD-7, and PCL-5 showed evidence for reliability and validity among women survivors of IPV. Women with IPV-related brain injuries had higher PTSD symptom severity, attributable to greater physical violence exposure in general. Brain injury screening among survivors appears warranted for women with extensive physical IPV experiences. Interventions addressing PTSD, violence prevention, and brain injury recovery may best serve this population. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Depression, anxiety, and posttraumatic stress in women with and without brain injuries due to intimate partner violence: Psychometric evaluation of measurement approaches and group comparisons.","authors":"Justin E Karr, Agnes E White, T K Logan","doi":"10.1037/rep0000570","DOIUrl":"10.1037/rep0000570","url":null,"abstract":"<p><strong>Purpose/objective: </strong>The current study examined the psychometric properties of common mental health questionnaires among women survivors of intimate partner violence (IPV) with and without brain injuries due to IPV and evaluated whether women with and without IPV-related brain injuries differed in depression, anxiety, and posttraumatic stress disorder (PTSD) symptom severity.</p><p><strong>Research method/design: </strong>Women survivors of IPV with and without IPV-related brain injuries were recruited online through Prolific (<i>N</i> = 205, <i>M</i> = 39.8 ± 11.9 years old, 83.9% non-Hispanic White, 42.4% college-educated). They completed the eight-item Patient Health Questionnaire (PHQ-8), seven-item Generalized Anxiety Disorder scale (GAD-7), and PTSD Checklist for the <i>Diagnostic and Statistical Manual of Mental Disorders</i> (fifth edition) (PCL-5). Model fit and internal consistency were estimated for each scale. Groups were compared on mental health symptom severity, with and without controlling for age, education, and IPV severity.</p><p><strong>Results: </strong>Both one-factor and multifactor models showed excellent fit for all scales. PHQ-8 (ω = .91), GAD-7 (ω = .94), and PCL-5 total scores (ω = .95) had strong reliability, and all subscale scores had acceptable-to-strong reliability (ω range = .79-.94). Women with IPV-related brain injuries reported greater physical IPV severity, higher rates of depression, and higher somatic anxiety and PTSD symptom severity. No group differences in mental health symptoms were significant after controlling for IPV severity.</p><p><strong>Conclusions/implications: </strong>The PHQ-8, GAD-7, and PCL-5 showed evidence for reliability and validity among women survivors of IPV. Women with IPV-related brain injuries had higher PTSD symptom severity, attributable to greater physical violence exposure in general. Brain injury screening among survivors appears warranted for women with extensive physical IPV experiences. Interventions addressing PTSD, violence prevention, and brain injury recovery may best serve this population. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"170-181"},"PeriodicalIF":1.9,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12004542/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142019122","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Objective: Medical aid in dying (MAID) has long been a contentious issue in both professional ethics and within the disability community. Some view it as an affirmation of self-determination and autonomy, while others view it as a codification of ableism, potentially to the point of eugenics. With Canada's recent expansion of MAID eligibility to people with nonterminal chronic illnesses and disabilities, discussions about the ethics of MAID legislation have been renewed, particularly among people with disabilities.
Method: This commentary reviews the common arguments for and against MAID, with a focus on the views, concerns, and opinions within the disability community. New concerns from within the disability community relating to Canada's expansion of MAID to people with nonterminal disabilities are also discussed. Finally, the relation of these concerns to the foundational principles of rehabilitation psychology is discussed.
Results: The disability community has historically had a divided view on MAID, with some viewing it as an enactment of ableism and others viewing it as an enactment of self-determination. Expansion of MAID eligibility to individuals with nonterminal illness and disabilities also raises concerns about governments prioritizing MAID over community support for people with disabilities.
Conclusion/implications: MAID, especially as applied to individuals with nonterminal illness, is an ethically complex issue in the disability community that addresses many of the foundational principles of rehabilitation psychology. Thus, the decision of advocating for and against MAID in people with nonterminal disabilities is a complicated decision for rehabilitation psychologists. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的:临终医疗救助(MAID)长期以来一直是职业道德和残疾人社区中一个有争议的问题。一些人认为这是对自决和自治的肯定,而另一些人则认为这是对残疾歧视的编纂,可能达到优生学的程度。随着加拿大最近将MAID的资格扩大到患有非晚期慢性疾病和残疾的人,关于MAID立法的道德问题的讨论已经重新开始,特别是在残疾人中。方法:本文回顾了支持和反对MAID的常见论点,重点关注残疾人社区的观点、关注点和意见。关于加拿大将MAID扩大到非终末期残疾人士的残疾社区内的新问题也进行了讨论。最后,讨论了这些问题与康复心理学基本原则的关系。结果:残障界对MAID的看法历来存在分歧,一些人认为它是残疾歧视的颁布,另一些人认为它是自决的颁布。将MAID的资格扩大到患有非绝症和残疾的个人,也引起了人们对政府优先考虑MAID而不是社区对残疾人的支持的担忧。结论/启示:MAID,尤其是应用于非绝症患者时,是残疾人社区中一个复杂的伦理问题,涉及许多康复心理学的基本原则。因此,对于康复心理学家来说,支持和反对非晚期残疾患者的MAID是一个复杂的决定。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Advocacy considerations regarding medical aid in dying for people with nonterminal chronic illnesses and disabilities.","authors":"Emily M Lund","doi":"10.1037/rep0000506","DOIUrl":"10.1037/rep0000506","url":null,"abstract":"<p><strong>Objective: </strong>Medical aid in dying (MAID) has long been a contentious issue in both professional ethics and within the disability community. Some view it as an affirmation of self-determination and autonomy, while others view it as a codification of ableism, potentially to the point of eugenics. With Canada's recent expansion of MAID eligibility to people with nonterminal chronic illnesses and disabilities, discussions about the ethics of MAID legislation have been renewed, particularly among people with disabilities.</p><p><strong>Method: </strong>This commentary reviews the common arguments for and against MAID, with a focus on the views, concerns, and opinions within the disability community. New concerns from within the disability community relating to Canada's expansion of MAID to people with nonterminal disabilities are also discussed. Finally, the relation of these concerns to the foundational principles of rehabilitation psychology is discussed.</p><p><strong>Results: </strong>The disability community has historically had a divided view on MAID, with some viewing it as an enactment of ableism and others viewing it as an enactment of self-determination. Expansion of MAID eligibility to individuals with nonterminal illness and disabilities also raises concerns about governments prioritizing MAID over community support for people with disabilities.</p><p><strong>Conclusion/implications: </strong>MAID, especially as applied to individuals with nonterminal illness, is an ethically complex issue in the disability community that addresses many of the foundational principles of rehabilitation psychology. Thus, the decision of advocating for and against MAID in people with nonterminal disabilities is a complicated decision for rehabilitation psychologists. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":"70 2","pages":"119-122"},"PeriodicalIF":1.7,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144039294","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-05-01Epub Date: 2024-08-05DOI: 10.1037/rep0000571
L Penny Rosenblum
Purpose/objective: This study examined the impact of the ASPECT (Advocacy, Support, Perspective, Empowerment, Communication, and Training) Patient Engagement Program on its alumni in order to understand how they used the storytelling and advocacy skills they learned, determine the strengths of the program, and identify recommendations for strengthening the program.
Research method/design: In spring 2023, eight focus groups and one interview were conducted with ASPECT Program alumni. Inductive coding was used to identify themes.
Results: Eight themes emerged and included: (a) reasons alumni joined the ASPECT Program, (b) value of combining persons with visual impairments and allies in one cohort, (c) reflections on personal growth, (d) developing and telling one's story, (e) networking with others, (f) advocacy activities, (g) strengths of the ASPECT Program, and (h) recommendations for improving the ASPECT Program.
Conclusions/implications: The ASPECT Program provided alumni the opportunity to better understand their own eye health and/or the eye health of others, learn to impactfully tell their story to diverse stakeholders, develop their advocacy skills, and network with others. The use of a training program that includes those with visual impairments and allies is an effective method for providing high-quality training to a diverse group. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"A qualitative study of the ASPECT Patient Engagement Program designed to teach storytelling and advocacy skills to individuals with visual impairments and allies.","authors":"L Penny Rosenblum","doi":"10.1037/rep0000571","DOIUrl":"10.1037/rep0000571","url":null,"abstract":"<p><strong>Purpose/objective: </strong>This study examined the impact of the ASPECT (Advocacy, Support, Perspective, Empowerment, Communication, and Training) Patient Engagement Program on its alumni in order to understand how they used the storytelling and advocacy skills they learned, determine the strengths of the program, and identify recommendations for strengthening the program.</p><p><strong>Research method/design: </strong>In spring 2023, eight focus groups and one interview were conducted with ASPECT Program alumni. Inductive coding was used to identify themes.</p><p><strong>Results: </strong>Eight themes emerged and included: (a) reasons alumni joined the ASPECT Program, (b) value of combining persons with visual impairments and allies in one cohort, (c) reflections on personal growth, (d) developing and telling one's story, (e) networking with others, (f) advocacy activities, (g) strengths of the ASPECT Program, and (h) recommendations for improving the ASPECT Program.</p><p><strong>Conclusions/implications: </strong>The ASPECT Program provided alumni the opportunity to better understand their own eye health and/or the eye health of others, learn to impactfully tell their story to diverse stakeholders, develop their advocacy skills, and network with others. The use of a training program that includes those with visual impairments and allies is an effective method for providing high-quality training to a diverse group. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"162-169"},"PeriodicalIF":1.9,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141890481","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-05-01Epub Date: 2024-07-25DOI: 10.1037/rep0000563
Catherine Hall
Purpose/objective: Mobility aids are important to disabled people as a functional tool that can enhance their participation in leisure activities and work; however, mobility aids may also have implications for how disabled people are viewed by others. Using theories from social psychology, this study aimed to understand how mobility aids contribute to the perception of mobility aid users.
Research method: A total of 259 participants without disabilities, who were primarily young, Caucasian, female-identifying university students, completed the questionnaires. The primary questionnaires of interest included the Multidimensional Attitudes Scale Toward Persons with Disabilities and the Stereotype Content Model. Every participant completed three conditions of the questionnaires to examine their attitudes and stereotypes associated with three mobility aid conditions: a wheelchair, a cane, and a control condition without a specified mobility aid.
Results: Affective attitudes toward the unspecified mobility aid condition and the manual wheelchair condition were more negative than the cane condition. Perceived warmth was higher for the manual wheelchair condition compared to the unspecified mobility aid condition and perceived competence was higher for the cane and manual wheelchair conditions compared to the unspecified mobility aid condition.
Conclusion: This study explored how young women without disabilities, and potentially nondisabled people more generally, may hold a range of attitudes and stereotypes about the use of mobility aids by disabled people. These findings have implications for the design of effective attitudinal change programs and for rehabilitation professionals who work with individuals as they adopt mobility aids following the onset of disability. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的/目标:对于残疾人来说,助行器是一种重要的功能性工具,可以帮助他们更好地参与休闲活动和工作;然而,助行器也可能会影响他人对残疾人的看法。本研究采用社会心理学理论,旨在了解助行器如何影响他人对助行器使用者的看法:共有 259 名无残疾的参与者填写了调查问卷,他们主要是年轻的高加索女性大学生。主要的调查问卷包括对残疾人的多维态度量表和刻板印象内容模型。每位受试者都填写了三个条件的问卷,以考察他们对三种助行器具的态度和刻板印象:轮椅、拐杖和无特定助行器具的对照条件:结果:对无特定助行器具条件和手动轮椅条件的情感态度比对手杖条件的情感态度更消极。与未指定助行器具条件相比,手动轮椅条件下的温暖感知更高;与未指定助行器具条件相比,手杖和手动轮椅条件下的能力感知更高:本研究探讨了非残疾年轻女性以及更广泛意义上的非残疾人如何对残疾人使用助行器具持有一系列的态度和成见。这些研究结果对于设计有效的态度转变计划和康复专业人员来说都具有重要意义,因为康复专业人员需要在残疾人开始使用助行器时与他们一起工作。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
{"title":"How university students view disabled people: The role of wheelchairs, canes, and unspecified mobility aids.","authors":"Catherine Hall","doi":"10.1037/rep0000563","DOIUrl":"10.1037/rep0000563","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Mobility aids are important to disabled people as a functional tool that can enhance their participation in leisure activities and work; however, mobility aids may also have implications for how disabled people are viewed by others. Using theories from social psychology, this study aimed to understand how mobility aids contribute to the perception of mobility aid users.</p><p><strong>Research method: </strong>A total of 259 participants without disabilities, who were primarily young, Caucasian, female-identifying university students, completed the questionnaires. The primary questionnaires of interest included the Multidimensional Attitudes Scale Toward Persons with Disabilities and the Stereotype Content Model. Every participant completed three conditions of the questionnaires to examine their attitudes and stereotypes associated with three mobility aid conditions: a wheelchair, a cane, and a control condition without a specified mobility aid.</p><p><strong>Results: </strong>Affective attitudes toward the unspecified mobility aid condition and the manual wheelchair condition were more negative than the cane condition. Perceived warmth was higher for the manual wheelchair condition compared to the unspecified mobility aid condition and perceived competence was higher for the cane and manual wheelchair conditions compared to the unspecified mobility aid condition.</p><p><strong>Conclusion: </strong>This study explored how young women without disabilities, and potentially nondisabled people more generally, may hold a range of attitudes and stereotypes about the use of mobility aids by disabled people. These findings have implications for the design of effective attitudinal change programs and for rehabilitation professionals who work with individuals as they adopt mobility aids following the onset of disability. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"144-153"},"PeriodicalIF":1.9,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761735","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Results: Exploratory factor analysis results indicated a two-factor measurement structure (physical health and mental-social health) that accounted for 67.80% of the total variance. All items loaded highly onto their respective factors (ranging from 0.59 to 0.93). The Cronbach's α of the two subscales was .85 and .86, which is high for very brief measures. The two factors were significantly and positively associated with employment, subjective well-being, resilience, core self-evaluations, and social support, and negatively associated with stress and depression in the theoretically expected directions, supporting its construct validity.
Purpose/objective: To examine, among survivors of stroke: (a) the prevalence of and most frequently reported unmet needs; and (b) the sociodemographic and clinical factors associated with higher counts of unmet needs.
Research method/design: A cross-sectional study was undertaken with survivors of stroke recently discharged from eight hospitals in Australia, with institutional board approval. Survivors were mailed one survey for completion after their discharge from hospital. Unmet needs were measured by the Longer-Term Unmet Needs After Stroke (LUNS) tool. The number and percentage of participants who reported unmet needs were calculated. The association of sociodemographic factors, type of stroke, and thrombolysis treatment to total LUNS scores was examined using mixed ordinal logistic regression.
Results: A total of 402 survivors (35% of those approached) between April 2018 to December 2019 returned a completed survey. 83% reported at least one unmet need. The most frequently reported unmet need was needing more information about their stroke (n = 239, 61%). Those who identified as Aboriginal and/or Torres Strait Islander had approximately 5.6-fold higher odds (OR = 5.59, p = .025) of having more longer-term unmet needs compared to those who did not identify as Aboriginal and/or Torres Strait Islander.
Conclusions/implications: Unmet needs are common in recently discharged survivors of stroke. These findings may be used to inform strategies that support recovery. Providing more information may help reduce unmet needs among survivors of stroke. Enhanced hospital discharge planning and enhanced community services for survivors may help better prepare them and their caregivers for the return home. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Unmet supportive care needs among survivors of stroke in Australia: A cross-sectional study.","authors":"Kristy Fakes, Mariko Carey, Amy Waller, Erin Forbes, Jude Czerenkowski, Joshua Dizon, Robert Sanson-Fisher","doi":"10.1037/rep0000568","DOIUrl":"10.1037/rep0000568","url":null,"abstract":"<p><strong>Purpose/objective: </strong>To examine, among survivors of stroke: (a) the prevalence of and most frequently reported unmet needs; and (b) the sociodemographic and clinical factors associated with higher counts of unmet needs.</p><p><strong>Research method/design: </strong>A cross-sectional study was undertaken with survivors of stroke recently discharged from eight hospitals in Australia, with institutional board approval. Survivors were mailed one survey for completion after their discharge from hospital. Unmet needs were measured by the Longer-Term Unmet Needs After Stroke (LUNS) tool. The number and percentage of participants who reported unmet needs were calculated. The association of sociodemographic factors, type of stroke, and thrombolysis treatment to total LUNS scores was examined using mixed ordinal logistic regression.</p><p><strong>Results: </strong>A total of 402 survivors (35% of those approached) between April 2018 to December 2019 returned a completed survey. 83% reported at least one unmet need. The most frequently reported unmet need was needing more information about their stroke (<i>n</i> = 239, 61%). Those who identified as Aboriginal and/or Torres Strait Islander had approximately 5.6-fold higher odds (<i>OR</i> = 5.59, <i>p</i> = .025) of having more longer-term unmet needs compared to those who did not identify as Aboriginal and/or Torres Strait Islander.</p><p><strong>Conclusions/implications: </strong>Unmet needs are common in recently discharged survivors of stroke. These findings may be used to inform strategies that support recovery. Providing more information may help reduce unmet needs among survivors of stroke. Enhanced hospital discharge planning and enhanced community services for survivors may help better prepare them and their caregivers for the return home. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"154-161"},"PeriodicalIF":1.9,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761698","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-05-01Epub Date: 2024-08-05DOI: 10.1037/rep0000564
Yi-Jhen Wu, Chih-Chin Chou, Julie Chronister, Chia-Ling Hsu, Michael Qi Zheng, Wendy A Tobias
Forber-Pratt and colleagues' Disability Identity Development Scale (DIDS) is the only disability identity measure that meets all the criteria for rigorous scale development. Little is known however about item fit for the DIDS.
Purpose/objective: (a) To investigate the construct validity of the DIDS scores at the item and factor level using item response theory (IRT) and confirmatory factor analysis (CFA); (b) to investigate convergent validity of the DIDS scores with related constructs; and (c) to determine the reliability of each DIDS factor.
Research method/design: A convenience sample of 210 undergraduate college students with disabilities enrolled in a west coast 4-year public university participated in this study. Measures included the DIDS, the University Belongingness Questionnaire, and the College Self-Efficacy Inventory. Data were analyzed using the Rasch IRT framework, CFA, Omega reliability, and correlational analyses.
Results: IRT and CFA results revealed the data fit a 36-item, four-factor DIDS structure. Three items in the factor measuring adoption of disability community values items were easier, and four items in the factor measuring contribution to the disability community were difficult as compared with other DIDS items. Omega reliability analyses showed strong reliability for each DIDS factor. Correlation analyses found convergent and discriminant validity evidence for the DIDS with correlations with the University Belongingness Questionnaire and College Self-Efficacy Inventory in the hypothesized direction and magnitude.
Conclusion/implications: Findings provide evidence for Forber-Pratt and colleagues' theoretically and empirically derived DIDS, advancing the research, measurement, and practical application of disability identity development. Results are aligned with Forber-Pratt's psychosocial model of disability identity theoretical framework. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Disability Identity Development Scale: A validation study among college students with disabilities.","authors":"Yi-Jhen Wu, Chih-Chin Chou, Julie Chronister, Chia-Ling Hsu, Michael Qi Zheng, Wendy A Tobias","doi":"10.1037/rep0000564","DOIUrl":"10.1037/rep0000564","url":null,"abstract":"<p><p>Forber-Pratt and colleagues' Disability Identity Development Scale (DIDS) is the only disability identity measure that meets all the criteria for rigorous scale development. Little is known however about item fit for the DIDS.</p><p><strong>Purpose/objective: </strong>(a) To investigate the construct validity of the DIDS scores at the item and factor level using item response theory (IRT) and confirmatory factor analysis (CFA); (b) to investigate convergent validity of the DIDS scores with related constructs; and (c) to determine the reliability of each DIDS factor.</p><p><strong>Research method/design: </strong>A convenience sample of 210 undergraduate college students with disabilities enrolled in a west coast 4-year public university participated in this study. Measures included the DIDS, the University Belongingness Questionnaire, and the College Self-Efficacy Inventory. Data were analyzed using the Rasch IRT framework, CFA, Omega reliability, and correlational analyses.</p><p><strong>Results: </strong>IRT and CFA results revealed the data fit a 36-item, four-factor DIDS structure. Three items in the factor measuring adoption of disability community values items were easier, and four items in the factor measuring contribution to the disability community were difficult as compared with other DIDS items. Omega reliability analyses showed strong reliability for each DIDS factor. Correlation analyses found convergent and discriminant validity evidence for the DIDS with correlations with the University Belongingness Questionnaire and College Self-Efficacy Inventory in the hypothesized direction and magnitude.</p><p><strong>Conclusion/implications: </strong>Findings provide evidence for Forber-Pratt and colleagues' theoretically and empirically derived DIDS, advancing the research, measurement, and practical application of disability identity development. Results are aligned with Forber-Pratt's psychosocial model of disability identity theoretical framework. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"131-143"},"PeriodicalIF":1.7,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141890482","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Purpose/objective: Many qualitative studies have focused on sex and spinal cord injury (SCI), often taking a deficit lens to interpretation and reporting. However, it is important to understand what can facilitate positive sexuality for people with SCI; therefore this study examines facilitators of sexuality for people with SCI.
Research method/design: A systematic review and metasynthesis of 38 qualitative papers (published before February 2024) on sexuality for people with SCI was conducted following Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Thematic synthesis was conducted in three stages: line-by-line coding; the identification of common descriptive themes across papers; and the generation of novel analytical themes.
Results: Thirty-eight eligible papers were analyzed. Thematic synthesis resulted in four common descriptive themes that were linked to positive sexuality: (a) being sexually active; (b) trying new and other ways of sexual expression; (c) having a positive relationship with a partner; and (d) peer support. These descriptive themes were interrelated and incorporated in two in-depth analytical themes: (a) redefining sexuality and (b) establishing a sexual identity.
Conclusions/implications: This study highlights facilitators to sexuality post-SCI. In order to maintain a sex-positive approach to sexuality rehabilitation for people with SCI, sexuality facilitators should remain at the forefront of sexual rehabilitation. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的/目标:许多定性研究都关注性与脊髓损伤(SCI)问题,但在解释和报告时往往采用缺陷视角。然而,了解什么能够促进脊髓损伤患者积极的性行为是非常重要的;因此,本研究探讨了脊髓损伤患者性行为的促进因素:研究方法/设计:根据《系统综述和元分析首选报告项目》(Preferred Reporting Items for Systematic Reviews and Meta-Analyses)指南,对 38 篇有关 SCI 患者性行为的定性论文(2024 年 2 月之前发表)进行了系统综述和元综合。专题综述分三个阶段进行:逐行编码;确定各篇论文的共同描述性主题;生成新的分析性主题:对 38 篇符合条件的论文进行了分析。专题综合得出了与积极性行为相关的四个共同描述性主题:(a) 性生活活跃;(b) 尝试新的和其他的性表达方式;(c) 与伴侣保持积极的关系;(d) 同伴支持。这些描述性主题相互关联,并被纳入两个深入分析主题:(a) 重新定义性行为;(b) 确立性身份:本研究突出强调了促进后性健康的因素。为了保持对 SCI 患者性康复的积极态度,性促进者应始终站在性康复的最前沿。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
{"title":"Sex-positive sexuality post-spinal cord injury: A systematic review and qualitative metasynthesis.","authors":"Blaze Ireland, Roxanna Nasseri Pebdani, Marita Heck, Asmita Mudholkar, Michèle Verdonck","doi":"10.1037/rep0000573","DOIUrl":"10.1037/rep0000573","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Many qualitative studies have focused on sex and spinal cord injury (SCI), often taking a deficit lens to interpretation and reporting. However, it is important to understand what can facilitate positive sexuality for people with SCI; therefore this study examines facilitators of sexuality for people with SCI.</p><p><strong>Research method/design: </strong>A systematic review and metasynthesis of 38 qualitative papers (published before February 2024) on sexuality for people with SCI was conducted following Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Thematic synthesis was conducted in three stages: line-by-line coding; the identification of common descriptive themes across papers; and the generation of novel analytical themes.</p><p><strong>Results: </strong>Thirty-eight eligible papers were analyzed. Thematic synthesis resulted in four common descriptive themes that were linked to positive sexuality: (a) being sexually active; (b) trying new and other ways of sexual expression; (c) having a positive relationship with a partner; and (d) peer support. These descriptive themes were interrelated and incorporated in two in-depth analytical themes: (a) redefining sexuality and (b) establishing a sexual identity.</p><p><strong>Conclusions/implications: </strong>This study highlights facilitators to sexuality post-SCI. In order to maintain a sex-positive approach to sexuality rehabilitation for people with SCI, sexuality facilitators should remain at the forefront of sexual rehabilitation. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"182-193"},"PeriodicalIF":1.7,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761697","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Gitendra Uswatte, Edward Taub, Karlene Ball, Brandon S Mitchell, Jason A Blake, Staci McKay, Fedora Biney, Olesya Iosipchuk, Piper Hempfling, Elise Harris, Anne Dickerson, Kristine Lokken, Amy J Knight, Victor W Mark, Shruti Agnihotri, Gary Cutter
Purpose: Long COVID brain fog is often disabling. Yet, no empirically supported treatments exist. This study's objectives were to evaluate the feasibility and efficacy, provisionally, of a new rehabilitation approach, Constraint-Induced Cognitive Therapy (CICT), for post-COVID-19 cognitive sequelae.
Design: Sixteen community residents ≥3 months post-COVID-19 infection with mild cognitive impairment and dysfunction in instrumental activities of daily living (IADL) were enrolled. Participants were randomized to Immediate-CICT or treatment as usual (TAU) with crossover to CICT. CICT combined behavior change techniques modified from Constraint-Induced Movement Therapy with Speed of Processing Training, a computerized cognitive training program. CICT was deemed feasible if (a) ≥ 80% of participants were adherent, (b) the same found treatment highly satisfying and at most moderately difficult, and (c) < 2 study-related, serious adverse events occurred. The primary outcome was IADL performance in daily life (Canadian Occupational Performance Measure). Employment status and brain fog (Mental Clutter Scale) were also assessed.
Results: Fourteen completed Immediate-CICT (n = 7) or TAU (n = 7); two withdrew from TAU before their second testing session. Completers were, M (SD): 10 (7) months post-COVID; 51 (13) years old; 10 females, four males; one African American, and 13 European American. All the feasibility benchmarks were met. Immediate-CICT, relative to TAU, produced very large improvements in IADL performance (M = 3.7 points, p < .001, d = 2.6) and brain fog (M = -4 points, p < .001, d = -2.9). Four of five nonretired Immediate-CICT participants returned to work posttreatment; no TAU participants did, p = .048.
Conclusion: Those who received CICT adhered to the protocol and were highly satisfied with their outcomes. The findings warrant a large-scale randomized controlled trial with an active-comparison group. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Long COVID brain fog treatment: An early-phase randomized controlled trial of constraint-induced cognitive therapy signals go.","authors":"Gitendra Uswatte, Edward Taub, Karlene Ball, Brandon S Mitchell, Jason A Blake, Staci McKay, Fedora Biney, Olesya Iosipchuk, Piper Hempfling, Elise Harris, Anne Dickerson, Kristine Lokken, Amy J Knight, Victor W Mark, Shruti Agnihotri, Gary Cutter","doi":"10.1037/rep0000626","DOIUrl":"10.1037/rep0000626","url":null,"abstract":"<p><strong>Purpose: </strong>Long COVID brain fog is often disabling. Yet, no empirically supported treatments exist. This study's objectives were to evaluate the feasibility and efficacy, provisionally, of a new rehabilitation approach, Constraint-Induced Cognitive Therapy (CICT), for post-COVID-19 cognitive sequelae.</p><p><strong>Design: </strong>Sixteen community residents ≥3 months post-COVID-19 infection with mild cognitive impairment and dysfunction in instrumental activities of daily living (IADL) were enrolled. Participants were randomized to Immediate-CICT or treatment as usual (TAU) with crossover to CICT. CICT combined behavior change techniques modified from Constraint-Induced Movement Therapy with Speed of Processing Training, a computerized cognitive training program. CICT was deemed feasible if (a) ≥ 80% of participants were adherent, (b) the same found treatment highly satisfying and at most moderately difficult, and (c) < 2 study-related, serious adverse events occurred. The primary outcome was IADL performance in daily life (Canadian Occupational Performance Measure). Employment status and brain fog (Mental Clutter Scale) were also assessed.</p><p><strong>Results: </strong>Fourteen completed Immediate-CICT (<i>n</i> = 7) or TAU (<i>n</i> = 7); two withdrew from TAU before their second testing session. Completers were, M (SD): 10 (7) months post-COVID; 51 (13) years old; 10 females, four males; one African American, and 13 European American. All the feasibility benchmarks were met. Immediate-CICT, relative to TAU, produced very large improvements in IADL performance (<i>M</i> = 3.7 points, <i>p</i> < .001, <i>d</i> = 2.6) and brain fog (<i>M</i> = -4 points, <i>p</i> < .001, <i>d</i> = -2.9). Four of five nonretired Immediate-CICT participants returned to work posttreatment; no TAU participants did, <i>p</i> = .048.</p><p><strong>Conclusion: </strong>Those who received CICT adhered to the protocol and were highly satisfied with their outcomes. The findings warrant a large-scale randomized controlled trial with an active-comparison group. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12323405/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144041561","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}