Purpose/objective: To examine, among survivors of stroke: (a) the prevalence of and most frequently reported unmet needs; and (b) the sociodemographic and clinical factors associated with higher counts of unmet needs.
Research method/design: A cross-sectional study was undertaken with survivors of stroke recently discharged from eight hospitals in Australia, with institutional board approval. Survivors were mailed one survey for completion after their discharge from hospital. Unmet needs were measured by the Longer-Term Unmet Needs After Stroke (LUNS) tool. The number and percentage of participants who reported unmet needs were calculated. The association of sociodemographic factors, type of stroke, and thrombolysis treatment to total LUNS scores was examined using mixed ordinal logistic regression.
Results: A total of 402 survivors (35% of those approached) between April 2018 to December 2019 returned a completed survey. 83% reported at least one unmet need. The most frequently reported unmet need was needing more information about their stroke (n = 239, 61%). Those who identified as Aboriginal and/or Torres Strait Islander had approximately 5.6-fold higher odds (OR = 5.59, p = .025) of having more longer-term unmet needs compared to those who did not identify as Aboriginal and/or Torres Strait Islander.
Conclusions/implications: Unmet needs are common in recently discharged survivors of stroke. These findings may be used to inform strategies that support recovery. Providing more information may help reduce unmet needs among survivors of stroke. Enhanced hospital discharge planning and enhanced community services for survivors may help better prepare them and their caregivers for the return home. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Unmet supportive care needs among survivors of stroke in Australia: A cross-sectional study.","authors":"Kristy Fakes, Mariko Carey, Amy Waller, Erin Forbes, Jude Czerenkowski, Joshua Dizon, Robert Sanson-Fisher","doi":"10.1037/rep0000568","DOIUrl":"https://doi.org/10.1037/rep0000568","url":null,"abstract":"<p><strong>Purpose/objective: </strong>To examine, among survivors of stroke: (a) the prevalence of and most frequently reported unmet needs; and (b) the sociodemographic and clinical factors associated with higher counts of unmet needs.</p><p><strong>Research method/design: </strong>A cross-sectional study was undertaken with survivors of stroke recently discharged from eight hospitals in Australia, with institutional board approval. Survivors were mailed one survey for completion after their discharge from hospital. Unmet needs were measured by the Longer-Term Unmet Needs After Stroke (LUNS) tool. The number and percentage of participants who reported unmet needs were calculated. The association of sociodemographic factors, type of stroke, and thrombolysis treatment to total LUNS scores was examined using mixed ordinal logistic regression.</p><p><strong>Results: </strong>A total of 402 survivors (35% of those approached) between April 2018 to December 2019 returned a completed survey. 83% reported at least one unmet need. The most frequently reported unmet need was needing more information about their stroke (<i>n</i> = 239, 61%). Those who identified as Aboriginal and/or Torres Strait Islander had approximately 5.6-fold higher odds (<i>OR</i> = 5.59, <i>p</i> = .025) of having more longer-term unmet needs compared to those who did not identify as Aboriginal and/or Torres Strait Islander.</p><p><strong>Conclusions/implications: </strong>Unmet needs are common in recently discharged survivors of stroke. These findings may be used to inform strategies that support recovery. Providing more information may help reduce unmet needs among survivors of stroke. Enhanced hospital discharge planning and enhanced community services for survivors may help better prepare them and their caregivers for the return home. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2024-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761698","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Purpose/objective: Many qualitative studies have focused on sex and spinal cord injury (SCI), often taking a deficit lens to interpretation and reporting. However, it is important to understand what can facilitate positive sexuality for people with SCI; therefore this study examines facilitators of sexuality for people with SCI.
Research method/design: A systematic review and metasynthesis of 38 qualitative papers (published before February 2024) on sexuality for people with SCI was conducted following Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Thematic synthesis was conducted in three stages: line-by-line coding; the identification of common descriptive themes across papers; and the generation of novel analytical themes.
Results: Thirty-eight eligible papers were analyzed. Thematic synthesis resulted in four common descriptive themes that were linked to positive sexuality: (a) being sexually active; (b) trying new and other ways of sexual expression; (c) having a positive relationship with a partner; and (d) peer support. These descriptive themes were interrelated and incorporated in two in-depth analytical themes: (a) redefining sexuality and (b) establishing a sexual identity.
Conclusions/implications: This study highlights facilitators to sexuality post-SCI. In order to maintain a sex-positive approach to sexuality rehabilitation for people with SCI, sexuality facilitators should remain at the forefront of sexual rehabilitation. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
目的/目标:许多定性研究都关注性与脊髓损伤(SCI)问题,但在解释和报告时往往采用缺陷视角。然而,了解什么能够促进脊髓损伤患者积极的性行为是非常重要的;因此,本研究探讨了脊髓损伤患者性行为的促进因素:研究方法/设计:根据《系统综述和元分析首选报告项目》(Preferred Reporting Items for Systematic Reviews and Meta-Analyses)指南,对 38 篇有关 SCI 患者性行为的定性论文(2024 年 2 月之前发表)进行了系统综述和元综合。专题综述分三个阶段进行:逐行编码;确定各篇论文的共同描述性主题;生成新的分析性主题:对 38 篇符合条件的论文进行了分析。专题综合得出了与积极性行为相关的四个共同描述性主题:(a) 性生活活跃;(b) 尝试新的和其他的性表达方式;(c) 与伴侣保持积极的关系;(d) 同伴支持。这些描述性主题相互关联,并被纳入两个深入分析主题:(a) 重新定义性行为;(b) 确立性身份:本研究突出强调了促进后性健康的因素。为了保持对 SCI 患者性康复的积极态度,性促进者应始终站在性康复的最前沿。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
{"title":"Sex-positive sexuality post-spinal cord injury: A systematic review and qualitative metasynthesis.","authors":"Blaze Ireland, Roxanna Nasseri Pebdani, Marita Heck, Asmita Mudholkar, Michèle Verdonck","doi":"10.1037/rep0000573","DOIUrl":"https://doi.org/10.1037/rep0000573","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Many qualitative studies have focused on sex and spinal cord injury (SCI), often taking a deficit lens to interpretation and reporting. However, it is important to understand what can facilitate positive sexuality for people with SCI; therefore this study examines facilitators of sexuality for people with SCI.</p><p><strong>Research method/design: </strong>A systematic review and metasynthesis of 38 qualitative papers (published before February 2024) on sexuality for people with SCI was conducted following Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Thematic synthesis was conducted in three stages: line-by-line coding; the identification of common descriptive themes across papers; and the generation of novel analytical themes.</p><p><strong>Results: </strong>Thirty-eight eligible papers were analyzed. Thematic synthesis resulted in four common descriptive themes that were linked to positive sexuality: (a) being sexually active; (b) trying new and other ways of sexual expression; (c) having a positive relationship with a partner; and (d) peer support. These descriptive themes were interrelated and incorporated in two in-depth analytical themes: (a) redefining sexuality and (b) establishing a sexual identity.</p><p><strong>Conclusions/implications: </strong>This study highlights facilitators to sexuality post-SCI. In order to maintain a sex-positive approach to sexuality rehabilitation for people with SCI, sexuality facilitators should remain at the forefront of sexual rehabilitation. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2024-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761697","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-05-01Epub Date: 2023-11-13DOI: 10.1037/rep0000525
Wafaa Sowan, Dana Yagil, Efrat Mishor, Miri Cohen
Objectives: This study examined (a) characteristics of maintenance of business activity among self-employed individuals with chronic health conditions (CHCs) and (b) the relationships of coping strategies with maintenance of business activity.
Method: This cross-sectional study involved 294 self-employed participants aged 26-77 who were at most 2 years since their diagnosis and had one of the following CHCs: cancer (23.4%), cardiac disease (21.7%), respiratory disease (36.2%), or inflammatory bowel disease (18.6%). Participants answered questionnaires on workability limitations, business maintenance, sense of mastery, and coping strategies.
Results: Participants reported a substantial decrease in business profitability since their CHC diagnosis but high job satisfaction. The structural equation model had good fit indicators and revealed that the association between workability limitations and lower maintenance of business profitability was partially mediated by lower use of disengaged coping strategies. The association between sense of mastery and job satisfaction was partially mediated by engaged and disengaged coping strategies.
Conclusions: Self-employed individuals with CHCs are at risk of declining of business profitability; however, degree of workability limitations alone did not explain business profitability maintenance or job satisfaction, but it was related to coping resources and strategies. Interventions that strengthen personal resources and promote engaged coping strategies should be provided with direct support to business maintenance. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"On their own: Business profitability and job satisfaction among self-employed with chronic health conditions.","authors":"Wafaa Sowan, Dana Yagil, Efrat Mishor, Miri Cohen","doi":"10.1037/rep0000525","DOIUrl":"10.1037/rep0000525","url":null,"abstract":"<p><strong>Objectives: </strong>This study examined (a) characteristics of maintenance of business activity among self-employed individuals with chronic health conditions (CHCs) and (b) the relationships of coping strategies with maintenance of business activity.</p><p><strong>Method: </strong>This cross-sectional study involved 294 self-employed participants aged 26-77 who were at most 2 years since their diagnosis and had one of the following CHCs: cancer (23.4%), cardiac disease (21.7%), respiratory disease (36.2%), or inflammatory bowel disease (18.6%). Participants answered questionnaires on workability limitations, business maintenance, sense of mastery, and coping strategies.</p><p><strong>Results: </strong>Participants reported a substantial decrease in business profitability since their CHC diagnosis but high job satisfaction. The structural equation model had good fit indicators and revealed that the association between workability limitations and lower maintenance of business profitability was partially mediated by lower use of disengaged coping strategies. The association between sense of mastery and job satisfaction was partially mediated by engaged and disengaged coping strategies.</p><p><strong>Conclusions: </strong>Self-employed individuals with CHCs are at risk of declining of business profitability; however, degree of workability limitations alone did not explain business profitability maintenance or job satisfaction, but it was related to coping resources and strategies. Interventions that strengthen personal resources and promote engaged coping strategies should be provided with direct support to business maintenance. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"110-117"},"PeriodicalIF":2.7,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"92156973","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-05-01Epub Date: 2024-03-21DOI: 10.1037/rep0000533
Chao Li, Susan Newman, Jillian M R Clark, James S Krause
Objective: To develop longitudinal structural models of social isolation and probable major depression (PMD) over a 5-year interval among participants with spinal cord injury (SCI).
Design: Longitudinal structural equation modeling of self-report assessments collected during two follow-ups (2013 as Time 1, 2018 as Time 2) of a 45-year multicohort longitudinal study. Participants (n = 557) were identified from a specialty hospital in the Southeastern United States and two Midwestern hospitals and were initially enrolled in 1973-1974, 1984-1985, 1993-1994, or 2003-2004. PMD symptomology was measured by the Patient Health Questionnaire-9 (PHQ-9) and was defined by PHQ-9 scores ≥ 10. Social isolation was represented by two latent dimensions: social disconnectedness, objective component measured by activities, and perceived isolation, based on subjective appraisals. Structural equation modeling assessed the relationship among social disconnectedness and perceived isolation measured at Time 1 and PMD measured at Times 1 and 2.
Results: Both social disconnectedness and perceived isolation, measured at Time 1, were significantly related with PMD measured at Time 1 (rSD_Time 1 and PMD_Time 1 = .49, p < .001; rPI_Time 1 and PMD_Time 1 = .66, p < .001) and Time 2 (rSD_Time 1 and PMD_Time 2 = .37, p < .001; rPI_Time 1 and PMD_Time 2 = .54, p < .001), indicating participants with greater perceived isolation and social disconnectedness were more likely to have greater likelihood of PMD, both cross-sectionally and longitudinally. Perceived isolation was more strongly related to PMD compared with social disconnectedness.
Conclusion: Social isolation was associated with both current and future depression symptoms. People with more years post-SCI were less likely to have PMD. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"A 5-year longitudinal structural equation model of social isolation and probable major depression among participants with spinal cord injury.","authors":"Chao Li, Susan Newman, Jillian M R Clark, James S Krause","doi":"10.1037/rep0000533","DOIUrl":"10.1037/rep0000533","url":null,"abstract":"<p><strong>Objective: </strong>To develop longitudinal structural models of social isolation and probable major depression (PMD) over a 5-year interval among participants with spinal cord injury (SCI).</p><p><strong>Design: </strong>Longitudinal structural equation modeling of self-report assessments collected during two follow-ups (2013 as Time 1, 2018 as Time 2) of a 45-year multicohort longitudinal study. Participants (<i>n</i> = 557) were identified from a specialty hospital in the Southeastern United States and two Midwestern hospitals and were initially enrolled in 1973-1974, 1984-1985, 1993-1994, or 2003-2004. PMD symptomology was measured by the Patient Health Questionnaire-9 (PHQ-9) and was defined by PHQ-9 scores ≥ 10. Social isolation was represented by two latent dimensions: social disconnectedness, objective component measured by activities, and perceived isolation, based on subjective appraisals. Structural equation modeling assessed the relationship among social disconnectedness and perceived isolation measured at Time 1 and PMD measured at Times 1 and 2.</p><p><strong>Results: </strong>Both social disconnectedness and perceived isolation, measured at Time 1, were significantly related with PMD measured at Time 1 (<i>r</i><sub>SD_Time 1 and PMD_Time 1</sub> = .49, <i>p</i> < .001; <i>r</i><sub>PI_Time 1 and PMD_Time 1</sub> = .66, <i>p</i> < .001) and Time 2 (<i>r</i><sub>SD_Time 1 and PMD_Time 2</sub> = .37, <i>p</i> < .001; <i>r</i><sub>PI_Time 1 and PMD_Time 2</sub> = .54, <i>p</i> < .001), indicating participants with greater perceived isolation and social disconnectedness were more likely to have greater likelihood of PMD, both cross-sectionally and longitudinally. Perceived isolation was more strongly related to PMD compared with social disconnectedness.</p><p><strong>Conclusion: </strong>Social isolation was associated with both current and future depression symptoms. People with more years post-SCI were less likely to have PMD. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"145-152"},"PeriodicalIF":2.7,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140177185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-05-01Epub Date: 2023-12-21DOI: 10.1037/rep0000522
Tracey A Brickell, Brian J Ivins, Megan M Wright, Louis M French, Rael T Lange
Purpose/objective: To examine longitudinal change in health-related quality of life (HRQOL) in caregivers of service members/veterans with traumatic brain injury and factors associated with clinically elevated symptoms.
Research method/design: Caregivers (N = 220) completed nine HRQOL outcome measures and 10 risk factor measures at a baseline evaluation and follow-up evaluation 3 years later. Caregiver's responses on the nine HRQOL outcome measures were classified into four clinical change categories based on the presence/absence of clinically elevated T-scores (≥ 60 T) at baseline and follow-up: (a) Persistent (baseline ≥ 60T + follow-up ≥ 60 T), (b) Developed (baseline < 60 T + follow-up ≥ 60 T), (c) Improved (baseline ≥ 60 T + follow-up < 60 T), and (d) Asymptomatic (baseline < 60 T + follow-up < 60 T). A clinical change composite score was calculated by summing the number of Persistent or Developed HRQOL outcome measures and used to create three clinical change groups: (a) No Symptoms (n = 69, zero measures), (b) Some Symptoms (n = 88, one to three measures), and (c) Numerous Symptoms (n = 63, four to nine measures).
Results: Of the nine HRQOL outcome measures, Bodily Pain, Perceived Stress, Sleep-Related Impairment, and Fatigue were most frequently classified as Persistent or Developed from baseline to follow-up in the entire sample. A linear relationship was found between the vast majority of risk factors across the three clinical change groups at baseline and follow-up (Numerous > Some > None). The risk factors were correlated with the number of elevated HRQOL symptoms at baseline and follow-up. Most Asymptomatic or Persistent caregivers did not have meaningful change (≥ 1 SD) in HRQOL scores. A sizable proportion of Developed or Improved caregivers had either meaningful or no change in HRQOL scores.
Conclusions/implications: There is a need for ongoing clinical services for military caregivers. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Longitudinal health outcomes in caregivers of military members with traumatic brain injury.","authors":"Tracey A Brickell, Brian J Ivins, Megan M Wright, Louis M French, Rael T Lange","doi":"10.1037/rep0000522","DOIUrl":"10.1037/rep0000522","url":null,"abstract":"<p><strong>Purpose/objective: </strong>To examine longitudinal change in health-related quality of life (HRQOL) in caregivers of service members/veterans with traumatic brain injury and factors associated with clinically elevated symptoms.</p><p><strong>Research method/design: </strong>Caregivers (<i>N</i> = 220) completed nine HRQOL outcome measures and 10 risk factor measures at a baseline evaluation and follow-up evaluation 3 years later. Caregiver's responses on the nine HRQOL outcome measures were classified into four clinical change categories based on the presence/absence of clinically elevated <i>T</i>-scores (≥ 60 T) at baseline and follow-up: (a) Persistent (baseline ≥ 60T + follow-up ≥ 60 T), (b) Developed (baseline < 60 T + follow-up ≥ 60 T), (c) Improved (baseline ≥ 60 T + follow-up < 60 T), and (d) Asymptomatic (baseline < 60 T + follow-up < 60 T). A clinical change composite score was calculated by summing the number of Persistent or Developed HRQOL outcome measures and used to create three clinical change groups: (a) No Symptoms (<i>n</i> = 69, zero measures), (b) Some Symptoms (<i>n</i> = 88, one to three measures), and (c) Numerous Symptoms (<i>n</i> = 63, four to nine measures).</p><p><strong>Results: </strong>Of the nine HRQOL outcome measures, Bodily Pain, Perceived Stress, Sleep-Related Impairment, and Fatigue were most frequently classified as Persistent or Developed from baseline to follow-up in the entire sample. A linear relationship was found between the vast majority of risk factors across the three clinical change groups at baseline and follow-up (Numerous > Some > None). The risk factors were correlated with the number of elevated HRQOL symptoms at baseline and follow-up. Most Asymptomatic or Persistent caregivers did not have meaningful change (≥ 1 SD) in HRQOL scores. A sizable proportion of Developed or Improved caregivers had either meaningful or no change in HRQOL scores.</p><p><strong>Conclusions/implications: </strong>There is a need for ongoing clinical services for military caregivers. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"135-144"},"PeriodicalIF":2.7,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138832333","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-05-01Epub Date: 2023-12-21DOI: 10.1037/rep0000532
Elizabeth J Richardson, Emily C McKinley, J Scott Richards
Purpose/objective: Higher levels of resilience is associated with improved pain outcomes in chronic pain and other neurological populations, but the role of resilience in pain following spinal cord injury (SCI) remains unclear. This study examined resilience as a moderator in the relationship between perceived stress and both pain intensity and interference during acute rehabilitation for SCI.
Research method/design: Individuals admitted to inpatient rehabilitation acutely following SCI (N = 57) completed measures of perceived stress, resilience, pain intensity, and interference. The Johnson-Neyman procedure was used to examine significance of conditional relationships that emerged.
Results: Resilience was found to moderate the relationship between perceived stress and pain interference, but not pain intensity, during inpatient rehabilitation.
Conclusions/implications: When resilience is low, perceived stress has a more profound and adverse impact on pain interference during inpatient rehabilitation, suggesting therapeutic strategies that build components of resilience are needed during acute rehabilitation following SCI. The relationship between stress, resilience, and pain may differ postinpatient rehabilitation for SCI and warrants further investigation. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Perceived stress and pain interference in acute rehabilitation following spinal cord injury: Resilience as a moderator.","authors":"Elizabeth J Richardson, Emily C McKinley, J Scott Richards","doi":"10.1037/rep0000532","DOIUrl":"10.1037/rep0000532","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Higher levels of resilience is associated with improved pain outcomes in chronic pain and other neurological populations, but the role of resilience in pain following spinal cord injury (SCI) remains unclear. This study examined resilience as a moderator in the relationship between perceived stress and both pain intensity and interference during acute rehabilitation for SCI.</p><p><strong>Research method/design: </strong>Individuals admitted to inpatient rehabilitation acutely following SCI (<i>N</i> = 57) completed measures of perceived stress, resilience, pain intensity, and interference. The Johnson-Neyman procedure was used to examine significance of conditional relationships that emerged.</p><p><strong>Results: </strong>Resilience was found to moderate the relationship between perceived stress and pain interference, but not pain intensity, during inpatient rehabilitation.</p><p><strong>Conclusions/implications: </strong>When resilience is low, perceived stress has a more profound and adverse impact on pain interference during inpatient rehabilitation, suggesting therapeutic strategies that build components of resilience are needed during acute rehabilitation following SCI. The relationship between stress, resilience, and pain may differ postinpatient rehabilitation for SCI and warrants further investigation. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"85-93"},"PeriodicalIF":2.7,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11058032/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138832334","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-05-01Epub Date: 2024-03-21DOI: 10.1037/rep0000552
Rosalie Ariane Eva Altman, Maree Reser, Eric Josiah Tan, Susan Lee Rossell
Objectives: Neurocognitive deficits in schizophrenia have a major impact on functioning; however, they remain poorly targeted by available treatment offerings. Cognitive remediation (CR) is effective in improving neurocognition and functioning. Despite clinical guidelines for schizophrenia recommending CR, it is still not readily available in clinical services and sizeable attrition rates are reported in clinical trials.
Method: To elucidate the barriers and facilitators of CR access and engagement, we conducted a mixed methods qualitative-dominant study with 12 clinicians in Australia, in 2021, with 1 hr interviews and additional rating scales completed.
Results: Thematic analysis highlighted four themes (cognitive symptoms, CR intervention, motivation and engagement in CR, and CR implementation), and 14 subthemes. Clinicians emphasized the broad impact of cognitive deficits and outlined pros and cons of different CR approaches. Several factors were suggested as impacting engagement, including motivation assessments/techniques, neurocognitive insight, illness, and demographic factors. Lack of routine implementation in Australia was unanimously espoused and partly explained by a need for cost-effectiveness analyses, remote and flexible delivery, and increasing service resource provision and staff training in CR.
Conclusions: This study offers key insights into CR access, while recommending methods for optimizing CR implementation and dissemination to improve recovery outcomes of people diagnosed with schizophrenia. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Cognitive remediation for schizophrenia: Clinician perspectives on implementation barriers and facilitators.","authors":"Rosalie Ariane Eva Altman, Maree Reser, Eric Josiah Tan, Susan Lee Rossell","doi":"10.1037/rep0000552","DOIUrl":"10.1037/rep0000552","url":null,"abstract":"<p><strong>Objectives: </strong>Neurocognitive deficits in schizophrenia have a major impact on functioning; however, they remain poorly targeted by available treatment offerings. Cognitive remediation (CR) is effective in improving neurocognition and functioning. Despite clinical guidelines for schizophrenia recommending CR, it is still not readily available in clinical services and sizeable attrition rates are reported in clinical trials.</p><p><strong>Method: </strong>To elucidate the barriers and facilitators of CR access and engagement, we conducted a mixed methods qualitative-dominant study with 12 clinicians in Australia, in 2021, with 1 hr interviews and additional rating scales completed.</p><p><strong>Results: </strong>Thematic analysis highlighted four themes (cognitive symptoms, CR intervention, motivation and engagement in CR, and CR implementation), and 14 subthemes. Clinicians emphasized the broad impact of cognitive deficits and outlined pros and cons of different CR approaches. Several factors were suggested as impacting engagement, including motivation assessments/techniques, neurocognitive insight, illness, and demographic factors. Lack of routine implementation in Australia was unanimously espoused and partly explained by a need for cost-effectiveness analyses, remote and flexible delivery, and increasing service resource provision and staff training in CR.</p><p><strong>Conclusions: </strong>This study offers key insights into CR access, while recommending methods for optimizing CR implementation and dissemination to improve recovery outcomes of people diagnosed with schizophrenia. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"171-183"},"PeriodicalIF":2.7,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140177186","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-05-01Epub Date: 2024-03-21DOI: 10.1037/rep0000547
Maya E O'Neil, Danielle Krushnic, Kate Clauss, William Baker-Robinson, Sara Hannon, David C Cameron, Lawrence Cook, Meike Niederhausen, Josh Kaplan, Lisa A Brenner
Objective: This proof-of-concept study was conducted to establish the feasibility of compiling Federal Interagency Traumatic Brain Injury Research (FITBIR) data pertaining to depression and suicide risk, with the secondary goal of improving understanding regarding these outcomes. FITBIR is a national repository of participant-level traumatic brain injury (TBI) data designed to address methodological limitations (e.g., small sample size, heterogeneity of injuries).
Method: FITBIR studies with TBI severity and measures related to depression and suicidal ideation were identified. Data were harmonized across relevant studies and grouped to identify "probable depression" and suicidal ideation, resulting in a large, combined sample. Rates of probable depression and suicidal ideation were described across the available studies, considering the influence of demographic and/or injury-related factors on outcomes.
Results: Cross-sectional studies meeting criteria included four studies with depression outcomes and two with suicidal ideation outcomes. Two studies reported data appropriate for comparative analyses on depression. Combined results suggested that approximately 71% of participants were categorized as having probable depression. Participants with a history of mild TBI had 2.54 greater odds of probable depression (95% confidence interval [1.93, 3.34]) than those without a history of TBI.
Conclusions: Methods, harmonization code, and meta-databases related to TBI, probable depression, and suicidal ideation are now publicly available on the FITBIR website. Even with limited data, harmonization of FITBIR studies can serve as the basis for ongoing TBI and mental health research. Analyses will be more robust in the future as more studies with relevant outcome data are added to the FITBIR database. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Harmonizing federal interagency traumatic brain injury research data to examine depression and suicide-related outcomes.","authors":"Maya E O'Neil, Danielle Krushnic, Kate Clauss, William Baker-Robinson, Sara Hannon, David C Cameron, Lawrence Cook, Meike Niederhausen, Josh Kaplan, Lisa A Brenner","doi":"10.1037/rep0000547","DOIUrl":"10.1037/rep0000547","url":null,"abstract":"<p><strong>Objective: </strong>This proof-of-concept study was conducted to establish the feasibility of compiling Federal Interagency Traumatic Brain Injury Research (FITBIR) data pertaining to depression and suicide risk, with the secondary goal of improving understanding regarding these outcomes. FITBIR is a national repository of participant-level traumatic brain injury (TBI) data designed to address methodological limitations (e.g., small sample size, heterogeneity of injuries).</p><p><strong>Method: </strong>FITBIR studies with TBI severity and measures related to depression and suicidal ideation were identified. Data were harmonized across relevant studies and grouped to identify \"probable depression\" and suicidal ideation, resulting in a large, combined sample. Rates of probable depression and suicidal ideation were described across the available studies, considering the influence of demographic and/or injury-related factors on outcomes.</p><p><strong>Results: </strong>Cross-sectional studies meeting criteria included four studies with depression outcomes and two with suicidal ideation outcomes. Two studies reported data appropriate for comparative analyses on depression. Combined results suggested that approximately 71% of participants were categorized as having probable depression. Participants with a history of mild TBI had 2.54 greater odds of probable depression (95% confidence interval [1.93, 3.34]) than those without a history of TBI.</p><p><strong>Conclusions: </strong>Methods, harmonization code, and meta-databases related to TBI, probable depression, and suicidal ideation are now publicly available on the FITBIR website. Even with limited data, harmonization of FITBIR studies can serve as the basis for ongoing TBI and mental health research. Analyses will be more robust in the future as more studies with relevant outcome data are added to the FITBIR database. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"159-170"},"PeriodicalIF":2.7,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140177188","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-05-01Epub Date: 2024-03-28DOI: 10.1037/rep0000551
Guillaume Barbalat, Lisa Maréchal, Julien Plasse, Isabelle Chéreau-Boudet, Benjamin Gouache, Emilie Legros-Lafarge, Catherine Massoubre, Nathalie Guillard-Bouhet, Frédéric Haesebaert, Renaud F Cohen, Nicolas Franck
Purpose/objective: In schizophrenia, insight, the recognition that one has a medical illness that requires treatment, has long been related to deteriorated quality of life. Yet, insight and quality of life are broad constructs that encompass several dimensions. Here, we investigated differential associations between insight and quality-of-life dimensions using a psychological network approach.
Research method/design: We extracted data from the French network of rehabilitation centers REHABase (January 2016 to December 2022, N = 1,056). Our psychological network analysis modeled insight and quality of life as a network of interacting dimensions: three insight dimensions (awareness of illness, reattribution of symptoms to the disease, and recognition of treatment need) and eight quality-of-life dimensions (autonomy, physical and psychosocial well-being, relationships with family, friends and romantic partners, resilience, and self-esteem).
Results: Insight was negatively associated with quality of life. Our psychological network analysis revealed a strong negative association between awareness of disease and self-esteem. Both dimensions were the strongest nodes in the overall network. Our network analysis also revealed a significant but positive connection between recognition of treatment needs and resilience.
Conclusion/implications: While insight and quality of life are overall negatively associated, we found both negative and positive connections between insight and quality-of-life dimensions. The negative relationship between insight and quality of life may reflect the deleterious effects of diagnostic labeling on a patient's self-esteem. Yet, acknowledgment of treatment needs may have positive effects on quality of life and may promote recovery, perhaps because it emphasizes the need for support rather than labels and abnormalities. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
目的/目标:长期以来,精神分裂症患者的洞察力(即认识到自己患有需要治疗的疾病)一直与生活质量的下降有关。然而,洞察力和生活质量是包含多个方面的广泛概念。在此,我们采用心理网络方法研究了洞察力与生活质量之间的不同关联:我们从法国康复中心网络REHABase中提取了数据(2016年1月至2022年12月,N = 1,056)。我们的心理网络分析将洞察力和生活质量建模为一个由相互作用的维度组成的网络:三个洞察力维度(对疾病的认识、将症状重新归因于疾病、认识到治疗的必要性)和八个生活质量维度(自主性、身体和心理健康、与家人、朋友和恋爱伴侣的关系、复原力和自尊):洞察力与生活质量呈负相关。我们的心理网络分析显示,对疾病的认识与自尊之间存在很强的负相关。这两个维度是整个网络中最强的节点。我们的网络分析还显示,对治疗需求的认识与复原力之间存在显著但积极的联系:虽然洞察力和生活质量总体上呈负相关,但我们发现洞察力和生活质量之间既有负相关也有正相关。洞察力和生活质量之间的负相关可能反映了诊断标签对患者自尊的有害影响。然而,承认治疗需求可能会对生活质量产生积极影响,并促进康复,这可能是因为它强调的是对支持的需求,而不是标签和异常。(PsycInfo Database Record (c) 2024 APA, 版权所有)。
{"title":"Differential associations between insight and quality-of-life dimensions among individuals with schizophrenia.","authors":"Guillaume Barbalat, Lisa Maréchal, Julien Plasse, Isabelle Chéreau-Boudet, Benjamin Gouache, Emilie Legros-Lafarge, Catherine Massoubre, Nathalie Guillard-Bouhet, Frédéric Haesebaert, Renaud F Cohen, Nicolas Franck","doi":"10.1037/rep0000551","DOIUrl":"10.1037/rep0000551","url":null,"abstract":"<p><strong>Purpose/objective: </strong>In schizophrenia, insight, the recognition that one has a medical illness that requires treatment, has long been related to deteriorated quality of life. Yet, insight and quality of life are broad constructs that encompass several dimensions. Here, we investigated differential associations between insight and quality-of-life dimensions using a psychological network approach.</p><p><strong>Research method/design: </strong>We extracted data from the French network of rehabilitation centers REHABase (January 2016 to December 2022, <i>N</i> = 1,056). Our psychological network analysis modeled insight and quality of life as a network of interacting dimensions: three insight dimensions (awareness of illness, reattribution of symptoms to the disease, and recognition of treatment need) and eight quality-of-life dimensions (autonomy, physical and psychosocial well-being, relationships with family, friends and romantic partners, resilience, and self-esteem).</p><p><strong>Results: </strong>Insight was negatively associated with quality of life. Our psychological network analysis revealed a strong negative association between awareness of disease and self-esteem. Both dimensions were the strongest nodes in the overall network. Our network analysis also revealed a significant but positive connection between recognition of treatment needs and resilience.</p><p><strong>Conclusion/implications: </strong>While insight and quality of life are overall negatively associated, we found both negative and positive connections between insight and quality-of-life dimensions. The negative relationship between insight and quality of life may reflect the deleterious effects of diagnostic labeling on a patient's self-esteem. Yet, acknowledgment of treatment needs may have positive effects on quality of life and may promote recovery, perhaps because it emphasizes the need for support rather than labels and abnormalities. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"184-194"},"PeriodicalIF":2.7,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140307401","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-05-01Epub Date: 2024-01-01DOI: 10.1037/rep0000534
Petra Šilić, Catherine D Jones, Brenda Jeng, Robert W Motl
Purpose/objective: Walking dysfunction, depression, and anxiety are prevalent, burdensome, and interrelated outcomes in persons with multiple sclerosis (MS). The 12-item Multiple Sclerosis Walking Scale (MSWS-12) is a common patient-reported outcome (PRO) of walking dysfunction in research and practice involving MS, but the construct validity of its scores might be influenced by symptoms of depression and anxiety. This study examined if symptoms of depression and anxiety influenced the construct validity of MSWS-12 scores.
Research method/design: The sample included 189 participants with MS who completed the MSWS-12, Hospital Anxiety and Depression Scale (HADS-Depression subscale [HADS-D] and HADS-Anxiety subscale [HADS-A]), 6-minute walk (6MW), and timed 25-foot walk (T25FW). We conducted bivariate correlation analysis to examine the associations between MSWS-12 scores and both the 6MW and T25FW, while controlling for HADS-D and HADS-A scores.
Results: MSWS-12 scores were significantly correlated with the 6MW (r = -.752), T25FW (r = .694), HADS-D (r = .405), and HADS-A (r = .235). The correlations between MSWS-12 and 6MW (pr = -.725) and T25FW (pr = .685) did not change when controlling for HADS-D and HADS-A scores. The correlations between MSWS-12 and 6MW (r = -.708 and r = -.726) and T25FW (r = .687 and r = .748) were strong in subsamples with elevated HADS-D and HADS-A scores.
Conclusions/implications: Our results strengthen the validity evidence for MSWS-12 scores as a PRO of walking dysfunction in MS, including among those with symptoms of depression and anxiety. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
{"title":"Do depressive and anxiety symptoms influence the construct validity of Multiple Sclerosis Walking Scale-12 scores?","authors":"Petra Šilić, Catherine D Jones, Brenda Jeng, Robert W Motl","doi":"10.1037/rep0000534","DOIUrl":"10.1037/rep0000534","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Walking dysfunction, depression, and anxiety are prevalent, burdensome, and interrelated outcomes in persons with multiple sclerosis (MS). The 12-item Multiple Sclerosis Walking Scale (MSWS-12) is a common patient-reported outcome (PRO) of walking dysfunction in research and practice involving MS, but the construct validity of its scores might be influenced by symptoms of depression and anxiety. This study examined if symptoms of depression and anxiety influenced the construct validity of MSWS-12 scores.</p><p><strong>Research method/design: </strong>The sample included 189 participants with MS who completed the MSWS-12, Hospital Anxiety and Depression Scale (HADS-Depression subscale [HADS-D] and HADS-Anxiety subscale [HADS-A]), 6-minute walk (6MW), and timed 25-foot walk (T25FW). We conducted bivariate correlation analysis to examine the associations between MSWS-12 scores and both the 6MW and T25FW, while controlling for HADS-D and HADS-A scores.</p><p><strong>Results: </strong>MSWS-12 scores were significantly correlated with the 6MW (<i>r</i> = -.752), T25FW (<i>r</i> = .694), HADS-D (<i>r</i> = .405), and HADS-A (<i>r</i> = .235). The correlations between MSWS-12 and 6MW (pr = -.725) and T25FW (pr = .685) did not change when controlling for HADS-D and HADS-A scores. The correlations between MSWS-12 and 6MW (<i>r</i> = -.708 and <i>r</i> = -.726) and T25FW (<i>r</i> = .687 and <i>r</i> = .748) were strong in subsamples with elevated HADS-D and HADS-A scores.</p><p><strong>Conclusions/implications: </strong>Our results strengthen the validity evidence for MSWS-12 scores as a PRO of walking dysfunction in MS, including among those with symptoms of depression and anxiety. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"129-134"},"PeriodicalIF":2.7,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139080975","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}