Pub Date : 2025-02-01Epub Date: 2024-03-28DOI: 10.1037/rep0000543
Juan Carlos Arango-Lasprilla, Marina Zeldovich, Bryan R Christ, Daniela Ramos-Usuga, Nicole von Steinbuechel, Paul B Perrin, Diego Rivera
Purpose/objective: The aim of this article is to evaluate the measurement invariance (MI) of the Patient Health Questionnaire-9 (PHQ-9) in a sample of individuals during the first 2 years after traumatic brain injury (TBI). MI was examined among racial/ethnic groups and over time to determine the utility of the PHQ-9 across these dimensions.
Research method/design: In total, N = 3,227 (20% of the total sample) at 1 year and N = 3,153 (19% of the total sample) at 2 years were included for cross-sectional analyses. For the longitudinal analyses, participants with the PHQ-9 at both time points (N = 2,234; 14% of the total study sample) were included.
Results: Results were that the PHQ-9 is fully invariant and maintains its unidimensional factorial structure across racial/ethnic groups during the first 2 years after TBI, suggesting the scale measures the same construct equally well for participants from each group.
Conclusion/implications: Based on these results, clinicians should feel confident using the PHQ-9 with diverse TBI patient populations, and researchers can reliably and validly employ it in TBI studies across racial/ethnic groups in the United States. Given the high rates of depression among individuals after TBI and its negative impact on their lives, this instrument will continue to be a key tool to measure the prognosis and success of rehabilitation programs. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Longitudinal measurement invariance of the Patient Health Questionnaire-9 across racial/ethnic groups: Results from the traumatic brain injury model system study.","authors":"Juan Carlos Arango-Lasprilla, Marina Zeldovich, Bryan R Christ, Daniela Ramos-Usuga, Nicole von Steinbuechel, Paul B Perrin, Diego Rivera","doi":"10.1037/rep0000543","DOIUrl":"10.1037/rep0000543","url":null,"abstract":"<p><strong>Purpose/objective: </strong>The aim of this article is to evaluate the measurement invariance (MI) of the Patient Health Questionnaire-9 (PHQ-9) in a sample of individuals during the first 2 years after traumatic brain injury (TBI). MI was examined among racial/ethnic groups and over time to determine the utility of the PHQ-9 across these dimensions.</p><p><strong>Research method/design: </strong>In total, <i>N</i> = 3,227 (20% of the total sample) at 1 year and <i>N</i> = 3,153 (19% of the total sample) at 2 years were included for cross-sectional analyses. For the longitudinal analyses, participants with the PHQ-9 at both time points (<i>N</i> = 2,234; 14% of the total study sample) were included.</p><p><strong>Results: </strong>Results were that the PHQ-9 is fully invariant and maintains its unidimensional factorial structure across racial/ethnic groups during the first 2 years after TBI, suggesting the scale measures the same construct equally well for participants from each group.</p><p><strong>Conclusion/implications: </strong>Based on these results, clinicians should feel confident using the PHQ-9 with diverse TBI patient populations, and researchers can reliably and validly employ it in TBI studies across racial/ethnic groups in the United States. Given the high rates of depression among individuals after TBI and its negative impact on their lives, this instrument will continue to be a key tool to measure the prognosis and success of rehabilitation programs. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"26-35"},"PeriodicalIF":1.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140307402","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-02-01Epub Date: 2024-03-28DOI: 10.1037/rep0000557
Erica J Ho, Aaron P Turner, Mark P Jensen, Melissa A Day, Dawn M Ehde, Tracy M Anastas, Rhonda M Williams
Objective: Clinical trials often focus on symptom reduction as a primary outcome, overlooking positive psychology factors of potential importance although many individuals can and do live well with pain. The Patient-Reported Outcomes Measurement Information System (PROMIS) Psychosocial Illness Impact-Positive (PIIP) scale assesses perceptions of adaptive psychosocial functioning (e.g., coping and meaning-making) after illness onset. This study evaluated the effects of hypnosis (HYP), mindfulness meditation (MM), and pain psychoeducation (ED) on PIIP scores, using data from a completed randomized clinical trial (RCT) of complementary and integrative chronic pain interventions. We hypothesized that treatment effects on PIIP would mirror the RCT's primary pain intensity outcome, such that HYP and MM, relative to ED, would lead to greater improvements in PIIP during trial follow-up.
Method: Our sample included 262 Veterans who completed the PROMIS PIIP Short-Form 8a at pre- and posttreatment and at 3- and 6-month follow-up. Linear regression was used to test between-group differences in PIIP at each time point, controlling for baseline PIIP, average pain intensity, and baseline perceptions of prepain psychosocial functioning.
Results: There were no significant between-group differences in PIIP at posttreatment or 3-month follow-up. However, group differences emerged at 6-month follow-up: individuals randomized to MM and HYP showed improved PIIP relative to those randomized to ED.
Conclusions: Positive psychosocial outcomes are a mostly untapped territory in clinical trials of pain interventions. The present work highlights the potential benefits of including positive psychology concepts in both research and clinical contexts, emphasizing the importance of understanding human flourishing in the presence of illness and disability. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Positive impacts of psychological pain treatments: Supplementary analyses of a randomized clinical trial.","authors":"Erica J Ho, Aaron P Turner, Mark P Jensen, Melissa A Day, Dawn M Ehde, Tracy M Anastas, Rhonda M Williams","doi":"10.1037/rep0000557","DOIUrl":"10.1037/rep0000557","url":null,"abstract":"<p><strong>Objective: </strong>Clinical trials often focus on symptom reduction as a primary outcome, overlooking positive psychology factors of potential importance although many individuals can and do live well with pain. The Patient-Reported Outcomes Measurement Information System (PROMIS) Psychosocial Illness Impact-Positive (PIIP) scale assesses perceptions of adaptive psychosocial functioning (e.g., coping and meaning-making) after illness onset. This study evaluated the effects of hypnosis (HYP), mindfulness meditation (MM), and pain psychoeducation (ED) on PIIP scores, using data from a completed randomized clinical trial (RCT) of complementary and integrative chronic pain interventions. We hypothesized that treatment effects on PIIP would mirror the RCT's primary pain intensity outcome, such that HYP and MM, relative to ED, would lead to greater improvements in PIIP during trial follow-up.</p><p><strong>Method: </strong>Our sample included 262 Veterans who completed the PROMIS PIIP Short-Form 8a at pre- and posttreatment and at 3- and 6-month follow-up. Linear regression was used to test between-group differences in PIIP at each time point, controlling for baseline PIIP, average pain intensity, and baseline perceptions of prepain psychosocial functioning.</p><p><strong>Results: </strong>There were no significant between-group differences in PIIP at posttreatment or 3-month follow-up. However, group differences emerged at 6-month follow-up: individuals randomized to MM and HYP showed improved PIIP relative to those randomized to ED.</p><p><strong>Conclusions: </strong>Positive psychosocial outcomes are a mostly untapped territory in clinical trials of pain interventions. The present work highlights the potential benefits of including positive psychology concepts in both research and clinical contexts, emphasizing the importance of understanding human flourishing in the presence of illness and disability. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"36-45"},"PeriodicalIF":1.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140307403","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-02-01Epub Date: 2024-02-15DOI: 10.1037/rep0000544
Sherri L LaVela, Justina Wu, Andrea L Nevedal, Susan M Frayne, Alex H S Harris, Katherine D Arnow, Kristen Davis, Gary J Farkas, Lorena Reyes, Dan Eisenberg
Purpose/objective: Nutrition knowledge, beliefs, and behaviors have important implications for managing and preventing chronic and injury-related secondary conditions in persons with spinal cord injuries and disorders (SCI/D). Yet, the unique dietary and nutritional needs and recommendations specific to individuals with SCI/D and their eating beliefs and behaviors have been understudied. Aim is to describe nutrition and eating beliefs and behaviors from the perspectives of individuals with SCI/D.
Research method/design: Descriptive qualitative design using in-depth semistructured interviews with a national sample of veterans with SCI/D (n = 33). Audio-recorded and transcribed verbatim transcripts were coded and analyzed using thematic analysis.
Results: Participants were male (61%), aged 29-84 years, and 55% had tetraplegia. Five key themes were identified: extreme fasting/caloric restriction, perceived healthy eating behaviors, perceived unhealthy eating behaviors, modified eating behaviors due to SCI/D-related symptoms, and food/preparation choices based on abilities/independence and access.
Conclusions/implications: Nutrition among veterans with SCI/D may be impacted by many factors, such as nutrition knowledge and beliefs/behaviors about "healthy" and "unhealthy" nutrition, fasting, caloric restriction, imbalanced intake of macro- and micronutrients, overconsumption relative to energy needs, injury-related secondary complications, postinjury body composition and function changes, impairments related to satiety and hunger signals, and difficulty in obtaining and preparing food. Study findings provide many areas that would benefit from intervention. Findings can be used to inform ideal nutrition and healthy eating beliefs and behaviors which are important because nutritional inadequacies can lead to diet-related diseases, may exacerbate SCI secondary conditions, and lead to poor overall health. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Nutrition and eating beliefs and behaviors among individuals with spinal cord injuries and disorders: Healthy or misconceived?","authors":"Sherri L LaVela, Justina Wu, Andrea L Nevedal, Susan M Frayne, Alex H S Harris, Katherine D Arnow, Kristen Davis, Gary J Farkas, Lorena Reyes, Dan Eisenberg","doi":"10.1037/rep0000544","DOIUrl":"10.1037/rep0000544","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Nutrition knowledge, beliefs, and behaviors have important implications for managing and preventing chronic and injury-related secondary conditions in persons with spinal cord injuries and disorders (SCI/D). Yet, the unique dietary and nutritional needs and recommendations specific to individuals with SCI/D and their eating beliefs and behaviors have been understudied. Aim is to describe nutrition and eating beliefs and behaviors from the perspectives of individuals with SCI/D.</p><p><strong>Research method/design: </strong>Descriptive qualitative design using in-depth semistructured interviews with a national sample of veterans with SCI/D (<i>n</i> = 33). Audio-recorded and transcribed verbatim transcripts were coded and analyzed using thematic analysis.</p><p><strong>Results: </strong>Participants were male (61%), aged 29-84 years, and 55% had tetraplegia. Five key themes were identified: extreme fasting/caloric restriction, perceived healthy eating behaviors, perceived unhealthy eating behaviors, modified eating behaviors due to SCI/D-related symptoms, and food/preparation choices based on abilities/independence and access.</p><p><strong>Conclusions/implications: </strong>Nutrition among veterans with SCI/D may be impacted by many factors, such as nutrition knowledge and beliefs/behaviors about \"healthy\" and \"unhealthy\" nutrition, fasting, caloric restriction, imbalanced intake of macro- and micronutrients, overconsumption relative to energy needs, injury-related secondary complications, postinjury body composition and function changes, impairments related to satiety and hunger signals, and difficulty in obtaining and preparing food. Study findings provide many areas that would benefit from intervention. Findings can be used to inform ideal nutrition and healthy eating beliefs and behaviors which are important because nutritional inadequacies can lead to diet-related diseases, may exacerbate SCI secondary conditions, and lead to poor overall health. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"1-14"},"PeriodicalIF":1.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139736434","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-02-01Epub Date: 2024-06-24DOI: 10.1037/rep0000567
Nicola L de Souza, Katherine A Ornstein, Emily Evans, Shannon B Juengst, Kristen Dams-O'Connor, Raj G Kumar
Purpose/objective: To examine the association of changes in homebound status (i.e., never/rarely leaving the home) with life satisfaction in the first 10 years after traumatic brain injury (TBI).
Research method/design: We analyzed data from 2,294 individuals with moderate-to-severe TBI from the TBI Model Systems National Database using a longitudinal multilevel model with time-varying predictors to account for within-person changes over time as well as between-person differences. We measured homebound status (defined as leaving the home ≤ 2 days/week) and life satisfaction (defined as the total score on the Satisfaction With Life Scale) at 1, 2, 5, and 10 years post-TBI. We adjusted the models for demographic and injury-related covariates and used inverse probability weighting to account for selection bias.
Results: Forty-five (2%) individuals were homebound at all follow-up visits, 523 (22.8%) were homebound at least one follow-up visit, and 1,726 (75.2%) were never homebound. Individuals with TBI who were consistently homebound had > 1 SD lower life satisfaction compared to those who were never homebound, β = -8.07, 95% confidence interval (CI) = [-9.39, -6.76], p < .001. Individuals who became homebound experienced a significant, but modest, decline in life satisfaction (β = -2.13, 95% CI = [-2.66, -1.61], p < .001).
Conclusions/implications: Our results indicate that being homebound and becoming homebound are associated with decreased life satisfaction. Homeboundness is a potentially modifiable target to improve life satisfaction, and elucidation of contributing factors to homebound status will help develop interventions to ameliorate post-TBI homeboundness. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的/目标:研究方法/设计:我们分析了来自全国创伤性脑损伤模型系统数据库(TBI Model Systems National Database)的 2,294 名中度至重度创伤性脑损伤患者的数据,采用了一个纵向多层次模型,其中包含随时间变化的预测因子,以考虑到人体内随时间的变化以及人与人之间的差异。我们测量了创伤后 1 年、2 年、5 年和 10 年的居家状态(定义为离开家 ≤ 2 天/周)和生活满意度(定义为生活满意度量表的总分)。我们根据人口统计学和受伤相关协变量对模型进行了调整,并使用反概率加权法来考虑选择偏差:有 45 人(2%)在所有随访中都居家休养,523 人(22.8%)至少在一次随访中居家休养,1,726 人(75.2%)从未居家休养。持续居家的 TBI 患者的生活满意度比从不居家的患者低 1 SD 以上,β = -8.07,95% 置信区间 (CI) = [-9.39, -6.76],P < .001。居家者的生活满意度显著下降,但幅度不大(β = -2.13,95% 置信区间 = [-2.66, -1.61], p < .001):我们的研究结果表明,居家和变得居家与生活满意度下降有关。居家状态是改善生活满意度的潜在目标,阐明导致居家状态的因素将有助于制定干预措施,改善创伤后应激障碍患者的居家状态。(PsycInfo Database Record (c) 2024 APA, 版权所有)。
{"title":"Longitudinal associations of time-varying homeboundness and life satisfaction after traumatic brain injury.","authors":"Nicola L de Souza, Katherine A Ornstein, Emily Evans, Shannon B Juengst, Kristen Dams-O'Connor, Raj G Kumar","doi":"10.1037/rep0000567","DOIUrl":"10.1037/rep0000567","url":null,"abstract":"<p><strong>Purpose/objective: </strong>To examine the association of changes in homebound status (i.e., never/rarely leaving the home) with life satisfaction in the first 10 years after traumatic brain injury (TBI).</p><p><strong>Research method/design: </strong>We analyzed data from 2,294 individuals with moderate-to-severe TBI from the TBI Model Systems National Database using a longitudinal multilevel model with time-varying predictors to account for within-person changes over time as well as between-person differences. We measured homebound status (defined as leaving the home ≤ 2 days/week) and life satisfaction (defined as the total score on the Satisfaction With Life Scale) at 1, 2, 5, and 10 years post-TBI. We adjusted the models for demographic and injury-related covariates and used inverse probability weighting to account for selection bias.</p><p><strong>Results: </strong>Forty-five (2%) individuals were homebound at all follow-up visits, 523 (22.8%) were homebound at least one follow-up visit, and 1,726 (75.2%) were never homebound. Individuals with TBI who were consistently homebound had > 1 <i>SD</i> lower life satisfaction compared to those who were never homebound, β = -8.07, 95% confidence interval (CI) = [-9.39, -6.76], <i>p</i> < .001. Individuals who became homebound experienced a significant, but modest, decline in life satisfaction (β = -2.13, 95% CI = [-2.66, -1.61], <i>p</i> < .001).</p><p><strong>Conclusions/implications: </strong>Our results indicate that being homebound and becoming homebound are associated with decreased life satisfaction. Homeboundness is a potentially modifiable target to improve life satisfaction, and elucidation of contributing factors to homebound status will help develop interventions to ameliorate post-TBI homeboundness. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"94-103"},"PeriodicalIF":1.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11666807/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141447370","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Christine L Petranovich, Samantha Koerber, Cristina Sarmiento, Sarah Graber, Michael Dichiaro, Pamela Wilson, Andrea Miele, Robin L Peterson, Tess Simpson, Amy K Connery, Michael W Kirkwood, Susan Apkon
Purpose/objective: The transition from childhood to adulthood often involves emotional challenges. These problems may be especially prominent for transition-age adults (TAA) with pediatric-onset disabilities, although there are currently few studies that speak to this. The aim of this study is to characterize depressive symptoms and the association with family functioning in a sample of TAA with pediatric-onset disabilities.
Research method/design: This sample is comprised of 55 TAA (18-28 years of age, M = 20.88, SD = 2.49) who were followed by pediatric rehabilitation medicine clinics. Participants have childhood acquired brain injury (n = 17), spina bifida (n = 10), or neuromuscular disorders (n = 28). Participants completed the Center for Epidemiological Studies-Depression scale and the Family Assessment Device Short Form.
Results: Clinically elevated depressive symptoms were endorsed by 65.4% of the sample. Forty-five percent of those with elevated depressive symptoms were not currently receiving psychotherapy services. Poorer family functioning on the Family Assessment Device Short Form and older age were independently associated with more depressive symptoms, controlling for medical condition, mobility status, and other relevant sociodemographic factors.
Conclusions/implications: Emotional problems are quite common in TAA with a history of acquired brain injury, spina bifida, and neuromuscular disorders, yet are seemingly inadequately managed. In view of the results of this study, TAA with pediatric-onset disabilities are likely to benefit from interventions that bolster emotional well-being and target risk factors related to their family system. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Emotional well-being in transition-age adults with pediatric-onset disabilities: A cross-sectional study.","authors":"Christine L Petranovich, Samantha Koerber, Cristina Sarmiento, Sarah Graber, Michael Dichiaro, Pamela Wilson, Andrea Miele, Robin L Peterson, Tess Simpson, Amy K Connery, Michael W Kirkwood, Susan Apkon","doi":"10.1037/rep0000599","DOIUrl":"https://doi.org/10.1037/rep0000599","url":null,"abstract":"<p><strong>Purpose/objective: </strong>The transition from childhood to adulthood often involves emotional challenges. These problems may be especially prominent for transition-age adults (TAA) with pediatric-onset disabilities, although there are currently few studies that speak to this. The aim of this study is to characterize depressive symptoms and the association with family functioning in a sample of TAA with pediatric-onset disabilities.</p><p><strong>Research method/design: </strong>This sample is comprised of 55 TAA (18-28 years of age, <i>M</i> = 20.88, <i>SD</i> = 2.49) who were followed by pediatric rehabilitation medicine clinics. Participants have childhood acquired brain injury (<i>n</i> = 17), spina bifida (<i>n</i> = 10), or neuromuscular disorders (<i>n</i> = 28). Participants completed the Center for Epidemiological Studies-Depression scale and the Family Assessment Device Short Form.</p><p><strong>Results: </strong>Clinically elevated depressive symptoms were endorsed by 65.4% of the sample. Forty-five percent of those with elevated depressive symptoms were not currently receiving psychotherapy services. Poorer family functioning on the Family Assessment Device Short Form and older age were independently associated with more depressive symptoms, controlling for medical condition, mobility status, and other relevant sociodemographic factors.</p><p><strong>Conclusions/implications: </strong>Emotional problems are quite common in TAA with a history of acquired brain injury, spina bifida, and neuromuscular disorders, yet are seemingly inadequately managed. In view of the results of this study, TAA with pediatric-onset disabilities are likely to benefit from interventions that bolster emotional well-being and target risk factors related to their family system. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-01-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142972781","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Purpose: This article will review the historical underpinnings of informed consent and decisional capacity, current practices, and potential evolving future modifications or elaborations of decision-making practices in clinical settings.
Method: Ethical and legal foundations for informed consent for health care are reviewed. Contemporary issues with decision making, clinical capacity, and proxy decision making in rehabilitation psychology practice are discussed with a specific focus on health care decision making.
Conclusions: As a subspecialist in psychology, a rehabilitation psychologist necessarily seeks to incorporate a working knowledge of its historical anchors while simultaneously seeking changes sensitive to honoring and advocating for the rights of the individuals whom they serve. The contributions of the disability rights movement have been immeasurable in ensuring that those most impacted with potential challenges to their right to self-determine their choices across a wide range of psycholegal issues are safeguarded. As rehabilitation psychologists, we must remain steadfast stewards and constructive supporters of those under our care through protecting and advocating for their rights. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的:本文将回顾知情同意和决策能力的历史基础,当前的实践,以及临床环境中决策实践的潜在演变或阐述。方法:回顾卫生保健知情同意的伦理和法律基础。当代问题与决策,临床能力和代理决策在康复心理学实践讨论与卫生保健决策的具体重点。结论:作为心理学的一个分支专家,康复心理学家必须寻求将其历史锚的工作知识纳入其中,同时寻求敏感的变化,以尊重和倡导他们所服务的个人的权利。残疾人权利运动的贡献是不可估量的,它确保了那些受影响最严重的人在各种心理问题上的自我决定选择权受到潜在挑战的权利得到保障。作为康复心理学家,我们必须通过保护和倡导他们的权利,成为我们所照顾的人的坚定管家和建设性支持者。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Decision-making capacity in rehabilitation psychology practice: Historical, contemporary, and future perspectives.","authors":"Kathleen T Bechtold, James W Mikesell","doi":"10.1037/rep0000604","DOIUrl":"https://doi.org/10.1037/rep0000604","url":null,"abstract":"<p><strong>Purpose: </strong>This article will review the historical underpinnings of informed consent and decisional capacity, current practices, and potential evolving future modifications or elaborations of decision-making practices in clinical settings.</p><p><strong>Method: </strong>Ethical and legal foundations for informed consent for health care are reviewed. Contemporary issues with decision making, clinical capacity, and proxy decision making in rehabilitation psychology practice are discussed with a specific focus on health care decision making.</p><p><strong>Conclusions: </strong>As a subspecialist in psychology, a rehabilitation psychologist necessarily seeks to incorporate a working knowledge of its historical anchors while simultaneously seeking changes sensitive to honoring and advocating for the rights of the individuals whom they serve. The contributions of the disability rights movement have been immeasurable in ensuring that those most impacted with potential challenges to their right to self-determine their choices across a wide range of psycholegal issues are safeguarded. As rehabilitation psychologists, we must remain steadfast stewards and constructive supporters of those under our care through protecting and advocating for their rights. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-01-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142972779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Bettina K Doering, Anna Künemund, Sarah Zwick, Jana Hansmeier, Cornelia Exner, Dirk Lubbe
Purpose/objective: This study investigated the development of posttraumatic growth (PTG) in relatively young persons with stroke. It examined the contribution of potential predictive variables and their changes over time.
Research method/design: Participants completed questionnaires at baseline (n = 78, median time since injury = 47 days) and 3 (n = 53) and 6 months (n = 47) later. Each assessment included the Posttraumatic Growth Inventory, the COPE Inventory, and the Centrality of Event Scale. Data were analyzed using a sequence of linear mixed effect models.
Results: PTG was evident at baseline, but did not significantly increase over time. Higher event centrality, approach-oriented coping, and lower coping flexibility at baseline were associated with higher PTG 6 months later. Higher coping flexibility at baseline and an increase in event centrality were associated with a more positive trend in PTG over time. The final model explained 67% of variance in PTG. Time since injury, age, gender, social support seeking, and avoidance coping did not contribute significantly.
Conclusion/implications: Individual changes in the predictors contributed to high and stable PTG. How central the stroke was perceived to one's identity was the most important predictor for the absolute level of PTG as well as its change over time. This illustrates the complex and dynamic development of PTG. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
{"title":"Posttraumatic growth after stroke: A longitudinal observational study.","authors":"Bettina K Doering, Anna Künemund, Sarah Zwick, Jana Hansmeier, Cornelia Exner, Dirk Lubbe","doi":"10.1037/rep0000600","DOIUrl":"https://doi.org/10.1037/rep0000600","url":null,"abstract":"<p><strong>Purpose/objective: </strong>This study investigated the development of posttraumatic growth (PTG) in relatively young persons with stroke. It examined the contribution of potential predictive variables and their changes over time.</p><p><strong>Research method/design: </strong>Participants completed questionnaires at baseline (<i>n</i> = 78, median time since injury = 47 days) and 3 (<i>n</i> = 53) and 6 months (<i>n</i> = 47) later. Each assessment included the Posttraumatic Growth Inventory, the COPE Inventory, and the Centrality of Event Scale. Data were analyzed using a sequence of linear mixed effect models.</p><p><strong>Results: </strong>PTG was evident at baseline, but did not significantly increase over time. Higher event centrality, approach-oriented coping, and lower coping flexibility at baseline were associated with higher PTG 6 months later. Higher coping flexibility at baseline and an increase in event centrality were associated with a more positive trend in PTG over time. The final model explained 67% of variance in PTG. Time since injury, age, gender, social support seeking, and avoidance coping did not contribute significantly.</p><p><strong>Conclusion/implications: </strong>Individual changes in the predictors contributed to high and stable PTG. How central the stroke was perceived to one's identity was the most important predictor for the absolute level of PTG as well as its change over time. This illustrates the complex and dynamic development of PTG. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-01-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142956901","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nazanin M Heydarian, Scott D Frankowski, Moonju Lee, Kyeung Mi Oh, Kyungeh An, Chanam Shin, Allyson S Hughes, Rishika Kartik, Kathleen R Bogart
Objective: Disability stigma has been linked with adverse chronic and acute health outcomes in people with disabilities. The present study updated the widely used Attitudes Toward Disabled Persons measure (to the revised Attitudes Toward People With Disabilities [ATPD] scale) among health care professionals and validated the measure using a disability stigma framework.
Design: A survey with 272 health care professionals and students was conducted.
Results: Regression analyses revealed that men, compared to women and nonbinary people, scored higher on disability stigma. Quality of contact, but not quantity of contact nor disability status was associated with less stigmatized attitudes. Those who scored higher on agreeableness, openness, and conscientiousness also scored lower on stigmatizing attitudes about people with disabilities. Furthermore, psychological inflexibility, social dominance orientation, and authoritarianism were all positive predictors of stigmatizing attitudes about people with disabilities. Finally, we found that medical model endorsement, but not social model endorsement positively predicted stigmatizing attitudes as measured by the revised ATPD scale.
Conclusion: Our findings validate the revised ATPD scale and illuminate disability stigma as expressed by a diverse sample of health care professionals. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的:残疾耻辱感与残疾人的不良慢性和急性健康结果有关。本研究在卫生保健专业人员中更新了广泛使用的对残疾人的态度量表(修订后的对残疾人的态度量表),并使用残疾污名框架验证了该量表。设计:对272名卫生保健专业人员和学生进行调查。结果:回归分析显示,与女性和非二元性别人群相比,男性在残疾耻辱感上得分更高。接触的质量,而不是接触的数量或残疾状况与较少被污名化的态度有关。那些在亲和性、开放性和尽责性方面得分较高的人在对残疾人的污名化态度方面得分也较低。此外,心理不灵活性、社会支配倾向和权威主义都是对残疾人污名化态度的正向预测因子。最后,我们发现医学模式认可正向预测污名化态度,而非社会模式认可正向预测污名化态度。结论:我们的研究结果验证了修订后的ATPD量表,并阐明了不同医疗保健专业人员所表达的残疾耻辱感。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Validating the revised Attitudes Toward People With Disabilities Scale with health care professionals.","authors":"Nazanin M Heydarian, Scott D Frankowski, Moonju Lee, Kyeung Mi Oh, Kyungeh An, Chanam Shin, Allyson S Hughes, Rishika Kartik, Kathleen R Bogart","doi":"10.1037/rep0000594","DOIUrl":"https://doi.org/10.1037/rep0000594","url":null,"abstract":"<p><strong>Objective: </strong>Disability stigma has been linked with adverse chronic and acute health outcomes in people with disabilities. The present study updated the widely used Attitudes Toward Disabled Persons measure (to the revised Attitudes Toward People With Disabilities [ATPD] scale) among health care professionals and validated the measure using a disability stigma framework.</p><p><strong>Design: </strong>A survey with 272 health care professionals and students was conducted.</p><p><strong>Results: </strong>Regression analyses revealed that men, compared to women and nonbinary people, scored higher on disability stigma. Quality of contact, but not quantity of contact nor disability status was associated with less stigmatized attitudes. Those who scored higher on agreeableness, openness, and conscientiousness also scored lower on stigmatizing attitudes about people with disabilities. Furthermore, psychological inflexibility, social dominance orientation, and authoritarianism were all positive predictors of stigmatizing attitudes about people with disabilities. Finally, we found that medical model endorsement, but not social model endorsement positively predicted stigmatizing attitudes as measured by the revised ATPD scale.</p><p><strong>Conclusion: </strong>Our findings validate the revised ATPD scale and illuminate disability stigma as expressed by a diverse sample of health care professionals. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142933022","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Objective: Self-awareness (SA) is a crucial component of the neurorehabilitation processes for persons with acquired brain injury. Specific intervention programs to improve SA have been developed and implemented with heterogeneous results. The current study was undertaken to summarize this evidence by conducting a systematic review of relevant literature and to perform a meta-analysis of the most reliable and important results.
Method: A systematic literature search made in May 2023 across three databases (Web of Science, PubMed, and PsycINFO) resulted in a final selection of 16 primary studies based on 17 different groups.
Results: In an initial meta-analysis, the effect sizes were calculated as the standardized d, that is, pre-post change scores corrected for bias. Using a random-effects model, we obtained a significant mean effect size for the interventions, k = 17, g = 0.6404 [0.411, 0.870] with significant heterogeneity among the studies, Q(16) = 43.06, p < .001, and a significant, but modest publication bias. Moderator analysis showed that the SA intervention efficacy could be improved by "metacognition" as an intervention technique. A second meta-analysis was carried out considering the seven studies with between-subjects designs, and again a significant mean effect size was obtained, k = 7, g = 0.6713 [0.403, 0.94].
Conclusion: Overall, the present study provided positive evidence to support the efficacy of specific SA interventions in adults with acquired brain injury. Further studies are warranted to explore the mechanisms by which SA interventions exert their effects. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的:自我意识(SA)是后天性脑损伤患者神经康复过程的重要组成部分。改善SA的具体干预方案已被开发和实施,结果不尽相同。本研究通过对相关文献进行系统回顾,并对最可靠和最重要的结果进行荟萃分析,总结了这一证据。方法:于2023年5月在三个数据库(Web of Science, PubMed和PsycINFO)中进行系统文献检索,最终选择了17个不同组的16项主要研究。结果:在最初的荟萃分析中,效应量以标准化的d来计算,即校正偏差后的改变前得分。使用随机效应模型,我们获得了干预措施的显著平均效应大小,k = 17, g = 0.6404[0.411, 0.870],研究之间存在显著异质性,Q(16) = 43.06, p < .001,并且存在显著但适度的发表偏倚。调节分析表明,“元认知”作为干预手段,可以提高情景认知干预的效果。对采用受试者间设计的7项研究进行第二次meta分析,同样获得显著的平均效应量,k = 7, g = 0.6713[0.403, 0.94]。结论:总的来说,本研究为支持特异性SA干预对成人获得性脑损伤的疗效提供了积极的证据。需要进一步的研究来探索SA干预发挥其作用的机制。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Self-awareness interventions after acquired brain injury: A systematic review and meta-analysis.","authors":"Dolores Villalobos, Umberto Bivona, Juan Botella","doi":"10.1037/rep0000598","DOIUrl":"https://doi.org/10.1037/rep0000598","url":null,"abstract":"<p><strong>Objective: </strong>Self-awareness (SA) is a crucial component of the neurorehabilitation processes for persons with acquired brain injury. Specific intervention programs to improve SA have been developed and implemented with heterogeneous results. The current study was undertaken to summarize this evidence by conducting a systematic review of relevant literature and to perform a meta-analysis of the most reliable and important results.</p><p><strong>Method: </strong>A systematic literature search made in May 2023 across three databases (Web of Science, PubMed, and PsycINFO) resulted in a final selection of 16 primary studies based on 17 different groups.</p><p><strong>Results: </strong>In an initial meta-analysis, the effect sizes were calculated as the standardized d, that is, pre-post change scores corrected for bias. Using a random-effects model, we obtained a significant mean effect size for the interventions, <i>k</i> = 17, <i>g</i> = 0.6404 [0.411, 0.870] with significant heterogeneity among the studies, <i>Q</i>(16) = 43.06, <i>p</i> < .001, and a significant, but modest publication bias. Moderator analysis showed that the SA intervention efficacy could be improved by \"metacognition\" as an intervention technique. A second meta-analysis was carried out considering the seven studies with between-subjects designs, and again a significant mean effect size was obtained, <i>k</i> = 7, <i>g</i> = 0.6713 [0.403, 0.94].</p><p><strong>Conclusion: </strong>Overall, the present study provided positive evidence to support the efficacy of specific SA interventions in adults with acquired brain injury. Further studies are warranted to explore the mechanisms by which SA interventions exert their effects. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142932842","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Purpose/objective: People often view individuals with disabilities as incapable of working, contributing to society, and forming relationships. Therefore, it is important to develop interventions to reduce those negative stereotypes. Increasing accurate disability representation is one way to counteract those stereotypes. The present study's aim was to examine the impact of disability representation on disability stigma.
Research method/design: Participants consisted of 246 people from the U.S. general population who were randomized into one of three vignette groups: counterstereotypical representation (read about individuals with disabilities who were thriving), stereotypical representation (read about individuals with disabilities who were struggling), and a control group (read about able-bodied individuals who were thriving). Visual analog scales assessing disability stigma were completed pre- and postexposure to the vignettes.
Results: Disability stigma significantly decreased in the counterstereotypical group, significantly increased in the stereotypical group, and did not change in the control group from pre- to postexposure. At postexposure, the counterstereotypical group had significantly lower disability stigma than the stereotypical group, and the stereotypical group had significantly higher disability stigma than the control group.
Conclusion/implications: It would be valuable for the media to increase counterstereotypical representations and decrease stereotypical representations of individuals with disabilities. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
目的/目标:人们通常认为残疾人不能工作,不能为社会做贡献,不能建立人际关系。因此,制定干预措施以减少这些负面刻板印象是很重要的。增加准确的残疾代表是消除这些刻板印象的一种方法。本研究的目的是探讨残疾代表对残疾污名的影响。研究方法/设计:参与者由246名来自美国普通人群的人组成,他们被随机分为三个小插图组:反刻板印象组(阅读关于残疾人茁壮成长的文章),刻板印象组(阅读关于残疾人挣扎的文章)和对照组(阅读关于健全的人茁壮成长的文章)。评估残疾耻辱感的视觉模拟量表在接触小插图之前和之后完成。结果:反刻板印象组的残疾污名显著减少,刻板印象组的残疾污名显著增加,而对照组的残疾污名在接触前后没有变化。在接触后,反刻板印象组的残疾耻辱感显著低于刻板印象组,而刻板印象组的残疾耻辱感显著高于对照组。结论/启示:媒体增加对残疾人的反刻板印象,减少对残疾人的刻板印象是有价值的。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"The impact of disability representation on disability stigma in a general population.","authors":"Sarah Todd Hammer, Lauren A Stutts","doi":"10.1037/rep0000601","DOIUrl":"https://doi.org/10.1037/rep0000601","url":null,"abstract":"<p><strong>Purpose/objective: </strong>People often view individuals with disabilities as incapable of working, contributing to society, and forming relationships. Therefore, it is important to develop interventions to reduce those negative stereotypes. Increasing accurate disability representation is one way to counteract those stereotypes. The present study's aim was to examine the impact of disability representation on disability stigma.</p><p><strong>Research method/design: </strong>Participants consisted of 246 people from the U.S. general population who were randomized into one of three vignette groups: counterstereotypical representation (read about individuals with disabilities who were thriving), stereotypical representation (read about individuals with disabilities who were struggling), and a control group (read about able-bodied individuals who were thriving). Visual analog scales assessing disability stigma were completed pre- and postexposure to the vignettes.</p><p><strong>Results: </strong>Disability stigma significantly decreased in the counterstereotypical group, significantly increased in the stereotypical group, and did not change in the control group from pre- to postexposure. At postexposure, the counterstereotypical group had significantly lower disability stigma than the stereotypical group, and the stereotypical group had significantly higher disability stigma than the control group.</p><p><strong>Conclusion/implications: </strong>It would be valuable for the media to increase counterstereotypical representations and decrease stereotypical representations of individuals with disabilities. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.9,"publicationDate":"2025-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142932854","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}