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"I would not want my leg back": Living experiences of adult amputees following intensive functional rehabilitation. “我不想要我的腿回来”:成年截肢者在强化功能康复后的生活经历。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-01 Epub Date: 2025-05-12 DOI: 10.1037/rep0000617
Joel Montanez, Dahlia Kairy, Maxime Gilbert, Nicolas Gulino, Ilja Ormel, Ruth Pytka-Jones, Susan Law

Purpose: Individuals living with amputations following intensive functional rehabilitation (IFR) represent an under-researched group in Quebec. This pilot study aimed to examine the health experiences of adults living with an amputation in Quebec by exploring their personal narratives. Design/Research Method: A qualitative descriptive design was adopted aiming to capture and convey the lived experiences of people with lower limb amputations or upper limb amputations who, at any point of their lives, followed IFR. Individual qualitative interviews with 10 adult amputees were conducted between 2018 and 2019.

Results: Thematic analysis revealed seven key themes: (a) overcoming public scrutiny; (b) intrapersonal challenges; (c) stakeholders as sources of motivation; (d) the role of play; (e) recognizing normality in situations of disability; (f) acceptance and personal development; and (g) shortcomings in IFR services.

Conclusion: This research stresses the impact IFR and long-term follow-up can pose on physical and psychosocial development and on going back to a normalized lifestyle. As such, fostering stakeholders for motivational support, strengthening work and sports activities focused on challenging and playful activities to improve limb-loss-affected skills, and providing sustained rehabilitation support, appear to facilitate recovery, postamputation development, and psychosocial adaptation. Improved access to information on postrehabilitation aids, including financial rights and prosthetics, appears important. Although the study sample was restricted in terms of representation, the findings may support the consideration of diverse patient perspectives and distinct types of amputations to better understand the impact of IFR and follow-up throughout the lifespan. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:在魁北克,生活在强化功能康复(IFR)之后的截肢患者代表了一个研究不足的群体。这项试点研究旨在通过探索魁北克截肢成人的个人叙述来检查他们的健康经历。设计/研究方法:采用定性描述性设计,旨在捕捉和传达下肢或上肢截肢者在其生命的任何时刻遵循IFR的生活经历。在2018年至2019年期间,对10名成年截肢者进行了个体定性访谈。结果:专题分析揭示了七个关键主题:(a)克服公众监督;(b)个人挑战;(c)利益相关者作为激励的来源;(d)扮演的角色;(e)承认残疾情况下的正常情况;(f)接纳和个人发展;(g) IFR服务的缺点。结论:本研究强调IFR和长期随访对身体和心理发展以及回归正常生活方式的影响。因此,培养利益相关者的动机支持,加强工作和体育活动,重点关注具有挑战性和趣味性的活动,以提高肢体丧失的技能,并提供持续的康复支持,似乎有助于康复,截肢后的发展和社会心理适应。改善获得康复后辅助工具信息的途径,包括经济权利和假肢,似乎很重要。虽然研究样本在代表性方面受到限制,但研究结果可能支持考虑不同的患者观点和不同类型的截肢,以更好地了解IFR的影响和整个生命周期的随访。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
Posttraumatic growth after stroke: A longitudinal observational study. 中风后创伤后生长:一项纵向观察研究。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-01 Epub Date: 2025-01-09 DOI: 10.1037/rep0000600
Bettina K Doering, Anna Künemund, Sarah Zwick, Jana Hansmeier, Cornelia Exner, Dirk Lubbe

Purpose/objective: This study investigated the development of posttraumatic growth (PTG) in relatively young persons with stroke. It examined the contribution of potential predictive variables and their changes over time.

Research method/design: Participants completed questionnaires at baseline (n = 78, median time since injury = 47 days) and 3 (n = 53) and 6 months (n = 47) later. Each assessment included the Posttraumatic Growth Inventory, the COPE Inventory, and the Centrality of Event Scale. Data were analyzed using a sequence of linear mixed effect models.

Results: PTG was evident at baseline, but did not significantly increase over time. Higher event centrality, approach-oriented coping, and lower coping flexibility at baseline were associated with higher PTG 6 months later. Higher coping flexibility at baseline and an increase in event centrality were associated with a more positive trend in PTG over time. The final model explained 67% of variance in PTG. Time since injury, age, gender, social support seeking, and avoidance coping did not contribute significantly.

Conclusion/implications: Individual changes in the predictors contributed to high and stable PTG. How central the stroke was perceived to one's identity was the most important predictor for the absolute level of PTG as well as its change over time. This illustrates the complex and dynamic development of PTG. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目的:本研究探讨相对年轻的脑卒中患者创伤后生长(PTG)的发展。它考察了潜在预测变量的贡献及其随时间的变化。研究方法/设计:参与者在基线(n = 78,中位受伤时间= 47天)、3个月(n = 53)和6个月(n = 47)后完成问卷调查。每项评估包括创伤后成长量表、COPE量表和事件中心性量表。使用一系列线性混合效应模型对数据进行分析。结果:PTG在基线时很明显,但随着时间的推移没有显著增加。基线时较高的事件中心性、方法导向的应对和较低的应对灵活性与6个月后较高的PTG相关。随着时间的推移,较高的基线应对灵活性和事件中心性的增加与更积极的PTG趋势相关。最终模型解释了PTG 67%的方差。自受伤时间、年龄、性别、社会支持寻求和回避应对无显著影响。结论/意义:预测因子的个体变化有助于高且稳定的PTG。对于PTG的绝对水平及其随时间的变化来说,中风对一个人身份的中心感知程度是最重要的预测因素。这说明了PTG发展的复杂性和动态性。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
Validating the revised Attitudes Toward People With Disabilities Scale with health care professionals. 卫生保健专业人员对修订后的残疾人态度量表的验证。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-01 Epub Date: 2025-01-06 DOI: 10.1037/rep0000594
Nazanin M Heydarian, Scott D Frankowski, Moonju Lee, Kyeung Mi Oh, Kyungeh An, Chanam Shin, Allyson S Hughes, Rishika Kartik, Kathleen R Bogart

Objective: Disability stigma has been linked with adverse chronic and acute health outcomes in people with disabilities. The present study updated the widely used Attitudes Toward Disabled Persons measure (to the revised Attitudes Toward People With Disabilities [ATPD] scale) among health care professionals and validated the measure using a disability stigma framework.

Design: A survey with 272 health care professionals and students was conducted.

Results: Regression analyses revealed that men, compared to women and nonbinary people, scored higher on disability stigma. Quality of contact, but not quantity of contact nor disability status was associated with less stigmatized attitudes. Those who scored higher on agreeableness, openness, and conscientiousness also scored lower on stigmatizing attitudes about people with disabilities. Furthermore, psychological inflexibility, social dominance orientation, and authoritarianism were all positive predictors of stigmatizing attitudes about people with disabilities. Finally, we found that medical model endorsement, but not social model endorsement positively predicted stigmatizing attitudes as measured by the revised ATPD scale.

Conclusion: Our findings validate the revised ATPD scale and illuminate disability stigma as expressed by a diverse sample of health care professionals. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:残疾耻辱感与残疾人的不良慢性和急性健康结果有关。本研究在卫生保健专业人员中更新了广泛使用的对残疾人的态度量表(修订后的对残疾人的态度量表),并使用残疾污名框架验证了该量表。设计:对272名卫生保健专业人员和学生进行调查。结果:回归分析显示,与女性和非二元性别人群相比,男性在残疾耻辱感上得分更高。接触的质量,而不是接触的数量或残疾状况与较少被污名化的态度有关。那些在亲和性、开放性和尽责性方面得分较高的人在对残疾人的污名化态度方面得分也较低。此外,心理不灵活性、社会支配倾向和权威主义都是对残疾人污名化态度的正向预测因子。最后,我们发现医学模式认可正向预测污名化态度,而非社会模式认可正向预测污名化态度。结论:我们的研究结果验证了修订后的ATPD量表,并阐明了不同医疗保健专业人员所表达的残疾耻辱感。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
Cognitive and social determinants affecting driving after moderate-to-severe traumatic brain injury. 中重度脑外伤后影响驾驶的认知和社会决定因素。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-01 Epub Date: 2025-03-13 DOI: 10.1037/rep0000609
Christina A DiBlasio, Thomas Novack, Laura E Dreer, Despina Stavrinos, Michael Crowe, Lisa Rapport, Thomas Watanabe, Charles Bombardier, Thomas F Bergquist, Candace Tefertiller, William C Walker, Robert Brunner, Richard Kennedy

Purpose/objective: Moderate-to-severe traumatic brain injury (TBI) often results in cognitive deficits that hinder the ability to drive an automobile, which in turn hinders independence and quality of life. Determinants affecting the relationship between impaired cognition and return to driving have been understudied. The current study examined the relationship between cognition and driving status following moderate-to-severe TBI.

Research method/design: Participants were 585 adults aged 19-96 (70% male) who sustained a moderate-to-severe TBI and were enrolled in the TBI Model System. Cross-sectional data were obtained (2018-2019) 1-30 years post injury (M = 8.2 years). Relationships were examined between driving status (active drivers vs. nondrivers), cognitive function (verbal memory, executive function), and covariates (demographics; injury factors including motor function; social factors).

Results: About 70% were driving at interview. Higher memory (OR = 1.36, p < 0.05) and executive function (OR = 1.38, p < .001) scores predicted active driving status; however, the relationships were not significant when the covariates were included. Family income, motor function, and history of seizure were related to driving status (all p < .05). Income and motor function were related to memory and executive function (all p < .001), whereas seizure history was not.

Conclusion/implications: Memory and executive function are significantly associated with driving status following TBI, but these relationships dissipate after accounting for sociodemographic/injury factors, particularly family income and motor function. Further research is needed to understand the interplay of cognition with other factors in return to driving decisions. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目的:中度至重度创伤性脑损伤(TBI)通常会导致认知缺陷,从而影响驾驶汽车的能力,进而影响独立性和生活质量。影响认知障碍与重返驾驶之间关系的决定因素尚未得到充分研究。本研究考察了中重度脑外伤后认知与驾驶状态之间的关系。研究方法/设计:参与者为585名年龄在19-96岁之间的成人(70%为男性),均为中度至重度TBI患者,并被纳入TBI模型系统。横断面数据采集(2018-2019)伤后1-30年(M = 8.2年)。研究了驾驶状态(主动驾驶员与非驾驶员)、认知功能(言语记忆、执行功能)和协变量(人口统计学;损伤因素包括运动功能;社会因素)。结果:约70%的人在面试时开车。较高的记忆(OR = 1.36, p < 0.05)和执行功能(OR = 1.38, p < 0.001)分数预测主动驾驶状态;然而,当包括协变量时,这种关系并不显著。家庭收入、运动功能、癫痫发作史与驾驶状态相关(均p < 0.05)。收入和运动功能与记忆和执行功能相关(均p < 0.001),而癫痫发作史与记忆和执行功能无关。结论/意义:脑外伤后,记忆和执行功能与驾驶状态显著相关,但考虑到社会人口统计学/损伤因素,特别是家庭收入和运动功能后,这些关系消失。需要进一步的研究来了解认知与其他因素的相互作用,从而推动决策。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
Examining the construct validity of posttraumatic growth following moderate-severe traumatic brain injury: A mixed-methods analysis. 中重度颅脑损伤后创伤后生长的结构效度检验:一种混合方法分析。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-01 Epub Date: 2025-02-10 DOI: 10.1037/rep0000596
Stephanie Agtarap, Mackenzie Peckham, Marissa Lundstern, Steve Bistricky, Adriel Boals, Jennifer Gallagher, Robin Hanks, Daniel W Klyce, Paul B Perrin

Purpose/objective: Posttraumatic growth (PTG) refers to positive changes that individuals experience in the wake of a stressful or traumatic event. Though growth and adaptation are considered ideal outcomes of rehabilitation, the extent to which PTG captures the unique experience of individuals with traumatic brain injury (TBI) has not been empirically evaluated. The purpose of the current study was to establish construct validity of PTG for individuals following moderate-severe TBI.

Research method: Forty participants who received inpatient or outpatient rehabilitation services for moderate-severe TBI and who were > 1 year postinjury completed a one-time phone interview of mental health and quality of life assessments, and answered a free-response question about significant life changes after injury. Using convergent parallel design, scores on the Posttraumatic Growth Inventory (PTGI) were compared to other assessments and themes of PTG and posttraumatic depreciation derived through thematic analysis.

Results: PTGI total scores (M = 66.60, SD = 21.79) were similar to other brain injury populations respective to time since injury (M = 11.20 years). Qualitatively derived themes of PTG aligned with domains of the PTGI, and endorsement of PTG was significantly associated with greater mental health and social support.

Discussion: This study provides evidence of the existence of PTG and posttraumatic depreciation in a sample of individuals with moderate-severe TBI, supporting its construct validity using mixed-methods data. Our findings may be helpful in identifying what significant changes may indicate significant growth and depreciation during the rehabilitation process, and be critical mechanisms for optimal psychosocial adjustment following brain injury. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目标:创伤后成长(PTG)是指个体在经历压力或创伤事件后所经历的积极变化。虽然生长和适应被认为是康复的理想结果,但PTG在多大程度上反映了创伤性脑损伤(TBI)患者的独特经历,尚未得到实证评估。本研究的目的是建立PTG对中重度脑外伤患者的结构效度。研究方法:对40例接受住院或门诊康复治疗的中重度脑外伤患者进行一次性电话访谈,评估其心理健康和生活质量,并回答损伤后显著生活变化的自由回答问题。采用趋同平行设计,将创伤后成长量表(PTGI)的得分与其他评估以及通过主题分析得出的PTG和创伤后折旧的主题进行比较。结果:PTGI总评分(M = 66.60, SD = 21.79)与其他脑损伤人群在损伤时间(M = 11.20年)上相似。PTG的定性衍生主题与PTGI的领域一致,并且PTG的认可与更高的心理健康和社会支持显着相关。讨论:本研究在中重度TBI患者样本中提供了PTG和创伤后折旧存在的证据,使用混合方法数据支持其结构有效性。我们的研究结果可能有助于确定在康复过程中哪些显著变化可能表明显著的生长和衰减,并且是脑损伤后最佳心理社会适应的关键机制。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Examining the construct validity of posttraumatic growth following moderate-severe traumatic brain injury: A mixed-methods analysis.","authors":"Stephanie Agtarap, Mackenzie Peckham, Marissa Lundstern, Steve Bistricky, Adriel Boals, Jennifer Gallagher, Robin Hanks, Daniel W Klyce, Paul B Perrin","doi":"10.1037/rep0000596","DOIUrl":"10.1037/rep0000596","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Posttraumatic growth (PTG) refers to positive changes that individuals experience in the wake of a stressful or traumatic event. Though growth and adaptation are considered ideal outcomes of rehabilitation, the extent to which PTG captures the unique experience of individuals with traumatic brain injury (TBI) has not been empirically evaluated. The purpose of the current study was to establish construct validity of PTG for individuals following moderate-severe TBI.</p><p><strong>Research method: </strong>Forty participants who received inpatient or outpatient rehabilitation services for moderate-severe TBI and who were > 1 year postinjury completed a one-time phone interview of mental health and quality of life assessments, and answered a free-response question about significant life changes after injury. Using convergent parallel design, scores on the Posttraumatic Growth Inventory (PTGI) were compared to other assessments and themes of PTG and posttraumatic depreciation derived through thematic analysis.</p><p><strong>Results: </strong>PTGI total scores (<i>M</i> = 66.60, <i>SD</i> = 21.79) were similar to other brain injury populations respective to time since injury (<i>M</i> = 11.20 years). Qualitatively derived themes of PTG aligned with domains of the PTGI, and endorsement of PTG was significantly associated with greater mental health and social support.</p><p><strong>Discussion: </strong>This study provides evidence of the existence of PTG and posttraumatic depreciation in a sample of individuals with moderate-severe TBI, supporting its construct validity using mixed-methods data. Our findings may be helpful in identifying what significant changes may indicate significant growth and depreciation during the rehabilitation process, and be critical mechanisms for optimal psychosocial adjustment following brain injury. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"457-471"},"PeriodicalIF":1.7,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392312","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychosexual well-being following spinal cord injury: Perspectives of adults with spinal cord injury and rehabilitation clinicians. 脊髓损伤后的性心理健康:脊髓损伤成人和康复临床医生的观点。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-01 Epub Date: 2024-11-11 DOI: 10.1037/rep0000591
Nicole Sharf, Angelika Kudla, Jennifer Burns, Linda Ehrlich-Jones, Allen W Heinemann

Objectives: This study aimed to identify important mental health topics for people with spinal cord injuries (PwSCI) and garner insights from health care clinicians working with this population. In doing so, we identified psychosocial adaptations in the context of sexuality, intimacy, and reproductive health.

Method: A qualitative, phenomenological approach was used, with 60-90-min virtual focus groups involving PwSCI, rehabilitation clinicians, and psychologists. Themes were identified through deductive and inductive transcript analysis. Eligibility for PwSCI included: (a) SCI for ≥ 1 year, (b) 18+ years, (c) U.S. residency, (d) conversational English skills, and (e) cognitive capacity to provide informed consent. Clinicians required ≥ 5 years of rehabilitation experience.

Results: Sixteen PwSCI, eight rehabilitation clinicians, and four psychologists participated. Three major themes emerged: (1) The effects of SCI on relationships with noninjured significant others with subthemes of (a) internalized and partnered ableism in intimate relationships and (b) navigating care partner dynamics and resource gaps; (2) sexual self-esteem with subthemes of (a) gender role adaptation and (b) body image concerns; and (3) challenges in sexual and reproductive health with subthemes of (a) family planning and self-advocacy in health care settings, (b) access to specialized care, and (c) health care provider competence.

Conclusions: This report illuminates the complex effects of SCI on their relationships with noninjured partners, revealing how internalized and partnered ableism can heighten feelings of inadequacy and alter relationship dynamics. These findings underscore the need for more research, support, and services in sexual and reproductive health for all PwSCI. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

研究目的本研究旨在确定脊髓损伤患者(PwSCI)的重要心理健康主题,并从为该人群提供医疗服务的临床医生那里获得见解。在此过程中,我们确定了在性行为、亲密关系和生殖健康方面的心理社会适应:方法:我们采用了定性、现象学的方法,通过 60-90 分钟的虚拟焦点小组讨论,参与者包括精神病患者、康复临床医生和心理学家。通过演绎和归纳笔录分析确定主题。SCI 患者的资格包括(a) SCI ≥ 1 年;(b) 18 岁以上;(c) 美国居民;(d) 英语会话能力;(e) 具有提供知情同意的认知能力。临床医生的康复经验要求≥5年:结果:16 名儿童社会心理学家、8 名康复临床医生和 4 名心理学家参与了此次调查。出现了三大主题:(1) SCI 对与非受伤重要他人关系的影响,其次要主题为:(a) 亲密关系中的内化和伴侣能力歧视,(b) 处理护理伴侣动态和资源缺口;(2) 性自尊,其次要主题为:(a) 性别角色适应,(b) 身体形象问题;(3) 性健康和生殖健康方面的挑战,其次要主题为:(a) 医疗环境中的计划生育和自我主张,(b) 获得专门护理,(c) 医疗服务提供者的能力。结论:本报告揭示了 SCI 对其与未受伤伴侣之间关系的复杂影响,揭示了内化的和伴侣间的能力歧视是如何加剧不足感和改变关系动态的。这些发现强调了为所有 SCI 患者提供更多性健康和生殖健康方面的研究、支持和服务的必要性。(PsycInfo Database Record (c) 2024 APA,保留所有权利)。
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引用次数: 0
Development and validation of the Physical Disability Identity Scale: A multistudy quantitative investigation with participant feedback. 肢体残疾认同量表的开发与验证:一项有参与者反馈的多研究定量调查。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-01 Epub Date: 2025-02-13 DOI: 10.1037/rep0000606
Payton D Rule, Kaylin Ratner, Emily C Willroth, Patrick L Hill

Purpose/objective: Disability has traditionally been viewed as a deficit in psychology research; however, accruing work suggests that viewing disability as an identity may be protective for mental health and well-being among disabled individuals. Therefore, developing disability identity measures that comprehensively capture this view of disability as an identity is an important step for promoting disabled individuals' flourishing.

Research method/design: To address this, we conducted two studies aimed at developing and validating a new scale to measure physical disability identity among adults with physical disability. In Study 1 (N = 104), we solicited feedback on our new scale from adults with physical disabilities and revised our scale to ensure that it captured their lived experiences. In Study 2 (N = 296), we tested the factor structure of the new Physical Disability Identity Scale. All data were collected in 2023.

Results: Most participants reported that our scale was easy to comprehend and comprehensively captured their lived experiences. We found evidence for a six-factor structure of the new Physical Disability Identity Scale, which assessed the following dimensions: Connection, Satisfaction, Centrality, Openness, Individual Self-Stereotyping, and Disability Lens. In addition, results suggested that Connection, Satisfaction, and Openness were adaptively related to well-being and health, whereas Centrality, Individual Self-Stereotyping, and Disability Lens were mostly adversely related to well-being and health.

Conclusion/implications: This research suggests that our Physical Disability Identity Scale is valid among adults with physical disabilities and that physical disability identity dimensions may be valuable to consider in future work on well-being and health among individuals with physical disabilities. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目标:残疾传统上被视为心理学研究的缺陷;然而,越来越多的工作表明,将残疾视为一种身份可能对残疾人的心理健康和福祉有保护作用。因此,制定全面捕捉残疾作为一种身份的观点的残疾认同措施是促进残疾人发展的重要一步。研究方法/设计:为了解决这一问题,我们进行了两项研究,旨在开发和验证一种新的测量身体残疾成年人身体残疾身份的量表。在研究1 (N = 104)中,我们征求了身体残疾成年人对我们的新量表的反馈,并对我们的量表进行了修订,以确保它能捕捉到他们的生活经历。在研究2 (N = 296)中,我们检验了新版肢体残疾认同量表的因素结构。所有数据于2023年收集。结果:大多数参与者报告我们的量表易于理解,并全面地捕捉了他们的生活经历。我们发现了新的身体残疾认同量表的六因素结构的证据,该量表评估以下维度:联系、满意度、中心性、开放性、个人自我刻板印象和残疾镜头。此外,结果表明,连接、满意度和开放性与幸福感和健康存在自适应相关,而中心性、个体自我刻板印象和残疾镜头与幸福感和健康存在负相关。结论/启示:本研究表明,我们的身体残疾认同量表在成人身体残疾中是有效的,并且身体残疾认同维度可能在未来的身体残疾个体的福祉和健康研究中有价值。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"Development and validation of the Physical Disability Identity Scale: A multistudy quantitative investigation with participant feedback.","authors":"Payton D Rule, Kaylin Ratner, Emily C Willroth, Patrick L Hill","doi":"10.1037/rep0000606","DOIUrl":"10.1037/rep0000606","url":null,"abstract":"<p><strong>Purpose/objective: </strong>Disability has traditionally been viewed as a deficit in psychology research; however, accruing work suggests that viewing disability as an identity may be protective for mental health and well-being among disabled individuals. Therefore, developing disability identity measures that comprehensively capture this view of disability as an identity is an important step for promoting disabled individuals' flourishing.</p><p><strong>Research method/design: </strong>To address this, we conducted two studies aimed at developing and validating a new scale to measure physical disability identity among adults with physical disability. In Study 1 (<i>N</i> = 104), we solicited feedback on our new scale from adults with physical disabilities and revised our scale to ensure that it captured their lived experiences. In Study 2 (<i>N</i> = 296), we tested the factor structure of the new Physical Disability Identity Scale. All data were collected in 2023.</p><p><strong>Results: </strong>Most participants reported that our scale was easy to comprehend and comprehensively captured their lived experiences. We found evidence for a six-factor structure of the new Physical Disability Identity Scale, which assessed the following dimensions: Connection, Satisfaction, Centrality, Openness, Individual Self-Stereotyping, and Disability Lens. In addition, results suggested that Connection, Satisfaction, and Openness were adaptively related to well-being and health, whereas Centrality, Individual Self-Stereotyping, and Disability Lens were mostly adversely related to well-being and health.</p><p><strong>Conclusion/implications: </strong>This research suggests that our Physical Disability Identity Scale is valid among adults with physical disabilities and that physical disability identity dimensions may be valuable to consider in future work on well-being and health among individuals with physical disabilities. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"508-521"},"PeriodicalIF":1.7,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12344462/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143415838","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Self-awareness interventions after acquired brain injury: A systematic review and meta-analysis. 获得性脑损伤后的自我意识干预:一项系统综述和荟萃分析。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-01 Epub Date: 2025-01-06 DOI: 10.1037/rep0000598
Dolores Villalobos, Umberto Bivona, Juan Botella

Objective: Self-awareness (SA) is a crucial component of the neurorehabilitation processes for persons with acquired brain injury. Specific intervention programs to improve SA have been developed and implemented with heterogeneous results. The current study was undertaken to summarize this evidence by conducting a systematic review of relevant literature and to perform a meta-analysis of the most reliable and important results.

Method: A systematic literature search made in May 2023 across three databases (Web of Science, PubMed, and PsycINFO) resulted in a final selection of 16 primary studies based on 17 different groups.

Results: In an initial meta-analysis, the effect sizes were calculated as the standardized d, that is, pre-post change scores corrected for bias. Using a random-effects model, we obtained a significant mean effect size for the interventions, k = 17, g = 0.6404 [0.411, 0.870] with significant heterogeneity among the studies, Q(16) = 43.06, p < .001, and a significant, but modest publication bias. Moderator analysis showed that the SA intervention efficacy could be improved by "metacognition" as an intervention technique. A second meta-analysis was carried out considering the seven studies with between-subjects designs, and again a significant mean effect size was obtained, k = 7, g = 0.6713 [0.403, 0.94].

Conclusion: Overall, the present study provided positive evidence to support the efficacy of specific SA interventions in adults with acquired brain injury. Further studies are warranted to explore the mechanisms by which SA interventions exert their effects. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:自我意识(SA)是后天性脑损伤患者神经康复过程的重要组成部分。改善SA的具体干预方案已被开发和实施,结果不尽相同。本研究通过对相关文献进行系统回顾,并对最可靠和最重要的结果进行荟萃分析,总结了这一证据。方法:于2023年5月在三个数据库(Web of Science, PubMed和PsycINFO)中进行系统文献检索,最终选择了17个不同组的16项主要研究。结果:在最初的荟萃分析中,效应量以标准化的d来计算,即校正偏差后的改变前得分。使用随机效应模型,我们获得了干预措施的显著平均效应大小,k = 17, g = 0.6404[0.411, 0.870],研究之间存在显著异质性,Q(16) = 43.06, p < .001,并且存在显著但适度的发表偏倚。调节分析表明,“元认知”作为干预手段,可以提高情景认知干预的效果。对采用受试者间设计的7项研究进行第二次meta分析,同样获得显著的平均效应量,k = 7, g = 0.6713[0.403, 0.94]。结论:总的来说,本研究为支持特异性SA干预对成人获得性脑损伤的疗效提供了积极的证据。需要进一步的研究来探索SA干预发挥其作用的机制。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
The impact of disability representation on disability stigma in a general population. 在一般人群中,残疾代表对残疾污名的影响。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-01 Epub Date: 2025-01-06 DOI: 10.1037/rep0000601
Sarah Todd Hammer, Lauren A Stutts

Purpose/objective: People often view individuals with disabilities as incapable of working, contributing to society, and forming relationships. Therefore, it is important to develop interventions to reduce those negative stereotypes. Increasing accurate disability representation is one way to counteract those stereotypes. The present study's aim was to examine the impact of disability representation on disability stigma.

Research method/design: Participants consisted of 246 people from the U.S. general population who were randomized into one of three vignette groups: counterstereotypical representation (read about individuals with disabilities who were thriving), stereotypical representation (read about individuals with disabilities who were struggling), and a control group (read about able-bodied individuals who were thriving). Visual analog scales assessing disability stigma were completed pre- and postexposure to the vignettes.

Results: Disability stigma significantly decreased in the counterstereotypical group, significantly increased in the stereotypical group, and did not change in the control group from pre- to postexposure. At postexposure, the counterstereotypical group had significantly lower disability stigma than the stereotypical group, and the stereotypical group had significantly higher disability stigma than the control group.

Conclusion/implications: It would be valuable for the media to increase counterstereotypical representations and decrease stereotypical representations of individuals with disabilities. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的/目标:人们通常认为残疾人不能工作,不能为社会做贡献,不能建立人际关系。因此,制定干预措施以减少这些负面刻板印象是很重要的。增加准确的残疾代表是消除这些刻板印象的一种方法。本研究的目的是探讨残疾代表对残疾污名的影响。研究方法/设计:参与者由246名来自美国普通人群的人组成,他们被随机分为三个小插图组:反刻板印象组(阅读关于残疾人茁壮成长的文章),刻板印象组(阅读关于残疾人挣扎的文章)和对照组(阅读关于健全的人茁壮成长的文章)。评估残疾耻辱感的视觉模拟量表在接触小插图之前和之后完成。结果:反刻板印象组的残疾污名显著减少,刻板印象组的残疾污名显著增加,而对照组的残疾污名在接触前后没有变化。在接触后,反刻板印象组的残疾耻辱感显著低于刻板印象组,而刻板印象组的残疾耻辱感显著高于对照组。结论/启示:媒体增加对残疾人的反刻板印象,减少对残疾人的刻板印象是有价值的。(PsycInfo Database Record (c) 2025 APA,版权所有)。
{"title":"The impact of disability representation on disability stigma in a general population.","authors":"Sarah Todd Hammer, Lauren A Stutts","doi":"10.1037/rep0000601","DOIUrl":"10.1037/rep0000601","url":null,"abstract":"<p><strong>Purpose/objective: </strong>People often view individuals with disabilities as incapable of working, contributing to society, and forming relationships. Therefore, it is important to develop interventions to reduce those negative stereotypes. Increasing accurate disability representation is one way to counteract those stereotypes. The present study's aim was to examine the impact of disability representation on disability stigma.</p><p><strong>Research method/design: </strong>Participants consisted of 246 people from the U.S. general population who were randomized into one of three vignette groups: counterstereotypical representation (read about individuals with disabilities who were thriving), stereotypical representation (read about individuals with disabilities who were struggling), and a control group (read about able-bodied individuals who were thriving). Visual analog scales assessing disability stigma were completed pre- and postexposure to the vignettes.</p><p><strong>Results: </strong>Disability stigma significantly decreased in the counterstereotypical group, significantly increased in the stereotypical group, and did not change in the control group from pre- to postexposure. At postexposure, the counterstereotypical group had significantly lower disability stigma than the stereotypical group, and the stereotypical group had significantly higher disability stigma than the control group.</p><p><strong>Conclusion/implications: </strong>It would be valuable for the media to increase counterstereotypical representations and decrease stereotypical representations of individuals with disabilities. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":"365-371"},"PeriodicalIF":1.7,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142932854","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Online family training after traumatic brain injury: A parallel randomized control trial. 外伤性脑损伤后的在线家庭训练:一项平行随机对照试验。
IF 1.7 4区 医学 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-01 Epub Date: 2025-02-10 DOI: 10.1037/rep0000605
Christina M Karns, Laurie Powell, Karen A Durany, Jody Slocumb, Laura Beck, Jeff Gau, Ann Glang

Objective: To evaluate an online intervention to support family members of individuals who sustained a traumatic brain injury (TBI).

Research design: Randomized control trial. Parallel assignment to TBI Family Support (TBIFS) intervention or enhanced usual care control (TAU). Three testing timepoints: pretest baseline (T1), posttest within 2 weeks of assignment (T2), and follow-up 1 month after posttest (T3).

Setting: Online.

Participants: Sixty-eight caregivers recruited nationally: 18 years of age or older, English speaking, providing primary caregiving to an adult family member with TBI and mild to moderate disability.

Intervention: Eight interactive modules providing information about cognitive, behavioral, and social consequences of TBI, training in problem-solving framework, and application exercises (N = 35). TAU was an informational website (N = 33).

Measures: Proximal outcomes-program use, usability, and user satisfaction for TBIFS participants. Primary outcomes-TBI content knowledge, strategy application objective response and open-ended response, and strategy-application confidence. Secondary outcomes-appraisals of burden, satisfaction, uncertainty in mastery, guilt, and negative environment.

Results: Proximal outcomes-about 80% of TBIFS participants completed the posttest assessment, and 91% reported moderate to high usability and user satisfaction. Primary outcomes-greater posttest gains in TBI content knowledge for TBIFS than TAU (t = 3.53, p = .0005, adjusted p = .0090, d = 0.91). Gains maintained through follow-up (t = 2.89, p = .0038, adjusted p = .0342, d = 0.90). No other effects for the primary or secondary outcomes.

Conclusion: TBIFS improved TBI content knowledge relative to TAU. Modifications might be needed to improve application and distal outcomes for caregivers. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

目的:评估在线干预对创伤性脑损伤(TBI)患者家庭成员的支持。研究设计:随机对照试验。并行分配到TBI家庭支持(TBIFS)干预或增强常规护理控制(TAU)。三个测试时间点:前测基线(T1),后测2周内分配(T2),后测1个月后随访(T3)。设置:在线。参与者:全国招募的68名护理人员:年龄在18岁或以上,会说英语,为患有TBI和轻度至中度残疾的成年家庭成员提供主要护理。干预:8个互动模块,提供关于脑损伤的认知、行为和社会后果的信息,解决问题框架的培训,以及应用练习(N = 35)。TAU是一个信息性网站(N = 33)。测量:TBIFS参与者的最近结果-程序使用,可用性和用户满意度。主要结果- tbi内容知识,策略应用的客观反应和开放式反应,以及策略应用的信心。次要结果-负担、满意度、掌握的不确定性、内疚和消极环境的评估。结果:近端结果-约80%的TBIFS参与者完成了测试后评估,91%的参与者报告了中等到高的可用性和用户满意度。主要结局- TBIFS患者在TBI内容知识方面的测试后获益大于TAU患者(t = 3.53, p = 0.0005,调整后p = 0.0090, d = 0.91)。随访期间收益保持不变(t = 2.89, p = 0.0038,调整后p = 0.0342, d = 0.90)。对主要或次要结局无其他影响。结论:相对于TAU, TBIFS提高了TBI含量知识。修改可能需要改善应用和远端结果的照顾者。(PsycInfo Database Record (c) 2025 APA,版权所有)。
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引用次数: 0
期刊
Rehabilitation Psychology
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